Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 get the softest brush you can find. My grandson is 8 and still has trouble with haircuts.pamreinheimer <pamreinheimer@...> wrote: Good morning groupmates; Could anyone help me with a very sensitive scalp. While brushing my daughters hair each morning and night. She has become more sensitive. Can anyone help? Thanks, Pam__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi Pam, Perhaps this is a long shot, but your issue with a sensitive scalp brought this to mind. It's a document called Mastering Autism. It's by Willis Langford. Here's an excerpt and a link to the files section of his Group. Hope this helps. Williss/files/ What? Rickets? " There is also a condition growing quite common: children with unrecognized, subclinical rickets. If your child has a sweaty head when asleep, coupled with sensitive scalp that makes it a struggle to comb the hair, and when walking, the child keeps calling, " Mommy, pick me up " , the child needs two teaspoons of cod-liver oil each day to avoid full-blown rickets. Fish oil and flax oil can inhibit the action of the staphylococcal, membrane-damaging toxins also. Rickets may also present a bulging forehead and a sunken chest. Get the kid in sun! He needs the vitamin D, and the sun will convert trans vitamin A (palmitate) to the cis form. Vitamin D–deficient, IL-10 KO, mice bred to develop irritable bowel syndrome, rapidly developed diarrhea and a wasting disease, which induced mortality. In contrast, vitamin D–sufficient IL-10 KO mice did not develop diarrhea, waste or die—College of Health and Human Development, The Pennsylvania State University. Vitamin D deficiencies include: irritability, tensions, diarrhea, insomnia, myopia, convulsions, soft teeth, rickets in children, and brittle bones in older folk (osteoporosis). It includes those symptoms listed as calcium and phosphorus deficiencies also. Large amounts of vitamin A deplete vitamin D, so get the kid in the sun or give additional 1200 IU vitamin D to avoid rickets and brittle bones. " > > Good morning groupmates; Could anyone help me with a very sensitive > scalp. While brushing my daughters hair each morning and night. She > has become more sensitive. Can anyone help? Thanks, Pam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi Pam, Perhaps this is a long shot, but your issue with a sensitive scalp brought this to mind. It's a document called Mastering Autism. It's by Willis Langford. Here's an excerpt and a link to the files section of his Group. Hope this helps. Williss/files/ What? Rickets? " There is also a condition growing quite common: children with unrecognized, subclinical rickets. If your child has a sweaty head when asleep, coupled with sensitive scalp that makes it a struggle to comb the hair, and when walking, the child keeps calling, " Mommy, pick me up " , the child needs two teaspoons of cod-liver oil each day to avoid full-blown rickets. Fish oil and flax oil can inhibit the action of the staphylococcal, membrane-damaging toxins also. Rickets may also present a bulging forehead and a sunken chest. Get the kid in sun! He needs the vitamin D, and the sun will convert trans vitamin A (palmitate) to the cis form. Vitamin D–deficient, IL-10 KO, mice bred to develop irritable bowel syndrome, rapidly developed diarrhea and a wasting disease, which induced mortality. In contrast, vitamin D–sufficient IL-10 KO mice did not develop diarrhea, waste or die—College of Health and Human Development, The Pennsylvania State University. Vitamin D deficiencies include: irritability, tensions, diarrhea, insomnia, myopia, convulsions, soft teeth, rickets in children, and brittle bones in older folk (osteoporosis). It includes those symptoms listed as calcium and phosphorus deficiencies also. Large amounts of vitamin A deplete vitamin D, so get the kid in the sun or give additional 1200 IU vitamin D to avoid rickets and brittle bones. " > > Good morning groupmates; Could anyone help me with a very sensitive > scalp. While brushing my daughters hair each morning and night. She > has become more sensitive. Can anyone help? Thanks, Pam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Oh my God! We just got an official diagnosis of this rickets this week. It's a long story. My two children with autism, and NIck, always presented to me like a rickets kid. Knobby knees, thin body type, Both kids showed vitamin D deficiency but the docs only found this because their kidney's failed. Started vit D therapy, only to find out that NIck has a parathyroid tumor. has passed away now, so we do not know for sure if she had a parathyroid tumor. Both kids have/had extremem scalp sensitivity. screamed when I combed her hair, Nick rubs his head, itches it, pulls his hair. This tends to go in cycles. It seems irritating.Hates to get his hair cut, says it hurts. The whole vit D stuff has consumed me for about a year. The doctors were missing something. Finally, Nick got an endoscopy and a DEXA bone scan which showed severe osteoporosis and lipase deficiency (endoscopy secretin pulse). All fat soluable vitamins are at risk for deficiency. Vitamins A,D,E and K are fat soluable. We know the D is deficient, now we need to check the A,E and K. Nick has been tremoring and is irritable too. I am a firm believer in diagnostic testing. They give clues to the puzzle. Alot of doctors seem hesitant to test these days. I think they are afraid of insurance companies complaining. But aren't tests to way to accumulate enough data to make a solid diagnosis? My insurance company has never not paid for testing. I find that doctors that practice individually are much better at testing than doctors in a hospital setting or a group practice setting. Lynda Re: Head sensitivity Hi Pam,Perhaps this is a long shot, but your issue with a sensitive scalp brought this to mind. It's a document called Mastering Autism. It's by Willis Langford. Here's an excerpt and a link to the files section of his Group. Hope this helps.Williss/files/What? Rickets?"There is also a condition growing quite common: children with unrecognized, subclinical rickets. If your child has a sweaty head when asleep, coupled with sensitive scalp that makes it a struggle to comb the hair, and when walking, the child keeps calling, "Mommy, pick me up", the child needs two teaspoons of cod-liver oil each day to avoid full-blown rickets. Fish oil and flax oil can inhibit the action of the staphylococcal, membrane-damaging toxins also. Rickets may also present a bulging forehead and a sunken chest. Get the kid in sun! He needs the vitamin D, and the sun will convert trans vitamin A (palmitate) to the cis form. Vitamin D–deficient, IL-10 KO, mice bred to develop irritable bowel syndrome, rapidly developed diarrhea and a wasting disease, which induced mortality. In contrast, vitamin D–sufficient IL-10 KO mice did not develop diarrhea, waste or die—College of Health and Human Development, The Pennsylvania State University. Vitamin D deficiencies include: irritability, tensions, diarrhea, insomnia, myopia, convulsions, soft teeth, rickets in children, and brittle bones in older folk (osteoporosis). It includes those symptoms listed as calcium and phosphorus deficiencies also. Large amounts of vitamin A deplete vitamin D, so get the kid in the sun or give additional 1200 IU vitamin D to avoid rickets and brittle bones.">> Good morning groupmates; Could anyone help me with a very sensitive > scalp. While brushing my daughters hair each morning and night. She > has become more sensitive. Can anyone help? Thanks, Pam> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Oh my God! We just got an official diagnosis of this rickets this week. It's a long story. My two children with autism, and NIck, always presented to me like a rickets kid. Knobby knees, thin body type, Both kids showed vitamin D deficiency but the docs only found this because their kidney's failed. Started vit D therapy, only to find out that NIck has a parathyroid tumor. has passed away now, so we do not know for sure if she had a parathyroid tumor. Both kids have/had extremem scalp sensitivity. screamed when I combed her hair, Nick rubs his head, itches it, pulls his hair. This tends to go in cycles. It seems irritating.Hates to get his hair cut, says it hurts. The whole vit D stuff has consumed me for about a year. The doctors were missing something. Finally, Nick got an endoscopy and a DEXA bone scan which showed severe osteoporosis and lipase deficiency (endoscopy secretin pulse). All fat soluable vitamins are at risk for deficiency. Vitamins A,D,E and K are fat soluable. We know the D is deficient, now we need to check the A,E and K. Nick has been tremoring and is irritable too. I am a firm believer in diagnostic testing. They give clues to the puzzle. Alot of doctors seem hesitant to test these days. I think they are afraid of insurance companies complaining. But aren't tests to way to accumulate enough data to make a solid diagnosis? My insurance company has never not paid for testing. I find that doctors that practice individually are much better at testing than doctors in a hospital setting or a group practice setting. Lynda Re: Head sensitivity Hi Pam,Perhaps this is a long shot, but your issue with a sensitive scalp brought this to mind. It's a document called Mastering Autism. It's by Willis Langford. Here's an excerpt and a link to the files section of his Group. Hope this helps.Williss/files/What? Rickets?"There is also a condition growing quite common: children with unrecognized, subclinical rickets. If your child has a sweaty head when asleep, coupled with sensitive scalp that makes it a struggle to comb the hair, and when walking, the child keeps calling, "Mommy, pick me up", the child needs two teaspoons of cod-liver oil each day to avoid full-blown rickets. Fish oil and flax oil can inhibit the action of the staphylococcal, membrane-damaging toxins also. Rickets may also present a bulging forehead and a sunken chest. Get the kid in sun! He needs the vitamin D, and the sun will convert trans vitamin A (palmitate) to the cis form. Vitamin D–deficient, IL-10 KO, mice bred to develop irritable bowel syndrome, rapidly developed diarrhea and a wasting disease, which induced mortality. In contrast, vitamin D–sufficient IL-10 KO mice did not develop diarrhea, waste or die—College of Health and Human Development, The Pennsylvania State University. Vitamin D deficiencies include: irritability, tensions, diarrhea, insomnia, myopia, convulsions, soft teeth, rickets in children, and brittle bones in older folk (osteoporosis). It includes those symptoms listed as calcium and phosphorus deficiencies also. Large amounts of vitamin A deplete vitamin D, so get the kid in the sun or give additional 1200 IU vitamin D to avoid rickets and brittle bones.">> Good morning groupmates; Could anyone help me with a very sensitive > scalp. While brushing my daughters hair each morning and night. She > has become more sensitive. Can anyone help? Thanks, Pam> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi Pam, I'm so sorry for the loss of your dear . The one thing autism is teaching me is to take charge of my entire family's healthcare. You can get the full copy of Mastering Autism at Willis group by following that link. All the best for Nick and your family, Orelindel > > Oh my God! > > > We just got an official diagnosis of this rickets this week. > > It's a long story. > > My two children with autism, and NIck, always presented to me like a rickets kid. Knobby knees, thin body type, Both kids showed vitamin D deficiency but the docs only found this because their kidney's failed. Started vit D therapy, only to find out that NIck has a parathyroid tumor. has passed away now, so we do not know for sure if she had a parathyroid tumor. Both kids have/had extremem scalp sensitivity. screamed when I combed her hair, Nick rubs his head, itches it, pulls his hair. This tends to go in cycles. It seems irritating.Hates to get his hair cut, says it hurts. > > The whole vit D stuff has consumed me for about a year. The doctors were missing something. Finally, Nick got an endoscopy and a DEXA bone scan which showed severe osteoporosis and lipase deficiency (endoscopy secretin pulse). All fat soluable vitamins are at risk for deficiency. Vitamins A,D,E and K are fat soluable. We know the D is deficient, now we need to check the A,E and K. Nick has been tremoring and is irritable too. > > I am a firm believer in diagnostic testing. They give clues to the puzzle. Alot of doctors seem hesitant to test these days. I think they are afraid of insurance companies complaining. But aren't tests to way to accumulate enough data to make a solid diagnosis? > > My insurance company has never not paid for testing. I find that doctors that practice individually are much better at testing than doctors in a hospital setting or a group practice setting. > > > Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi Pam, I'm so sorry for the loss of your dear . The one thing autism is teaching me is to take charge of my entire family's healthcare. You can get the full copy of Mastering Autism at Willis group by following that link. All the best for Nick and your family, Orelindel > > Oh my God! > > > We just got an official diagnosis of this rickets this week. > > It's a long story. > > My two children with autism, and NIck, always presented to me like a rickets kid. Knobby knees, thin body type, Both kids showed vitamin D deficiency but the docs only found this because their kidney's failed. Started vit D therapy, only to find out that NIck has a parathyroid tumor. has passed away now, so we do not know for sure if she had a parathyroid tumor. Both kids have/had extremem scalp sensitivity. screamed when I combed her hair, Nick rubs his head, itches it, pulls his hair. This tends to go in cycles. It seems irritating.Hates to get his hair cut, says it hurts. > > The whole vit D stuff has consumed me for about a year. The doctors were missing something. Finally, Nick got an endoscopy and a DEXA bone scan which showed severe osteoporosis and lipase deficiency (endoscopy secretin pulse). All fat soluable vitamins are at risk for deficiency. Vitamins A,D,E and K are fat soluable. We know the D is deficient, now we need to check the A,E and K. Nick has been tremoring and is irritable too. > > I am a firm believer in diagnostic testing. They give clues to the puzzle. Alot of doctors seem hesitant to test these days. I think they are afraid of insurance companies complaining. But aren't tests to way to accumulate enough data to make a solid diagnosis? > > My insurance company has never not paid for testing. I find that doctors that practice individually are much better at testing than doctors in a hospital setting or a group practice setting. > > > Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Thank you for your kind words. Yes, taking charge of our family's healthcare can be a full time job. Some docs do not like being questioned all the time. They especially don't like it when we are better versed in a disorder than they are. Maybe they should go back and review their textbooks! Now I wish I had finished nursing school because I would go back and get a nurse practioners license. Ordering tests would be easier! I will lookup the mastering autism at Willis group. You know, if someone knows alot about their automobile and how to fix it themself , people think you are the handiest person in the world. If you know alot about your own, god-given body people think you are neurotic. Is there something wrong with this picture? Lynda Re: Head sensitivity Hi Pam,I'm so sorry for the loss of your dear . The one thing autism is teaching me is to take charge of my entire family's healthcare. You can get the full copy of Mastering Autism at Willis group by following that link.All the best for Nick and your family,Orelindel>> Oh my God!> > > We just got an official diagnosis of this rickets this week.> > It's a long story. > > My two children with autism, and NIck, always presented to me like a rickets kid. Knobby knees, thin body type, Both kids showed vitamin D deficiency but the docs only found this because their kidney's failed. Started vit D therapy, only to find out that NIck has a parathyroid tumor. has passed away now, so we do not know for sure if she had a parathyroid tumor. Both kids have/had extremem scalp sensitivity. screamed when I combed her hair, Nick rubs his head, itches it, pulls his hair. This tends to go in cycles. It seems irritating.Hates to get his hair cut, says it hurts. > > The whole vit D stuff has consumed me for about a year. The doctors were missing something. Finally, Nick got an endoscopy and a DEXA bone scan which showed severe osteoporosis and lipase deficiency (endoscopy secretin pulse). All fat soluable vitamins are at risk for deficiency. Vitamins A,D,E and K are fat soluable. We know the D is deficient, now we need to check the A,E and K. Nick has been tremoring and is irritable too. > > I am a firm believer in diagnostic testing. They give clues to the puzzle. Alot of doctors seem hesitant to test these days. I think they are afraid of insurance companies complaining. But aren't tests to way to accumulate enough data to make a solid diagnosis? > > My insurance company has never not paid for testing. I find that doctors that practice individually are much better at testing than doctors in a hospital setting or a group practice setting.> > > Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Thank you for your kind words. Yes, taking charge of our family's healthcare can be a full time job. Some docs do not like being questioned all the time. They especially don't like it when we are better versed in a disorder than they are. Maybe they should go back and review their textbooks! Now I wish I had finished nursing school because I would go back and get a nurse practioners license. Ordering tests would be easier! I will lookup the mastering autism at Willis group. You know, if someone knows alot about their automobile and how to fix it themself , people think you are the handiest person in the world. If you know alot about your own, god-given body people think you are neurotic. Is there something wrong with this picture? Lynda Re: Head sensitivity Hi Pam,I'm so sorry for the loss of your dear . The one thing autism is teaching me is to take charge of my entire family's healthcare. You can get the full copy of Mastering Autism at Willis group by following that link.All the best for Nick and your family,Orelindel>> Oh my God!> > > We just got an official diagnosis of this rickets this week.> > It's a long story. > > My two children with autism, and NIck, always presented to me like a rickets kid. Knobby knees, thin body type, Both kids showed vitamin D deficiency but the docs only found this because their kidney's failed. Started vit D therapy, only to find out that NIck has a parathyroid tumor. has passed away now, so we do not know for sure if she had a parathyroid tumor. Both kids have/had extremem scalp sensitivity. screamed when I combed her hair, Nick rubs his head, itches it, pulls his hair. This tends to go in cycles. It seems irritating.Hates to get his hair cut, says it hurts. > > The whole vit D stuff has consumed me for about a year. The doctors were missing something. Finally, Nick got an endoscopy and a DEXA bone scan which showed severe osteoporosis and lipase deficiency (endoscopy secretin pulse). All fat soluable vitamins are at risk for deficiency. Vitamins A,D,E and K are fat soluable. We know the D is deficient, now we need to check the A,E and K. Nick has been tremoring and is irritable too. > > I am a firm believer in diagnostic testing. They give clues to the puzzle. Alot of doctors seem hesitant to test these days. I think they are afraid of insurance companies complaining. But aren't tests to way to accumulate enough data to make a solid diagnosis? > > My insurance company has never not paid for testing. I find that doctors that practice individually are much better at testing than doctors in a hospital setting or a group practice setting.> > > Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi Lynda, Call me neurotic, because I absolutely agree. I spent several hours in the ER this past Friday. The doctor advised me to have my gallbladder removed and prescribed two heavy duty narcotics. I didn't fill the prescriptions and don't plan on having my gallbladder removed until I thoroughly investigate my biomedical options. I have a DAN! doctor, but I don't do everything he advises us to do. I made that mistake with my daughter's former pediatrician. I now question everything the medical profession advocates. Willis' paper is an excellent reference. There are some things there I don't understand or agree with, but it really has been the single most helpful document I've come across. God bless you, Orelindel If you know alot about your own, god-given body people think you are neurotic. Is there something wrong with this picture? > > Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi Lynda, Call me neurotic, because I absolutely agree. I spent several hours in the ER this past Friday. The doctor advised me to have my gallbladder removed and prescribed two heavy duty narcotics. I didn't fill the prescriptions and don't plan on having my gallbladder removed until I thoroughly investigate my biomedical options. I have a DAN! doctor, but I don't do everything he advises us to do. I made that mistake with my daughter's former pediatrician. I now question everything the medical profession advocates. Willis' paper is an excellent reference. There are some things there I don't understand or agree with, but it really has been the single most helpful document I've come across. God bless you, Orelindel If you know alot about your own, god-given body people think you are neurotic. Is there something wrong with this picture? > > Lynda Quote Link to comment Share on other sites More sharing options...
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