Re: questions re: viral test results

[Guest guest]

Sounds like you have the doctor I would like to have....

Anne

>

> Hello all. We just got our sons viral tests back, here is what we

> show. I'm wondering what to do now...

>

> EBV VCA: 1692 ref range 0-99 neg, 100-120 eq, >120 positive

>

> EBV NA: 590 ref range 0-99 neg, 100-120 eq, >120 positive

>

> rubeola: 2.02 ref range 0-.9, >1.10 positive

>

> mumps: 3.01 ref range 0-.9, >1.10 positive

>

> CMV: 2.40 ref range 0-.9, >1.0 positive

>

> So, what does this all mean? those EBV numbers really blew me out

of

> the water, would that indicate a current (and apparently massive)

> infection? Man...

>

> I guess valtrex city, here we come! then do I follow that with

> Vitamin A for the rubeola? Or do I do high dose vitamin A first,

then

> valtrex later?

>

> I thought I had it all figured out - rubeola I would do vitamin A,

> anything else valtrex, I wasn't expecting so see so much in the

> positive range.

>

> Is the rubeola number abnormally high, or just showing he has

immunity

> to it? I am pondering trying to find a DAN for viral, as our DAN

> isn't very open to all this from what I have heard from other

> patients. I can get valtrex from another doctor (who is covered

by my

> insurance) no problem, but he is not a DAN (just our FP) and

doesn't

> know much of anything about all this, he just does what I ask as

long

> as I agree to be liable for my requests and I'm not asking for

> anything crazy. right now he writes scripts for DMSA for me and

does

> the labs I request when I request them. As long as we dump metals

and

> have normal CBC/CMP labs, he is ok with it all.

>

> Anyone have any input or advice? Thanks so much...

>

>

>

[Guest guest]

Sounds like you have the doctor I would like to have....

Anne

>

> Hello all. We just got our sons viral tests back, here is what we

> show. I'm wondering what to do now...

>

> EBV VCA: 1692 ref range 0-99 neg, 100-120 eq, >120 positive

>

> EBV NA: 590 ref range 0-99 neg, 100-120 eq, >120 positive

>

> rubeola: 2.02 ref range 0-.9, >1.10 positive

>

> mumps: 3.01 ref range 0-.9, >1.10 positive

>

> CMV: 2.40 ref range 0-.9, >1.0 positive

>

> So, what does this all mean? those EBV numbers really blew me out

of

> the water, would that indicate a current (and apparently massive)

> infection? Man...

>

> I guess valtrex city, here we come! then do I follow that with

> Vitamin A for the rubeola? Or do I do high dose vitamin A first,

then

> valtrex later?

>

> I thought I had it all figured out - rubeola I would do vitamin A,

> anything else valtrex, I wasn't expecting so see so much in the

> positive range.

>

> Is the rubeola number abnormally high, or just showing he has

immunity

> to it? I am pondering trying to find a DAN for viral, as our DAN

> isn't very open to all this from what I have heard from other

> patients. I can get valtrex from another doctor (who is covered

by my

> insurance) no problem, but he is not a DAN (just our FP) and

doesn't

> know much of anything about all this, he just does what I ask as

long

> as I agree to be liable for my requests and I'm not asking for

> anything crazy. right now he writes scripts for DMSA for me and

does

> the labs I request when I request them. As long as we dump metals

and

> have normal CBC/CMP labs, he is ok with it all.

>

> Anyone have any input or advice? Thanks so much...

>

>

>

[Guest guest]

,

I recently got my son's (5 yrs, ASD) viral panel back from Labcorp

and the numbers are even higher than your son's on every test (and

for about 8 others, including very high strep numbers). We have been

doing IVIG for 16 months, Valtrex for 7 months, high dose vitamin A 3

times, LDN for 8 months, and a ton of other biomed. Dr Usman felt

that some of the reason his numbers were so high is that his immune

system was actually working better than in the past (we did some of

these tests about 18 months ago and all the numbers have gone up, not

down...). She had us stop Valtrex temporarily and go on PRX (a

stronger verson of Virastop only sold to medical professions) and OLE

(3 times a day for both), along with diflucan. She also suggested

that I do the Yasko metal RNAs (we are mostly following the Yasko

protocol already), of which many are targeted at viruses. You can

read more about these at www.autismanswer.com, under the parent forum

but it is hard to follow...).

My son is doing well (although I am attributing his recent surge in

language and social to NCD which we started before the antivirals)

and it is too soon to tell if this antiviral protocol is working for

him. He has been on PRX/OLE/Diflucan about 2 1/2 weeks and no

regression or rashes at all. I have not started the metal RNAs yet.

I would be interested to hear what your doctor tells you or for

anyone else's input.

>

> Hello all. We just got our sons viral tests back, here is what we

> show. I'm wondering what to do now...

>

> EBV VCA: 1692 ref range 0-99 neg, 100-120 eq, >120 positive

>

> EBV NA: 590 ref range 0-99 neg, 100-120 eq, >120 positive

>

> rubeola: 2.02 ref range 0-.9, >1.10 positive

>

> mumps: 3.01 ref range 0-.9, >1.10 positive

>

> CMV: 2.40 ref range 0-.9, >1.0 positive

>

> So, what does this all mean? those EBV numbers really blew me out

of

> the water, would that indicate a current (and apparently massive)

> infection? Man...

>

> I guess valtrex city, here we come! then do I follow that with

> Vitamin A for the rubeola? Or do I do high dose vitamin A first,

then

> valtrex later?

[Guest guest]

,

I recently got my son's (5 yrs, ASD) viral panel back from Labcorp

and the numbers are even higher than your son's on every test (and

for about 8 others, including very high strep numbers). We have been

doing IVIG for 16 months, Valtrex for 7 months, high dose vitamin A 3

times, LDN for 8 months, and a ton of other biomed. Dr Usman felt

that some of the reason his numbers were so high is that his immune

system was actually working better than in the past (we did some of

these tests about 18 months ago and all the numbers have gone up, not

down...). She had us stop Valtrex temporarily and go on PRX (a

stronger verson of Virastop only sold to medical professions) and OLE

(3 times a day for both), along with diflucan. She also suggested

that I do the Yasko metal RNAs (we are mostly following the Yasko

protocol already), of which many are targeted at viruses. You can

read more about these at www.autismanswer.com, under the parent forum

but it is hard to follow...).

My son is doing well (although I am attributing his recent surge in

language and social to NCD which we started before the antivirals)

and it is too soon to tell if this antiviral protocol is working for

him. He has been on PRX/OLE/Diflucan about 2 1/2 weeks and no

regression or rashes at all. I have not started the metal RNAs yet.

I would be interested to hear what your doctor tells you or for

anyone else's input.

>

> Hello all. We just got our sons viral tests back, here is what we

> show. I'm wondering what to do now...

>

> EBV VCA: 1692 ref range 0-99 neg, 100-120 eq, >120 positive

>

> EBV NA: 590 ref range 0-99 neg, 100-120 eq, >120 positive

>

> rubeola: 2.02 ref range 0-.9, >1.10 positive

>

> mumps: 3.01 ref range 0-.9, >1.10 positive

>

> CMV: 2.40 ref range 0-.9, >1.0 positive

>

> So, what does this all mean? those EBV numbers really blew me out

of

> the water, would that indicate a current (and apparently massive)

> infection? Man...

>

> I guess valtrex city, here we come! then do I follow that with

> Vitamin A for the rubeola? Or do I do high dose vitamin A first,

then

> valtrex later?

[Guest guest]

Hi all, and StanThis is McNulty, mom to age 9 with ASD in Thousand Oaks. I'm fairly convinced viruses afre a problem for , and Have asked our DAN! doctor, Dr. Hirani to consider Valtrex. She wants to run a viral panel first to get a baseline. She mentioned the McCandless viral panel — which I think we did a couple years ago - super high titiers to American Measles - can't IMAGINE where he got that....;(  Anyway, I'm sorry, I'm still trying to catch up with the reading for newbies in this group... we just got back from vacation tonight, and have a blood draw scheduled on Thursday afternoon at Dr. Hirani's office. Is there a SPECIFIC viral panel that is recommended, Stan??? Or anyone else know? I'm pretty sure the one Dr. Hirani's talking about covers the ones below.I once had a conversation with Stan though, and he said it is his feeling that there are likely unidentified viruses out there, that may not show up on the viral panel, and even if your child does NOT show high titers, may still benefit from Valtrex.In the fall of '04. Sept to Dec, for 4 months we did IVIG with Dr. Gupta. It was absolute hell for my son making him go on an IV all day. BUT... he was not sick ONCE after we started, and I had a kid who was very prone to getting ear infections, colds, URI's, ect. It was two months after stopping IVIG, that he came down with something again. I really think it helped his immune system, but I think we need to do more. Most people who commit to IVIG do it longer. We just couldn't. Cost was one factor... emotional trauma the main factor.So maybe the Valtrex will help us knock this thing out.We are also starting on Diflucan tomorrow. He is having really strange behaviors after topical DMSA, which Dr. Hirani says may be yeast. I listened to Stan's Autism One talk (the link provided when I joined) and he said the (DMSA?) made him feel terrible. I think it is more than a yeast flare which is affecting after DMSA. I guess I need to try it on myself as well. (I'm sort of chicken... I'm SO chemically sensitive, maybe my son is as well.) McNultyjennim@...  On Jun 20, 2006, at 2:44 PM, LKMIZE wrote:Hello all. We just got our sons viral tests back, here is what weshow. I'm wondering what to do now...EBV VCA: 1692 ref range 0-99 neg, 100-120 eq, >120 positiveEBV NA: 590 ref range 0-99 neg, 100-120 eq, >120 positiverubeola: 2.02 ref range 0-.9, >1.10 positivemumps: 3.01 ref range 0-.9, >1.10 positiveCMV: 2.40 ref range 0-.9, >1.0 positiveSo, what does this all mean? those EBV numbers really blew me out ofthe water, would that indicate a current (and apparently massive)infection? Man... I guess valtrex city, here we come! then do I follow that withVitamin A for the rubeola? Or do I do high dose vitamin A first, thenvaltrex later? I thought I had it all figured out - rubeola I would do vitamin A,anything else valtrex, I wasn't expecting so see so much in thepositive range. Is the rubeola number abnormally high, or just showing he has immunityto it? I am pondering trying to find a DAN for viral, as our DANisn't very open to all this from what I have heard from otherpatients. I can get valtrex from another doctor (who is covered by myinsurance) no problem, but he is not a DAN (just our FP) and doesn'tknow much of anything about all this, he just does what I ask as longas I agree to be liable for my requests and I'm not asking foranything crazy. right now he writes scripts for DMSA for me and doesthe labs I request when I request them. As long as we dump metals andhave normal CBC/CMP labs, he is ok with it all. Anyone have any input or advice? Thanks so much...

[Guest guest]

Hi all, and StanThis is McNulty, mom to age 9 with ASD in Thousand Oaks. I'm fairly convinced viruses afre a problem for , and Have asked our DAN! doctor, Dr. Hirani to consider Valtrex. She wants to run a viral panel first to get a baseline. She mentioned the McCandless viral panel — which I think we did a couple years ago - super high titiers to American Measles - can't IMAGINE where he got that....;(  Anyway, I'm sorry, I'm still trying to catch up with the reading for newbies in this group... we just got back from vacation tonight, and have a blood draw scheduled on Thursday afternoon at Dr. Hirani's office. Is there a SPECIFIC viral panel that is recommended, Stan??? Or anyone else know? I'm pretty sure the one Dr. Hirani's talking about covers the ones below.I once had a conversation with Stan though, and he said it is his feeling that there are likely unidentified viruses out there, that may not show up on the viral panel, and even if your child does NOT show high titers, may still benefit from Valtrex.In the fall of '04. Sept to Dec, for 4 months we did IVIG with Dr. Gupta. It was absolute hell for my son making him go on an IV all day. BUT... he was not sick ONCE after we started, and I had a kid who was very prone to getting ear infections, colds, URI's, ect. It was two months after stopping IVIG, that he came down with something again. I really think it helped his immune system, but I think we need to do more. Most people who commit to IVIG do it longer. We just couldn't. Cost was one factor... emotional trauma the main factor.So maybe the Valtrex will help us knock this thing out.We are also starting on Diflucan tomorrow. He is having really strange behaviors after topical DMSA, which Dr. Hirani says may be yeast. I listened to Stan's Autism One talk (the link provided when I joined) and he said the (DMSA?) made him feel terrible. I think it is more than a yeast flare which is affecting after DMSA. I guess I need to try it on myself as well. (I'm sort of chicken... I'm SO chemically sensitive, maybe my son is as well.) McNultyjennim@...  On Jun 20, 2006, at 2:44 PM, LKMIZE wrote:Hello all. We just got our sons viral tests back, here is what weshow. I'm wondering what to do now...EBV VCA: 1692 ref range 0-99 neg, 100-120 eq, >120 positiveEBV NA: 590 ref range 0-99 neg, 100-120 eq, >120 positiverubeola: 2.02 ref range 0-.9, >1.10 positivemumps: 3.01 ref range 0-.9, >1.10 positiveCMV: 2.40 ref range 0-.9, >1.0 positiveSo, what does this all mean? those EBV numbers really blew me out ofthe water, would that indicate a current (and apparently massive)infection? Man... I guess valtrex city, here we come! then do I follow that withVitamin A for the rubeola? Or do I do high dose vitamin A first, thenvaltrex later? I thought I had it all figured out - rubeola I would do vitamin A,anything else valtrex, I wasn't expecting so see so much in thepositive range. Is the rubeola number abnormally high, or just showing he has immunityto it? I am pondering trying to find a DAN for viral, as our DANisn't very open to all this from what I have heard from otherpatients. I can get valtrex from another doctor (who is covered by myinsurance) no problem, but he is not a DAN (just our FP) and doesn'tknow much of anything about all this, he just does what I ask as longas I agree to be liable for my requests and I'm not asking foranything crazy. right now he writes scripts for DMSA for me and doesthe labs I request when I request them. As long as we dump metals andhave normal CBC/CMP labs, he is ok with it all. Anyone have any input or advice? Thanks so much...

[Guest guest]

Hi All

Where can i get a hearing test done for a nonverbal kid?

I did it earlier with Santa Clara Valley Medical Center and they just said within normal limits.

I want a place where they can be more specific like saying really good,moderate or bad.

What might be the reason for twisting fingers?

Thanks

Rajee

Re: questions re: viral test results

Hi all, and Stan

This is McNulty, mom to age 9 with ASD in Thousand Oaks. I'm fairly convinced viruses afre a problem for , and Have asked our DAN! doctor, Dr. Hirani to consider Valtrex. She wants to run a viral panel first to get a baseline. She mentioned the McCandless viral panel — which I think we did a couple years ago - super high titiers to American Measles - can't IMAGINE where he got that....;( Anyway, I'm sorry, I'm still trying to catch up with the reading for newbies in this group... we just got back from vacation tonight, and have a blood draw scheduled on Thursday afternoon at Dr. Hirani's office. Is there a SPECIFIC viral panel that is recommended, Stan??? Or anyone else know? I'm pretty sure the one Dr. Hirani's talking about covers the ones below.

I once had a conversation with Stan though, and he said it is his feeling that there are likely unidentified viruses out there, that may not show up on the viral panel, and even if your child does NOT show high titers, may still benefit from Valtrex.

In the fall of '04. Sept to Dec, for 4 months we did IVIG with Dr. Gupta. It was absolute hell for my son making him go on an IV all day. BUT... he was not sick ONCE after we started, and I had a kid who was very prone to getting ear infections, colds, URI's, ect. It was two months after stopping IVIG, that he came down with something again. I really think it helped his immune system, but I think we need to do more. Most people who commit to IVIG do it longer. We just couldn't. Cost was one factor... emotional trauma the main factor.

So maybe the Valtrex will help us knock this thing out.

We are also starting on Diflucan tomorrow. He is having really strange behaviors after topical DMSA, which Dr. Hirani says may be yeast. I listened to Stan's Autism One talk (the link provided when I joined) and he said the (DMSA?) made him feel terrible. I think it is more than a yeast flare which is affecting after DMSA. I guess I need to try it on myself as well. (I'm sort of chicken... I'm SO chemically sensitive, maybe my son is as well.)

McNulty

jennim@...

On Jun 20, 2006, at 2:44 PM, LKMIZE wrote:

Hello all. We just got our sons viral tests back, here is what weshow. I'm wondering what to do now...EBV VCA: 1692 ref range 0-99 neg, 100-120 eq, >120 positiveEBV NA: 590 ref range 0-99 neg, 100-120 eq, >120 positiverubeola: 2.02 ref range 0-.9, >1.10 positivemumps: 3.01 ref range 0-.9, >1.10 positiveCMV: 2.40 ref range 0-.9, >1.0 positiveSo, what does this all mean? those EBV numbers really blew me out ofthe water, would that indicate a current (and apparently massive)infection? Man... I guess valtrex city, here we come! then do I follow that withVitamin A for the rubeola? Or do I do high dose vitamin A first, thenvaltrex later? I thought I had it all figured out - rubeola I would do vitamin A,anything else valtrex, I wasn't expecting so see so much in thepositive range. Is the rubeola number abnormally high, or just showing he has immunityto it? I am pondering trying to find a DAN for viral, as our DANisn't very open to all this from what I have heard from otherpatients. I can get valtrex from another doctor (who is covered by myinsurance) no problem, but he is not a DAN (just our FP) and doesn'tknow much of anything about all this, he just does what I ask as longas I agree to be liable for my requests and I'm not asking foranything crazy. right now he writes scripts for DMSA for me and doesthe labs I request when I request them. As long as we dump metals andhave normal CBC/CMP labs, he is ok with it all. Anyone have any input or advice? Thanks so much...

[Guest guest]

Hi All

Where can i get a hearing test done for a nonverbal kid?

I did it earlier with Santa Clara Valley Medical Center and they just said within normal limits.

I want a place where they can be more specific like saying really good,moderate or bad.

What might be the reason for twisting fingers?

Thanks

Rajee

Re: questions re: viral test results

Hi all, and Stan

This is McNulty, mom to age 9 with ASD in Thousand Oaks. I'm fairly convinced viruses afre a problem for , and Have asked our DAN! doctor, Dr. Hirani to consider Valtrex. She wants to run a viral panel first to get a baseline. She mentioned the McCandless viral panel — which I think we did a couple years ago - super high titiers to American Measles - can't IMAGINE where he got that....;( Anyway, I'm sorry, I'm still trying to catch up with the reading for newbies in this group... we just got back from vacation tonight, and have a blood draw scheduled on Thursday afternoon at Dr. Hirani's office. Is there a SPECIFIC viral panel that is recommended, Stan??? Or anyone else know? I'm pretty sure the one Dr. Hirani's talking about covers the ones below.

I once had a conversation with Stan though, and he said it is his feeling that there are likely unidentified viruses out there, that may not show up on the viral panel, and even if your child does NOT show high titers, may still benefit from Valtrex.

In the fall of '04. Sept to Dec, for 4 months we did IVIG with Dr. Gupta. It was absolute hell for my son making him go on an IV all day. BUT... he was not sick ONCE after we started, and I had a kid who was very prone to getting ear infections, colds, URI's, ect. It was two months after stopping IVIG, that he came down with something again. I really think it helped his immune system, but I think we need to do more. Most people who commit to IVIG do it longer. We just couldn't. Cost was one factor... emotional trauma the main factor.

So maybe the Valtrex will help us knock this thing out.

We are also starting on Diflucan tomorrow. He is having really strange behaviors after topical DMSA, which Dr. Hirani says may be yeast. I listened to Stan's Autism One talk (the link provided when I joined) and he said the (DMSA?) made him feel terrible. I think it is more than a yeast flare which is affecting after DMSA. I guess I need to try it on myself as well. (I'm sort of chicken... I'm SO chemically sensitive, maybe my son is as well.)

McNulty

jennim@...

On Jun 20, 2006, at 2:44 PM, LKMIZE wrote:

Hello all. We just got our sons viral tests back, here is what weshow. I'm wondering what to do now...EBV VCA: 1692 ref range 0-99 neg, 100-120 eq, >120 positiveEBV NA: 590 ref range 0-99 neg, 100-120 eq, >120 positiverubeola: 2.02 ref range 0-.9, >1.10 positivemumps: 3.01 ref range 0-.9, >1.10 positiveCMV: 2.40 ref range 0-.9, >1.0 positiveSo, what does this all mean? those EBV numbers really blew me out ofthe water, would that indicate a current (and apparently massive)infection? Man... I guess valtrex city, here we come! then do I follow that withVitamin A for the rubeola? Or do I do high dose vitamin A first, thenvaltrex later? I thought I had it all figured out - rubeola I would do vitamin A,anything else valtrex, I wasn't expecting so see so much in thepositive range. Is the rubeola number abnormally high, or just showing he has immunityto it? I am pondering trying to find a DAN for viral, as our DANisn't very open to all this from what I have heard from otherpatients. I can get valtrex from another doctor (who is covered by myinsurance) no problem, but he is not a DAN (just our FP) and doesn'tknow much of anything about all this, he just does what I ask as longas I agree to be liable for my requests and I'm not asking foranything crazy. right now he writes scripts for DMSA for me and doesthe labs I request when I request them. As long as we dump metals andhave normal CBC/CMP labs, he is ok with it all. Anyone have any input or advice? Thanks so much...