Re: Dosing - healing regression- 2nd post

[Guest guest]

Bumping this up...didn't get a response. My guy is having THE WORST

DAY in over 1 year. This is pre-bio-med behavior and his starting

ATEC was 53 and last week went down to 13. Please help with advice!!

>

> Well it seems that from reading the past posts that we are now in a

> healing regression.

>

> Started Valtrex and diflucan 4 weeks ago. First 2 weeks we were on

500

> mg 2 x per day (my son weighs 67 lbs) Saw great gains.

>

> Then the doc upped the dose to 1000mg 2 x per day. Now we've got

the

> croupy cough for 1 week now with runny nose, he also seems more out

of

> control- behavior wise, hyper, etc. A regression from our previous

> gains.

>

> Looking at the posts, it seems we need to figure out how to dose

this 3

> x per day. I'm so lame, I can't figure this out. Should I just

cut

> the 1000mg tabs in half and dose 4 x per day? To my calculations

there

> is no possible way to divide this up and cut these pills out

evenly.

> What is everyone else doing who has an older child?????

>

> Any help would be great?

>

> Tami

>

[Guest guest]

Bumping this up...didn't get a response. My guy is having THE WORST

DAY in over 1 year. This is pre-bio-med behavior and his starting

ATEC was 53 and last week went down to 13. Please help with advice!!

>

> Well it seems that from reading the past posts that we are now in a

> healing regression.

>

> Started Valtrex and diflucan 4 weeks ago. First 2 weeks we were on

500

> mg 2 x per day (my son weighs 67 lbs) Saw great gains.

>

> Then the doc upped the dose to 1000mg 2 x per day. Now we've got

the

> croupy cough for 1 week now with runny nose, he also seems more out

of

> control- behavior wise, hyper, etc. A regression from our previous

> gains.

>

> Looking at the posts, it seems we need to figure out how to dose

this 3

> x per day. I'm so lame, I can't figure this out. Should I just

cut

> the 1000mg tabs in half and dose 4 x per day? To my calculations

there

> is no possible way to divide this up and cut these pills out

evenly.

> What is everyone else doing who has an older child?????

>

> Any help would be great?

>

> Tami

>

[Guest guest]

I'm not sure what you doctor things, so I would take that into consideration,

but at that

weight if that were my child I would dose 500mg three times a day at the most...

but

maybe your doctor knows more than I do about this.

I would take one day off... then go back to 500mg three times a day making sure

there is a

really good antifungal onboard like diflucan or nizoral.

The other option is to press on since you are seeing a croupy cough... the cough

is a good

sign.

I would need more details to give you a specific direction that I would go. How

long has

the regression been? Are there any fungal signs? Are there mixed gains inside

the

regression or is this just a pure regressive looking state? Do you have an

antifungal

onboard?

- Stan

> >

> > Well it seems that from reading the past posts that we are now in a

> > healing regression.

> >

> > Started Valtrex and diflucan 4 weeks ago. First 2 weeks we were on

> 500

> > mg 2 x per day (my son weighs 67 lbs) Saw great gains.

> >

> > Then the doc upped the dose to 1000mg 2 x per day. Now we've got

> the

> > croupy cough for 1 week now with runny nose, he also seems more out

> of

> > control- behavior wise, hyper, etc. A regression from our previous

> > gains.

> >

> > Looking at the posts, it seems we need to figure out how to dose

> this 3

> > x per day. I'm so lame, I can't figure this out. Should I just

> cut

> > the 1000mg tabs in half and dose 4 x per day? To my calculations

> there

> > is no possible way to divide this up and cut these pills out

> evenly.

> > What is everyone else doing who has an older child?????

> >

> > Any help would be great?

> >

> > Tami

> >

>

[Guest guest]

I'm not sure what you doctor things, so I would take that into consideration,

but at that

weight if that were my child I would dose 500mg three times a day at the most...

but

maybe your doctor knows more than I do about this.

I would take one day off... then go back to 500mg three times a day making sure

there is a

really good antifungal onboard like diflucan or nizoral.

The other option is to press on since you are seeing a croupy cough... the cough

is a good

sign.

I would need more details to give you a specific direction that I would go. How

long has

the regression been? Are there any fungal signs? Are there mixed gains inside

the

regression or is this just a pure regressive looking state? Do you have an

antifungal

onboard?

- Stan

> >

> > Well it seems that from reading the past posts that we are now in a

> > healing regression.

> >

> > Started Valtrex and diflucan 4 weeks ago. First 2 weeks we were on

> 500

> > mg 2 x per day (my son weighs 67 lbs) Saw great gains.

> >

> > Then the doc upped the dose to 1000mg 2 x per day. Now we've got

> the

> > croupy cough for 1 week now with runny nose, he also seems more out

> of

> > control- behavior wise, hyper, etc. A regression from our previous

> > gains.

> >

> > Looking at the posts, it seems we need to figure out how to dose

> this 3

> > x per day. I'm so lame, I can't figure this out. Should I just

> cut

> > the 1000mg tabs in half and dose 4 x per day? To my calculations

> there

> > is no possible way to divide this up and cut these pills out

> evenly.

> > What is everyone else doing who has an older child?????

> >

> > Any help would be great?

> >

> > Tami

> >

>

[Guest guest]

Thank you Stan..

Yes we have diflucan at the same time. I have seen some yeasty stuff going on still - little bumps on his butt which is his sign of yeast. He did say he had some redness around the crotch area, but I couldn't see it as a rash.

We saw initial gains in attitude, social, and self-control (temper and his body) in the first 1-1 1/2 weeks of diflucan and valtrex (started them at the same time). Then I ran out of Valtrex for 2 days, saw regression, got the valtrex back and saw improvements. The doc increased to 1000mg 2 x per day. He has been on that dose for 3 weeks now and in the last 2 weeks ago the runny nose and cough started. And the cough is staying. It's kind of a croupy / bronchitis kind of cough. Starting on Friday is when the regression really kicked in and yesterday was the all time worst.

I have Dr. W in CA and he is great about listening to the parents. If you think that 500 mg 3 x would be better for him, then he'll listen. The cough and regression didn't start until we switched to 1000 mg 2 x per day. Previously we were at 500 mg 2 x per day.

He's holding on to his gains academically, but the regression part is a lot of behavioral oh and sensory.

I hope this was enough information to help. Thank you Stan for your response.

Tami

[Guest guest]

Thank you Stan..

Yes we have diflucan at the same time. I have seen some yeasty stuff going on still - little bumps on his butt which is his sign of yeast. He did say he had some redness around the crotch area, but I couldn't see it as a rash.

We saw initial gains in attitude, social, and self-control (temper and his body) in the first 1-1 1/2 weeks of diflucan and valtrex (started them at the same time). Then I ran out of Valtrex for 2 days, saw regression, got the valtrex back and saw improvements. The doc increased to 1000mg 2 x per day. He has been on that dose for 3 weeks now and in the last 2 weeks ago the runny nose and cough started. And the cough is staying. It's kind of a croupy / bronchitis kind of cough. Starting on Friday is when the regression really kicked in and yesterday was the all time worst.

I have Dr. W in CA and he is great about listening to the parents. If you think that 500 mg 3 x would be better for him, then he'll listen. The cough and regression didn't start until we switched to 1000 mg 2 x per day. Previously we were at 500 mg 2 x per day.

He's holding on to his gains academically, but the regression part is a lot of behavioral oh and sensory.

I hope this was enough information to help. Thank you Stan for your response.

Tami

[Guest guest]

We're giving 2 x per day 1000 mg. BUT per DAN doc and due to Stan's suggestion, we are trying 500mg 3 x per day and see what happens.

Yesterday was bad too and today didn't start out horrible, but he's definitely off kilter. Our DAN says not to call it a healing "regression" , call it something like "healing agitation" . Because he's not really regressing and that word puts the fear of God into all of us doesn't it.

Wish me luck, hopefully he'll level out soon. His cough is starting to get better and now he's got some red splotches on his arms.

Tami

[Guest guest]

We're giving 2 x per day 1000 mg. BUT per DAN doc and due to Stan's suggestion, we are trying 500mg 3 x per day and see what happens.

Yesterday was bad too and today didn't start out horrible, but he's definitely off kilter. Our DAN says not to call it a healing "regression" , call it something like "healing agitation" . Because he's not really regressing and that word puts the fear of God into all of us doesn't it.

Wish me luck, hopefully he'll level out soon. His cough is starting to get better and now he's got some red splotches on his arms.

Tami

[Guest guest]

Well...he hasn't lost any of the academic gains that he has gained over the last year. He is just more moody, on edge, ready to tantrum. He even says he doesn't know what's going on with him. He started talking baby talk, when I told him to talk like a 9 yr old, he said "ok fine, I just think it's more fun to be a baby". The cognition is there, I just think he's reverting back a bit, but he knows he's doing it and doesn't know why. Does that make sense??

Tami

[Guest guest]

Well...he hasn't lost any of the academic gains that he has gained over the last year. He is just more moody, on edge, ready to tantrum. He even says he doesn't know what's going on with him. He started talking baby talk, when I told him to talk like a 9 yr old, he said "ok fine, I just think it's more fun to be a baby". The cognition is there, I just think he's reverting back a bit, but he knows he's doing it and doesn't know why. Does that make sense??

Tami

[Guest guest]

> >

> > Well it seems that from reading the past posts that we are now

in a

> > healing regression.

> >

> > Started Valtrex and diflucan 4 weeks ago. First 2 weeks we were

on

> 500

> > mg 2 x per day (my son weighs 67 lbs) Saw great gains.

> >

> > Then the doc upped the dose to 1000mg 2 x per day. Now we've

got

> the

> > croupy cough for 1 week now with runny nose, he also seems more

out

> of

> > control- behavior wise, hyper, etc. A regression from our

previous

> > gains.

> >

> > Looking at the posts, it seems we need to figure out how to dose

> this 3

> > x per day. I'm so lame, I can't figure this out. Should I just

> cut

> > the 1000mg tabs in half and dose 4 x per day? To my

calculations

> there

> > is no possible way to divide this up and cut these pills out

> evenly.

> > What is everyone else doing who has an older child?????

> >

> > Any help would be great?

> >

> > Tami

we have 500mg tablets so 1 and 1/2. i have posted about upping dose

too, my guy is 9 but only 42 pounds. stan said he stayed at 750 the

whole time... maybe go to 1250 mg, two half pills of the 1000mg and

half a 500mg pill to have equal dosing but maybe not so important to

be equal????? sometimes when i cut the pills not exactly in half so

there is variation there! we also had a meltdown day and made me

very on edge about continued regression but we perked up. we had

lessening of seizures but trialling off his seizure med for 3 days

had an episode so still a ways to go with it. i am going to try hard

to stick it out through all the peaks and especially valleys as i

dont want to 2nd guess if i was or wasnt on it long enough...

> >

>

[Guest guest]

> >

> > Well it seems that from reading the past posts that we are now

in a

> > healing regression.

> >

> > Started Valtrex and diflucan 4 weeks ago. First 2 weeks we were

on

> 500

> > mg 2 x per day (my son weighs 67 lbs) Saw great gains.

> >

> > Then the doc upped the dose to 1000mg 2 x per day. Now we've

got

> the

> > croupy cough for 1 week now with runny nose, he also seems more

out

> of

> > control- behavior wise, hyper, etc. A regression from our

previous

> > gains.

> >

> > Looking at the posts, it seems we need to figure out how to dose

> this 3

> > x per day. I'm so lame, I can't figure this out. Should I just

> cut

> > the 1000mg tabs in half and dose 4 x per day? To my

calculations

> there

> > is no possible way to divide this up and cut these pills out

> evenly.

> > What is everyone else doing who has an older child?????

> >

> > Any help would be great?

> >

> > Tami

we have 500mg tablets so 1 and 1/2. i have posted about upping dose

too, my guy is 9 but only 42 pounds. stan said he stayed at 750 the

whole time... maybe go to 1250 mg, two half pills of the 1000mg and

half a 500mg pill to have equal dosing but maybe not so important to

be equal????? sometimes when i cut the pills not exactly in half so

there is variation there! we also had a meltdown day and made me

very on edge about continued regression but we perked up. we had

lessening of seizures but trialling off his seizure med for 3 days

had an episode so still a ways to go with it. i am going to try hard

to stick it out through all the peaks and especially valleys as i

dont want to 2nd guess if i was or wasnt on it long enough...

> >

>

[Guest guest]

What is the current dose you are giving?

Natasa

> > >

> > > Well it seems that from reading the past posts that we are now

> in a

> > > healing regression.

> > >

> > > Started Valtrex and diflucan 4 weeks ago. First 2 weeks we were

> on

> > 500

> > > mg 2 x per day (my son weighs 67 lbs) Saw great gains.

> > >

> > > Then the doc upped the dose to 1000mg 2 x per day. Now we've

> got

> > the

> > > croupy cough for 1 week now with runny nose, he also seems more

> out

> > of

> > > control- behavior wise, hyper, etc. A regression from our

> previous

> > > gains.

> > >

> > > Looking at the posts, it seems we need to figure out how to dose

> > this 3

> > > x per day. I'm so lame, I can't figure this out. Should I just

> > cut

> > > the 1000mg tabs in half and dose 4 x per day? To my

> calculations

> > there

> > > is no possible way to divide this up and cut these pills out

> > evenly.

> > > What is everyone else doing who has an older child?????

> > >

> > > Any help would be great?

> > >

> > > Tami

>

>

> we have 500mg tablets so 1 and 1/2. i have posted about upping dose

> too, my guy is 9 but only 42 pounds. stan said he stayed at 750 the

> whole time... maybe go to 1250 mg, two half pills of the 1000mg and

> half a 500mg pill to have equal dosing but maybe not so important to

> be equal????? sometimes when i cut the pills not exactly in half so

> there is variation there! we also had a meltdown day and made me

> very on edge about continued regression but we perked up. we had

> lessening of seizures but trialling off his seizure med for 3 days

> had an episode so still a ways to go with it. i am going to try hard

> to stick it out through all the peaks and especially valleys as i

> dont want to 2nd guess if i was or wasnt on it long enough...

> > >

> >

>

[Guest guest]

What is the current dose you are giving?

Natasa

> > >

> > > Well it seems that from reading the past posts that we are now

> in a

> > > healing regression.

> > >

> > > Started Valtrex and diflucan 4 weeks ago. First 2 weeks we were

> on

> > 500

> > > mg 2 x per day (my son weighs 67 lbs) Saw great gains.

> > >

> > > Then the doc upped the dose to 1000mg 2 x per day. Now we've

> got

> > the

> > > croupy cough for 1 week now with runny nose, he also seems more

> out

> > of

> > > control- behavior wise, hyper, etc. A regression from our

> previous

> > > gains.

> > >

> > > Looking at the posts, it seems we need to figure out how to dose

> > this 3

> > > x per day. I'm so lame, I can't figure this out. Should I just

> > cut

> > > the 1000mg tabs in half and dose 4 x per day? To my

> calculations

> > there

> > > is no possible way to divide this up and cut these pills out

> > evenly.

> > > What is everyone else doing who has an older child?????

> > >

> > > Any help would be great?

> > >

> > > Tami

>

>

> we have 500mg tablets so 1 and 1/2. i have posted about upping dose

> too, my guy is 9 but only 42 pounds. stan said he stayed at 750 the

> whole time... maybe go to 1250 mg, two half pills of the 1000mg and

> half a 500mg pill to have equal dosing but maybe not so important to

> be equal????? sometimes when i cut the pills not exactly in half so

> there is variation there! we also had a meltdown day and made me

> very on edge about continued regression but we perked up. we had

> lessening of seizures but trialling off his seizure med for 3 days

> had an episode so still a ways to go with it. i am going to try hard

> to stick it out through all the peaks and especially valleys as i

> dont want to 2nd guess if i was or wasnt on it long enough...

> > >

> >

>

[Guest guest]

is 9 and 67 lbs. Our DAN had started him on 500 mg 2 x per day then upped it to 1000mg 2 x per day when we saw good results. Stan had mentioned doing 500 mg 3 x per day and I ran it by our DAN and he agreed to try it for 3 weeks and see.

Just picked up and he got 7 out of 8 stars today ( reward system) Wheewww! He had been getting 3-4 for the last week and when we saw gains was getting 7 or 8 each time which was incredible for him. I hope this is the start of his agitation subsiding!!

Tami

[Guest guest]

is 9 and 67 lbs. Our DAN had started him on 500 mg 2 x per day then upped it to 1000mg 2 x per day when we saw good results. Stan had mentioned doing 500 mg 3 x per day and I ran it by our DAN and he agreed to try it for 3 weeks and see.

Just picked up and he got 7 out of 8 stars today ( reward system) Wheewww! He had been getting 3-4 for the last week and when we saw gains was getting 7 or 8 each time which was incredible for him. I hope this is the start of his agitation subsiding!!

Tami

[Guest guest]

Well day one on the 3 x per day and so far so good. I'm hoping!! I'll let you know once we have a few days under our belt.

Tami

[Guest guest]

Well day one on the 3 x per day and so far so good. I'm hoping!! I'll let you know once we have a few days under our belt.

Tami

[Guest guest]

Do you mean his behaviour is very bad without him 'regressing' in the

sense of having more/stronger autistic symptoms?

Natasa

p.s. fingers crossed!

>

> We're giving 2 x per day 1000 mg. BUT per DAN doc and due to Stan's

> suggestion, we are trying 500mg 3 x per day and see what happens.

>

> Yesterday was bad too and today didn't start out horrible, but he's

> definitely off kilter. Our DAN says not to call it a healing

" regression " , call it

> something like " healing agitation " . Because he's not really

regressing and

> that word puts the fear of God into all of us doesn't it.

>

> Wish me luck, hopefully he'll level out soon. His cough is starting

to get

> better and now he's got some red splotches on his arms.

>

> Tami

>

[Guest guest]

Do you mean his behaviour is very bad without him 'regressing' in the

sense of having more/stronger autistic symptoms?

Natasa

p.s. fingers crossed!

>

> We're giving 2 x per day 1000 mg. BUT per DAN doc and due to Stan's

> suggestion, we are trying 500mg 3 x per day and see what happens.

>

> Yesterday was bad too and today didn't start out horrible, but he's

> definitely off kilter. Our DAN says not to call it a healing

" regression " , call it

> something like " healing agitation " . Because he's not really

regressing and

> that word puts the fear of God into all of us doesn't it.

>

> Wish me luck, hopefully he'll level out soon. His cough is starting

to get

> better and now he's got some red splotches on his arms.

>

> Tami

>

[Guest guest]

Tami,

What is the age and weight of your child? How did you

decide to use 500mg 3xday? My son is 94 pounds and my

DAN is willing to prescirbe valtrex if I get her the

doseage info. Thanks!

--- Tamiduncan@... wrote:

> We're giving 2 x per day 1000 mg. BUT per DAN doc

> and due to Stan's

> suggestion, we are trying 500mg 3 x per day and see

> what happens.

>

> Yesterday was bad too and today didn't start out

> horrible, but he's

> definitely off kilter. Our DAN says not to call it

> a healing " regression " , call it

> something like " healing agitation " . Because he's

> not really regressing and

> that word puts the fear of God into all of us

> doesn't it.

>

> Wish me luck, hopefully he'll level out soon. His

> cough is starting to get

> better and now he's got some red splotches on his

> arms.

>

> Tami

>

__________________________________________________

[Guest guest]

Tami,

What is the age and weight of your child? How did you

decide to use 500mg 3xday? My son is 94 pounds and my

DAN is willing to prescirbe valtrex if I get her the

doseage info. Thanks!

--- Tamiduncan@... wrote:

> We're giving 2 x per day 1000 mg. BUT per DAN doc

> and due to Stan's

> suggestion, we are trying 500mg 3 x per day and see

> what happens.

>

> Yesterday was bad too and today didn't start out

> horrible, but he's

> definitely off kilter. Our DAN says not to call it

> a healing " regression " , call it

> something like " healing agitation " . Because he's

> not really regressing and

> that word puts the fear of God into all of us

> doesn't it.

>

> Wish me luck, hopefully he'll level out soon. His

> cough is starting to get

> better and now he's got some red splotches on his

> arms.

>

> Tami

>

__________________________________________________

[Guest guest]

>

> Well...he hasn't lost any of the academic gains that he has gained

over the

> last year. He is just more moody, on edge, ready to tantrum. He

even says he

> doesn't know what's going on with him. He started talking baby

talk, when I

> told him to talk like a 9 yr old, he said " ok fine, I just think

it's more fun

> to be a baby " . The cognition is there, I just think he's reverting

back a

> bit, but he knows he's doing it and doesn't know why. Does that

make sense??

Tami, we are day 12 on Valtrex and my son is exactly like that: on

the edge all the time, very emotional and impulsive. I was thinking

gut bugs but these are not his classical symptoms of gut bugs. He

also says he cannot control it. Afterward, he says he is sorry he

behaved that way, tears in his eyes. This is very unsusal for him. I

have seen more crying the past week than I have seen in one year!

Let me know if you find something to help with this.

Thanks,

[Guest guest]

>

> Well...he hasn't lost any of the academic gains that he has gained

over the

> last year. He is just more moody, on edge, ready to tantrum. He

even says he

> doesn't know what's going on with him. He started talking baby

talk, when I

> told him to talk like a 9 yr old, he said " ok fine, I just think

it's more fun

> to be a baby " . The cognition is there, I just think he's reverting

back a

> bit, but he knows he's doing it and doesn't know why. Does that

make sense??

Tami, we are day 12 on Valtrex and my son is exactly like that: on

the edge all the time, very emotional and impulsive. I was thinking

gut bugs but these are not his classical symptoms of gut bugs. He

also says he cannot control it. Afterward, he says he is sorry he

behaved that way, tears in his eyes. This is very unsusal for him. I

have seen more crying the past week than I have seen in one year!

Let me know if you find something to help with this.

Thanks,

[Guest guest]

I don't think that sounds like regression, I think it sounds like the same anxiety that most kids go through at this age. My nt sons started asking for baby bottles when they were 9-10, to suck on before bedtime (I let them do it, but offered lots of hugs and quality attention during the day. It passes in about a month). Our kids live in this scary word, and 9 is just about the time when they start to get frightened by TV and gossip at school. If anything, I think your son has made huge emotional gains. Give him a hug for me and please keep him away from TV news programs. Tamiduncan@... wrote: Well...he hasn't lost any of the academic gains that he has gained over the last year. He is just more moody, on edge, ready to tantrum. He even says he doesn't know what's going on with him. He started talking baby talk, when I told him to talk like a 9 yr old, he said "ok fine, I just think it's more fun to be a baby". The cognition is there, I just think he's reverting back a bit, but he knows he's doing it and doesn't know why. Does that make sense?? Tami __________________________________________________