Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 I would say find another pediatrician if possible to get the diagnosis. You are right to want the IEP to help ease his anxiety. I would also recommend getting your pediatrician to recommend Sensory OT therapy, at your home, if possible. This was a huge help to our son. Doing it at home helped him understand that Mom and Dad needed to do these things with him and that it would help his body work better. It helped with the sensory clothing issue and to help with other body issues. We have used social stories to help with learning about space. Our school has also been great at doing these things at school as well. I was a super pushy mom and got the PDD diagnosis at 3.5 and started doing things myself becaue I thought he was aspergers. I lived in a neighborhood with quite a few boys on the ASD spectrum and was so different than the more typically and severely affected children. is now 8 and is doing so well. We still have issues with socially inappropriate behavior but again the school autism team is great at helping us to set up things at school as well as home. We also have a sensory breaks program so that we can help alleviate stress and other behaviors through excersice, squishing, rolling, punching, etc. I would suggest you ask your counselor to help you with you physician to get that diagnosis. I wish you much luck. I am also using a book right now called Taking Care of Myself by Wrobel to work on some of the socially in appropriate behaviors. lj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Lori, I feel for you. My son is 12 and in 6th grade and did not get his AS diagnosis until last year. He started middle school this year and we are having all kinds of issues with the change. He cries at least once a week because he wants to return to his elementary school or quit school all together. My son has his rituals as well, most do. If I even change his lunch in any way it can throw off his day! My son has an IEP for the AS and ADHD, but until we had the written diagnosis by the psychiatrist and a teacher who stood up and told the truth in a team meeting we did not have anything more than a 504. I am still having to fight the school and advocate for my son at least once a week. If I were you, I would try to get the diagnosis and just stay on top of the school as much as you can to insure they are doing what he needs. -Charlotte My 13 yr old son My 13yr old son has had symptoms of AS all of his life. He has several sensory issues. I have to always buy him special clothing to wear. Noises and lights bug him. He has a severely hard time with change. He has rituals he " has " to do to make his day " ok " . He has told me that if he doesn't get to do his rituals that his whole day can be thrown off. He is very socially inappropriate. He does not understand giving people their physical space, but if someone invades his physical space he freaks out. He does not like to be touched unless he initiates it. He has trouble reading body language. I could go on and on. I've found it very interesting reading the different post and thinking that sounds like my son!! I always knew that he was 'different'. I just made accomidations for him at home. We really didn't start having a lot of issues until he started middle school. He moved from a smaller elementary to a large middle school with over 500 students. After that we started having several issues. He was having 'meltdowns'. He is now in 7th grade. I started doctoring with him when he was in 5th grade. He got the diagnosis of ODD, anxiety vs depression, and probable AS. He has been going to counseling for the past two years. He is on Zoloft for the OCD tendencies and Abilify. The meds have made a big difference in his life. He was put on an IEP when he was in 1st grade for 'nonspecific learning disability in the area of reading'. Needless to say, I have had several battles with the school system with him not receiving what he needed. At one time, the school even had changed his IEP without letting me know. About a week ago, the school informed me that they are releasing my son from special services due to the fact that he was retested and no longer qualifies to receive them. I feel he is still in need for an IEP due to the AS issues. The pediatricain I take my son to states that she is unable to give my son a diagnosis of AS because the school says that there is no evidence that he has any social problems. I guess they have forgetten about that my son has been the target of bullies since he has been in school, he has had anxiety attacks (metldowns) at school, and has had to sit in the counselors office on different occasions due to being upset, and etc... It causes my son anxiety to go to the grocery store. His counselor sts that there is no doubt in his mind that my son has AS. Sorry to have made this so long...but I could have wrote a book about this. Any suggestions??? Thanks, Lori Quote Link to comment Share on other sites More sharing options...
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