RE: Stan--Valtrex versus Acylcovir

[Guest guest]

,

Not Stan but I

just saw this post and your other one.

-Yes, OLE and virastop can cause yeast

flares too.

-As for the difference between the 2,

acylcovir and valtrex; I believe, valtrex crosses the BBB and acyclovir does

not unless it is IV acyclovir.

-Stan says 3 weeks on Diflucan before

starting Valtrex is a good idea.

-I saw many posts where parents were

having trouble getting their valtrex from CVS so I didn’t go there.

I faxed my prescription to my compounding pharamacy and they also compounded it

into a liquid. Some compounding pharmacies understand the treatments for

our children more than typical pharmacies. My insurance is BC/BS HMO and

they covered it. It often depends on the code they use. It should

not be prescribed for Autism but for chronic herpes infections either in the

throat or lips, etc.

-Maybe some else can chime in about

whether or not to stop the OLE and virastop and re add it after healing

regression. I’m not sure on that one.

Good luck,

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of laurenpgmarshall

Sent: Tuesday, July 11, 2006 7:13

PM

mb12 valtrex

Subject:

Stan--Valtrex versus Acylcovir

Stan,

THank you so much for starting this group. I have seen in past posts

that you prefer Valtrex over Acylcovir. OUr insurance will cover

Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month). Should we

give Acylclovir a try first? (THis is for my 5 y/o daughter with

Asperger's). Is there any danger in tryign Acylcovir first and then

switching to Valtrex?

Also, how long shold she be on anti-fungals before startign the anti-

virals?

Should we stop the OLE and Virastop when we start the anti-viral med?

[Guest guest]

,

Not Stan but I

just saw this post and your other one.

-Yes, OLE and virastop can cause yeast

flares too.

-As for the difference between the 2,

acylcovir and valtrex; I believe, valtrex crosses the BBB and acyclovir does

not unless it is IV acyclovir.

-Stan says 3 weeks on Diflucan before

starting Valtrex is a good idea.

-I saw many posts where parents were

having trouble getting their valtrex from CVS so I didn’t go there.

I faxed my prescription to my compounding pharamacy and they also compounded it

into a liquid. Some compounding pharmacies understand the treatments for

our children more than typical pharmacies. My insurance is BC/BS HMO and

they covered it. It often depends on the code they use. It should

not be prescribed for Autism but for chronic herpes infections either in the

throat or lips, etc.

-Maybe some else can chime in about

whether or not to stop the OLE and virastop and re add it after healing

regression. I’m not sure on that one.

Good luck,

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of laurenpgmarshall

Sent: Tuesday, July 11, 2006 7:13

PM

mb12 valtrex

Subject:

Stan--Valtrex versus Acylcovir

Stan,

THank you so much for starting this group. I have seen in past posts

that you prefer Valtrex over Acylcovir. OUr insurance will cover

Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month). Should we

give Acylclovir a try first? (THis is for my 5 y/o daughter with

Asperger's). Is there any danger in tryign Acylcovir first and then

switching to Valtrex?

Also, how long shold she be on anti-fungals before startign the anti-

virals?

Should we stop the OLE and Virastop when we start the anti-viral med?

[Guest guest]

Alison, thanks so much for your reply. DO you, or does anyone, know

if using acyclovir first before tryign valtrex could somehow make the

valtrex less effective (i.e. cause hte virus to beocme resistant)?

I thought I heard thisd soemwhere by word of mouth.

THis is my only fear about doing a trial of the less expensive

acyclovir before trying valtrex.

>

> ,

>

> Not Stan but I just saw this post and your other one.

>

> -Yes, OLE and virastop can cause yeast flares too.

>

> -As for the difference between the 2, acylcovir and valtrex; I

believe,

> valtrex crosses the BBB and acyclovir does not unless it is IV

acyclovir.

>

> -Stan says 3 weeks on Diflucan before starting Valtrex is a good

idea.

>

> -I saw many posts where parents were having trouble getting their

valtrex

> from CVS so I didn't go there. I faxed my prescription to my

compounding

> pharamacy and they also compounded it into a liquid. Some

compounding

> pharmacies understand the treatments for our children more than

typical

> pharmacies. My insurance is BC/BS HMO and they covered it. It

often

> depends on the code they use. It should not be prescribed for

Autism but

> for chronic herpes infections either in the throat or lips, etc.

>

> -Maybe some else can chime in about whether or not to stop the OLE

and

> virastop and re add it after healing regression. I'm not sure on

that one.

>

>

> Good luck,

>

>

>

> _____

>

> From: mb12 valtrex

[mailto:mb12 valtrex ] On

> Behalf Of laurenpgmarshall

> Sent: Tuesday, July 11, 2006 7:13 PM

> mb12 valtrex

> Subject: Stan--Valtrex versus Acylcovir

>

>

>

> Stan,

>

> THank you so much for starting this group. I have seen in past

posts

> that you prefer Valtrex over Acylcovir. OUr insurance will cover

> Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month). Should

we

> give Acylclovir a try first? (THis is for my 5 y/o daughter with

> Asperger's). Is there any danger in tryign Acylcovir first and then

> switching to Valtrex?

>

> Also, how long shold she be on anti-fungals before startign the

anti-

> virals?

>

> Should we stop the OLE and Virastop when we start the anti-viral

med?

>

>

>

[Guest guest]

Alison, thanks so much for your reply. DO you, or does anyone, know

if using acyclovir first before tryign valtrex could somehow make the

valtrex less effective (i.e. cause hte virus to beocme resistant)?

I thought I heard thisd soemwhere by word of mouth.

THis is my only fear about doing a trial of the less expensive

acyclovir before trying valtrex.

>

> ,

>

> Not Stan but I just saw this post and your other one.

>

> -Yes, OLE and virastop can cause yeast flares too.

>

> -As for the difference between the 2, acylcovir and valtrex; I

believe,

> valtrex crosses the BBB and acyclovir does not unless it is IV

acyclovir.

>

> -Stan says 3 weeks on Diflucan before starting Valtrex is a good

idea.

>

> -I saw many posts where parents were having trouble getting their

valtrex

> from CVS so I didn't go there. I faxed my prescription to my

compounding

> pharamacy and they also compounded it into a liquid. Some

compounding

> pharmacies understand the treatments for our children more than

typical

> pharmacies. My insurance is BC/BS HMO and they covered it. It

often

> depends on the code they use. It should not be prescribed for

Autism but

> for chronic herpes infections either in the throat or lips, etc.

>

> -Maybe some else can chime in about whether or not to stop the OLE

and

> virastop and re add it after healing regression. I'm not sure on

that one.

>

>

> Good luck,

>

>

>

> _____

>

> From: mb12 valtrex

[mailto:mb12 valtrex ] On

> Behalf Of laurenpgmarshall

> Sent: Tuesday, July 11, 2006 7:13 PM

> mb12 valtrex

> Subject: Stan--Valtrex versus Acylcovir

>

>

>

> Stan,

>

> THank you so much for starting this group. I have seen in past

posts

> that you prefer Valtrex over Acylcovir. OUr insurance will cover

> Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month). Should

we

> give Acylclovir a try first? (THis is for my 5 y/o daughter with

> Asperger's). Is there any danger in tryign Acylcovir first and then

> switching to Valtrex?

>

> Also, how long shold she be on anti-fungals before startign the

anti-

> virals?

>

> Should we stop the OLE and Virastop when we start the anti-viral

med?

>

>

>

[Guest guest]

We don't have a lot of reports of success with Acyclovir, some, but not many so

any

response from me would be an opinion. The only fear is that if Acyclovir gives

the chance

for the virus to mutate, it might be harder to kill off down the line.

Acyclovir and Valtrex are not the same drug. Acyclovir doesn't cross the Blood

Brain

Barrier and Valtrex is less toxic and convierted to acyclovir right in the liver

where some

herpes strain viruses like to take up residence.

That said, I really don't know. Your child might be one of those who do respond

to

Acyclovir... it's just hard to say. For me, I believe in doing what has the

best chance to

recover my child, but I do understand that money issues make it challenging and

$10.00 is

quite different than 300.00

If I was going to do acyclovir, I would also throw OLE on top of it and have an

antifungal

like Nizoral or Diflucan in there as well.

- Stan

>

> Stan,

>

> THank you so much for starting this group. I have seen in past posts

> that you prefer Valtrex over Acylcovir. OUr insurance will cover

> Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month). Should we

> give Acylclovir a try first? (THis is for my 5 y/o daughter with

> Asperger's). Is there any danger in tryign Acylcovir first and then

> switching to Valtrex?

>

> Also, how long shold she be on anti-fungals before startign the anti-

> virals?

>

> Should we stop the OLE and Virastop when we start the anti-viral med?

>

>

>

>

[Guest guest]

We don't have a lot of reports of success with Acyclovir, some, but not many so

any

response from me would be an opinion. The only fear is that if Acyclovir gives

the chance

for the virus to mutate, it might be harder to kill off down the line.

Acyclovir and Valtrex are not the same drug. Acyclovir doesn't cross the Blood

Brain

Barrier and Valtrex is less toxic and convierted to acyclovir right in the liver

where some

herpes strain viruses like to take up residence.

That said, I really don't know. Your child might be one of those who do respond

to

Acyclovir... it's just hard to say. For me, I believe in doing what has the

best chance to

recover my child, but I do understand that money issues make it challenging and

$10.00 is

quite different than 300.00

If I was going to do acyclovir, I would also throw OLE on top of it and have an

antifungal

like Nizoral or Diflucan in there as well.

- Stan

>

> Stan,

>

> THank you so much for starting this group. I have seen in past posts

> that you prefer Valtrex over Acylcovir. OUr insurance will cover

> Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month). Should we

> give Acylclovir a try first? (THis is for my 5 y/o daughter with

> Asperger's). Is there any danger in tryign Acylcovir first and then

> switching to Valtrex?

>

> Also, how long shold she be on anti-fungals before startign the anti-

> virals?

>

> Should we stop the OLE and Virastop when we start the anti-viral med?

>

>

>

>

[Guest guest]

Stan,

Thanks for your reply. I saw too the abstract you posted about

Viruses mutating with Acylcovir.

DO you think there would be much risk of mutation from trying

Acycovlir for one month, adn then switching to Valtrex if we do not

get good results? (If I try the formulary drug first, I might be

able to convince our insurance to cover the non-formulary drug.)

> >

> > Stan,

> >

> > THank you so much for starting this group. I have seen in past

posts

> > that you prefer Valtrex over Acylcovir. OUr insurance will cover

> > Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month).

Should we

> > give Acylclovir a try first? (THis is for my 5 y/o daughter

with

> > Asperger's). Is there any danger in tryign Acylcovir first and

then

> > switching to Valtrex?

> >

> > Also, how long shold she be on anti-fungals before startign the

anti-

> > virals?

> >

> > Should we stop the OLE and Virastop when we start the anti-viral

med?

> >

> >

> >

> >

>

[Guest guest]

Stan,

Thanks for your reply. I saw too the abstract you posted about

Viruses mutating with Acylcovir.

DO you think there would be much risk of mutation from trying

Acycovlir for one month, adn then switching to Valtrex if we do not

get good results? (If I try the formulary drug first, I might be

able to convince our insurance to cover the non-formulary drug.)

> >

> > Stan,

> >

> > THank you so much for starting this group. I have seen in past

posts

> > that you prefer Valtrex over Acylcovir. OUr insurance will cover

> > Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month).

Should we

> > give Acylclovir a try first? (THis is for my 5 y/o daughter

with

> > Asperger's). Is there any danger in tryign Acylcovir first and

then

> > switching to Valtrex?

> >

> > Also, how long shold she be on anti-fungals before startign the

anti-

> > virals?

> >

> > Should we stop the OLE and Virastop when we start the anti-viral

med?

> >

> >

> >

> >

>

[Guest guest]

Abstract is the right word in many ways in this situation. It's so hard to

tell. I wouldn't

worry. There are reports of people using acyclovir and then switching and

seeing better

results and there are even a small minority of cases where acyclovir worked

better for a

specific child for a period of time and then people have switched back to

Valtrex.

To me, the article just supports starting off with the best muti-approach

strategy we have

as early as possible so we have the best chance of getting this thing under

control... and I

wouldn't worry about what you did in the past... I would just aggressively

pursue Valtrex

with Diflucan or Nizoral and then add more on after that if you need to.

- Stan

> > >

> > > Stan,

> > >

> > > THank you so much for starting this group. I have seen in past

> posts

> > > that you prefer Valtrex over Acylcovir. OUr insurance will cover

> > > Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month).

> Should we

> > > give Acylclovir a try first? (THis is for my 5 y/o daughter

> with

> > > Asperger's). Is there any danger in tryign Acylcovir first and

> then

> > > switching to Valtrex?

> > >

> > > Also, how long shold she be on anti-fungals before startign the

> anti-

> > > virals?

> > >

> > > Should we stop the OLE and Virastop when we start the anti-viral

> med?

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

Abstract is the right word in many ways in this situation. It's so hard to

tell. I wouldn't

worry. There are reports of people using acyclovir and then switching and

seeing better

results and there are even a small minority of cases where acyclovir worked

better for a

specific child for a period of time and then people have switched back to

Valtrex.

To me, the article just supports starting off with the best muti-approach

strategy we have

as early as possible so we have the best chance of getting this thing under

control... and I

wouldn't worry about what you did in the past... I would just aggressively

pursue Valtrex

with Diflucan or Nizoral and then add more on after that if you need to.

- Stan

> > >

> > > Stan,

> > >

> > > THank you so much for starting this group. I have seen in past

> posts

> > > that you prefer Valtrex over Acylcovir. OUr insurance will cover

> > > Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month).

> Should we

> > > give Acylclovir a try first? (THis is for my 5 y/o daughter

> with

> > > Asperger's). Is there any danger in tryign Acylcovir first and

> then

> > > switching to Valtrex?

> > >

> > > Also, how long shold she be on anti-fungals before startign the

> anti-

> > > virals?

> > >

> > > Should we stop the OLE and Virastop when we start the anti-viral

> med?

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

we all have to thank for a person like Stan, we are greatfull that you are there for all of us, I love you all, and good lock for all of us.laurenpgmarshall <Marshall@...> wrote: Stan,Thanks for your reply. I saw too the abstract you posted about Viruses mutating with Acylcovir.DO you think there would be much risk of mutation from trying Acycovlir for one month, adn then switching to Valtrex if we do not get good results? (If I try the formulary drug first, I might be able to convince our insurance

to cover the non-formulary drug.)> >> > Stan,> > > > THank you so much for starting this group. I have seen in past posts > > that you prefer Valtrex over Acylcovir. OUr insurance will cover > > Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month). Should we > > give Acylclovir a try first? (THis is for my 5 y/o daughter with > > Asperger's). Is there any danger in tryign Acylcovir first and then > > switching to

Valtrex?> > > > Also, how long shold she be on anti-fungals before startign the anti-> > virals?> > > > Should we stop the OLE and Virastop when we start the anti-viral med?> > > > > > > >>

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[Guest guest]

we all have to thank for a person like Stan, we are greatfull that you are there for all of us, I love you all, and good lock for all of us.laurenpgmarshall <Marshall@...> wrote: Stan,Thanks for your reply. I saw too the abstract you posted about Viruses mutating with Acylcovir.DO you think there would be much risk of mutation from trying Acycovlir for one month, adn then switching to Valtrex if we do not get good results? (If I try the formulary drug first, I might be able to convince our insurance

to cover the non-formulary drug.)> >> > Stan,> > > > THank you so much for starting this group. I have seen in past posts > > that you prefer Valtrex over Acylcovir. OUr insurance will cover > > Acylcovir ($10/month co-pay) but not Valtrex ($300 +/month). Should we > > give Acylclovir a try first? (THis is for my 5 y/o daughter with > > Asperger's). Is there any danger in tryign Acylcovir first and then > > switching to

Valtrex?> > > > Also, how long shold she be on anti-fungals before startign the anti-> > virals?> > > > Should we stop the OLE and Virastop when we start the anti-viral med?> > > > > > > >>

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