Conventional meds VS Holistic

October 7, 2006

This is all extremely enlightening...I am also 42, have been healthy

all of my life, don't even know my genotype yet, just had full labs

done on Friday, but have scheduled my biopsy for next Thursday. Since

I last wrote after first being diagnosed, I saw the GI specialist

(Dr. Najarian in Irvine, CA - so far I am impressd)last week. He says

that even though my load is 4.3 mil., I appear to be in pretty good

shape except my sonogram showed " fatty liver " (steatosis). He didn't

push me to get the biopsy, he said it could wait, but I want to know

NOW what the damage is and get on with the tx. I have been dreading

that I may have type 1 because with 4.3 mil and type 1, it sounds

like my chances of clearing are slimmer, but hearing about Ally's

experience helps a lot.

Sheena, I will be sure and write after the biopsy and let you know

how it went. I am having it done at St. Joe's in Orange, CA - don't

know where you are at, but since I moved to CA I have had pretty good

experiences with the doctors here. Who is your doctor?

I am planning to take this thing step by step, and wrestle it to the

ground -I have 2 great kids to support and I want to keep enjoying

this wonderful world the Lord has made. My ex-husband and fiance are

both very supportive, but I don't think they really " get it " yet

because, as a few of you experienced, I don't " look " sick.

Nonetheless I am very worried about having any downtime - I am in a

key position at a small company, so I need to be there and " be there "

(mentally)...also can't afford financially to take time off. I figure

that if I am a candidate for the tx, I will just do it and see how it

goes. Since I found out that I have this disease, I have been taking

NAC, ALA, SAMe, Vit E, Selenium, and completely changed my diet. This

is to help detoxify but also to get my body ready for the " chemo " .

Also lots of juices -wheatgrass which I have always loved - grape,

pom, just whatever will strengthen my immune system. Not so much red

meat, lots of tofu and " live " foods. Since I made these changes I'm

not so tired by mid-afternoon! I try and eat a samll healthy meal

every 3 hours...my body can't tolerate lots of fats and any large

amounts of foods at once.

Here's a funny thing - I had trouble with diarrhea for quite a while,

and my fiance told me " hey, you just have IBS, take Immodium " . In

reality, my body was rejecting the foods it can't tolerate any

more...the fats, fried stuff, dairy, sugar. Since I cut those things

out, I feel much better. Just for this reason, I look at my diagnoss

as a " gift " in a way.

Sorry to ramble!

God Bless!

>

> Hello all,

> I'm new to the Group, just recently diagnosed with Hepatitis C,

> Genotype 1. I am not yet under any treatment, as I am still

> waiting to see the specialist. Has anyone that is a " 1 " tried

> Holistic methods, rather than Conventional meds?

>

> Thanks,

> Sheena

>

> ---------------------------------

> How low will we go? Check out Messenger's low PC-to-Phone

call rates.

>

> Jackie

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1ï¿½/min.

>

> Jackie

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US

(and 30+ countries) for 2ï¿½/min or less.

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1ï¿½/min.

>

> Tim Parsons

>

> knoxville,tn 37931

>

> 865-588-2465 x107 work

>

> www.knoxville1.com

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1ï¿½/min.

>

> Tim Parsons

>

> knoxville,tn 37931

>

> 865-588-2465 x107 work

>

> www.knoxville1.com

>

> ---------------------------------

> How low will we go? Check out Messenger's low PC-to-Phone

call rates.

>

October 7, 2006

I think I did so well BECAUSE I REFUSED to allow my stinkin gastro to reduce my meds in place of giving me procrit and I learned EVERYTHING I could so that I would KNOW what to ask for... I was 47 years old, 70 pounds overweight when I did tx, was/am geno 1 and was stage 3-4 so I have very little chance of reaching SVR... I do not like talking about religion and God here but I remember reading in the Bible where it says that 'anything asked of the Father in the name of the Son will be given' and I STOOD on THAT promise and I BELIEVED that I WOULD clear even inspite of very very low odds of even responding to tx.. My gastro that I fired halfway through tx gave me 10-15% chance of responding to tx and virtually NO chance of reaching SVR,, and he didnt really want or think I should put myself through tx with such low odds,, but I made up my mind and I went at it full throttle, and I refused to allow HIM or anyone else to do anything that might reduce my chances.. I

took the meds faithfully, I drank the water, I slept nearly all the time, I ate a protein based diet, only drank 2 cups of coffee PER WEEK,, and I stood on God's promise,,, and I BELIEVED.... I had a lot of side effects but I welcomed them,, I believed that IF I had horrible side effects, that the medicine must be working and I visualized the meds killing the virus... I dont know for sure just WHY I cleared,, but I did and Im very grateful for it,, I hope that helps, jaxSharon Crosby <blubirdxoxo@...> wrote: Sheena, I was in my late 50's when I did tx and overweight and it DID make a difference. I also hear that some just get more sides than others. Use this group, you;ll get your soul soothed, but not your poor body. It stinks, the dx, the tx, the docs, the world when on tx, but all things pass and this will too, will success and NO virus. SharonSheena <mom4possums2002 > wrote: Hi Ally, Thanks, two out of 700+ members, not truly helping my decison making process, as yet, but I can tell you honestly that I am more than happy for you! I thought the treatment was 48

weeks for a "1", why the extra 14 weeks? I did know the treatment could be difficult, at best, but it's the whether it's worth it in my case that is keeping me continuing to look for answers. WHY did you and Jax do so well, could age also be a factor? Sheena All-new - Fire up a more powerful email and get things done faster. Jackie

October 8, 2006

Sheena One other thing is to remember that 'most' of those who clear move on and go back to living their lives and dont hang around.. so thats why the majority of those here either havent cleared, have relapsed or have not done treatment.. Im here because I WANT to give back to those who helped me along the way,, I know the numbers make it scarey,, but dont be,, hugs jaxSheena <mom4possums2002@...> wrote: Hi Ally, Thanks, two out of 700+ members, not truly helping my decison making process, as yet, but I can tell you honestly that I am more than happy for you! I thought the treatment was 48 weeks for a "1", why the extra 14 weeks? I did know the treatment could be difficult, at best, but it's the whether it's worth it in my case that is keeping me continuing to look for answers. WHY did you and Jax do so well, could age also be a factor? Sheena Ally <4thMoongmail> wrote: Sheena, I too am a type 1A and am currently doing treatment. I'm on week 27 of 72. I am totally undetectable so it does work. I started with a 2.25 million viral load too and now it is gone. Please don't be so quick to think it is impossible for type 1s to have a successful go of it. It IS possible. Yes, it is harder but I was willing to jump right in because I didn't want one more day to go by with my liver being more damaged then it had to but that is just my personal opinion. I think diet and exercise make a big difference too on treatment side effects. I wish you the best on making your decision but just know that treatment isn't as horrible as everyone makes it out to be for

everyone a 100% of the time. For some people it can be horrible yes but for others it can turn out to be more than manageable. It effects everyone differently. Take care, Ally On 10/5/06, Sheena <mom4possums2002 > wrote: Hi Steve, From all I've read, that's about what I thought it sounded like, too..chemo.. not a picnic.. I'm trying to keep a very open mind as I research and listen carefully to all that everyone has to say.. I'm not big on Conventional

medicine, either, unless there is NO alternative.. I am also not really fond of doctor's in general.. I'm not sure what those liver numbers denote, they sound rather ominous, but I guess I'll know by the time I need to.. I'm still breathing and intend to keep right on until the end! I'm in Southern California, but was born in Ohio, how about you? Jax, are you the ONLY one here that is a "1" and has gone into remission using the Schering-Plough Drug Company's treatment? Does anyone know why a few do, but so many do not respond? Blessings, Sheena steve brewer <brewmon2003 > wrote: Sheena, I haven't done the "chemo" yet. That's what I call it any way. I'm just not ready to put my body through that yet. Once you do your liver biopsy then you'll know what condition your liver is in, (Stage 1,2, 3.or 4) Then you can make your decision from there on what approach to take. Of course most people 'live their life in fear' and take the advise of their DR. which may or may not be the right choice for you at this time. Life is Good, BREATH Where are you from? Peace love, out Steve Sheena <mom4possums2002 >

wrote: Hi, Thank you for the information, I am sure I do need a biopsy, no telling how long I've had this, or how much damage it has done. Do the numbers in the viral load give any indication of how long you have been infected? No, I have not even seen the specialist yet, my primary did schedule an ultrasound for this Friday, but they don't generally tell much. Thank you, I have a ton of bookmarks in my computer and many pages printed out. I also have copies of my labs, except the very last, which I am picking up on Friday. Always a good idea not to go blindly into battle.. Thanks again, Sheena Jackie on <redjaxjm > wrote: Hi Sheena Yes I was on Peg-intron for 48 weeks and then my doc switched me to Pegasys and we planned to do another 12 but I was only able to do 6 and then we stopped.. but I did clear and remain clear,,, I know it was a shock, I was totally in shock myself,, I was a 911 paramedic and got the call from my husband while on duty,, I was just overwhelmed,, so I know how you are feeling,, but its gonna be ok,, Do you know how much damage you have? Yes, you DO need a biopsy to know that for sure,, but if you have what is called "conscious sedation", you are awake to follow when they tell you to hold your breath,, but you NEVER REMEMBER IT.,, its a piece of cake if you do it that way! Really easy! You have PLENTY of time to learn about this disease and then

make up your mind if you want to treat or wait for better tx to come along... What we advise everyone is to start your own file at home,, get copies OF EVERYTHING and keep it at home for your own research etc,, your doc should NOT have a problem with giving you copies of your labs, your biopsy, etc,, Let us know how we can help ya once again, welcome! jaxSheena <mom4possums2002 > wrote: Thank you for the warm welcome, as well as the information. Once I got over my initial shock and anger, I have been on a seek and learn campaign! I very much appreciate having others to talk to. How many weeks were you on treatment and was that Peg-Intron? Sheena Jackie on <redjaxjm > wrote: Hi Sheena Welcome to our group.. I am/was geno 1 myself but treated with standard tx and did clear and remain clear, it will be 4 years since I finished tx in Feb this next year. Honestly, I DO believe in alternative treatments but I dont know anyone who actually cleared this virus with holistic meds/herbs. They CAN be dangerous if you dont know what you are doing too, but then again, so can standard tx for hep. Each person has to research and decide for themselves what to do. I took siliphos bound milk thistle and another product called CM Plex while on tx and I really believe it helped me clear and be able to tolerate tx better.. We do have some members who are treating or at least 'using' alternative herbs to at least help their

livers hold their ground and hopefully not get any worse. Tim will be able to tell you more. Anyway, welcome to the group, jax moderatorOpossum Hollow <mom4possums2002 > wrote: Hello all, I'm new to the Group, just recently diagnosed with Hepatitis C, Genotype 1. I am not yet under any treatment, as I am still waiting to see the specialist. Has anyone that is a "1" tried Holistic methods, rather than Conventional meds? Thanks, Sheena How low will we go? Check out Messenger's low PC-to-Phone call

rates. Jackie Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Jackie Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Jackie

October 8, 2006

Hi Sheena Im in northern Cali,, so HI there! hehe,, Im in Grass Valley near Sacramento but we have children and grandchildren in Ventura,, we do get down there every so often, maybe we might have a chance to meet some day! As I said before,, most people who clear just go back with their lives and dont need the forums anymore,, there ARE lots of geno1's out there that ARE CLEAR! with the pegylated INF the incidences of SVR in geno1's have risen a lot... its NOT a lost cause for you sweetie,, you need to know your stage tho and more info about your liver that is found with that biopsy! hugs jaxSheena <mom4possums2002@...> wrote: Hi Steve, From all I've read, that's about what I thought it sounded like, too..chemo.. not a picnic.. I'm trying to keep a very open mind as I research and listen carefully to all that everyone has to say.. I'm not big on Conventional medicine, either, unless there is NO alternative.. I am also not really fond of doctor's in general.. I'm not sure what those liver numbers denote, they sound rather ominous, but I guess I'll know by the time I need to.. I'm still breathing

and intend to keep right on until the end! I'm in Southern California, but was born in Ohio, how about you? Jax, are you the ONLY one here that is a "1" and has gone into remission using the Schering-Plough Drug Company's treatment? Does anyone know why a few do, but so many do not respond? Blessings, Sheena steve brewer <brewmon2003 > wrote: Sheena, I haven't done the "chemo" yet. That's what I call it any way. I'm just not ready to put my body through that

yet. Once you do your liver biopsy then you'll know what condition your liver is in, (Stage 1,2,3.or 4) Then you can make your decision from there on what approach to take. Of course most people 'live their life in fear' and take the advise of their DR. which may or may not be the right choice for you at this time. Life is Good, BREATH Where are you from? Peace love, out Steve Sheena <mom4possums2002 > wrote: Hi, Thank you for the information, I am sure I do need a biopsy, no telling how long I've had this, or how much damage it has done. Do the numbers in the viral load give any indication of how long you have been infected? No, I have not even

seen the specialist yet, my primary did schedule an ultrasound for this Friday, but they don't generally tell much. Thank you, I have a ton of bookmarks in my computer and many pages printed out. I also have copies of my labs, except the very last, which I am picking up on Friday. Always a good idea not to go blindly into battle.. Thanks again, Sheena Jackie on <redjaxjm > wrote: Hi Sheena Yes I was on Peg-intron for 48 weeks and then my doc switched me to Pegasys and we planned to do another 12 but I was only able to do 6 and then we stopped.. but I did clear and remain clear,,, I know it was a shock, I was totally in shock myself,, I was

a 911 paramedic and got the call from my husband while on duty,, I was just overwhelmed,, so I know how you are feeling,, but its gonna be ok,, Do you know how much damage you have? Yes, you DO need a biopsy to know that for sure,, but if you have what is called "conscious sedation", you are awake to follow when they tell you to hold your breath,, but you NEVER REMEMBER IT.,, its a piece of cake if you do it that way! Really easy! You have PLENTY of time to learn about this disease and then make up your mind if you want to treat or wait for better tx to come along... What we advise everyone is to start your own file at home,, get copies OF EVERYTHING and keep it at home for your own research etc,, your doc should NOT have a problem with giving you copies of your labs, your biopsy, etc,, Let us know how we can help ya once again, welcome! jaxSheena

<mom4possums2002 > wrote: Thank you for the warm welcome, as well as the information. Once I got over my initial shock and anger, I have been on a seek and learn campaign! I very much appreciate having others to talk to. How many weeks were you on treatment and was that Peg-Intron? Sheena Jackie on <redjaxjm > wrote: Hi Sheena Welcome to our group.. I am/was geno 1 myself but treated with standard tx and did clear and remain clear, it will be 4 years since I finished tx in Feb this next year. Honestly, I DO believe in alternative treatments but I dont know anyone who actually cleared this virus with holistic meds/herbs. They CAN be dangerous if you dont know what you are doing too, but then again, so can standard tx for hep. Each person has to research and decide for themselves what to do. I took siliphos bound milk thistle and another product called CM Plex while on tx and I really believe it helped me clear and be able to tolerate tx better.. We do have some members who are treating or at least 'using' alternative herbs to at least help their livers hold their ground and hopefully not get any worse. Tim will be able to tell you more. Anyway, welcome to the group, jax moderatorOpossum Hollow <mom4possums2002 > wrote: Hello all, I'm new to the Group, just recently diagnosed with Hepatitis C, Genotype 1. I am not yet under any treatment, as I am still waiting to see the specialist. Has anyone that is a "1" tried Holistic methods, rather than Conventional meds? Thanks, Sheena How low will we go? Check out Messenger’s low PC-to-Phone call rates. Jackie Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

Jackie Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Jackie

October 8, 2006

hello marv glad to hear your doing well and have read up on it.keep doing what your doing.best wishes marvindamartian05 <marvindamartian05@...> wrote: This is all extremely enlightening...I am also 42, have been healthy all of my life, don't even know my genotype yet, just had full labs done on Friday,

but have scheduled my biopsy for next Thursday. Since I last wrote after first being diagnosed, I saw the GI specialist (Dr. Najarian in Irvine, CA - so far I am impressd)last week. He says that even though my load is 4.3 mil., I appear to be in pretty good shape except my sonogram showed "fatty liver" (steatosis). He didn't push me to get the biopsy, he said it could wait, but I want to know NOW what the damage is and get on with the tx. I have been dreading that I may have type 1 because with 4.3 mil and type 1, it sounds like my chances of clearing are slimmer, but hearing about Ally's experience helps a lot.Sheena, I will be sure and write after the biopsy and let you know how it went. I am having it done at St. Joe's in Orange, CA - don't know where you are at, but since I moved to CA I have had pretty good experiences with the doctors here. Who is your doctor?I am planning to take this thing step by

step, and wrestle it to the ground -I have 2 great kids to support and I want to keep enjoying this wonderful world the Lord has made. My ex-husband and fiance are both very supportive, but I don't think they really "get it" yet because, as a few of you experienced, I don't "look" sick. Nonetheless I am very worried about having any downtime - I am in a key position at a small company, so I need to be there and "be there" (mentally)...also can't afford financially to take time off. I figure that if I am a candidate for the tx, I will just do it and see how it goes. Since I found out that I have this disease, I have been taking NAC, ALA, SAMe, Vit E, Selenium, and completely changed my diet. This is to help detoxify but also to get my body ready for the "chemo". Also lots of juices -wheatgrass which I have always loved - grape, pom, just whatever will strengthen my immune system. Not so much red meat, lots of tofu

and "live" foods. Since I made these changes I'm not so tired by mid-afternoon! I try and eat a samll healthy meal every 3 hours...my body can't tolerate lots of fats and any large amounts of foods at once.Here's a funny thing - I had trouble with diarrhea for quite a while, and my fiance told me "hey, you just have IBS, take Immodium". In reality, my body was rejecting the foods it can't tolerate any more...the fats, fried stuff, dairy, sugar. Since I cut those things out, I feel much better. Just for this reason, I look at my diagnoss as a "gift" in a way.Sorry to ramble!God Bless!> > > Hello all,> I'm new to the Group, just recently diagnosed with Hepatitis C,> Genotype 1. I am not yet under any treatment, as I am still > waiting to see the specialist. Has anyone that is a "1" tried > Holistic methods, rather than Conventional meds?>

> Thanks,> Sheena> > ---------------------------------> How low will we go? Check out Messenger's low PC-to-Phone call rates. > > > > > > > Jackie > > > > > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min. > > > > > > > Jackie > > > > > ---------------------------------> Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2ï¿½/min or less. > > > > > > > > > > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min.

> > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > knoxville,tn 37931 > > 865-588-2465 x107 work> > > www.knoxville1.com> > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min. > > > > > > > > > > Tim Parsons > > knoxville,tn 37931 > > 865-588-2465 x107 work> > > www.knoxville1.com> > > ---------------------------------> How low will we go? Check out Messenger's low PC-to-Phone call

rates.>Tim Parsons knoxville,tn 37931 865-588-2465 x107 work

www.knoxville1.com

All-new - Fire up a more powerful email and get things done faster.

October 8, 2006

Great odds as compared to some I've seen! I'm so very glad for you and hope things will continue to go well for you. Always good to have a doctor that you trust, I have yet to meet my specialist.. Another 3 weeks, 1 day.. HMO's are slower than slow.. Blessings, Sheena Ally <4thMoon@...> wrote: I'm doing the extra weeks because I didn't get to negative till I was

at week 20 so that is what is recommended for my best chance of getting SVR. Although the thought of doing so many more weeks is daunting, I jumped on the chance to give myself whatever opportunity I could. At this point I am used to my side effects so can live with them though they are annoying. I've kind of forgot what it is like to not have them and be normal to be honest, kind of weird. I don't know if anyone else has experienced that too but I just can't remember what "normal" feels like. Anyway, I think age does make a difference, at least according to my Dr but that's really all I know. She stressed too how important it is for me to keep up with my exercise so I've done that. I take medication as well for the side effects which help immensely. If it wasn't for them, I would be flat on my back sleeping thru this whole thing. I personally think though that it is a roll of the dice on who it works for and who it doesn't. But the 50-70% chance they gave me was good

enough for me. Ally On 10/6/06, Sheena <mom4possums2002 > wrote: Hi Ally, Thanks, two out of 700+ members, not truly helping my decison making process, as yet, but I can tell you honestly that I am more than happy for you! I thought the treatment was 48 weeks for a "1", why the extra 14 weeks? I did know the treatment could be difficult, at best, but it's the

whether it's worth it in my case that is keeping me continuing to look for answers. WHY did you and Jax do so well, could age also be a factor? Sheena Ally <4thMoongmail> wrote: Sheena, I too am a type 1A and am currently doing treatment. I'm on week 27 of 72. I am totally undetectable so it does work. I started with a 2.25 million viral load too and now it is gone. Please don't be so quick to think

it is impossible for type 1s to have a successful go of it. It IS possible. Yes, it is harder but I was willing to jump right in because I didn't want one more day to go by with my liver being more damaged then it had to but that is just my personal opinion. I think diet and exercise make a big difference too on treatment side effects. I wish you the best on making your decision but just know that treatment isn't as horrible as everyone makes it out to be for everyone a 100% of the time. For some people it can be horrible yes but for others it can turn out to be more than manageable. It effects everyone differently. Take care, Ally On 10/5/06, Sheena <mom4possums2002 > wrote: Hi Steve, From all I've read, that's about what I thought it sounded like, too..chemo.. not a picnic.. I'm trying to keep a very open mind as I research and listen carefully to all that everyone has to say.. I'm not big on Conventional medicine, either, unless there is NO alternative.. I am also not really fond of doctor's in general.. I'm not sure what those liver numbers denote, they sound rather ominous, but I guess I'll know by the time I need to.. I'm still breathing and intend to keep right on until the end! I'm in Southern

California, but was born in Ohio, how about you? Jax, are you the ONLY one here that is a "1" and has gone into remission using the Schering-Plough Drug Company's treatment? Does anyone know why a few do, but so many do not respond? Blessings, Sheena steve brewer <brewmon2003 > wrote: Sheena, I haven't done the "chemo" yet. That's what I call it any way. I'm just not ready to put my body through that yet. Once you do your liver biopsy then you'll know what condition your liver is in,

(Stage 1,2, 3.or 4) Then you can make your decision from there on what approach to take. Of course most people 'live their life in fear' and take the advise of their DR. which may or may not be the right choice for you at this time. Life is Good, BREATH Where are you from? Peace love, out Steve Sheena <mom4possums2002 > wrote: Hi, Thank you for the information, I am sure I do need a biopsy, no telling how long I've had this, or how much damage it has done. Do the numbers in the viral load give any indication of how long you have been infected? No, I have not even seen the specialist yet, my primary did schedule an ultrasound for this Friday,

but they don't generally tell much. Thank you, I have a ton of bookmarks in my computer and many pages printed out. I also have copies of my labs, except the very last, which I am picking up on Friday. Always a good idea not to go blindly into battle.. Thanks again, Sheena Jackie on <redjaxjm > wrote: Hi Sheena Yes I was on Peg-intron for 48 weeks and then my doc switched me to Pegasys and we planned to do another 12 but I was only able to do 6 and then we stopped.. but I did clear and remain clear,,, I know it was a shock, I was totally in shock myself,, I was a 911 paramedic and got the call from my husband while on duty,, I was just

overwhelmed,, so I know how you are feeling,, but its gonna be ok,, Do you know how much damage you have? Yes, you DO need a biopsy to know that for sure,, but if you have what is called "conscious sedation", you are awake to follow when they tell you to hold your breath,, but you NEVER REMEMBER IT.,, its a piece of cake if you do it that way! Really easy! You have PLENTY of time to learn about this disease and then make up your mind if you want to treat or wait for better tx to come along... What we advise everyone is to start your own file at home,, get copies OF EVERYTHING and keep it at home for your own research etc,, your doc should NOT have a problem with giving you copies of your labs, your biopsy, etc,, Let us know how we can help ya once again, welcome! jaxSheena <mom4possums2002 >

wrote: Thank you for the warm welcome, as well as the information. Once I got over my initial shock and anger, I have been on a seek and learn campaign! I very much appreciate having others to talk to. How many weeks were you on treatment and was that Peg-Intron? Sheena Jackie on <redjaxjm > wrote: Hi Sheena Welcome to our group.. I am/was geno 1 myself but treated with standard tx and did clear and remain clear, it will be 4 years since I finished tx in Feb this next year. Honestly, I DO believe in alternative treatments but I dont know anyone who actually cleared this

virus with holistic meds/herbs. They CAN be dangerous if you dont know what you are doing too, but then again, so can standard tx for hep. Each person has to research and decide for themselves what to do. I took siliphos bound milk thistle and another product called CM Plex while on tx and I really believe it helped me clear and be able to tolerate tx better.. We do have some members who are treating or at least 'using' alternative herbs to at least help their livers hold their ground and hopefully not get any worse. Tim will be able to tell you more. Anyway, welcome to the group, jax moderatorOpossum Hollow <mom4possums2002 > wrote: Hello all, I'm new to the Group, just recently diagnosed with Hepatitis C, Genotype 1. I

am not yet under any treatment, as I am still waiting to see the specialist. Has anyone that is a "1" tried Holistic methods, rather than Conventional meds? Thanks, Sheena How low will we go? Check out Messenger's low PC-to-Phone call rates. Jackie Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min. Jackie

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2ï¿½/min or less. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min.

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

October 8, 2006

, Wow, you are nearby, I am near Huntington Beach. I think your young age can do nothing but help, no matter what type you turn out to be! Look at Jax, she was a few years older and a "1", she is now in remission. Even I have some hope and I'm older than dirt.. My doctors are through an HMO , haven't even seen the Gastro guy, as yet.. I have heard of your doctor.. I think we both need to continue to check in with this Group and talk to others that have been through it all, that way we can hopefully make better informed decisions for ourselves, rather than simply following blindly all that a doctor may tell us . I think everyone's input is all part of the big puzzle.. I wish you the very best, please let me know if there's anything at

all that I can do for you.. Blessings, Sheena marvindamartian05 <marvindamartian05@...> wrote: This is all extremely enlightening...I am also 42, have been healthy all of my life, don't even know my genotype yet, just had full labs done on Friday, but have scheduled my biopsy for next Thursday. Since I last wrote after first being diagnosed, I saw the GI specialist (Dr.

Najarian in Irvine, CA - so far I am impressd)last week. He says that even though my load is 4.3 mil., I appear to be in pretty good shape except my sonogram showed "fatty liver" (steatosis). He didn't push me to get the biopsy, he said it could wait, but I want to know NOW what the damage is and get on with the tx. I have been dreading that I may have type 1 because with 4.3 mil and type 1, it sounds like my chances of clearing are slimmer, but hearing about Ally's experience helps a lot.Sheena, I will be sure and write after the biopsy and let you know how it went. I am having it done at St. Joe's in Orange, CA - don't know where you are at, but since I moved to CA I have had pretty good experiences with the doctors here. Who is your doctor?I am planning to take this thing step by step, and wrestle it to the ground -I have 2 great kids to support and I want to keep enjoying this wonderful world the Lord has

made. My ex-husband and fiance are both very supportive, but I don't think they really "get it" yet because, as a few of you experienced, I don't "look" sick. Nonetheless I am very worried about having any downtime - I am in a key position at a small company, so I need to be there and "be there" (mentally)...also can't afford financially to take time off. I figure that if I am a candidate for the tx, I will just do it and see how it goes. Since I found out that I have this disease, I have been taking NAC, ALA, SAMe, Vit E, Selenium, and completely changed my diet. This is to help detoxify but also to get my body ready for the "chemo". Also lots of juices -wheatgrass which I have always loved - grape, pom, just whatever will strengthen my immune system. Not so much red meat, lots of tofu and "live" foods. Since I made these changes I'm not so tired by mid-afternoon! I try and eat a samll healthy meal every 3

hours...my body can't tolerate lots of fats and any large amounts of foods at once.Here's a funny thing - I had trouble with diarrhea for quite a while, and my fiance told me "hey, you just have IBS, take Immodium". In reality, my body was rejecting the foods it can't tolerate any more...the fats, fried stuff, dairy, sugar. Since I cut those things out, I feel much better. Just for this reason, I look at my diagnoss as a "gift" in a way.Sorry to ramble!God Bless!> > > Hello all,> I'm new to the Group, just recently diagnosed with Hepatitis C,> Genotype 1. I am not yet under any treatment, as I am still > waiting to see the specialist. Has anyone that is a "1" tried > Holistic methods, rather than Conventional meds?> > Thanks,> Sheena> > --------------------------------->

How low will we go? Check out Messenger's low PC-to-Phone call rates. > > > > > > > Jackie > > > > > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min. > > > > > > > Jackie > > > > > ---------------------------------> Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2ï¿½/min or less. > > > > > > > > > > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min. > > > > > > > > > > >

> > > > > > > > > > > > > > Tim Parsons > > knoxville,tn 37931 > > 865-588-2465 x107 work> > > www.knoxville1.com> > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1ï¿½/min. > > > > > > > > > > Tim Parsons > > knoxville,tn 37931 > > 865-588-2465 x107 work> > > www.knoxville1.com> > > ---------------------------------> How low will we go? Check out Messenger's low PC-to-Phone call rates.>

Get your own web address for just $1.99/1st yr. We'll help. Small Business.

October 8, 2006

Good advice, I don't recall reading about Procrit, as yet, are you saying that is needed along with the Peg-Intron? My apologies to those who have been there, done that and are tired of the same questions. I am just in "Kindergarten" right now, and have tried going back through the archives, but exhaustion takes over.. Blessings, Sheena Jackie on <redjaxjm@...> wrote: I think I did so well BECAUSE I REFUSED to allow my stinkin gastro to reduce my meds in place of giving me procrit and I learned EVERYTHING I could so that I would KNOW what to ask for... I was 47 years old, 70 pounds overweight when I did tx, was/am geno 1 and was stage 3-4 so I have very little chance of reaching SVR... I do not like talking about religion and God here but I remember reading in the Bible where it says that 'anything asked of the Father in the name of the Son will be given' and I STOOD on THAT promise and I BELIEVED that I WOULD clear even inspite of very very low odds of even responding to tx.. My gastro that I fired halfway through tx gave me 10-15% chance of responding to tx and virtually NO chance of reaching SVR,, and he didnt really want or think I should put myself through tx with such low odds,, but I made up my mind and I went at it full throttle, and I refused to allow

HIM or anyone else to do anything that might reduce my chances.. I took the meds faithfully, I drank the water, I slept nearly all the time, I ate a protein based diet, only drank 2 cups of coffee PER WEEK,, and I stood on God's promise,,, and I BELIEVED.... I had a lot of side effects but I welcomed them,, I believed that IF I had horrible side effects, that the medicine must be working and I visualized the meds killing the virus... I dont know for sure just WHY I cleared,, but I did and Im very grateful for it,, I hope that helps, jaxSharon Crosby <blubirdxoxo > wrote: Sheena, I was in my late 50's when I did tx and overweight and it DID make a difference. I also hear that some just get more sides than others. Use this group, you;ll get your soul

soothed, but not your poor body. It stinks, the dx, the tx, the docs, the world when on tx, but all things pass and this will too, will success and NO virus. SharonSheena <mom4possums2002 > wrote: Hi Ally, Thanks, two out of 700+ members, not truly helping my decison making process, as yet, but I can tell you honestly that I am more than happy for you! I thought the treatment was 48 weeks for a "1", why the extra 14 weeks? I did know the treatment could be difficult, at best, but it's the whether it's worth it in my case

that is keeping me continuing to look for answers. WHY did you and Jax do so well, could age also be a factor? Sheena All-new - Fire up a more powerful email and get things done faster. Jackie

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

October 8, 2006

Hi Jax, Awesome, would love to meet the people who are helping me to retain some measure of my sanity! Taking things one day at a time, I'm sure it will be well into November, if not longer, before they ever consider a liver biopsy. (HMO) I did have an ultrasound on Friday, my primary doctor ordered that, should hear something soon. Blessings, Sheena Jackie on <redjaxjm@...> wrote: Hi Sheena Im in northern Cali,, so HI there! hehe,, Im in Grass Valley near Sacramento but we have children and grandchildren in Ventura,, we do get down there every so often, maybe we might have a chance to meet some day! As I said before,, most people who clear just go back with their lives and dont need the forums anymore,, there ARE lots of geno1's out there that ARE CLEAR! with the pegylated INF the incidences of SVR in geno1's have risen a lot... its NOT a lost cause for you sweetie,, you need to know your stage tho and more info about your liver that is found with that biopsy! hugs jaxSheena <mom4possums2002 > wrote: Hi Steve, From

all I've read, that's about what I thought it sounded like, too..chemo.. not a picnic.. I'm trying to keep a very open mind as I research and listen carefully to all that everyone has to say.. I'm not big on Conventional medicine, either, unless there is NO alternative.. I am also not really fond of doctor's in general.. I'm not sure what those liver numbers denote, they sound rather ominous, but I guess I'll know by the time I need to.. I'm still breathing and intend to keep right on until the end! I'm in Southern California, but was born in Ohio, how about you? Jax, are you the ONLY one here that is a "1" and has

gone into remission using the Schering-Plough Drug Company's treatment? Does anyone know why a few do, but so many do not respond? Blessings, Sheena steve brewer <brewmon2003 > wrote: Sheena, I haven't done the "chemo" yet. That's what I call it any way. I'm just not ready to put my body through that yet. Once you do your liver biopsy then you'll know what condition your liver is in, (Stage 1,2,3.or 4) Then you can make your decision from there on what approach to take. Of course most people 'live their life in fear' and take the advise of their DR. which may or may not be the

right choice for you at this time. Life is Good, BREATH Where are you from? Peace love, out Steve Sheena <mom4possums2002 > wrote: Hi, Thank you for the information, I am sure I do need a biopsy, no telling how long I've had this, or how much damage it has done. Do the numbers in the viral load give any indication of how long you have been infected? No, I have not even seen the specialist yet, my primary did schedule an ultrasound for this Friday, but they don't generally tell much. Thank you, I have a ton of bookmarks in my computer and many pages printed out. I also have copies of my labs,

except the very last, which I am picking up on Friday. Always a good idea not to go blindly into battle.. Thanks again, Sheena Jackie on <redjaxjm > wrote: Hi Sheena Yes I was on Peg-intron for 48 weeks and then my doc switched me to Pegasys and we planned to do another 12 but I was only able to do 6 and then we stopped.. but I did clear and remain clear,,, I know it was a shock, I was totally in shock myself,, I was a 911 paramedic and got the call from my husband while on duty,, I was just overwhelmed,, so I know how you are feeling,, but its gonna be ok,, Do you know how much damage you have? Yes, you DO need a biopsy to know that for sure,, but if you have what is

called "conscious sedation", you are awake to follow when they tell you to hold your breath,, but you NEVER REMEMBER IT.,, its a piece of cake if you do it that way! Really easy! You have PLENTY of time to learn about this disease and then make up your mind if you want to treat or wait for better tx to come along... What we advise everyone is to start your own file at home,, get copies OF EVERYTHING and keep it at home for your own research etc,, your doc should NOT have a problem with giving you copies of your labs, your biopsy, etc,, Let us know how we can help ya once again, welcome! jaxSheena <mom4possums2002 > wrote: Thank you for the warm welcome, as well as the information. Once I got over my initial shock and anger, I

have been on a seek and learn campaign! I very much appreciate having others to talk to. How many weeks were you on treatment and was that Peg-Intron? Sheena Jackie on <redjaxjm > wrote: Hi Sheena Welcome to our group.. I am/was geno 1 myself but treated with standard tx and did clear and remain clear, it will be 4 years since I finished tx in Feb this next year. Honestly, I DO believe in alternative treatments but I dont know anyone who actually cleared this virus with holistic meds/herbs. They CAN be dangerous if you dont know what you are doing too, but then again, so can standard tx for hep. Each person has to research and decide for themselves what

to do. I took siliphos bound milk thistle and another product called CM Plex while on tx and I really believe it helped me clear and be able to tolerate tx better.. We do have some members who are treating or at least 'using' alternative herbs to at least help their livers hold their ground and hopefully not get any worse. Tim will be able to tell you more. Anyway, welcome to the group, jax moderatorOpossum Hollow <mom4possums2002 > wrote: Hello all, I'm new to the Group, just recently diagnosed with Hepatitis C, Genotype 1. I am not yet under any treatment, as I am still waiting to see the specialist. Has anyone that is a "1" tried Holistic methods, rather than Conventional meds? Thanks, Sheena How low will we go? Check out Messenger’s low PC-to-Phone call rates. Jackie Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Jackie Messenger with Voice. Make

PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Jackie

Stay in the know. Pulse on the new .com. Check it out.

October 8, 2006

Sheena, that is so true about blindly following the doctors, which I

have found out already to an extent. I really feel that I have

learned more about how to LIVE with this thing from this group. I

didn't even know what hep c WAS until I found out I had it! Now, like

you, I am learning as much as possible (or trying to).

I found out about a support group that meets at Saddleback Church in

Lake Forest every third Thursday. Next meeting is Oct 19th. It will

hopefully be a good opportunity for fellowship, and will help me

put " faces " to the condition (besides Steve Tyler's, Naomi Judd's and

Tommy Lee's!).

Maybe you will be able to check it out as well. Let me know and I

will get the link to the church's website for you. You are so close,

as you mentioned. How old are you, anyway? - you sound like a girl,

so you are young at heart and spirit.

And I am truly thankful for this group! I can't imagine being in

this position years ago when hep c was an even bigger mystery and

puzzle. It is such a blessing that all of those who mak it through

this have still stuck around to offer wisdom and encouragement to

those who are getting diagnosed every day.

Peace,

> >

> > Hello all,

> > I'm new to the Group, just recently diagnosed with Hepatitis C,

> > Genotype 1. I am not yet under any treatment, as I am still

> > waiting to see the specialist. Has anyone that is a " 1 " tried

> > Holistic methods, rather than Conventional meds?

> >

> > Thanks,

> > Sheena

> >

> > ---------------------------------

> > How low will we go? Check out Messenger's low PC-to-Phone

> call rates.

> >

> > Jackie

> >

> > ---------------------------------

> > Talk is cheap. Use Messenger to make PC-to-Phone calls.

> Great rates starting at 1ï¿½/min.

> >

> > Jackie

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone Calls to the US

> (and 30+ countries) for 2ï¿½/min or less.

> >

> > ---------------------------------

> > Talk is cheap. Use Messenger to make PC-to-Phone calls.

> Great rates starting at 1ï¿½/min.

> >

> > Tim Parsons

> >

> > knoxville,tn 37931

> >

> > 865-588-2465 x107 work

> >

> > www.knoxville1.com

> >

> > ---------------------------------

> > Talk is cheap. Use Messenger to make PC-to-Phone calls.

> Great rates starting at 1ï¿½/min.

> >

> > Tim Parsons

> >

> > knoxville,tn 37931

> >

> > 865-588-2465 x107 work

> >

> > www.knoxville1.com

> >

> > ---------------------------------

> > How low will we go? Check out Messenger's low PC-to-Phone

> call rates.

> >

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

October 9, 2006

Hi , I can only agree with you, and this Group has sure kept me both informed and positive.. and even more important to me..not alone.. Thanks for letting me know about the meeting at Saddleback. Yes, please send the details when you have them. My youngest daughter lives in Mission Viejo and may want to join in, as well, if it is also for family members. Perhaps there are others here nearby that may want to join in.. I am already on the other side of 61, but yes, inside still a Spring Chick.. Though of late, am not always feeling quite so Springy.. I wanted to mention to the brand new folks (I've been here all of less than 2 weeks now ) that in case you haven't seen it, there are new treatments in trial phases. That seems

promising to me. You can ready about them at the link below and sign up for their newsletter, if you like. http://www.hepatitis-central.com/mt/ Blessings, Sheenamarvindamartian05 <marvindamartian05@...> wrote: Sheena, that is so true about blindly following the doctors, which I have found out already to an extent. I really feel that I have

learned more about how to LIVE with this thing from this group. I didn't even know what hep c WAS until I found out I had it! Now, like you, I am learning as much as possible (or trying to). I found out about a support group that meets at Saddleback Church in Lake Forest every third Thursday. Next meeting is Oct 19th. It will hopefully be a good opportunity for fellowship, and will help me put "faces" to the condition (besides Steve Tyler's, Naomi Judd's and Tommy Lee's!).Maybe you will be able to check it out as well. Let me know and I will get the link to the church's website for you. You are so close, as you mentioned. How old are you, anyway? - you sound like a girl, so you are young at heart and spirit. And I am truly thankful for this group! I can't imagine being in this position years ago when hep c was an even bigger mystery and puzzle. It is such a blessing that all of those who mak it through

this have still stuck around to offer wisdom and encouragement to those who are getting diagnosed every day.Peace,> > > > > > Hello all,> > I'm new to the Group, just recently diagnosed with Hepatitis C,> > Genotype 1. I am not yet under any treatment, as I am still > > waiting to see the specialist. Has anyone that is a "1" tried > > Holistic methods, rather than Conventional meds?> > > > Thanks,> > Sheena> > > >

---------------------------------> > How low will we go? Check out Messenger's low PC-to-Phone > call rates. > > > > > > > > > > > > > > Jackie > > > > > > > > > > ---------------------------------> > Talk is cheap. Use Messenger to make PC-to-Phone calls. > Great rates starting at 1ï¿½/min. > > > > > > > > > > > > > > Jackie > > > > > > > > > > ---------------------------------> > Messenger with Voice. Make PC-to-Phone Calls to the US > (and 30+ countries) for 2ï¿½/min or less. > > > > > > > > > > > > > > > > > > > >

---------------------------------> > Talk is cheap. Use Messenger to make PC-to-Phone calls. > Great rates starting at 1ï¿½/min. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tim Parsons > > > > knoxville,tn 37931 > > > > 865-588-2465 x107 work> > > > > > www.knoxville1.com> > > > ---------------------------------> > Talk is cheap. Use Messenger to make PC-to-Phone calls. > Great rates starting at 1ï¿½/min. > > > > > > > > > > > > > >

> > > > > > Tim Parsons > > > > knoxville,tn 37931 > > > > 865-588-2465 x107 work> > > > > > www.knoxville1.com> > > > > > ---------------------------------> > How low will we go? Check out Messenger's low PC-to-Phone > call rates.> >> > > > > > > ---------------------------------> Get your own web address for just $1.99/1st yr. We'll help. Small Business.>

Get your email and more, right on the new .com

October 9, 2006

For Sheena and all of those in SoCal, here is a link to the

Saddleback Church's hep c support group site:

http://www.saddlebackfamily.com/home/careprayerhelp/support_groups/ar

ticle.asp?id=6040

Hope to see you there!

> > >

> > > Hello all,

> > > I'm new to the Group, just recently diagnosed with Hepatitis C,

> > > Genotype 1. I am not yet under any treatment, as I am still

> > > waiting to see the specialist. Has anyone that is a " 1 " tried

> > > Holistic methods, rather than Conventional meds?

> > >

> > > Thanks,

> > > Sheena

> > >

> > > ---------------------------------

> > > How low will we go? Check out Messenger's low PC-to-

Phone

> > call rates.

> > >

> > > Jackie

> > >

> > > ---------------------------------

> > > Talk is cheap. Use Messenger to make PC-to-Phone calls.

> > Great rates starting at 1ï¿½/min.

> > >

> > > Jackie

> > >

> > > ---------------------------------

> > > Messenger with Voice. Make PC-to-Phone Calls to the US

> > (and 30+ countries) for 2ï¿½/min or less.

> > >

> > > ---------------------------------

> > > Talk is cheap. Use Messenger to make PC-to-Phone calls.

> > Great rates starting at 1ï¿½/min.

> > >

> > > Tim Parsons

> > >

> > > knoxville,tn 37931

> > >

> > > 865-588-2465 x107 work

> > >

> > > www.knoxville1.com

> > >

> > > ---------------------------------

> > > Talk is cheap. Use Messenger to make PC-to-Phone calls.

> > Great rates starting at 1ï¿½/min.

> > >

> > > Tim Parsons

> > >

> > > knoxville,tn 37931

> > >

> > > 865-588-2465 x107 work

> > >

> > > www.knoxville1.com

> > >

> > > ---------------------------------

> > > How low will we go? Check out Messenger's low PC-to-

Phone

> > call rates.

> > >

> >

> > ---------------------------------

> > Get your own web address for just $1.99/1st yr. We'll help.

> Small Business.

> >

>

> ---------------------------------

> Get your email and more, right on the new .com

>

Sign In

Conventional meds VS Holistic

Recommended Posts

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Join the conversation

Activity