Guest guest Posted March 27, 2006 Report Posted March 27, 2006 I'd like to say I truely feel sorry for you, and hope you find the relief you deserve. I'm sorry for anything I've said here that may have caused you undue stress or negative emotions. None of us likes to be made to look wrong, and this is especially true if we feel we are right. You have my apology, and my commitment to keep my emotions and others feelings in mind when posting. Be well, ChrisJanet <doc_jade@...> wrote: I am sorry that you had bad experiences with western doctors. I said before that I am not a mind reader. But I seem to kind of get that general impression from you. But with my experience with treatment. I actually am feeling better having treatment. My quality of life has became better and I do feel like I can live long enough to see my 10 year old daughter make it to medical school and even become a doctor. I have a excellent doctor who kept me informed and made me a partner in my treatment. We discussed everything even the power of positive thinking,prayer in healing. So my experience with treatment with interferon has been a positive one. Yes the first time I treated I was a non responder. But the second time I was undetectable at 12 weeks, 24 weeks and 48 weeks. Having said that. I understand that your treatment has shown that it worked for you. And I don't think anyone has said anything to the contrary, but this email sounds as if you are debating with Liz. I was the one who wrote the original email. Liz just happened to agree with me. And she just reinforced what someone said earlier in posting. (the shouting from the roof top.) Ya' know they did kind of shout from the rooftops with the peg interon hit the market. People in support groups, real time and internet started talking about the good results they were having with the treatment. Not just the doctors and drug companies, but average folks like me. You know something, I am glad I did the treatment twice. It was for me, to get well, but also for my family. I saw the way my family was grieving for me. I listened to my husband late at night, talking to my oldest daughter about how he would feel if I were to pass on. (She was the one he talked to while he thought I was sleep, about his feelings about this disease. ) Ya know I decided hell or high water, I was going to make it this time. Katy bar the door Janet was going to chase this dragon down, if not into a cure at least beat it into submission so that it could not raise its ugly head. Now having said that. Why am I writing this email, because Liz just went through a ordeal with treatment. And right now I am more than certain that she is hurting a bit. Because once again the virus is rearing its ugly head at one of my sweetest friends Liz. I love you like a red headed step child. But that is one of my children, and I am the mother tiger. And you know what mother tigers and cubs are like. I say give my girl a couple of months so that she can get back into fighting shape before you enter a debate with my cubbette. Okay. Love JanetHunter <us2china2@...> wrote: Liz, except for the word "alternative", which I assume is aimed at everything that is not FDA approved, I would think you were talking about Interferon treatment. False promises being given by doctors carry a lot of weight in America. ie "This is your best hope." without telling you that it might make your life worse. Your recent post said that three times you tried treating, and all it did was worsen your situation. So far there is no cure for HCV, alternative or other. The fact that Interferon based therapy is slightly better than a placebo, hardly qualifies it as a cure. If there were less side effects, it would probably be much more successful. The fact that every patient has to be made aware that the "treatment" has many possible side effects, effectively scares most people into doubting themselves, thier doctors, and the treatment. This fear and doubt most certainly has an effect on the outcome. You've posted information showing the decline in quality of life for HCV patients after treatment. How can doctors prescribe this treatment if they take the hypocratic oath seriously? Maybe they believe what they tell scared patients, maybe they are just less informed than the public wants to believe. Shouted from the rooftops... was Interferon shouted from the rooftops? No, they were marketed into multi million dollar a year positions by drug companies and thier lobbyists. For every person who only believes in "modern" medicine, I hope that when a cure is found, that the drug companies can't buy the patent and bury it so that they can continue treating symptoms and making money. LIke Janet, sometimes I need to vent too. I hope this was not an angry post. Love, Eat well, sleep well, be well! elizabethnv1 <elizabethnv1@...> wrote: Nicely put , there are lots of false cures out there . And a heck of alot of companies that will take advantage of the fact that a person is sick . It's these kinds of false promises that can destroy a persons will to fight the disease . I think that if there was an alternate way to cure hepatitis it would be shouted from the roof tops ! LOL Re: How to unsuscribe Hi Lili I sure wish you wouldnt go and would hang around and talk with us,, but IF you want to unsubscribe,, just go to the page you signed up and click to unsubscribe,, if you really want to and cant figure it out, just email me privately and Ill do it for you,, but I sure hope you re-think it,, hugs jaxlilimera_lilimera <Lilimera@...> wrote: I want to know how to unssucribe fromthis site. Anyone?LiliJackie There are souls in this world which have the gift of finding joy everywhere and of leaving it behind them when they go." -Frederick Faber It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2?min or less. There are souls in this world which have the gift of finding joy everywhere and of leaving it behind them when they go." -Frederick Faber New Messenger with Voice. Call regular phones from your PC and save big. Quote
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