RE: big regression from bio med

[Guest guest]

Dear Beth,

The answer is Yes. I do believe that we all have experience the same regression from one or several supplements. The one that my son has the worse issues with is Methyl-B12 with folinic acid nasal spray and transdermal Rx with a soy base. It sounds like you are just getting started with this biomedical journey. My advice: Start slow, write it down, start with one at a time for 3 to 5 days before you add your next supplement so you know what is not working and can easily remove it, keep writing down. It took my son about 3 weeks to recover from that bad regression. With other things I have tried that have not worked, it usually has taken 2 to 3 days. So hang in there.

Also, if you are doing M-B12 with folinic acid, call the pharmacy and request it without folinic acid. Then start slow once he is okay. I just restarted it a week ago skipping a day, and he has not had any bad reactions. I am planning to do that for another 2 weeks and then start to bring them back to every day.

Good luck.

.

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mbcomfortSent: Tuesday, May 09, 2006 10:59 PMmb12 valtrex Subject: big regression from bio medHas anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

Dear Beth,

The answer is Yes. I do believe that we all have experience the same regression from one or several supplements. The one that my son has the worse issues with is Methyl-B12 with folinic acid nasal spray and transdermal Rx with a soy base. It sounds like you are just getting started with this biomedical journey. My advice: Start slow, write it down, start with one at a time for 3 to 5 days before you add your next supplement so you know what is not working and can easily remove it, keep writing down. It took my son about 3 weeks to recover from that bad regression. With other things I have tried that have not worked, it usually has taken 2 to 3 days. So hang in there.

Also, if you are doing M-B12 with folinic acid, call the pharmacy and request it without folinic acid. Then start slow once he is okay. I just restarted it a week ago skipping a day, and he has not had any bad reactions. I am planning to do that for another 2 weeks and then start to bring them back to every day.

Good luck.

.

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mbcomfortSent: Tuesday, May 09, 2006 10:59 PMmb12 valtrex Subject: big regression from bio medHas anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

There are lots of supplements my son does not tolerate eventhough he

needs them. The usual rule is to start one thing at a time and at a

very low dose (1/8 of the target dose). This way, if your child does

not tolerate it, you can stop it, or stay on a lower dose.

Sometimes, the fastest way to figuring things out is to stop

everything until your child is back to normal. Then, restart one sup

at a time very slowly. Keep a daily log, it helps to figure out which

suplement causes problems.

>

> Has anyone experienced big regressions just from doing supplements?

> We started down the supplement road with our almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he became nervous and

> obstinate. This progressed into anger, explosive meltdowns,

> tormented frustrations. Basically, way worse than he has been for a

> long time pre supps. Right before we started we had heard such

> wonderful things from his teachers about his gains-esp in cognitive

> areas- and even in his more appropriate social interaction. That

has

> all been erased. He had 4 violent meltdowns tonight just since

> returning home from school. If I suggest anything to him it becomes

> traumatic and he begins to breaks things and hit/kick me or

anything

> near him. He's strong! The dog already bit him right under his eye

> yesterday because he was mad at her! We started the B12 nasal spray

> 5 days ago. The Rx said to give it everyday although we are

> questioning that dosage. However, he was acting this way before

> that. Geesh, it makes me long for the days before when we

> were " ignorant " of all that we could do to make him better. Must

> kids suffer like this? I can't stand to watch him this way. So many

> of you are way farther down this path, but seeing my child this way

> when he wasn't before is very disheartening. How in the world do

you

> even know you are doing the right thing???

> Beth

>

[Guest guest]

There are lots of supplements my son does not tolerate eventhough he

needs them. The usual rule is to start one thing at a time and at a

very low dose (1/8 of the target dose). This way, if your child does

not tolerate it, you can stop it, or stay on a lower dose.

Sometimes, the fastest way to figuring things out is to stop

everything until your child is back to normal. Then, restart one sup

at a time very slowly. Keep a daily log, it helps to figure out which

suplement causes problems.

>

> Has anyone experienced big regressions just from doing supplements?

> We started down the supplement road with our almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he became nervous and

> obstinate. This progressed into anger, explosive meltdowns,

> tormented frustrations. Basically, way worse than he has been for a

> long time pre supps. Right before we started we had heard such

> wonderful things from his teachers about his gains-esp in cognitive

> areas- and even in his more appropriate social interaction. That

has

> all been erased. He had 4 violent meltdowns tonight just since

> returning home from school. If I suggest anything to him it becomes

> traumatic and he begins to breaks things and hit/kick me or

anything

> near him. He's strong! The dog already bit him right under his eye

> yesterday because he was mad at her! We started the B12 nasal spray

> 5 days ago. The Rx said to give it everyday although we are

> questioning that dosage. However, he was acting this way before

> that. Geesh, it makes me long for the days before when we

> were " ignorant " of all that we could do to make him better. Must

> kids suffer like this? I can't stand to watch him this way. So many

> of you are way farther down this path, but seeing my child this way

> when he wasn't before is very disheartening. How in the world do

you

> even know you are doing the right thing???

> Beth

>

[Guest guest]

could probably address this better than I can but I see the big

advantage of Amy Yasko's protocol, with all the genetic testing, as

predicting which supplements/treatments commonly recommended by DAN!

docs will result in regression in your individual child. If your

child has particular genetic mutations, he may not be able to

tolerate MB12 because it gets recycled in the body before doing all

the work it is expected to do in people without that mutation. If

another mutation is present, sulfur-based agents may cause

problems. I see the ignorance of these genetic mutations among most

DAN! docs as one of the greatest current problems in the DAN!

movement.

That being said, Dr. Yasko's protocol can be pretty overwhelming for

those new to biomedical intervention. More info at

http://www.autismanswer.com/

Most of the best information is in the parent discussion group,

which requires free registration.

Vance

>

> Has anyone experienced big regressions just from doing

supplements?

> We started down the supplement road with our almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he became nervous and

> obstinate. This progressed into anger, explosive meltdowns,

> tormented frustrations. Basically, way worse than he has been for

a

> long time pre supps. Right before we started we had heard such

> wonderful things from his teachers about his gains-esp in

cognitive

> areas- and even in his more appropriate social interaction. That

has

> all been erased. He had 4 violent meltdowns tonight just since

> returning home from school. If I suggest anything to him it

becomes

> traumatic and he begins to breaks things and hit/kick me or

anything

> near him. He's strong! The dog already bit him right under his eye

> yesterday because he was mad at her! We started the B12 nasal

spray

> 5 days ago. The Rx said to give it everyday although we are

> questioning that dosage. However, he was acting this way before

> that. Geesh, it makes me long for the days before when we

> were " ignorant " of all that we could do to make him better. Must

> kids suffer like this? I can't stand to watch him this way. So

many

> of you are way farther down this path, but seeing my child this

way

> when he wasn't before is very disheartening. How in the world do

you

> even know you are doing the right thing???

> Beth

>

[Guest guest]

could probably address this better than I can but I see the big

advantage of Amy Yasko's protocol, with all the genetic testing, as

predicting which supplements/treatments commonly recommended by DAN!

docs will result in regression in your individual child. If your

child has particular genetic mutations, he may not be able to

tolerate MB12 because it gets recycled in the body before doing all

the work it is expected to do in people without that mutation. If

another mutation is present, sulfur-based agents may cause

problems. I see the ignorance of these genetic mutations among most

DAN! docs as one of the greatest current problems in the DAN!

movement.

That being said, Dr. Yasko's protocol can be pretty overwhelming for

those new to biomedical intervention. More info at

http://www.autismanswer.com/

Most of the best information is in the parent discussion group,

which requires free registration.

Vance

>

> Has anyone experienced big regressions just from doing

supplements?

> We started down the supplement road with our almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he became nervous and

> obstinate. This progressed into anger, explosive meltdowns,

> tormented frustrations. Basically, way worse than he has been for

a

> long time pre supps. Right before we started we had heard such

> wonderful things from his teachers about his gains-esp in

cognitive

> areas- and even in his more appropriate social interaction. That

has

> all been erased. He had 4 violent meltdowns tonight just since

> returning home from school. If I suggest anything to him it

becomes

> traumatic and he begins to breaks things and hit/kick me or

anything

> near him. He's strong! The dog already bit him right under his eye

> yesterday because he was mad at her! We started the B12 nasal

spray

> 5 days ago. The Rx said to give it everyday although we are

> questioning that dosage. However, he was acting this way before

> that. Geesh, it makes me long for the days before when we

> were " ignorant " of all that we could do to make him better. Must

> kids suffer like this? I can't stand to watch him this way. So

many

> of you are way farther down this path, but seeing my child this

way

> when he wasn't before is very disheartening. How in the world do

you

> even know you are doing the right thing???

> Beth

>

[Guest guest]

could probably address this better than I can but I see the big

advantage of Amy Yasko's protocol, with all the genetic testing, as

predicting which supplements/treatments commonly recommended by DAN!

docs will result in regression in your individual child. If your

child has particular genetic mutations, he may not be able to

tolerate MB12 because it gets recycled in the body before doing all

the work it is expected to do in people without that mutation. If

another mutation is present, sulfur-based agents may cause

problems. I see the ignorance of these genetic mutations among most

DAN! docs as one of the greatest current problems in the DAN!

movement.

That being said, Dr. Yasko's protocol can be pretty overwhelming for

those new to biomedical intervention. More info at

http://www.autismanswer.com/

Most of the best information is in the parent discussion group,

which requires free registration.

Vance

>

> Has anyone experienced big regressions just from doing

supplements?

> We started down the supplement road with our almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he became nervous and

> obstinate. This progressed into anger, explosive meltdowns,

> tormented frustrations. Basically, way worse than he has been for

a

> long time pre supps. Right before we started we had heard such

> wonderful things from his teachers about his gains-esp in

cognitive

> areas- and even in his more appropriate social interaction. That

has

> all been erased. He had 4 violent meltdowns tonight just since

> returning home from school. If I suggest anything to him it

becomes

> traumatic and he begins to breaks things and hit/kick me or

anything

> near him. He's strong! The dog already bit him right under his eye

> yesterday because he was mad at her! We started the B12 nasal

spray

> 5 days ago. The Rx said to give it everyday although we are

> questioning that dosage. However, he was acting this way before

> that. Geesh, it makes me long for the days before when we

> were " ignorant " of all that we could do to make him better. Must

> kids suffer like this? I can't stand to watch him this way. So

many

> of you are way farther down this path, but seeing my child this

way

> when he wasn't before is very disheartening. How in the world do

you

> even know you are doing the right thing???

> Beth

>

[Guest guest]

You have not thrown your money away. You have all the supplements you need. You just need to go back to baseline and then start over more slowly. The only time we tried to do 2 interventions at once (MB 12 shots + folinic) turned out to be the worst two weeks of our life. But then we stopped everything and slowly added back one supplelemt at a time. He is now thriving. My son is now HFA and in a special education public preschool. It was so bad during our regression that he had to leave school. Two weeks later he was getting good reports. So you will use everything you had. You just got some advice that sent you on a detour. Verambcomfort <mcomfort@...> wrote: Thanks, . All his nutritional and liver levels were so bad I guess I just assumed his body was going to love getting the right things in it. Guess I was wrong. His body was bad but stable. I guess anything we put into it is going to mess that up. I had really hoped to see some good by now. In some ways I feel like I have just thrown away my money. mb RE: big regression from bio med Dear Beth, The answer is Yes. I do believe that we all have experience the same regression from one or several supplements. The one that my son has the worse issues with is Methyl-B12 with folinic acid nasal spray and transdermal Rx with a soy base. It sounds like you are just getting started with this biomedical journey. My advice: Start slow, write it down, start with one at a time for 3 to 5 days

before you add your next supplement so you know what is not working and can easily remove it, keep writing down. It took my son about 3 weeks to recover from that bad regression. With other things I have tried that have not worked, it usually has taken 2 to 3 days. So hang in there. Also, if you are doing M-B12 with folinic acid, call the pharmacy and request it without folinic acid. Then start slow once he is okay. I just restarted it a week ago skipping a day, and he has not had any bad reactions. I am planning to do that for another 2 weeks and then start to bring them back to every day. Good luck. . -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mbcomfortSent: Tuesday, May 09, 2006 10:59 PMmb12 valtrex Subject: big regression from bio medHas anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into

anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him

this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

Beth,

I saw on one of your e-mails the supplements you are using. Super nu

thera and Cal/Mag were very bad for my son!!!! I had to take them away.

CLO must be given slowly to some kids too. You have to start them one at a

time and work up slowly. There is no other way to figure out which

supplements are not being utilized properly. Keep asking the parents,

because that's where you're going to get the best applicable suggestions.

Good luck,

big regression from bio med

Has anyone experienced big regressions just from doing supplements?

We started down the supplement road with our almost 6 year old PDD

about 6 weeks ago. About 5 days into it he became nervous and

obstinate. This progressed into anger, explosive meltdowns,

tormented frustrations. Basically, way worse than he has been for a

long time pre supps. Right before we started we had heard such

wonderful things from his teachers about his gains-esp in cognitive

areas- and even in his more appropriate social interaction. That has

all been erased. He had 4 violent meltdowns tonight just since

returning home from school. If I suggest anything to him it becomes

traumatic and he begins to breaks things and hit/kick me or anything

near him. He's strong! The dog already bit him right under his eye

yesterday because he was mad at her! We started the B12 nasal spray

5 days ago. The Rx said to give it everyday although we are

questioning that dosage. However, he was acting this way before

that. Geesh, it makes me long for the days before when we

were " ignorant " of all that we could do to make him better. Must

kids suffer like this? I can't stand to watch him this way. So many

of you are way farther down this path, but seeing my child this way

when he wasn't before is very disheartening. How in the world do you

even know you are doing the right thing???

Beth

[Guest guest]

Beth,

I saw on one of your e-mails the supplements you are using. Super nu

thera and Cal/Mag were very bad for my son!!!! I had to take them away.

CLO must be given slowly to some kids too. You have to start them one at a

time and work up slowly. There is no other way to figure out which

supplements are not being utilized properly. Keep asking the parents,

because that's where you're going to get the best applicable suggestions.

Good luck,

big regression from bio med

Has anyone experienced big regressions just from doing supplements?

We started down the supplement road with our almost 6 year old PDD

about 6 weeks ago. About 5 days into it he became nervous and

obstinate. This progressed into anger, explosive meltdowns,

tormented frustrations. Basically, way worse than he has been for a

long time pre supps. Right before we started we had heard such

wonderful things from his teachers about his gains-esp in cognitive

areas- and even in his more appropriate social interaction. That has

all been erased. He had 4 violent meltdowns tonight just since

returning home from school. If I suggest anything to him it becomes

traumatic and he begins to breaks things and hit/kick me or anything

near him. He's strong! The dog already bit him right under his eye

yesterday because he was mad at her! We started the B12 nasal spray

5 days ago. The Rx said to give it everyday although we are

questioning that dosage. However, he was acting this way before

that. Geesh, it makes me long for the days before when we

were " ignorant " of all that we could do to make him better. Must

kids suffer like this? I can't stand to watch him this way. So many

of you are way farther down this path, but seeing my child this way

when he wasn't before is very disheartening. How in the world do you

even know you are doing the right thing???

Beth

[Guest guest]

Beth, ditto on what everyone is saying. We cannot give our son ANY

multi-complex of vitamins or minerals (he regressed on every 'ready

mixture' we have tried so far), we have to supplement every single thing

separately. If you are adding new things, always start VERY low, build

up gradually and watch out for reactions, and don't introduce anything

else until you reach the full dose of the previous supplement.

mb12 should not be started shortly after starting anything else!!! You

are also not supposed to introduce anything else (including folinic)

within 5 weeks. that is the only way to judge benefits/negatives.

Good luck with it all,

Natasa

>

> Has anyone experienced big regressions just from doing supplements?

> We started down the supplement road with our almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he became nervous and

> obstinate. This progressed into anger, explosive meltdowns,

> tormented frustrations. Basically, way worse than he has been for a

> long time pre supps. Right before we started we had heard such

> wonderful things from his teachers about his gains-esp in cognitive

> areas- and even in his more appropriate social interaction. That has

> all been erased. He had 4 violent meltdowns tonight just since

> returning home from school. If I suggest anything to him it becomes

> traumatic and he begins to breaks things and hit/kick me or anything

> near him. He's strong! The dog already bit him right under his eye

> yesterday because he was mad at her! We started the B12 nasal spray

> 5 days ago. The Rx said to give it everyday although we are

> questioning that dosage. However, he was acting this way before

> that. Geesh, it makes me long for the days before when we

> were " ignorant " of all that we could do to make him better. Must

> kids suffer like this? I can't stand to watch him this way. So many

> of you are way farther down this path, but seeing my child this way

> when he wasn't before is very disheartening. How in the world do you

> even know you are doing the right thing???

> Beth

>

[Guest guest]

The advice to document the progress and problems is

sound. Do it. Slow introduction with documentation

helps keep track of progress. Good Dan physicians

always recommend good record keeping

--- mbcomfort <mcomfort@...> wrote:

> MessageThanks, .

> All his nutritional and liver levels were so bad I

> guess I just assumed his body was going to love

> getting the right things in it. Guess I was wrong.

> His body was bad but stable. I guess anything we put

> into it is going to mess that up. I had really hoped

> to see some good by now. In some ways I feel like I

> have just thrown away my money.

> mb

> big regression from bio

> med

>

>

> Has anyone experienced big regressions just from

> doing supplements?

> We started down the supplement road with our

> almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he

> became nervous and

> obstinate. This progressed into anger, explosive

> meltdowns,

> tormented frustrations. Basically, way worse

> than he has been for a

> long time pre supps. Right before we started we

> had heard such

> wonderful things from his teachers about his

> gains-esp in cognitive

> areas- and even in his more appropriate social

> interaction. That has

> all been erased. He had 4 violent meltdowns

> tonight just since

> returning home from school. If I suggest

> anything to him it becomes

> traumatic and he begins to breaks things and

> hit/kick me or anything

> near him. He's strong! The dog already bit him

> right under his eye

> yesterday because he was mad at her! We started

> the B12 nasal spray

> 5 days ago. The Rx said to give it everyday

> although we are

> questioning that dosage. However, he was acting

> this way before

> that. Geesh, it makes me long for the days

> before when we

> were " ignorant " of all that we could do to make

> him better. Must

> kids suffer like this? I can't stand to watch

> him this way. So many

> of you are way farther down this path, but

> seeing my child this way

> when he wasn't before is very disheartening. How

> in the world do you

> even know you are doing the right thing???

> Beth

>

>

>

>

>

>

>

[Guest guest]

The advice to document the progress and problems is

sound. Do it. Slow introduction with documentation

helps keep track of progress. Good Dan physicians

always recommend good record keeping

--- mbcomfort <mcomfort@...> wrote:

> MessageThanks, .

> All his nutritional and liver levels were so bad I

> guess I just assumed his body was going to love

> getting the right things in it. Guess I was wrong.

> His body was bad but stable. I guess anything we put

> into it is going to mess that up. I had really hoped

> to see some good by now. In some ways I feel like I

> have just thrown away my money.

> mb

> big regression from bio

> med

>

>

> Has anyone experienced big regressions just from

> doing supplements?

> We started down the supplement road with our

> almost 6 year old PDD

> about 6 weeks ago. About 5 days into it he

> became nervous and

> obstinate. This progressed into anger, explosive

> meltdowns,

> tormented frustrations. Basically, way worse

> than he has been for a

> long time pre supps. Right before we started we

> had heard such

> wonderful things from his teachers about his

> gains-esp in cognitive

> areas- and even in his more appropriate social

> interaction. That has

> all been erased. He had 4 violent meltdowns

> tonight just since

> returning home from school. If I suggest

> anything to him it becomes

> traumatic and he begins to breaks things and

> hit/kick me or anything

> near him. He's strong! The dog already bit him

> right under his eye

> yesterday because he was mad at her! We started

> the B12 nasal spray

> 5 days ago. The Rx said to give it everyday

> although we are

> questioning that dosage. However, he was acting

> this way before

> that. Geesh, it makes me long for the days

> before when we

> were " ignorant " of all that we could do to make

> him better. Must

> kids suffer like this? I can't stand to watch

> him this way. So many

> of you are way farther down this path, but

> seeing my child this way

> when he wasn't before is very disheartening. How

> in the world do you

> even know you are doing the right thing???

> Beth

>

>

>

>

>

>

>

[Guest guest]

Hi Vance,

Gene testing may be good for some, but the problem is one gene or even several

genes

may not be able to predict what vitamins or supplments will work. We are really

early on

in the gene game. I see many people who should respond to MB12 based on these

tests

who DON'T and many who should't respond to MB12 who DO.

I'm not saying throw out gene testing right now. But until we understand more

genes, it

still seems the best way to test if MB12 or folinic will work... is to try it.

It's certainly the

least expensive way in many cases since it only takes a short period of time to

see if it's

working or not IMO.

I'm an Amy Yasko fan... but I also see the flaw in thinking we understand what

all the

mutations will mean from a metabolic standpoint. There are too many possible

ways to

make or break the pathways and we just don't have all the answers yet.

Using genetic tests as a basis of forming a strategy to start with may make

sense, but I

wouldn't completely rely on any genetic test to provide the ultimate roadmap to

recovery

for my child. Ultimately, when it comes to optimizing our strategy, it will

often come

down to trial and error.

- Stan

> >

> > Has anyone experienced big regressions just from doing

> supplements?

> > We started down the supplement road with our almost 6 year old PDD

> > about 6 weeks ago. About 5 days into it he became nervous and

> > obstinate. This progressed into anger, explosive meltdowns,

> > tormented frustrations. Basically, way worse than he has been for

> a

> > long time pre supps. Right before we started we had heard such

> > wonderful things from his teachers about his gains-esp in

> cognitive

> > areas- and even in his more appropriate social interaction. That

> has

> > all been erased. He had 4 violent meltdowns tonight just since

> > returning home from school. If I suggest anything to him it

> becomes

> > traumatic and he begins to breaks things and hit/kick me or

> anything

> > near him. He's strong! The dog already bit him right under his eye

> > yesterday because he was mad at her! We started the B12 nasal

> spray

> > 5 days ago. The Rx said to give it everyday although we are

> > questioning that dosage. However, he was acting this way before

> > that. Geesh, it makes me long for the days before when we

> > were " ignorant " of all that we could do to make him better. Must

> > kids suffer like this? I can't stand to watch him this way. So

> many

> > of you are way farther down this path, but seeing my child this

> way

> > when he wasn't before is very disheartening. How in the world do

> you

> > even know you are doing the right thing???

> > Beth

> >

>

[Guest guest]

Hi Vance,

Gene testing may be good for some, but the problem is one gene or even several

genes

may not be able to predict what vitamins or supplments will work. We are really

early on

in the gene game. I see many people who should respond to MB12 based on these

tests

who DON'T and many who should't respond to MB12 who DO.

I'm not saying throw out gene testing right now. But until we understand more

genes, it

still seems the best way to test if MB12 or folinic will work... is to try it.

It's certainly the

least expensive way in many cases since it only takes a short period of time to

see if it's

working or not IMO.

I'm an Amy Yasko fan... but I also see the flaw in thinking we understand what

all the

mutations will mean from a metabolic standpoint. There are too many possible

ways to

make or break the pathways and we just don't have all the answers yet.

Using genetic tests as a basis of forming a strategy to start with may make

sense, but I

wouldn't completely rely on any genetic test to provide the ultimate roadmap to

recovery

for my child. Ultimately, when it comes to optimizing our strategy, it will

often come

down to trial and error.

- Stan

> >

> > Has anyone experienced big regressions just from doing

> supplements?

> > We started down the supplement road with our almost 6 year old PDD

> > about 6 weeks ago. About 5 days into it he became nervous and

> > obstinate. This progressed into anger, explosive meltdowns,

> > tormented frustrations. Basically, way worse than he has been for

> a

> > long time pre supps. Right before we started we had heard such

> > wonderful things from his teachers about his gains-esp in

> cognitive

> > areas- and even in his more appropriate social interaction. That

> has

> > all been erased. He had 4 violent meltdowns tonight just since

> > returning home from school. If I suggest anything to him it

> becomes

> > traumatic and he begins to breaks things and hit/kick me or

> anything

> > near him. He's strong! The dog already bit him right under his eye

> > yesterday because he was mad at her! We started the B12 nasal

> spray

> > 5 days ago. The Rx said to give it everyday although we are

> > questioning that dosage. However, he was acting this way before

> > that. Geesh, it makes me long for the days before when we

> > were " ignorant " of all that we could do to make him better. Must

> > kids suffer like this? I can't stand to watch him this way. So

> many

> > of you are way farther down this path, but seeing my child this

> way

> > when he wasn't before is very disheartening. How in the world do

> you

> > even know you are doing the right thing???

> > Beth

> >

>

[Guest guest]

Thanks, .

All his nutritional and liver levels were so bad I guess I just assumed his body was going to love getting the right things in it. Guess I was wrong. His body was bad but stable. I guess anything we put into it is going to mess that up. I had really hoped to see some good by now. In some ways I feel like I have just thrown away my money.

mb

RE: big regression from bio med

Dear Beth,

The answer is Yes. I do believe that we all have experience the same regression from one or several supplements. The one that my son has the worse issues with is Methyl-B12 with folinic acid nasal spray and transdermal Rx with a soy base. It sounds like you are just getting started with this biomedical journey. My advice: Start slow, write it down, start with one at a time for 3 to 5 days before you add your next supplement so you know what is not working and can easily remove it, keep writing down. It took my son about 3 weeks to recover from that bad regression. With other things I have tried that have not worked, it usually has taken 2 to 3 days. So hang in there.

Also, if you are doing M-B12 with folinic acid, call the pharmacy and request it without folinic acid. Then start slow once he is okay. I just restarted it a week ago skipping a day, and he has not had any bad reactions. I am planning to do that for another 2 weeks and then start to bring them back to every day.

Good luck.

.

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mbcomfortSent: Tuesday, May 09, 2006 10:59 PMmb12 valtrex Subject: big regression from bio medHas anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

Thanks, .

All his nutritional and liver levels were so bad I guess I just assumed his body was going to love getting the right things in it. Guess I was wrong. His body was bad but stable. I guess anything we put into it is going to mess that up. I had really hoped to see some good by now. In some ways I feel like I have just thrown away my money.

mb

RE: big regression from bio med

Dear Beth,

The answer is Yes. I do believe that we all have experience the same regression from one or several supplements. The one that my son has the worse issues with is Methyl-B12 with folinic acid nasal spray and transdermal Rx with a soy base. It sounds like you are just getting started with this biomedical journey. My advice: Start slow, write it down, start with one at a time for 3 to 5 days before you add your next supplement so you know what is not working and can easily remove it, keep writing down. It took my son about 3 weeks to recover from that bad regression. With other things I have tried that have not worked, it usually has taken 2 to 3 days. So hang in there.

Also, if you are doing M-B12 with folinic acid, call the pharmacy and request it without folinic acid. Then start slow once he is okay. I just restarted it a week ago skipping a day, and he has not had any bad reactions. I am planning to do that for another 2 weeks and then start to bring them back to every day.

Good luck.

.

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mbcomfortSent: Tuesday, May 09, 2006 10:59 PMmb12 valtrex Subject: big regression from bio medHas anyone experienced big regressions just from doing supplements? We started down the supplement road with our almost 6 year old PDD about 6 weeks ago. About 5 days into it he became nervous and obstinate. This progressed into anger, explosive meltdowns, tormented frustrations. Basically, way worse than he has been for a long time pre supps. Right before we started we had heard such wonderful things from his teachers about his gains-esp in cognitive areas- and even in his more appropriate social interaction. That has all been erased. He had 4 violent meltdowns tonight just since returning home from school. If I suggest anything to him it becomes traumatic and he begins to breaks things and hit/kick me or anything near him. He's strong! The dog already bit him right under his eye yesterday because he was mad at her! We started the B12 nasal spray 5 days ago. The Rx said to give it everyday although we are questioning that dosage. However, he was acting this way before that. Geesh, it makes me long for the days before when we were "ignorant" of all that we could do to make him better. Must kids suffer like this? I can't stand to watch him this way. So many of you are way farther down this path, but seeing my child this way when he wasn't before is very disheartening. How in the world do you even know you are doing the right thing??? Beth

[Guest guest]

my son cannot tolerate a lot of rx meds (like 2-3 of them). i try to use natural suppliments. i have to start very slow and low with my son cause he has such a sensitive system. i try to keep his suppliments down to a minimum.

vicki

[Guest guest]

my son cannot tolerate a lot of rx meds (like 2-3 of them). i try to use natural suppliments. i have to start very slow and low with my son cause he has such a sensitive system. i try to keep his suppliments down to a minimum.

vicki