Re: What a wonderful night I wanted to share!

[Guest guest]

>

What a great story, I remember feeling the same way when the

biomedical aspect of this started to kick in. We now look forward to

many family outings and I'm sure you will too. How great for you all.

> We went to a carnival tonight. Usually we have to squeeze in

his

> stroller because he won't walk holding your hand without fighting

and taking off.

> Anytime we do something like this we hate to do it but we end up

having to say

> " sorry, he has autism and doesn't understand " atleast once but

usually a lot

> more. We spent 3 hours at a carnival like a normal family. No

strollers, went

> on rides, he walked with us, asked for rides, got off the bounce

house when

> asked, sat when we asked him to so we could put his shoes back on

after the

> bounce house. It was awesome. We were just a normal family tonight.

>

> is no where near recovered, he has many issues left, but

nights like

> tonight are the light at the end of the tunnel for me. I know we

can recover

> him. If not 100% then close to it. Baby steps, slow and steady,

that's what I

> keep reminding myself and MB12 has been the driving force behind

our progress.

>

> Kerrie

>

> Mom to 4.4

>

[Guest guest]

>

What a great story, I remember feeling the same way when the

biomedical aspect of this started to kick in. We now look forward to

many family outings and I'm sure you will too. How great for you all.

> We went to a carnival tonight. Usually we have to squeeze in

his

> stroller because he won't walk holding your hand without fighting

and taking off.

> Anytime we do something like this we hate to do it but we end up

having to say

> " sorry, he has autism and doesn't understand " atleast once but

usually a lot

> more. We spent 3 hours at a carnival like a normal family. No

strollers, went

> on rides, he walked with us, asked for rides, got off the bounce

house when

> asked, sat when we asked him to so we could put his shoes back on

after the

> bounce house. It was awesome. We were just a normal family tonight.

>

> is no where near recovered, he has many issues left, but

nights like

> tonight are the light at the end of the tunnel for me. I know we

can recover

> him. If not 100% then close to it. Baby steps, slow and steady,

that's what I

> keep reminding myself and MB12 has been the driving force behind

our progress.

>

> Kerrie

>

> Mom to 4.4

>

[Guest guest]

That's wonderful Kerrie, we celebrate with you every step, it was your night out to remember and a milestone to hold on to. These are great days to cherish; yet they give us hope to move forward.

Big and small. Just being able to go out to the park, store library, friends house are all big accomplishments. We can definitely relate my son was a stroller boy for 4 years of his life (safety)Having a jarter, one who couldn't handle transitions, over stimulated environments etc…

It was 4 years restricted to this life before my son was able to do so without dangerous situation meltdowns.

A funny story we live by the beach and have taken many beaches walks. We used to have to go to the beach backwards so my son did not see the water or else he would want to jart off and go in. (No fear either even in winter months.) About two years ago that all changed for the better we can now go on a few rides, walk on the board walk holding hands, and go on the beach anytime of year. (Of course he's still quick), but he understands. "Yea" we are living like a family again.

Happy family Night and many more to come.

God bless

Kenny V

>> We went to a carnival tonight. Usually we have to squeeze in his > stroller because he won't walk holding your hand without fighting and taking off. > Anytime we do something like this we hate to do it but we end up having to say > "sorry, he has autism and doesn't understand" atleast once but usually a lot > more. We spent 3 hours at a carnival like a normal family. No strollers, went > on rides, he walked with us, asked for rides, got off the bounce house when > asked, sat when we asked him to so we could put his shoes back on after the > bounce house. It was awesome. We were just a normal family tonight.> > is no where near recovered, he has many issues left, but nights like > tonight are the light at the end of the tunnel for me. I know we can recover > him. If not 100% then close to it. Baby steps, slow and steady, that's what I > keep reminding myself and MB12 has been the driving force behind our progress.> > Kerrie> > Mom to 4.4>

[Guest guest]

That's wonderful Kerrie, we celebrate with you every step, it was your night out to remember and a milestone to hold on to. These are great days to cherish; yet they give us hope to move forward.

Big and small. Just being able to go out to the park, store library, friends house are all big accomplishments. We can definitely relate my son was a stroller boy for 4 years of his life (safety)Having a jarter, one who couldn't handle transitions, over stimulated environments etc…

It was 4 years restricted to this life before my son was able to do so without dangerous situation meltdowns.

A funny story we live by the beach and have taken many beaches walks. We used to have to go to the beach backwards so my son did not see the water or else he would want to jart off and go in. (No fear either even in winter months.) About two years ago that all changed for the better we can now go on a few rides, walk on the board walk holding hands, and go on the beach anytime of year. (Of course he's still quick), but he understands. "Yea" we are living like a family again.

Happy family Night and many more to come.

God bless

Kenny V

>> We went to a carnival tonight. Usually we have to squeeze in his > stroller because he won't walk holding your hand without fighting and taking off. > Anytime we do something like this we hate to do it but we end up having to say > "sorry, he has autism and doesn't understand" atleast once but usually a lot > more. We spent 3 hours at a carnival like a normal family. No strollers, went > on rides, he walked with us, asked for rides, got off the bounce house when > asked, sat when we asked him to so we could put his shoes back on after the > bounce house. It was awesome. We were just a normal family tonight.> > is no where near recovered, he has many issues left, but nights like > tonight are the light at the end of the tunnel for me. I know we can recover > him. If not 100% then close to it. Baby steps, slow and steady, that's what I > keep reminding myself and MB12 has been the driving force behind our progress.> > Kerrie> > Mom to 4.4>

[Guest guest]

I remember the days when my daughter would run off. I'd be weeding

the garden or playing catch with my son and off she'd go. She is

still a long way off from going to a carnival. The screaming kids

would just overwhelm her, but we too are getting closer to that day.

Congratulations to you on your wonderful night!

>

> We went to a carnival tonight. Usually we have to squeeze in

his

> stroller because he won't walk holding your hand without fighting

and taking off.

> Anytime we do something like this we hate to do it but we end up

having to say

> " sorry, he has autism and doesn't understand " atleast once but

usually a lot

> more. We spent 3 hours at a carnival like a normal family. No

strollers, went

> on rides, he walked with us, asked for rides, got off the bounce

house when

> asked, sat when we asked him to so we could put his shoes back on

after the

> bounce house. It was awesome. We were just a normal family

tonight.

>

> is no where near recovered, he has many issues left, but

nights like

> tonight are the light at the end of the tunnel for me. I know we

can recover

> him. If not 100% then close to it. Baby steps, slow and steady,

that's what I

> keep reminding myself and MB12 has been the driving force behind

our progress.

>

> Kerrie

>

> Mom to 4.4

>

[Guest guest]

> >

> > We went to a carnival tonight. Usually we have to squeeze

in

> his

> > stroller because he won't walk holding your hand without

fighting

> and taking off.

> > Anytime we do something like this we hate to do it but we end up

> having to say

> > " sorry, he has autism and doesn't understand " atleast once but

> usually a lot

> > more. We spent 3 hours at a carnival like a normal family. No

> strollers, went

> > on rides, he walked with us, asked for rides, got off the

bounce

> house when

> > asked, sat when we asked him to so we could put his shoes back

on

> after the

> > bounce house. It was awesome. We were just a normal family

> tonight.

> >

> > is no where near recovered, he has many issues left, but

> nights like

> > tonight are the light at the end of the tunnel for me. I know

we

> can recover

> > him. If not 100% then close to it. Baby steps, slow and steady,

> that's what I

> > keep reminding myself and MB12 has been the driving force

behind

> our progress.

> >

> > Kerrie

> >

> > Mom to 4.4

> >

>

[Guest guest]

> >

> > We went to a carnival tonight. Usually we have to squeeze

in

> his

> > stroller because he won't walk holding your hand without

fighting

> and taking off.

> > Anytime we do something like this we hate to do it but we end up

> having to say

> > " sorry, he has autism and doesn't understand " atleast once but

> usually a lot

> > more. We spent 3 hours at a carnival like a normal family. No

> strollers, went

> > on rides, he walked with us, asked for rides, got off the

bounce

> house when

> > asked, sat when we asked him to so we could put his shoes back

on

> after the

> > bounce house. It was awesome. We were just a normal family

> tonight.

> >

> > is no where near recovered, he has many issues left, but

> nights like

> > tonight are the light at the end of the tunnel for me. I know

we

> can recover

> > him. If not 100% then close to it. Baby steps, slow and steady,

> that's what I

> > keep reminding myself and MB12 has been the driving force

behind

> our progress.

> >

> > Kerrie

> >

> > Mom to 4.4

> >

>

[Guest guest]

Congratulations -- what a heart-warming story. My son is also a

great MB12 responder. He is now 5 years old and " near recovery. "

We have been on MB12 since he was 2.5 years old. When he just

turned 5 we switched to the " high dose daily " protocol with Dr.

Neubrander and WOW we experienced some great gains. I would highly

recommend a trial of the " high dose daily " to anyone whose child

responds to MB12. I wish we had started the high dose daily

earlier. With the high dose, my son's socialization with peers took

off, his attention level increased and his language became more

complex. We just started the " very high dose daily " this week with

Dr. Neubrander. I know that not many kids are doing this. It is

too early to tell if it is working with my son. We have not been at

very high dose every day because we are scared that it will be too

much for his body. We are working with Dr. Neubrander on this.

> >

> > We went to a carnival tonight. Usually we have to squeeze

in

> his

> > stroller because he won't walk holding your hand without

fighting

> and taking off.

> > Anytime we do something like this we hate to do it but we end up

> having to say

> > " sorry, he has autism and doesn't understand " atleast once but

> usually a lot

> > more. We spent 3 hours at a carnival like a normal family. No

> strollers, went

> > on rides, he walked with us, asked for rides, got off the

bounce

> house when

> > asked, sat when we asked him to so we could put his shoes back

on

> after the

> > bounce house. It was awesome. We were just a normal family

> tonight.

> >

> > is no where near recovered, he has many issues left, but

> nights like

> > tonight are the light at the end of the tunnel for me. I know

we

> can recover

> > him. If not 100% then close to it. Baby steps, slow and steady,

> that's what I

> > keep reminding myself and MB12 has been the driving force

behind

> our progress.

> >

> > Kerrie

> >

> > Mom to 4.4

> >

>

[Guest guest]

my son has been pretty much a nonresponder to shots and nasal. he did shots for 2 months and nasal for about 4....the only thing we saw was a little more aggression with the first shot but that was it...is it the responders to mb12 that do the best or would a nonresponder maybe actually respond to high dose?

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of rileyhunter2003Sent: Saturday, April 29, 2006 5:42 PMmb12 valtrex Subject: Re: What a wonderful night I wanted to share!I think that the dosage would differ in each child and you would have to speak to your DAN! doctor about the proper dosage for the weight of your child. Dr. Neubrander also has protocol information on his website that your doctor could review. Also, Dr. Nebrander is doing biochat on Monday night at 9 PM. (log onto his website just before 9 PM). For my son who is 40 pounds, the high dose daily is 25 mg/ml (0.05) each night.Karolyn> > > >> > > > We went to a carnival tonight. Usually we have to squeeze > > in > > > his > > > > stroller because he won't walk holding your hand without > > fighting > > > and taking off. > > > > Anytime we do something like this we hate to do it but we end > up > > > having to say > > > > "sorry, he has autism and doesn't understand" atleast once but > > > usually a lot > > > > more. We spent 3 hours at a carnival like a normal family. No > > > strollers, went > > > > on rides, he walked with us, asked for rides, got off the > > bounce > > > house when > > > > asked, sat when we asked him to so we could put his shoes > back > > on > > > after the > > > > bounce house. It was awesome. We were just a normal family > > > tonight.> > > > > > > > is no where near recovered, he has many issues left, but > > > nights like > > > > tonight are the light at the end of the tunnel for me. I know > > we > > > can recover > > > > him. If not 100% then close to it. Baby steps, slow and > steady, > > > that's what I > > > > keep reminding myself and MB12 has been the driving force > > behind > > > our progress.> > > > > > > > Kerrie> > > > > > > > Mom to 4.4> > > >> > >> >>

[Guest guest]

Thanks Karolyn!

I just asked Dr. N about it on biochat and I'm going to try this.

Knowing my sons response to the lower concentration (12.5 mg/ml) he

made some very relavent points in favor of 25 mg/ml.

-Jon

> > > > >

> > > > > We went to a carnival tonight. Usually we have to squeeze

>

> > > in

> > > > his

> > > > > stroller because he won't walk holding your hand without

> > > fighting

> > > > and taking off.

> > > > > Anytime we do something like this we hate to do it but we

> end

> > up

> > > > having to say

> > > > > " sorry, he has autism and doesn't understand " atleast once

> but

> > > > usually a lot

> > > > > more. We spent 3 hours at a carnival like a normal family.

> No

> > > > strollers, went

> > > > > on rides, he walked with us, asked for rides, got off the

> > > bounce

> > > > house when

> > > > > asked, sat when we asked him to so we could put his shoes

> > back

> > > on

> > > > after the

> > > > > bounce house. It was awesome. We were just a normal

family

> > > > tonight.

> > > > >

> > > > > is no where near recovered, he has many issues left,

> but

> > > > nights like

> > > > > tonight are the light at the end of the tunnel for me. I

> know

> > > we

> > > > can recover

> > > > > him. If not 100% then close to it. Baby steps, slow and

> > steady,

> > > > that's what I

> > > > > keep reminding myself and MB12 has been the driving force

> > > behind

> > > > our progress.

> > > > >

> > > > > Kerrie

> > > > >

> > > > > Mom to 4.4

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks Karolyn!

I just asked Dr. N about it on biochat and I'm going to try this.

Knowing my sons response to the lower concentration (12.5 mg/ml) he

made some very relavent points in favor of 25 mg/ml.

-Jon

> > > > >

> > > > > We went to a carnival tonight. Usually we have to squeeze

>

> > > in

> > > > his

> > > > > stroller because he won't walk holding your hand without

> > > fighting

> > > > and taking off.

> > > > > Anytime we do something like this we hate to do it but we

> end

> > up

> > > > having to say

> > > > > " sorry, he has autism and doesn't understand " atleast once

> but

> > > > usually a lot

> > > > > more. We spent 3 hours at a carnival like a normal family.

> No

> > > > strollers, went

> > > > > on rides, he walked with us, asked for rides, got off the

> > > bounce

> > > > house when

> > > > > asked, sat when we asked him to so we could put his shoes

> > back

> > > on

> > > > after the

> > > > > bounce house. It was awesome. We were just a normal

family

> > > > tonight.

> > > > >

> > > > > is no where near recovered, he has many issues left,

> but

> > > > nights like

> > > > > tonight are the light at the end of the tunnel for me. I

> know

> > > we

> > > > can recover

> > > > > him. If not 100% then close to it. Baby steps, slow and

> > steady,

> > > > that's what I

> > > > > keep reminding myself and MB12 has been the driving force

> > > behind

> > > > our progress.

> > > > >

> > > > > Kerrie

> > > > >

> > > > > Mom to 4.4

> > > > >

> > > >

> > >

> >

>