Re: big regression from bio med; yes the same happened and we stopped and restarted

[Guest guest]

Hi Yes we did. My son could not tolerate the folinic in Supernuthera or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids can not tolerate folinic and will experience much of what you described. I would say to stop everything and then restart everything one at a time. Obviously your daughter can not tolerate something. Also, find out if your nasal is being compounded with folinic as that could be an issue. Could you please tell the list what you are using and maybe we can offer more suggestions? My son can also not tolerate TMG with mb 12 and has a huge need for zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc alone before restarting with much more success. MB 12 has been a huge part of his progress but for some the initial road can be a

nightmare. My own opinion is some side effects like extra stimming, etc are expected and positive signs. Free fall regression with agression can be a sign of a bad reaction and many DANs feel that we should not let the kids go there. Vera mbcomfort <mcomfort@...> wrote: Has anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive

areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing???

Beth

[Guest guest]

Hi Yes we did. My son could not tolerate the folinic in Supernuthera or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids can not tolerate folinic and will experience much of what you described. I would say to stop everything and then restart everything one at a time. Obviously your daughter can not tolerate something. Also, find out if your nasal is being compounded with folinic as that could be an issue. Could you please tell the list what you are using and maybe we can offer more suggestions? My son can also not tolerate TMG with mb 12 and has a huge need for zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc alone before restarting with much more success. MB 12 has been a huge part of his progress but for some the initial road can be a

nightmare. My own opinion is some side effects like extra stimming, etc are expected and positive signs. Free fall regression with agression can be a sign of a bad reaction and many DANs feel that we should not let the kids go there. Vera mbcomfort <mcomfort@...> wrote: Has anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive

areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing???

Beth

[Guest guest]

Aaaaaahhhhhhhhhhhh!!!!!!!!!!!!!!!

please do me a favor and SMACK your

nutritionist. Right upside his/her head. Shame on him/her.

Don’t ever start 2 treatments at

the same time, much less 10-12. this is exactly why you don’t. if you

cram everything in, and you get a reaction, you have no idea of what caused it

and you have to start all over again.

I’d pull them all out and start

with the least likely to offend supplements first. You are not supposed to

start things less than 2 weeks apart. Your nutritionist should know better. L

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mbcomfort

Sent: Thursday, May 11, 2006 8:06

AM

mb12 valtrex

Subject: Re: big

regression from bio med; yes the same happened and we stopped and restarted

Vera,

We started with a nutrionalist that put him ( I also have 2

others doing the supps) on about 10-12 things all at the same time. I was told

to start them all and it was more important that he just got them in his body

as opposed to empty/full stomach issues. We have since added a DAN to our group

and he has told me to stop everything, too.

I don't think the B12 has folinic as he gave us liquid

folinic acid to use, too.

Here is the laundry list of supps......

CalMag

SupNu Thera

Dig/Stomach Enzymes

Acidoph

Liver Support

Amino Balance

5Htp

Gaba

Omega 3

CLO

GLA

Thymus

Ness 601

Taurine

The DAN also wants him on Actos, Mag Sul cream, Theanine,

and Lith but we never started those.

He also gets the red flushed face and ears. I really notice

it when he gets home from school around 3:30. usually I am in for a huge

meltdown around then, too.

My son has an identical twin that is also on supps and

tolerates them better ( some aggression) but is not as effected on the

spectrum. His speech is garbled and his motor planning for it but his social

skills are much better and his pragmatic processing is, too. He is not what I

would say completely typical, but manages much better in the typical world. My

PDD twin had to be pulled from his typical school (he went to both typical and

early intervention) because of the disruption he began to cause.

I just pray we can get him at least back to where he was at

the baseline of the beginning.

Has anyone's kid NOT been able to recover from the

regressions?

mb

Re:

big regression from bio med; yes the same happened and we stopped and restarted

Hi

Yes we did. My son could not tolerate the folinic in Supernuthera

or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids

can not tolerate folinic and will experience much of what you described.

I would say to stop everything and then restart everything one at a

time. Obviously your daughter can not tolerate something.

Also, find out if your nasal is being compounded with folinic as that

could be an issue.

Could you please tell the list what you are using and maybe we can

offer more suggestions?

My son can also not tolerate TMG with mb 12 and has a huge need for

zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc

alone before restarting with much more success.

MB 12 has been a huge part of his progress but for some the initial

road can be a nightmare. My own opinion is some side effects like extra

stimming, etc are expected and positive signs. Free fall

regression with agression can be a sign of a bad reaction and

many DANs feel that we should not let the kids go there.

Vera

mbcomfort

<mcomfort@...> wrote:

Has anyone experienced

big regressions just from doing supplements?

We started down the supplement road with our almost 6 year old PDD

about 6 weeks ago. About 5 days into it he became nervous and

obstinate. This progressed into anger, explosive meltdowns,

tormented frustrations. Basically, way worse than he has been for a

long time pre supps. Right before we started we had heard such

wonderful things from his teachers about his gains-esp in cognitive

areas- and even in his more appropriate social interaction. That has

all been erased. He had 4 violent meltdowns tonight just since

returning home from school. If I suggest anything to him it becomes

traumatic and he begins to breaks things and hit/kick me or anything

near him. He's strong! The dog already bit him right under his eye

yesterday because he was mad at her! We started the B12 nasal spray

5 days ago. The Rx said to give it everyday although we are

questioning that dosage. However, he was acting this way before

that. Geesh, it makes me long for the days before when we

were " ignorant " of all that we could do to make him better. Must

kids suffer like this? I can't stand to watch him this way. So many

of you are way farther down this path, but seeing my child this way

when he wasn't before is very disheartening. How in the world do you

even know you are doing the right thing???

Beth

[Guest guest]

Aaaaaahhhhhhhhhhhh!!!!!!!!!!!!!!!

please do me a favor and SMACK your

nutritionist. Right upside his/her head. Shame on him/her.

Don’t ever start 2 treatments at

the same time, much less 10-12. this is exactly why you don’t. if you

cram everything in, and you get a reaction, you have no idea of what caused it

and you have to start all over again.

I’d pull them all out and start

with the least likely to offend supplements first. You are not supposed to

start things less than 2 weeks apart. Your nutritionist should know better. L

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mbcomfort

Sent: Thursday, May 11, 2006 8:06

AM

mb12 valtrex

Subject: Re: big

regression from bio med; yes the same happened and we stopped and restarted

Vera,

We started with a nutrionalist that put him ( I also have 2

others doing the supps) on about 10-12 things all at the same time. I was told

to start them all and it was more important that he just got them in his body

as opposed to empty/full stomach issues. We have since added a DAN to our group

and he has told me to stop everything, too.

I don't think the B12 has folinic as he gave us liquid

folinic acid to use, too.

Here is the laundry list of supps......

CalMag

SupNu Thera

Dig/Stomach Enzymes

Acidoph

Liver Support

Amino Balance

5Htp

Gaba

Omega 3

CLO

GLA

Thymus

Ness 601

Taurine

The DAN also wants him on Actos, Mag Sul cream, Theanine,

and Lith but we never started those.

He also gets the red flushed face and ears. I really notice

it when he gets home from school around 3:30. usually I am in for a huge

meltdown around then, too.

My son has an identical twin that is also on supps and

tolerates them better ( some aggression) but is not as effected on the

spectrum. His speech is garbled and his motor planning for it but his social

skills are much better and his pragmatic processing is, too. He is not what I

would say completely typical, but manages much better in the typical world. My

PDD twin had to be pulled from his typical school (he went to both typical and

early intervention) because of the disruption he began to cause.

I just pray we can get him at least back to where he was at

the baseline of the beginning.

Has anyone's kid NOT been able to recover from the

regressions?

mb

Re:

big regression from bio med; yes the same happened and we stopped and restarted

Hi

Yes we did. My son could not tolerate the folinic in Supernuthera

or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids

can not tolerate folinic and will experience much of what you described.

I would say to stop everything and then restart everything one at a

time. Obviously your daughter can not tolerate something.

Also, find out if your nasal is being compounded with folinic as that

could be an issue.

Could you please tell the list what you are using and maybe we can

offer more suggestions?

My son can also not tolerate TMG with mb 12 and has a huge need for

zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc

alone before restarting with much more success.

MB 12 has been a huge part of his progress but for some the initial

road can be a nightmare. My own opinion is some side effects like extra

stimming, etc are expected and positive signs. Free fall

regression with agression can be a sign of a bad reaction and

many DANs feel that we should not let the kids go there.

Vera

mbcomfort

<mcomfort@...> wrote:

Has anyone experienced

big regressions just from doing supplements?

We started down the supplement road with our almost 6 year old PDD

about 6 weeks ago. About 5 days into it he became nervous and

obstinate. This progressed into anger, explosive meltdowns,

tormented frustrations. Basically, way worse than he has been for a

long time pre supps. Right before we started we had heard such

wonderful things from his teachers about his gains-esp in cognitive

areas- and even in his more appropriate social interaction. That has

all been erased. He had 4 violent meltdowns tonight just since

returning home from school. If I suggest anything to him it becomes

traumatic and he begins to breaks things and hit/kick me or anything

near him. He's strong! The dog already bit him right under his eye

yesterday because he was mad at her! We started the B12 nasal spray

5 days ago. The Rx said to give it everyday although we are

questioning that dosage. However, he was acting this way before

that. Geesh, it makes me long for the days before when we

were " ignorant " of all that we could do to make him better. Must

kids suffer like this? I can't stand to watch him this way. So many

of you are way farther down this path, but seeing my child this way

when he wasn't before is very disheartening. How in the world do you

even know you are doing the right thing???

Beth

[Guest guest]

Aaaaaahhhhhhhhhhhh!!!!!!!!!!!!!!!

please do me a favor and SMACK your

nutritionist. Right upside his/her head. Shame on him/her.

Don’t ever start 2 treatments at

the same time, much less 10-12. this is exactly why you don’t. if you

cram everything in, and you get a reaction, you have no idea of what caused it

and you have to start all over again.

I’d pull them all out and start

with the least likely to offend supplements first. You are not supposed to

start things less than 2 weeks apart. Your nutritionist should know better. L

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mbcomfort

Sent: Thursday, May 11, 2006 8:06

AM

mb12 valtrex

Subject: Re: big

regression from bio med; yes the same happened and we stopped and restarted

Vera,

We started with a nutrionalist that put him ( I also have 2

others doing the supps) on about 10-12 things all at the same time. I was told

to start them all and it was more important that he just got them in his body

as opposed to empty/full stomach issues. We have since added a DAN to our group

and he has told me to stop everything, too.

I don't think the B12 has folinic as he gave us liquid

folinic acid to use, too.

Here is the laundry list of supps......

CalMag

SupNu Thera

Dig/Stomach Enzymes

Acidoph

Liver Support

Amino Balance

5Htp

Gaba

Omega 3

CLO

GLA

Thymus

Ness 601

Taurine

The DAN also wants him on Actos, Mag Sul cream, Theanine,

and Lith but we never started those.

He also gets the red flushed face and ears. I really notice

it when he gets home from school around 3:30. usually I am in for a huge

meltdown around then, too.

My son has an identical twin that is also on supps and

tolerates them better ( some aggression) but is not as effected on the

spectrum. His speech is garbled and his motor planning for it but his social

skills are much better and his pragmatic processing is, too. He is not what I

would say completely typical, but manages much better in the typical world. My

PDD twin had to be pulled from his typical school (he went to both typical and

early intervention) because of the disruption he began to cause.

I just pray we can get him at least back to where he was at

the baseline of the beginning.

Has anyone's kid NOT been able to recover from the

regressions?

mb

Re:

big regression from bio med; yes the same happened and we stopped and restarted

Hi

Yes we did. My son could not tolerate the folinic in Supernuthera

or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids

can not tolerate folinic and will experience much of what you described.

I would say to stop everything and then restart everything one at a

time. Obviously your daughter can not tolerate something.

Also, find out if your nasal is being compounded with folinic as that

could be an issue.

Could you please tell the list what you are using and maybe we can

offer more suggestions?

My son can also not tolerate TMG with mb 12 and has a huge need for

zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc

alone before restarting with much more success.

MB 12 has been a huge part of his progress but for some the initial

road can be a nightmare. My own opinion is some side effects like extra

stimming, etc are expected and positive signs. Free fall

regression with agression can be a sign of a bad reaction and

many DANs feel that we should not let the kids go there.

Vera

mbcomfort

<mcomfort@...> wrote:

Has anyone experienced

big regressions just from doing supplements?

We started down the supplement road with our almost 6 year old PDD

about 6 weeks ago. About 5 days into it he became nervous and

obstinate. This progressed into anger, explosive meltdowns,

tormented frustrations. Basically, way worse than he has been for a

long time pre supps. Right before we started we had heard such

wonderful things from his teachers about his gains-esp in cognitive

areas- and even in his more appropriate social interaction. That has

all been erased. He had 4 violent meltdowns tonight just since

returning home from school. If I suggest anything to him it becomes

traumatic and he begins to breaks things and hit/kick me or anything

near him. He's strong! The dog already bit him right under his eye

yesterday because he was mad at her! We started the B12 nasal spray

5 days ago. The Rx said to give it everyday although we are

questioning that dosage. However, he was acting this way before

that. Geesh, it makes me long for the days before when we

were " ignorant " of all that we could do to make him better. Must

kids suffer like this? I can't stand to watch him this way. So many

of you are way farther down this path, but seeing my child this way

when he wasn't before is very disheartening. How in the world do you

even know you are doing the right thing???

Beth

[Guest guest]

I have to run, but I am with everyone else. You should only do one thing at a time. We have been doing bio med for over one year (two if you count bethanechol) and I still take two weeks to even "tweek" an Rx or add anything new. Some interventions are really basic and easy like Cal/Mag which I might phase in over two weeks. The only thing I am not sure I see is zinc. Are you supplementing zinc? I am sure others would advise, but the order I would start is first CLO (over two weeks) and then zinc and then supernuthera and then taurine. My son can not tolerate MB 12 unless he gets a really good form of zinc every day. A lot of kids have trouble with folinic, so you might try adding that after the MB 12. Best wishes Verambcomfort <mcomfort@...> wrote: Vera, We started with a nutrionalist that put him ( I also have 2 others doing the supps) on about 10-12 things all at the same time. I was told to start them all and it was more important that he just got them in his body as opposed to empty/full stomach issues. We have since added a DAN to our group and he has told me to stop everything, too. I don't think the B12 has folinic as he gave us liquid folinic acid to use, too. Here is the laundry list of supps...... CalMag SupNu Thera Dig/Stomach Enzymes Acidoph Liver Support Amino Balance 5Htp Gaba Omega 3 CLO GLA Thymus Ness 601 Taurine The DAN also wants him on Actos, Mag Sul cream, Theanine, and Lith but we never started those. He also gets the red flushed face and ears. I really notice it when he gets home from school around 3:30. usually I am in for a huge meltdown around then, too. My son has an identical twin that is also on supps and

tolerates them better ( some aggression) but is not as effected on the spectrum. His speech is garbled and his motor planning for it but his social skills are much better and his pragmatic processing is, too. He is not what I would say completely typical, but manages much better in the typical world. My PDD twin had to be pulled from his typical school (he went to both typical and early intervention) because of the disruption he began to cause. I just pray we can get him at least back to where he was at the baseline of the beginning. Has anyone's kid NOT been able to recover from the regressions? mb Re: big regression from bio med; yes the same happened and we stopped and restarted Hi Yes we did. My son could not tolerate the folinic in Supernuthera or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids can not tolerate folinic and will experience much of what you described. I would say to stop everything and then restart everything one at a time. Obviously your daughter can not tolerate something. Also, find out if your nasal is being compounded with folinic as that could be an issue. Could you please tell the list what you are using and maybe we can offer more suggestions? My son can also not tolerate TMG with mb 12 and has a huge need for zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc alone before restarting with much more success. MB 12 has been a huge part of his progress but for some the initial road can be a nightmare. My own opinion is some side effects like extra stimming, etc are expected and positive signs. Free fall regression with agression can be a sign of a bad reaction and many DANs feel that we should not let the kids go there. Vera mbcomfort <mcomfort@...> wrote: Has anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray

5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

I have to run, but I am with everyone else. You should only do one thing at a time. We have been doing bio med for over one year (two if you count bethanechol) and I still take two weeks to even "tweek" an Rx or add anything new. Some interventions are really basic and easy like Cal/Mag which I might phase in over two weeks. The only thing I am not sure I see is zinc. Are you supplementing zinc? I am sure others would advise, but the order I would start is first CLO (over two weeks) and then zinc and then supernuthera and then taurine. My son can not tolerate MB 12 unless he gets a really good form of zinc every day. A lot of kids have trouble with folinic, so you might try adding that after the MB 12. Best wishes Verambcomfort <mcomfort@...> wrote: Vera, We started with a nutrionalist that put him ( I also have 2 others doing the supps) on about 10-12 things all at the same time. I was told to start them all and it was more important that he just got them in his body as opposed to empty/full stomach issues. We have since added a DAN to our group and he has told me to stop everything, too. I don't think the B12 has folinic as he gave us liquid folinic acid to use, too. Here is the laundry list of supps...... CalMag SupNu Thera Dig/Stomach Enzymes Acidoph Liver Support Amino Balance 5Htp Gaba Omega 3 CLO GLA Thymus Ness 601 Taurine The DAN also wants him on Actos, Mag Sul cream, Theanine, and Lith but we never started those. He also gets the red flushed face and ears. I really notice it when he gets home from school around 3:30. usually I am in for a huge meltdown around then, too. My son has an identical twin that is also on supps and

tolerates them better ( some aggression) but is not as effected on the spectrum. His speech is garbled and his motor planning for it but his social skills are much better and his pragmatic processing is, too. He is not what I would say completely typical, but manages much better in the typical world. My PDD twin had to be pulled from his typical school (he went to both typical and early intervention) because of the disruption he began to cause. I just pray we can get him at least back to where he was at the baseline of the beginning. Has anyone's kid NOT been able to recover from the regressions? mb Re: big regression from bio med; yes the same happened and we stopped and restarted Hi Yes we did. My son could not tolerate the folinic in Supernuthera or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids can not tolerate folinic and will experience much of what you described. I would say to stop everything and then restart everything one at a time. Obviously your daughter can not tolerate something. Also, find out if your nasal is being compounded with folinic as that could be an issue. Could you please tell the list what you are using and maybe we can offer more suggestions? My son can also not tolerate TMG with mb 12 and has a huge need for zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc alone before restarting with much more success. MB 12 has been a huge part of his progress but for some the initial road can be a nightmare. My own opinion is some side effects like extra stimming, etc are expected and positive signs. Free fall regression with agression can be a sign of a bad reaction and many DANs feel that we should not let the kids go there. Vera mbcomfort <mcomfort@...> wrote: Has anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray

5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

I have to run, but I am with everyone else. You should only do one thing at a time. We have been doing bio med for over one year (two if you count bethanechol) and I still take two weeks to even "tweek" an Rx or add anything new. Some interventions are really basic and easy like Cal/Mag which I might phase in over two weeks. The only thing I am not sure I see is zinc. Are you supplementing zinc? I am sure others would advise, but the order I would start is first CLO (over two weeks) and then zinc and then supernuthera and then taurine. My son can not tolerate MB 12 unless he gets a really good form of zinc every day. A lot of kids have trouble with folinic, so you might try adding that after the MB 12. Best wishes Verambcomfort <mcomfort@...> wrote: Vera, We started with a nutrionalist that put him ( I also have 2 others doing the supps) on about 10-12 things all at the same time. I was told to start them all and it was more important that he just got them in his body as opposed to empty/full stomach issues. We have since added a DAN to our group and he has told me to stop everything, too. I don't think the B12 has folinic as he gave us liquid folinic acid to use, too. Here is the laundry list of supps...... CalMag SupNu Thera Dig/Stomach Enzymes Acidoph Liver Support Amino Balance 5Htp Gaba Omega 3 CLO GLA Thymus Ness 601 Taurine The DAN also wants him on Actos, Mag Sul cream, Theanine, and Lith but we never started those. He also gets the red flushed face and ears. I really notice it when he gets home from school around 3:30. usually I am in for a huge meltdown around then, too. My son has an identical twin that is also on supps and

tolerates them better ( some aggression) but is not as effected on the spectrum. His speech is garbled and his motor planning for it but his social skills are much better and his pragmatic processing is, too. He is not what I would say completely typical, but manages much better in the typical world. My PDD twin had to be pulled from his typical school (he went to both typical and early intervention) because of the disruption he began to cause. I just pray we can get him at least back to where he was at the baseline of the beginning. Has anyone's kid NOT been able to recover from the regressions? mb Re: big regression from bio med; yes the same happened and we stopped and restarted Hi Yes we did. My son could not tolerate the folinic in Supernuthera or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids can not tolerate folinic and will experience much of what you described. I would say to stop everything and then restart everything one at a time. Obviously your daughter can not tolerate something. Also, find out if your nasal is being compounded with folinic as that could be an issue. Could you please tell the list what you are using and maybe we can offer more suggestions? My son can also not tolerate TMG with mb 12 and has a huge need for zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc alone before restarting with much more success. MB 12 has been a huge part of his progress but for some the initial road can be a nightmare. My own opinion is some side effects like extra stimming, etc are expected and positive signs. Free fall regression with agression can be a sign of a bad reaction and many DANs feel that we should not let the kids go there. Vera mbcomfort <mcomfort@...> wrote: Has anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray

5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

good email

its too much at once. one needs to know what each

change does as best we can. I would never start so

much so fast so new. one cant know what is doing what.

document document document

--- Holly Bortfeld <maximom@...> wrote:

> Aaaaaahhhhhhhhhhhh!!!!!!!!!!!!!!!

>

>

>

> please do me a favor and SMACK your nutritionist.

> Right upside his/her

> head. Shame on him/her.

>

>

>

> Don't ever start 2 treatments at the same time, much

> less 10-12. this is

> exactly why you don't. if you cram everything in,

> and you get a reaction,

> you have no idea of what caused it and you have to

> start all over again.

>

>

>

> I'd pull them all out and start with the least

> likely to offend supplements

> first. You are not supposed to start things less

> than 2 weeks apart. Your

> nutritionist should know better. :-(

>

>

>

> _____

>

> From: mb12 valtrex

> [mailto:mb12 valtrex ] On

> Behalf Of mbcomfort

> Sent: Thursday, May 11, 2006 8:06 AM

> mb12 valtrex

> Subject: Re: big regression from bio

> med; yes the same

> happened and we stopped and restarted

>

>

>

> Vera,

>

> We started with a nutrionalist that put him ( I also

> have 2 others doing the

> supps) on about 10-12 things all at the same time. I

> was told to start them

> all and it was more important that he just got them

> in his body as opposed

> to empty/full stomach issues. We have since added a

> DAN to our group and he

> has told me to stop everything, too.

>

> I don't think the B12 has folinic as he gave us

> liquid folinic acid to use,

> too.

>

>

>

> Here is the laundry list of supps......

>

> CalMag

>

> SupNu Thera

>

> Dig/Stomach Enzymes

>

> Acidoph

>

> Liver Support

>

> Amino Balance

>

> 5Htp

>

> Gaba

>

> Omega 3

>

> CLO

>

> GLA

>

> Thymus

>

> Ness 601

>

> Taurine

>

> The DAN also wants him on Actos, Mag Sul cream,

> Theanine, and Lith but we

> never started those.

>

> He also gets the red flushed face and ears. I really

> notice it when he gets

> home from school around 3:30. usually I am in for a

> huge meltdown around

> then, too.

>

> My son has an identical twin that is also on supps

> and tolerates them better

> ( some aggression) but is not as effected on the

> spectrum. His speech is

> garbled and his motor planning for it but his social

> skills are much better

> and his pragmatic processing is, too. He is not what

> I would say completely

> typical, but manages much better in the typical

> world. My PDD twin had to be

> pulled from his typical school (he went to both

> typical and early

> intervention) because of the disruption he began to

> cause.

>

> I just pray we can get him at least back to where he

> was at the baseline of

> the beginning.

>

> Has anyone's kid NOT been able to recover from the

> regressions?

>

> mb

>

> Re: big regression from bio

> med; yes the same

> happened and we stopped and restarted

>

>

>

> Hi

>

> Yes we did. My son could not tolerate the folinic

> in Supernuthera or as a

> stand alone supplement. Per Dr. Neubrander, about

> 20-30% of kids can not

> tolerate folinic and will experience much of what

> you described.

>

>

>

> I would say to stop everything and then restart

> everything one at a time.

> Obviously your daughter can not tolerate something.

>

>

>

> Also, find out if your nasal is being compounded

> with folinic as that could

> be an issue.

>

>

>

> Could you please tell the list what you are using

> and maybe we can offer

> more suggestions?

>

>

>

> My son can also not tolerate TMG with mb 12 and has

> a huge need for zinc

> monomethionine while on MB 12. We had to stop MB 12

> and then do zinc alone

> before restarting with much more success.

>

>

>

> MB 12 has been a huge part of his progress but for

> some the initial road can

> be a nightmare. My own opinion is some side effects

> like extra stimming,

> etc are expected and positive signs. Free fall

> regression with agression

> can be a sign of a bad reaction and many DANs feel

> that we should not let

> the kids go there.

>

>

>

> Vera

>

>

>

>

>

> mbcomfort <mcomfort@...> wrote:

>

> Has anyone experienced big regressions just from

> doing supplements?

> We started down the supplement road with our almost

> 6 year old PDD

> about 6 weeks ago. About 5 days into it he became

> nervous and

> obstinate. This progressed into anger, explosive

> meltdowns,

>

=== message truncated ===

__________________________________________________

[Guest guest]

good email

its too much at once. one needs to know what each

change does as best we can. I would never start so

much so fast so new. one cant know what is doing what.

document document document

--- Holly Bortfeld <maximom@...> wrote:

> Aaaaaahhhhhhhhhhhh!!!!!!!!!!!!!!!

>

>

>

> please do me a favor and SMACK your nutritionist.

> Right upside his/her

> head. Shame on him/her.

>

>

>

> Don't ever start 2 treatments at the same time, much

> less 10-12. this is

> exactly why you don't. if you cram everything in,

> and you get a reaction,

> you have no idea of what caused it and you have to

> start all over again.

>

>

>

> I'd pull them all out and start with the least

> likely to offend supplements

> first. You are not supposed to start things less

> than 2 weeks apart. Your

> nutritionist should know better. :-(

>

>

>

> _____

>

> From: mb12 valtrex

> [mailto:mb12 valtrex ] On

> Behalf Of mbcomfort

> Sent: Thursday, May 11, 2006 8:06 AM

> mb12 valtrex

> Subject: Re: big regression from bio

> med; yes the same

> happened and we stopped and restarted

>

>

>

> Vera,

>

> We started with a nutrionalist that put him ( I also

> have 2 others doing the

> supps) on about 10-12 things all at the same time. I

> was told to start them

> all and it was more important that he just got them

> in his body as opposed

> to empty/full stomach issues. We have since added a

> DAN to our group and he

> has told me to stop everything, too.

>

> I don't think the B12 has folinic as he gave us

> liquid folinic acid to use,

> too.

>

>

>

> Here is the laundry list of supps......

>

> CalMag

>

> SupNu Thera

>

> Dig/Stomach Enzymes

>

> Acidoph

>

> Liver Support

>

> Amino Balance

>

> 5Htp

>

> Gaba

>

> Omega 3

>

> CLO

>

> GLA

>

> Thymus

>

> Ness 601

>

> Taurine

>

> The DAN also wants him on Actos, Mag Sul cream,

> Theanine, and Lith but we

> never started those.

>

> He also gets the red flushed face and ears. I really

> notice it when he gets

> home from school around 3:30. usually I am in for a

> huge meltdown around

> then, too.

>

> My son has an identical twin that is also on supps

> and tolerates them better

> ( some aggression) but is not as effected on the

> spectrum. His speech is

> garbled and his motor planning for it but his social

> skills are much better

> and his pragmatic processing is, too. He is not what

> I would say completely

> typical, but manages much better in the typical

> world. My PDD twin had to be

> pulled from his typical school (he went to both

> typical and early

> intervention) because of the disruption he began to

> cause.

>

> I just pray we can get him at least back to where he

> was at the baseline of

> the beginning.

>

> Has anyone's kid NOT been able to recover from the

> regressions?

>

> mb

>

> Re: big regression from bio

> med; yes the same

> happened and we stopped and restarted

>

>

>

> Hi

>

> Yes we did. My son could not tolerate the folinic

> in Supernuthera or as a

> stand alone supplement. Per Dr. Neubrander, about

> 20-30% of kids can not

> tolerate folinic and will experience much of what

> you described.

>

>

>

> I would say to stop everything and then restart

> everything one at a time.

> Obviously your daughter can not tolerate something.

>

>

>

> Also, find out if your nasal is being compounded

> with folinic as that could

> be an issue.

>

>

>

> Could you please tell the list what you are using

> and maybe we can offer

> more suggestions?

>

>

>

> My son can also not tolerate TMG with mb 12 and has

> a huge need for zinc

> monomethionine while on MB 12. We had to stop MB 12

> and then do zinc alone

> before restarting with much more success.

>

>

>

> MB 12 has been a huge part of his progress but for

> some the initial road can

> be a nightmare. My own opinion is some side effects

> like extra stimming,

> etc are expected and positive signs. Free fall

> regression with agression

> can be a sign of a bad reaction and many DANs feel

> that we should not let

> the kids go there.

>

>

>

> Vera

>

>

>

>

>

> mbcomfort <mcomfort@...> wrote:

>

> Has anyone experienced big regressions just from

> doing supplements?

> We started down the supplement road with our almost

> 6 year old PDD

> about 6 weeks ago. About 5 days into it he became

> nervous and

> obstinate. This progressed into anger, explosive

> meltdowns,

>

=== message truncated ===

__________________________________________________

[Guest guest]

We have no posts about regression that haven't gone away from either waiting it

out or

stopping Valtrex (some people don't hold out and stop... some I even encourage

to stop if

they can't see any gains at all for more than 45 days straight (assuming they

are on an

antifungal and have the gut in check).

- Stan

> Has anyone experienced big regressions just from doing supplements?

> We started down the supplement road with our almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he became nervous and

> obstinate. This progressed into anger, explosive meltdowns,

> tormented frustrations. Basically, way worse than he has been for a

> long time pre supps. Right before we started we had heard such

> wonderful things from his teachers about his gains-esp in cognitive

> areas- and even in his more appropriate social interaction. That has

> all been erased. He had 4 violent meltdowns tonight just since

> returning home from school. If I suggest anything to him it becomes

> traumatic and he begins to breaks things and hit/kick me or anything

> near him. He's strong! The dog already bit him right under his eye

> yesterday because he was mad at her! We started the B12 nasal spray

> 5 days ago. The Rx said to give it everyday although we are

> questioning that dosage. However, he was acting this way before

> that. Geesh, it makes me long for the days before when we

> were " ignorant " of all that we could do to make him better. Must

> kids suffer like this? I can't stand to watch him this way. So many

> of you are way farther down this path, but seeing my child this way

> when he wasn't before is very disheartening. How in the world do you

> even know you are doing the right thing???

> Beth

>

>

>

>

>

>

>

>

>

[Guest guest]

We have no posts about regression that haven't gone away from either waiting it

out or

stopping Valtrex (some people don't hold out and stop... some I even encourage

to stop if

they can't see any gains at all for more than 45 days straight (assuming they

are on an

antifungal and have the gut in check).

- Stan

> Has anyone experienced big regressions just from doing supplements?

> We started down the supplement road with our almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he became nervous and

> obstinate. This progressed into anger, explosive meltdowns,

> tormented frustrations. Basically, way worse than he has been for a

> long time pre supps. Right before we started we had heard such

> wonderful things from his teachers about his gains-esp in cognitive

> areas- and even in his more appropriate social interaction. That has

> all been erased. He had 4 violent meltdowns tonight just since

> returning home from school. If I suggest anything to him it becomes

> traumatic and he begins to breaks things and hit/kick me or anything

> near him. He's strong! The dog already bit him right under his eye

> yesterday because he was mad at her! We started the B12 nasal spray

> 5 days ago. The Rx said to give it everyday although we are

> questioning that dosage. However, he was acting this way before

> that. Geesh, it makes me long for the days before when we

> were " ignorant " of all that we could do to make him better. Must

> kids suffer like this? I can't stand to watch him this way. So many

> of you are way farther down this path, but seeing my child this way

> when he wasn't before is very disheartening. How in the world do you

> even know you are doing the right thing???

> Beth

>

>

>

>

>

>

>

>

>

[Guest guest]

Vera,

We started with a nutrionalist that put him ( I also have 2 others doing the supps) on about 10-12 things all at the same time. I was told to start them all and it was more important that he just got them in his body as opposed to empty/full stomach issues. We have since added a DAN to our group and he has told me to stop everything, too.

I don't think the B12 has folinic as he gave us liquid folinic acid to use, too.

Here is the laundry list of supps......

CalMag

SupNu Thera

Dig/Stomach Enzymes

Acidoph

Liver Support

Amino Balance

5Htp

Gaba

Omega 3

CLO

GLA

Thymus

Ness 601

Taurine

The DAN also wants him on Actos, Mag Sul cream, Theanine, and Lith but we never started those.

He also gets the red flushed face and ears. I really notice it when he gets home from school around 3:30. usually I am in for a huge meltdown around then, too.

My son has an identical twin that is also on supps and tolerates them better ( some aggression) but is not as effected on the spectrum. His speech is garbled and his motor planning for it but his social skills are much better and his pragmatic processing is, too. He is not what I would say completely typical, but manages much better in the typical world. My PDD twin had to be pulled from his typical school (he went to both typical and early intervention) because of the disruption he began to cause.

I just pray we can get him at least back to where he was at the baseline of the beginning.

Has anyone's kid NOT been able to recover from the regressions?

mb

Re: big regression from bio med; yes the same happened and we stopped and restarted

Hi

Yes we did. My son could not tolerate the folinic in Supernuthera or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids can not tolerate folinic and will experience much of what you described.

I would say to stop everything and then restart everything one at a time. Obviously your daughter can not tolerate something.

Also, find out if your nasal is being compounded with folinic as that could be an issue.

Could you please tell the list what you are using and maybe we can offer more suggestions?

My son can also not tolerate TMG with mb 12 and has a huge need for zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc alone before restarting with much more success.

MB 12 has been a huge part of his progress but for some the initial road can be a nightmare. My own opinion is some side effects like extra stimming, etc are expected and positive signs. Free fall regression with agression can be a sign of a bad reaction and many DANs feel that we should not let the kids go there.

Vera

mbcomfort <mcomfort@...> wrote:

Has anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

Vera,

We started with a nutrionalist that put him ( I also have 2 others doing the supps) on about 10-12 things all at the same time. I was told to start them all and it was more important that he just got them in his body as opposed to empty/full stomach issues. We have since added a DAN to our group and he has told me to stop everything, too.

I don't think the B12 has folinic as he gave us liquid folinic acid to use, too.

Here is the laundry list of supps......

CalMag

SupNu Thera

Dig/Stomach Enzymes

Acidoph

Liver Support

Amino Balance

5Htp

Gaba

Omega 3

CLO

GLA

Thymus

Ness 601

Taurine

The DAN also wants him on Actos, Mag Sul cream, Theanine, and Lith but we never started those.

He also gets the red flushed face and ears. I really notice it when he gets home from school around 3:30. usually I am in for a huge meltdown around then, too.

My son has an identical twin that is also on supps and tolerates them better ( some aggression) but is not as effected on the spectrum. His speech is garbled and his motor planning for it but his social skills are much better and his pragmatic processing is, too. He is not what I would say completely typical, but manages much better in the typical world. My PDD twin had to be pulled from his typical school (he went to both typical and early intervention) because of the disruption he began to cause.

I just pray we can get him at least back to where he was at the baseline of the beginning.

Has anyone's kid NOT been able to recover from the regressions?

mb

Re: big regression from bio med; yes the same happened and we stopped and restarted

Hi

Yes we did. My son could not tolerate the folinic in Supernuthera or as a stand alone supplement. Per Dr. Neubrander, about 20-30% of kids can not tolerate folinic and will experience much of what you described.

I would say to stop everything and then restart everything one at a time. Obviously your daughter can not tolerate something.

Also, find out if your nasal is being compounded with folinic as that could be an issue.

Could you please tell the list what you are using and maybe we can offer more suggestions?

My son can also not tolerate TMG with mb 12 and has a huge need for zinc monomethionine while on MB 12. We had to stop MB 12 and then do zinc alone before restarting with much more success.

MB 12 has been a huge part of his progress but for some the initial road can be a nightmare. My own opinion is some side effects like extra stimming, etc are expected and positive signs. Free fall regression with agression can be a sign of a bad reaction and many DANs feel that we should not let the kids go there.

Vera

mbcomfort <mcomfort@...> wrote:

Has anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth