Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Everyone I've been meaning to post this Q for awhile and was curious if anyone knew. We had the autism panel done thru Immunosciences a few months ago. My dd's IgG Cytomegalovirus came out at 708 (ref range less than 100)....with a value that high - is it likely that she has recently experienced an infection? The lab material indicates that values get very high about 6-10 weeks after an infection...this happens to coincide with a time when she got very ill and was hospitalized. I suspect there's no cut/dry answer, but just wondering. Our family came together thru adoption so dont have a ton of information about birthmom. When she initially presented with what looked like hearing loss (as many do) my research seemed to continually take me b back to CMV. She is PDD-NOS, Hyperlexic...and her greatest weakness is her receptive communication ability.... and odd way in which she pieces language together (which is similar to many on the spectrum), in addition to being HUGELY inattentive (unless she's reading), and having lots of sensory stuff... receptively, to have anything " stick " we have to write it out....it's as if all her wires are frayed from her ears to the brain and her visual processing has compensated. She began reading at 18 months...instead of first words, I got the spelling of a very long park sign...My son has a CMV of 331 - thinking he got it from her? Still those numbers are kind of high as well. His HHV-6 is 27 (ref range, less than 24)..I suspect both are good candidates for anti-viral tx....Specifically tho I was just curious about the CMV and wondering if folks saw lots of improvements once getting those numbers down? We've already seen great things with bio-med...I do think if I were to take her in for a new eval, she'd be more ADD/ADHD with processing disorder stuff. I know we can work on the ADD/ADHD stuff a lot more with bio-med, but havent seen too many post on improvements in receptive ability. This is my greatest concern for her long-term. She was blessed with the most easy-going temperment and behavioral probs are pretty much non-existent (or seem that way since big-brother is so good in that area I actually think MB-12 and other bio-med has helped her voice her opinion/object more as she 'd been rather passive...Any thoughts would be greatly appreciated ......in terms of CMV...which anti-viral...improvements in receptive abilities, etc... Oh, and I should add, she's been fully immersed in special ed/EI since 18 months, doing all the ususal, ST, OT, private speech, RDI, etc....and bio-med has helped that to be more effective...thx for any thoughts Leigh Proud mom to (5) and Ellie (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi, This doesn't really answer your question, but i thought you might be interested in knowing that my sister was one of the first persons(htat was known at the time) that actually had CMV in 1973. It took Mt. Sinai hospital 4 months to come up with a diagnosis for her(in New York City) She was sick for over a year with the virus. I was in my first 3 months of pregnancy and was told not to go near my sister. We have since done researchon this and found that the virus itself came from the African Green moneky via the oral polio vaccine. Hope I haven't bored you. maurineBodegaLee <bodegalee@...> wrote: Hi EveryoneI've been meaning to post this Q for awhile and was curious if anyone knew. We had the autism panel done thru Immunosciences a few months ago. My dd's IgG Cytomegalovirus came out at 708 (ref range less than 100)....with a value that high - is it likely that she has recently experienced an infection? The lab material indicates that values get very high about 6-10 weeks after an infection...this happens to coincide with a time when she got very ill and was hospitalized. I suspect there's no cut/dry answer, but just wondering. Our family came together thru adoption so dont have a ton of information about birthmom. When she initially presented with what looked like hearing loss (as many do) my research seemed to continually take me b back to CMV. She is PDD-NOS, Hyperlexic...and her greatest weakness is her receptive communication ability.... and odd way in which she pieces language together (which is similar to many on the spectrum), in addition to being HUGELY inattentive (unless she's reading), and having lots of sensory stuff... receptively, to have anything "stick" we have to write it out....it's as if all her wires are frayed from her ears to the brain and her visual processing has compensated. She began reading at 18 months...instead of first words, I got the spelling of a very long park sign...My son has a CMV of 331 - thinking he got it from her? Still those numbers are kind of high as well. His HHV-6 is 27 (ref range, less than 24)..I suspect both are good candidates for anti-viral tx....Specifically tho I was just curious about the CMV and wondering if folks saw lots of improvements once getting those numbers down? We've already seen great things with bio-med...I do think if I were to take her in for a new eval, she'd be more ADD/ADHD with processing disorder stuff. I know we can work on the ADD/ADHD stuff a lot more with bio-med, but havent seen too many post on improvements in receptive ability. This is my greatest concern for her long-term. She was blessed with the most easy-going temperment and behavioral probs are pretty much non-existent (or seem that way since big-brother is so good in that area I actually think MB-12 and other bio-med has helped her voice her opinion/object more as she 'd been rather passive...Any thoughts would be greatly appreciated ......in terms of CMV...which anti-viral...improvements in receptive abilities, etc... Oh, and I should add, she's been fully immersed in special ed/EI since 18 months, doing all the ususal, ST, OT, private speech, RDI, etc....and bio-med has helped that to be more effective...thx for any thoughtsLeighProud mom to (5) and Ellie (4) Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi, This doesn't really answer your question, but i thought you might be interested in knowing that my sister was one of the first persons(htat was known at the time) that actually had CMV in 1973. It took Mt. Sinai hospital 4 months to come up with a diagnosis for her(in New York City) She was sick for over a year with the virus. I was in my first 3 months of pregnancy and was told not to go near my sister. We have since done researchon this and found that the virus itself came from the African Green moneky via the oral polio vaccine. Hope I haven't bored you. maurineBodegaLee <bodegalee@...> wrote: Hi EveryoneI've been meaning to post this Q for awhile and was curious if anyone knew. We had the autism panel done thru Immunosciences a few months ago. My dd's IgG Cytomegalovirus came out at 708 (ref range less than 100)....with a value that high - is it likely that she has recently experienced an infection? The lab material indicates that values get very high about 6-10 weeks after an infection...this happens to coincide with a time when she got very ill and was hospitalized. I suspect there's no cut/dry answer, but just wondering. Our family came together thru adoption so dont have a ton of information about birthmom. When she initially presented with what looked like hearing loss (as many do) my research seemed to continually take me b back to CMV. She is PDD-NOS, Hyperlexic...and her greatest weakness is her receptive communication ability.... and odd way in which she pieces language together (which is similar to many on the spectrum), in addition to being HUGELY inattentive (unless she's reading), and having lots of sensory stuff... receptively, to have anything "stick" we have to write it out....it's as if all her wires are frayed from her ears to the brain and her visual processing has compensated. She began reading at 18 months...instead of first words, I got the spelling of a very long park sign...My son has a CMV of 331 - thinking he got it from her? Still those numbers are kind of high as well. His HHV-6 is 27 (ref range, less than 24)..I suspect both are good candidates for anti-viral tx....Specifically tho I was just curious about the CMV and wondering if folks saw lots of improvements once getting those numbers down? We've already seen great things with bio-med...I do think if I were to take her in for a new eval, she'd be more ADD/ADHD with processing disorder stuff. I know we can work on the ADD/ADHD stuff a lot more with bio-med, but havent seen too many post on improvements in receptive ability. This is my greatest concern for her long-term. She was blessed with the most easy-going temperment and behavioral probs are pretty much non-existent (or seem that way since big-brother is so good in that area I actually think MB-12 and other bio-med has helped her voice her opinion/object more as she 'd been rather passive...Any thoughts would be greatly appreciated ......in terms of CMV...which anti-viral...improvements in receptive abilities, etc... Oh, and I should add, she's been fully immersed in special ed/EI since 18 months, doing all the ususal, ST, OT, private speech, RDI, etc....and bio-med has helped that to be more effective...thx for any thoughtsLeighProud mom to (5) and Ellie (4) Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Leigh, I think both children would be good candidates based on the symptoms you described. If they were my children I would get them on Valtrex and Diflucan asap. Keep us posted. - Stan > > Hi Everyone > I've been meaning to post this Q for awhile and was curious if anyone knew. We had the > autism panel done thru Immunosciences a few months ago. My dd's IgG Cytomegalovirus > came out at 708 (ref range less than 100)....with a value that high - is it likely that she has > recently experienced an infection? The lab material indicates that values get very high > about 6-10 weeks after an infection...this happens to coincide with a time when she got > very ill and was hospitalized. I suspect there's no cut/dry answer, but just wondering. Our > family came together thru adoption so dont have a ton of information about birthmom. > When she initially presented with what looked like hearing loss (as many do) my research > seemed to continually take me b back to CMV. She is PDD-NOS, Hyperlexic...and her > greatest weakness is her receptive communication ability.... and odd way in which she > pieces language together (which is similar to many on the spectrum), in addition to being > HUGELY inattentive (unless she's reading), and having lots of sensory stuff... receptively, to > have anything " stick " we have to write it out....it's as if all her wires are frayed from her > ears to the brain and her visual processing has compensated. She began reading at 18 > months...instead of first words, I got the spelling of a very long park sign...My son has a > CMV of 331 - thinking he got it from her? Still those numbers are kind of high as well. His > HHV-6 is 27 (ref range, less than 24)..I suspect both are good candidates for anti-viral > tx....Specifically tho I was just curious about the CMV and wondering if folks saw lots of > improvements once getting those numbers down? We've already seen great things with > bio-med...I do think if I were to take her in for a new eval, she'd be more ADD/ADHD with > processing disorder stuff. I know we can work on the ADD/ADHD stuff a lot more with > bio-med, but havent seen too many post on improvements in receptive ability. This is my > greatest concern for her long-term. She was blessed with the most easy-going > temperment and behavioral probs are pretty much non-existent (or seem that way since > big-brother is so good in that area I actually think MB-12 and other bio-med has > helped her voice her opinion/object more as she 'd been rather passive...Any thoughts > would be greatly appreciated ......in terms of CMV...which anti-viral...improvements in > receptive abilities, etc... Oh, and I should add, she's been fully immersed in special ed/EI > since 18 months, doing all the ususal, ST, OT, private speech, RDI, etc....and bio-med has > helped that to be more effective...thx for any thoughts > Leigh > Proud mom to (5) and Ellie (4) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Leigh, I think both children would be good candidates based on the symptoms you described. If they were my children I would get them on Valtrex and Diflucan asap. Keep us posted. - Stan > > Hi Everyone > I've been meaning to post this Q for awhile and was curious if anyone knew. We had the > autism panel done thru Immunosciences a few months ago. My dd's IgG Cytomegalovirus > came out at 708 (ref range less than 100)....with a value that high - is it likely that she has > recently experienced an infection? The lab material indicates that values get very high > about 6-10 weeks after an infection...this happens to coincide with a time when she got > very ill and was hospitalized. I suspect there's no cut/dry answer, but just wondering. Our > family came together thru adoption so dont have a ton of information about birthmom. > When she initially presented with what looked like hearing loss (as many do) my research > seemed to continually take me b back to CMV. She is PDD-NOS, Hyperlexic...and her > greatest weakness is her receptive communication ability.... and odd way in which she > pieces language together (which is similar to many on the spectrum), in addition to being > HUGELY inattentive (unless she's reading), and having lots of sensory stuff... receptively, to > have anything " stick " we have to write it out....it's as if all her wires are frayed from her > ears to the brain and her visual processing has compensated. She began reading at 18 > months...instead of first words, I got the spelling of a very long park sign...My son has a > CMV of 331 - thinking he got it from her? Still those numbers are kind of high as well. His > HHV-6 is 27 (ref range, less than 24)..I suspect both are good candidates for anti-viral > tx....Specifically tho I was just curious about the CMV and wondering if folks saw lots of > improvements once getting those numbers down? We've already seen great things with > bio-med...I do think if I were to take her in for a new eval, she'd be more ADD/ADHD with > processing disorder stuff. I know we can work on the ADD/ADHD stuff a lot more with > bio-med, but havent seen too many post on improvements in receptive ability. This is my > greatest concern for her long-term. She was blessed with the most easy-going > temperment and behavioral probs are pretty much non-existent (or seem that way since > big-brother is so good in that area I actually think MB-12 and other bio-med has > helped her voice her opinion/object more as she 'd been rather passive...Any thoughts > would be greatly appreciated ......in terms of CMV...which anti-viral...improvements in > receptive abilities, etc... Oh, and I should add, she's been fully immersed in special ed/EI > since 18 months, doing all the ususal, ST, OT, private speech, RDI, etc....and bio-med has > helped that to be more effective...thx for any thoughts > Leigh > Proud mom to (5) and Ellie (4) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Leigh, I think both children would be good candidates based on the symptoms you described. If they were my children I would get them on Valtrex and Diflucan asap. Keep us posted. - Stan > > Hi Everyone > I've been meaning to post this Q for awhile and was curious if anyone knew. We had the > autism panel done thru Immunosciences a few months ago. My dd's IgG Cytomegalovirus > came out at 708 (ref range less than 100)....with a value that high - is it likely that she has > recently experienced an infection? The lab material indicates that values get very high > about 6-10 weeks after an infection...this happens to coincide with a time when she got > very ill and was hospitalized. I suspect there's no cut/dry answer, but just wondering. Our > family came together thru adoption so dont have a ton of information about birthmom. > When she initially presented with what looked like hearing loss (as many do) my research > seemed to continually take me b back to CMV. She is PDD-NOS, Hyperlexic...and her > greatest weakness is her receptive communication ability.... and odd way in which she > pieces language together (which is similar to many on the spectrum), in addition to being > HUGELY inattentive (unless she's reading), and having lots of sensory stuff... receptively, to > have anything " stick " we have to write it out....it's as if all her wires are frayed from her > ears to the brain and her visual processing has compensated. She began reading at 18 > months...instead of first words, I got the spelling of a very long park sign...My son has a > CMV of 331 - thinking he got it from her? Still those numbers are kind of high as well. His > HHV-6 is 27 (ref range, less than 24)..I suspect both are good candidates for anti-viral > tx....Specifically tho I was just curious about the CMV and wondering if folks saw lots of > improvements once getting those numbers down? We've already seen great things with > bio-med...I do think if I were to take her in for a new eval, she'd be more ADD/ADHD with > processing disorder stuff. I know we can work on the ADD/ADHD stuff a lot more with > bio-med, but havent seen too many post on improvements in receptive ability. This is my > greatest concern for her long-term. She was blessed with the most easy-going > temperment and behavioral probs are pretty much non-existent (or seem that way since > big-brother is so good in that area I actually think MB-12 and other bio-med has > helped her voice her opinion/object more as she 'd been rather passive...Any thoughts > would be greatly appreciated ......in terms of CMV...which anti-viral...improvements in > receptive abilities, etc... Oh, and I should add, she's been fully immersed in special ed/EI > since 18 months, doing all the ususal, ST, OT, private speech, RDI, etc....and bio-med has > helped that to be more effective...thx for any thoughts > Leigh > Proud mom to (5) and Ellie (4) > Quote Link to comment Share on other sites More sharing options...
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