help with my 3 year old....this is very LONG....

[Guest guest]

Hi everyone, my story is long... since my daughter was a teeny baby

she would stim in her car seat... definition of stim, legs straigt

out, hands in front of tummy both wiggling and hands hitting

together and mouth in a tight " o " shape....we used to laugh and say

gosh, open shut open shut open shut becuase she would do that with

her hands... once she was able to sit at six months we saw more and

more of it. at 9 months we took her to the doctor and the very first

question was does OCD (obsessive compulsive disorder) run in teh

family, and it does VERY STRONG. so the neurologist said it was that

and not to worry (whatever...!), we took her back at 18 months

becuase she began doing the same stim, but standing, they did an eeg

to rule out seizures, and still said it must be OCD and " misfirings "

of the brain and that the neurologist saw about 10 kids a year with

this stimming, ADHD, OCD, and sleep problems. FAST FORWARD TO NOW...

my daughter still stims all the time (we call it wiggling) she can

easily be redirected. her speech at the age of 2 was well above a 4

year old level, her fine motor skills over all fine, she's potty

trained, and to anyone else has FABULOUS social skills. well, let me

describe her fabulous social skills, we talk about the same thing

100's of times a day. the things we talk about are things that she's

afraid of, she remembers things from 8 - 12 months ago that scared

her such as the alice in wonderland at disneyland, or the " belle

Show " that we attempted to bring her to see, or the movie theatre,

or the " grumpy " girl at the park, or a certain building, or the

parking garage, she can articulate and communicate everything in

life, is beginning to spell words from memory, and has known all her

colors and 1-10 numbers for a long long long time. she seems SOOO

SMART, this is her detriment at the same time. it doesnt make sense

to others, but i'm hoping someone here will relate. she hates teh

grass, sand and anythign that will make her dirty, we recently got

her to play with shaving cream and play-doh. her diet is limited to

about 10 things, and other things she gags on... does this sound

familiar to anyone, i can go on and on, and i have already, i'm so

sorry for rambling but i'm so frustrated that i've had her tested 2

times through our birth - 3 early intervention and they all see her

needs, but say that there is no specific place she falls. i am in

process of having her tested through the school district (3 and up)

andi have a feeling that they wont' do anything either, she needs

OT, sensory training, and social skills training. oh, i forgot she

scares kids out in public because she knows NO social boundaries,

taking kids hands to drag them to play or hugs and kisses

strangers... am i crazy or does she fit in the ASD category?? please

help, any advice will be greatly apprciated... again sorry this is

so long, it's just alot of pent up info....

[Guest guest]

Welcome to our worlds!lol She is DEFINITELY ASD. VERY high functioning (like my daugther) First word at 7mths (FREAKED the nurse!) first sentence at 12 mths. The fact that she is STIMMING tells you there is some kind of sensory issue that needs to be addressed. First you have to figure out her sensitivities. From you list I will BET sound sensitive is major for her? There are several great listening programs on the market just now. They help in many area's, they used AIT with my district. Made amazing strides with BOTH my twins!!! I would highly suggest it. Do you have a swing she could swing on when she needs a sensory break? It give some of the best sensory input. A couple of beanbag chairs work great. And my personal favorite (and this has to be monitored at all times) BUBBLE WRAP!!! IT has a double use- sensory input and OT for the little fingers. Sounds like you are doing something right

so keep up the good work! Deb C.Mindy <minna616@...> wrote: Hi everyone, my story is long... since my daughter was a teeny baby she would stim in her car seat... definition of stim, legs straigt out, hands in front of tummy both wiggling and hands hitting together and mouth in a tight "o" shape....we used to laugh and say gosh, open shut open shut open shut becuase she would do that with her hands... once she was able to sit at six months we saw more and more of it. at 9 months we took her to the doctor and the very first question was does OCD (obsessive compulsive disorder) run in teh family, and it does VERY STRONG. so the neurologist said it was that and not to worry (whatever...!), we took her back at 18 months becuase she began doing the same stim, but standing, they did an eeg

to rule out seizures, and still said it must be OCD and "misfirings" of the brain and that the neurologist saw about 10 kids a year with this stimming, ADHD, OCD, and sleep problems. FAST FORWARD TO NOW... my daughter still stims all the time (we call it wiggling) she can easily be redirected. her speech at the age of 2 was well above a 4 year old level, her fine motor skills over all fine, she's potty trained, and to anyone else has FABULOUS social skills. well, let me describe her fabulous social skills, we talk about the same thing 100's of times a day. the things we talk about are things that she's afraid of, she remembers things from 8 - 12 months ago that scared her such as the alice in wonderland at disneyland, or the "belle Show" that we attempted to bring her to see, or the movie theatre, or the "grumpy" girl at the park, or a certain building, or the parking garage, she can articulate and communicate everything in

life, is beginning to spell words from memory, and has known all her colors and 1-10 numbers for a long long long time. she seems SOOO SMART, this is her detriment at the same time. it doesnt make sense to others, but i'm hoping someone here will relate. she hates teh grass, sand and anythign that will make her dirty, we recently got her to play with shaving cream and play-doh. her diet is limited to about 10 things, and other things she gags on... does this sound familiar to anyone, i can go on and on, and i have already, i'm so sorry for rambling but i'm so frustrated that i've had her tested 2 times through our birth - 3 early intervention and they all see her needs, but say that there is no specific place she falls. i am in process of having her tested through the school district (3 and up) andi have a feeling that they wont' do anything either, she needs OT, sensory training, and social skills training. oh, i forgot she

scares kids out in public because she knows NO social boundaries, taking kids hands to drag them to play or hugs and kisses strangers... am i crazy or does she fit in the ASD category?? please help, any advice will be greatly apprciated... again sorry this is so long, it's just alot of pent up info.... Deb C.

[Guest guest]

Hi there,

It sounds like high functioning autism/asperger's to me. Get her seen by

someone with lots of experience in this field.

in England

[Guest guest]

Hi Mindy,

It definately sounds as if your daughter has an ASD, obviously high

on the spectrum as she is so bright.

There are a lot of similarities between your daughter and my daughter.

My daughter lays over the arm of the lounge and wiggles her bottom

for ages.The fears and memory of fears is my daughter to a tee.

We have had to avoid all shows and amusement parks for years, she is

only now started to improve and has seen some shows and rides at a

show.She would never have tolerated them at 3 years old.The sensory

issues also sound like my daughter .Have you taken her to see a child

psychologist. Then you need a pschiatrist to formally test with a DSM

III. They consult with all people involved such as the O.T., speech

therapist, paediatrician, Early Intervention and parents of course.

My other daughter has PDDNOS (pervasive developmental disorder

otherwise unspecified), it is on the spectrum but the child doesn't

have all 3 of the diagnostic criteria required for autism , so it is

kind of a diagnosis for children that don't quite meet the criteria

for autism but show some symptoms.

Kaz xxx

-- In Autism and Aspergers Treatment , " Mindy " <minna616@...> wrote:

>

> Hi everyone, my story is long... since my daughter was a teeny baby

> she would stim in her car seat... definition of stim, legs straigt

> out, hands in front of tummy both wiggling and hands hitting

> together and mouth in a tight " o " shape....we used to laugh and say

> gosh, open shut open shut open shut becuase she would do that with

> her hands... once she was able to sit at six months we saw more and

> more of it. at 9 months we took her to the doctor and the very

first

> question was does OCD (obsessive compulsive disorder) run in teh

> family, and it does VERY STRONG. so the neurologist said it was

that

> and not to worry (whatever...!), we took her back at 18 months

> becuase she began doing the same stim, but standing, they did an

eeg

> to rule out seizures, and still said it must be OCD

and " misfirings "

> of the brain and that the neurologist saw about 10 kids a year with

> this stimming, ADHD, OCD, and sleep problems. FAST FORWARD TO

NOW...

> my daughter still stims all the time (we call it wiggling) she can

> easily be redirected. her speech at the age of 2 was well above a 4

> year old level, her fine motor skills over all fine, she's potty

> trained, and to anyone else has FABULOUS social skills. well, let

me

> describe her fabulous social skills, we talk about the same thing

> 100's of times a day. the things we talk about are things that

she's

> afraid of, she remembers things from 8 - 12 months ago that scared

> her such as the alice in wonderland at disneyland, or the " belle

> Show " that we attempted to bring her to see, or the movie theatre,

> or the " grumpy " girl at the park, or a certain building, or the

> parking garage, she can articulate and communicate everything in

> life, is beginning to spell words from memory, and has known all

her

> colors and 1-10 numbers for a long long long time. she seems SOOO

> SMART, this is her detriment at the same time. it doesnt make sense

> to others, but i'm hoping someone here will relate. she hates teh

> grass, sand and anythign that will make her dirty, we recently got

> her to play with shaving cream and play-doh. her diet is limited to

> about 10 things, and other things she gags on... does this sound

> familiar to anyone, i can go on and on, and i have already, i'm so

> sorry for rambling but i'm so frustrated that i've had her tested 2

> times through our birth - 3 early intervention and they all see her

> needs, but say that there is no specific place she falls. i am in

> process of having her tested through the school district (3 and up)

> andi have a feeling that they wont' do anything either, she needs

> OT, sensory training, and social skills training. oh, i forgot she

> scares kids out in public because she knows NO social boundaries,

> taking kids hands to drag them to play or hugs and kisses

> strangers... am i crazy or does she fit in the ASD category??

please

> help, any advice will be greatly apprciated... again sorry this is

> so long, it's just alot of pent up info....

>

[Guest guest]

He went to a Dev Ped on February 7th who is having me and his PPCD teacher fill out a questionaire about does he do this and is it never seldom sometimes occasionally or frequently. I've already done mine but I'm going to give 's teacher the other one probably next week since she'll have been with him for a whole week. Then we go back on the 8th of March and the Ped will review both questionairs and all the info I gave her in the previous visit and will make a diagnosis then. She said we don't want to over diagnose and we don't want to underdiagnose either. I did see on the paper though that she did diagnose him with a learning disability NOS. Well, thanks so much for all your advice. Leighanne Rowell <nancy@...> wrote: Hi there,It sounds like high functioning

autism/asperger's to me. Get her seen by someone with lots of experience in this field. in England

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Hi Kaz,

> It definately sounds as if your daughter has an ASD, obviously high

> on the spectrum as she is so bright.

Where somebody is on the spectrum is not directly correlated to how bright

they are, although this does have some bearing on their outcome. It is much

more to do with how well they cope IMO.

in England

[Guest guest]

Hi Deb,

>>The fact that she is STIMMING tells you there is some kind of sensory

>>issue that needs to be addressed.<<

Stimming is not necessarily related to sensory issues. It can be an aid to

concentration or a release of tension. It is really just an extension of the

sort of behaviour like doodling seen in NTs.

in England

[Guest guest]

I just was at a seminar where Tony Atwood spoke - that's just about exactly

what he said about IQ.

Re: Re: help with my 3 year old....this is very

LONG....

> Hi Kaz,

>

>> It definately sounds as if your daughter has an ASD, obviously high

>> on the spectrum as she is so bright.

>

> Where somebody is on the spectrum is not directly correlated to how bright

> they are, although this does have some bearing on their outcome. It is

> much

> more to do with how well they cope IMO.

>

> in England

>

>

>

>

>

>

[Guest guest]

Thank you everyone for your thoughts and comments. I am able to get

into see a child psych on monday and am still waiting (for over the

past year) to see the developmental pediatrician. The psych i think

has some connections for developmental peds in other states so i'm

gonna ask him... does anyone on this site have any good connections in

california, utah, or arizona??? or i'd even fly her back east to johns

hopkins, but i just want to see someone trusted and knowledgeable...

thanks again everyone!

Mindy

[Guest guest]

Stimming/OCD behaviors can also be caused by yeast dysbiosis which can

be treated. Many ASD kids have this issue as well as allergies to

food that will help many of the symptoms.

Kathy

>

> Hi Deb,

>

> >>The fact that she is STIMMING tells you there is some kind of

sensory

> >>issue that needs to be addressed.<<

>

> Stimming is not necessarily related to sensory issues. It can be an

aid to

> concentration or a release of tension. It is really just an

extension of the

> sort of behaviour like doodling seen in NTs.

>

> in England

>