Re: Amy & Crystal regarding Aspie sons

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Dear Amy and Crystal, My heart goes out to you and aches for you! I have a 12 year old son who is Aspie as well. He's has a myrad of diagnosis, at least one new one every year since he was 2 years old! My son shares most everything with what you both described of for your sons. First I want to tell you there is hope.... you just have to keep asking and looking for answers. We found the doctors, can't count how many we've seen, were just guessing and trying out things with our son. My son was talking about killing himself more and more for the past few years. It kept increasing and each time we'd see a doctor about it the doctors would say it was nothing, or he's just stressed, or I needed to improve my response to him, they never addressed my son's issues. Finally my son made an attempt at age 11. First my son was placed on a med which helped calm him down in general for a few months. Then my son was changed to risperidone. I'll tell

you I shake in my shoes when I hear that name. (BTW no one ever told me and I found out the hard way, but if a child is taking risperidone then don't let them have pseudophed - they interact together big time) It worked for about 6 months and then my son's symptoms of wanting to die started up again. He would go thru 'spells' at time where it appeared he was bi-polar - I was sure he was. He would rapid cycle between laughing and talking and then with no warning and nothing happening to cause a change he'd be in tears, shaking, clinging to me saying the pain was too much and he wanted to die. At that point he'd get into very autistic type behavior with head banging, chewing on himself, rocking etc... Doctors told me I just wasn't consistent enough with him! We really felt we were at the end of the line with no hope when someone referred me to another parent who had been thru something similar. From there I found out about DAN - Defeat Autism Now.

I found a doctor who does this protocal and had worked with kids like my son for several years. The first week we took my son off of all lactose and casein - and the suicide desires disappeared immediately - that was a year ago. Then we removed gluten (he tested intolerant to both) and began giving him vitamins and suppliments for the things his body is lacking. He's off of all his meds except for Adderall for hyperactivity. The improvement is earth moving!!!!!!!!!!!!!! If you haven't, I strongly suggest you find a DAN doctor and look into some of the methods. They have saved our lives! If you have any questions I have a wealth of information and you are welcome to e-mail me. Message: 1 Date: Wed, 01 Mar 2006 21:53:58 -0000From: "Crystal"

Subject: 12 yr old AspergerHI Everyone! I have been getting newsletters and such for quite a while. As I am learning everyday from my son, he has started doing things he never used too. he is now cutting himslf, because "i like the feeling". I am a little nervouse on that end of things. Is that common? We moved to SD 6 years ago, and up until that point, the doctors AND psych. would just say he was acting out or it was myself and my husband. (this in WI). When we moved here, he was increasingly aggressive toward me mostly and some other kids. Around Christmas, he wanted to look at the lights around town. we did that for about an hour and we started back home. he started spitting on me and kicking the dash until it cracked. He then kept telling me how he was going to kill me in my sleep. after that, he said he was going to kill himself. He was 6 years old. The next day, I found my husband's

pocket knife next to the passenger door floor. We asked for some advice and were told to have Tyler taken to a Hospital for a psych evaluation. He was diagnosed with Asperger's. He has been kicked out of the only 3 school in the area and we have had to place him in, now 3 private institutions. It's like he goes through cycles. Every 6 months he just breaks down. Anyway, I could go on forever. he is my research for my thesis, so it is very emotional. But I was wondering about the cutting and also he is 'cheeking' his medication. CrystalMessage: 5 Date: Wed, 01 Mar 2006 17:12:19 -0000From: "cheer4mdawgs" Subject: Son and AspergersMy son is 10 and has been diagnoised with Aspergers. He has a hard time dealing with authority and it is constantly a power struggle with him and my husband. He also cries alot. My household is having a hard time dealing with this situation and me

and my husband always feel like we are walking on pins and needles. We also need suggestions on punishment techniques. I feel like I am the only one out there with these problems and feel quite alone. Can anyone relate?Amy

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That sounds so 'on'. My son's doc says he is just testing the limits...although he attempted to jump out of a moving car and a 3 story window. They just seem to keep making excuses and giving meds. We never gave him meds until he was 6(when diagnosed). we did this because we didnt know what else to do. he goes through negative cycles.i used to explain his behavior to people as 'like a light swtch, off and on in a split second.' on a funny note, i have bipolar and i seem to be very happy, this week at school i heard a word in my sociology class and it made me giggle, which turned into uncontrolable laughing..i was asked to leave the room. my husband asked me if i was embarrassed..i said yes...but I have class again in the morning..uuggh lolJeff <theparkersrus@...> wrote: Dear Amy and Crystal, My heart goes out to you and aches for you! I have a 12 year old son who is Aspie as well. He's has a myrad of diagnosis, at least one new one every year since he was 2 years old! My son shares most everything with what you both described of for your sons. First I want to tell you there is hope.... you just have to keep asking and looking for answers. We found the doctors, can't count how many we've seen, were just guessing and trying out things with our son. My son was talking about killing himself more and more for the past few years. It kept increasing and each time we'd see a doctor about it the doctors would say it was nothing, or he's just stressed, or I needed to improve my response to him, they never addressed my son's issues. Finally my son made an attempt at age 11. First my son was placed on a med which helped calm him down in general for a few months. Then my son was changed to risperidone. I'll tell you I shake in my shoes when I hear that name. (BTW no

one ever told me and I found out the hard way, but if a child is taking risperidone then don't let them have pseudophed - they interact together big time) It worked for about 6 months and then my son's symptoms of wanting to die started up again. He would go thru 'spells' at time where it appeared he was bi-polar - I was sure he was. He would rapid cycle between laughing and talking and then with no warning and nothing happening to cause a change he'd be in tears, shaking, clinging to me saying the pain was too much and he wanted to die. At that point he'd get into very autistic type behavior with head banging, chewing on himself, rocking etc... Doctors told me I just wasn't consistent enough with him! We really felt we were at the end of the line with no hope when someone referred me to another parent who had been thru something similar. From there I found out about DAN - Defeat Autism Now. I found a doctor who does this protocal and had

worked with kids like my son for several years. The first week we took my son off of all lactose and casein - and the suicide desires disappeared immediately - that was a year ago. Then we removed gluten (he tested intolerant to both) and began giving him vitamins and suppliments for the things his body is lacking. He's off of all his meds except for Adderall for hyperactivity. The improvement is earth moving!!!!!!!!!!!!!! If you haven't, I strongly suggest you find a DAN doctor and look into some of the methods. They have saved our lives! If you have any questions I have a wealth of information and you are welcome to e-mail me. Message: 1 Date: Wed, 01 Mar 2006 21:53:58 -0000From: "Crystal" Subject: 12 yr old

AspergerHI Everyone! I have been getting newsletters and such for quite a while. As I am learning everyday from my son, he has started doing things he never used too. he is now cutting himslf, because "i like the feeling". I am a little nervouse on that end of things. Is that common? We moved to SD 6 years ago, and up until that point, the doctors AND psych. would just say he was acting out or it was myself and my husband. (this in WI). When we moved here, he was increasingly aggressive toward me mostly and some other kids. Around Christmas, he wanted to look at the lights around town. we did that for about an hour and we started back home. he started spitting on me and kicking the dash until it cracked. He then kept telling me how he was going to kill me in my sleep. after that, he said he was going to kill himself. He was 6 years old. The next day, I found my husband's pocket knife next to the passenger door floor. We

asked for some advice and were told to have Tyler taken to a Hospital for a psych evaluation. He was diagnosed with Asperger's. He has been kicked out of the only 3 school in the area and we have had to place him in, now 3 private institutions. It's like he goes through cycles. Every 6 months he just breaks down. Anyway, I could go on forever. he is my research for my thesis, so it is very emotional. But I was wondering about the cutting and also he is 'cheeking' his medication. CrystalMessage: 5 Date: Wed, 01 Mar 2006 17:12:19 -0000From: "cheer4mdawgs" Subject: Son and AspergersMy son is 10 and has been diagnoised with Aspergers. He has a hard time dealing with authority and it is constantly a power struggle with him and my husband. He also cries alot. My household is having a hard time dealing with this situation and me and my husband always feel like we are walking

on pins and needles. We also need suggestions on punishment techniques. I feel like I am the only one out there with these problems and feel quite alone. Can anyone relate?Amy Brings words and photos together (easily) withPhotoMail - it's free and works with . Crystal Statler26 Helen St.St. Onge, SD 57779605-641-3651 crystalfstatler@... alternate e-mail

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