Re: MB 12 and hyper; our experience

May 2, 2006

Hi Dr. Neubrander described shortterm hyperactivity, stimming, mouthing objects and and over-emotional behavior outbursts as all short term positives which should last 4-6 months and then settle down. So hyperactivity is unfortunately one of the side effects of MB 12 that lasts 4-6 months. My son was also really bad. We did find that upping his zinc monomethionine (one of the 2 most aborbable forms) really helped. Also, Dr. Neubrander mentioned at the Long Beach DAN that about 20% of kids can not tolerate folinic and/or TMG while on MB 12, even if they tolerated it before MB 12. Taurine also really helped calm him down. At first our negative MB12 side effects were "good and tolerable" and he started using complex sentences like "I just can't take it any more." ********* The really strange is, that folinic as the exact opposite on most of the kids, it calms them down and maximizes

the benefits of MB 12. But then he downward spiraled and we took him off folinic and TMG and added zinc, magnesium sulfate and taurine and everything got better. We tried several times to add back the TMG and folinic, but the regression got really out of control. Folinic made my son completely insane and out of control spacey. Folinic is recommended by virtually all DANs as the way to maximize the benefits of MB12, but some kids just can not tolerate it. He started thriving on MB 12 with taurine, magnesium sulfate, folate and 110 mgs of zinc per day (except we skip the chelation PM dose). We have since reduced the zinc and he is doing fine. But the extra zinc really helped pull us through the rough six months. The key is to only change one thing at a time and give each change two weeks. When things got out of control we stopped almost everything and restarted with just

zinc. We then added back MB 12 and one item at a time that was recommended by Dr. Neubrander and also Stan at the Long Beach DAN. They also told us to replace the folinic with folate. Dr. Kartzinel wants us to now try something else (Laucdrin I think) instead of folate, but I have not gotten to it yet and to try adding DMG to replace the TMG. Again, we have not gotten to it yet. VeraChapnalli <chapnalli@...> wrote: Kim, Hyperactivity is very common with MB-12 and Dr. Deth told me if you can stand it to keep going and hyperactivity may be overcome. How long have you been on valtrex and do you have an antifungal. CJ is on nystatin (yes I know we have to switch and will) but I am starting to see either yeast die off or nystatin

isn't quite getting it all while on Valtrex. Structured 2to 1 may not be the worst thing, it may be better to give him more and then move him out later when he regains skills. Although I really know how hard it is to take when they go backwards at all. Where are the acutaly regressions. In learning, in behaviors or just ability to get the info out?? Did you possible start giving Calcium or folinic acid at all? ->From: Kim GIll <kim.gill@...>>Date: Tue May 02 11:04:34 CDT 2006>mb12 valtrex >Subject: Re: What if you can't handle the Valtrex?->Thanks : Admittedly, I have not been looking/searching his >body for any rash. I thought that it would just be obvious, but now >i will look a little more. Thanks for the info...this is very >disturbing. Just 2 months ago, our son was almost ready

for >mainstream kindergarten. Now, his teachers/therapists thinks he has >regressed so much that he will be in a structured kindergarten with a >2 to 1 ratio. >>The weird thing is...he also started the MB-12 shots, which made him >really really hyper. I wonder if I should stop those?>>Kim>>>>>> >>> > Do you know about the healing regression period. I get excited >> when I see my son 6yr 48lbs getting the viral reactions because it >> means it's working. Every reaction has not lasted long. I think >> though you are on a small dose and you should be splitting it up 3x >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a >cold >> sore yesterday that is already gone and I cheered for joy. >> > ->> > >> > >From:

mermaidawnmom <Mermaidawn@>>> > >Date: Thu Apr 27 07:43:34 CDT 2006>> > >mb12 valtrex >> > >Subject: What if you can't handle the Valtrex?>> > >> > >Hi all,>> > >>> > >My son had tested positive to herpes, CMV and very high EB all >IgG >> > >results. We started valtrex early this week, 500mg once a day >(he >> is >> > >almost 6 and aprox 50lbs) and after the second day he developed >> very >> > >red itchy eyes (I had posted about this earlier). I had never >seen >> this >> > >reaction to anything we have given him before, he really could >not >> keep >> > >them open until after a long hot shower. Our DAN has asked us >to >> hold >> > >the

Valtrex and said maybe we would start at a 1/2 a dose again >in >> a >> > >few days. >> > >>> > >If he cannont tolerate the Valtrex, what are the alternatives? >> I'm >> > >sure there are some natural anti-virals but I don't know what >they >> are >> > >and would like to research them before our dr's apt. on Monday.>> > >>> > >Thanks for any advice>> > >>> > >>> > >>> > >>> > >>> > > >> > >

May 2, 2006

Hi Dr. Neubrander described shortterm hyperactivity, stimming, mouthing objects and and over-emotional behavior outbursts as all short term positives which should last 4-6 months and then settle down. So hyperactivity is unfortunately one of the side effects of MB 12 that lasts 4-6 months. My son was also really bad. We did find that upping his zinc monomethionine (one of the 2 most aborbable forms) really helped. Also, Dr. Neubrander mentioned at the Long Beach DAN that about 20% of kids can not tolerate folinic and/or TMG while on MB 12, even if they tolerated it before MB 12. Taurine also really helped calm him down. At first our negative MB12 side effects were "good and tolerable" and he started using complex sentences like "I just can't take it any more." ********* The really strange is, that folinic as the exact opposite on most of the kids, it calms them down and maximizes

the benefits of MB 12. But then he downward spiraled and we took him off folinic and TMG and added zinc, magnesium sulfate and taurine and everything got better. We tried several times to add back the TMG and folinic, but the regression got really out of control. Folinic made my son completely insane and out of control spacey. Folinic is recommended by virtually all DANs as the way to maximize the benefits of MB12, but some kids just can not tolerate it. He started thriving on MB 12 with taurine, magnesium sulfate, folate and 110 mgs of zinc per day (except we skip the chelation PM dose). We have since reduced the zinc and he is doing fine. But the extra zinc really helped pull us through the rough six months. The key is to only change one thing at a time and give each change two weeks. When things got out of control we stopped almost everything and restarted with just

zinc. We then added back MB 12 and one item at a time that was recommended by Dr. Neubrander and also Stan at the Long Beach DAN. They also told us to replace the folinic with folate. Dr. Kartzinel wants us to now try something else (Laucdrin I think) instead of folate, but I have not gotten to it yet and to try adding DMG to replace the TMG. Again, we have not gotten to it yet. VeraChapnalli <chapnalli@...> wrote: Kim, Hyperactivity is very common with MB-12 and Dr. Deth told me if you can stand it to keep going and hyperactivity may be overcome. How long have you been on valtrex and do you have an antifungal. CJ is on nystatin (yes I know we have to switch and will) but I am starting to see either yeast die off or nystatin

isn't quite getting it all while on Valtrex. Structured 2to 1 may not be the worst thing, it may be better to give him more and then move him out later when he regains skills. Although I really know how hard it is to take when they go backwards at all. Where are the acutaly regressions. In learning, in behaviors or just ability to get the info out?? Did you possible start giving Calcium or folinic acid at all? ->From: Kim GIll <kim.gill@...>>Date: Tue May 02 11:04:34 CDT 2006>mb12 valtrex >Subject: Re: What if you can't handle the Valtrex?->Thanks : Admittedly, I have not been looking/searching his >body for any rash. I thought that it would just be obvious, but now >i will look a little more. Thanks for the info...this is very >disturbing. Just 2 months ago, our son was almost ready

for >mainstream kindergarten. Now, his teachers/therapists thinks he has >regressed so much that he will be in a structured kindergarten with a >2 to 1 ratio. >>The weird thing is...he also started the MB-12 shots, which made him >really really hyper. I wonder if I should stop those?>>Kim>>>>>> >>> > Do you know about the healing regression period. I get excited >> when I see my son 6yr 48lbs getting the viral reactions because it >> means it's working. Every reaction has not lasted long. I think >> though you are on a small dose and you should be splitting it up 3x >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a >cold >> sore yesterday that is already gone and I cheered for joy. >> > ->> > >> > >From:

mermaidawnmom <Mermaidawn@>>> > >Date: Thu Apr 27 07:43:34 CDT 2006>> > >mb12 valtrex >> > >Subject: What if you can't handle the Valtrex?>> > >> > >Hi all,>> > >>> > >My son had tested positive to herpes, CMV and very high EB all >IgG >> > >results. We started valtrex early this week, 500mg once a day >(he >> is >> > >almost 6 and aprox 50lbs) and after the second day he developed >> very >> > >red itchy eyes (I had posted about this earlier). I had never >seen >> this >> > >reaction to anything we have given him before, he really could >not >> keep >> > >them open until after a long hot shower. Our DAN has asked us >to >> hold >> > >the

Valtrex and said maybe we would start at a 1/2 a dose again >in >> a >> > >few days. >> > >>> > >If he cannont tolerate the Valtrex, what are the alternatives? >> I'm >> > >sure there are some natural anti-virals but I don't know what >they >> are >> > >and would like to research them before our dr's apt. on Monday.>> > >>> > >Thanks for any advice>> > >>> > >>> > >>> > >>> > >>> > > >> > >

May 3, 2006

--

Hi, I know how disturbing a regression is my daughter is in one. and

she in now in second grade. I am desparately trying to figure out the

regression. We are wondering if we got a false negative on her last

urnine provocative challenge. ALso, we had a case of lice and had to

treat for that twice.We tried all of the natural rmedies and none of

them worked. I cannot figure out the reason for the regression.

My question is does or has anyone used DMpS IV provocative that is

what our new Dan is suggesting( we switched as we moved across state)

I am a little leary of it but will do it. He thinks that will yuield a

us a more accurate response in regards to her metal situraion.

ALso, what is TMG? I read that in one of these emails? THanks a ton!!

12valtrex , Vera <sircarlito@...> wrote:

>

> Hi

>

> Dr. Neubrander described shortterm hyperactivity, stimming,

mouthing objects and and over-emotional behavior outbursts as all

short term positives which should last 4-6 months and then settle down.

>

> So hyperactivity is unfortunately one of the side effects of MB 12

that lasts 4-6 months. My son was also really bad. We did find that

upping his zinc monomethionine (one of the 2 most aborbable forms)

really helped. Also, Dr. Neubrander mentioned at the Long Beach DAN

that about 20% of kids can not tolerate folinic and/or TMG while on MB

12, even if they tolerated it before MB 12. Taurine also really

helped calm him down. At first our negative MB12 side effects were

" good and tolerable " and he started using complex sentences like " I

just can't take it any more. " ********* The really strange is, that

folinic as the exact opposite on most of the kids, it calms them down

and maximizes the benefits of MB 12.

>

> But then he downward spiraled and we took him off folinic and TMG

and added zinc, magnesium sulfate and taurine and everything got

better. We tried several times to add back the TMG and folinic, but

the regression got really out of control. Folinic made my son

completely insane and out of control spacey. Folinic is recommended

by virtually all DANs as the way to maximize the benefits of MB12, but

some kids just can not tolerate it. He started thriving on MB 12 with

taurine, magnesium sulfate, folate and 110 mgs of zinc per day (except

we skip the chelation PM dose). We have since reduced the zinc and he

is doing fine. But the extra zinc really helped pull us through the

rough six months. The key is to only change one thing at a time and

give each change two weeks. When things got out of control we stopped

almost everything and restarted with just zinc. We then added back MB

12 and one item at a time that was recommended by Dr. Neubrander and

also Stan at the Long

> Beach DAN. They also told us to replace the folinic with folate.

Dr. Kartzinel wants us to now try something else (Laucdrin I think)

instead of folate, but I have not gotten to it yet and to try adding

DMG to replace the TMG. Again, we have not gotten to it yet.

>

> Vera

> Chapnalli <chapnalli@...> wrote:

> Kim,

> Hyperactivity is very common with MB-12 and Dr. Deth

told me if you can stand it to keep going and hyperactivity may be

overcome. How long have you been on valtrex and do you have an

antifungal. CJ is on nystatin (yes I know we have to switch and will)

but I am starting to see either yeast die off or nystatin isn't quite

getting it all while on Valtrex. Structured 2to 1 may not be the

worst thing, it may be better to give him more and then move him out

later when he regains skills. Although I really know how hard it is

to take when they go backwards at all. Where are the acutaly

regressions. In learning, in behaviors or just ability to get the

info out?? Did you possible start giving Calcium or folinic acid at

all? -

>

> >From: Kim GIll <kim.gill@...>

> >Date: Tue May 02 11:04:34 CDT 2006

> >mb12 valtrex

> >Subject: Re: What if you can't handle the

Valtrex?-

>

> >Thanks : Admittedly, I have not been looking/searching his

> >body for any rash. I thought that it would just be obvious, but now

> >i will look a little more. Thanks for the info...this is very

> >disturbing. Just 2 months ago, our son was almost ready for

> >mainstream kindergarten. Now, his teachers/therapists thinks he has

> >regressed so much that he will be in a structured kindergarten with a

> >2 to 1 ratio.

> >

> >The weird thing is...he also started the MB-12 shots, which made him

> >really really hyper. I wonder if I should stop those?

> >

> >Kim

> >

> >> >

> >> > Do you know about the healing regression period. I get excited

> >> when I see my son 6yr 48lbs getting the viral reactions because it

> >> means it's working. Every reaction has not lasted long. I think

> >> though you are on a small dose and you should be splitting it up 3x

> >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a

> >cold

> >> sore yesterday that is already gone and I cheered for joy.

> >> > -

> >> >

> >> > >From: mermaidawnmom <Mermaidawn@>

> >> > >Date: Thu Apr 27 07:43:34 CDT 2006

> >> > >mb12 valtrex

> >> > >Subject: What if you can't handle the Valtrex?

> >> >

> >> > >Hi all,

> >> > >

> >> > >My son had tested positive to herpes, CMV and very high EB all

> >IgG

> >> > >results. We started valtrex early this week, 500mg once a day

> >(he

> >> is

> >> > >almost 6 and aprox 50lbs) and after the second day he developed

> >> very

> >> > >red itchy eyes (I had posted about this earlier). I had never

> >seen

> >> this

> >> > >reaction to anything we have given him before, he really could

> >not

> >> keep

> >> > >them open until after a long hot shower. Our DAN has asked us

> >to

> >> hold

> >> > >the Valtrex and said maybe we would start at a 1/2 a dose again

> >in

> >> a

> >> > >few days.

> >> > >

> >> > >If he cannont tolerate the Valtrex, what are the alternatives?

> >> I'm

> >> > >sure there are some natural anti-virals but I don't know what

> >they

> >> are

> >> > >and would like to research them before our dr's apt. on Monday.

> >> > >

> >> > >Thanks for any advice

> >> > >

May 3, 2006