Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Hi Kim, I think your plan is generally a good one. Of course, if you think your little guy is going to let you follow it to a tee, you probably need to get yourself to a doc, and fast :-)! In all seriousness, please keep in mind that you will be fighting yeast like it is going out of style (wish it would!) and that you may need to delay things here or there. Also, if your kiddo can take capsules, you will be much, much happier. If he can't, you might try working on that in the short term. I use powdered OLE now, but when I used the liquid, I would put it in a gel cap and give it to him. Avoided the nasties, 'cause that stuff sure is gross! As is the virstop! The valtrex is nothing to write home about either, so I just split it in half and make my kid take it. Anne > > Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc. > > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, " soft signs " , etc. of what viruses looks like in our kids. > > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is: > > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12. > > 2. Start virastop may 1st. Increase slowly. > 3. Start OLE mid-may, increase slowly. > 4. Start valtrex june 1st. > > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense? > > Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Hi Kim, I think your plan is generally a good one. Of course, if you think your little guy is going to let you follow it to a tee, you probably need to get yourself to a doc, and fast :-)! In all seriousness, please keep in mind that you will be fighting yeast like it is going out of style (wish it would!) and that you may need to delay things here or there. Also, if your kiddo can take capsules, you will be much, much happier. If he can't, you might try working on that in the short term. I use powdered OLE now, but when I used the liquid, I would put it in a gel cap and give it to him. Avoided the nasties, 'cause that stuff sure is gross! As is the virstop! The valtrex is nothing to write home about either, so I just split it in half and make my kid take it. Anne > > Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc. > > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, " soft signs " , etc. of what viruses looks like in our kids. > > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is: > > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12. > > 2. Start virastop may 1st. Increase slowly. > 3. Start OLE mid-may, increase slowly. > 4. Start valtrex june 1st. > > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense? > > Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 I suspect that this regression is quite important for some children. It's quite counter intuitive when you first think of it, but once you realize we are probably kicking up some nasty critters and toxins it tends to make more sense. Take it one step at a time and realize you're not alone. It wasn't that long ago when people who tried this therapy had no place to go to bounce things off other people. This plan seems like (a) logical next step in testing what antiviral therapy does what and if we will see multiple sets of healing-regression and multiple viral and detox responses. The yeast with MB12 is interesting and also supportive of our theory that killing viruses kicks up yeast, because glutathione is also an antifungal (said Dr. Jane Eldar at the DAN! Conference). I think your plan is a good one. It's interesting that the order would lead me to belive you are most afraid of Valtrex... which is fine, I won't argue about it. In reality whatever starts working on our kids I suspect will have similar healing-regression symptoms... I don't believe there is any way around it, but I'm open minded. In some ways you may be deciding to pull the bandaide off slowly rather than quickly (basically, just a different strategy which may be neither better or worse... just different). But, it will be interesting to see what responds to what from a scientific curiousity perspective so we'll be watching you with interest. This may be a good plan for some, it certainly covers all the good therapies (in my opinion) that we are seeing work and you have an antifungal onboard. Prior to antiviral treatments I would also add epson salt baths every day for magnesium, vitamins C, taurine, B6, P5P and B2 to help downstream methylation and sulfation. I've been thinking about this for some time now. My son was also using these while on his antiviral therapy. We still do epson salt baths every day. This also may help with some of the constipation we see from time to time in antiviral treatment and magnesium is often deficient in our kids. Keep us posted. - Stan ps. I don't know about you guys, but I feel pretty jazzed to see how our antiviral therapies are starting to develop. We've really come a long way in a short few months. Great job everyone... and a special hat's off to the Shoesters for being so vocal about their son's OLE and Virastop experience. > > Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc. > > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, " soft signs " , etc. of what viruses looks like in our kids. > > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is: > > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12. > > 2. Start virastop may 1st. Increase slowly. > 3. Start OLE mid-may, increase slowly. > 4. Start valtrex june 1st. > > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense? > > Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 I suspect that this regression is quite important for some children. It's quite counter intuitive when you first think of it, but once you realize we are probably kicking up some nasty critters and toxins it tends to make more sense. Take it one step at a time and realize you're not alone. It wasn't that long ago when people who tried this therapy had no place to go to bounce things off other people. This plan seems like (a) logical next step in testing what antiviral therapy does what and if we will see multiple sets of healing-regression and multiple viral and detox responses. The yeast with MB12 is interesting and also supportive of our theory that killing viruses kicks up yeast, because glutathione is also an antifungal (said Dr. Jane Eldar at the DAN! Conference). I think your plan is a good one. It's interesting that the order would lead me to belive you are most afraid of Valtrex... which is fine, I won't argue about it. In reality whatever starts working on our kids I suspect will have similar healing-regression symptoms... I don't believe there is any way around it, but I'm open minded. In some ways you may be deciding to pull the bandaide off slowly rather than quickly (basically, just a different strategy which may be neither better or worse... just different). But, it will be interesting to see what responds to what from a scientific curiousity perspective so we'll be watching you with interest. This may be a good plan for some, it certainly covers all the good therapies (in my opinion) that we are seeing work and you have an antifungal onboard. Prior to antiviral treatments I would also add epson salt baths every day for magnesium, vitamins C, taurine, B6, P5P and B2 to help downstream methylation and sulfation. I've been thinking about this for some time now. My son was also using these while on his antiviral therapy. We still do epson salt baths every day. This also may help with some of the constipation we see from time to time in antiviral treatment and magnesium is often deficient in our kids. Keep us posted. - Stan ps. I don't know about you guys, but I feel pretty jazzed to see how our antiviral therapies are starting to develop. We've really come a long way in a short few months. Great job everyone... and a special hat's off to the Shoesters for being so vocal about their son's OLE and Virastop experience. > > Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc. > > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, " soft signs " , etc. of what viruses looks like in our kids. > > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is: > > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12. > > 2. Start virastop may 1st. Increase slowly. > 3. Start OLE mid-may, increase slowly. > 4. Start valtrex june 1st. > > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense? > > Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Also, let's not forget the importance of being on a good diet, like SCD minus IGG food allergies (and possibly lowering oxalates). The diet when done well will also help you raise glutathione and help free up the immune system to manage viruses and detox the body. - Stan > > Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc. > > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, " soft signs " , etc. of what viruses looks like in our kids. > > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is: > > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12. > > 2. Start virastop may 1st. Increase slowly. > 3. Start OLE mid-may, increase slowly. > 4. Start valtrex june 1st. > > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense? > > Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Also, let's not forget the importance of being on a good diet, like SCD minus IGG food allergies (and possibly lowering oxalates). The diet when done well will also help you raise glutathione and help free up the immune system to manage viruses and detox the body. - Stan > > Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc. > > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, " soft signs " , etc. of what viruses looks like in our kids. > > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is: > > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12. > > 2. Start virastop may 1st. Increase slowly. > 3. Start OLE mid-may, increase slowly. > 4. Start valtrex june 1st. > > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense? > > Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Thanks Anne, you gave me my only laugh for the day! Im looking for my own doctor now. To be honest, I cant imagine his yeast getting worse than it is now. I cant ever remember a time he didnt have yeast...it is always there. But, what I wonder is if some of the behaviors that I usually associate with yeast is indeed viral instead? Wouldnt it be great if I could eliminate some of them by doing valtrex/OLE/virastop? OK, I am going to try the capsule swallowing thing soon. Maybe I will surprise myself? Hey, how is valtrex going for you? You once mentioned that you were going to send in an update of good things? I hope that this is going well for you... I keep watching what you are doing. > > > > Hello, I posted this plan on another site, but thought that this > may > > work better here...seems to be the best place to discuss virusess, > > valtrex, etc. > > > > I set up a plan of action to deal with our son's viruses...and > would > > like to know what others think. I am terrified of doing this. I > am > > terrified of the regression, sorry to be so honest. I am however > > very hopeful that this may be just what he needs. In my gut, I > feel > > as though addressing the viruses is the answer after hearing > signs, > > symptoms, " soft signs " , etc. of what viruses looks like in our > kids. > > > > I dont know if this matters or not, but I thought going into the > > viral protocol with valtrex, that perhaps I can minimize the > > regression? Or, is it better to have this regression? So...here > it > > is: > > > > 1. Start right now getting our son on diflucan. I have an appt > > with Dr. Usman for May 24th to start valtrex. I am going to ask > for > > a long term prescription for the diflucan (similare to what stan > > did)...to coincide with the valtrex. My son already has huge > yeast > > issues, so starting diflucan now would be an added bonus. PS: > Our > > son's yeast also increased with the MB-12. > > > > 2. Start virastop may 1st. Increase slowly. > > 3. Start OLE mid-may, increase slowly. > > 4. Start valtrex june 1st. > > > > Maybe I am over thinking this whole thing. I know that I am going > > crazy.....but would love to hear that this works! > > > > Thanks for reading, does this plan make any sense? > > > > Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Thanks Anne, you gave me my only laugh for the day! Im looking for my own doctor now. To be honest, I cant imagine his yeast getting worse than it is now. I cant ever remember a time he didnt have yeast...it is always there. But, what I wonder is if some of the behaviors that I usually associate with yeast is indeed viral instead? Wouldnt it be great if I could eliminate some of them by doing valtrex/OLE/virastop? OK, I am going to try the capsule swallowing thing soon. Maybe I will surprise myself? Hey, how is valtrex going for you? You once mentioned that you were going to send in an update of good things? I hope that this is going well for you... I keep watching what you are doing. > > > > Hello, I posted this plan on another site, but thought that this > may > > work better here...seems to be the best place to discuss virusess, > > valtrex, etc. > > > > I set up a plan of action to deal with our son's viruses...and > would > > like to know what others think. I am terrified of doing this. I > am > > terrified of the regression, sorry to be so honest. I am however > > very hopeful that this may be just what he needs. In my gut, I > feel > > as though addressing the viruses is the answer after hearing > signs, > > symptoms, " soft signs " , etc. of what viruses looks like in our > kids. > > > > I dont know if this matters or not, but I thought going into the > > viral protocol with valtrex, that perhaps I can minimize the > > regression? Or, is it better to have this regression? So...here > it > > is: > > > > 1. Start right now getting our son on diflucan. I have an appt > > with Dr. Usman for May 24th to start valtrex. I am going to ask > for > > a long term prescription for the diflucan (similare to what stan > > did)...to coincide with the valtrex. My son already has huge > yeast > > issues, so starting diflucan now would be an added bonus. PS: > Our > > son's yeast also increased with the MB-12. > > > > 2. Start virastop may 1st. Increase slowly. > > 3. Start OLE mid-may, increase slowly. > > 4. Start valtrex june 1st. > > > > Maybe I am over thinking this whole thing. I know that I am going > > crazy.....but would love to hear that this works! > > > > Thanks for reading, does this plan make any sense? > > > > Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Kim, I keep wanting to post an update but I have a little problem: while things are going well, I don't know what is doing what! And I have been focusing so much on figuring out what to do about adrenal support (we have adrenal and thyroid issues that are being resolved but need fine tuning) that I am not really focused on the day to day stuff. But, my little dude is making progress, every day, and I have accomplished a few things that are important, IMO: added probiotics, which he couldn't tolerate before, and raw goat's milk cheese. I really want this little dude on a whole foods diet, not this crazy totally limited stuff. He is still potty trained for pee and going all by himself, no help whatsoever, insisting on standing up to do it (yes, we are considering putting cheerios or something else to act as a target in the potty :-). We are going to run another round of Virastop once I get the B-12 up and running again (he hasn't done well in the past, but I am hoping that the Valtrex/adenosine theory is correct and this will lead to better tolerance of B12). So, trying to just keep plugging away at all of this. Will this ever end? Anne > > > > > > Hello, I posted this plan on another site, but thought that this > > may > > > work better here...seems to be the best place to discuss > virusess, > > > valtrex, etc. > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > like to know what others think. I am terrified of doing this. I > > am > > > terrified of the regression, sorry to be so honest. I am however > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > as though addressing the viruses is the answer after hearing > > signs, > > > symptoms, " soft signs " , etc. of what viruses looks like in our > > kids. > > > > > > I dont know if this matters or not, but I thought going into the > > > viral protocol with valtrex, that perhaps I can minimize the > > > regression? Or, is it better to have this regression? So...here > > it > > > is: > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > a long term prescription for the diflucan (similare to what stan > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > son's yeast also increased with the MB-12. > > > > > > 2. Start virastop may 1st. Increase slowly. > > > 3. Start OLE mid-may, increase slowly. > > > 4. Start valtrex june 1st. > > > > > > Maybe I am over thinking this whole thing. I know that I am > going > > > crazy.....but would love to hear that this works! > > > > > > Thanks for reading, does this plan make any sense? > > > > > > Kim > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Kim, I keep wanting to post an update but I have a little problem: while things are going well, I don't know what is doing what! And I have been focusing so much on figuring out what to do about adrenal support (we have adrenal and thyroid issues that are being resolved but need fine tuning) that I am not really focused on the day to day stuff. But, my little dude is making progress, every day, and I have accomplished a few things that are important, IMO: added probiotics, which he couldn't tolerate before, and raw goat's milk cheese. I really want this little dude on a whole foods diet, not this crazy totally limited stuff. He is still potty trained for pee and going all by himself, no help whatsoever, insisting on standing up to do it (yes, we are considering putting cheerios or something else to act as a target in the potty :-). We are going to run another round of Virastop once I get the B-12 up and running again (he hasn't done well in the past, but I am hoping that the Valtrex/adenosine theory is correct and this will lead to better tolerance of B12). So, trying to just keep plugging away at all of this. Will this ever end? Anne > > > > > > Hello, I posted this plan on another site, but thought that this > > may > > > work better here...seems to be the best place to discuss > virusess, > > > valtrex, etc. > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > like to know what others think. I am terrified of doing this. I > > am > > > terrified of the regression, sorry to be so honest. I am however > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > as though addressing the viruses is the answer after hearing > > signs, > > > symptoms, " soft signs " , etc. of what viruses looks like in our > > kids. > > > > > > I dont know if this matters or not, but I thought going into the > > > viral protocol with valtrex, that perhaps I can minimize the > > > regression? Or, is it better to have this regression? So...here > > it > > > is: > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > a long term prescription for the diflucan (similare to what stan > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > son's yeast also increased with the MB-12. > > > > > > 2. Start virastop may 1st. Increase slowly. > > > 3. Start OLE mid-may, increase slowly. > > > 4. Start valtrex june 1st. > > > > > > Maybe I am over thinking this whole thing. I know that I am > going > > > crazy.....but would love to hear that this works! > > > > > > Thanks for reading, does this plan make any sense? > > > > > > Kim > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 On the capsule front, I compounded them myself with a little gizmo I got online and gave them to him with honey. Wanted to make sure the yeast got some dinner too :-)! But it worked, and he is quite a pro now. Of course, it means that I have to take all large caps and re- encapsulate them. Kind of annoying, but I look at it as an excuse to sit and watch the Sopranos..... Anne > > > > > > Hello, I posted this plan on another site, but thought that this > > may > > > work better here...seems to be the best place to discuss > virusess, > > > valtrex, etc. > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > like to know what others think. I am terrified of doing this. I > > am > > > terrified of the regression, sorry to be so honest. I am however > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > as though addressing the viruses is the answer after hearing > > signs, > > > symptoms, " soft signs " , etc. of what viruses looks like in our > > kids. > > > > > > I dont know if this matters or not, but I thought going into the > > > viral protocol with valtrex, that perhaps I can minimize the > > > regression? Or, is it better to have this regression? So...here > > it > > > is: > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > a long term prescription for the diflucan (similare to what stan > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > son's yeast also increased with the MB-12. > > > > > > 2. Start virastop may 1st. Increase slowly. > > > 3. Start OLE mid-may, increase slowly. > > > 4. Start valtrex june 1st. > > > > > > Maybe I am over thinking this whole thing. I know that I am > going > > > crazy.....but would love to hear that this works! > > > > > > Thanks for reading, does this plan make any sense? > > > > > > Kim > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Stan: Yes, you are correct, however, the diet is my achilles heal. It is the hardest part for me to get wrapped around. Heck, we are barely even doing the GFCF diet, although.....we use Houston Enzymes with everything he eats, and he is 99% casein free. It is that gluten that we cant seem to eliminate 100%. Regarding the SCD, I am meeting with a certified body ecologist on tuesday, who is expert with the BED diet. ORiginally the BED was primarily used as an antifungal type diet, but they have learned that it is also very antiviral. I will be making my first batch of young coconut kefir next tuesday. Be afraid! She will also help me to understand what my son's IgG food allergies are. ALthough we did an IgG test last August, no one really went over it with me at length.....at least no one with extensive diet experience. Finally, from your first post...my son absolutely positively cannot do any form of B6. I do now have him on water-oz minerals, vitamins A, C, E, Selenium....and the MB-12. I will be ordering the folopro tomorrow as his test showed a relative need for folic acid 9 out of 10. Otherwise, no other B vitamins, as I cant find a multiple without B6. Thanks for looking at my plan. I am not afraid of valtrex. I am afraid of the regression, I should have explained that better. Interestingly, I wasnt afraid of regression with chelation, and I dont know why. I am SO afraid that our son will regress with the viral treatment (whether if is valtrex or OLE).....and the fear is that he will NOT get better and regress permanently. AFter all, just like you...we had a perfect little kid until that darn autism regression. I equate every regression to that one...and it scares the sh*t out of me. We have made gains with chelation, and if I add something now to his system and he goes backwards, it will be horrible to watch and I will think that I have caused it. I really need reassurance with what I am doing. Our son is 6 years old and I again, I am afraid of the permanent regression again.....and worry that that " recovery " age has past. Sorry to be so gloomy....but...given his history and list of signs our son meets, I have a big reason to be optomistic. Thanks for all of your hard time and efforts. I hope you liked our Windy City when you were here....good thing I didnt know you were in my backyard, I would have called you! Take care. Kim > > > > Hello, I posted this plan on another site, but thought that this may > > work better here...seems to be the best place to discuss virusess, > > valtrex, etc. > > > > I set up a plan of action to deal with our son's viruses...and would > > like to know what others think. I am terrified of doing this. I am > > terrified of the regression, sorry to be so honest. I am however > > very hopeful that this may be just what he needs. In my gut, I feel > > as though addressing the viruses is the answer after hearing signs, > > symptoms, " soft signs " , etc. of what viruses looks like in our kids. > > > > I dont know if this matters or not, but I thought going into the > > viral protocol with valtrex, that perhaps I can minimize the > > regression? Or, is it better to have this regression? So...here it > > is: > > > > 1. Start right now getting our son on diflucan. I have an appt > > with Dr. Usman for May 24th to start valtrex. I am going to ask for > > a long term prescription for the diflucan (similare to what stan > > did)...to coincide with the valtrex. My son already has huge yeast > > issues, so starting diflucan now would be an added bonus. PS: Our > > son's yeast also increased with the MB-12. > > > > 2. Start virastop may 1st. Increase slowly. > > 3. Start OLE mid-may, increase slowly. > > 4. Start valtrex june 1st. > > > > Maybe I am over thinking this whole thing. I know that I am going > > crazy.....but would love to hear that this works! > > > > Thanks for reading, does this plan make any sense? > > > > Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Stan: Yes, you are correct, however, the diet is my achilles heal. It is the hardest part for me to get wrapped around. Heck, we are barely even doing the GFCF diet, although.....we use Houston Enzymes with everything he eats, and he is 99% casein free. It is that gluten that we cant seem to eliminate 100%. Regarding the SCD, I am meeting with a certified body ecologist on tuesday, who is expert with the BED diet. ORiginally the BED was primarily used as an antifungal type diet, but they have learned that it is also very antiviral. I will be making my first batch of young coconut kefir next tuesday. Be afraid! She will also help me to understand what my son's IgG food allergies are. ALthough we did an IgG test last August, no one really went over it with me at length.....at least no one with extensive diet experience. Finally, from your first post...my son absolutely positively cannot do any form of B6. I do now have him on water-oz minerals, vitamins A, C, E, Selenium....and the MB-12. I will be ordering the folopro tomorrow as his test showed a relative need for folic acid 9 out of 10. Otherwise, no other B vitamins, as I cant find a multiple without B6. Thanks for looking at my plan. I am not afraid of valtrex. I am afraid of the regression, I should have explained that better. Interestingly, I wasnt afraid of regression with chelation, and I dont know why. I am SO afraid that our son will regress with the viral treatment (whether if is valtrex or OLE).....and the fear is that he will NOT get better and regress permanently. AFter all, just like you...we had a perfect little kid until that darn autism regression. I equate every regression to that one...and it scares the sh*t out of me. We have made gains with chelation, and if I add something now to his system and he goes backwards, it will be horrible to watch and I will think that I have caused it. I really need reassurance with what I am doing. Our son is 6 years old and I again, I am afraid of the permanent regression again.....and worry that that " recovery " age has past. Sorry to be so gloomy....but...given his history and list of signs our son meets, I have a big reason to be optomistic. Thanks for all of your hard time and efforts. I hope you liked our Windy City when you were here....good thing I didnt know you were in my backyard, I would have called you! Take care. Kim > > > > Hello, I posted this plan on another site, but thought that this may > > work better here...seems to be the best place to discuss virusess, > > valtrex, etc. > > > > I set up a plan of action to deal with our son's viruses...and would > > like to know what others think. I am terrified of doing this. I am > > terrified of the regression, sorry to be so honest. I am however > > very hopeful that this may be just what he needs. In my gut, I feel > > as though addressing the viruses is the answer after hearing signs, > > symptoms, " soft signs " , etc. of what viruses looks like in our kids. > > > > I dont know if this matters or not, but I thought going into the > > viral protocol with valtrex, that perhaps I can minimize the > > regression? Or, is it better to have this regression? So...here it > > is: > > > > 1. Start right now getting our son on diflucan. I have an appt > > with Dr. Usman for May 24th to start valtrex. I am going to ask for > > a long term prescription for the diflucan (similare to what stan > > did)...to coincide with the valtrex. My son already has huge yeast > > issues, so starting diflucan now would be an added bonus. PS: Our > > son's yeast also increased with the MB-12. > > > > 2. Start virastop may 1st. Increase slowly. > > 3. Start OLE mid-may, increase slowly. > > 4. Start valtrex june 1st. > > > > Maybe I am over thinking this whole thing. I know that I am going > > crazy.....but would love to hear that this works! > > > > Thanks for reading, does this plan make any sense? > > > > Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 How do you know if your child would benefit from the scd diet? How do I get more info on this diet? Thanks , R. -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of Stan KurtzSent: Thursday, April 13, 2006 2:31 PMmb12 valtrex Subject: Re: Stan: please look at my valtrex planAlso, let's not forget the importance of being on a good diet, like SCD minus IGG food allergies (and possibly lowering oxalates). The diet when done well will also help you raise glutathione and help free up the immune system to manage viruses and detox the body.- Stan>> Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc.> > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, "soft signs", etc. of what viruses looks like in our kids.> > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is:> > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12.> > 2. Start virastop may 1st. Increase slowly.> 3. Start OLE mid-may, increase slowly.> 4. Start valtrex june 1st.> > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense?> > Kim> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 How do you know if your child would benefit from the scd diet? How do I get more info on this diet? Thanks , R. -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of Stan KurtzSent: Thursday, April 13, 2006 2:31 PMmb12 valtrex Subject: Re: Stan: please look at my valtrex planAlso, let's not forget the importance of being on a good diet, like SCD minus IGG food allergies (and possibly lowering oxalates). The diet when done well will also help you raise glutathione and help free up the immune system to manage viruses and detox the body.- Stan>> Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc.> > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, "soft signs", etc. of what viruses looks like in our kids.> > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is:> > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12.> > 2. Start virastop may 1st. Increase slowly.> 3. Start OLE mid-may, increase slowly.> 4. Start valtrex june 1st.> > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense?> > Kim> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 How do you know if your child would benefit from the scd diet? How do I get more info on this diet? Thanks , R. -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of Stan KurtzSent: Thursday, April 13, 2006 2:31 PMmb12 valtrex Subject: Re: Stan: please look at my valtrex planAlso, let's not forget the importance of being on a good diet, like SCD minus IGG food allergies (and possibly lowering oxalates). The diet when done well will also help you raise glutathione and help free up the immune system to manage viruses and detox the body.- Stan>> Hello, I posted this plan on another site, but thought that this may > work better here...seems to be the best place to discuss virusess, > valtrex, etc.> > I set up a plan of action to deal with our son's viruses...and would > like to know what others think. I am terrified of doing this. I am > terrified of the regression, sorry to be so honest. I am however > very hopeful that this may be just what he needs. In my gut, I feel > as though addressing the viruses is the answer after hearing signs, > symptoms, "soft signs", etc. of what viruses looks like in our kids.> > I dont know if this matters or not, but I thought going into the > viral protocol with valtrex, that perhaps I can minimize the > regression? Or, is it better to have this regression? So...here it > is:> > 1. Start right now getting our son on diflucan. I have an appt > with Dr. Usman for May 24th to start valtrex. I am going to ask for > a long term prescription for the diflucan (similare to what stan > did)...to coincide with the valtrex. My son already has huge yeast > issues, so starting diflucan now would be an added bonus. PS: Our > son's yeast also increased with the MB-12.> > 2. Start virastop may 1st. Increase slowly.> 3. Start OLE mid-may, increase slowly.> 4. Start valtrex june 1st.> > Maybe I am over thinking this whole thing. I know that I am going > crazy.....but would love to hear that this works! > > Thanks for reading, does this plan make any sense?> > Kim> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 This post is not just a response to the question for Kim, it's for anyone struggling with B Vitamin Issues / gut issues / or diet issues. Many of the kids who can't tolerate B6 may very well need it the most. Diet is one of the major reasons our kids can't tolerate B6. Several folks at the Think Tank were talking about this. I would work on the diet first and then try introducing small amounts of B6 WITH MAGNESIUM in oral form and in epson salts in the bath water. If your child is one that is a bit constipated or hearing sensitive these are additional signs that it could be a magnesium issue that is working against your B6 efforts. You need magnesium if you are giving B6 (or giving calcium, or iron). If the gut is impaired, your child may have a tough time with B6... but really need it at the same time. This is one reason that diet and getting that gut under control is SOOOO important. Additionallly, I would consider giving P5P as well. This is the active version of B6 that is also needed several times downstream in sulfation. Lastly, I am not excited about someone's dietary credentials if they do not have a lot of experience with autism. What works for other folks doesn't typically work in autism. If they do not understand our kids issues, they can do more harm than good. When I started researching therapies for my son's recovery the first think I would ask a service provider is, " How many autistic children have you fully recovered? " and then " What percentage is that of your practice? " This puts a lot of things in perspective. Knowing a lot about diet and recovering autistic children are two different things. I am also not a fan of enzymes in place of a diet. The enzymes never fully work, which means if you give the offending polysaccrite (complex carbohydrate) or wheat product you will either be feeding fungus or setting off the immune system. There is not an enzyme that totally takes care of the food its designed to. It's there to assist, not eliminate. I see families try to rely on these enzymes in place of doing the diet correctly and I, more times than any, see families needlessly struggle and often fail. Quote #1 " There is no subsititute for doing the right diet for your child. " Quote #2 " The most significant challenge in the success of the diet is.... the parents will to do the diet. " Quote #3 " Not doing the diet fully is like partially poisoning your child. Yeast = alcohol, sugar, and toxins that slowly eat away at your child. Chronically drunk, and toxic children don't have much of a chance of recovery. " Quote #4 " There is no subsititute for doing the right diet for your child. " I'm sorry, I'm pretty hard core about this... why? Because I haven't seen many recoveries from people not doing the right diet. I see resistence every day. We are programmed my marketing and the FDA that cows milk, wheat products, and complex carbs are good for us and they just aren't.. certainly not for our kids. We are also trained by our parents and their parents that loving a child is equal to not saying " no! " to the foods they want. Love is not about feeding your child foods that hurt them. Love is about saving them from the foods that are hurting them and that requires us to say " no, but you can have this___ " from time to time. Learn to feed the body (not the fungus and bacteria) without setting off the immune system and you'll be doing one of the best services you can ever do for your child. .... and go to someone who heals children with autism and knows the 4 main diets for these kids. GFCF (SF,EF, ECTF), SCD, Finegold (low allergen), Low Oxalate, and my two favorate diet (SCD minus IGG Food Allergies and my starter diet while you are waiting for the IGG results www.childrenscornerschool.com/diet.htm ). If your information provider is not fully educated on those diets, you're probably throwing your money away (and your time and energy). I wish there was a more flowery way to communicate this, but there isn't. Some people go running away when they hear this and some people open their eyes and jump in. I say it for the folks who are ready to open their eyes, because their kids will thank them later. There is no way around doing the right thing, and if you want to raise your chances of recovering your child, you need to do the right diet for your child. - Stan > > > > > > Hello, I posted this plan on another site, but thought that this > may > > > work better here...seems to be the best place to discuss > virusess, > > > valtrex, etc. > > > > > > I set up a plan of action to deal with our son's viruses...and > would > > > like to know what others think. I am terrified of doing this. I > am > > > terrified of the regression, sorry to be so honest. I am however > > > very hopeful that this may be just what he needs. In my gut, I > feel > > > as though addressing the viruses is the answer after hearing > signs, > > > symptoms, " soft signs " , etc. of what viruses looks like in our > kids. > > > > > > I dont know if this matters or not, but I thought going into the > > > viral protocol with valtrex, that perhaps I can minimize the > > > regression? Or, is it better to have this regression? So...here > it > > > is: > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > for > > > a long term prescription for the diflucan (similare to what stan > > > did)...to coincide with the valtrex. My son already has huge > yeast > > > issues, so starting diflucan now would be an added bonus. PS: > Our > > > son's yeast also increased with the MB-12. > > > > > > 2. Start virastop may 1st. Increase slowly. > > > 3. Start OLE mid-may, increase slowly. > > > 4. Start valtrex june 1st. > > > > > > Maybe I am over thinking this whole thing. I know that I am > going > > > crazy.....but would love to hear that this works! > > > > > > Thanks for reading, does this plan make any sense? > > > > > > Kim > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Stan, I LOVE your quotes! If my kids had diabetes, I wouldn't give my kids sugar. My kids have ASD/gut issues, so I don't give them sugar, soy, wheat, casein, etc. It's not always easy for me (I work and I am not into cooking), but I am responsible for providing them with nourishing food. Also, I have implemented some of the ideas of the BED diet with good results (raw organic butter helped my daughter tolerate more food, and she is getting smarter!!). SCD helped my son, too. Carol, Kai & 's mom > > > > > > > > Hello, I posted this plan on another site, but thought that this > > may > > > > work better here...seems to be the best place to discuss > > virusess, > > > > valtrex, etc. > > > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > > like to know what others think. I am terrified of doing this. I > > am > > > > terrified of the regression, sorry to be so honest. I am however > > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > > as though addressing the viruses is the answer after hearing > > signs, > > > > symptoms, " soft signs " , etc. of what viruses looks like in our > > kids. > > > > > > > > I dont know if this matters or not, but I thought going into the > > > > viral protocol with valtrex, that perhaps I can minimize the > > > > regression? Or, is it better to have this regression? So...here > > it > > > > is: > > > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > > a long term prescription for the diflucan (similare to what stan > > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > > son's yeast also increased with the MB-12. > > > > > > > > 2. Start virastop may 1st. Increase slowly. > > > > 3. Start OLE mid-may, increase slowly. > > > > 4. Start valtrex june 1st. > > > > > > > > Maybe I am over thinking this whole thing. I know that I am > > going > > > > crazy.....but would love to hear that this works! > > > > > > > > Thanks for reading, does this plan make any sense? > > > > > > > > Kim > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Stan, I LOVE your quotes! If my kids had diabetes, I wouldn't give my kids sugar. My kids have ASD/gut issues, so I don't give them sugar, soy, wheat, casein, etc. It's not always easy for me (I work and I am not into cooking), but I am responsible for providing them with nourishing food. Also, I have implemented some of the ideas of the BED diet with good results (raw organic butter helped my daughter tolerate more food, and she is getting smarter!!). SCD helped my son, too. Carol, Kai & 's mom > > > > > > > > Hello, I posted this plan on another site, but thought that this > > may > > > > work better here...seems to be the best place to discuss > > virusess, > > > > valtrex, etc. > > > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > > like to know what others think. I am terrified of doing this. I > > am > > > > terrified of the regression, sorry to be so honest. I am however > > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > > as though addressing the viruses is the answer after hearing > > signs, > > > > symptoms, " soft signs " , etc. of what viruses looks like in our > > kids. > > > > > > > > I dont know if this matters or not, but I thought going into the > > > > viral protocol with valtrex, that perhaps I can minimize the > > > > regression? Or, is it better to have this regression? So...here > > it > > > > is: > > > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > > a long term prescription for the diflucan (similare to what stan > > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > > son's yeast also increased with the MB-12. > > > > > > > > 2. Start virastop may 1st. Increase slowly. > > > > 3. Start OLE mid-may, increase slowly. > > > > 4. Start valtrex june 1st. > > > > > > > > Maybe I am over thinking this whole thing. I know that I am > > going > > > > crazy.....but would love to hear that this works! > > > > > > > > Thanks for reading, does this plan make any sense? > > > > > > > > Kim > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi, I have a question about b6 and kids not ntolerating it. My 10 y/o asd son LOVES his Kirkman B6/mag chewable ("tastes like a sweetart") but my 12 ny/o nt son says it "tastes like DEATH" (whatever that means). Is he one that can't tolerate it? I think he has gut issues b/c he has foul smelling, very pasty stools during the times he isn't constipated. Stan Kurtz <kurtzstan@...> wrote: This post is not just a response to the question for Kim, it's for anyone struggling with B Vitamin Issues / gut issues / or diet issues.Many of the kids who can't tolerate B6 may very well need it the most. Diet is one of the major reasons our kids can't tolerate B6. Several folks at the Think Tank were talking about this. I would work on the diet first and then try introducing small amounts of B6 WITH MAGNESIUM in oral form and in epson salts in the bath water. If your child is one that is a bit constipated or hearing sensitive these are additional signs that it could be a magnesium issue that is working against your B6 efforts. You need magnesium if you are giving B6 (or giving calcium, or iron). If the gut is impaired, your child may have a tough time with B6... but really need it at the same time. This is one reason that diet and getting that gut under control is SOOOO important.Additionallly, I would consider giving P5P as well. This is the active version of B6 that is also needed several times downstream in sulfation.Lastly, I am not excited about someone's dietary credentials if they do not have a lot of experience with autism. What works for other folks doesn't typically work in autism. If they do not understand our kids issues, they can do more harm than good. When I started researching therapies for my son's recovery the first think I would ask a service provider is, "How many autistic children have you fully recovered?" and then "What percentage is that of your practice?" This puts a lot of things in perspective. Knowing a lot about diet and recovering autistic children are two different things. I am also not a fan of enzymes in place of a diet. The enzymes never fully work, which means if you give the offending polysaccrite (complex carbohydrate) or wheat product you will either be feeding fungus or setting off the immune system. There is not an enzyme that totally takes care of the food its designed to. It's there to assist, not eliminate. I see families try to rely on these enzymes in place of doing the diet correctly and I, more times than any, see families needlessly struggle and often fail.Quote #1"There is no subsititute for doing the right diet for your child."Quote #2"The most significant challenge in the success of the diet is.... the parents will to do the diet."Quote #3"Not doing the diet fully is like partially poisoning your child. Yeast = alcohol, sugar, and toxins that slowly eat away at your child. Chronically drunk, and toxic children don't have much of a chance of recovery."Quote #4"There is no subsititute for doing the right diet for your child."I'm sorry, I'm pretty hard core about this... why? Because I haven't seen many recoveries from people not doing the right diet. I see resistence every day. We are programmed my marketing and the FDA that cows milk, wheat products, and complex carbs are good for us and they just aren't.. certainly not for our kids. We are also trained by our parents and their parents that loving a child is equal to not saying "no!" to the foods they want. Love is not about feeding your child foods that hurt them. Love is about saving them from the foods that are hurting them and that requires us to say "no, but you can have this___" from time to time. Learn to feed the body (not the fungus and bacteria) without setting off the immune system and you'll be doing one of the best services you can ever do for your child.... and go to someone who heals children with autism and knows the 4 main diets for these kids. GFCF (SF,EF, ECTF), SCD, Finegold (low allergen), Low Oxalate, and my two favorate diet (SCD minus IGG Food Allergies and my starter diet while you are waiting for the IGG results www.childrenscornerschool.com/diet.htm ). If your information provider is not fully educated on those diets, you're probably throwing your money away (and your time and energy).I wish there was a more flowery way to communicate this, but there isn't. Some people go running away when they hear this and some people open their eyes and jump in. I say it for the folks who are ready to open their eyes, because their kids will thank them later. There is no way around doing the right thing, and if you want to raise your chances of recovering your child, you need to do the right diet for your child.- Stan> > >> > > Hello, I posted this plan on another site, but thought that this > may > > > work better here...seems to be the best place to discuss > virusess, > > > valtrex, etc.> > > > > > I set up a plan of action to deal with our son's viruses...and > would > > > like to know what others think. I am terrified of doing this. I > am > > > terrified of the regression, sorry to be so honest. I am however > > > very hopeful that this may be just what he needs. In my gut, I > feel > > > as though addressing the viruses is the answer after hearing > signs, > > > symptoms, "soft signs", etc. of what viruses looks like in our > kids.> > > > > > I dont know if this matters or not, but I thought going into the > > > viral protocol with valtrex, that perhaps I can minimize the > > > regression? Or, is it better to have this regression? So...here > it > > > is:> > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > for > > > a long term prescription for the diflucan (similare to what stan > > > did)...to coincide with the valtrex. My son already has huge > yeast > > > issues, so starting diflucan now would be an added bonus. PS: > Our > > > son's yeast also increased with the MB-12.> > > > > > 2. Start virastop may 1st. Increase slowly.> > > 3. Start OLE mid-may, increase slowly.> > > 4. Start valtrex june 1st.> > > > > > Maybe I am over thinking this whole thing. I know that I am > going > > > crazy.....but would love to hear that this works! > > > > > > Thanks for reading, does this plan make any sense?> > > > > > Kim> > >> >> Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi, I have a question about b6 and kids not ntolerating it. My 10 y/o asd son LOVES his Kirkman B6/mag chewable ("tastes like a sweetart") but my 12 ny/o nt son says it "tastes like DEATH" (whatever that means). Is he one that can't tolerate it? I think he has gut issues b/c he has foul smelling, very pasty stools during the times he isn't constipated. Stan Kurtz <kurtzstan@...> wrote: This post is not just a response to the question for Kim, it's for anyone struggling with B Vitamin Issues / gut issues / or diet issues.Many of the kids who can't tolerate B6 may very well need it the most. Diet is one of the major reasons our kids can't tolerate B6. Several folks at the Think Tank were talking about this. I would work on the diet first and then try introducing small amounts of B6 WITH MAGNESIUM in oral form and in epson salts in the bath water. If your child is one that is a bit constipated or hearing sensitive these are additional signs that it could be a magnesium issue that is working against your B6 efforts. You need magnesium if you are giving B6 (or giving calcium, or iron). If the gut is impaired, your child may have a tough time with B6... but really need it at the same time. This is one reason that diet and getting that gut under control is SOOOO important.Additionallly, I would consider giving P5P as well. This is the active version of B6 that is also needed several times downstream in sulfation.Lastly, I am not excited about someone's dietary credentials if they do not have a lot of experience with autism. What works for other folks doesn't typically work in autism. If they do not understand our kids issues, they can do more harm than good. When I started researching therapies for my son's recovery the first think I would ask a service provider is, "How many autistic children have you fully recovered?" and then "What percentage is that of your practice?" This puts a lot of things in perspective. Knowing a lot about diet and recovering autistic children are two different things. I am also not a fan of enzymes in place of a diet. The enzymes never fully work, which means if you give the offending polysaccrite (complex carbohydrate) or wheat product you will either be feeding fungus or setting off the immune system. There is not an enzyme that totally takes care of the food its designed to. It's there to assist, not eliminate. I see families try to rely on these enzymes in place of doing the diet correctly and I, more times than any, see families needlessly struggle and often fail.Quote #1"There is no subsititute for doing the right diet for your child."Quote #2"The most significant challenge in the success of the diet is.... the parents will to do the diet."Quote #3"Not doing the diet fully is like partially poisoning your child. Yeast = alcohol, sugar, and toxins that slowly eat away at your child. Chronically drunk, and toxic children don't have much of a chance of recovery."Quote #4"There is no subsititute for doing the right diet for your child."I'm sorry, I'm pretty hard core about this... why? Because I haven't seen many recoveries from people not doing the right diet. I see resistence every day. We are programmed my marketing and the FDA that cows milk, wheat products, and complex carbs are good for us and they just aren't.. certainly not for our kids. We are also trained by our parents and their parents that loving a child is equal to not saying "no!" to the foods they want. Love is not about feeding your child foods that hurt them. Love is about saving them from the foods that are hurting them and that requires us to say "no, but you can have this___" from time to time. Learn to feed the body (not the fungus and bacteria) without setting off the immune system and you'll be doing one of the best services you can ever do for your child.... and go to someone who heals children with autism and knows the 4 main diets for these kids. GFCF (SF,EF, ECTF), SCD, Finegold (low allergen), Low Oxalate, and my two favorate diet (SCD minus IGG Food Allergies and my starter diet while you are waiting for the IGG results www.childrenscornerschool.com/diet.htm ). If your information provider is not fully educated on those diets, you're probably throwing your money away (and your time and energy).I wish there was a more flowery way to communicate this, but there isn't. Some people go running away when they hear this and some people open their eyes and jump in. I say it for the folks who are ready to open their eyes, because their kids will thank them later. There is no way around doing the right thing, and if you want to raise your chances of recovering your child, you need to do the right diet for your child.- Stan> > >> > > Hello, I posted this plan on another site, but thought that this > may > > > work better here...seems to be the best place to discuss > virusess, > > > valtrex, etc.> > > > > > I set up a plan of action to deal with our son's viruses...and > would > > > like to know what others think. I am terrified of doing this. I > am > > > terrified of the regression, sorry to be so honest. I am however > > > very hopeful that this may be just what he needs. In my gut, I > feel > > > as though addressing the viruses is the answer after hearing > signs, > > > symptoms, "soft signs", etc. of what viruses looks like in our > kids.> > > > > > I dont know if this matters or not, but I thought going into the > > > viral protocol with valtrex, that perhaps I can minimize the > > > regression? Or, is it better to have this regression? So...here > it > > > is:> > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > for > > > a long term prescription for the diflucan (similare to what stan > > > did)...to coincide with the valtrex. My son already has huge > yeast > > > issues, so starting diflucan now would be an added bonus. PS: > Our > > > son's yeast also increased with the MB-12.> > > > > > 2. Start virastop may 1st. Increase slowly.> > > 3. Start OLE mid-may, increase slowly.> > > 4. Start valtrex june 1st.> > > > > > Maybe I am over thinking this whole thing. I know that I am > going > > > crazy.....but would love to hear that this works! > > > > > > Thanks for reading, does this plan make any sense?> > > > > > Kim> > >> >> Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi , This was spoken about at the Think Tank and several doctors and researchers strongly believed that gut issues will cause B6 intollerance. It's a shame, but most of these kids REALLY need it but they can't tollerate it because of the gut issues. One might try some antifungals, a better diet (SCD minus IGG Food Allergies), zinc, and MB12 (MB12 took care of my gut issues). I would start with the gut first and then other problems could get much easier for you. I had IBS for more than 20 years and I can tell you from personal experience it effects everything else... your body, brain, immune system, bacterial and viral levels, etc. Get the gut cleared up and live is much easier. - Stan > > > > > > > > Hello, I posted this plan on another site, but thought that this > > may > > > > work better here...seems to be the best place to discuss > > virusess, > > > > valtrex, etc. > > > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > > like to know what others think. I am terrified of doing this. I > > am > > > > terrified of the regression, sorry to be so honest. I am however > > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > > as though addressing the viruses is the answer after hearing > > signs, > > > > symptoms, " soft signs " , etc. of what viruses looks like in our > > kids. > > > > > > > > I dont know if this matters or not, but I thought going into the > > > > viral protocol with valtrex, that perhaps I can minimize the > > > > regression? Or, is it better to have this regression? So...here > > it > > > > is: > > > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > > a long term prescription for the diflucan (similare to what stan > > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > > son's yeast also increased with the MB-12. > > > > > > > > 2. Start virastop may 1st. Increase slowly. > > > > 3. Start OLE mid-may, increase slowly. > > > > 4. Start valtrex june 1st. > > > > > > > > Maybe I am over thinking this whole thing. I know that I am > > going > > > > crazy.....but would love to hear that this works! > > > > > > > > Thanks for reading, does this plan make any sense? > > > > > > > > Kim > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi , This was spoken about at the Think Tank and several doctors and researchers strongly believed that gut issues will cause B6 intollerance. It's a shame, but most of these kids REALLY need it but they can't tollerate it because of the gut issues. One might try some antifungals, a better diet (SCD minus IGG Food Allergies), zinc, and MB12 (MB12 took care of my gut issues). I would start with the gut first and then other problems could get much easier for you. I had IBS for more than 20 years and I can tell you from personal experience it effects everything else... your body, brain, immune system, bacterial and viral levels, etc. Get the gut cleared up and live is much easier. - Stan > > > > > > > > Hello, I posted this plan on another site, but thought that this > > may > > > > work better here...seems to be the best place to discuss > > virusess, > > > > valtrex, etc. > > > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > > like to know what others think. I am terrified of doing this. I > > am > > > > terrified of the regression, sorry to be so honest. I am however > > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > > as though addressing the viruses is the answer after hearing > > signs, > > > > symptoms, " soft signs " , etc. of what viruses looks like in our > > kids. > > > > > > > > I dont know if this matters or not, but I thought going into the > > > > viral protocol with valtrex, that perhaps I can minimize the > > > > regression? Or, is it better to have this regression? So...here > > it > > > > is: > > > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > > a long term prescription for the diflucan (similare to what stan > > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > > son's yeast also increased with the MB-12. > > > > > > > > 2. Start virastop may 1st. Increase slowly. > > > > 3. Start OLE mid-may, increase slowly. > > > > 4. Start valtrex june 1st. > > > > > > > > Maybe I am over thinking this whole thing. I know that I am > > going > > > > crazy.....but would love to hear that this works! > > > > > > > > Thanks for reading, does this plan make any sense? > > > > > > > > Kim > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi Stan My Max has had constipation issues for years. He is nt. The past couple of months at school have been terrible for him...antsy, getting into trouble...I keep getting the "he can't sit still.." talks..I think they want me to medicate him. He had an x-ray a short time back, and he has a large mass of poop in there, and the pcp rx'd Glycolax. He wouldn't take that. I think he has "encopresis" so I am thinking about getting oxypowder to clean him out. His gut is a little extended, he is a slim boy, but doesn't seem to be growing. His asd younger bro is going to be taller quite soon..much to Max's chagrin. I do plan to get the IGG test done on my 3 kids, but in the meantime, what should my first course of action be with this child? Thanks, you really are awesome! Stan Kurtz <kurtzstan@...> wrote: Hi ,This was spoken about at the Think Tank and several doctors and researchers strongly believed that gut issues will cause B6 intollerance. It's a shame, but most of these kids REALLY need it but they can't tollerate it because of the gut issues. One might try some antifungals, a better diet (SCD minus IGG Food Allergies), zinc, and MB12 (MB12 took care of my gut issues).I would start with the gut first and then other problems could get much easier for you.I had IBS for more than 20 years and I can tell you from personal experience it effects everything else... your body, brain, immune system, bacterial and viral levels, etc.Get the gut cleared up and live is much easier.- Stan> > > >> > > > Hello, I posted this plan on another site, but thought that this > > may > > > > work better here...seems to be the best place to discuss > > virusess, > > > > valtrex, etc.> > > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > > like to know what others think. I am terrified of doing this. I > > am > > > > terrified of the regression, sorry to be so honest. I am however > > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > > as though addressing the viruses is the answer after hearing > > signs, > > > > symptoms, "soft signs", etc. of what viruses looks like in our > > kids.> > > > > > > > I dont know if this matters or not, but I thought going into the > > > > viral protocol with valtrex, that perhaps I can minimize the > > > > regression? Or, is it better to have this regression? So...here > > it > > > > is:> > > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > > a long term prescription for the diflucan (similare to what stan > > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > > son's yeast also increased with the MB-12.> > > > > > > > 2. Start virastop may 1st. Increase slowly.> > > > 3. Start OLE mid-may, increase slowly.> > > > 4. Start valtrex june 1st.> > > > > > > > Maybe I am over thinking this whole thing. I know that I am > > going > > > > crazy.....but would love to hear that this works! > > > > > > > > Thanks for reading, does this plan make any sense?> > > > > > > > Kim> > > >> > >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi Stan My Max has had constipation issues for years. He is nt. The past couple of months at school have been terrible for him...antsy, getting into trouble...I keep getting the "he can't sit still.." talks..I think they want me to medicate him. He had an x-ray a short time back, and he has a large mass of poop in there, and the pcp rx'd Glycolax. He wouldn't take that. I think he has "encopresis" so I am thinking about getting oxypowder to clean him out. His gut is a little extended, he is a slim boy, but doesn't seem to be growing. His asd younger bro is going to be taller quite soon..much to Max's chagrin. I do plan to get the IGG test done on my 3 kids, but in the meantime, what should my first course of action be with this child? Thanks, you really are awesome! Stan Kurtz <kurtzstan@...> wrote: Hi ,This was spoken about at the Think Tank and several doctors and researchers strongly believed that gut issues will cause B6 intollerance. It's a shame, but most of these kids REALLY need it but they can't tollerate it because of the gut issues. One might try some antifungals, a better diet (SCD minus IGG Food Allergies), zinc, and MB12 (MB12 took care of my gut issues).I would start with the gut first and then other problems could get much easier for you.I had IBS for more than 20 years and I can tell you from personal experience it effects everything else... your body, brain, immune system, bacterial and viral levels, etc.Get the gut cleared up and live is much easier.- Stan> > > >> > > > Hello, I posted this plan on another site, but thought that this > > may > > > > work better here...seems to be the best place to discuss > > virusess, > > > > valtrex, etc.> > > > > > > > I set up a plan of action to deal with our son's viruses...and > > would > > > > like to know what others think. I am terrified of doing this. I > > am > > > > terrified of the regression, sorry to be so honest. I am however > > > > very hopeful that this may be just what he needs. In my gut, I > > feel > > > > as though addressing the viruses is the answer after hearing > > signs, > > > > symptoms, "soft signs", etc. of what viruses looks like in our > > kids.> > > > > > > > I dont know if this matters or not, but I thought going into the > > > > viral protocol with valtrex, that perhaps I can minimize the > > > > regression? Or, is it better to have this regression? So...here > > it > > > > is:> > > > > > > > 1. Start right now getting our son on diflucan. I have an appt > > > > with Dr. Usman for May 24th to start valtrex. I am going to ask > > for > > > > a long term prescription for the diflucan (similare to what stan > > > > did)...to coincide with the valtrex. My son already has huge > > yeast > > > > issues, so starting diflucan now would be an added bonus. PS: > > Our > > > > son's yeast also increased with the MB-12.> > > > > > > > 2. Start virastop may 1st. Increase slowly.> > > > 3. Start OLE mid-may, increase slowly.> > > > 4. Start valtrex june 1st.> > > > > > > > Maybe I am over thinking this whole thing. I know that I am > > going > > > > crazy.....but would love to hear that this works! > > > > > > > > Thanks for reading, does this plan make any sense?> > > > > > > > Kim> > > >> > >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
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