Re: Only a few doing OLE? Is 's child the only one who's made gains?

[Guest guest]

Hi Sondra,

We have been doing OLE since April 24th, worked our way up to 250mg

1x per day and then after about 10 days, we tried to increase it to

375mg and things started to " get out of hand " and since school was

still on, after 4 days of 375mg, I had to go back to 250mg where my

son seemed to do better. We are also doing Virastop and he was up to

1 1/2 caps 1x per day until yesterday. Today we started 2 full caps

of Virastop and so far things seem well. So, basically he is now at

250-300mg OLE and 2 caps of Virastop given 1x per day only in between

a meal or first thing in the morning, then breakfast after 20

minutes. He also takes Diflucan.

My child is on the milder level of the spectrum although he is

clearly ASD. He is very sensitive to supplements and usually reacts

with a stim-fest and major hyperness whenever we introduce something

(even if it's compounded)--therefore, we start slow and increase as

we see appropriate. He has been on the diet SCD for over 4

years,which we started when he was a bit over 2 yrs old. We have

also done biomedical, nothing too extreme. His IQ is above average,

also has a dx of severe apraxia of speech--which seems to be the most

problematic of the two diagnoses. He became verbal at 4.5 yrs old

although was reading at 2.5 yrs old and spelling well at 4 yrs old--

but his expressive speech has always been extremely hard for him.

Today, he is able to speak and be understood 75% of the time, he is

now speaking more spontaneously than he's ever had. Now, we don't

find ourselves prompting him to say words so much. It's minimal at

this point. He is finally able to answer simple questions like what

he did at school, who he played with, etc. sometimes inconsistent,

but I'll take it any day. He is now asking some questions and able

to talk about events in full sentences. All his therapists are blown

away by the improvements, even his teachers, but sadly, these

improvements are relatively new and school is ending. We still have

an uphill battle with school placement, since they don't seem to

understand the true meaning/function of inclusion. No matter what

you say or do, if the kid " does not fit the standard mold " , they just

don't know what to do--and of course, these are professionals who

supposedly know what they are doing... Too long of a complicated

story that will continue to haunt me. So, I am hoping to see even

greater improvements throughout the summer, so things may be slightly

easier for next school year. Anyway, going back to the OLE, for us,

it's paid off to take it slow adding Virastop and sticking with it.

He has continued to surprise us! You can check on the files section

and you may find a somewhat recent post of mine explaining the gains

we have seen with OLE/Virastop. My child did take Valtrex last year

(along with Diflucan), but it was pretty rough, and behaviors were

quite unbearable, especially when we had not seen so many behaviors

like that from him for years... With the OLE/Virastop we DID see

behaviors that were somewhat unbearable, but he seems to have now

levelled-off and they are mostly gone. We are getting ready to

increase dosaging again to see what happens. I hope this helps--hang

in there!

[Guest guest]

Hi Sondra,

We have been doing OLE since April 24th, worked our way up to 250mg

1x per day and then after about 10 days, we tried to increase it to

375mg and things started to " get out of hand " and since school was

still on, after 4 days of 375mg, I had to go back to 250mg where my

son seemed to do better. We are also doing Virastop and he was up to

1 1/2 caps 1x per day until yesterday. Today we started 2 full caps

of Virastop and so far things seem well. So, basically he is now at

250-300mg OLE and 2 caps of Virastop given 1x per day only in between

a meal or first thing in the morning, then breakfast after 20

minutes. He also takes Diflucan.

My child is on the milder level of the spectrum although he is

clearly ASD. He is very sensitive to supplements and usually reacts

with a stim-fest and major hyperness whenever we introduce something

(even if it's compounded)--therefore, we start slow and increase as

we see appropriate. He has been on the diet SCD for over 4

years,which we started when he was a bit over 2 yrs old. We have

also done biomedical, nothing too extreme. His IQ is above average,

also has a dx of severe apraxia of speech--which seems to be the most

problematic of the two diagnoses. He became verbal at 4.5 yrs old

although was reading at 2.5 yrs old and spelling well at 4 yrs old--

but his expressive speech has always been extremely hard for him.

Today, he is able to speak and be understood 75% of the time, he is

now speaking more spontaneously than he's ever had. Now, we don't

find ourselves prompting him to say words so much. It's minimal at

this point. He is finally able to answer simple questions like what

he did at school, who he played with, etc. sometimes inconsistent,

but I'll take it any day. He is now asking some questions and able

to talk about events in full sentences. All his therapists are blown

away by the improvements, even his teachers, but sadly, these

improvements are relatively new and school is ending. We still have

an uphill battle with school placement, since they don't seem to

understand the true meaning/function of inclusion. No matter what

you say or do, if the kid " does not fit the standard mold " , they just

don't know what to do--and of course, these are professionals who

supposedly know what they are doing... Too long of a complicated

story that will continue to haunt me. So, I am hoping to see even

greater improvements throughout the summer, so things may be slightly

easier for next school year. Anyway, going back to the OLE, for us,

it's paid off to take it slow adding Virastop and sticking with it.

He has continued to surprise us! You can check on the files section

and you may find a somewhat recent post of mine explaining the gains

we have seen with OLE/Virastop. My child did take Valtrex last year

(along with Diflucan), but it was pretty rough, and behaviors were

quite unbearable, especially when we had not seen so many behaviors

like that from him for years... With the OLE/Virastop we DID see

behaviors that were somewhat unbearable, but he seems to have now

levelled-off and they are mostly gone. We are getting ready to

increase dosaging again to see what happens. I hope this helps--hang

in there!

[Guest guest]

Hi Sondra,

We have been doing OLE since April 24th, worked our way up to 250mg

1x per day and then after about 10 days, we tried to increase it to

375mg and things started to " get out of hand " and since school was

still on, after 4 days of 375mg, I had to go back to 250mg where my

son seemed to do better. We are also doing Virastop and he was up to

1 1/2 caps 1x per day until yesterday. Today we started 2 full caps

of Virastop and so far things seem well. So, basically he is now at

250-300mg OLE and 2 caps of Virastop given 1x per day only in between

a meal or first thing in the morning, then breakfast after 20

minutes. He also takes Diflucan.

My child is on the milder level of the spectrum although he is

clearly ASD. He is very sensitive to supplements and usually reacts

with a stim-fest and major hyperness whenever we introduce something

(even if it's compounded)--therefore, we start slow and increase as

we see appropriate. He has been on the diet SCD for over 4

years,which we started when he was a bit over 2 yrs old. We have

also done biomedical, nothing too extreme. His IQ is above average,

also has a dx of severe apraxia of speech--which seems to be the most

problematic of the two diagnoses. He became verbal at 4.5 yrs old

although was reading at 2.5 yrs old and spelling well at 4 yrs old--

but his expressive speech has always been extremely hard for him.

Today, he is able to speak and be understood 75% of the time, he is

now speaking more spontaneously than he's ever had. Now, we don't

find ourselves prompting him to say words so much. It's minimal at

this point. He is finally able to answer simple questions like what

he did at school, who he played with, etc. sometimes inconsistent,

but I'll take it any day. He is now asking some questions and able

to talk about events in full sentences. All his therapists are blown

away by the improvements, even his teachers, but sadly, these

improvements are relatively new and school is ending. We still have

an uphill battle with school placement, since they don't seem to

understand the true meaning/function of inclusion. No matter what

you say or do, if the kid " does not fit the standard mold " , they just

don't know what to do--and of course, these are professionals who

supposedly know what they are doing... Too long of a complicated

story that will continue to haunt me. So, I am hoping to see even

greater improvements throughout the summer, so things may be slightly

easier for next school year. Anyway, going back to the OLE, for us,

it's paid off to take it slow adding Virastop and sticking with it.

He has continued to surprise us! You can check on the files section

and you may find a somewhat recent post of mine explaining the gains

we have seen with OLE/Virastop. My child did take Valtrex last year

(along with Diflucan), but it was pretty rough, and behaviors were

quite unbearable, especially when we had not seen so many behaviors

like that from him for years... With the OLE/Virastop we DID see

behaviors that were somewhat unbearable, but he seems to have now

levelled-off and they are mostly gone. We are getting ready to

increase dosaging again to see what happens. I hope this helps--hang

in there!

[Guest guest]

Hi Sondra

I have been pretty busy with organizing a local seminar, so I have

not had much time to read much on the boards.

One thing that I would like to mention about stimming and yeast.

Stimming and yeast were the absolute worst that I have ever seen it

in my son with OLE. If your child cannot stomach antifungals very

well, then there could be a lot of lingering regression.

In fact, handflapping came back when we started OLE and we had

gotten rid of it a month earlier. I was actually glad to see it in

a strange way. Not that I was happy that he was doing it, but it

told me that I had something else to work on that I may have missed,

and OLE brought it back out. This was the only symptom that came

back that took awhile to get under control. Now he rarely does it,

and it is his last symptom out of the couple dozen he had and we

only see it when he is chelating pretty much or go after bacteria

and yeast. He is still toxic, and when he is moving metals (during

his on days) we see milder yeast and milder regression compared to

months ago when we first got into this mess. On his off days, he is

pretty much a normal kid.

I guess what I am trying to say is that I did not look at the

stimming as a bad thing. I hated to watch it and it bummed me out a

little as it does most of us, but your child's body is telling you

that they are responding and you are stirring up metals, yeast,

etc. It is finding the right things to get these under control that

is the key here. It took us awhile and it was all trial and error.

How long have you been using OLE, and have you seen any gains at

all? How old is your daughter, and have you had any rashes or

anything that were signs of healing regression? What are you using

for yeast control since she does not tolerate Rx antifungals? If

your daughter is really yeasty, it may be masking her gains. My son

appeared almost in a drunken state until we got the yeast under

control. We were late in adding the yeast killers, and it was

extremely bad.

If you cannot get the yeast under control, you will continue to see

lots of stimming. If your daughter is responding and detoxing,

yeast is the body's way of protecting itself from metals, and there

are many in this group that believe that metals and viruses are

somehow related.

As a side note, we have worked with several parents locally that

have tried OLE that are not a part of this group, and it is the same

story with them. Yeast control is by for the worst part of the OLE

experience for the people that I know that have done this.

>

> I'd really like to hear from those doing OLE or Monolaurin (or

other

> natural antivirals I may not know about). I've read a ton in the

> archives as well as 's wife's report about their two kiddos

doing

> OLE and making great gains but it seems there is very little talk

> about it.

>

> I've posted about OLE and haven't had many responses, is that

because

> no one is doing it?

>

> My daughter's yeast is getting extremely bad and her gains are

down.

> She cannot tolerate Rx antifungals, so that's out. Her Autism

> Specialist said her stimming is the worst she's ever seen. I know

> there's a " healing-regression " period but sadly my daughter

usually

> regresses and doesn't heal. We try things and stick with them for

> long periods of time, like a year or more and we don't get the

> progress back. So, I'm getting nervous that we're doing OLE with

> practically no good track record from other parents (Shoemaker's

> excluded- that's amazing).

> Am I missing some great posts here? I could really use some

answers.

>

> Thanks.

> Sondra

>

[Guest guest]

Hi Sondra

I have been pretty busy with organizing a local seminar, so I have

not had much time to read much on the boards.

One thing that I would like to mention about stimming and yeast.

Stimming and yeast were the absolute worst that I have ever seen it

in my son with OLE. If your child cannot stomach antifungals very

well, then there could be a lot of lingering regression.

In fact, handflapping came back when we started OLE and we had

gotten rid of it a month earlier. I was actually glad to see it in

a strange way. Not that I was happy that he was doing it, but it

told me that I had something else to work on that I may have missed,

and OLE brought it back out. This was the only symptom that came

back that took awhile to get under control. Now he rarely does it,

and it is his last symptom out of the couple dozen he had and we

only see it when he is chelating pretty much or go after bacteria

and yeast. He is still toxic, and when he is moving metals (during

his on days) we see milder yeast and milder regression compared to

months ago when we first got into this mess. On his off days, he is

pretty much a normal kid.

I guess what I am trying to say is that I did not look at the

stimming as a bad thing. I hated to watch it and it bummed me out a

little as it does most of us, but your child's body is telling you

that they are responding and you are stirring up metals, yeast,

etc. It is finding the right things to get these under control that

is the key here. It took us awhile and it was all trial and error.

How long have you been using OLE, and have you seen any gains at

all? How old is your daughter, and have you had any rashes or

anything that were signs of healing regression? What are you using

for yeast control since she does not tolerate Rx antifungals? If

your daughter is really yeasty, it may be masking her gains. My son

appeared almost in a drunken state until we got the yeast under

control. We were late in adding the yeast killers, and it was

extremely bad.

If you cannot get the yeast under control, you will continue to see

lots of stimming. If your daughter is responding and detoxing,

yeast is the body's way of protecting itself from metals, and there

are many in this group that believe that metals and viruses are

somehow related.

As a side note, we have worked with several parents locally that

have tried OLE that are not a part of this group, and it is the same

story with them. Yeast control is by for the worst part of the OLE

experience for the people that I know that have done this.

>

> I'd really like to hear from those doing OLE or Monolaurin (or

other

> natural antivirals I may not know about). I've read a ton in the

> archives as well as 's wife's report about their two kiddos

doing

> OLE and making great gains but it seems there is very little talk

> about it.

>

> I've posted about OLE and haven't had many responses, is that

because

> no one is doing it?

>

> My daughter's yeast is getting extremely bad and her gains are

down.

> She cannot tolerate Rx antifungals, so that's out. Her Autism

> Specialist said her stimming is the worst she's ever seen. I know

> there's a " healing-regression " period but sadly my daughter

usually

> regresses and doesn't heal. We try things and stick with them for

> long periods of time, like a year or more and we don't get the

> progress back. So, I'm getting nervous that we're doing OLE with

> practically no good track record from other parents (Shoemaker's

> excluded- that's amazing).

> Am I missing some great posts here? I could really use some

answers.

>

> Thanks.

> Sondra

>

[Guest guest]

,

We have been doing Monolaurin and OLE for about 3-1/2 weeks now. We

started the OLE at 200 mg powder and she did well. We saw some

improvements the first week. She started saying " Mommy " more and

trying to communicate more with gesturing, pulling, etc. as well as

better eye contact. About 10 days ago we started the OLE liquid drops

since they were more concentrated. We got up to 7 drops, which would

be about another 115 mg and had to step back because of the yeast.

I've backed her down to 6 drops and I'm trying to stay there, which is

100 mg liquid (plus the 200 powder, so she's at 300 mg total).

So, yep, we've saw some good things up until a few days ago when the

yeast took off running. We're fighting yeast with naturals: Yeast Aid

(which is where the OLE powder comes from), Colostrum, Aquaflora,

Grapefruit Seed Extract, and probiotics.

Any other ideas? We definately thought we were on the right track the

first 2 weeks or so, we just need to get this yeast under control

now.

Thanks for posting and for letting me know there are other parents

doing the same and seeing the same things with OLE. I really

appreciate it.

Sondra

> How long have you been using OLE, and have you seen any gains at

> all? How old is your daughter, and have you had any rashes or

> anything that were signs of healing regression? What are you using

> for yeast control since she does not tolerate Rx antifungals? If

> your daughter is really yeasty, it may be masking her gains. My son

> appeared almost in a drunken state until we got the yeast under

> control. We were late in adding the yeast killers, and it was

> extremely bad.

[Guest guest]

,

We have been doing Monolaurin and OLE for about 3-1/2 weeks now. We

started the OLE at 200 mg powder and she did well. We saw some

improvements the first week. She started saying " Mommy " more and

trying to communicate more with gesturing, pulling, etc. as well as

better eye contact. About 10 days ago we started the OLE liquid drops

since they were more concentrated. We got up to 7 drops, which would

be about another 115 mg and had to step back because of the yeast.

I've backed her down to 6 drops and I'm trying to stay there, which is

100 mg liquid (plus the 200 powder, so she's at 300 mg total).

So, yep, we've saw some good things up until a few days ago when the

yeast took off running. We're fighting yeast with naturals: Yeast Aid

(which is where the OLE powder comes from), Colostrum, Aquaflora,

Grapefruit Seed Extract, and probiotics.

Any other ideas? We definately thought we were on the right track the

first 2 weeks or so, we just need to get this yeast under control

now.

Thanks for posting and for letting me know there are other parents

doing the same and seeing the same things with OLE. I really

appreciate it.

Sondra

> How long have you been using OLE, and have you seen any gains at

> all? How old is your daughter, and have you had any rashes or

> anything that were signs of healing regression? What are you using

> for yeast control since she does not tolerate Rx antifungals? If

> your daughter is really yeasty, it may be masking her gains. My son

> appeared almost in a drunken state until we got the yeast under

> control. We were late in adding the yeast killers, and it was

> extremely bad.

[Guest guest]

Thanks for this post. I'm really glad you included the dose since

we're at about 300 mg and holding. We went up above that and it

started getting bad too. I guess we'll stay here for a while and

see if we can get the yeast under control and see some gains.

Thanks again.

Sondra

>

> Hi Sondra,

>

> We have been doing OLE since April 24th, worked our way up to

250mg

> 1x per day and then after about 10 days, we tried to increase it

to

> 375mg and things started to " get out of hand " and since school was

> still on, after 4 days of 375mg, I had to go back to 250mg where

my

> son seemed to do better. We are also doing Virastop and he was up

to

> 1 1/2 caps 1x per day until yesterday. Today we started 2 full

caps

> of Virastop and so far things seem well. So, basically he is now

at

> 250-300mg OLE and 2 caps of Virastop given 1x per day only in

between

> a meal or first thing in the morning, then breakfast after 20

> minutes. He also takes Diflucan.

>

> My child is on the milder level of the spectrum although he is

> clearly ASD. He is very sensitive to supplements and usually

reacts

> with a stim-fest and major hyperness whenever we introduce

something

> (even if it's compounded)--therefore, we start slow and increase

as

> we see appropriate. He has been on the diet SCD for over 4

> years,which we started when he was a bit over 2 yrs old. We have

> also done biomedical, nothing too extreme. His IQ is above

average,

> also has a dx of severe apraxia of speech--which seems to be the

most

> problematic of the two diagnoses. He became verbal at 4.5 yrs old

> although was reading at 2.5 yrs old and spelling well at 4 yrs old-

-

> but his expressive speech has always been extremely hard for him.

> Today, he is able to speak and be understood 75% of the time, he

is

> now speaking more spontaneously than he's ever had. Now, we don't

> find ourselves prompting him to say words so much. It's minimal

at

> this point. He is finally able to answer simple questions like

what

> he did at school, who he played with, etc. sometimes inconsistent,

> but I'll take it any day. He is now asking some questions and

able

> to talk about events in full sentences. All his therapists are

blown

> away by the improvements, even his teachers, but sadly, these

> improvements are relatively new and school is ending. We still

have

> an uphill battle with school placement, since they don't seem to

> understand the true meaning/function of inclusion. No matter what

> you say or do, if the kid " does not fit the standard mold " , they

just

> don't know what to do--and of course, these are professionals who

> supposedly know what they are doing... Too long of a complicated

> story that will continue to haunt me. So, I am hoping to see even

> greater improvements throughout the summer, so things may be

slightly

> easier for next school year. Anyway, going back to the OLE, for

us,

> it's paid off to take it slow adding Virastop and sticking with

it.

> He has continued to surprise us! You can check on the files

section

> and you may find a somewhat recent post of mine explaining the

gains

> we have seen with OLE/Virastop. My child did take Valtrex last

year

> (along with Diflucan), but it was pretty rough, and behaviors were

> quite unbearable, especially when we had not seen so many

behaviors

> like that from him for years... With the OLE/Virastop we DID see

> behaviors that were somewhat unbearable, but he seems to have now

> levelled-off and they are mostly gone. We are getting ready to

> increase dosaging again to see what happens. I hope this helps--

hang

> in there!

>

[Guest guest]

Thanks for this post. I'm really glad you included the dose since

we're at about 300 mg and holding. We went up above that and it

started getting bad too. I guess we'll stay here for a while and

see if we can get the yeast under control and see some gains.

Thanks again.

Sondra

>

> Hi Sondra,

>

> We have been doing OLE since April 24th, worked our way up to

250mg

> 1x per day and then after about 10 days, we tried to increase it

to

> 375mg and things started to " get out of hand " and since school was

> still on, after 4 days of 375mg, I had to go back to 250mg where

my

> son seemed to do better. We are also doing Virastop and he was up

to

> 1 1/2 caps 1x per day until yesterday. Today we started 2 full

caps

> of Virastop and so far things seem well. So, basically he is now

at

> 250-300mg OLE and 2 caps of Virastop given 1x per day only in

between

> a meal or first thing in the morning, then breakfast after 20

> minutes. He also takes Diflucan.

>

> My child is on the milder level of the spectrum although he is

> clearly ASD. He is very sensitive to supplements and usually

reacts

> with a stim-fest and major hyperness whenever we introduce

something

> (even if it's compounded)--therefore, we start slow and increase

as

> we see appropriate. He has been on the diet SCD for over 4

> years,which we started when he was a bit over 2 yrs old. We have

> also done biomedical, nothing too extreme. His IQ is above

average,

> also has a dx of severe apraxia of speech--which seems to be the

most

> problematic of the two diagnoses. He became verbal at 4.5 yrs old

> although was reading at 2.5 yrs old and spelling well at 4 yrs old-

-

> but his expressive speech has always been extremely hard for him.

> Today, he is able to speak and be understood 75% of the time, he

is

> now speaking more spontaneously than he's ever had. Now, we don't

> find ourselves prompting him to say words so much. It's minimal

at

> this point. He is finally able to answer simple questions like

what

> he did at school, who he played with, etc. sometimes inconsistent,

> but I'll take it any day. He is now asking some questions and

able

> to talk about events in full sentences. All his therapists are

blown

> away by the improvements, even his teachers, but sadly, these

> improvements are relatively new and school is ending. We still

have

> an uphill battle with school placement, since they don't seem to

> understand the true meaning/function of inclusion. No matter what

> you say or do, if the kid " does not fit the standard mold " , they

just

> don't know what to do--and of course, these are professionals who

> supposedly know what they are doing... Too long of a complicated

> story that will continue to haunt me. So, I am hoping to see even

> greater improvements throughout the summer, so things may be

slightly

> easier for next school year. Anyway, going back to the OLE, for

us,

> it's paid off to take it slow adding Virastop and sticking with

it.

> He has continued to surprise us! You can check on the files

section

> and you may find a somewhat recent post of mine explaining the

gains

> we have seen with OLE/Virastop. My child did take Valtrex last

year

> (along with Diflucan), but it was pretty rough, and behaviors were

> quite unbearable, especially when we had not seen so many

behaviors

> like that from him for years... With the OLE/Virastop we DID see

> behaviors that were somewhat unbearable, but he seems to have now

> levelled-off and they are mostly gone. We are getting ready to

> increase dosaging again to see what happens. I hope this helps--

hang

> in there!

>

[Guest guest]

I am now dosing 420 mg per day, but breaking it up into 3 spearate doses. Have you tired that? Maybe it will allow you to increase it. don't know -only a sugestion. Maurinesteviesarasmom <steviesarasmom@...> wrote: Thanks for this post. I'm really glad you included the dose since we're at about 300 mg and holding. We went up above that and it started getting bad too. I guess we'll stay here for a while and see if we can get the yeast under control and see some gains. Thanks again.Sondra>> Hi Sondra,> > We have been doing OLE since April 24th, worked our way up to 250mg > 1x per day and then after about 10 days, we tried to increase it to > 375mg and things started to "get out of hand" and since school was > still on, after 4 days of 375mg, I had to go back to 250mg where my > son seemed to do better. We are also doing Virastop and he was up to > 1 1/2 caps 1x per day until yesterday. Today we started 2 full caps > of Virastop and so far things seem well. So, basically he is now at > 250-300mg OLE and 2 caps of Virastop given 1x per day only in between > a meal or first thing in the morning, then breakfast after 20 > minutes. He also takes Diflucan.> > My child is on the milder level of the spectrum

although he is > clearly ASD. He is very sensitive to supplements and usually reacts > with a stim-fest and major hyperness whenever we introduce something > (even if it's compounded)--therefore, we start slow and increase as > we see appropriate. He has been on the diet SCD for over 4 > years,which we started when he was a bit over 2 yrs old. We have > also done biomedical, nothing too extreme. His IQ is above average, > also has a dx of severe apraxia of speech--which seems to be the most > problematic of the two diagnoses. He became verbal at 4.5 yrs old > although was reading at 2.5 yrs old and spelling well at 4 yrs old--> but his expressive speech has always been extremely hard for him. > Today, he is able to speak and be understood 75% of the time, he is > now speaking more spontaneously than he's ever had. Now, we don't > find ourselves

prompting him to say words so much. It's minimal at > this point. He is finally able to answer simple questions like what > he did at school, who he played with, etc. sometimes inconsistent, > but I'll take it any day. He is now asking some questions and able > to talk about events in full sentences. All his therapists are blown > away by the improvements, even his teachers, but sadly, these > improvements are relatively new and school is ending. We still have > an uphill battle with school placement, since they don't seem to > understand the true meaning/function of inclusion. No matter what > you say or do, if the kid "does not fit the standard mold", they just > don't know what to do--and of course, these are professionals who > supposedly know what they are doing... Too long of a complicated > story that will continue to haunt me. So, I am hoping to see even

> greater improvements throughout the summer, so things may be slightly > easier for next school year. Anyway, going back to the OLE, for us, > it's paid off to take it slow adding Virastop and sticking with it. > He has continued to surprise us! You can check on the files section > and you may find a somewhat recent post of mine explaining the gains > we have seen with OLE/Virastop. My child did take Valtrex last year > (along with Diflucan), but it was pretty rough, and behaviors were > quite unbearable, especially when we had not seen so many behaviors > like that from him for years... With the OLE/Virastop we DID see > behaviors that were somewhat unbearable, but he seems to have now > levelled-off and they are mostly gone. We are getting ready to > increase dosaging again to see what happens. I hope this helps--hang > in

there!> __________________________________________________

[Guest guest]

I am now dosing 420 mg per day, but breaking it up into 3 spearate doses. Have you tired that? Maybe it will allow you to increase it. don't know -only a sugestion. Maurinesteviesarasmom <steviesarasmom@...> wrote: Thanks for this post. I'm really glad you included the dose since we're at about 300 mg and holding. We went up above that and it started getting bad too. I guess we'll stay here for a while and see if we can get the yeast under control and see some gains. Thanks again.Sondra>> Hi Sondra,> > We have been doing OLE since April 24th, worked our way up to 250mg > 1x per day and then after about 10 days, we tried to increase it to > 375mg and things started to "get out of hand" and since school was > still on, after 4 days of 375mg, I had to go back to 250mg where my > son seemed to do better. We are also doing Virastop and he was up to > 1 1/2 caps 1x per day until yesterday. Today we started 2 full caps > of Virastop and so far things seem well. So, basically he is now at > 250-300mg OLE and 2 caps of Virastop given 1x per day only in between > a meal or first thing in the morning, then breakfast after 20 > minutes. He also takes Diflucan.> > My child is on the milder level of the spectrum

although he is > clearly ASD. He is very sensitive to supplements and usually reacts > with a stim-fest and major hyperness whenever we introduce something > (even if it's compounded)--therefore, we start slow and increase as > we see appropriate. He has been on the diet SCD for over 4 > years,which we started when he was a bit over 2 yrs old. We have > also done biomedical, nothing too extreme. His IQ is above average, > also has a dx of severe apraxia of speech--which seems to be the most > problematic of the two diagnoses. He became verbal at 4.5 yrs old > although was reading at 2.5 yrs old and spelling well at 4 yrs old--> but his expressive speech has always been extremely hard for him. > Today, he is able to speak and be understood 75% of the time, he is > now speaking more spontaneously than he's ever had. Now, we don't > find ourselves

prompting him to say words so much. It's minimal at > this point. He is finally able to answer simple questions like what > he did at school, who he played with, etc. sometimes inconsistent, > but I'll take it any day. He is now asking some questions and able > to talk about events in full sentences. All his therapists are blown > away by the improvements, even his teachers, but sadly, these > improvements are relatively new and school is ending. We still have > an uphill battle with school placement, since they don't seem to > understand the true meaning/function of inclusion. No matter what > you say or do, if the kid "does not fit the standard mold", they just > don't know what to do--and of course, these are professionals who > supposedly know what they are doing... Too long of a complicated > story that will continue to haunt me. So, I am hoping to see even

> greater improvements throughout the summer, so things may be slightly > easier for next school year. Anyway, going back to the OLE, for us, > it's paid off to take it slow adding Virastop and sticking with it. > He has continued to surprise us! You can check on the files section > and you may find a somewhat recent post of mine explaining the gains > we have seen with OLE/Virastop. My child did take Valtrex last year > (along with Diflucan), but it was pretty rough, and behaviors were > quite unbearable, especially when we had not seen so many behaviors > like that from him for years... With the OLE/Virastop we DID see > behaviors that were somewhat unbearable, but he seems to have now > levelled-off and they are mostly gone. We are getting ready to > increase dosaging again to see what happens. I hope this helps--hang > in

there!> __________________________________________________

[Guest guest]

Hi everyone,

We started OLE some 17 days back , but had to back off on the 12 th

day. My daughter's reaction to OLE at 500 mg caps was so strong

that things got out of hand. Day 1 of OLE she developed a runny

nose.Followed by a cough that got worse and worse. I had her on oil

of oregano,uva ursi,candidase (rotating oil of oregano and uva ursi)

By the 10 th day yeast flared up so badly that we had to stop.

We did not see such a adverse reaction on Valtrex.

It was like OLE stirred up the bee hive so badly that

it got out of hand. Last 5 days we are trying to combat yeast. I now

have GSE, caprylic acid, yeast aid too. Been off OLE for 5-6 days ,

yet the runny nose, cough, fever, extreme fatigue persists.

I know for sure OLE is definately effective in her but i will restart

only after i do antifungal for 2 weeks and at a very low dose.

Rgds,

M's Mom

> >

> > Hi Sondra,

> >

> > We have been doing OLE since April 24th, worked our way up to

> 250mg

> > 1x per day and then after about 10 days, we tried to increase it

> to

> > 375mg and things started to " get out of hand " and since school

was

> > still on, after 4 days of 375mg, I had to go back to 250mg where

> my

> > son seemed to do better. We are also doing Virastop and he was

up

> to

> > 1 1/2 caps 1x per day until yesterday. Today we started 2 full

> caps

> > of Virastop and so far things seem well. So, basically he is now

> at

> > 250-300mg OLE and 2 caps of Virastop given 1x per day only in

> between

> > a meal or first thing in the morning, then breakfast after 20

> > minutes. He also takes Diflucan.

> >

> > My child is on the milder level of the spectrum although he is

> > clearly ASD. He is very sensitive to supplements and usually

> reacts

> > with a stim-fest and major hyperness whenever we introduce

> something

> > (even if it's compounded)--therefore, we start slow and increase

> as

> > we see appropriate. He has been on the diet SCD for over 4

> > years,which we started when he was a bit over 2 yrs old. We have

> > also done biomedical, nothing too extreme. His IQ is above

> average,

> > also has a dx of severe apraxia of speech--which seems to be the

> most

> > problematic of the two diagnoses. He became verbal at 4.5 yrs

old

> > although was reading at 2.5 yrs old and spelling well at 4 yrs

old-

> -

> > but his expressive speech has always been extremely hard for

him.

> > Today, he is able to speak and be understood 75% of the time, he

> is

> > now speaking more spontaneously than he's ever had. Now, we

don't

> > find ourselves prompting him to say words so much. It's minimal

> at

> > this point. He is finally able to answer simple questions like

> what

> > he did at school, who he played with, etc. sometimes

inconsistent,

> > but I'll take it any day. He is now asking some questions and

> able

> > to talk about events in full sentences. All his therapists are

> blown

> > away by the improvements, even his teachers, but sadly, these

> > improvements are relatively new and school is ending. We still

> have

> > an uphill battle with school placement, since they don't seem to

> > understand the true meaning/function of inclusion. No matter

what

> > you say or do, if the kid " does not fit the standard mold " , they

> just

> > don't know what to do--and of course, these are professionals who

> > supposedly know what they are doing... Too long of a complicated

> > story that will continue to haunt me. So, I am hoping to see

even

> > greater improvements throughout the summer, so things may be

> slightly

> > easier for next school year. Anyway, going back to the OLE, for

> us,

> > it's paid off to take it slow adding Virastop and sticking with

> it.

> > He has continued to surprise us! You can check on the files

> section

> > and you may find a somewhat recent post of mine explaining the

> gains

> > we have seen with OLE/Virastop. My child did take Valtrex last

> year

> > (along with Diflucan), but it was pretty rough, and behaviors

were

> > quite unbearable, especially when we had not seen so many

> behaviors

> > like that from him for years... With the OLE/Virastop we DID see

> > behaviors that were somewhat unbearable, but he seems to have now

> > levelled-off and they are mostly gone. We are getting ready to

> > increase dosaging again to see what happens. I hope this helps--

> hang

> > in there!

> >

>

[Guest guest]

Hi everyone,

We started OLE some 17 days back , but had to back off on the 12 th

day. My daughter's reaction to OLE at 500 mg caps was so strong

that things got out of hand. Day 1 of OLE she developed a runny

nose.Followed by a cough that got worse and worse. I had her on oil

of oregano,uva ursi,candidase (rotating oil of oregano and uva ursi)

By the 10 th day yeast flared up so badly that we had to stop.

We did not see such a adverse reaction on Valtrex.

It was like OLE stirred up the bee hive so badly that

it got out of hand. Last 5 days we are trying to combat yeast. I now

have GSE, caprylic acid, yeast aid too. Been off OLE for 5-6 days ,

yet the runny nose, cough, fever, extreme fatigue persists.

I know for sure OLE is definately effective in her but i will restart

only after i do antifungal for 2 weeks and at a very low dose.

Rgds,

M's Mom

> >

> > Hi Sondra,

> >

> > We have been doing OLE since April 24th, worked our way up to

> 250mg

> > 1x per day and then after about 10 days, we tried to increase it

> to

> > 375mg and things started to " get out of hand " and since school

was

> > still on, after 4 days of 375mg, I had to go back to 250mg where

> my

> > son seemed to do better. We are also doing Virastop and he was

up

> to

> > 1 1/2 caps 1x per day until yesterday. Today we started 2 full

> caps

> > of Virastop and so far things seem well. So, basically he is now

> at

> > 250-300mg OLE and 2 caps of Virastop given 1x per day only in

> between

> > a meal or first thing in the morning, then breakfast after 20

> > minutes. He also takes Diflucan.

> >

> > My child is on the milder level of the spectrum although he is

> > clearly ASD. He is very sensitive to supplements and usually

> reacts

> > with a stim-fest and major hyperness whenever we introduce

> something

> > (even if it's compounded)--therefore, we start slow and increase

> as

> > we see appropriate. He has been on the diet SCD for over 4

> > years,which we started when he was a bit over 2 yrs old. We have

> > also done biomedical, nothing too extreme. His IQ is above

> average,

> > also has a dx of severe apraxia of speech--which seems to be the

> most

> > problematic of the two diagnoses. He became verbal at 4.5 yrs

old

> > although was reading at 2.5 yrs old and spelling well at 4 yrs

old-

> -

> > but his expressive speech has always been extremely hard for

him.

> > Today, he is able to speak and be understood 75% of the time, he

> is

> > now speaking more spontaneously than he's ever had. Now, we

don't

> > find ourselves prompting him to say words so much. It's minimal

> at

> > this point. He is finally able to answer simple questions like

> what

> > he did at school, who he played with, etc. sometimes

inconsistent,

> > but I'll take it any day. He is now asking some questions and

> able

> > to talk about events in full sentences. All his therapists are

> blown

> > away by the improvements, even his teachers, but sadly, these

> > improvements are relatively new and school is ending. We still

> have

> > an uphill battle with school placement, since they don't seem to

> > understand the true meaning/function of inclusion. No matter

what

> > you say or do, if the kid " does not fit the standard mold " , they

> just

> > don't know what to do--and of course, these are professionals who

> > supposedly know what they are doing... Too long of a complicated

> > story that will continue to haunt me. So, I am hoping to see

even

> > greater improvements throughout the summer, so things may be

> slightly

> > easier for next school year. Anyway, going back to the OLE, for

> us,

> > it's paid off to take it slow adding Virastop and sticking with

> it.

> > He has continued to surprise us! You can check on the files

> section

> > and you may find a somewhat recent post of mine explaining the

> gains

> > we have seen with OLE/Virastop. My child did take Valtrex last

> year

> > (along with Diflucan), but it was pretty rough, and behaviors

were

> > quite unbearable, especially when we had not seen so many

> behaviors

> > like that from him for years... With the OLE/Virastop we DID see

> > behaviors that were somewhat unbearable, but he seems to have now

> > levelled-off and they are mostly gone. We are getting ready to

> > increase dosaging again to see what happens. I hope this helps--

> hang

> > in there!

> >

>

[Guest guest]

hi did you start her on 500mg caps or divide it up into thirds?z033005 <lovely_sagi@...> wrote: Hi everyone,We started OLE some 17 days back , but had to back off on the 12 th day. My daughter's reaction to OLE at 500 mg caps was so strongthat things got out of hand. Day 1 of OLE she developed a runny nose.Followed by a cough that got worse and worse. I had her on oil of oregano,uva ursi,candidase (rotating oil of oregano and uva ursi)By the 10 th day yeast flared up so badly that we had to stop.We did not see such a adverse

reaction on Valtrex.It was like OLE stirred up the bee hive so badly thatit got out of hand. Last 5 days we are trying to combat yeast. I now have GSE, caprylic acid, yeast aid too. Been off OLE for 5-6 days , yet the runny nose, cough, fever, extreme fatigue persists.I know for sure OLE is definately effective in her but i will restart only after i do antifungal for 2 weeks and at a very low dose.Rgds,M's Mom> >> > Hi Sondra,> > > > We have been doing OLE since April 24th, worked our way up to > 250mg > > 1x per day and then after about 10 days, we tried to increase it > to > > 375mg and things started to "get out of hand" and since school was > > still on, after 4 days of 375mg, I had to go back to 250mg where > my > > son seemed to do better. We are also doing Virastop and he was up > to > > 1 1/2 caps 1x per day until yesterday. Today we started 2 full > caps > > of Virastop and so far things seem well. So, basically he is now > at > > 250-300mg OLE and 2 caps of Virastop given 1x per day only in > between > > a meal or first thing in the morning, then breakfast

after 20 > > minutes. He also takes Diflucan.> > > > My child is on the milder level of the spectrum although he is > > clearly ASD. He is very sensitive to supplements and usually > reacts > > with a stim-fest and major hyperness whenever we introduce > something > > (even if it's compounded)--therefore, we start slow and increase > as > > we see appropriate. He has been on the diet SCD for over 4 > > years,which we started when he was a bit over 2 yrs old. We have > > also done biomedical, nothing too extreme. His IQ is above > average, > > also has a dx of severe apraxia of speech--which seems to be the > most > > problematic of the two diagnoses. He became verbal at 4.5 yrs old > > although was reading at 2.5 yrs old and spelling well at 4 yrs old-> -> > but his expressive speech has

always been extremely hard for him. > > Today, he is able to speak and be understood 75% of the time, he > is > > now speaking more spontaneously than he's ever had. Now, we don't > > find ourselves prompting him to say words so much. It's minimal > at > > this point. He is finally able to answer simple questions like > what > > he did at school, who he played with, etc. sometimes inconsistent, > > but I'll take it any day. He is now asking some questions and > able > > to talk about events in full sentences. All his therapists are > blown > > away by the improvements, even his teachers, but sadly, these > > improvements are relatively new and school is ending. We still > have > > an uphill battle with school placement, since they don't seem to > > understand the true meaning/function of inclusion. No matter

what > > you say or do, if the kid "does not fit the standard mold", they > just > > don't know what to do--and of course, these are professionals who > > supposedly know what they are doing... Too long of a complicated > > story that will continue to haunt me. So, I am hoping to see even > > greater improvements throughout the summer, so things may be > slightly > > easier for next school year. Anyway, going back to the OLE, for > us, > > it's paid off to take it slow adding Virastop and sticking with > it. > > He has continued to surprise us! You can check on the files > section > > and you may find a somewhat recent post of mine explaining the > gains > > we have seen with OLE/Virastop. My child did take Valtrex last > year > > (along with Diflucan), but it was pretty rough, and behaviors were >

> quite unbearable, especially when we had not seen so many > behaviors > > like that from him for years... With the OLE/Virastop we DID see > > behaviors that were somewhat unbearable, but he seems to have now > > levelled-off and they are mostly gone. We are getting ready to > > increase dosaging again to see what happens. I hope this helps--> hang > > in there!> >> __________________________________________________

[Guest guest]

hi did you start her on 500mg caps or divide it up into thirds?z033005 <lovely_sagi@...> wrote: Hi everyone,We started OLE some 17 days back , but had to back off on the 12 th day. My daughter's reaction to OLE at 500 mg caps was so strongthat things got out of hand. Day 1 of OLE she developed a runny nose.Followed by a cough that got worse and worse. I had her on oil of oregano,uva ursi,candidase (rotating oil of oregano and uva ursi)By the 10 th day yeast flared up so badly that we had to stop.We did not see such a adverse

reaction on Valtrex.It was like OLE stirred up the bee hive so badly thatit got out of hand. Last 5 days we are trying to combat yeast. I now have GSE, caprylic acid, yeast aid too. Been off OLE for 5-6 days , yet the runny nose, cough, fever, extreme fatigue persists.I know for sure OLE is definately effective in her but i will restart only after i do antifungal for 2 weeks and at a very low dose.Rgds,M's Mom> >> > Hi Sondra,> > > > We have been doing OLE since April 24th, worked our way up to > 250mg > > 1x per day and then after about 10 days, we tried to increase it > to > > 375mg and things started to "get out of hand" and since school was > > still on, after 4 days of 375mg, I had to go back to 250mg where > my > > son seemed to do better. We are also doing Virastop and he was up > to > > 1 1/2 caps 1x per day until yesterday. Today we started 2 full > caps > > of Virastop and so far things seem well. So, basically he is now > at > > 250-300mg OLE and 2 caps of Virastop given 1x per day only in > between > > a meal or first thing in the morning, then breakfast

after 20 > > minutes. He also takes Diflucan.> > > > My child is on the milder level of the spectrum although he is > > clearly ASD. He is very sensitive to supplements and usually > reacts > > with a stim-fest and major hyperness whenever we introduce > something > > (even if it's compounded)--therefore, we start slow and increase > as > > we see appropriate. He has been on the diet SCD for over 4 > > years,which we started when he was a bit over 2 yrs old. We have > > also done biomedical, nothing too extreme. His IQ is above > average, > > also has a dx of severe apraxia of speech--which seems to be the > most > > problematic of the two diagnoses. He became verbal at 4.5 yrs old > > although was reading at 2.5 yrs old and spelling well at 4 yrs old-> -> > but his expressive speech has

always been extremely hard for him. > > Today, he is able to speak and be understood 75% of the time, he > is > > now speaking more spontaneously than he's ever had. Now, we don't > > find ourselves prompting him to say words so much. It's minimal > at > > this point. He is finally able to answer simple questions like > what > > he did at school, who he played with, etc. sometimes inconsistent, > > but I'll take it any day. He is now asking some questions and > able > > to talk about events in full sentences. All his therapists are > blown > > away by the improvements, even his teachers, but sadly, these > > improvements are relatively new and school is ending. We still > have > > an uphill battle with school placement, since they don't seem to > > understand the true meaning/function of inclusion. No matter

what > > you say or do, if the kid "does not fit the standard mold", they > just > > don't know what to do--and of course, these are professionals who > > supposedly know what they are doing... Too long of a complicated > > story that will continue to haunt me. So, I am hoping to see even > > greater improvements throughout the summer, so things may be > slightly > > easier for next school year. Anyway, going back to the OLE, for > us, > > it's paid off to take it slow adding Virastop and sticking with > it. > > He has continued to surprise us! You can check on the files > section > > and you may find a somewhat recent post of mine explaining the > gains > > we have seen with OLE/Virastop. My child did take Valtrex last > year > > (along with Diflucan), but it was pretty rough, and behaviors were >

> quite unbearable, especially when we had not seen so many > behaviors > > like that from him for years... With the OLE/Virastop we DID see > > behaviors that were somewhat unbearable, but he seems to have now > > levelled-off and they are mostly gone. We are getting ready to > > increase dosaging again to see what happens. I hope this helps--> hang > > in there!> >> __________________________________________________

[Guest guest]

Hi Maurine,

No, we did not divide it. I guess thats why we saw such a adverse

reaction.

We've learnt our lesson. She was also not able to go beyond 14 drops

LL for a very long time. Still the same. She is 8 years old and 57

Lbs.

M's Mom

mb12 valtrex , Maurine Meleck <maurine_meleck@...>

wrote:

>

> hi did you start her on 500mg caps or divide it up into thirds?

>

> z033005 <lovely_sagi@...> wrote: Hi everyone,

>

> We started OLE some 17 days back , but had to back off on the 12 th

> day. My daughter's reaction to OLE at 500 mg caps was so strong

> that things got out of hand. Day 1 of OLE she developed a runny

> nose.Followed by a cough that got worse and worse. I had her on oil

> of oregano,uva ursi,candidase (rotating oil of oregano and uva ursi)

> By the 10 th day yeast flared up so badly that we had to stop.

> We did not see such a adverse reaction on Valtrex.

>

> It was like OLE stirred up the bee hive so badly that

> it got out of hand. Last 5 days we are trying to combat yeast. I

now

> have GSE, caprylic acid, yeast aid too. Been off OLE for 5-6 days ,

> yet the runny nose, cough, fever, extreme fatigue persists.

>

> I know for sure OLE is definately effective in her but i will

restart

> only after i do antifungal for 2 weeks and at a very low dose.

>

> Rgds,

>

> M's Mom

>

>

> > >

> > > Hi Sondra,

> > >

> > > We have been doing OLE since April 24th, worked our way up to

> > 250mg

> > > 1x per day and then after about 10 days, we tried to increase

it

> > to

> > > 375mg and things started to " get out of hand " and since school

> was

> > > still on, after 4 days of 375mg, I had to go back to 250mg

where

> > my

> > > son seemed to do better. We are also doing Virastop and he was

> up

> > to

> > > 1 1/2 caps 1x per day until yesterday. Today we started 2 full

> > caps

> > > of Virastop and so far things seem well. So, basically he is

now

> > at

> > > 250-300mg OLE and 2 caps of Virastop given 1x per day only in

> > between

> > > a meal or first thing in the morning, then breakfast after 20

> > > minutes. He also takes Diflucan.

> > >

> > > My child is on the milder level of the spectrum although he is

> > > clearly ASD. He is very sensitive to supplements and usually

> > reacts

> > > with a stim-fest and major hyperness whenever we introduce

> > something

> > > (even if it's compounded)--therefore, we start slow and

increase

> > as

> > > we see appropriate. He has been on the diet SCD for over 4

> > > years,which we started when he was a bit over 2 yrs old. We

have

> > > also done biomedical, nothing too extreme. His IQ is above

> > average,

> > > also has a dx of severe apraxia of speech--which seems to be

the

> > most

> > > problematic of the two diagnoses. He became verbal at 4.5 yrs

> old

> > > although was reading at 2.5 yrs old and spelling well at 4 yrs

> old-

> > -

> > > but his expressive speech has always been extremely hard for

> him.

> > > Today, he is able to speak and be understood 75% of the time,

he

> > is

> > > now speaking more spontaneously than he's ever had. Now, we

> don't

> > > find ourselves prompting him to say words so much. It's minimal

> > at

> > > this point. He is finally able to answer simple questions like

> > what

> > > he did at school, who he played with, etc. sometimes

> inconsistent,

> > > but I'll take it any day. He is now asking some questions and

> > able

> > > to talk about events in full sentences. All his therapists are

> > blown

> > > away by the improvements, even his teachers, but sadly, these

> > > improvements are relatively new and school is ending. We still

> > have

> > > an uphill battle with school placement, since they don't seem

to

> > > understand the true meaning/function of inclusion. No matter

> what

> > > you say or do, if the kid " does not fit the standard mold " ,

they

> > just

> > > don't know what to do--and of course, these are professionals

who

> > > supposedly know what they are doing... Too long of a

complicated

> > > story that will continue to haunt me. So, I am hoping to see

> even

> > > greater improvements throughout the summer, so things may be

> > slightly

> > > easier for next school year. Anyway, going back to the OLE, for

> > us,

> > > it's paid off to take it slow adding Virastop and sticking with

> > it.

> > > He has continued to surprise us! You can check on the files

> > section

> > > and you may find a somewhat recent post of mine explaining the

> > gains

> > > we have seen with OLE/Virastop. My child did take Valtrex last

> > year

> > > (along with Diflucan), but it was pretty rough, and behaviors

> were

> > > quite unbearable, especially when we had not seen so many

> > behaviors

> > > like that from him for years... With the OLE/Virastop we DID

see

> > > behaviors that were somewhat unbearable, but he seems to have

now

> > > levelled-off and they are mostly gone. We are getting ready to

> > > increase dosaging again to see what happens. I hope this helps--

> > hang

> > > in there!

> > >

> >

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Hi Maurine,

No, we did not divide it. I guess thats why we saw such a adverse

reaction.

We've learnt our lesson. She was also not able to go beyond 14 drops

LL for a very long time. Still the same. She is 8 years old and 57

Lbs.

M's Mom

mb12 valtrex , Maurine Meleck <maurine_meleck@...>

wrote:

>

> hi did you start her on 500mg caps or divide it up into thirds?

>

> z033005 <lovely_sagi@...> wrote: Hi everyone,

>

> We started OLE some 17 days back , but had to back off on the 12 th

> day. My daughter's reaction to OLE at 500 mg caps was so strong

> that things got out of hand. Day 1 of OLE she developed a runny

> nose.Followed by a cough that got worse and worse. I had her on oil

> of oregano,uva ursi,candidase (rotating oil of oregano and uva ursi)

> By the 10 th day yeast flared up so badly that we had to stop.

> We did not see such a adverse reaction on Valtrex.

>

> It was like OLE stirred up the bee hive so badly that

> it got out of hand. Last 5 days we are trying to combat yeast. I

now

> have GSE, caprylic acid, yeast aid too. Been off OLE for 5-6 days ,

> yet the runny nose, cough, fever, extreme fatigue persists.

>

> I know for sure OLE is definately effective in her but i will

restart

> only after i do antifungal for 2 weeks and at a very low dose.

>

> Rgds,

>

> M's Mom

>

>

> > >

> > > Hi Sondra,

> > >

> > > We have been doing OLE since April 24th, worked our way up to

> > 250mg

> > > 1x per day and then after about 10 days, we tried to increase

it

> > to

> > > 375mg and things started to " get out of hand " and since school

> was

> > > still on, after 4 days of 375mg, I had to go back to 250mg

where

> > my

> > > son seemed to do better. We are also doing Virastop and he was

> up

> > to

> > > 1 1/2 caps 1x per day until yesterday. Today we started 2 full

> > caps

> > > of Virastop and so far things seem well. So, basically he is

now

> > at

> > > 250-300mg OLE and 2 caps of Virastop given 1x per day only in

> > between

> > > a meal or first thing in the morning, then breakfast after 20

> > > minutes. He also takes Diflucan.

> > >

> > > My child is on the milder level of the spectrum although he is

> > > clearly ASD. He is very sensitive to supplements and usually

> > reacts

> > > with a stim-fest and major hyperness whenever we introduce

> > something

> > > (even if it's compounded)--therefore, we start slow and

increase

> > as

> > > we see appropriate. He has been on the diet SCD for over 4

> > > years,which we started when he was a bit over 2 yrs old. We

have

> > > also done biomedical, nothing too extreme. His IQ is above

> > average,

> > > also has a dx of severe apraxia of speech--which seems to be

the

> > most

> > > problematic of the two diagnoses. He became verbal at 4.5 yrs

> old

> > > although was reading at 2.5 yrs old and spelling well at 4 yrs

> old-

> > -

> > > but his expressive speech has always been extremely hard for

> him.

> > > Today, he is able to speak and be understood 75% of the time,

he

> > is

> > > now speaking more spontaneously than he's ever had. Now, we

> don't

> > > find ourselves prompting him to say words so much. It's minimal

> > at

> > > this point. He is finally able to answer simple questions like

> > what

> > > he did at school, who he played with, etc. sometimes

> inconsistent,

> > > but I'll take it any day. He is now asking some questions and

> > able

> > > to talk about events in full sentences. All his therapists are

> > blown

> > > away by the improvements, even his teachers, but sadly, these

> > > improvements are relatively new and school is ending. We still

> > have

> > > an uphill battle with school placement, since they don't seem

to

> > > understand the true meaning/function of inclusion. No matter

> what

> > > you say or do, if the kid " does not fit the standard mold " ,

they

> > just

> > > don't know what to do--and of course, these are professionals

who

> > > supposedly know what they are doing... Too long of a

complicated

> > > story that will continue to haunt me. So, I am hoping to see

> even

> > > greater improvements throughout the summer, so things may be

> > slightly

> > > easier for next school year. Anyway, going back to the OLE, for

> > us,

> > > it's paid off to take it slow adding Virastop and sticking with

> > it.

> > > He has continued to surprise us! You can check on the files

> > section

> > > and you may find a somewhat recent post of mine explaining the

> > gains

> > > we have seen with OLE/Virastop. My child did take Valtrex last

> > year

> > > (along with Diflucan), but it was pretty rough, and behaviors

> were

> > > quite unbearable, especially when we had not seen so many

> > behaviors

> > > like that from him for years... With the OLE/Virastop we DID

see

> > > behaviors that were somewhat unbearable, but he seems to have

now

> > > levelled-off and they are mostly gone. We are getting ready to

> > > increase dosaging again to see what happens. I hope this helps--

> > hang

> > > in there!

> > >

> >

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

>Any ideas?

My wife likes uva ursi but it is something that you cannot use for

extended periods of time, Oil of Oregano, Candex, Candidase are some

other options. Find out what works for your child.

ALSO, I believe dividing the OLE dosing over three times a day is

key. Just as with Valtrex. A constant steady stream is the way to

go.

Thanks to the others that posted their experiences here. That helps

others believe that my experiences with tow of my kids were not just

a fluke.

>

> > How long have you been using OLE, and have you seen any gains at

> > all? How old is your daughter, and have you had any rashes or

> > anything that were signs of healing regression? What are you

using

> > for yeast control since she does not tolerate Rx antifungals?

If

> > your daughter is really yeasty, it may be masking her gains. My

son

> > appeared almost in a drunken state until we got the yeast under

> > control. We were late in adding the yeast killers, and it was

> > extremely bad.

>

[Guest guest]

>Any ideas?

My wife likes uva ursi but it is something that you cannot use for

extended periods of time, Oil of Oregano, Candex, Candidase are some

other options. Find out what works for your child.

ALSO, I believe dividing the OLE dosing over three times a day is

key. Just as with Valtrex. A constant steady stream is the way to

go.

Thanks to the others that posted their experiences here. That helps

others believe that my experiences with tow of my kids were not just

a fluke.

>

> > How long have you been using OLE, and have you seen any gains at

> > all? How old is your daughter, and have you had any rashes or

> > anything that were signs of healing regression? What are you

using

> > for yeast control since she does not tolerate Rx antifungals?

If

> > your daughter is really yeasty, it may be masking her gains. My

son

> > appeared almost in a drunken state until we got the yeast under

> > control. We were late in adding the yeast killers, and it was

> > extremely bad.

>

[Guest guest]

Hi, My name is and I have not really written much into this board. I did want to say, briefly, though that we had a good experience with OLE, although it has happened by acident. I purchased Yeast Aid from Kirkman's and it had OLE in it, but I had no idea what OLE was and what it did. We have been taking it for two weeks with AWFUL yeast, thrush, diaper rash, and well, stimfest, as usual though. But then the virus 'broke' after about a week which manifested first in a rash and then some vomiting and diarhea was the end of it. The gain we saw immidiately when while on Yeast Aid my 4 year old's ASD son's vertical stims changed to horizontal ones, and they were just not as desperate. I mean, my son wasn't as desperate, so perhaps his sensory needs changed/lessened with OLE? I was so encouraged by what I have seen that I started using OLE in smaller doses once my Yeast Aid

ran out. I thought I was doing a good yeast protocol at the time, but now I know it wasn't enough. I am still not where I need to be when controlling yeast.... anyhow, things got a bit convoluded with this next antiviral attack as it was the very beginning of the allergy season and my son started having these terrible allergy like symptoms, but it could have been viral, you'll never know. I am talking about 2 months ago when we went on vacation and the allergy-related eye rubbing only stopped 2 weeks ago....anyhow, i though it may have been allergy related or bacterial or viral and at that point I did not feel that I had a good understanding of what was going on so I took out the OLE and the GSE for a while. But what I did see while on OLE this second time (for about 3 weeks): my son's been happy and more energetic than before. he began showing an enourmous interest in drawing and watching anything drawn. Lining up horizontally but in very very smart and creative ways, not

stereotypically like before. Eating was amazing. It still is, but had not been, before. He discovered his hands and started counting his fingers. He discovered faces and parts of the face and began filling in a face when it was drawn. He had done none of this at all prior to OLE. , I know we have talked about this when we met, but I just wanted to say that in a simiral way than you I have had wonderful results with OLE alone. I only discontinued the therapy because I wanted to focus on yeast before and basic supplementation and chelation first, but I am planning to revisit the issue in August. HTH someone, scottshoe11 <shoemaker@...> wrote: >Any ideas?My wife likes uva ursi but it is something that you cannot use for extended periods of time, Oil of Oregano, Candex, Candidase are some other options. Find out what works for your child.ALSO, I believe dividing the OLE dosing over three times a day is key. Just as with Valtrex. A constant steady stream is the way to go.Thanks to the others that posted their experiences here. That helps others believe that my experiences with tow of my kids were not just a fluke.> > > How long have you been using OLE, and have you seen any gains at > > all? How old is your daughter, and have you had any rashes or > > anything that were signs of healing regression? What are you using > > for yeast control since she does not tolerate Rx antifungals? If > > your daughter is really yeasty, it may be masking her gains. My son > > appeared almost in a drunken state

until we got the yeast under > > control. We were late in adding the yeast killers, and it was > > extremely bad.> __________________________________________________

[Guest guest]

Hi, My name is and I have not really written much into this board. I did want to say, briefly, though that we had a good experience with OLE, although it has happened by acident. I purchased Yeast Aid from Kirkman's and it had OLE in it, but I had no idea what OLE was and what it did. We have been taking it for two weeks with AWFUL yeast, thrush, diaper rash, and well, stimfest, as usual though. But then the virus 'broke' after about a week which manifested first in a rash and then some vomiting and diarhea was the end of it. The gain we saw immidiately when while on Yeast Aid my 4 year old's ASD son's vertical stims changed to horizontal ones, and they were just not as desperate. I mean, my son wasn't as desperate, so perhaps his sensory needs changed/lessened with OLE? I was so encouraged by what I have seen that I started using OLE in smaller doses once my Yeast Aid

ran out. I thought I was doing a good yeast protocol at the time, but now I know it wasn't enough. I am still not where I need to be when controlling yeast.... anyhow, things got a bit convoluded with this next antiviral attack as it was the very beginning of the allergy season and my son started having these terrible allergy like symptoms, but it could have been viral, you'll never know. I am talking about 2 months ago when we went on vacation and the allergy-related eye rubbing only stopped 2 weeks ago....anyhow, i though it may have been allergy related or bacterial or viral and at that point I did not feel that I had a good understanding of what was going on so I took out the OLE and the GSE for a while. But what I did see while on OLE this second time (for about 3 weeks): my son's been happy and more energetic than before. he began showing an enourmous interest in drawing and watching anything drawn. Lining up horizontally but in very very smart and creative ways, not

stereotypically like before. Eating was amazing. It still is, but had not been, before. He discovered his hands and started counting his fingers. He discovered faces and parts of the face and began filling in a face when it was drawn. He had done none of this at all prior to OLE. , I know we have talked about this when we met, but I just wanted to say that in a simiral way than you I have had wonderful results with OLE alone. I only discontinued the therapy because I wanted to focus on yeast before and basic supplementation and chelation first, but I am planning to revisit the issue in August. HTH someone, scottshoe11 <shoemaker@...> wrote: >Any ideas?My wife likes uva ursi but it is something that you cannot use for extended periods of time, Oil of Oregano, Candex, Candidase are some other options. Find out what works for your child.ALSO, I believe dividing the OLE dosing over three times a day is key. Just as with Valtrex. A constant steady stream is the way to go.Thanks to the others that posted their experiences here. That helps others believe that my experiences with tow of my kids were not just a fluke.> > > How long have you been using OLE, and have you seen any gains at > > all? How old is your daughter, and have you had any rashes or > > anything that were signs of healing regression? What are you using > > for yeast control since she does not tolerate Rx antifungals? If > > your daughter is really yeasty, it may be masking her gains. My son > > appeared almost in a drunken state

until we got the yeast under > > control. We were late in adding the yeast killers, and it was > > extremely bad.> __________________________________________________