Re: Pre-AVS advice/Tips? What is the 4 weeks without Spiro like?

[Guest guest]

Couple of things:· Do they use ACTH during AVS? If not then…see what Dr. Grim says J· Is the AVS radiologist experienced? How many AVS had he to repeat? How many failed? How many successful? If you don’t check it out they put you under a new radiologist and he cannot find the right side vein and has to redo the AVS L· Quit Spirono for 6 weeks to be on the safe side J· Make sure post AVS full results because Dr. Grim has noticed many unbelievable dumb misinterpretations by AVS specialists L· If AVS done properly, you can walk same day…but not too much activity for a week in advised L· ….· Good luck. Max. | Pre-AVS advice/Tips? What is the 4 weeks|without Spiro like?||I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2 weeks|from now. Before everyone lets me know about the 6 weeks off spiro, the|Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to|think this would be a problem and told me that many publications state 4 week|waiting period.||Anyway, I am wondering what are the rules or tips to live by during the weeks|leading up to the AVS? I am wondering about the following:||Exercise|I love to exercise and run 3-4 times per week. I lift weights off and on and play|basketball after work throughout the work week. Is exercise off limits without|meds? Do I need to take it easy? What have others been told? What have|your experiences been like?||Potassium|I kind of DASH (eat enough servings of veg and fruit), but tend to eat more red|meat, poultry, and nuts than prescribed by the DASH serving sizes/daily|requirements. Do I need to have my potassium checked frequently? Do I need|to up my intake of my tasty Low Sodium V8?||Spiro|Do you have to taper Spiro like a beta blocker? Or is it best to stop cold turkey?|Any doctors tell you to taper?||Post AVS - Surgery|This is more selfish than anything, but I have a golf trip scheduled for September|19th. I am wondering if my AVS is conclusive and I am a candidate for surgery,|if it hurts anything to postpone surgery after AVS. My plan would be to go back|on the Spiro after AVS and have surgery in December if I am a candidate. Any|disadvantages to this? Any danger in this? Any advantages to doing surgery|right away?||Risk of Stroke/Heart Attack|Before I was diagnosed I had crazy, out of control, anxiety! The Spiro and|exercise has eliminated this to the point that my former psychiatrist (now|friend) told me I didn't need to visit her anymore after on the Spiro for 3 weeks.|My attitude changed and anxiety subsided. Well, I have to admit that I am|having some anxiety issues with being off the meds for 4 weeks. I am|wondering if my BP will sky rocket. I am wondering if I am going to have a heart|attack while running, lifting, or playing basketball.||Thank you in advance for anyone who has experience dealing with the weeks|leading up to AVS. This site is so valuable.|||35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).||||------------------------------------||

[Guest guest]

I had AVS twice and didn't have to do anything special to prepare each time.

Kept my normal work, exercise, crazy busy life schedule up to the day of the

procedure, and was back to normal about 2 days after the procedure each time. To

be on the safe side, I waited a week before any strenuous exercise or stretching

after the AVS.

As for wait between AVS and surgery - my second AVS was in early August IIRC,

and my surgery was in mid-October. Would have liked it to have been sooner, but

between the wait for the AVS results to be interpreted, and the schedule of my

chosen surgeon, that's how it worked out. I was unmedicated and fine the whole

time. One thing to keep in mind is that if you go back on spiro, but for some

reason you have to repeat the AVS (it happens!), you'll need to do the 4-week

waiting period while it clears your system again. So, you may want to stay off

meds until the results come in if your medical team agrees to this.

The one thing I can't stress enough is how important monitoring K is. From the

day of my diagnosis last February through three months after my adrenalectomy, I

had my K monitored *every week*. When in the hospital for AVS and for surgery, I

was unable to leave until my K had stabilized at 3.8 or higher. From other posts

I've seen here, other doctors and facilities are not nearly as vigilant about

this as mine have been - and I think it's a shame. So, after your AVS, PLEASE

make sure they are monitoring your K, and that they don't let you go until it's

well into the normal range. A lot of folks here have had post-AVS ER visits

because of low K.

-msmith1928

Left laparoscopic adrenalectomy 10/13/11

>

> I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2

weeks from now. Before everyone lets me know about the 6 weeks off spiro, the

Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to

think this would be a problem and told me that many publications state 4 week

waiting period.

>

> Anyway, I am wondering what are the rules or tips to live by during the weeks

leading up to the AVS? I am wondering about the following:

>

> Exercise

> I love to exercise and run 3-4 times per week. I lift weights off and on and

play basketball after work throughout the work week. Is exercise off limits

without meds? Do I need to take it easy? What have others been told? What

have your experiences been like?

>

> Potassium

> I kind of DASH (eat enough servings of veg and fruit), but tend to eat more

red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

requirements. Do I need to have my potassium checked frequently? Do I need to

up my intake of my tasty Low Sodium V8?

>

> Spiro

> Do you have to taper Spiro like a beta blocker? Or is it best to stop cold

turkey? Any doctors tell you to taper?

>

> Post AVS - Surgery

> This is more selfish than anything, but I have a golf trip scheduled for

September 19th. I am wondering if my AVS is conclusive and I am a candidate for

surgery, if it hurts anything to postpone surgery after AVS. My plan would be

to go back on the Spiro after AVS and have surgery in December if I am a

candidate. Any disadvantages to this? Any danger in this? Any advantages to

doing surgery right away?

>

> Risk of Stroke/Heart Attack

> Before I was diagnosed I had crazy, out of control, anxiety! The Spiro and

exercise has eliminated this to the point that my former psychiatrist (now

friend) told me I didn't need to visit her anymore after on the Spiro for 3

weeks. My attitude changed and anxiety subsided. Well, I have to admit that I

am having some anxiety issues with being off the meds for 4 weeks. I am

wondering if my BP will sky rocket. I am wondering if I am going to have a

heart attack while running, lifting, or playing basketball.

>

> Thank you in advance for anyone who has experience dealing with the weeks

leading up to AVS. This site is so valuable.

>

>

> 35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

>

[Guest guest]

Max,

Have you had an AVS already? What was your experience like? I am being treated

at Wash U in St. Louis. Dr. Picus does all of the AVS procedures. My endo at

Mayo is comfortable with me getting the AVS done in St. Louis.

How much did your BP shoot up before AVS (not on meds)? Did the doctor

prescribe any BP meds during this time?

Thanks,

>

> Couple of things:

>

> . Do they use ACTH during AVS? If not then.see what Dr. Grim says J

>

> . Is the AVS radiologist experienced? How many AVS had he to repeat?

> How many failed? How many successful? If you don't check it out they put you

> under a new radiologist and he cannot find the right side vein and has to

> redo the AVS L

>

> . Quit Spirono for 6 weeks to be on the safe side J

>

> . Make sure post AVS full results because Dr. Grim has noticed many

> unbelievable dumb misinterpretations by AVS specialists L

>

> . If AVS done properly, you can walk same day.but not too much

> activity for a week in advised L

>

> . ..

>

> . Good luck.

>

>

>

> Max.

>

>

>

> | Pre-AVS advice/Tips? What is the 4 weeks

>

> |without Spiro like?

>

> |

>

> |I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2

> weeks

>

> |from now. Before everyone lets me know about the 6 weeks off spiro, the

>

> |Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to

>

> |think this would be a problem and told me that many publications state 4

> week

>

> |waiting period.

>

> |

>

> |Anyway, I am wondering what are the rules or tips to live by during the

> weeks

>

> |leading up to the AVS? I am wondering about the following:

>

> |

>

> |Exercise

>

> |I love to exercise and run 3-4 times per week. I lift weights off and on

> and play

>

> |basketball after work throughout the work week. Is exercise off limits

> without

>

> |meds? Do I need to take it easy? What have others been told? What have

>

> |your experiences been like?

>

> |

>

> |Potassium

>

> |I kind of DASH (eat enough servings of veg and fruit), but tend to eat more

> red

>

> |meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

>

> |requirements. Do I need to have my potassium checked frequently? Do I

> need

>

> |to up my intake of my tasty Low Sodium V8?

>

> |

>

> |Spiro

>

> |Do you have to taper Spiro like a beta blocker? Or is it best to stop cold

> turkey?

>

> |Any doctors tell you to taper?

>

> |

>

> |Post AVS - Surgery

>

> |This is more selfish than anything, but I have a golf trip scheduled for

> September

>

> |19th. I am wondering if my AVS is conclusive and I am a candidate for

> surgery,

>

> |if it hurts anything to postpone surgery after AVS. My plan would be to go

> back

>

> |on the Spiro after AVS and have surgery in December if I am a candidate.

> Any

>

> |disadvantages to this? Any danger in this? Any advantages to doing

> surgery

>

> |right away?

>

> |

>

> |Risk of Stroke/Heart Attack

>

> |Before I was diagnosed I had crazy, out of control, anxiety! The Spiro and

>

> |exercise has eliminated this to the point that my former psychiatrist (now

>

> |friend) told me I didn't need to visit her anymore after on the Spiro for 3

> weeks.

>

> |My attitude changed and anxiety subsided. Well, I have to admit that I am

>

> |having some anxiety issues with being off the meds for 4 weeks. I am

>

> |wondering if my BP will sky rocket. I am wondering if I am going to have a

> heart

>

> |attack while running, lifting, or playing basketball.

>

> |

>

> |Thank you in advance for anyone who has experience dealing with the weeks

>

> |leading up to AVS. This site is so valuable.

>

> |

>

> |

>

> |35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

>

> |

>

> |

>

> |

>

> |------------------------------------

>

> |

>

> |

[Guest guest]

Lots of good questions. Your team should be able to answer them as they know u best and U are paying then for this I assume. Wash U is one of the best so go to them with these questions. CE Grim MDMay your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jul 23, 2012, at 12:04, crzylnebkr <smort@...> wrote:

I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2 weeks from now. Before everyone lets me know about the 6 weeks off spiro, the Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to think this would be a problem and told me that many publications state 4 week waiting period.

Anyway, I am wondering what are the rules or tips to live by during the weeks leading up to the AVS? I am wondering about the following:

Exercise

I love to exercise and run 3-4 times per week. I lift weights off and on and play basketball after work throughout the work week. Is exercise off limits without meds? Do I need to take it easy? What have others been told? What have your experiences been like?

Potassium

I kind of DASH (eat enough servings of veg and fruit), but tend to eat more red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily requirements. Do I need to have my potassium checked frequently? Do I need to up my intake of my tasty Low Sodium V8?

Spiro

Do you have to taper Spiro like a beta blocker? Or is it best to stop cold turkey? Any doctors tell you to taper?

Post AVS - Surgery

This is more selfish than anything, but I have a golf trip scheduled for September 19th. I am wondering if my AVS is conclusive and I am a candidate for surgery, if it hurts anything to postpone surgery after AVS. My plan would be to go back on the Spiro after AVS and have surgery in December if I am a candidate. Any disadvantages to this? Any danger in this? Any advantages to doing surgery right away?

Risk of Stroke/Heart Attack

Before I was diagnosed I had crazy, out of control, anxiety! The Spiro and exercise has eliminated this to the point that my former psychiatrist (now friend) told me I didn't need to visit her anymore after on the Spiro for 3 weeks. My attitude changed and anxiety subsided. Well, I have to admit that I am having some anxiety issues with being off the meds for 4 weeks. I am wondering if my BP will sky rocket. I am wondering if I am going to have a heart attack while running, lifting, or playing basketball.

Thank you in advance for anyone who has experience dealing with the weeks leading up to AVS. This site is so valuable.

35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

[Guest guest]

Thank you Dr. G. I did go to them and they answered most questions. However,

my endo also advised me to try to talk/communicate with other people that have

had the procedure done. The advise I received from my team so far:

Exercise

Aerobic = good and encouraged

anaerobic = not advised with no meds. So no weight lifting, sprinting, basket

ball, etc. in his opinion. This is many precautionary he admitted.

Potassium

It was advised that I continue to eat a high K diet. He told me not to go too

overboard though. Just continue to do the V8, spinach salad, etc. Basically

DASH.

Blood Pressure

I have been advised to track my BP each day and call/e-mail him if I get over

160-170/100-90. He might go with a calcium channel blocker if necessary.

I am looking for experiences of others who have had an AVS. My doctor did give

me guidance. However, he is an athlete with very low BP and no PA. He has

never had an AVS. What does the 4 weeks feel like with no meds? Did you go too

low on k? Did you have to go to the ER? Any heart problems? Strokes, Heart

Attacks? Did you have to start other BP meds? Did you go back on Spiro after

the AVS/before surgery? Did anyone lift weights when not on the meds?

Thanks,

>

> > I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2

weeks from now. Before everyone lets me know about the 6 weeks off spiro, the

Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to think

this would be a problem and told me that many publications state 4 week waiting

period.

> >

> > Anyway, I am wondering what are the rules or tips to live by during the

weeks leading up to the AVS? I am wondering about the following:

> >

> > Exercise

> > I love to exercise and run 3-4 times per week. I lift weights off and on and

play basketball after work throughout the work week. Is exercise off limits

without meds? Do I need to take it easy? What have others been told? What have

your experiences been like?

> >

> > Potassium

> > I kind of DASH (eat enough servings of veg and fruit), but tend to eat more

red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

requirements. Do I need to have my potassium checked frequently? Do I need to up

my intake of my tasty Low Sodium V8?

> >

> > Spiro

> > Do you have to taper Spiro like a beta blocker? Or is it best to stop cold

turkey? Any doctors tell you to taper?

> >

> > Post AVS - Surgery

> > This is more selfish than anything, but I have a golf trip scheduled for

September 19th. I am wondering if my AVS is conclusive and I am a candidate for

surgery, if it hurts anything to postpone surgery after AVS. My plan would be to

go back on the Spiro after AVS and have surgery in December if I am a candidate.

Any disadvantages to this? Any danger in this? Any advantages to doing surgery

right away?

> >

> > Risk of Stroke/Heart Attack

> > Before I was diagnosed I had crazy, out of control, anxiety! The Spiro and

exercise has eliminated this to the point that my former psychiatrist (now

friend) told me I didn't need to visit her anymore after on the Spiro for 3

weeks. My attitude changed and anxiety subsided. Well, I have to admit that I am

having some anxiety issues with being off the meds for 4 weeks. I am wondering

if my BP will sky rocket. I am wondering if I am going to have a heart attack

while running, lifting, or playing basketball.

> >

> > Thank you in advance for anyone who has experience dealing with the weeks

leading up to AVS. This site is so valuable.

> >

> >

> > 35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

> >

> >

>

[Guest guest]

4 weeks should be fine, see NIH standard protocol in our files:

" Aldosterone Causes of Hypertension "

NIH did not have any special requirements for me, K+ has always been well within

the normal range.

You should be ready to travel and play golf. (Use it as an excuse if you have a

bad round, they will never know!) NIH scheduled my AVS for Thursday afternoon

and discharged me on Friday afternoon. I flew from land to Vermont

unattended - no problems.

As for delaying the surgery, I see no problems with that, they should restart

the Spironolactone once they determine the AVS is good (about a week). In fact,

at least one doctor I know says you could delay a lifetime!

>

> I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2

weeks from now. Before everyone lets me know about the 6 weeks off spiro, the

Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to

think this would be a problem and told me that many publications state 4 week

waiting period.

>

> Anyway, I am wondering what are the rules or tips to live by during the weeks

leading up to the AVS? I am wondering about the following:

>

> Exercise

> I love to exercise and run 3-4 times per week. I lift weights off and on and

play basketball after work throughout the work week. Is exercise off limits

without meds? Do I need to take it easy? What have others been told? What

have your experiences been like?

>

> Potassium

> I kind of DASH (eat enough servings of veg and fruit), but tend to eat more

red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

requirements. Do I need to have my potassium checked frequently? Do I need to

up my intake of my tasty Low Sodium V8?

>

> Spiro

> Do you have to taper Spiro like a beta blocker? Or is it best to stop cold

turkey? Any doctors tell you to taper?

>

> Post AVS - Surgery

> This is more selfish than anything, but I have a golf trip scheduled for

September 19th. I am wondering if my AVS is conclusive and I am a candidate for

surgery, if it hurts anything to postpone surgery after AVS. My plan would be

to go back on the Spiro after AVS and have surgery in December if I am a

candidate. Any disadvantages to this? Any danger in this? Any advantages to

doing surgery right away?

>

> Risk of Stroke/Heart Attack

> Before I was diagnosed I had crazy, out of control, anxiety! The Spiro and

exercise has eliminated this to the point that my former psychiatrist (now

friend) told me I didn't need to visit her anymore after on the Spiro for 3

weeks. My attitude changed and anxiety subsided. Well, I have to admit that I

am having some anxiety issues with being off the meds for 4 weeks. I am

wondering if my BP will sky rocket. I am wondering if I am going to have a

heart attack while running, lifting, or playing basketball.

>

> Thank you in advance for anyone who has experience dealing with the weeks

leading up to AVS. This site is so valuable.

>

>

> 35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

>

[Guest guest]

I have a 2cm adenoma in right adrenal. I don't know about the " plumbing " there

but think I remember the testis " drops down " from someplace in the male fetus

and have questioned a couple of doctors about that. Nobody had a clue. I

hadn't thought of it as if it was obstructing something but it is a good point.

I'm starting to work on a review to go over with NIH now that I have talked with

all the local doctors and will include that.

We didn't talk much about it at NIH. They labeled it as " micro-penis " and

charged it off to OSA! I now believe some of my problems are related to the

long term effect of Agent Orange since I found that study that found it affected

Testosterone. The PA that did my last review of DM side effects suggested I

should put in for PA and let the VA prove they weren't related.

> > >

> > > > I just got a call to schedule my AVS procedure on August 23rd. This 4

1/2 weeks from now. Before everyone lets me know about the 6 weeks off spiro,

the Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to

think this would be a problem and told me that many publications state 4 week

waiting period.

> > > >

> > > > Anyway, I am wondering what are the rules or tips to live by during the

weeks leading up to the AVS? I am wondering about the following:

> > > >

> > > > Exercise

> > > > I love to exercise and run 3-4 times per week. I lift weights off and on

and play basketball after work throughout the work week. Is exercise off limits

without meds? Do I need to take it easy? What have others been told? What have

your experiences been like?

> > > >

> > > > Potassium

> > > > I kind of DASH (eat enough servings of veg and fruit), but tend to eat

more red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

requirements. Do I need to have my potassium checked frequently? Do I need to up

my intake of my tasty Low Sodium V8?

> > > >

> > > > Spiro

> > > > Do you have to taper Spiro like a beta blocker? Or is it best to stop

cold turkey? Any doctors tell you to taper?

> > > >

> > > > Post AVS - Surgery

> > > > This is more selfish than anything, but I have a golf trip scheduled for

September 19th. I am wondering if my AVS is conclusive and I am a candidate for

surgery, if it hurts anything to postpone surgery after AVS. My plan would be to

go back on the Spiro after AVS and have surgery in December if I am a candidate.

Any disadvantages to this? Any danger in this? Any advantages to doing surgery

right away?

> > > >

> > > > Risk of Stroke/Heart Attack

> > > > Before I was diagnosed I had crazy, out of control, anxiety! The Spiro

and exercise has eliminated this to the point that my former psychiatrist (now

friend) told me I didn't need to visit her anymore after on the Spiro for 3

weeks. My attitude changed and anxiety subsided. Well, I have to admit that I am

having some anxiety issues with being off the meds for 4 weeks. I am wondering

if my BP will sky rocket. I am wondering if I am going to have a heart attack

while running, lifting, or playing basketball.

> > > >

> > > > Thank you in advance for anyone who has experience dealing with the

weeks leading up to AVS. This site is so valuable.

> > > >

> > > >

> > > > 35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

> > > >

> > > >

> > >

> >

>

[Guest guest]

a, I posted something a while ago where they found they could safely

lateralize w/o stopping meds but false or undetermined results needed to be

further checked w/o meds. Now with that said, if you have bilateral adenomas,

are managing okay and are happy then the results were good for you!

> >

> > > I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2

weeks from now. Before everyone lets me know about the 6 weeks off spiro, the

Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to think

this would be a problem and told me that many publications state 4 week waiting

period.

> > >

> > > Anyway, I am wondering what are the rules or tips to live by during the

weeks leading up to the AVS? I am wondering about the following:

> > >

> > > Exercise

> > > I love to exercise and run 3-4 times per week. I lift weights off and on

and play basketball after work throughout the work week. Is exercise off limits

without meds? Do I need to take it easy? What have others been told? What have

your experiences been like?

> > >

> > > Potassium

> > > I kind of DASH (eat enough servings of veg and fruit), but tend to eat

more red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

requirements. Do I need to have my potassium checked frequently? Do I need to up

my intake of my tasty Low Sodium V8?

> > >

> > > Spiro

> > > Do you have to taper Spiro like a beta blocker? Or is it best to stop cold

turkey? Any doctors tell you to taper?

> > >

> > > Post AVS - Surgery

> > > This is more selfish than anything, but I have a golf trip scheduled for

September 19th. I am wondering if my AVS is conclusive and I am a candidate for

surgery, if it hurts anything to postpone surgery after AVS. My plan would be to

go back on the Spiro after AVS and have surgery in December if I am a candidate.

Any disadvantages to this? Any danger in this? Any advantages to doing surgery

right away?

> > >

> > > Risk of Stroke/Heart Attack

> > > Before I was diagnosed I had crazy, out of control, anxiety! The Spiro and

exercise has eliminated this to the point that my former psychiatrist (now

friend) told me I didn't need to visit her anymore after on the Spiro for 3

weeks. My attitude changed and anxiety subsided. Well, I have to admit that I am

having some anxiety issues with being off the meds for 4 weeks. I am wondering

if my BP will sky rocket. I am wondering if I am going to have a heart attack

while running, lifting, or playing basketball.

> > >

> > > Thank you in advance for anyone who has experience dealing with the weeks

leading up to AVS. This site is so valuable.

> > >

> > >

> > > 35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

> > >

> > >

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

, with your former anxiety issues, have they checked your cortisol levels

for subclinical cushing's? They are finding this more often than they once

thought. A late night cortisol test is most likely to find it.

> >

> > I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2

weeks from now. Before everyone lets me know about the 6 weeks off spiro, the

Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to

think this would be a problem and told me that many publications state 4 week

waiting period.

> >

> > Anyway, I am wondering what are the rules or tips to live by during the

weeks leading up to the AVS? I am wondering about the following:

> >

> > Exercise

> > I love to exercise and run 3-4 times per week. I lift weights off and on

and play basketball after work throughout the work week. Is exercise off limits

without meds? Do I need to take it easy? What have others been told? What

have your experiences been like?

> >

> > Potassium

> > I kind of DASH (eat enough servings of veg and fruit), but tend to eat more

red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

requirements. Do I need to have my potassium checked frequently? Do I need to

up my intake of my tasty Low Sodium V8?

> >

> > Spiro

> > Do you have to taper Spiro like a beta blocker? Or is it best to stop cold

turkey? Any doctors tell you to taper?

> >

> > Post AVS - Surgery

> > This is more selfish than anything, but I have a golf trip scheduled for

September 19th. I am wondering if my AVS is conclusive and I am a candidate for

surgery, if it hurts anything to postpone surgery after AVS. My plan would be

to go back on the Spiro after AVS and have surgery in December if I am a

candidate. Any disadvantages to this? Any danger in this? Any advantages to

doing surgery right away?

> >

> > Risk of Stroke/Heart Attack

> > Before I was diagnosed I had crazy, out of control, anxiety! The Spiro and

exercise has eliminated this to the point that my former psychiatrist (now

friend) told me I didn't need to visit her anymore after on the Spiro for 3

weeks. My attitude changed and anxiety subsided. Well, I have to admit that I

am having some anxiety issues with being off the meds for 4 weeks. I am

wondering if my BP will sky rocket. I am wondering if I am going to have a

heart attack while running, lifting, or playing basketball.

> >

> > Thank you in advance for anyone who has experience dealing with the weeks

leading up to AVS. This site is so valuable.

> >

> >

> > 35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

> >

>

[Guest guest]

I had this tested at Mayo and then at Wash U. I have had overnight dex test, 24

hour urine, etc. to test for cushings. I mentioned this to my doctor after your

posts a while back. He let me know about the tests they have done so far and

why he didn't feel I had cushings.

> > >

> > > I just got a call to schedule my AVS procedure on August 23rd. This 4 1/2

weeks from now. Before everyone lets me know about the 6 weeks off spiro, the

Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to

think this would be a problem and told me that many publications state 4 week

waiting period.

> > >

> > > Anyway, I am wondering what are the rules or tips to live by during the

weeks leading up to the AVS? I am wondering about the following:

> > >

> > > Exercise

> > > I love to exercise and run 3-4 times per week. I lift weights off and on

and play basketball after work throughout the work week. Is exercise off limits

without meds? Do I need to take it easy? What have others been told? What

have your experiences been like?

> > >

> > > Potassium

> > > I kind of DASH (eat enough servings of veg and fruit), but tend to eat

more red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

requirements. Do I need to have my potassium checked frequently? Do I need to

up my intake of my tasty Low Sodium V8?

> > >

> > > Spiro

> > > Do you have to taper Spiro like a beta blocker? Or is it best to stop

cold turkey? Any doctors tell you to taper?

> > >

> > > Post AVS - Surgery

> > > This is more selfish than anything, but I have a golf trip scheduled for

September 19th. I am wondering if my AVS is conclusive and I am a candidate for

surgery, if it hurts anything to postpone surgery after AVS. My plan would be

to go back on the Spiro after AVS and have surgery in December if I am a

candidate. Any disadvantages to this? Any danger in this? Any advantages to

doing surgery right away?

> > >

> > > Risk of Stroke/Heart Attack

> > > Before I was diagnosed I had crazy, out of control, anxiety! The Spiro

and exercise has eliminated this to the point that my former psychiatrist (now

friend) told me I didn't need to visit her anymore after on the Spiro for 3

weeks. My attitude changed and anxiety subsided. Well, I have to admit that I

am having some anxiety issues with being off the meds for 4 weeks. I am

wondering if my BP will sky rocket. I am wondering if I am going to have a

heart attack while running, lifting, or playing basketball.

> > >

> > > Thank you in advance for anyone who has experience dealing with the weeks

leading up to AVS. This site is so valuable.

> > >

> > >

> > > 35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

> > >

> >

>

[Guest guest]

Dr. Grim,

Aldo was not tested at that time. However, the low Dex results 0.04 prompted my

doctor to test me for GRA. My blood work was sent off to a study out of town.

If I remember correctly this was Yale?? Anyway, I received the results back

that I do not have GRA. No further study for cushings was done.

> > > > >

> > > > > I just got a call to schedule my AVS procedure on August 23rd. This 4

1/2 weeks from now. Before everyone lets me know about the 6 weeks off spiro,

the Wash U/ protocol is to wait 4 weeks. My endo at Mayo did not seem to

think this would be a problem and told me that many publications state 4 week

waiting period.

> > > > >

> > > > > Anyway, I am wondering what are the rules or tips to live by during

the weeks leading up to the AVS? I am wondering about the following:

> > > > >

> > > > > Exercise

> > > > > I love to exercise and run 3-4 times per week. I lift weights off and

on and play basketball after work throughout the work week. Is exercise off

limits without meds? Do I need to take it easy? What have others been told? What

have your experiences been like?

> > > > >

> > > > > Potassium

> > > > > I kind of DASH (eat enough servings of veg and fruit), but tend to eat

more red meat, poultry, and nuts than prescribed by the DASH serving sizes/daily

requirements. Do I need to have my potassium checked frequently? Do I need to up

my intake of my tasty Low Sodium V8?

> > > > >

> > > > > Spiro

> > > > > Do you have to taper Spiro like a beta blocker? Or is it best to stop

cold turkey? Any doctors tell you to taper?

> > > > >

> > > > > Post AVS - Surgery

> > > > > This is more selfish than anything, but I have a golf trip scheduled

for September 19th. I am wondering if my AVS is conclusive and I am a candidate

for surgery, if it hurts anything to postpone surgery after AVS. My plan would

be to go back on the Spiro after AVS and have surgery in December if I am a

candidate. Any disadvantages to this? Any danger in this? Any advantages to

doing surgery right away?

> > > > >

> > > > > Risk of Stroke/Heart Attack

> > > > > Before I was diagnosed I had crazy, out of control, anxiety! The Spiro

and exercise has eliminated this to the point that my former psychiatrist (now

friend) told me I didn't need to visit her anymore after on the Spiro for 3

weeks. My attitude changed and anxiety subsided. Well, I have to admit that I am

having some anxiety issues with being off the meds for 4 weeks. I am wondering

if my BP will sky rocket. I am wondering if I am going to have a heart attack

while running, lifting, or playing basketball.

> > > > >

> > > > > Thank you in advance for anyone who has experience dealing with the

weeks leading up to AVS. This site is so valuable.

> > > > >

> > > > >

> > > > > 35yr old male. Diagnosed 04/2011. 50mg Spiro (25 morning/25 night).

> > > > >

> > > >

> > >

> >

> >

>