Re: Back on the horse again!

[Guest guest]

Excellent!Nice thumbnail.You have PA that is still in the suppressible stage of evolution.Lisionpril is not likely doing anything for BP or kidney protection with renin so low.Ask your Neph or PCP to do a spot check on uinre Na, K and creatinine each time they see you. Should be more K than Na in the urine. Send results and can estimate 24 hr intake.On Jul 25, 2012, at 10:21 AM, catherinekerth1 wrote:

I use to run about 20-25 miles/week before my adrenal glands decided they were against me back in Nov. 2011!

I am proud to say I have been on the Spiro and Dashing now for 3 weeks and I feel great! I can tell my potassium is going up and my pressure has been excellent! I have run 8 miles this week already!

I have noticed that if I have too much salt one day the next couple of days my BP is elevated. I plan on talking to my Neph about this. I don't think increasing spiro25mg would be wise... my BP gets to 150/98 a few times a week, thats okay with me most of the time it is 114/79! wooo hooo!

38 yrs

aldo 30 (?-28)

renin .38 (.25-5.89)

ratio 78.9 (.9-28.9)

Spiro 25mg

Lisinopril 10mg (kidney saving purposes?)

CT scan normal

Saline suppression 8am 9ng/l noon 4ng/l

NOT diagnosed, but being actively treated for PA... Which is fine with me, i just wanted the Spiro to get my BP down!

K- (3.2 thru 4.0) 3.2 was when i was training for half marathon.... 4.0 was with very little running for a few months...

K-only low if I start to run or exercise vigorously. so i have shortened mileage and slowed pace a great deal to compensate. (a work in progress)

BP avg 140-160's/80-100's on a good day

[Guest guest]

Heres a very important point- you can try and up your spiro more and more but at a point you outsalt the medication regardless and that set point doesn't seem to be the same in all of us, yet we all seem to outsalt it fairly easy. Dr Grim talks about that alot on here. Just because you are on spiro you still have to limit your salt to 1500 per day, period. It's not the same situation say as diabetes wherein you just add more insulin to compensate for cheating on a diet. It is essential you watch your salt. The spiro you are taking does not have endless effect.

Second, in some patients the most dangerous type of blood pressures are those with sudden spikes and rapid jumps up in BP, as we all could be just one weak artery away from suddenly drooling and slurring our words and having a dead 1/2 of our body - if we make it through the stroke that is. So you can't really play with the salt unless you are willing to tempt fate for a few too many slices of pizza and I have found that when I go over 1400/1500 it can be days to recover and I feel like crap and taking the "extra" dose of spiro does not compensate for it.

So be careful.

-- On Wed, 7/25/12, catherinekerth1 <catherinekerth@...> wrote:

From: catherinekerth1 <catherinekerth@...>Subject: Back on the horse again!hyperaldosteronism Date: Wednesday, July 25, 2012, 10:21 AM

I use to run about 20-25 miles/week before my adrenal glands decided they were against me back in Nov. 2011!I am proud to say I have been on the Spiro and Dashing now for 3 weeks and I feel great! I can tell my potassium is going up and my pressure has been excellent! I have run 8 miles this week already!I have noticed that if I have too much salt one day the next couple of days my BP is elevated. I plan on talking to my Neph about this. I don't think increasing spiro25mg would be wise... my BP gets to 150/98 a few times a week, thats okay with me most of the time it is 114/79! wooo hooo!38 yrsaldo 30 (?-28)renin .38 (.25-5.89)ratio 78.9 (.9-28.9)Spiro 25mgLisinopril 10mg (kidney saving purposes?)CT scan normalSaline suppression 8am 9ng/l noon 4ng/l NOT diagnosed, but being actively treated for PA... Which is fine with me, i just wanted the Spiro to get my BP down!K- (3.2 thru 4.0)

3.2 was when i was training for half marathon.... 4.0 was with very little running for a few months...K-only low if I start to run or exercise vigorously. so i have shortened mileage and slowed pace a great deal to compensate. (a work in progress)BP avg 140-160's/80-100's on a good day

[Guest guest]

How did you know I had Pizza yesterday And mexican food on monday night. I love Chips and salsa, pickles, olives and sunflowerseeds.... Chips and salsa seem to be what I am having the most trouble with. especially living in houston TX...My husband is proud, I have done really well. we have tried a lot of recipes from the DASH book.note taken on the playing with fire. you're absolutely right and I will think that every food choice i make for now on. it really hard when going out.catherine

Kerth

http://mamallamaknits.com

http://www.knittycath.blogspot.com

http://thekerthfamily.4t.comTo: hyperaldosteronism From: jlkbbk2003@...Date: Wed, 25 Jul 2012 08:41:57 -0700Subject: Re: Back on the horse again!

Heres a very important point- you can try and up your spiro more and more but at a point you outsalt the medication regardless and that set point doesn't seem to be the same in all of us, yet we all seem to outsalt it fairly easy. Dr Grim talks about that alot on here. Just because you are on spiro you still have to limit your salt to 1500 per day, period. It's not the same situation say as diabetes wherein you just add more insulin to compensate for cheating on a diet. It is essential you watch your salt. The spiro you are taking does not have endless effect.

Second, in some patients the most dangerous type of blood pressures are those with sudden spikes and rapid jumps up in BP, as we all could be just one weak artery away from suddenly drooling and slurring our words and having a dead 1/2 of our body - if we make it through the stroke that is. So you can't really play with the salt unless you are willing to tempt fate for a few too many slices of pizza and I have found that when I go over 1400/1500 it can be days to recover and I feel like crap and taking the "extra" dose of spiro does not compensate for it.

So be careful.

-- On Wed, 7/25/12, catherinekerth1 <catherinekerth@...> wrote:

From: catherinekerth1 <catherinekerth@...>Subject: Back on the horse again!hyperaldosteronism Date: Wednesday, July 25, 2012, 10:21 AM

I use to run about 20-25 miles/week before my adrenal glands decided they were against me back in Nov. 2011!I am proud to say I have been on the Spiro and Dashing now for 3 weeks and I feel great! I can tell my potassium is going up and my pressure has been excellent! I have run 8 miles this week already!I have noticed that if I have too much salt one day the next couple of days my BP is elevated. I plan on talking to my Neph about this. I don't think increasing spiro25mg would be wise... my BP gets to 150/98 a few times a week, thats okay with me most of the time it is 114/79! wooo hooo!38 yrsaldo 30 (?-28)renin .38 (.25-5.89)ratio 78.9 (.9-28.9)Spiro 25mgLisinopril 10mg (kidney saving purposes?)CT scan normalSaline suppression 8am 9ng/l noon 4ng/l NOT diagnosed, but being actively treated for PA... Which is fine with me, i just wanted the Spiro to get my BP down!K- (3.2 thru 4.0)

3.2 was when i was training for half marathon.... 4.0 was with very little running for a few months...K-only low if I start to run or exercise vigorously. so i have shortened mileage and slowed pace a great deal to compensate. (a work in progress)BP avg 140-160's/80-100's on a good day

[Guest guest]

, congratulation - it looks like you have figured out how to "break that bronco"! Now you just need to keep riding until it becomes second nature.

, how much "NA forgiveness" do you think there is in spiro or epler? I am beginning to think there may be a little but it is closer to a solid point. I think many keep increasing the MCB thinking they can "outMCB the NA" and then stay at the high level once they get the NA correct. I wonder if they could "step down", like you have, and reduce side effects. Your thoughts?

.....

> > > From: catherinekerth1 catherinekerth@...> Subject: Back on the horse again!> hyperaldosteronism > Date: Wednesday, July 25, 2012, 10:21 AM> > > > Â > > > > I use to run about 20-25 miles/week before my adrenal glands decided they were against me back in Nov. 2011!> I am proud to say I have been on the Spiro and Dashing now for 3 weeks and I feel great! I can tell my potassium is going up and my pressure has been excellent! I have run 8 miles this week already!> I have noticed that if I have too much salt one day the next couple of days my BP is elevated. I plan on talking to my Neph about this. I don't think increasing spiro25mg would be wise... my BP gets to 150/98 a few times a week, thats okay with me most of the time it is 114/79! wooo hooo!> > > 38 yrs> aldo 30 (?-28)> renin .38 (.25-5.89)> ratio 78.9 (.9-28.9)> Spiro 25mg> Lisinopril 10mg (kidney saving purposes?)> CT scan normal> Saline suppression 8am 9ng/l noon 4ng/l > NOT diagnosed, but being actively treated for PA... Which is fine with me, i just wanted the Spiro to get my BP down!> K- (3.2 thru 4.0) 3.2 was when i was training for half marathon.... 4.0 was with very little running for a few months...> K-only low if I start to run or exercise vigorously. so i have shortened mileage and slowed pace a great deal to compensate. (a work in progress)> BP avg 140-160's/80-100's on a good day >

[Guest guest]

Been there,

done that and it is no fun. I

am scared to death of having another stroke. I'm serious about

the salt. When I had my stroke, I

had been on a salt binge and the weather was very hot. I was

43 years old. I was given another chance, the only residual I

have is slight expressive aphasia and I do a good job of

disguising it. The ironic thing is that since I was

34, I knew i would have a stroke sooner or later because I knew I

couldn't continue with a BP of 200/100 indefinitely. In

retrospect, I think having the stroke actually saved my life

because it forced me to seek out a diagnosis and

change my diet. Of course I am not advocating for folks to have a

stroke before they change their ways.

Phyllis

45yo AAF 20yr of BP 170/100-220/120. Previous 7 BP pills, hx. htn,

chf

previous EF 20% now 50%, cardiomyapathy, lvh, cva, sarcoidosis ?-

no

residual except I can't recall words at times,

current meds Spiro 25mg daily, Benicar 20mg bid, dashing, not

officially

diagnosed with PA but only mcb and dash work. Dr.Elijah Saunders,

BP

now 118-130/69-81,

On 7/25/2012 11:41 AM, Bingham wrote:

Heres a very important point- you can try and

up your spiro more and more but at a point you

outsalt the medication regardless and that set

point doesn't seem to be the same in all of us,

yet we all seem to outsalt it fairly easy. Dr

Grim talks about that alot on here. Just because

you are on spiro you still have to limit your

salt to 1500 per day, period. It's not the same

situation say as diabetes wherein you just add

more insulin to compensate for cheating on a

diet. It is essential you watch your salt. The

spiro you are taking does not have endless

effect.

Second, in some patients the most dangerous

type of blood pressures are those with sudden

spikes and rapid jumps up in BP, as we all could

be just one weak artery away from suddenly

drooling and slurring our words and having a

dead 1/2 of our body - if we make it through the

stroke that is. So you can't really play with

the salt unless you are willing to tempt fate

for a few too many slices of pizza and I have

found that when I go over 1400/1500 it can be

days to recover and I feel like crap and taking

the "extra" dose of spiro does not compensate

for it.

So be careful.

-- On Wed, 7/25/12, catherinekerth1 <catherinekerth@...>

wrote:

From: catherinekerth1

<catherinekerth@...>

Subject: Back on the horse

again!

hyperaldosteronism

Date: Wednesday, July 25, 2012, 10:21 AM

I use to run about 20-25 miles/week

before my adrenal glands decided they

were against me back in Nov. 2011!

I am proud to say I have been on the

Spiro and Dashing now for 3 weeks and I

feel great! I can tell my potassium is

going up and my pressure has been

excellent! I have run 8 miles this week

already!

I have noticed that if I have too much

salt one day the next couple of days my

BP is elevated. I plan on talking to my

Neph about this. I don't think

increasing spiro25mg would be wise... my

BP gets to 150/98 a few times a week,

thats okay with me most of the time

it is 114/79! wooo hooo!

38 yrs

aldo 30 (?-28)

renin .38 (.25-5.89)

ratio 78.9 (.9-28.9)

Spiro 25mg

Lisinopril 10mg (kidney saving

purposes?)

CT scan normal

Saline suppression 8am 9ng/l noon 4ng/l

NOT diagnosed, but being actively

treated for PA... Which is fine with me,

i just wanted the Spiro to get my BP

down!

K- (3.2 thru 4.0) 3.2 was when i was

training for half marathon.... 4.0 was

with very little running for a few

months...

K-only low if I start to run or exercise

vigorously. so i have shortened mileage

and slowed pace a great deal to

compensate. (a work in progress)

BP avg 140-160's/80-100's on a good day

[Guest guest]

Thanks for the note and thumbnail Phyllis. Might want to add to your thumbnail RN after AAF. Gives added weight to advice I think.On Jul 25, 2012, at 12:26 PM, Phyllis wrote:

Been there,

done that and it is no fun. I

am scared to death of having another stroke. I'm serious about

the salt. When I had my stroke, I

had been on a salt binge and the weather was very hot. I was

43 years old. I was given another chance, the only residual I

have is slight expressive aphasia and I do a good job of

disguising it. The ironic thing is that since I was

34, I knew i would have a stroke sooner or later because I knew I

couldn't continue with a BP of 200/100 indefinitely. In

retrospect, I think having the stroke actually saved my life

because it forced me to seek out a diagnosis and

change my diet. Of course I am not advocating for folks to have a

stroke before they change their ways.

Phyllis

45yo AAF 20yr of BP 170/100-220/120. Previous 7 BP pills, hx. htn,

chf

previous EF 20% now 50%, cardiomyapathy, lvh, cva, sarcoidosis ?-

no

residual except I can't recall words at times,

current meds Spiro 25mg daily, Benicar 20mg bid, dashing, not

officially

diagnosed with PA but only mcb and dash work. Dr.Elijah Saunders,

BP

now 118-130/69-81,

On 7/25/2012 11:41 AM, Bingham wrote:

Heres a very important point- you can try and

up your spiro more and more but at a point you

outsalt the medication regardless and that set

point doesn't seem to be the same in all of us,

yet we all seem to outsalt it fairly easy. Dr

Grim talks about that alot on here. Just because

you are on spiro you still have to limit your

salt to 1500 per day, period. It's not the same

situation say as diabetes wherein you just add

more insulin to compensate for cheating on a

diet. It is essential you watch your salt. The

spiro you are taking does not have endless

effect.

Second, in some patients the most dangerous

type of blood pressures are those with sudden

spikes and rapid jumps up in BP, as we all could

be just one weak artery away from suddenly

drooling and slurring our words and having a

dead 1/2 of our body - if we make it through the

stroke that is. So you can't really play with

the salt unless you are willing to tempt fate

for a few too many slices of pizza and I have

found that when I go over 1400/1500 it can be

days to recover and I feel like crap and taking

the "extra" dose of spiro does not compensate

for it.

So be careful.

-- On Wed, 7/25/12, catherinekerth1 <catherinekerth@...>

wrote:

From: catherinekerth1

<catherinekerth@...>

Subject: Back on the horse

again!

hyperaldosteronism

Date: Wednesday, July 25, 2012, 10:21 AM

I use to run about 20-25 miles/week

before my adrenal glands decided they

were against me back in Nov. 2011!

I am proud to say I have been on the

Spiro and Dashing now for 3 weeks and I

feel great! I can tell my potassium is

going up and my pressure has been

excellent! I have run 8 miles this week

already!

I have noticed that if I have too much

salt one day the next couple of days my

BP is elevated. I plan on talking to my

Neph about this. I don't think

increasing spiro25mg would be wise... my

BP gets to 150/98 a few times a week,

thats okay with me most of the time

it is 114/79! wooo hooo!

38 yrs

aldo 30 (?-28)

renin .38 (.25-5.89)

ratio 78.9 (.9-28.9)

Spiro 25mg

Lisinopril 10mg (kidney saving

purposes?)

CT scan normal

Saline suppression 8am 9ng/l noon 4ng/l

NOT diagnosed, but being actively

treated for PA... Which is fine with me,

i just wanted the Spiro to get my BP

down!

K- (3.2 thru 4.0) 3.2 was when i was

training for half marathon.... 4.0 was

with very little running for a few

months...

K-only low if I start to run or exercise

vigorously. so i have shortened mileage

and slowed pace a great deal to

compensate. (a work in progress)

BP avg 140-160's/80-100's on a good day