Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Tim, That doesn't sound like it is related to Hep C, that could be a sign of many different things. Heart problems, the way you sleep(type of mattress, pillows, elevation of bed). Even acid reflux problems. Of course my BEST advice is consul your physician. Some things to consider is with this pain is there nausea, a feeling of crushing pain on the chest, sweating, does it radiant down the extremities? These are signs of a heart attack and/or heart disease. If you do have any of the symptoms, call immediately your health care provider. My advice is call your doctor if it is something simple then it can be resolved with and under the care of your doctor. Love JanetHillbilly Tim <knoxweb1@...> wrote: does anyone have pain in left arm between the shoulder and elbow and right shoulder blade on back. Messenger with Voice. PC-to-Phone calls for ridiculously low rates. There are souls in this world which have the gift of finding joy everywhere and of leaving it behind them when they go." -Frederick Faber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 I have found I have pain in the hip joint and shoulder joint that coincides with side I give my self an injection. Since I give myself an the pegintron on Friday nights, the pain lasts until Tuesday. It feels like a deep bone pain and I'm restless and thrash all night long. Can't sleep. I've told my hepatologist about it; I've tried Tylenol, Tylenol 3, Ultracet, Tramadol, and even Oxycontin. NOTHING takes the edge off the pain. I've just learned to live with. It sucks, but that's my demon of the treatment besides dizziness. I'm loaded up enough with drugs, I don't want to become dependent on pain killers. Gav 19 weeks of treatment left to go!!!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Gav, you are brave! I used norco for my pain as it was the only thing besides sitting in the hot tub that would take the edge off my deep bone aches..I found that the neupogen made me hurt even more than the INF. I always liked to do my shots in my bellyfat as it didnt hurt as bad as the thigh. Everyone is different and so you have to find the spot that works best for you. Listen,, when one is treating this kind of pain, its VERY unlikely that you will become dependent on pain meds. The studies show that only ppl who use it for recreation actually get addicted and start with THOSE behaviors from pain meds, unless you use more and you use it longer than needed. My doc told me that there is a difference between addiction and dependency. When you become dependent on medications, you need it to have a normal life, when you are addicted, then you start doing things that you wouldnt normally do in order to get more meds.. maybe he was just giving me an excuse, I dont know..lol.. but because the INF gave me lots of painful autoimmune diseases, I AM dependent on pain meds just in order to get out of bed each day. 19 more shots to go,, you are on your way hon,, good luck and keep us updated as to how you are doing,, we DO care! jaxZ King <gavriella_rachel@...> wrote: I have found I have pain in the hip joint and shoulderjoint that coincides with side I give my self aninjection. Since I give myself an the pegintron onFriday nights, the pain lasts until Tuesday. It feelslike a deep bone pain and I'm restless and thrash allnight long. Can't sleep.I've told my hepatologist about it; I've triedTylenol, Tylenol 3, Ultracet, Tramadol, and evenOxycontin. NOTHING takes the edge off the pain. I'vejust learned to live with. It sucks, but that's mydemon of the treatment besides dizziness. I'm loadedup enough with drugs, I don't want to become dependenton pain killers.Gav19 weeks of treatment left to go!!!!__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 yep, when I sleep funny, I do... Yesterday I went to my pain MD and her nurse practitioner did some cranial/sacral work, it was really really weird, but during the time she was working on me, I had severe pain in my left shoulder blade and my humerous bone too.. but once she finished, it was gone.. I have NO idea what she was doing or how it works,, it the pain left as soon as she was done and so far has not returned,Hillbilly Tim <knoxweb1@...> wrote: does anyone have pain in left arm between the shoulder and elbow and right shoulder blade on back. Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Hi I have shoulder pains just like he describes but it happens only when I sleep funny.. Personally I dont have alot of faith in Tims doc as they wont even do a biopsy to see IF he needs to do treatment.. just because his labs are in the normal range does not mean he shouldnt be treating his hep c.. its a total misnomer to believe that IF your labs are normal that you arent sick enough for treatment... I know many ppl who have had very very high labs for more than 30 years and have NO damage and then I never had a high viral load and my labs were always just one or two points above normal until right before I started treatment and I had early cirrhosis... I just want to point out that its very hard to tell how much damage you have or IF you should do treatment without a biopsy.. jaxlauramgunter <lauramgunter@...> wrote: hey,tim,I think that the pain you are talking about is not even related to hep c. It is probably because you spend alot of time on the computer,and obsessing about our disease. My goodness,you are not even sick enough for your docs to recommend treatment,I could not believe when you were whining about that.You need to remember be careful what you wish for!!! lauraJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 When I feel really crummy, I have pain in the liver area. It will radiate up into my right shoulder sometimes and my back. When I feel well, I have no liver pain. The worse I feel, the worse the pain. Sleeping on my left side helps. If I have any liver tenderness at all, I'll sleep making sure I don't accidentally roll over in the middle of the night on my right side. Sleeping on my right side will make not only the pain worse, but I feel real flu-like, too. The pain is identical to the pain I had after I had my liver biopsy a few years ago. WulfeMom Re: crazy pains does anyone have pain in left arm between the shoulder and elbow and right shoulder blade on back. I am using the free version of SPAMfighter for private users.It has removed 22941 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.5.5/333 - Release Date: 5/5/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Each of us have different problems related to our hep c , what you perseve is whinning is in fact not . This group is here for questions , information , and in general overall support . Your comment was kinda rude and now that I read this I understand his earlier post . crazy pains hey,tim,I think that the pain you are talking about is not even related to hep c. It is probably because you spend alot of time on the computer,and obsessing about our disease. My goodness,you are not even sick enough for your docs to recommend treatment,I could not believe when you were whining about that.You need to remember be careful what you wish for!!! laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 About 5 years ago I started having severe muscle pain in my left arm and back . I found out that my hep had caused severe cervical spinal degeneration and the vertebrae were compressing on my nerves for that area of my body . Re: crazy pains does anyone have pain in left arm between the shoulder and elbow and right shoulder blade on back. Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 I agree with ... --- elizabethnv1 <elizabethnv1@...> wrote: > Each of us have different problems related to our > hep c , what you perseve is whinning is in fact not > . This group is here for questions , information , > and in general overall support . Your comment was > kinda rude and now that I read this I understand his > earlier post . > crazy pains > > > hey,tim,I think that the pain you are talking > about is not even > related to hep c. It is probably because you spend > alot of time on the > computer,and obsessing about our disease. My > goodness,you are not even > sick enough for your docs to recommend treatment,I > could not believe > when you were whining about that.You need to > remember be careful what > you wish for!!! laura > > > > > > > > > It's a pleasure having you join in our > conversations. We hope you have found the support > you need with us. > > If you are using email for your posts, for easy > access to our group, just click the link-- > Hepatitis C/ > > Happy Posting > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I thought the herpes virus can lie dormant in your spine for years and activate decades later, causing breakouts. I think it's the same way with shingles. I imagine Hep C can, too. I know a few people locally that saw the doctor first because of severe back pain and then found out they had Hep C. WulfeMom Re: crazy pains About 5 years ago I started having severe muscle pain in my left arm and back . I found out that my hep had caused severe cervical spinal degeneration and the vertebrae were compressing on my nerves for that area of my body . I am using the free version of SPAMfighter for private users.It has removed 22974 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Internal Virus Database is out-of-date. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.5.5/333 - Release Date: 5/5/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Yeah , there are many things that can lay dormant for years without showing up . And it's usually something else that leads to the diagnosis. Re: crazy pains About 5 years ago I started having severe muscle pain in my left arm and back . I found out that my hep had caused severe cervical spinal degeneration and the vertebrae were compressing on my nerves for that area of my body . I am using the free version of SPAMfighter for private users.It has removed 22974 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.5.5/333 - Release Date: 5/5/2006 Quote Link to comment Share on other sites More sharing options...
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