Just got done with Kidney Specialist yesterday

July 31, 2012

Hi again...

Kidney doc said that my aldosterone was being suppressed.

I asked how he came to that conclusion.

He said it was 20+ before. Then after the saline test, it was 10.

I told him that they did not do a pre blood draw and the 20+ was from a test two

weeks ago. He pretty much said that it did not matter when.

I told him that every peice of literature I have read said that post saline ALD

of <5 is normal and mine was 10 so something seems broken..especially with all

the sysmptoms.

He said I might have adrenal hyperplasia ?? due to the fact i complained about

flank pain alot.

Then he said either way his treatment will be the same.. he started me on 25mg

of EPLERENONE twice a day. He said there was not enough evidence to suppport a

CT scan.. I was dazed and confused.. I should have argued harder, but i'm a hot

mess and not feeling good so I walked out bummed. I started the MEDS last night

and the big notice is that I am peeing quite a bit. Also at his office..I had

gained like 10 lbs. in the last 3 weeks ?? very very unusual for me. I told him

that I felt like I was retaining water...he just looked across at me and

shrugged it off.. " no you don't have any edema " ..I said I know, but I can just

tell..My skin feels like it's not fitting right..upper body.

anyway.. I see my ENDO in two weeks.. not sure what I should do.

Get all up in his grill and ask for more tests or see how the new meds do ? I'm

tired metally of dealing with this..I just need some relief for a bit.

I do feel a little better today.. I don't feel so " distressed " ??

I know its suppopsed takes a while for meds to work, but i do feel different

already. Maybe from all the voiding of urine has helped.

He also told me to stop the potassium supplement

Anyway.. thats a day in my life when I see doc's

July 31, 2012

Wesley:

I had multiple test for serum aldo done the past two weeks at NIH. The

variation on my results i have so far is huge. I went from 12 to 5.6 in two

hours one day, up to 15 the next day and 22 the day after that. (I think the 5.6

was a bad sample)

Using a two week old test as the base line is crazy.

I'm beginning to have a very dim view of certain segments of he " medical

profession " based on my experience and what I have read in this group. My

Original Endo recommended surgery based on one 24-hour urine/PRA test and an CT

scan that showed two adnomas. I think that outside of the major research and

university hospitals Doctors don't have a clue on hyperaldo, and haven't

bothered to stay current on the research.

My suggestion is for you to print copies of documents here on diagnosis an

testing, including the " flow chart " from the endocrine Society and take them to

yo your endo visit.

Anyway, good luck.

Mike

>

> Hi again...

>

> Kidney doc said that my aldosterone was being suppressed.

> I asked how he came to that conclusion.

> He said it was 20+ before. Then after the saline test, it was 10.

> I told him that they did not do a pre blood draw and the 20+ was from a test

two weeks ago. He pretty much said that it did not matter when.

> I told him that every peice of literature I have read said that post saline

ALD of <5 is normal and mine was 10 so something seems broken..especially with

all the sysmptoms.

> He said I might have adrenal hyperplasia ?? due to the fact i complained about

flank pain alot.

> Then he said either way his treatment will be the same.. he started me on 25mg