Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hello everyone, Thank you for allowing me to join this group. I am the mother of two NT children who have heavy metal (and viral?) health issues. My 7 year old son has undiagnosed ADD/ADHD. We have been seeing a DAN doctor since December 2005. We tried diet, supplements, etc before testing for metals. We did have health improvements with these approaches, but no effect on his attention issues. In fact, we saw it get worse this winter. Our DAN doctor then recommended a hair and urine heavy metals test. His hair test showed no mercury and his urine test showed lead (we did a low dosage DMSA challenge test.) We are now in our first week of chelation. I have read through your posts, downloaded the videos and radio interviews. I am not sure if my DAN doctor will be willing to try the MB 12 spray. I know that he would want information on it if he hasn't heard about the results. Where should I direct him if he has questions? I would prefer to bring in literature for him to read too. In your interview with Autism One Stan, you mentioned your suspition that there may be a connection between viruses and peoples ability to effectively eliminate heavy metals, especially mercury. When I heard this, it made sense to me. I have been concerned about viral issues with my son for years. He has had his bouts with warts, skin fungus, constipation etc. But he also has had permanent swollen lymph nodes on his neck and under his arms for years. My concerns have always been dismissed by pediatricians and even our DAN doctor. He said they were probably calcification. I do want to continue with the chelation, but I am wondering what you would recommend for treating his ADD. Should I start with the MB12 or pursuing my viral concerns? Also, I have noticed what I would describe as regression in my son every winter (we live in Minnesota). I first noticed it when he was in preschool and the pattern continues every year. Our DAN doctor tested him for vitamin D deficiency this winter, but his levels were normal. His school testing showed decreased scores in the winter months with his reading and also attention issues. He also becomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven't found any other parent or doctor who has been aware of this in other kids. Have any of you experienced this? Thank you so much for taking the time to respond to my questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hello everyone, Thank you for allowing me to join this group. I am the mother of two NT children who have heavy metal (and viral?) health issues. My 7 year old son has undiagnosed ADD/ADHD. We have been seeing a DAN doctor since December 2005. We tried diet, supplements, etc before testing for metals. We did have health improvements with these approaches, but no effect on his attention issues. In fact, we saw it get worse this winter. Our DAN doctor then recommended a hair and urine heavy metals test. His hair test showed no mercury and his urine test showed lead (we did a low dosage DMSA challenge test.) We are now in our first week of chelation. I have read through your posts, downloaded the videos and radio interviews. I am not sure if my DAN doctor will be willing to try the MB 12 spray. I know that he would want information on it if he hasn't heard about the results. Where should I direct him if he has questions? I would prefer to bring in literature for him to read too. In your interview with Autism One Stan, you mentioned your suspition that there may be a connection between viruses and peoples ability to effectively eliminate heavy metals, especially mercury. When I heard this, it made sense to me. I have been concerned about viral issues with my son for years. He has had his bouts with warts, skin fungus, constipation etc. But he also has had permanent swollen lymph nodes on his neck and under his arms for years. My concerns have always been dismissed by pediatricians and even our DAN doctor. He said they were probably calcification. I do want to continue with the chelation, but I am wondering what you would recommend for treating his ADD. Should I start with the MB12 or pursuing my viral concerns? Also, I have noticed what I would describe as regression in my son every winter (we live in Minnesota). I first noticed it when he was in preschool and the pattern continues every year. Our DAN doctor tested him for vitamin D deficiency this winter, but his levels were normal. His school testing showed decreased scores in the winter months with his reading and also attention issues. He also becomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven't found any other parent or doctor who has been aware of this in other kids. Have any of you experienced this? Thank you so much for taking the time to respond to my questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 , The following was written by Stan: How to get started A simple strategy is to first decision about your antifungal strategy. Personally I believe the safest, simplest and most effective agents for this is using oral Diflucan, or Nizoral (and I sometimes mention amphotericin . They are very effective and they have a proven track record of safety to not be relatively non-toxic. Others opt to try naturals and some have success with products like Candex, or Caprilic Acid, Biotin, Grape Seed Extract (GSE) and a growing list of things that I will put in my introduction letter I will hopefully finish this weekend. Personally, if I was just getting started today, based on my personal philosophy of going what is most effective and not caring what the administration was, meaning I don't mind using a medicine as long as it's one that is science based, safe, proven, non-toxic, and effective, then I would start with either Diflucan or Nizoral (or my third choice Amphotericin . Additionally, there is recent research that shows that these medicines are helping a large set of our kids who have testosterone issues, and I won't get into the details in this post, but normalizing testosterone seems to be a major factor in lowering bacteria levels, raising glutathione levels and this activity may be a very important element of a good portion of our children's recovery. So bascially, IMO, you are safely covering two bases with one therapy. If you are one of those folks who wants to go all natural, and don't mind the risk that some of the naturals may not work as well for your child, then exploring the list of naturals may make sense to you. I feel we will come up with a list of naturals to use and figure out what works best for what child, but right now it's a bit of a trial and error scenario, but an important one because if we can figure it out it will save a lot of people money and headaches in dealing with doctors... Rx's etc. But, again... today if I was just getting started I would go with Diflucan or Nizoral. Next is the antiviral agent. After a lot of thinking... today I believe the place to start if you can afford it or have insurance is Valtrex. While we have seen gains with natural agents, we do not have more than handful of possible recoveries from them yet. Yes, we have a growing list of improvements, but comparatively I have 50 pages of children who have greatly improved or recovered from the use of Valtex. My son being one of them. He continually improved on Valtrex and was off the spectrum in a matter of months. He was on Valtrex for a total of 9 months and has been free of any biomedical therapies for more than year now. And this was a metals toxic child with physical and behavioral impairments, so he not only recovered virally but he also detoxed and cleared his gut issues in a more natural way, through antiviral therapy. In the last few months we've confirmed that there is a metals dumping effect with Valtrex for at least some people, my son was one, we have test results of before and after on others. We also know that Valtrex modulated adenosine. Many of our kids have high or low adenosine levels and prior to Dr. Sid Baker publishing his study results about acyclovir and adenosine, we didn't have another therapy for this. Valtrex quickly converts into acyclovir, but the added values of Valtrex is that it is less toxic, more bioavailable and it crosses the blood brain barrier, which is where our kids often have inflammation, (according to the 's Hopkins study that came out last year and also mentioned recently in Time Magazine). Both Valtrex and the Naturals often result in what we call a healing-regression, which is a period of time when the child is healing but looks like they are regressing. It is similar to a die off effect, but at the same time we believe there is metals detox going on as well as immune system and metabolic restoration from the methylation changes and the lessening of the viral load. There also seems to be an increase in fungus during antiviral therapy and initially there is probably a kill off of this new fungus. The process is often greatly lessened by having the antifungal in place prior to starting the antiviral. This healing-regression typically lasts 20 to 40 days. Some folks also report never see a regression and only see gains... A SMALLER MINORITY of folks experience the regression for more than 40 days and folks in that situation often go to a lower dosage, take a break and return later, or possibly the best option move to another agent like Famvir or Acyclovir which seem to work more slowly and then try Valtrex again after a period of time. We've seen some nice posts from parents who worked through really difficult cases with this strategy and I applaud them. What you don't want to IMO, is try an agent like Famvir or Acyclovir first, because you may trigger the virus to mutate or build a bit of resistance (this is just my observation). Lastly, some of these folks who have had a healing regression longer than 40 days might move off of Valtrex at that point, switch to an Natural like OLE or Virastop for while and then move back to Valtrex (or try both) if their child doesn't have a full recovery with the Natural (which I have not seen a report of a recovery from a natural yet... although we've seen nice improvements). After the healing-regression and the typical gains we see thereafter, if you see consistent gains that look like you are recovery bound, like in the case of my son, I would not change anything. If you see gains and then a plateau, I would consider ADDING a natural like OLE. Then if you continue to see gains I would not change anything or I might try adding Virastop and seeing what happens. One you have this part of your viral strategy under control, the next step would be to consider therapies that flush out Measles virus, which include a two day High Dose Vitamin A trial, and then Lauricidin. The group (and hopefully your good DAN! doc) will help you with the nuances of each strategy, but I think this is a good framework to start with. I'm not a doctor. I'm not a PhD., but I do have the unique perspective of having the position of reading the thousands of posts and hundreds of trials from this group, and also of having a recovered child. Thank you for your question. It helped me clear up some of my thinking and I'll use some of this post in my framework for a "How to get started" document. Welcome, good luck, and keep us posted on your progress and questions. All the best, - Stan Comfort <lisamcomfort@...> wrote: Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 , The following was written by Stan: How to get started A simple strategy is to first decision about your antifungal strategy. Personally I believe the safest, simplest and most effective agents for this is using oral Diflucan, or Nizoral (and I sometimes mention amphotericin . They are very effective and they have a proven track record of safety to not be relatively non-toxic. Others opt to try naturals and some have success with products like Candex, or Caprilic Acid, Biotin, Grape Seed Extract (GSE) and a growing list of things that I will put in my introduction letter I will hopefully finish this weekend. Personally, if I was just getting started today, based on my personal philosophy of going what is most effective and not caring what the administration was, meaning I don't mind using a medicine as long as it's one that is science based, safe, proven, non-toxic, and effective, then I would start with either Diflucan or Nizoral (or my third choice Amphotericin . Additionally, there is recent research that shows that these medicines are helping a large set of our kids who have testosterone issues, and I won't get into the details in this post, but normalizing testosterone seems to be a major factor in lowering bacteria levels, raising glutathione levels and this activity may be a very important element of a good portion of our children's recovery. So bascially, IMO, you are safely covering two bases with one therapy. If you are one of those folks who wants to go all natural, and don't mind the risk that some of the naturals may not work as well for your child, then exploring the list of naturals may make sense to you. I feel we will come up with a list of naturals to use and figure out what works best for what child, but right now it's a bit of a trial and error scenario, but an important one because if we can figure it out it will save a lot of people money and headaches in dealing with doctors... Rx's etc. But, again... today if I was just getting started I would go with Diflucan or Nizoral. Next is the antiviral agent. After a lot of thinking... today I believe the place to start if you can afford it or have insurance is Valtrex. While we have seen gains with natural agents, we do not have more than handful of possible recoveries from them yet. Yes, we have a growing list of improvements, but comparatively I have 50 pages of children who have greatly improved or recovered from the use of Valtex. My son being one of them. He continually improved on Valtrex and was off the spectrum in a matter of months. He was on Valtrex for a total of 9 months and has been free of any biomedical therapies for more than year now. And this was a metals toxic child with physical and behavioral impairments, so he not only recovered virally but he also detoxed and cleared his gut issues in a more natural way, through antiviral therapy. In the last few months we've confirmed that there is a metals dumping effect with Valtrex for at least some people, my son was one, we have test results of before and after on others. We also know that Valtrex modulated adenosine. Many of our kids have high or low adenosine levels and prior to Dr. Sid Baker publishing his study results about acyclovir and adenosine, we didn't have another therapy for this. Valtrex quickly converts into acyclovir, but the added values of Valtrex is that it is less toxic, more bioavailable and it crosses the blood brain barrier, which is where our kids often have inflammation, (according to the 's Hopkins study that came out last year and also mentioned recently in Time Magazine). Both Valtrex and the Naturals often result in what we call a healing-regression, which is a period of time when the child is healing but looks like they are regressing. It is similar to a die off effect, but at the same time we believe there is metals detox going on as well as immune system and metabolic restoration from the methylation changes and the lessening of the viral load. There also seems to be an increase in fungus during antiviral therapy and initially there is probably a kill off of this new fungus. The process is often greatly lessened by having the antifungal in place prior to starting the antiviral. This healing-regression typically lasts 20 to 40 days. Some folks also report never see a regression and only see gains... A SMALLER MINORITY of folks experience the regression for more than 40 days and folks in that situation often go to a lower dosage, take a break and return later, or possibly the best option move to another agent like Famvir or Acyclovir which seem to work more slowly and then try Valtrex again after a period of time. We've seen some nice posts from parents who worked through really difficult cases with this strategy and I applaud them. What you don't want to IMO, is try an agent like Famvir or Acyclovir first, because you may trigger the virus to mutate or build a bit of resistance (this is just my observation). Lastly, some of these folks who have had a healing regression longer than 40 days might move off of Valtrex at that point, switch to an Natural like OLE or Virastop for while and then move back to Valtrex (or try both) if their child doesn't have a full recovery with the Natural (which I have not seen a report of a recovery from a natural yet... although we've seen nice improvements). After the healing-regression and the typical gains we see thereafter, if you see consistent gains that look like you are recovery bound, like in the case of my son, I would not change anything. If you see gains and then a plateau, I would consider ADDING a natural like OLE. Then if you continue to see gains I would not change anything or I might try adding Virastop and seeing what happens. One you have this part of your viral strategy under control, the next step would be to consider therapies that flush out Measles virus, which include a two day High Dose Vitamin A trial, and then Lauricidin. The group (and hopefully your good DAN! doc) will help you with the nuances of each strategy, but I think this is a good framework to start with. I'm not a doctor. I'm not a PhD., but I do have the unique perspective of having the position of reading the thousands of posts and hundreds of trials from this group, and also of having a recovered child. Thank you for your question. It helped me clear up some of my thinking and I'll use some of this post in my framework for a "How to get started" document. Welcome, good luck, and keep us posted on your progress and questions. All the best, - Stan Comfort <lisamcomfort@...> wrote: Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 , First of all, welcome! Whenever I read about a parent who has tried many things and they work mildly well or do not work at all I ask them if they have checked their childs testosterone level. In the case of my son, nothing worked well until we got testosterone under control. If you want to know more about this, listen to Dr. Geier: http://www.autismmedia.org/media4.html Good luck.mbcomfort <mcomfort@...> wrote: , (By the way my last name is Comfort!!) Your son sounds like my ADHD NT son. Winter is always hard for him. I think for him it is SAD (seasonal affective disorder) I'm not really sure what that means biochemically in the brain, but he is most affected in January when there is the least amount of sunlight. He used to be on Lexapro before we started biomed. I don't want to return to that again. He just seems more melancholy and less likely to engage with the rest of the family or friends. I believe he, too, is viral. He has had multiple bouts with warts and has moles all over his face and torso. My DAN said this is a viral issue, too. He has had a swollen lymph at the base of his neck ever since I can remember. He sees our DAN for the first time next week and I am anxious to get him on a good protocol. I really want to do an antiviral with all my kids. My oldest three would be considered NT, but now that I have read and learned so much I can see how each has been effected. I have one of my 6 year old twins on nasal MB12. I don't think it is quite as effective as the shot he received in the doc's office the first day, but I do see some improvement in language. I haven't done viral with him yet and he is due to start TD DMSA next weekend. You are at a good group for info! Beth Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 , First of all, welcome! Whenever I read about a parent who has tried many things and they work mildly well or do not work at all I ask them if they have checked their childs testosterone level. In the case of my son, nothing worked well until we got testosterone under control. If you want to know more about this, listen to Dr. Geier: http://www.autismmedia.org/media4.html Good luck.mbcomfort <mcomfort@...> wrote: , (By the way my last name is Comfort!!) Your son sounds like my ADHD NT son. Winter is always hard for him. I think for him it is SAD (seasonal affective disorder) I'm not really sure what that means biochemically in the brain, but he is most affected in January when there is the least amount of sunlight. He used to be on Lexapro before we started biomed. I don't want to return to that again. He just seems more melancholy and less likely to engage with the rest of the family or friends. I believe he, too, is viral. He has had multiple bouts with warts and has moles all over his face and torso. My DAN said this is a viral issue, too. He has had a swollen lymph at the base of his neck ever since I can remember. He sees our DAN for the first time next week and I am anxious to get him on a good protocol. I really want to do an antiviral with all my kids. My oldest three would be considered NT, but now that I have read and learned so much I can see how each has been effected. I have one of my 6 year old twins on nasal MB12. I don't think it is quite as effective as the shot he received in the doc's office the first day, but I do see some improvement in language. I haven't done viral with him yet and he is due to start TD DMSA next weekend. You are at a good group for info! Beth Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi , I would be suprised if a DAN! doctor wouldn't RX MB12 nasal spray at this point. It's been presented at the DAN! Think Tank and several DAN! conferences by both myself and now Dr. Neubrander also includes it in his presentations as another tool to try. Our kids with gut issues often have temperature regulation issues and there is a possibility that the added stress of the cold has something to do with his functioning. For me, heat just took me right off-line. I think that issue alone is a good reason to try MB12 Nasal Spray. As far as the viral/metal relationship, I'm convinced it's real and quite significant. I've never heard of a child with calcified lymphs, but anything is possible... including chronic infection if you ask me... but I'm just one guy. Antiviral therapy is so benign that I think anyone who suspects a viral infection as part of their child's autism should give it a go, espeically since we see metals dumping in so many kids who do antiviral therapy. - Stan > > , > (By the way my last name is Comfort!!) Your son sounds like my ADHD NT son. Winter is always hard for him. I think for him it is SAD (seasonal affective disorder) I'm not really sure what that means biochemically in the brain, but he is most affected in January when there is the least amount of sunlight. He used to be on Lexapro before we started biomed. I don't want to return to that again. He just seems more melancholy and less likely to engage with the rest of the family or friends. I believe he, too, is viral. He has had multiple bouts with warts and has moles all over his face and torso. My DAN said this is a viral issue, too. He has had a swollen lymph at the base of his neck ever since I can remember. He sees our DAN for the first time next week and I am anxious to get him on a good protocol. I really want to do an antiviral with all my kids. My oldest three would be considered NT, but now that I have read and learned so much I can see how each has been effected. > I have one of my 6 year old twins on nasal MB12. I don't think it is quite as effective as the shot he received in the doc's office the first day, but I do see some improvement in language. I haven't done viral with him yet and he is due to start TD DMSA next weekend. > You are at a good group for info! > Beth > Re: New member - ADD/ADHD questions > > > > Hello everyone, > Thank you for allowing me to join this group. I am > the mother of two NT children who have heavy metal > (and viral?) health issues. My 7 year old son has > undiagnosed ADD/ADHD. We have been seeing a DAN > doctor since December 2005. We tried diet, > supplements, etc before testing for metals. We did > have health improvements with these approaches, but no > effect on his attention issues. In fact, we saw it > get worse this winter. Our DAN doctor then > recommended a hair and urine heavy metals test. His > hair test showed no mercury and his urine test showed > lead (we did a low dosage DMSA challenge test.) We > are now in our first week of chelation. > > I have read through your posts, downloaded the videos > and radio interviews. I am not sure if my DAN doctor > will be willing to try the MB 12 spray. I know that > he would want information on it if he hasn't heard > about the results. Where should I direct him if he > has questions? I would prefer to bring in literature > for him to read too. > > In your interview with Autism One Stan, you mentioned > your suspition that there may be a connection between > viruses and peoples ability to effectively eliminate > heavy metals, especially mercury. When I heard this, > it made sense to me. I have been concerned about > viral issues with my son for years. He has had his > bouts with warts, skin fungus, constipation etc. But > he also has had permanent swollen lymph nodes on his > neck and under his arms for years. My concerns have > always been dismissed by pediatricians and even our > DAN doctor. He said they were probably calcification. > > > I do want to continue with the chelation, but I am > wondering what you would recommend for treating his > ADD. Should I start with the MB12 or pursuing my > viral concerns? > > Also, I have noticed what I would describe as > regression in my son every winter (we live in > Minnesota). I first noticed it when he was in > preschool and the pattern continues every year. Our > DAN doctor tested him for vitamin D deficiency this > winter, but his levels were normal. His school > testing showed decreased scores in the winter months > with his reading and also attention issues. He also > becomes more weepy and is easily frustrated. > This is one mystery I hope to find answers. I haven't > found any other parent or doctor who has been aware of > this in other kids. Have any of you experienced this? > > Thank you so much for taking the time to respond to my > questions. > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi , I would be suprised if a DAN! doctor wouldn't RX MB12 nasal spray at this point. It's been presented at the DAN! Think Tank and several DAN! conferences by both myself and now Dr. Neubrander also includes it in his presentations as another tool to try. Our kids with gut issues often have temperature regulation issues and there is a possibility that the added stress of the cold has something to do with his functioning. For me, heat just took me right off-line. I think that issue alone is a good reason to try MB12 Nasal Spray. As far as the viral/metal relationship, I'm convinced it's real and quite significant. I've never heard of a child with calcified lymphs, but anything is possible... including chronic infection if you ask me... but I'm just one guy. Antiviral therapy is so benign that I think anyone who suspects a viral infection as part of their child's autism should give it a go, espeically since we see metals dumping in so many kids who do antiviral therapy. - Stan > > , > (By the way my last name is Comfort!!) Your son sounds like my ADHD NT son. Winter is always hard for him. I think for him it is SAD (seasonal affective disorder) I'm not really sure what that means biochemically in the brain, but he is most affected in January when there is the least amount of sunlight. He used to be on Lexapro before we started biomed. I don't want to return to that again. He just seems more melancholy and less likely to engage with the rest of the family or friends. I believe he, too, is viral. He has had multiple bouts with warts and has moles all over his face and torso. My DAN said this is a viral issue, too. He has had a swollen lymph at the base of his neck ever since I can remember. He sees our DAN for the first time next week and I am anxious to get him on a good protocol. I really want to do an antiviral with all my kids. My oldest three would be considered NT, but now that I have read and learned so much I can see how each has been effected. > I have one of my 6 year old twins on nasal MB12. I don't think it is quite as effective as the shot he received in the doc's office the first day, but I do see some improvement in language. I haven't done viral with him yet and he is due to start TD DMSA next weekend. > You are at a good group for info! > Beth > Re: New member - ADD/ADHD questions > > > > Hello everyone, > Thank you for allowing me to join this group. I am > the mother of two NT children who have heavy metal > (and viral?) health issues. My 7 year old son has > undiagnosed ADD/ADHD. We have been seeing a DAN > doctor since December 2005. We tried diet, > supplements, etc before testing for metals. We did > have health improvements with these approaches, but no > effect on his attention issues. In fact, we saw it > get worse this winter. Our DAN doctor then > recommended a hair and urine heavy metals test. His > hair test showed no mercury and his urine test showed > lead (we did a low dosage DMSA challenge test.) We > are now in our first week of chelation. > > I have read through your posts, downloaded the videos > and radio interviews. I am not sure if my DAN doctor > will be willing to try the MB 12 spray. I know that > he would want information on it if he hasn't heard > about the results. Where should I direct him if he > has questions? I would prefer to bring in literature > for him to read too. > > In your interview with Autism One Stan, you mentioned > your suspition that there may be a connection between > viruses and peoples ability to effectively eliminate > heavy metals, especially mercury. When I heard this, > it made sense to me. I have been concerned about > viral issues with my son for years. He has had his > bouts with warts, skin fungus, constipation etc. But > he also has had permanent swollen lymph nodes on his > neck and under his arms for years. My concerns have > always been dismissed by pediatricians and even our > DAN doctor. He said they were probably calcification. > > > I do want to continue with the chelation, but I am > wondering what you would recommend for treating his > ADD. Should I start with the MB12 or pursuing my > viral concerns? > > Also, I have noticed what I would describe as > regression in my son every winter (we live in > Minnesota). I first noticed it when he was in > preschool and the pattern continues every year. Our > DAN doctor tested him for vitamin D deficiency this > winter, but his levels were normal. His school > testing showed decreased scores in the winter months > with his reading and also attention issues. He also > becomes more weepy and is easily frustrated. > This is one mystery I hope to find answers. I haven't > found any other parent or doctor who has been aware of > this in other kids. Have any of you experienced this? > > Thank you so much for taking the time to respond to my > questions. > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 , Could the regression be due to mold or allergies? I grew up in MI and got very ill in the Winter. I had severe childhood asthma. They figured out when I was 15 that I was allergic to the Xmas tree. I was able to stop going to the hospital on Xmas eve after we started using an artifical tree. It was the mold on the tree that would come out after the tree was warmed by being in the house. Also, with the snow and the house closed up, I think there is just more mold in general in the Winter. Do you use non-toxic cleaning agents? No feathers in bed or pillows? Some people buy organic mattresses. Air purifier in the bedroom may help. Perhaps dealing with allergens if you haven't yet may help your son in the winter. I figured out a few years ago what probably triggered my asthma was dairy, but if your son is GFCF that wouldn't be an issue. Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 , Could the regression be due to mold or allergies? I grew up in MI and got very ill in the Winter. I had severe childhood asthma. They figured out when I was 15 that I was allergic to the Xmas tree. I was able to stop going to the hospital on Xmas eve after we started using an artifical tree. It was the mold on the tree that would come out after the tree was warmed by being in the house. Also, with the snow and the house closed up, I think there is just more mold in general in the Winter. Do you use non-toxic cleaning agents? No feathers in bed or pillows? Some people buy organic mattresses. Air purifier in the bedroom may help. Perhaps dealing with allergens if you haven't yet may help your son in the winter. I figured out a few years ago what probably triggered my asthma was dairy, but if your son is GFCF that wouldn't be an issue. Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Comfort Sent: Thursday, June 22, 2006 2:14 PM mb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone, Thank you for allowing me to join this group. I am the mother of two NT children who have heavy metal (and viral?) health issues. My 7 year old son has undiagnosed ADD/ADHD. We have been seeing a DAN doctor since December 2005. We tried diet, supplements, etc before testing for metals. We did have health improvements with these approaches, but no effect on his attention issues. In fact, we saw it get worse this winter. Our DAN doctor then recommended a hair and urine heavy metals test. His hair test showed no mercury and his urine test showed lead (we did a low dosage DMSA challenge test.) We are now in our first week of chelation. I have read through your posts, downloaded the videos and radio interviews. I am not sure if my DAN doctor will be willing to try the MB 12 spray. I know that he would want information on it if he hasn't heard about the results. Where should I direct him if he has questions? I would prefer to bring in literature for him to read too. In your interview with Autism One Stan, you mentioned your suspition that there may be a connection between viruses and peoples ability to effectively eliminate heavy metals, especially mercury. When I heard this, it made sense to me. I have been concerned about viral issues with my son for years. He has had his bouts with warts, skin fungus, constipation etc. But he also has had permanent swollen lymph nodes on his neck and under his arms for years. My concerns have always been dismissed by pediatricians and even our DAN doctor. He said they were probably calcification. I do want to continue with the chelation, but I am wondering what you would recommend for treating his ADD. Should I start with the MB12 or pursuing my viral concerns? Also, I have noticed what I would describe as regression in my son every winter (we live in Minnesota). I first noticed it when he was in preschool and the pattern continues every year. Our DAN doctor tested him for vitamin D deficiency this winter, but his levels were normal. His school testing showed decreased scores in the winter months with his reading and also attention issues. He also becomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven't found any other parent or doctor who has been aware of this in other kids. Have any of you experienced this? Thank you so much for taking the time to respond to my questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Comfort Sent: Thursday, June 22, 2006 2:14 PM mb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone, Thank you for allowing me to join this group. I am the mother of two NT children who have heavy metal (and viral?) health issues. My 7 year old son has undiagnosed ADD/ADHD. We have been seeing a DAN doctor since December 2005. We tried diet, supplements, etc before testing for metals. We did have health improvements with these approaches, but no effect on his attention issues. In fact, we saw it get worse this winter. Our DAN doctor then recommended a hair and urine heavy metals test. His hair test showed no mercury and his urine test showed lead (we did a low dosage DMSA challenge test.) We are now in our first week of chelation. I have read through your posts, downloaded the videos and radio interviews. I am not sure if my DAN doctor will be willing to try the MB 12 spray. I know that he would want information on it if he hasn't heard about the results. Where should I direct him if he has questions? I would prefer to bring in literature for him to read too. In your interview with Autism One Stan, you mentioned your suspition that there may be a connection between viruses and peoples ability to effectively eliminate heavy metals, especially mercury. When I heard this, it made sense to me. I have been concerned about viral issues with my son for years. He has had his bouts with warts, skin fungus, constipation etc. But he also has had permanent swollen lymph nodes on his neck and under his arms for years. My concerns have always been dismissed by pediatricians and even our DAN doctor. He said they were probably calcification. I do want to continue with the chelation, but I am wondering what you would recommend for treating his ADD. Should I start with the MB12 or pursuing my viral concerns? Also, I have noticed what I would describe as regression in my son every winter (we live in Minnesota). I first noticed it when he was in preschool and the pattern continues every year. Our DAN doctor tested him for vitamin D deficiency this winter, but his levels were normal. His school testing showed decreased scores in the winter months with his reading and also attention issues. He also becomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven't found any other parent or doctor who has been aware of this in other kids. Have any of you experienced this? Thank you so much for taking the time to respond to my questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. MauirineChap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ComfortSent: Thursday, June 22, 2006 2:14 PMmb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. MauirineChap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ComfortSent: Thursday, June 22, 2006 2:14 PMmb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Maureen,     Is your grandson on Milk Thistle or LL at all? I swear I haven’t slept this well since the MMR. Still working on getting some kind of light therapy in hear, I just found out his biliruben was low. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine Meleck Sent: Friday, June 23, 2006 12:41 PM mb12 valtrex Subject: RE: New member - ADD/ADHD questions , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. Mauirine Chap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Comfort Sent: Thursday, June 22, 2006 2:14 PM mb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone, Thank you for allowing me to join this group. I am the mother of two NT children who have heavy metal (and viral?) health issues. My 7 year old son has undiagnosed ADD/ADHD. We have been seeing a DAN doctor since December 2005. We tried diet, supplements, etc before testing for metals. We did have health improvements with these approaches, but no effect on his attention issues. In fact, we saw it get worse this winter. Our DAN doctor then recommended a hair and urine heavy metals test. His hair test showed no mercury and his urine test showed lead (we did a low dosage DMSA challenge test.) We are now in our first week of chelation. I have read through your posts, downloaded the videos and radio interviews. I am not sure if my DAN doctor will be willing to try the MB 12 spray. I know that he would want information on it if he hasn't heard about the results. Where should I direct him if he has questions? I would prefer to bring in literature for him to read too. In your interview with Autism One Stan, you mentioned your suspition that there may be a connection between viruses and peoples ability to effectively eliminate heavy metals, especially mercury. When I heard this, it made sense to me. I have been concerned about viral issues with my son for years. He has had his bouts with warts, skin fungus, constipation etc. But he also has had permanent swollen lymph nodes on his neck and under his arms for years. My concerns have always been dismissed by pediatricians and even our DAN doctor. He said they were probably calcification. I do want to continue with the chelation, but I am wondering what you would recommend for treating his ADD. Should I start with the MB12 or pursuing my viral concerns? Also, I have noticed what I would describe as regression in my son every winter (we live in Minnesota). I first noticed it when he was in preschool and the pattern continues every year. Our DAN doctor tested him for vitamin D deficiency this winter, but his levels were normal. His school testing showed decreased scores in the winter months with his reading and also attention issues. He also becomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven't found any other parent or doctor who has been aware of this in other kids. Have any of you experienced this? Thank you so much for taking the time to respond to my questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Maureen,     Is your grandson on Milk Thistle or LL at all? I swear I haven’t slept this well since the MMR. Still working on getting some kind of light therapy in hear, I just found out his biliruben was low. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine Meleck Sent: Friday, June 23, 2006 12:41 PM mb12 valtrex Subject: RE: New member - ADD/ADHD questions , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. Mauirine Chap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Comfort Sent: Thursday, June 22, 2006 2:14 PM mb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone, Thank you for allowing me to join this group. I am the mother of two NT children who have heavy metal (and viral?) health issues. My 7 year old son has undiagnosed ADD/ADHD. We have been seeing a DAN doctor since December 2005. We tried diet, supplements, etc before testing for metals. We did have health improvements with these approaches, but no effect on his attention issues. In fact, we saw it get worse this winter. Our DAN doctor then recommended a hair and urine heavy metals test. His hair test showed no mercury and his urine test showed lead (we did a low dosage DMSA challenge test.) We are now in our first week of chelation. I have read through your posts, downloaded the videos and radio interviews. I am not sure if my DAN doctor will be willing to try the MB 12 spray. I know that he would want information on it if he hasn't heard about the results. Where should I direct him if he has questions? I would prefer to bring in literature for him to read too. In your interview with Autism One Stan, you mentioned your suspition that there may be a connection between viruses and peoples ability to effectively eliminate heavy metals, especially mercury. When I heard this, it made sense to me. I have been concerned about viral issues with my son for years. He has had his bouts with warts, skin fungus, constipation etc. But he also has had permanent swollen lymph nodes on his neck and under his arms for years. My concerns have always been dismissed by pediatricians and even our DAN doctor. He said they were probably calcification. I do want to continue with the chelation, but I am wondering what you would recommend for treating his ADD. Should I start with the MB12 or pursuing my viral concerns? Also, I have noticed what I would describe as regression in my son every winter (we live in Minnesota). I first noticed it when he was in preschool and the pattern continues every year. Our DAN doctor tested him for vitamin D deficiency this winter, but his levels were normal. His school testing showed decreased scores in the winter months with his reading and also attention issues. He also becomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven't found any other parent or doctor who has been aware of this in other kids. Have any of you experienced this? Thank you so much for taking the time to respond to my questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 ordered that med by Thorne that was recommended by McCandless for the liver. It should be here today and I will start it. (It does have the milk thistle in it along with some other things). MauirneChap 'n Ali <chapnalli@...> wrote: Maureen, Is your grandson on Milk Thistle or LL at all? I swear I haven’t slept this well since the MMR. Still working on getting some kind of light therapy in hear, I just found out his biliruben was low. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine MeleckSent: Friday, June 23, 2006 12:41 PMmb12 valtrex Subject: RE: New member - ADD/ADHD questions , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. MauirineChap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ComfortSent: Thursday, June 22, 2006 2:14 PMmb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 ordered that med by Thorne that was recommended by McCandless for the liver. It should be here today and I will start it. (It does have the milk thistle in it along with some other things). MauirneChap 'n Ali <chapnalli@...> wrote: Maureen, Is your grandson on Milk Thistle or LL at all? I swear I haven’t slept this well since the MMR. Still working on getting some kind of light therapy in hear, I just found out his biliruben was low. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine MeleckSent: Friday, June 23, 2006 12:41 PMmb12 valtrex Subject: RE: New member - ADD/ADHD questions , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. MauirineChap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ComfortSent: Thursday, June 22, 2006 2:14 PMmb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Maurine, If I’m correct, I think your Grandson also had trouble with calcium supplementation like CJ. Natasa had forwarded me an article at one point in regards to milk thistle helping calcium disregulation. I will try and find it for you. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine Meleck Sent: Friday, June 23, 2006 1:08 PM mb12 valtrex Subject: RE: New member - ADD/ADHD questions ordered that med by Thorne that was recommended by McCandless for the liver. It should be here today and I will start it. (It does have the milk thistle in it along with some other things). Mauirne Chap 'n Ali <chapnalli@...> wrote: Maureen, Is your grandson on Milk Thistle or LL at all? I swear I haven’t slept this well since the MMR. Still working on getting some kind of light therapy in hear, I just found out his biliruben was low. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine Meleck Sent: Friday, June 23, 2006 12:41 PM mb12 valtrex Subject: RE: New member - ADD/ADHD questions , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. Mauirine Chap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Comfort Sent: Thursday, June 22, 2006 2:14 PM mb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone, Thank you for allowing me to join this group. I am the mother of two NT children who have heavy metal (and viral?) health issues. My 7 year old son has undiagnosed ADD/ADHD. We have been seeing a DAN doctor since December 2005. We tried diet, supplements, etc before testing for metals. We did have health improvements with these approaches, but no effect on his attention issues. In fact, we saw it get worse this winter. Our DAN doctor then recommended a hair and urine heavy metals test. His hair test showed no mercury and his urine test showed lead (we did a low dosage DMSA challenge test.) We are now in our first week of chelation. I have read through your posts, downloaded the videos and radio interviews. I am not sure if my DAN doctor will be willing to try the MB 12 spray. I know that he would want information on it if he hasn't heard about the results. Where should I direct him if he has questions? I would prefer to bring in literature for him to read too. In your interview with Autism One Stan, you mentioned your suspition that there may be a connection between viruses and peoples ability to effectively eliminate heavy metals, especially mercury. When I heard this, it made sense to me. I have been concerned about viral issues with my son for years. He has had his bouts with warts, skin fungus, constipation etc. But he also has had permanent swollen lymph nodes on his neck and under his arms for years. My concerns have always been dismissed by pediatricians and even our DAN doctor. He said they were probably calcification. I do want to continue with the chelation, but I am wondering what you would recommend for treating his ADD. Should I start with the MB12 or pursuing my viral concerns? Also, I have noticed what I would describe as regression in my son every winter (we live in Minnesota). I first noticed it when he was in preschool and the pattern continues every year. Our DAN doctor tested him for vitamin D deficiency this winter, but his levels were normal. His school testing showed decreased scores in the winter months with his reading and also attention issues. He also becomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven't found any other parent or doctor who has been aware of this in other kids. Have any of you experienced this? Thank you so much for taking the time to respond to my questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Maurine, If I’m correct, I think your Grandson also had trouble with calcium supplementation like CJ. Natasa had forwarded me an article at one point in regards to milk thistle helping calcium disregulation. I will try and find it for you. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine Meleck Sent: Friday, June 23, 2006 1:08 PM mb12 valtrex Subject: RE: New member - ADD/ADHD questions ordered that med by Thorne that was recommended by McCandless for the liver. It should be here today and I will start it. (It does have the milk thistle in it along with some other things). Mauirne Chap 'n Ali <chapnalli@...> wrote: Maureen, Is your grandson on Milk Thistle or LL at all? I swear I haven’t slept this well since the MMR. Still working on getting some kind of light therapy in hear, I just found out his biliruben was low. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine Meleck Sent: Friday, June 23, 2006 12:41 PM mb12 valtrex Subject: RE: New member - ADD/ADHD questions , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. Mauirine Chap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Comfort Sent: Thursday, June 22, 2006 2:14 PM mb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone, Thank you for allowing me to join this group. I am the mother of two NT children who have heavy metal (and viral?) health issues. My 7 year old son has undiagnosed ADD/ADHD. We have been seeing a DAN doctor since December 2005. We tried diet, supplements, etc before testing for metals. We did have health improvements with these approaches, but no effect on his attention issues. In fact, we saw it get worse this winter. Our DAN doctor then recommended a hair and urine heavy metals test. His hair test showed no mercury and his urine test showed lead (we did a low dosage DMSA challenge test.) We are now in our first week of chelation. I have read through your posts, downloaded the videos and radio interviews. I am not sure if my DAN doctor will be willing to try the MB 12 spray. I know that he would want information on it if he hasn't heard about the results. Where should I direct him if he has questions? I would prefer to bring in literature for him to read too. In your interview with Autism One Stan, you mentioned your suspition that there may be a connection between viruses and peoples ability to effectively eliminate heavy metals, especially mercury. When I heard this, it made sense to me. I have been concerned about viral issues with my son for years. He has had his bouts with warts, skin fungus, constipation etc. But he also has had permanent swollen lymph nodes on his neck and under his arms for years. My concerns have always been dismissed by pediatricians and even our DAN doctor. He said they were probably calcification. I do want to continue with the chelation, but I am wondering what you would recommend for treating his ADD. Should I start with the MB12 or pursuing my viral concerns? Also, I have noticed what I would describe as regression in my son every winter (we live in Minnesota). I first noticed it when he was in preschool and the pattern continues every year. Our DAN doctor tested him for vitamin D deficiency this winter, but his levels were normal. His school testing showed decreased scores in the winter months with his reading and also attention issues. He also becomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven't found any other parent or doctor who has been aware of this in other kids. Have any of you experienced this? Thank you so much for taking the time to respond to my questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Good memory, . I stopped his calcium suplementation completely because he was eating me out of house and home due to chewing on his shirts to the point that they were shreds. Since removing his calcium supplementation he has TOTALLY stopped chewing on them. We go back to Megson(after 3 years of not going) in 2 and a half weeks) and I really need her help. Lab nearby took 8 vials of blood from him yesterday-getting zinc-copper levels, thyroid etc etc inormation as I started chelating today on DMSA/ALA after a very long time of not doing it. He is not growing and we are very worried. Pediatrician made appt for him with an endocrinologist for sept., but i think going to the Medical College of Ga. for this will be waste as they undrstand nothing about hormonal relationship with autism etc. So I am hoping Megson will have some answers for us. Oy vey at this point. MaurineChap 'n Ali <chapnalli@...> wrote: Maurine, If I’m correct, I think your Grandson also had trouble with calcium supplementation like CJ. Natasa had forwarded me an article at one point in regards to milk thistle helping calcium disregulation. I will try and find it for you. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine MeleckSent: Friday, June 23, 2006 1:08 PMmb12 valtrex Subject: RE: New member - ADD/ADHD questions ordered that med by Thorne that was recommended by McCandless for the liver. It should be here today and I will start it. (It does have the milk thistle in it along with some other things). MauirneChap 'n Ali <chapnalli@...> wrote: Maureen, Is your grandson on Milk Thistle or LL at all? I swear I haven’t slept this well since the MMR. Still working on getting some kind of light therapy in hear, I just found out his biliruben was low. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine MeleckSent: Friday, June 23, 2006 12:41 PMmb12 valtrex Subject: RE: New member - ADD/ADHD questions , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. MauirineChap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ComfortSent: Thursday, June 22, 2006 2:14 PMmb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Good memory, . I stopped his calcium suplementation completely because he was eating me out of house and home due to chewing on his shirts to the point that they were shreds. Since removing his calcium supplementation he has TOTALLY stopped chewing on them. We go back to Megson(after 3 years of not going) in 2 and a half weeks) and I really need her help. Lab nearby took 8 vials of blood from him yesterday-getting zinc-copper levels, thyroid etc etc inormation as I started chelating today on DMSA/ALA after a very long time of not doing it. He is not growing and we are very worried. Pediatrician made appt for him with an endocrinologist for sept., but i think going to the Medical College of Ga. for this will be waste as they undrstand nothing about hormonal relationship with autism etc. So I am hoping Megson will have some answers for us. Oy vey at this point. MaurineChap 'n Ali <chapnalli@...> wrote: Maurine, If I’m correct, I think your Grandson also had trouble with calcium supplementation like CJ. Natasa had forwarded me an article at one point in regards to milk thistle helping calcium disregulation. I will try and find it for you. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine MeleckSent: Friday, June 23, 2006 1:08 PMmb12 valtrex Subject: RE: New member - ADD/ADHD questions ordered that med by Thorne that was recommended by McCandless for the liver. It should be here today and I will start it. (It does have the milk thistle in it along with some other things). MauirneChap 'n Ali <chapnalli@...> wrote: Maureen, Is your grandson on Milk Thistle or LL at all? I swear I haven’t slept this well since the MMR. Still working on getting some kind of light therapy in hear, I just found out his biliruben was low. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine MeleckSent: Friday, June 23, 2006 12:41 PMmb12 valtrex Subject: RE: New member - ADD/ADHD questions , you are at least the thrid person i have heard talk about full moon, no sleep nights. I used to think I was nuts when I decided on the connection. We ought to take a poll of all ASD parents on this .My sister goes to a doctor in the winter for SAD and does some type of fake sunlight therapy(it's not a tanning salon ) which helps her, but I forgot exactly what it is and will have to ask her. They treat it like a chemical imbalance. MauirineChap 'n Ali <chapnalli@...> wrote: , My son has always had issues with SAD (winter regression). He also was affected by the full moon (no sleep). With milk thistle we relieved the full moon sleepless nights. He has slightly raised liver enzymes. Don’t ask me how it’s all connected because I am SURE of the correlation but my DAN says it’s really unexplainable unless it’s helping my son’s methylation. I think so many of our kids have liver function issues that need to be resolved. As for the seasonal affect disorder; I was researching what slightly low biliruben levels would indicate (which my son also has) and didn’t seasonal affect disorder come up, saying you could raise biliruben levels with light boxes and sun exposure. Also, it is related to kidney function. I also agree that excessive snow and rain in the spring can cause mold reactions to continue the regression. I think it’s plausible that this year (with all the rain in the northeast) mold exposures cause my 3 kids and myself to develop yeast flares as well as allergic reactions. Not a Dr. but I just wanted to relate all of the things I have been researching for my son in this area. Take care and welcome to the board, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ComfortSent: Thursday, June 22, 2006 2:14 PMmb12 valtrex Subject: Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 , (By the way my last name is Comfort!!) Your son sounds like my ADHD NT son. Winter is always hard for him. I think for him it is SAD (seasonal affective disorder) I'm not really sure what that means biochemically in the brain, but he is most affected in January when there is the least amount of sunlight. He used to be on Lexapro before we started biomed. I don't want to return to that again. He just seems more melancholy and less likely to engage with the rest of the family or friends. I believe he, too, is viral. He has had multiple bouts with warts and has moles all over his face and torso. My DAN said this is a viral issue, too. He has had a swollen lymph at the base of his neck ever since I can remember. He sees our DAN for the first time next week and I am anxious to get him on a good protocol. I really want to do an antiviral with all my kids. My oldest three would be considered NT, but now that I have read and learned so much I can see how each has been effected. I have one of my 6 year old twins on nasal MB12. I don't think it is quite as effective as the shot he received in the doc's office the first day, but I do see some improvement in language. I haven't done viral with him yet and he is due to start TD DMSA next weekend. You are at a good group for info! Beth Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 , (By the way my last name is Comfort!!) Your son sounds like my ADHD NT son. Winter is always hard for him. I think for him it is SAD (seasonal affective disorder) I'm not really sure what that means biochemically in the brain, but he is most affected in January when there is the least amount of sunlight. He used to be on Lexapro before we started biomed. I don't want to return to that again. He just seems more melancholy and less likely to engage with the rest of the family or friends. I believe he, too, is viral. He has had multiple bouts with warts and has moles all over his face and torso. My DAN said this is a viral issue, too. He has had a swollen lymph at the base of his neck ever since I can remember. He sees our DAN for the first time next week and I am anxious to get him on a good protocol. I really want to do an antiviral with all my kids. My oldest three would be considered NT, but now that I have read and learned so much I can see how each has been effected. I have one of my 6 year old twins on nasal MB12. I don't think it is quite as effective as the shot he received in the doc's office the first day, but I do see some improvement in language. I haven't done viral with him yet and he is due to start TD DMSA next weekend. You are at a good group for info! Beth Re: New member - ADD/ADHD questions Hello everyone,Thank you for allowing me to join this group. I amthe mother of two NT children who have heavy metal(and viral?) health issues. My 7 year old son hasundiagnosed ADD/ADHD. We have been seeing a DANdoctor since December 2005. We tried diet,supplements, etc before testing for metals. We didhave health improvements with these approaches, but noeffect on his attention issues. In fact, we saw itget worse this winter. Our DAN doctor thenrecommended a hair and urine heavy metals test. Hishair test showed no mercury and his urine test showedlead (we did a low dosage DMSA challenge test.) Weare now in our first week of chelation.I have read through your posts, downloaded the videosand radio interviews. I am not sure if my DAN doctorwill be willing to try the MB 12 spray. I know thathe would want information on it if he hasn't heardabout the results. Where should I direct him if hehas questions? I would prefer to bring in literaturefor him to read too. In your interview with Autism One Stan, you mentionedyour suspition that there may be a connection betweenviruses and peoples ability to effectively eliminateheavy metals, especially mercury. When I heard this,it made sense to me. I have been concerned aboutviral issues with my son for years. He has had hisbouts with warts, skin fungus, constipation etc. Buthe also has had permanent swollen lymph nodes on hisneck and under his arms for years. My concerns havealways been dismissed by pediatricians and even ourDAN doctor. He said they were probably calcification.I do want to continue with the chelation, but I amwondering what you would recommend for treating hisADD. Should I start with the MB12 or pursuing myviral concerns?Also, I have noticed what I would describe asregression in my son every winter (we live inMinnesota). I first noticed it when he was inpreschool and the pattern continues every year. OurDAN doctor tested him for vitamin D deficiency thiswinter, but his levels were normal. His schooltesting showed decreased scores in the winter monthswith his reading and also attention issues. He alsobecomes more weepy and is easily frustrated. This is one mystery I hope to find answers. I haven'tfound any other parent or doctor who has been aware ofthis in other kids. Have any of you experienced this?Thank you so much for taking the time to respond to myquestions.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
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