Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 I found out I had Hepatitis right in 1993 or 94 when I donated blood and they wrote me and my doctor a letter saying they didn't want it because I had Hep.C, and evidently had it for years already. I began to many of the symptoms, so I took interferon for about 6 months. I turned into the wicked witch of the west. I agree that people should know what they are facing--at least I could have been kinder to others. The interferon was a failure, according to my doctor. It didn't bother me for a while, but only about a couple of years ago, it started to get worse again. I was working at the time--a teacher for incarcerated young men 12-17. I loved that job, but was too tired to stand up and teach by the end of the semester. It broke my heart to have to quit, but you can't be half-there, and do a good job with that kind of kids. I've been off work now for a couple of years, (but that's ok, I'm 75). I am lucky enough to have a husband who will be 80 tomorrow, and still golfs and bowls several times a week. He is really good to me, and expects me to do nothing that I don't feel like doing. (His average bowling score is currently over 200. Amazing for his age.) My Hep. C. is getting worse all the time, but the doctor said I was too old to try again, and that I had only a 10% chance of getting better. I can't see paying all that money, and going through that interferon again for only a 10% chance, so I'm just going to enjoy what life is left. I do NOT expect to be off of this planet for some time. I still have too many things I want to do...write a book, jump from an airplane, learn the names of all my grandkids and great grandkids. That's not as easy as you might think. I have 25 grandkids, 7 great-grandkids, and some step-grandkids I haven't even met yet, since my kids live all over the USA, Texas, Kansas, land, Virginia and even Alaska. I believe what I am saying here is an early goodbye. I will probably soon drop off this list since I cannot participate fully with you all, but I do believe I have mentally met on this list some of the most courageous people I know. I wish each and every one of you health and happiness, and will pray that you will soon find that you will have beaten that damned Hep. C. I am happy that some of you already have. With great affection, Dar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 You will be in my prayers tonight , and I hope all goes well at the doc's saying hello to all ! I found out about my hepC 2000. I took the treatment 2001 n 2003I was doing ok but I am starting having problems it came back. So i will get to go see my doc next week. Keep me in your prayers. God bless You All! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Good luck Melenda! Let us know what ya find out when you see your doc! jax moderatormelendezgracie <melendezgracie@...> wrote: I found out about my hepC 2000. I took the treatment 2001 n 2003I was doing ok but I am starting having problems it came back. So i will get to go see my doc next week. Keep me in your prayers. God bless You All!Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 Dar Honey, just because you cannot treat,, you dont have to leave our list!!!!! We have many members who either choose NOT to treat or cannot treat and still stay with us and share just what is going on in their lives. I WISH you would stay! As your symptoms progress, if they do,, we can help you! Plus, there are some here who are doing more 'natural' things to help maintain their liver health so it doesnt progress and we can help you with that too... Please think about it and I hope you stay!!! In either case, please write my email addy and let me know if there is anything I can do for ya! jax moderatorharlequinade3315@... wrote: I found out I had Hepatitis right in 1993 or 94 when I donated blood and they wrote me and my doctor a letter saying they didn't want it because I had Hep.C, and evidently had it for years already.I began to many of the symptoms, so I took interferon for about 6 months. I turned into the wicked witch of the west. I agree that people should know what they are facing--at least I could have been kinder to others.The interferon was a failure, according to my doctor. It didn't bother me for a while, but only about a couple of years ago, it started to get worse again. I was working at the time--a teacher for incarcerated young men 12-17. I loved that job, but was too tired to stand up and teach by the end of the semester. It broke my heart to have to quit, but you can't be half-there, and do a good job with that kind of kids.I've been off work now for a couple of years, (but that's ok, I'm 75). I am lucky enough to have a husband who will be 80 tomorrow, and still golfs and bowls several times a week. He is really good to me, and expects me to do nothing that I don't feel like doing. (His average bowling score is currently over 200. Amazing for his age.)My Hep. C. is getting worse all the time, but the doctor said I was too old to try again, and that I had only a 10% chance of getting better. I can't see paying all that money, and going through that interferon again for only a 10% chance, so I'm just going to enjoy what life is left. I do NOT expect to be off of this planet for some time. I still have too many things I want to do...write a book, jump from an airplane, learn the names of all my grandkids and great grandkids. That's not as easy as you might think. I have 25 grandkids, 7 great-grandkids, and some step-grandkids I haven't even met yet, since my kids live all over the USA, Texas, Kansas, land, Virginia and even Alaska. I believe what I am saying here is an early goodbye. I will probably soon drop off this list since I cannot participate fully with you all, but I do believe I have mentally met on this list some of the most courageous people I know. I wish each and every one of you health and happiness, and will pray that you will soon find that you will have beaten that damned Hep. C. I am happy that some of you already have. With great affection,Dar Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 GREAT hon,, and we will try to support you in all you do!!! Thank you for staying, we need good ppl like you! May God bless you and may you live till you are 100!!! hugs jaxharlequinade3315@... wrote: In a message dated 9/21/2006 12:33:47 AM Central Daylight Time, redjaxjm writes: DarHoney, just because you cannot treat,, you dont have to leave our list!!!!!Thank you. Then I'll stay. I love you people.Dar Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Definitely in agreement with that. Love JanetJackie on <redjaxjm@...> wrote: GREAT hon,, and we will try to support you in all you do!!! Thank you for staying, we need good ppl like you! May God bless you and may you live till you are 100!!! hugs jaxharlequinade3315cs wrote: In a message dated 9/21/2006 12:33:47 AM Central Daylight Time, redjaxjm writes: DarHoney, just because you cannot treat,, you dont have to leave our list!!!!!Thank you. Then I'll stay. I love you people.Dar Jackie Take the ordinary things of life, and make them your own. Do the impossible with a smile Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Thank you Janet!!!Janet <doc_jade@...> wrote: Definitely in agreement with that. Love JanetJackie on <redjaxjm > wrote: GREAT hon,, and we will try to support you in all you do!!! Thank you for staying, we need good ppl like you! May God bless you and may you live till you are 100!!! hugs jaxharlequinade3315cs wrote: In a message dated 9/21/2006 12:33:47 AM Central Daylight Time, redjaxjm writes: DarHoney, just because you cannot treat,, you dont have to leave our list!!!!!Thank you. Then I'll stay. I love you people.Dar Jackie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Jackie on writes: GREAT hon, and we will try to support you in all you do!!! Thank you for staying, we need good ppl like you! May God bless you and may you live till you are 100!!! hugs jax Bless your hearts. I thought that I never would have good news to tell but I have to share this with you. I've been going from the internal medicine doctor, to the Hep. C specialist, to the orthopedic surgeon and back. Yesterday, my internal medicine doc had asked me to come back. It was his last day to work late in the afternoon before he was going on vacation. (Scary he wanted to see me.) While I really appreciate his kindness, and his expertise, prior to this time he would never tell me the details of anything, and I didn't know enough about them to ask. I had mentioned to the Hep. C doc that it really bothered me because no one would explain things to me, and I had learned a lot by being on this list. It would have been so much easier for me if I knew what was coming/going. Well, that good man obviously had contacted my internal medicine doc, and the only thing that internal medicine doc had in mind was to share the last several test results with me. He explained what each one meant, and how some were going up and some were going down. What a nice surprise for me. Then, as it started soaking in my withering brain, he pointed out that the tests that should go up, went up, and the ones that should be going down, went down. He said that really, I was in great shape considering everything. He also told me to continue coming in every three months, but to go to the lab three days earlier than that (instead of the same day as the visit), and he would go over the lab results with me every time. I was so happy, I almost bawled. As if that weren't enough, my orthopedic dr. who has already replaced both my knees, and will reconstruct my feet again, was checking out the severe pain in my ankle--obviously a threat from that hep.c. He had given me a huge shot of cortizone three months earlier, and he had asked me to come back in three months. Some friends here had told me that I could only take cortizone three times. He laughed, and said, " Honey, you are 75. There is no reason to give you that kind of pain. You can have it as long as you need it." I have always said, and continue to say, that I am the luckiest woman in the world. Even my kids (eight of them) call much more frequently, and the three of them who live in this area all came home a couple of week-ends ago. They spent the night, and they and their families came ready to go to church with me. What a blessing! There is absolutely nothing better in the world, than having your kids try to beat you at cards. LOL To top the whole wonderful time off, HH had his 80th birthday this week. Within the past several years, he has had a quadruple bypass, cancer of the lung, cancer of the bladder, and cancer of the colon. Would you believe he is absolutely cleared of all of them? We couldn't have a party for him, because this past week he was bowling three nights, (his average is 205 now, and that is NOT a misprint), and had a golf tournament in which he won his age group. What a guy! The luckiest thing I have, I believe, is that I have the only husband in captivity who goes to the doctor regularly without me asking. Therefore all of the heart problems and the cancers were barely started when they were discovered. Surgery and prayers from our friends worked miracles. OK. I'll quit bragging, but I am so happy the way things turned out, that I may actually do some work around here for awhile. LOL. Thank you all for helping me understand what is going on in the Hep C world. It means SO much to me. Love to all, Dar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Now that is good news!! Ahhh Dar you deserve every kindness sent your way. Love Janetharlequinade3315@... wrote: Jackie on writes: GREAT hon, and we will try to support you in all you do!!! Thank you for staying, we need good ppl like you! May God bless you and may you live till you are 100!!!hugsjaxBless your hearts. I thought that I never would have good news to tell but I have to share this with you. I've been going from the internal medicine doctor, to the Hep. C specialist, to the orthopedic surgeon and back. Yesterday, my internal medicine doc had asked me to come back. It was his last day to work late in the afternoon before he was going on vacation. (Scary he wanted to see me.)While I really appreciate his kindness, and his expertise, prior to this time he would never tell me the details of anything, and I didn't know enough about them to ask. I had mentioned to the Hep. C doc that it really bothered me because no one would explain things to me, and I had learned a lot by being on this list. It would have been so much easier for me if I knew what was coming/going. Well, that good man obviously had contacted my internal medicine doc, and the only thing that internal medicine doc had in mind was to share the last several test results with me. He explained what each one meant, and how some were going up and some were going down. What a nice surprise for me. Then, as it started soaking in my withering brain, he pointed out that the tests that should go up, went up, and the ones that should be going down, went down. He said that really, I was in great shape considering everything. He also told me to continue coming in every three months, but to go to the lab three days earlier than that (instead of the same day as the visit), and he would go over the lab results with me every time. I was so happy, I almost bawled.As if that weren't enough, my orthopedic dr. who has already replaced both my knees, and will reconstruct my feet again, was checking out the severe pain in my ankle--obviously a threat from that hep.c. He had given me a huge shot of cortizone three months earlier, and he had asked me to come back in three months. Some friends here had told me that I could only take cortizone three times. He laughed, and said, " Honey, you are 75. There is no reason to give you that kind of pain. You can have it as long as you need it." I have always said, and continue to say, that I am the luckiest woman in the world. Even my kids (eight of them) call much more frequently, and the three of them who live in this area all came home a couple of week-ends ago. They spent the night, and they and their families came ready to go to church with me. What a blessing! There is absolutely nothing better in the world, than having your kids try to beat you at cards. LOLTo top the whole wonderful time off, HH had his 80th birthday this week. Within the past several years, he has had a quadruple bypass, cancer of the lung, cancer of the bladder, and cancer of the colon. Would you believe he is absolutely cleared of all of them? We couldn't have a party for him, because this past week he was bowling three nights, (his average is 205 now, and that is NOT a misprint), and had a golf tournament in which he won his age group. What a guy! The luckiest thing I have, I believe, is that I have the only husband in captivity who goes to the doctor regularly without me asking. Therefore all of the heart problems and the cancers were barely started when they were discovered. Surgery and prayers from our friends worked miracles. OK. I'll quit bragging, but I am so happy the way things turned out, that I may actually do some work around here for awhile. LOL. Thank you all for helping me understand what is going on in the Hep C world. It means SO much to me.Love to all,Dar Take the ordinary things of life, and make them your own. Do the impossible with a smile Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 WOW Dar That is quite the story! IM THRILLED that you have decided to stay with us! You are a GREAT addition to our group! Im so glad that your doc is now actually talking and explaining things to you.. I think its less scary when you understand what is happening.. and when the docs act like"well let me take care of you, after all, I AM the doctor" makes it much worse cuz when they talk like that, you start to think that you really DO have something that only a doc can fix it... I too have a GREAT hubby who takes good care of himself and I feel very very grateful for that.. We have only been married 6 years but I KNOW we have many ahead of us.. He was my lifeline on tx, he took me to EVERY doc appt, EVERY lab, and he did that while taking care of the house, the shoppping, the laundry, the cooking... He just put me to bed and told me to concern myself with tx and getting well.. We had only been married ONE year when I got my diagnosis... I feel so blessed too! Im glad that your ortho is not going to let you suffer with your joints,, Im facing both knees being replaced but my ortho wants to try to keep me from doing it until Im 60, Im now 52... the hep c has destroyed my joints.. Im glad your doc is not gonna let you suffer,, Well sweetie, go and enjoy your home, your family and check in with us and let us know how things are going! hugs and prayers jaxharlequinade3315@... wrote: Jackie on writes: GREAT hon, and we will try to support you in all you do!!! Thank you for staying, we need good ppl like you! May God bless you and may you live till you are 100!!!hugsjaxBless your hearts. I thought that I never would have good news to tell but I have to share this with you. I've been going from the internal medicine doctor, to the Hep. C specialist, to the orthopedic surgeon and back. Yesterday, my internal medicine doc had asked me to come back. It was his last day to work late in the afternoon before he was going on vacation. (Scary he wanted to see me.)While I really appreciate his kindness, and his expertise, prior to this time he would never tell me the details of anything, and I didn't know enough about them to ask. I had mentioned to the Hep. C doc that it really bothered me because no one would explain things to me, and I had learned a lot by being on this list. It would have been so much easier for me if I knew what was coming/going. Well, that good man obviously had contacted my internal medicine doc, and the only thing that internal medicine doc had in mind was to share the last several test results with me. He explained what each one meant, and how some were going up and some were going down. What a nice surprise for me. Then, as it started soaking in my withering brain, he pointed out that the tests that should go up, went up, and the ones that should be going down, went down. He said that really, I was in great shape considering everything. He also told me to continue coming in every three months, but to go to the lab three days earlier than that (instead of the same day as the visit), and he would go over the lab results with me every time. I was so happy, I almost bawled.As if that weren't enough, my orthopedic dr. who has already replaced both my knees, and will reconstruct my feet again, was checking out the severe pain in my ankle--obviously a threat from that hep.c. He had given me a huge shot of cortizone three months earlier, and he had asked me to come back in three months. Some friends here had told me that I could only take cortizone three times. He laughed, and said, " Honey, you are 75. There is no reason to give you that kind of pain. You can have it as long as you need it." I have always said, and continue to say, that I am the luckiest woman in the world. Even my kids (eight of them) call much more frequently, and the three of them who live in this area all came home a couple of week-ends ago. They spent the night, and they and their families came ready to go to church with me. What a blessing! There is absolutely nothing better in the world, than having your kids try to beat you at cards. LOLTo top the whole wonderful time off, HH had his 80th birthday this week. Within the past several years, he has had a quadruple bypass, cancer of the lung, cancer of the bladder, and cancer of the colon. Would you believe he is absolutely cleared of all of them? We couldn't have a party for him, because this past week he was bowling three nights, (his average is 205 now, and that is NOT a misprint), and had a golf tournament in which he won his age group. What a guy! The luckiest thing I have, I believe, is that I have the only husband in captivity who goes to the doctor regularly without me asking. Therefore all of the heart problems and the cancers were barely started when they were discovered. Surgery and prayers from our friends worked miracles. OK. I'll quit bragging, but I am so happy the way things turned out, that I may actually do some work around here for awhile. LOL. Thank you all for helping me understand what is going on in the Hep C world. It means SO much to me.Love to all,Dar Jackie Quote Link to comment Share on other sites More sharing options...
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