Re: Re: UPDATE- two days on eplerenone

[Guest guest]

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

[Guest guest]

My last K result I have seen was 3.9 post saline loading test. This is while I was on 20meq of K. I think that's the highest it's been in a long time. All the docs would ever say is " you K is low. Eat some bananas "z I never saw any numbers.. But the kidney specialist looked at my history and asked me if I always had low K. I told him the banana thing !! Then he put me on supplements. I need to learn how to do the thumbnail thing. Then collect all my tests and post them. Sent from my iPhoneOn Aug 1, 2012, at 2:21 PM, " " <jclark24p@...> wrote:

You didn't tell us what your K was when you started this. Many doctors do it this way (we should call them the IGUESSDOCS! ) Unless your K is in the higher end of the scale my doctor would have started the Eplerenone and had me on a 2-week recall recall for testing. (I have to drive 102 miles for that testing but she doesn't care, she doesn't like to hear me bitch! )

I would agree that your K is more than likely low and I would suspect the Eplerenone isn't completely working. Since you didn't mention DASH or a urine Na test I am assuming you are outsalting the Epler. You can increase epler but it likely won't do much but maybe give you diarrhea! They should do some baseline testing unless this has been recently done, 24hr urine especially.

A good thumbnail will make it a lot easier for us so we can reduce the guessing. Do they know you have PA or what makes them suspect it? BP numbers and are you taking it at home daily?

We can probably help if we know what is going on.

.....

>> Hi all,> > The Kidney specialist put me on eplerenone on Monday.> 25mg - 2/day. I started Monday night.> He had me stop my Postassium supplements (20MEQ 1/day)> Tuesday - Started feeling lots different. > I swear I went pee every 2 hrs. that day. > the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent> Wednesday - Woke up feeling not as well. Now my legs are cramping> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone. > 1. Should I wait a few days and see how my body responds ?> 2. Maybe i'm still spilling too much K?> Too low of dose of eplerenone?> > Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.>

[Guest guest]

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

[Guest guest]

When I was seriously controlling my sodium, I ate no bread, cottage cheese, deli meat, cheese.  I'd like to see you add up the sodium/potassium in what you ate. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of womckinsey I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. Granola I just took my K supplement. Im convinced my K is low. Thanks for the responses and patience .

[Guest guest]

You are the the only one who knows how you feel. His job is to get you feeling better. Till I see a good thumbnail cannot help. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 15:21, <jclark24p@...> wrote:

You didn't tell us what your K was when you started this. Many doctors do it this way (we should call them the IGUESSDOCS! ) Unless your K is in the higher end of the scale my doctor would have started the Eplerenone and had me on a 2-week recall recall for testing. (I have to drive 102 miles for that testing but she doesn't care, she doesn't like to hear me bitch! )

I would agree that your K is more than likely low and I would suspect the Eplerenone isn't completely working. Since you didn't mention DASH or a urine Na test I am assuming you are outsalting the Epler. You can increase epler but it likely won't do much but maybe give you diarrhea! They should do some baseline testing unless this has been recently done, 24hr urine especially.

A good thumbnail will make it a lot easier for us so we can reduce the guessing. Do they know you have PA or what makes them suspect it? BP numbers and are you taking it at home daily?

We can probably help if we know what is going on.

.....

>> Hi all,> > The Kidney specialist put me on eplerenone on Monday.> 25mg - 2/day. I started Monday night.> He had me stop my Postassium supplements (20MEQ 1/day)> Tuesday - Started feeling lots different. > I swear I went pee every 2 hrs. that day. > the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent> Wednesday - Woke up feeling not as well. Now my legs are cramping> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will

my body rebound, I understand the reasoning for going off K due to the eplerenone. > 1. Should I wait a few days and see how my body responds ?> 2. Maybe i'm still spilling too much K?> Too low of dose of eplerenone?> > Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.>

[Guest guest]

Get the Loseit ap for your iPhone and tract your salt. My guess you got over 2000 mg in what u said u ate read the label on the roast beef. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 19:25, womckinsey <womckinsey@...> wrote:

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

[Guest guest]

Ok. I used to eat alot of canned goods until I started paying attention to sodium levels. I think my biggest problem is that I have been feeling so crappy for so long I kinda give up and don't attack that kind of stuff very hard. I feel too down trodden most days to make anything really count. I have no support system other than my young kids but I do my best to hide it. Which is not very good. Still have no idea how to make a thumbnail. Did I miss reading something?Sent from my iPhoneOn Aug 1, 2012, at 9:38 PM, Clarence Grim <lowerbp2@...> wrote:

Get the Loseit ap for your iPhone and tract your salt. My guess you got over 2000 mg in what u said u ate read the label on the roast beef. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 19:25, womckinsey <womckinsey@...> wrote:

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

[Guest guest]

A thumbnail is a minibio below your signature in all messages to this group that separates you from the other 700+ folks here when we see your questions and comments. Without this and a complete Story in our files it is very difficult to keep folks separate and help everyone here.So if you want to feel better faster we can help. But only if we have the right information in a timeline. I attach an excel file that you and your medical team and us folks here will find most useful in your journey getting back to feeling normal or at least a lot better.

May your salt intake and pressure be low!Clarence Grim BS, MS, MDRetired (Semi) Professor of MedicineMedical College of WisconsinBoard Certified Internal Medicine, Geriatrics, Hypertension SpecialistSpecializing in difficult to control high blood pressure especially the numerous forms of Primary Aldsoteronism.Mission: Training you and your health care team to get BP, HbA1 and lipids to goal by merging lifestyle and pharmaceutical modalities.ALL advice given by me MUST be discussed with your heath care team. They know you best. Don't gamble with your life. Don't become a cyberchondriac by looking at fringe groups on the web. We encourage members of your health care team to join our efforts to learn what is new as well to refresh what is old but still good in the BP business.

On Aug 1, 2012, at 11:09 PM, womckinsey wrote:

Ok. I used to eat alot of canned goods until I started paying attention to sodium levels. I think my biggest problem is that I have been feeling so crappy for so long I kinda give up and don't attack that kind of stuff very hard. I feel too down trodden most days to make anything really count. I have no support system other than my young kids but I do my best to hide it. Which is not very good. Still have no idea how to make a thumbnail. Did I miss reading something?Sent from my iPhoneOn Aug 1, 2012, at 9:38 PM, Clarence Grim <lowerbp2@...> wrote:

Get the Loseit ap for your iPhone and tract your salt. My guess you got over 2000 mg in what u said u ate read the label on the roast beef. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 19:25, womckinsey <womckinsey@...> wrote:

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

1 of 1 File(s)

Master Data File 120728.0.xlsx

[Guest guest]

Thumbnail example 0 to be copied at the bottom of every email you send to the group: M, 41, 5'11 " , 300 lbs, aldosterone = 20, renin = 0.3, K = 3.0, other test (all with normal bands), BP level (and for how long), what drugs on now or in the past, what worked, DASHing?, and other issues, etc. There are now over 700 people in the group and it is impossible to remember what each said and when.  For example, one day you could say your K is " good " (whatever that means) and a few days later, your BP is very high (whatever that means).  Few will connect you to both those conditions.  Remember in the U.S. doctors must give you a printout of all your test results.  Keep your own records. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of womckinseyStill have no idea how to make a thumbnail. Did I miss reading something?Sent from my iPhoneReply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (14) Recent Activity: · New Members 2 · New Files 3 Visit Your Group Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use.

[Guest guest]

So I am new to this group and have trying to figure out an easy way to do a thumbnail with my IPad. Maybe this would work for me. Thanks,Janet57 year old femaleNot confirmed dx of PA via Saline test, but doesn' t seem like they followed correct procedure24hr urine test did indicate PA, but not done right either1 cm adenoma right adrenalK between 3.2 - 3.7 over last few years, scale 3.5 lowest of rangeRenin Aldosterone 25(do not know scale)Just started on 25 mg 2 times Per day of Spiro July 27Also diagnosed with Myasthenia gravis 6 years ago, take Mestinon and Imuran for thisHiatal hernia discovered during testing for swallowing problems, take Omeprazole for thisHypothyroid - just up to 150's last week because level lowHigh chlolesterol about 6 yrs ago too take Welchol for thisOverall pill count per day right now is 24. Not fun and not easy to keep track of since they are all different dose frequencies.On Aug 2, 2012, at 4:42 AM, Virginia Wall <virgwall@...> wrote:

I see you're on an iPhone. I keep my thumbnail in the "notes" app and copy and paste. Virginia Wall31 year old femaleCurrent K 4.0DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MORight adrenalectomy consult scheduled Aug 6, 20123 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismSpiro 100 mg 1x dayPrenatal vitaminBreastfeeding; 6 month old with G6PDDOn Aug 2, 2012, at 2:07 AM, Grim Clarence <lowerbp2@...> wrote:A thumbnail is a minibio below your signature in all messages to this group that separates you from the other 700+ folks here when we see your questions and comments. Without this and a complete Story in our files it is very difficult to keep folks separate and help everyone here.So if you want to feel better faster we can help. But only if we have the right information in a timeline. I attach an excel file that you and your medical team and us folks here will find most useful in your journey getting back to feeling normal or at least a lot better.

<Master Data File 120728.0.xlsx>

May your salt intake and pressure be low!Clarence Grim BS, MS, MDRetired (Semi) Professor of MedicineMedical College of WisconsinBoard Certified Internal Medicine, Geriatrics, Hypertension SpecialistSpecializing in difficult to control high blood pressure especially the numerous forms of Primary Aldsoteronism.Mission: Training you and your health care team to get BP, HbA1 and lipids to goal by merging lifestyle and pharmaceutical modalities.ALL advice given by me MUST be discussed with your heath care team. They know you best. Don't gamble with your life. Don't become a cyberchondriac by looking at fringe groups on the web. We encourage members of your health care team to join our efforts to learn what is new as well to refresh what is old but still good in the BP business.

On Aug 1, 2012, at 11:09 PM, womckinsey wrote:

Ok. I used to eat alot of canned goods until I started paying attention to sodium levels. I think my biggest problem is that I have been feeling so crappy for so long I kinda give up and don't attack that kind of stuff very hard. I feel too down trodden most days to make anything really count. I have no support system other than my young kids but I do my best to hide it. Which is not very good. Still have no idea how to make a thumbnail. Did I miss reading something?Sent from my iPhoneOn Aug 1, 2012, at 9:38 PM, Clarence Grim <lowerbp2@...> wrote:

Get the Loseit ap for your iPhone and tract your salt. My guess you got over 2000 mg in what u said u ate read the label on the roast beef. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 19:25, womckinsey <womckinsey@...> wrote:

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

=

[Guest guest]

Forgot to add - my BP was spiking to 180/110 or around that range before they put me on some BP Meds. They prescribed Lisinopril first, but then I discovered that shouldn't be taken with the Imuran I take for my MG. this helped my BP, but my swelling and overall pain due to swelling got worse. Then they prescribed Clonidine which lowered my BP, but made me so weak and dizzy I could hardly walk and definitely could not drive to work. Luckily I am able to work from home when I need to(like this whole last month).I'm trying to follow the DASH diet. I feel better and not peeing all night long but still a couple times. Maybe I'm not getting enough spiro or something? I had a couple bad days this week where I felt super weak again. Not sure about that either. It could be the MG.JanetOn Aug 2, 2012, at 12:52 PM, Janet <jmryczaj@...> wrote:

So I am new to this group and have trying to figure out an easy way to do a thumbnail with my IPad. Maybe this would work for me. Thanks,Janet57 year old femaleNot confirmed dx of PA via Saline test, but doesn' t seem like they followed correct procedure24hr urine test did indicate PA, but not done right either1 cm adenoma right adrenalK between 3.2 - 3.7 over last few years, scale 3.5 lowest of rangeRenin Aldosterone 25(do not know scale)Just started on 25 mg 2 times Per day of Spiro July 27Also diagnosed with Myasthenia gravis 6 years ago, take Mestinon and Imuran for thisHiatal hernia discovered during testing for swallowing problems, take Omeprazole for thisHypothyroid - just up to 150's last week because level lowHigh chlolesterol about 6 yrs ago too take Welchol for thisOverall pill count per day right now is 24. Not fun and not easy to keep track of since they are all different dose frequencies.On Aug 2, 2012, at 4:42 AM, Virginia Wall <virgwall@...> wrote:

I see you're on an iPhone. I keep my thumbnail in the "notes" app and copy and paste. Virginia Wall31 year old femaleCurrent K 4.0DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MORight adrenalectomy consult scheduled Aug 6, 20123 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismSpiro 100 mg 1x dayPrenatal vitaminBreastfeeding; 6 month old with G6PDDOn Aug 2, 2012, at 2:07 AM, Grim Clarence <lowerbp2@...> wrote:A thumbnail is a minibio below your signature in all messages to this group that separates you from the other 700+ folks here when we see your questions and comments. Without this and a complete Story in our files it is very difficult to keep folks separate and help everyone here.So if you want to feel better faster we can help. But only if we have the right information in a timeline. I attach an excel file that you and your medical team and us folks here will find most useful in your journey getting back to feeling normal or at least a lot better.

<Master Data File 120728.0.xlsx>

May your salt intake and pressure be low!Clarence Grim BS, MS, MDRetired (Semi) Professor of MedicineMedical College of WisconsinBoard Certified Internal Medicine, Geriatrics, Hypertension SpecialistSpecializing in difficult to control high blood pressure especially the numerous forms of Primary Aldsoteronism.Mission: Training you and your health care team to get BP, HbA1 and lipids to goal by merging lifestyle and pharmaceutical modalities.ALL advice given by me MUST be discussed with your heath care team. They know you best. Don't gamble with your life. Don't become a cyberchondriac by looking at fringe groups on the web. We encourage members of your health care team to join our efforts to learn what is new as well to refresh what is old but still good in the BP business.

On Aug 1, 2012, at 11:09 PM, womckinsey wrote:

Ok. I used to eat alot of canned goods until I started paying attention to sodium levels. I think my biggest problem is that I have been feeling so crappy for so long I kinda give up and don't attack that kind of stuff very hard. I feel too down trodden most days to make anything really count. I have no support system other than my young kids but I do my best to hide it. Which is not very good. Still have no idea how to make a thumbnail. Did I miss reading something?Sent from my iPhoneOn Aug 1, 2012, at 9:38 PM, Clarence Grim <lowerbp2@...> wrote:

Get the Loseit ap for your iPhone and tract your salt. My guess you got over 2000 mg in what u said u ate read the label on the roast beef. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 19:25, womckinsey <womckinsey@...> wrote:

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

=

=

[Guest guest]

So no problems with BP?Nocturia how many times a night?I can imagine someone with low K problems being Dxed with MG by error. Which came first? low K or MG.And I suspect low K makes MG a lot worse. But not my area of expertise.

Clarence Grim MD

On Aug 2, 2012, at 2:52 PM, Janet wrote:So I am new to this group and have trying to figure out an easy way to do a thumbnail with my IPad. Maybe this would work for me. Thanks,Janet57 year old femaleNot confirmed dx of PA via Saline test, but doesn' t seem like they followed correct procedure24hr urine test did indicate PA, but not done right either1 cm adenoma right adrenalK between 3.2 - 3.7 over last few years, scale 3.5 lowest of rangeRenin Aldosterone 25(do not know scale)Just started on 25 mg 2 times Per day of Spiro July 27Also diagnosed with Myasthenia gravis 6 years ago, take Mestinon and Imuran for thisHiatal hernia discovered during testing for swallowing problems, take Omeprazole for thisHypothyroid - just up to 150's last week because level lowHigh chlolesterol about 6 yrs ago too take Welchol for thisOverall pill count per day right now is 24. Not fun and not easy to keep track of since they are all different dose frequencies.

[Guest guest]

Still not clear on the time of the course of your MG, BP, low K? Which came first. When did nocturia start.Still suspicious of Dx of MG if low K was about the same time.

Clarence Grim MDlowerbp2@...

On Aug 2, 2012, at 9:10 PM, Janet wrote:

Forgot to add - my BP was spiking to 180/110 or around that range before they put me on some BP Meds. They prescribed Lisinopril first, but then I discovered that shouldn't be taken with the Imuran I take for my MG. this helped my BP, but my swelling and overall pain due to swelling got worse. Then they prescribed Clonidine which lowered my BP, but made me so weak and dizzy I could hardly walk and definitely could not drive to work. Luckily I am able to work from home when I need to(like this whole last month).I'm trying to follow the DASH diet. I feel better and not peeing all night long but still a couple times. Maybe I'm not getting enough spiro or something? I had a couple bad days this week where I felt super weak again. Not sure about that either. It could be the MG.JanetOn Aug 2, 2012, at 12:52 PM, Janet <jmryczaj@...> wrote:

So I am new to this group and have trying to figure out an easy way to do a thumbnail with my IPad. Maybe this would work for me. Thanks,Janet57 year old femaleNot confirmed dx of PA via Saline test, but doesn' t seem like they followed correct procedure24hr urine test did indicate PA, but not done right either1 cm adenoma right adrenalK between 3.2 - 3.7 over last few years, scale 3.5 lowest of rangeRenin Aldosterone 25(do not know scale)Just started on 25 mg 2 times Per day of Spiro July 27Also diagnosed with Myasthenia gravis 6 years ago, take Mestinon and Imuran for thisHiatal hernia discovered during testing for swallowing problems, take Omeprazole for thisHypothyroid - just up to 150's last week because level lowHigh chlolesterol about 6 yrs ago too take Welchol for thisOverall pill count per day right now is 24. Not fun and not easy to keep track of since they are all different dose frequencies.On Aug 2, 2012, at 4:42 AM, Virginia Wall <virgwall@...> wrote:

I see you're on an iPhone. I keep my thumbnail in the "notes" app and copy and paste. Virginia Wall31 year old femaleCurrent K 4.0DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MORight adrenalectomy consult scheduled Aug 6, 20123 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismSpiro 100 mg 1x dayPrenatal vitaminBreastfeeding; 6 month old with G6PDDOn Aug 2, 2012, at 2:07 AM, Grim Clarence <lowerbp2@...> wrote:A thumbnail is a minibio below your signature in all messages to this group that separates you from the other 700+ folks here when we see your questions and comments. Without this and a complete Story in our files it is very difficult to keep folks separate and help everyone here.So if you want to feel better faster we can help. But only if we have the right information in a timeline. I attach an excel file that you and your medical team and us folks here will find most useful in your journey getting back to feeling normal or at least a lot better.

<Master Data File 120728.0.xlsx>

May your salt intake and pressure be low!Clarence Grim BS, MS, MDRetired (Semi) Professor of MedicineMedical College of WisconsinBoard Certified Internal Medicine, Geriatrics, Hypertension SpecialistSpecializing in difficult to control high blood pressure especially the numerous forms of Primary Aldsoteronism.Mission: Training you and your health care team to get BP, HbA1 and lipids to goal by merging lifestyle and pharmaceutical modalities.ALL advice given by me MUST be discussed with your heath care team. They know you best. Don't gamble with your life. Don't become a cyberchondriac by looking at fringe groups on the web. We encourage members of your health care team to join our efforts to learn what is new as well to refresh what is old but still good in the BP business.

On Aug 1, 2012, at 11:09 PM, womckinsey wrote:

Ok. I used to eat alot of canned goods until I started paying attention to sodium levels. I think my biggest problem is that I have been feeling so crappy for so long I kinda give up and don't attack that kind of stuff very hard. I feel too down trodden most days to make anything really count. I have no support system other than my young kids but I do my best to hide it. Which is not very good. Still have no idea how to make a thumbnail. Did I miss reading something?Sent from my iPhoneOn Aug 1, 2012, at 9:38 PM, Clarence Grim <lowerbp2@...> wrote:

Get the Loseit ap for your iPhone and tract your salt. My guess you got over 2000 mg in what u said u ate read the label on the roast beef. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 19:25, womckinsey <womckinsey@...> wrote:

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

=

=

[Guest guest]

The MG came first as far as I know and I have very classic symptoms of it. I kind of think I have had a mild version of it all my life. Autoimmune diseases run in my family. My dx came after Menopause, but my PCP suspected MG before that in 2004. He tested me for it via blood test, but turns out I am considered a sero neg mg'r which is very common. My eyes were the first bad symptom, droopy and blurry. Then in 2006 I started having problems swallowing and losing my voice within 5 min of talking ( my vocal chords were not closing per tests). Very weak neck muscles which have caused a lot of pain working at a computer. Also get weak arms and leg dragging.My k may have been in the lower of the range for a while. But this spring is the first time I remember it was below the range. I have been getting a lot of muscle cramps for over a year though. My neuro said it was probably due to the Mestinon. So I didn't push it.My BP has been elevated off and on it seems since I started taking the Mestinon too. I assumed it was causing it because it does get you twitchy at times or very flushed.Nocturnal - it seems like it has been going on for a while, but it has been worse I would say this last year. I got up at least once a night about 4 hrs into sleep. Now it has been about 1 1/2 - 2 hrs. I also assumed this was mg related due to muscle weakness. But now I don't know if that was the reason. I do also have problems making it to the bathroom once I get an urge, weak muscle control there too.I guess I sound like a very out of shape person. I am not a super athlete or anything and I am overweight. But I do go to the gym regularly, ride bike or elliptical for 20 min, 20 min of floor exercises like sit up's, leg raises, push ups, then do some weight work and often 20 to 30 min of swimming. I also try to get in some 40 min walks when I don't go to the gym. However, this last month I have been to wiped out to do much of anything.hoping I can get this new challenge under control soon so I can get back on track.Janet On Aug 3, 2012, at 12:21 AM, Grim Clarence <lowerbp2@...> wrote:

Still not clear on the time of the course of your MG, BP, low K? Which came first. When did nocturia start.Still suspicious of Dx of MG if low K was about the same time.

Clarence Grim MDlowerbp2@...

On Aug 2, 2012, at 9:10 PM, Janet wrote:

Forgot to add - my BP was spiking to 180/110 or around that range before they put me on some BP Meds. They prescribed Lisinopril first, but then I discovered that shouldn't be taken with the Imuran I take for my MG. this helped my BP, but my swelling and overall pain due to swelling got worse. Then they prescribed Clonidine which lowered my BP, but made me so weak and dizzy I could hardly walk and definitely could not drive to work. Luckily I am able to work from home when I need to(like this whole last month).I'm trying to follow the DASH diet. I feel better and not peeing all night long but still a couple times. Maybe I'm not getting enough spiro or something? I had a couple bad days this week where I felt super weak again. Not sure about that either. It could be the MG.JanetOn Aug 2, 2012, at 12:52 PM, Janet <jmryczaj@...> wrote:

So I am new to this group and have trying to figure out an easy way to do a thumbnail with my IPad. Maybe this would work for me. Thanks,Janet57 year old femaleNot confirmed dx of PA via Saline test, but doesn' t seem like they followed correct procedure24hr urine test did indicate PA, but not done right either1 cm adenoma right adrenalK between 3.2 - 3.7 over last few years, scale 3.5 lowest of rangeRenin Aldosterone 25(do not know scale)Just started on 25 mg 2 times Per day of Spiro July 27Also diagnosed with Myasthenia gravis 6 years ago, take Mestinon and Imuran for thisHiatal hernia discovered during testing for swallowing problems, take Omeprazole for thisHypothyroid - just up to 150's last week because level lowHigh chlolesterol about 6 yrs ago too take Welchol for thisOverall pill count per day right now is 24. Not fun and not easy to keep track of since they are all different dose frequencies.On Aug 2, 2012, at 4:42 AM, Virginia Wall <virgwall@...> wrote:

I see you're on an iPhone. I keep my thumbnail in the "notes" app and copy and paste. Virginia Wall31 year old femaleCurrent K 4.0DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MORight adrenalectomy consult scheduled Aug 6, 20123 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismSpiro 100 mg 1x dayPrenatal vitaminBreastfeeding; 6 month old with G6PDDOn Aug 2, 2012, at 2:07 AM, Grim Clarence <lowerbp2@...> wrote:A thumbnail is a minibio below your signature in all messages to this group that separates you from the other 700+ folks here when we see your questions and comments. Without this and a complete Story in our files it is very difficult to keep folks separate and help everyone here.So if you want to feel better faster we can help. But only if we have the right information in a timeline. I attach an excel file that you and your medical team and us folks here will find most useful in your journey getting back to feeling normal or at least a lot better.

<Master Data File 120728.0.xlsx>

May your salt intake and pressure be low!Clarence Grim BS, MS, MDRetired (Semi) Professor of MedicineMedical College of WisconsinBoard Certified Internal Medicine, Geriatrics, Hypertension SpecialistSpecializing in difficult to control high blood pressure especially the numerous forms of Primary Aldsoteronism.Mission: Training you and your health care team to get BP, HbA1 and lipids to goal by merging lifestyle and pharmaceutical modalities.ALL advice given by me MUST be discussed with your heath care team. They know you best. Don't gamble with your life. Don't become a cyberchondriac by looking at fringe groups on the web. We encourage members of your health care team to join our efforts to learn what is new as well to refresh what is old but still good in the BP business.

On Aug 1, 2012, at 11:09 PM, womckinsey wrote:

Ok. I used to eat alot of canned goods until I started paying attention to sodium levels. I think my biggest problem is that I have been feeling so crappy for so long I kinda give up and don't attack that kind of stuff very hard. I feel too down trodden most days to make anything really count. I have no support system other than my young kids but I do my best to hide it. Which is not very good. Still have no idea how to make a thumbnail. Did I miss reading something?Sent from my iPhoneOn Aug 1, 2012, at 9:38 PM, Clarence Grim <lowerbp2@...> wrote:

Get the Loseit ap for your iPhone and tract your salt. My guess you got over 2000 mg in what u said u ate read the label on the roast beef. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 19:25, womckinsey <womckinsey@...> wrote:

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

=

=

=

[Guest guest]

If you have not I recommend the 14 day DASH test diet to see if things (muscles) get better.

Clarence Grim MD

On Aug 4, 2012, at 2:24 AM, Janet wrote:

The MG came first as far as I know and I have very classic symptoms of it. I kind of think I have had a mild version of it all my life. Autoimmune diseases run in my family. My dx came after Menopause, but my PCP suspected MG before that in 2004. He tested me for it via blood test, but turns out I am considered a sero neg mg'r which is very common. My eyes were the first bad symptom, droopy and blurry. Then in 2006 I started having problems swallowing and losing my voice within 5 min of talking ( my vocal chords were not closing per tests). Very weak neck muscles which have caused a lot of pain working at a computer. Also get weak arms and leg dragging.My k may have been in the lower of the range for a while. But this spring is the first time I remember it was below the range. I have been getting a lot of muscle cramps for over a year though. My neuro said it was probably due to the Mestinon. So I didn't push it.My BP has been elevated off and on it seems since I started taking the Mestinon too. I assumed it was causing it because it does get you twitchy at times or very flushed.Nocturnal - it seems like it has been going on for a while, but it has been worse I would say this last year. I got up at least once a night about 4 hrs into sleep. Now it has been about 1 1/2 - 2 hrs. I also assumed this was mg related due to muscle weakness. But now I don't know if that was the reason. I do also have problems making it to the bathroom once I get an urge, weak muscle control there too.I guess I sound like a very out of shape person. I am not a super athlete or anything and I am overweight. But I do go to the gym regularly, ride bike or elliptical for 20 min, 20 min of floor exercises like sit up's, leg raises, push ups, then do some weight work and often 20 to 30 min of swimming. I also try to get in some 40 min walks when I don't go to the gym. However, this last month I have been to wiped out to do much of anything.hoping I can get this new challenge under control soon so I can get back on track.Janet On Aug 3, 2012, at 12:21 AM, Grim Clarence <lowerbp2@...> wrote:

Still not clear on the time of the course of your MG, BP, low K? Which came first. When did nocturia start.Still suspicious of Dx of MG if low K was about the same time.

Clarence Grim MDlowerbp2@...

On Aug 2, 2012, at 9:10 PM, Janet wrote:

Forgot to add - my BP was spiking to 180/110 or around that range before they put me on some BP Meds. They prescribed Lisinopril first, but then I discovered that shouldn't be taken with the Imuran I take for my MG. this helped my BP, but my swelling and overall pain due to swelling got worse. Then they prescribed Clonidine which lowered my BP, but made me so weak and dizzy I could hardly walk and definitely could not drive to work. Luckily I am able to work from home when I need to(like this whole last month).I'm trying to follow the DASH diet. I feel better and not peeing all night long but still a couple times. Maybe I'm not getting enough spiro or something? I had a couple bad days this week where I felt super weak again. Not sure about that either. It could be the MG.JanetOn Aug 2, 2012, at 12:52 PM, Janet <jmryczaj@...> wrote:

So I am new to this group and have trying to figure out an easy way to do a thumbnail with my IPad. Maybe this would work for me. Thanks,Janet57 year old femaleNot confirmed dx of PA via Saline test, but doesn' t seem like they followed correct procedure24hr urine test did indicate PA, but not done right either1 cm adenoma right adrenalK between 3.2 - 3.7 over last few years, scale 3.5 lowest of rangeRenin Aldosterone 25(do not know scale)Just started on 25 mg 2 times Per day of Spiro July 27Also diagnosed with Myasthenia gravis 6 years ago, take Mestinon and Imuran for thisHiatal hernia discovered during testing for swallowing problems, take Omeprazole for thisHypothyroid - just up to 150's last week because level lowHigh chlolesterol about 6 yrs ago too take Welchol for thisOverall pill count per day right now is 24. Not fun and not easy to keep track of since they are all different dose frequencies.On Aug 2, 2012, at 4:42 AM, Virginia Wall <virgwall@...> wrote:

I see you're on an iPhone. I keep my thumbnail in the "notes" app and copy and paste. Virginia Wall31 year old femaleCurrent K 4.0DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MORight adrenalectomy consult scheduled Aug 6, 20123 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismSpiro 100 mg 1x dayPrenatal vitaminBreastfeeding; 6 month old with G6PDDOn Aug 2, 2012, at 2:07 AM, Grim Clarence <lowerbp2@...> wrote:A thumbnail is a minibio below your signature in all messages to this group that separates you from the other 700+ folks here when we see your questions and comments. Without this and a complete Story in our files it is very difficult to keep folks separate and help everyone here.So if you want to feel better faster we can help. But only if we have the right information in a timeline. I attach an excel file that you and your medical team and us folks here will find most useful in your journey getting back to feeling normal or at least a lot better.

<Master Data File 120728.0.xlsx>

May your salt intake and pressure be low!Clarence Grim BS, MS, MDRetired (Semi) Professor of MedicineMedical College of WisconsinBoard Certified Internal Medicine, Geriatrics, Hypertension SpecialistSpecializing in difficult to control high blood pressure especially the numerous forms of Primary Aldsoteronism.Mission: Training you and your health care team to get BP, HbA1 and lipids to goal by merging lifestyle and pharmaceutical modalities.ALL advice given by me MUST be discussed with your heath care team. They know you best. Don't gamble with your life. Don't become a cyberchondriac by looking at fringe groups on the web. We encourage members of your health care team to join our efforts to learn what is new as well to refresh what is old but still good in the BP business.

On Aug 1, 2012, at 11:09 PM, womckinsey wrote:

Ok. I used to eat alot of canned goods until I started paying attention to sodium levels. I think my biggest problem is that I have been feeling so crappy for so long I kinda give up and don't attack that kind of stuff very hard. I feel too down trodden most days to make anything really count. I have no support system other than my young kids but I do my best to hide it. Which is not very good. Still have no idea how to make a thumbnail. Did I miss reading something?Sent from my iPhoneOn Aug 1, 2012, at 9:38 PM, Clarence Grim <lowerbp2@...> wrote:

Get the Loseit ap for your iPhone and tract your salt. My guess you got over 2000 mg in what u said u ate read the label on the roast beef. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Aug 1, 2012, at 19:25, womckinsey <womckinsey@...> wrote:

I really don't eat alot of salt since I have had blood pressure issues. For example. Today I ate a yogurt and granola bar for breakfastFor lunch I had a roast beef sandwich . No mayo just Dijon. Lettuce. And not alot of roast beef. I ask them to make it with half the meat. Swiss!! Did drink a Gatorade .. But mostly water. That's it.. I'm home now from work and may make a snack and watch some tv to relax . Maybe a bowl of cereal .. GranolaI just took my K supplement. Im convinced my K is low. Thanks for the responses and patience Sent from my iPhoneOn Aug 1, 2012, at 1:34 PM, Dianne strong <dianstrong@...> wrote:

Low sodium V-8 is a great source of k. Some people like Coconut water for k, not coconut milk or cream. Costco sells coconut water. I don't like it on its own, but it has a slightly salty taste so I add it to soups and smoothies. Google other sources of potassium. I'm with you in the thought that a diagnosis of Fibro should probably really be diagnosed as a low k problem. Dianne

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2 years.. I always told them that I thought it was hogwash and that my body was not running right. With these huge fluctuations in muscle aches, I'm inclined to think I had a low K issue for a long time

I even got "Code Blue"'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know it sounds gross, but it was alot... then I passed out and my whole body seized up/crammped.. my face went numb and I couldn't feel my legs. They thought I was having a stroke or an allergic reaction. They never could answer why that happened.

Some said allergic reaction..some said a funky never or something toggled. never any answers and I was sent home when I stablized. The blockage was gone after that episode.

I now think I lost so much fluid and I was already low K that my body went into low K shock.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

>

=

=

=