RE: Re: Valtrex benefits / lyme

[Guest guest]

I missed the first half of this post. But my son AND I both have lyme. I got it decades ago, don't know when or how, and my son contracted it from me in-utero. It's important to know that many of the symptoms of chronic lyme are also symptoms of autism. (brain fog, articulation, word retrieval, irritability, trouble concentrating, etc., etc.) The list of symptoms is 40 pages worth that people can have.

1. Testing must be done through a Western Blot IgM and IgG test through either Igenex or Bowen. No other lab is sensitive enough to detect so don't let your doc get it from labcorp or anywhere else.

2. Our DAN doc ordered the test.

3. Treatment needs to be done by a LLMD - lyme literate medical doctor. We see Dr. in Nevada City, CA.

Please e-mail me off list if you have any questions.

Tami

[Guest guest]

I missed the first half of this post. But my son AND I both have lyme. I got it decades ago, don't know when or how, and my son contracted it from me in-utero. It's important to know that many of the symptoms of chronic lyme are also symptoms of autism. (brain fog, articulation, word retrieval, irritability, trouble concentrating, etc., etc.) The list of symptoms is 40 pages worth that people can have.

1. Testing must be done through a Western Blot IgM and IgG test through either Igenex or Bowen. No other lab is sensitive enough to detect so don't let your doc get it from labcorp or anywhere else.

2. Our DAN doc ordered the test.

3. Treatment needs to be done by a LLMD - lyme literate medical doctor. We see Dr. in Nevada City, CA.

Please e-mail me off list if you have any questions.

Tami

[Guest guest]

Hi :

We did our lyme testing thru Immunosciences and

Igenix. Igenix is the gold standard now for lyme

testing. You need to find a " LLMD " Lyme Literate

Medical Doctor who is willing to treat in the absence

of a positive lyme test, since you mostly won't test

positive until after some antibiotic treatment if you

have chronic lyme. Lyme is a clinical diagnosis, and

no test is 100% - so the best lyme doctors know what

to look for, symptom wise. But you can start with a

Western Blot (insurance covers). Co-infections

(Babesia - night sweats, dizziness - and Ehrlichia,

Bartonella) are very common.

If you go to anyone besides a LLMD they will laugh you

out of the office if you request a lyme test if you

are on the West Coast. Believe me, I know. And if they

don't see a bulls-eye rash somewhere, and if your knee

isn't swollen, I don't think many doctors will run

that test. Our DAN doctor was very helpful in running

the original tests, so you might start there. But

they may not be knowledgeable about lyme, and if the

test doesn't turn up positive, they may say " end of

story " , when in reality you and your son may be

dealing with chronic lyme every day of your life,

unbeknownst to you.

There is a doctor in Washington State who treats

autism and lyme with herbs and natural products. He

says the autistic kids are all coming up positive for

lyme on Western Blot tests, but I haven't seen any

concrete data on that, nor have I heard anyone else

claming that. It may be one of many infections, or it

may be the door that opens the body to other immune

problems for some children.

Are you in Northern California? is

awesome, but he is in Nevada City. He has an office in

Malibu, too. My children go to a lyme doctor in

Southern California, and she is not at all doubtful

that lyme is contagious, in-utero or otherwise (our

family is living proof of that!).

I hope this helps. I am a newbie and I really came to

learn about MB12, but lyme is part of our story.

Carmel

--- <susanwald@...> wrote:

> Carmel,

>

> What test did you use to determine your children had

> Lyme? Who gave it? Who is treating them?

>

> I have never had my son tested, but spend a few

> summers of my youth in Lyme, CN, so suspect he has

> it through me. He is doing really well on all the

> OTC anti-virals I'm giving him.

>

>

[Guest guest]

Hi :

We did our lyme testing thru Immunosciences and

Igenix. Igenix is the gold standard now for lyme

testing. You need to find a " LLMD " Lyme Literate

Medical Doctor who is willing to treat in the absence

of a positive lyme test, since you mostly won't test

positive until after some antibiotic treatment if you

have chronic lyme. Lyme is a clinical diagnosis, and

no test is 100% - so the best lyme doctors know what

to look for, symptom wise. But you can start with a

Western Blot (insurance covers). Co-infections

(Babesia - night sweats, dizziness - and Ehrlichia,

Bartonella) are very common.

If you go to anyone besides a LLMD they will laugh you

out of the office if you request a lyme test if you

are on the West Coast. Believe me, I know. And if they

don't see a bulls-eye rash somewhere, and if your knee

isn't swollen, I don't think many doctors will run

that test. Our DAN doctor was very helpful in running

the original tests, so you might start there. But

they may not be knowledgeable about lyme, and if the

test doesn't turn up positive, they may say " end of

story " , when in reality you and your son may be

dealing with chronic lyme every day of your life,

unbeknownst to you.

There is a doctor in Washington State who treats

autism and lyme with herbs and natural products. He

says the autistic kids are all coming up positive for

lyme on Western Blot tests, but I haven't seen any

concrete data on that, nor have I heard anyone else

claming that. It may be one of many infections, or it

may be the door that opens the body to other immune

problems for some children.

Are you in Northern California? is

awesome, but he is in Nevada City. He has an office in

Malibu, too. My children go to a lyme doctor in

Southern California, and she is not at all doubtful

that lyme is contagious, in-utero or otherwise (our

family is living proof of that!).

I hope this helps. I am a newbie and I really came to

learn about MB12, but lyme is part of our story.

Carmel

--- <susanwald@...> wrote:

> Carmel,

>

> What test did you use to determine your children had

> Lyme? Who gave it? Who is treating them?

>

> I have never had my son tested, but spend a few

> summers of my youth in Lyme, CN, so suspect he has

> it through me. He is doing really well on all the

> OTC anti-virals I'm giving him.

>

>

[Guest guest]

There is also a group you can join. lyme-autism

They can also help with more specifics.

Tami

[Guest guest]

There is also a group you can join. lyme-autism

They can also help with more specifics.

Tami

[Guest guest]

Carmel: I just read your reply to

, so disregard my post asking about where to test. Thanks for all of this information!!!

Re: Re:

Valtrex benefits / lyme

Hi :

We did our lyme testing thru Immunosciences and

Igenix. Igenix is the gold standard now for lyme

testing. You need to find a " LLMD " Lyme Literate

Medical Doctor who is willing to treat in the absence

of a positive lyme test, since you mostly won't test

positive until after some antibiotic treatment if you

have chronic lyme. Lyme is a clinical diagnosis, and

no test is 100% - so the best lyme doctors know what

to look for, symptom wise. But you can start with a

Western Blot (insurance covers). Co-infections

(Babesia - night sweats, dizziness - and Ehrlichia,

Bartonella) are very common.

If you go to anyone besides a LLMD they will laugh you

out of the office if you request a lyme test if you

are on the West Coast. Believe me, I know. And if they

don't see a bulls-eye rash somewhere, and if your knee

isn't swollen, I don't think many doctors will run

that test. Our DAN doctor was very helpful in running

the original tests, so you might start there. But

they may not be knowledgeable about lyme, and if the

test doesn't turn up positive, they may say " end of

story " , when in reality you and your son may be

dealing with chronic lyme every day of your life,

unbeknownst to you.

There is a doctor in Washington State who treats

autism and lyme with herbs and natural products. He

says the autistic kids are all coming up positive for

lyme on Western Blot tests, but I haven't seen any

concrete data on that, nor have I heard anyone else

claming that. It may be one of many infections, or it

may be the door that opens the body to other immune

problems for some children.

Are you in Northern California? is

awesome, but he is in Nevada City. He has an office in

Malibu, too. My children go to a lyme doctor in

Southern California, and she is not at all doubtful

that lyme is contagious, in-utero or otherwise (our

family is living proof of that!).

I hope this helps. I am a newbie and I really came to

learn about MB12, but lyme is part of our story.

Carmel

--- <susanwaldcomcast (DOT) net>

wrote:

> Carmel,

>

> What test did you use to determine your children had

> Lyme? Who gave it? Who is treating them?

>

> I have never had my son tested, but spend a few

> summers of my youth in Lyme, CN, so suspect he has

> it through me. He is doing really well on all the

> OTC anti-virals I'm giving him.

>

>

[Guest guest]

Carmel: I just read your reply to

, so disregard my post asking about where to test. Thanks for all of this information!!!

Re: Re:

Valtrex benefits / lyme

Hi :

We did our lyme testing thru Immunosciences and

Igenix. Igenix is the gold standard now for lyme

testing. You need to find a " LLMD " Lyme Literate

Medical Doctor who is willing to treat in the absence

of a positive lyme test, since you mostly won't test

positive until after some antibiotic treatment if you

have chronic lyme. Lyme is a clinical diagnosis, and

no test is 100% - so the best lyme doctors know what

to look for, symptom wise. But you can start with a

Western Blot (insurance covers). Co-infections

(Babesia - night sweats, dizziness - and Ehrlichia,

Bartonella) are very common.

If you go to anyone besides a LLMD they will laugh you

out of the office if you request a lyme test if you

are on the West Coast. Believe me, I know. And if they

don't see a bulls-eye rash somewhere, and if your knee

isn't swollen, I don't think many doctors will run

that test. Our DAN doctor was very helpful in running

the original tests, so you might start there. But

they may not be knowledgeable about lyme, and if the

test doesn't turn up positive, they may say " end of

story " , when in reality you and your son may be

dealing with chronic lyme every day of your life,

unbeknownst to you.

There is a doctor in Washington State who treats

autism and lyme with herbs and natural products. He

says the autistic kids are all coming up positive for

lyme on Western Blot tests, but I haven't seen any

concrete data on that, nor have I heard anyone else

claming that. It may be one of many infections, or it

may be the door that opens the body to other immune

problems for some children.

Are you in Northern California? is

awesome, but he is in Nevada City. He has an office in

Malibu, too. My children go to a lyme doctor in

Southern California, and she is not at all doubtful

that lyme is contagious, in-utero or otherwise (our

family is living proof of that!).

I hope this helps. I am a newbie and I really came to

learn about MB12, but lyme is part of our story.

Carmel

--- <susanwaldcomcast (DOT) net>

wrote:

> Carmel,

>

> What test did you use to determine your children had

> Lyme? Who gave it? Who is treating them?

>

> I have never had my son tested, but spend a few

> summers of my youth in Lyme, CN, so suspect he has

> it through me. He is doing really well on all the

> OTC anti-virals I'm giving him.

>

>

[Guest guest]

Carmel: Which antibiotics are

generally used for chronic lyme?

Re: Re:

Valtrex benefits / lyme

Hi :

We did our lyme testing thru Immunosciences and

Igenix. Igenix is the gold standard now for lyme

testing. You need to find a " LLMD " Lyme Literate

Medical Doctor who is willing to treat in the absence

of a positive lyme test, since you mostly won't test

positive until after some antibiotic treatment if you

have chronic lyme. Lyme is a clinical diagnosis, and

no test is 100% - so the best lyme doctors know what

to look for, symptom wise. But you can start with a

Western Blot (insurance covers). Co-infections

(Babesia - night sweats, dizziness - and Ehrlichia,

Bartonella) are very common.

If you go to anyone besides a LLMD they will laugh you

out of the office if you request a lyme test if you

are on the West Coast. Believe me, I know. And if they

don't see a bulls-eye rash somewhere, and if your knee

isn't swollen, I don't think many doctors will run

that test. Our DAN doctor was very helpful in running

the original tests, so you might start there. But

they may not be knowledgeable about lyme, and if the

test doesn't turn up positive, they may say " end of

story " , when in reality you and your son may be

dealing with chronic lyme every day of your life,

unbeknownst to you.

There is a doctor in Washington State who treats

autism and lyme with herbs and natural products. He

says the autistic kids are all coming up positive for

lyme on Western Blot tests, but I haven't seen any

concrete data on that, nor have I heard anyone else

claming that. It may be one of many infections, or it

may be the door that opens the body to other immune

problems for some children.

Are you in Northern California? is

awesome, but he is in Nevada City. He has an office in

Malibu, too. My children go to a lyme doctor in

Southern California, and she is not at all doubtful

that lyme is contagious, in-utero or otherwise (our

family is living proof of that!).

I hope this helps. I am a newbie and I really came to

learn about MB12, but lyme is part of our story.

Carmel

--- <susanwaldcomcast (DOT) net>

wrote:

> Carmel,

>

> What test did you use to determine your children had

> Lyme? Who gave it? Who is treating them?

>

> I have never had my son tested, but spend a few

> summers of my youth in Lyme, CN, so suspect he has

> it through me. He is doing really well on all the

> OTC anti-virals I'm giving him.

>

>

[Guest guest]

Carmel: Which antibiotics are

generally used for chronic lyme?

Re: Re:

Valtrex benefits / lyme

Hi :

We did our lyme testing thru Immunosciences and

Igenix. Igenix is the gold standard now for lyme

testing. You need to find a " LLMD " Lyme Literate

Medical Doctor who is willing to treat in the absence

of a positive lyme test, since you mostly won't test

positive until after some antibiotic treatment if you

have chronic lyme. Lyme is a clinical diagnosis, and

no test is 100% - so the best lyme doctors know what

to look for, symptom wise. But you can start with a

Western Blot (insurance covers). Co-infections

(Babesia - night sweats, dizziness - and Ehrlichia,

Bartonella) are very common.

If you go to anyone besides a LLMD they will laugh you

out of the office if you request a lyme test if you

are on the West Coast. Believe me, I know. And if they

don't see a bulls-eye rash somewhere, and if your knee

isn't swollen, I don't think many doctors will run

that test. Our DAN doctor was very helpful in running

the original tests, so you might start there. But

they may not be knowledgeable about lyme, and if the

test doesn't turn up positive, they may say " end of

story " , when in reality you and your son may be

dealing with chronic lyme every day of your life,

unbeknownst to you.

There is a doctor in Washington State who treats

autism and lyme with herbs and natural products. He

says the autistic kids are all coming up positive for

lyme on Western Blot tests, but I haven't seen any

concrete data on that, nor have I heard anyone else

claming that. It may be one of many infections, or it

may be the door that opens the body to other immune

problems for some children.

Are you in Northern California? is

awesome, but he is in Nevada City. He has an office in

Malibu, too. My children go to a lyme doctor in

Southern California, and she is not at all doubtful

that lyme is contagious, in-utero or otherwise (our

family is living proof of that!).

I hope this helps. I am a newbie and I really came to

learn about MB12, but lyme is part of our story.

Carmel

--- <susanwaldcomcast (DOT) net>

wrote:

> Carmel,

>

> What test did you use to determine your children had

> Lyme? Who gave it? Who is treating them?

>

> I have never had my son tested, but spend a few

> summers of my youth in Lyme, CN, so suspect he has

> it through me. He is doing really well on all the

> OTC anti-virals I'm giving him.

>

>

[Guest guest]

Hi :

So many different antibiotics are used for Chronic

Lyme. There is one doctor in Pennsylvania who

specializes in Pediatric Lyme. I am not sure what he

uses in small children. Right now we're on Zithromax

in combination with Plaquenil. Doxycycline is used a

lot. The doctor usually uses a combination of two to

get the active lyme and the cyst form. It is a very

complex, tricky organism and you need to use a

multitude of approaches to outsmart it. But lots of

herbs can be used as well, and vitamins, magnesium,

and even salt (osmotic shock kills the bugs).

Hyperbarics is effective, but expensive, and it comes

back. My doctor said you need to use both antibiotic

and natural approaches together.

Lyme is very tied in to mercury, and somehow the

organism uses it to its advantage, so getting the

mercury and heavy metals out is vital. Chlorella is

used a lot - also Natural Cellular Defense, PCA-Rx,

far infrared saunas and epsom salt baths all are being

used by the lyme community for heavy metal removal.

Best wishes & prayers,

Carmel

--- " K. Fischer " <elfischer@...> wrote:

> Carmel: Which antibiotics are generally used for

> chronic lyme?

>

>

>

> Re: Re: Valtrex benefits /

> lyme

>

> Hi :

>

> We did our lyme testing thru Immunosciences and

> Igenix. Igenix is the gold standard now for lyme

> testing. You need to find a " LLMD " Lyme Literate

> Medical Doctor who is willing to treat in the

> absence

> of a positive lyme test, since you mostly won't test

> positive until after some antibiotic treatment if

> you

> have chronic lyme. Lyme is a clinical diagnosis, and

> no test is 100% - so the best lyme doctors know what

> to look for, symptom wise. But you can start with a

> Western Blot (insurance covers). Co-infections

> (Babesia - night sweats, dizziness - and Ehrlichia,

> Bartonella) are very common.

>

> If you go to anyone besides a LLMD they will laugh

> you

> out of the office if you request a lyme test if you

> are on the West Coast. Believe me, I know. And if

> they

> don't see a bulls-eye rash somewhere, and if your

> knee

> isn't swollen, I don't think many doctors will run

> that test. Our DAN doctor was very helpful in

> running

> the original tests, so you might start there. But

> they may not be knowledgeable about lyme, and if the

> test doesn't turn up positive, they may say " end of

> story " , when in reality you and your son may be

> dealing with chronic lyme every day of your life,

> unbeknownst to you.

>

> There is a doctor in Washington State who treats

> autism and lyme with herbs and natural products. He

> says the autistic kids are all coming up positive

> for

> lyme on Western Blot tests, but I haven't seen any

> concrete data on that, nor have I heard anyone else

> claming that. It may be one of many infections, or

> it

> may be the door that opens the body to other immune

> problems for some children.

>

> Are you in Northern California? is

> awesome, but he is in Nevada City. He has an office

> in

> Malibu, too. My children go to a lyme doctor in

> Southern California, and she is not at all doubtful

> that lyme is contagious, in-utero or otherwise (our

> family is living proof of that!).

>

> I hope this helps. I am a newbie and I really came

> to

> learn about MB12, but lyme is part of our story.

>

> Carmel

>

> --- <susanwaldcomcast (DOT)

> <mailto:susanwald%40comcast.net> net>

> wrote:

>

> > Carmel,

> >

> > What test did you use to determine your children

> had

> > Lyme? Who gave it? Who is treating them?

> >

> > I have never had my son tested, but spend a few

> > summers of my youth in Lyme, CN, so suspect he has

> > it through me. He is doing really well on all the

> > OTC anti-virals I'm giving him.

> >

> >

>

>

[Guest guest]

Hi :

So many different antibiotics are used for Chronic

Lyme. There is one doctor in Pennsylvania who

specializes in Pediatric Lyme. I am not sure what he

uses in small children. Right now we're on Zithromax

in combination with Plaquenil. Doxycycline is used a

lot. The doctor usually uses a combination of two to

get the active lyme and the cyst form. It is a very

complex, tricky organism and you need to use a

multitude of approaches to outsmart it. But lots of

herbs can be used as well, and vitamins, magnesium,

and even salt (osmotic shock kills the bugs).

Hyperbarics is effective, but expensive, and it comes

back. My doctor said you need to use both antibiotic

and natural approaches together.

Lyme is very tied in to mercury, and somehow the

organism uses it to its advantage, so getting the

mercury and heavy metals out is vital. Chlorella is

used a lot - also Natural Cellular Defense, PCA-Rx,

far infrared saunas and epsom salt baths all are being

used by the lyme community for heavy metal removal.

Best wishes & prayers,

Carmel

--- " K. Fischer " <elfischer@...> wrote:

> Carmel: Which antibiotics are generally used for

> chronic lyme?

>

>

>

> Re: Re: Valtrex benefits /

> lyme

>

> Hi :

>

> We did our lyme testing thru Immunosciences and

> Igenix. Igenix is the gold standard now for lyme

> testing. You need to find a " LLMD " Lyme Literate

> Medical Doctor who is willing to treat in the

> absence

> of a positive lyme test, since you mostly won't test

> positive until after some antibiotic treatment if

> you

> have chronic lyme. Lyme is a clinical diagnosis, and

> no test is 100% - so the best lyme doctors know what

> to look for, symptom wise. But you can start with a

> Western Blot (insurance covers). Co-infections

> (Babesia - night sweats, dizziness - and Ehrlichia,

> Bartonella) are very common.

>

> If you go to anyone besides a LLMD they will laugh

> you

> out of the office if you request a lyme test if you

> are on the West Coast. Believe me, I know. And if

> they

> don't see a bulls-eye rash somewhere, and if your

> knee

> isn't swollen, I don't think many doctors will run

> that test. Our DAN doctor was very helpful in

> running

> the original tests, so you might start there. But

> they may not be knowledgeable about lyme, and if the

> test doesn't turn up positive, they may say " end of

> story " , when in reality you and your son may be

> dealing with chronic lyme every day of your life,

> unbeknownst to you.

>

> There is a doctor in Washington State who treats

> autism and lyme with herbs and natural products. He

> says the autistic kids are all coming up positive

> for

> lyme on Western Blot tests, but I haven't seen any

> concrete data on that, nor have I heard anyone else

> claming that. It may be one of many infections, or

> it

> may be the door that opens the body to other immune

> problems for some children.

>

> Are you in Northern California? is

> awesome, but he is in Nevada City. He has an office

> in

> Malibu, too. My children go to a lyme doctor in

> Southern California, and she is not at all doubtful

> that lyme is contagious, in-utero or otherwise (our

> family is living proof of that!).

>

> I hope this helps. I am a newbie and I really came

> to

> learn about MB12, but lyme is part of our story.

>

> Carmel

>

> --- <susanwaldcomcast (DOT)

> <mailto:susanwald%40comcast.net> net>

> wrote:

>

> > Carmel,

> >

> > What test did you use to determine your children

> had

> > Lyme? Who gave it? Who is treating them?

> >

> > I have never had my son tested, but spend a few

> > summers of my youth in Lyme, CN, so suspect he has

> > it through me. He is doing really well on all the

> > OTC anti-virals I'm giving him.

> >

> >

>

>