Re: Digest Number 193

[Guest guest]

Dear and Theresa and all,

- welcome and good luck to you on the impending birth of your 3rd

child! Many of us can relate to your husband's denial. So often, one parent

has to take the lead in getting treatment, including pushing the other parent

into a more realistic mode of thinking and reacting. I felt very isolated

when I went through this with my husband and was evr so thank ful to have

found this list and the wondeful people on it.

Theresa - I also dread the beginning of school. Not just the pressure on

my 10 year old daughter, but the explanations that I need to give to all the

new teachers she will have. I was filling out another form- this one for

religious school - and when I got to the section about any individual

conditions, medication, etc, I balked and simple wrote in " Call me for more

information. " I know it is vital that her teachers have a full understanding

of her OCD and I am not at all worried about any one judging us. I just am

tired of having to explain and advocate on a zealous level for her needs!

Not liking the principal does not help either.

Finally - , How about sending down some crawfish next time you have a

seafood boil? The humidity doesn't bother me and I LOVE the native seafood!!

|Gail in N'Awlins

[Guest guest]

Dear and others,

A wonderful book , geared to teachers in particular, is Teaching the

Tiger. It not only describes OCd, but also Tourette's, ADD and ADHD, then

give appropriate modifications and interventions for each disorder by subject

and method of teaching. I plan to give it to 's teacher at the

beginning of the year, along with more general info about OCD I got from the

OCF.

Thanks for the advice, .

Gail in N'Awlins

[Guest guest]

Gail,

Next time you pass through give me a call

and I'll have some ready for you!

I just got back last night from New Orleans. It

was a quick trip to take my 16 yo daughter and

a friend to the Insync concert. It was a birthday

present for her.... 3rd row center stage! She was

in heaven.

Take care Gail! Thanks for reminding us about

Teaching the Tiger. I am hoping that one day soon,

will be able to go to school again!

mary from La.

GPesses@... wrote:

> From: GPesses@...

>

> Dear and Theresa and all,

> - welcome and good luck to you on the impending birth of your 3rd

> child! Many of us can relate to your husband's denial. So often, one parent

> has to take the lead in getting treatment, including pushing the other parent

> into a more realistic mode of thinking and reacting. I felt very isolated

> when I went through this with my husband and was evr so thank ful to have

> found this list and the wondeful people on it.

> Theresa - I also dread the beginning of school. Not just the pressure on

> my 10 year old daughter, but the explanations that I need to give to all the

> new teachers she will have. I was filling out another form- this one for

> religious school - and when I got to the section about any individual

> conditions, medication, etc, I balked and simple wrote in " Call me for more

> information. " I know it is vital that her teachers have a full understanding

> of her OCD and I am not at all worried about any one judging us. I just am

> tired of having to explain and advocate on a zealous level for her needs!

> Not liking the principal does not help either.

> Finally - , How about sending down some crawfish next time you have a

> seafood boil? The humidity doesn't bother me and I LOVE the native seafood!!

>

> |Gail in N'Awlins

>

> ---------------------------

[Guest guest]

, Could you tell me more about s schooling? Is

he home schooled or does the school distrcit come to

him? Sorry I can't remember this information form your

earlier posts. Vivian in wa. st.

[Guest guest]

Hi Vivian!

is homebound.... the school board provides

a teacher in the home twice weekly. The problem

is that since she only comes twice, she has to load

him down with so much work and this just overwhelms

.

I've considered homeschooling..... but I'm afraid if we

do this that they will not provide other services that he

needs (speech).

Take care Vivian!

mary from La.

ruth porter wrote:

> From: ruth porter <ruth2b4@...>

>

> , Could you tell me more about s schooling? Is

> he home schooled or does the school distrcit come to

> him? Sorry I can't remember this information form your

> earlier posts. Vivian in wa. st.

>

> ---------------------------

[Guest guest]

If the school system is providing the services then shouldn't a 504 plan be

applicable to this situation also. Meaning that teacher could also reduce

workload with a 504 in place. You are probably better off with that teacher

assisting you 2 days a week but acting as though you are home schooling and

setting up a time plan with your child for completing the work. At least that

way you do have some assistance. karenh

[Guest guest]

Also, even with the home schooling for which I am not very familiar, the

child would still probably be eligible for other services such as speech etc.

I know if a child attends private school they are still eligible. The

government cannot deny ANY child those services. They cannot discriminate on

any basis I believe. Call your school board special education department.

karenh

[Guest guest]

>Hi Talyne,

AAAAAAAAAHHHHHHHH, GO GIRL...I have all my fingers crossed for you to get

your transplant....I hope all goes really well for you, and that you can

keep us informed about how things are going....we will miss you in this

group..... bless you friend

thanks so much for sending me that info on the diet....Sandy was saying

there is a book I think I will try to purchase it, if it isn't to much- you

know how money is when your on the disability pension...anyway thanks so

much for that info...

And Sandy...thanks also...I will go look on Thursday at the book store...you

wouldn't happen to know that author would you..

I just have to show the book to the kidney specialist, for I think many of

the things you can eat on this diet, maybe very high in postassium, which

Con has to be very limited on....anyway I will find out ...to say the lest,

I can do with this diet, I have a fatty liver aparently - would anyone know

if this will cause upper right quadrant pain, more like an ache???

thanks ine.

===================================

> hi all,

> in regard to whether liver cleansing diets work, my guess is a very strong

> yes. the reason i say this is because i am proof positive that diet can

mean

> a life or death situation. in regard to liver disease as well as many

other

> ailments of the body from arthritis to heart disease, etc....

> the thing to consider is this, the liver is where EVERYTHING you eat goes

to.

> the more work it has to do to digest and process food the harder it is on

a

> weak system. i say i am proof positive because all my doctors are

astounded

> at the fact that i am still walking and talking, and have no other choice

but

> to attribute it to the the almost impeccable regimne that i follow in my

> diet. before i did a cleanse and starting eliminating foods, i was very

very

> sick all of the time. bloating, cramps, headaches and the obviously

serious

> advance of my liver disease. now consider that with the advanced stage

of

> my liver disease, others in my state are in the hospital several times a

year

> and they are dumbfounded that i have not been in the hospital but once and

> that was over two years ago. i will be placed on the high priority list

for

> transplantation (see below) because i am in such an advanced stage that

they

> think the illness is catching uo to the regimen, but remember, i didn't

have

> a healthy diet or good " habits " for most of the thirty years i have had

this

> illness.

> now, as far as a cleasing diet goes, it should be done under the

supervision

> of a naturopath or your reg doc, if your doc believes in diets (as mine

all

> now do).

> but, the basics of it go like this:

> begin removing everything from your diet one or two at a time, beginning

> with dairy and red meat, until you are down to brown rice, fruits and

veges.

> do that for a couple of weeks, then remove the brown rice as well. on

this

> diet, veges are better for you in soups or steamed, as are fruits, (hey

> blueberry, blackberry, peach, apricot soup is pretty good, i swear!) then

> you slowly reintroduce food ONE at a TIME. each one four days apart, then

> you are able to determine if any of them are allergenic to your body. by

the

> way, it is advisable to avoid corn, (it isn't a vege anyway, it's a grain)

> and oranges as they can be allergenic on a cleasing diet.

> the liver responds well to this treatment, but be aware that you will be

> fatigued, may experience headaches and flu like symptoms and will need to

> rest and do stress free activities such as yoga, reading a big novel in

bed,

> etc....i, and several of my doctors, believe that there is a possibility

to

> manage hep c more efficiently by maintaining a healthy diet and watch

those

> fatty things like vitamins A,D,E, and K and saturated fats. speaking of

> fats, you won't be getting enough on the cleansing diet so be sure to add

> liberal amounts of olive oil to your diet as well as flax seed. you can

get

> the flax seed in the health food store, but grind it up in the coffee

grinder

> to release it's healthiest properties. flax seed does wonders for itchy

skin

> and skin ailments.

> don't eat at mcdonalds, b-king, taco bell or any restaurants that don't

> prepare their own food. the preservative, additives and food dyes are

> extremely harmful.

> i've got big news. on 10/7 i went for my consultation and my actual

> evaluation will start in a couple of weeks. looks like i'll be put on the

> transplant list in the next few weeks and transplanted in as little as

three

> to six months! yikes! here we go.

> i'm nervous and excited! obviously. i'll know more after the eval. by

the

> first week of november, looks like all the info will be on the table. i'll

> let you know all the details then. haven't been, (and won't be), on the

> computer much but no worry, i'll keep you informed,. although i will be

> unsubscribing from the list in about a week for a while to study the next

> step for me, which is transplantation.

> hope you all continue to work with this and other support systems and

teams,

> they are invaluable. you have all been a source of strength for me.

> i wish you all love, peace, and happiness,

> your friend,

> talyne

>

[Guest guest]

ine....

Sometimes.......upper right quadrant pain, especially after eating...may

be the forerunner of a gallbladder problem....

Merril

[Guest guest]

hi there pauline,

thank you for your inspiration!!!!!!!!!! yeah, baby, i am gonna keep on

keepin' on!

very good idea to check with the doc about any course you dicide on. there

is another book out there called " Eat Right For Your Type " (meaning blood

type). fatty liver may be causing some gallbadder problems, tell your doc.

and look for that book at the health food store and take a notebook with you

and copy some stuff if you have to. the library, if you have a university or

an up to date library, may have both books that were suggested to you.

thanks again, hang in there.

hugs

talyne

[Guest guest]

http://members.aol.com/pigmntlady/

im sorry...i spelled it wrong

=====

Desire is the treasure map. Knowledge is the treasure chest.

Wisdom is the jewel. Yet, without action, they all stay buried.

__________________________________________________

[Guest guest]

> Are there people that try to sell their soaps based on the fact that it

> DOESN'T have lye/sodium hydroxide?

Hi Cathryn.

Yes, there are many people out there-including some of the large so-called

natural manufacturers-that sell there soap this way. The fact is that their

soap was made with lye/sodium hydroxide whether they are using cold

processed soap or melt and pour soap.

However, if soap can be made without lye wouldn't that be the

> " safer " way to go anyway?

You can't make soap without using sodium hydroxide. Well, that is not quite

accurate either, you could make soap with soapwort, but that is seldom if

ever used today. As far as safety goes, there is no problem with the

finished soap. I have never had a problem handling sodium hydroxide taking

normal safety precautions.

Does soap WITHOUT lye have better cleansing or

> other properties or is it just another alternative?

So-called soap without sodium hydroxide is a detergent and this is what you

see in most of the major stores. Sometimes it is wrongly labeled as soap or

body cleansers, etc. It is a synthetic soap bar and if you read the label

you will see it has many chemicals. In some cases it may generate more

lather, but I doubt that it cleans any better. Personally I believe

hand-crafted soap is much better for you, and even if I were to stop selling

soap, I think I would continue to make it for my own use. I doubt that there

is any hand-crafted soap on the market that doesn't contain sodium

hydroxide.

There are two problems we run into that deter people from listing sodium

hydroxide on their labels. 1. There are people still around that remember

their mother or grandmother making lye soap that was very harsh because it

was not made scientifically and in all likelihood was lye heavy. Most of

those people can't be convinced to use hand-crafted soap. 2. Some people

are so concerned that they have an all natural product that they will go to

any length not to mention a chemical on their label.

Why don't we do a survey to find out why people are reluctant to list sodium

hydroxide on their labels. I will start. I am reluctant because I don't want

to explain over and over why companies like Tom's-or the many other

companies- claim to be all natural when in fact their soap contains sodium

hydroxide as well. Anyone else care to give a reason?

Pat.

Peace, Joy, Serenity

House of Scents tm. Body Oils, Fragrance Oils, Incense, Candles, Soap, Etc.

achil@...

http://houseofscents.safeshopper.com/

[Guest guest]

I don't like to list sodium hydroxide because technically, sodium

hydroxide is not in the soap. I use the " sodium cocoate " types of names

because that is what is in there. I put the oil name in ()'s to show

what oils it came from also because if the soap is super fatted at all,

some of that oil still might be there however minute the amounts.

If someone should question about other " all natural " soaps not having

lye listed after asking about lye use in my soap making, I tell them

that if what they are selling is actually " soap " and not a synthetic

detergent bar then they too had to use lye at some point in their making

of their product.

After that point if they don't want to buy my soap, fine that is their

choice. But it is their loss.

-Ilene

[Guest guest]

Hi ,

Is there a software loaded on your son's school computer to transfer text to

speech? Or is it built-in program in the computer? I have been looking for

the kind of program for long time. What is the quality of the speech? Is

human pre-recoded voice or synthesized ones? Comparing with Dynovax regarding

the voice of sppech, which is better?

I bought lin langauge master 18 months ago, the speech is synthesized. I

didn't like it, so I returned.

The keyboard you mentioned, is it alpha-smart, has a liquid -crystal panel to

display the words you son types?

Thank you for you information.

Dongfang

P.S. I wrote to the list, thought other parents might be interested in

knowing more about this.

In a message dated 5/25/00 1:31:22 AM Pacific Daylight Time,

egroups writes:

<< My son has a computer that can

convert text to speech and he uses that at school. When we are out and

about

in community settings, we carry a 4 " x6 " keyboard. He types his message and

hands the keyboard to his companion who reads it. >>

[Guest guest]

time to switch cardiologists

[Guest guest]

Thanks DZ and for answering my questions. I do feel headaches and fatigue but I thought it was my sickle cell, maybe it's a combination of both. what kind of treatment do you get? I started on the INTERFERON but had to stop because it lowered my Hemoglobin and made my sickle cell act up.

ADA

[Guest guest]

good luck on your test results..I'm praying for ya

[Guest guest]

I'll be here waiting to hear from you..Hey where is Dennis and Diane??

[Guest guest]

That's the trouble with interferon, it lowered mine

too, but it has hung in there enough that I didn't

have to stop taking it. There are alternative

treatments, I know milk thistle is one herb that is

almost universally accepted. There are others that

probably others in the group know more about than I

do. -dz-

--- adapena1@... wrote:

> Thanks DZ and for answering my questions. I

> do feel headaches and

> fatigue but I thought it was my sickle cell, maybe

> it's a combination of

> both. what kind of treatment do you get? I

> started on the INTERFERON

> but had to stop because it lowered my Hemoglobin and

> made my sickle cell act

> up.

> ADA

>

__________________________________________________

[Guest guest]

That's the trouble with the VA, there's not too much

individual attention. You've got to hound them, I hope

the results are good! -dz-

--- <ralexan@...> wrote:

> Hi ADA

>

> The first round of treatment was interferon alone

> for 18 months at which time the virus was

> undetectable. 6 months later I was retested and had

> relapsed. Since I no longer had insurance to cover

> my medical costs I had to fight with the VA for 2

> years to get them to treat me. I have now passed the

> 1 year mark of Ribavirin/Interferon treatment. I had

> a pcr test done about a month ago, but haven't

> gotten the results yet. I guess I'll have to give

> them a call to find out.

>

>

> Re: [ ] Digest Number

> 193

>

>

> Thanks DZ and for answering my questions.

> I do feel headaches and fatigue but I thought it was

> my sickle cell, maybe it's a combination of both.

> what kind of treatment do you get? I started

> on the INTERFERON but had to stop because it lowered

> my Hemoglobin and made my sickle cell act up.

> ADA

>

[Guest guest]

Hi ADA

The first round of treatment was interferon alone for 18 months at which time the virus was undetectable. 6 months later I was retested and had relapsed. Since I no longer had insurance to cover my medical costs I had to fight with the VA for 2 years to get them to treat me. I have now passed the 1 year mark of Ribavirin/Interferon treatment. I had a pcr test done about a month ago, but haven't gotten the results yet. I guess I'll have to give them a call to find out.

Re: [ ] Digest Number 193

Thanks DZ and for answering my questions. I do feel headaches and fatigue but I thought it was my sickle cell, maybe it's a combination of both. what kind of treatment do you get? I started on the INTERFERON but had to stop because it lowered my Hemoglobin and made my sickle cell act up. ADA

[Guest guest]

Thanks Jan

It will be over soon

Re: [ ] Digest Number 193

good luck on your test results..I'm praying for ya

[Guest guest]

I'm hoping that it is good news also. Viral load was real low about 6 months

ago.

Re: [ ] Digest Number

> > 193

> >

> >

> > Thanks DZ and for answering my questions.

> > I do feel headaches and fatigue but I thought it was

> > my sickle cell, maybe it's a combination of both.

> > what kind of treatment do you get? I started

> > on the INTERFERON but had to stop because it lowered

> > my Hemoglobin and made my sickle cell act up.

> > ADA

> >

[Guest guest]

Good to hear. You've been through this twice, which

I'm not entirely sure I could handle. We'll be praying

for you. -dz-

--- <ralexan@...> wrote:

> I'm hoping that it is good news also. Viral load was

> real low about 6 months

> ago.

>

>

> Re: [ ] Digest

> Number

> > > 193

> > >

> > >

> > > Thanks DZ and for answering my

> questions.

> > > I do feel headaches and fatigue but I thought it

> was

> > > my sickle cell, maybe it's a combination of

> both.

> > > what kind of treatment do you get? I

> started

> > > on the INTERFERON but had to stop because it

> lowered

> > > my Hemoglobin and made my sickle cell act up.

> > > ADA

> > >

[Guest guest]

Barb-

Removing the dime size mole by blood root and immunics has made quite a hole

on my face.

I'm doing immunics more--swating it. I know it will heal disease free.

Thanks for being my teacher.

namaste

Ruthie

_________________________________________________________________

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