Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 You make a wonderful point. From personal experience, and before I get martyred, I see a chiro sometimes, I am just picky about them, because many of the providers who tout their "holistic" practice (or more famously like to put down allopathic doctors as only giving you pills and not treating the whole patient) are often so stuck on a particular "method" or style instead of taking the best from all styles, which right there negates the "holistic" and "wholistic" claim. You have the chiropractor who's schtick is a whole body approach and tells people that and advertises as such,.but then is ONLY fiixated on the elusive and mystical subluxation and in reality ignores everything else unless you ask him or her about something else. Sometimes I think their "whole body approach" is validated in their minds because at the front they try to sell you "natural" herbs and concoctions that are really expensive, but are for the whole body they say. The naturopath often fixates on three things - gluten allergies, thyroid disorders, and adrenal disorders (primarliy cortisol because they know that weight, especially in womenspeak, will outweigh (pun intended) even heart disease as the most important topic of discussion, so they "speak the language" we want to hear).- and then they search for only those things because the visit will only be so long and can't always get into everything.. I have seen good ones also and consulted one over a better diet a while back, but an example of a risky one happened to my sis in law who saw a chiro/naturopath for her hyperthyroidism. She was VERY ILL, and it had gotten out of control. They had her taking the "natural" iodine concoction they mix themselves. But she kept getting worse. Having had hyperthyroidism myself I told her that IF it's cancerous, then the iodine will likely make it worse, and she was getting worse- but the naturopath kept telling her it was just graves. Long story shorter, it WAS very cancerous AND also graves, and she has it out now, lymph nodes fine, and she says she feels great. But when she got worse the natural doc never stopped to consider the iodine they gave could be making it worse (they make fun of everyone else just "giving you pills" but they also have an arsenal of meds the "prescribe" too.) Oh she did get dx'd with gluten allergy by this guy too. Of course, nearly everyone does at this particular office (I am familiar with the practice professionally as many of my former patients went or had gone there) My point gang is use caution, we're all, in all fields and all professions, not always up to par or have honest intentions ($ is the catalyst). So be careful - if the doc seems like they speak too much of what you want to hear - have second thoughts. A good PR guy or gal knows how to play into your fears to keep you happy and coming back.. From: Monika Del Bosque <modelbosque@...>Subject: Re: Post AVShyperaldosteronism Date: Thursday, July 12, 2012, 5:14 PM Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right? In the spirit of health and wholeness, Monika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 No our gaol is to get u to the best dx and Rx supported by published studies. When you go outside this plan you are playing the game I call u bet your life on something that is not well tested or validated. Bit the. Voice is ways your's of course. Always ask your we trained what ever to show u the data and publications. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jul 12, 2012, at 17:14, Monika Del Bosque <modelbosque@...> wrote: Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right?In the spirit of health and wholeness,Monika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 I scrubbed in or watched perhaps 100 and. Ared for post op before we had min invasive surgery. I can assure u u do. OT want one of those unless u need it. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jul 12, 2012, at 17:36, msmith_1928 <janeray1940@...> wrote: Monika, I'm not sure if this has been suggested to you before but - now that you know you have PA, can you get into the NIH program? A couple people here can give you the details I'm sure. Basically once accepted it's free, you just have to get to land on your own dime. Seriously - you do not want the non-laparoscopic adrenalectomy, and I'm shocked that your medical team is proposing it and your insurance wants to cover it. The recovery is so much longer and so much more complex, the risks are higher, and there are many more things that can go wrong. I know there are sometimes reasons why open surgery is the only option, but unless you meet that criteria, I cannot understand why they would want to put you through that. > > > > Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. > > Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. > > We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. > > I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right? > > In the spirit of health and wholeness,Monika > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 In general if someone is going to doctor or operate on me I want them to do what they are good at. Not try something new.CE Grim MDOn Jul 12, 2012, at 5:15 PM, wrote: Francis, do you really think that is normal or are you just trying to upset someone? Dr. explained it would require about a 6inch incision on the right side (he prefers not to do laproscopic on the right side.) I was NOT impressed and I told Dr. Webster we would check options in Boston once I got clearence from Dr. Bauman > > > > Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. > > Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. > > We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. > > I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right? > > In the spirit of health and wholeness,Monika > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 These sorts of errors are real *but rare" but still must be in one's risk benefit analysis.CE Grim MDOn Jul 12, 2012, at 6:03 PM, wrote: I didn't say it didn't happen but I feel it is a very poor example of an open surgery! They sometimes remove the wrong body part but that is the exception not the rule. In fact after my TIA they did an ultrasound and reported "I did not have a tumor in my uterus"! Thank God it was negative, I really would have a scar if they went looking for one of those! > > > > > > > > Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. > > > > Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. > > > > We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. > > > > I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right? > > > > In the spirit of health and wholeness,Monika > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 I have had a number of patients who had scars like those shown.Indeed when I was young we had no way to image the adrenal at all and AVS was not heard of. Thus when one went in on a patient who we know had hyperaldo we did know which side the bump(s) would be on. Thus the procedure was to explore the left adrenal first from the left posterior approach. If nothing was found (small bumps are hard to feel thru rubber gloves) the patient was rolled over with the L side down and the right side was explored. If no bumps were on the right then the left was taken out and sliced carefully. If a bump was found surgery was stopped. However if the HTN and not been able to be controlled with meds available at that time we would take both adrenals out. Esp is the left showed many bumjps-as most did. Even if they only had low renin "essential HTN". The high incidence of bilateral bumps in LR "EHTN" led me to conclude that LR EHTN was an forme frust of PA and led to the Evolution of PA discussion. Depending on the expertise of my surgeon(s) some would go in thru the belly as it can be easier and faster to get to both adrenals from the front depending on the patient's size. Anyway this was big surgery. CE Grim MD On Jul 12, 2012, at 6:40 PM, Francis Bill SUSPECTED PA wrote: I can not say if this is poor example for this surgery. I think it is up to the surgeon how they choose to do it. Some just like to see what is going on. > > > > > > > > > > Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. > > > > > Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. > > > > > We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. > > > > > I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right? > > > > > In the spirit of health and wholeness,Monika > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 Adrenal rest tumors causing PA have been found in the ovary so if the adrenals revealed nothing and the pt did not get better then we need to look for other sites of adrenal rest tumors causing PA. One has even been found in the brain as I recall. Thus in the individual all of these must be in be in the back of the team's mind and be accessible when needed. For example a number of Cushing's syndrome are due to lung or other tumors that secrete ACTH or ACTH like proteins (hormones).This is what I get paid for in the difficult cases. Would hope I would have been consulted much earlier in the course of their PA in most patients here. CE Grim On Jul 12, 2012, at 8:04 PM, wrote: And you also can not say that you actually know anything about the background or even if it is authentic! It could actually be a hoax or there could be something else going on. Did you notice the scars on both sides on the lower abdomen? (Look at it in original size.) Maybe you should do a survey of how long the scar is on anyone who has had open surgery. I know Dr. told me 6 inches. > > > > > > > > > > > > Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. > > > > > > Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. > > > > > > We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. > > > > > > I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right? > > > > > > In the spirit of health and wholeness,Monika > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 Or where there is a problem during the "minimally invasive procedure". When the vena cava gets cut by accident it can be very hard to stop the bleeding without going in. I had on pt in which it as necessary to go in from the back when unstoppable vena cava bleeding cound not be stopped from the frond. As I recall that patient required 15 or more pints of blood before the bleeding site could be found and stopped. CE Grim MDOn Jul 12, 2012, at 9:38 PM, msmith_1928 wrote: But the thing is, they can say "six inches" but they never know what they will find once they are in there. Before my adrenalectomy, I asked my surgeon to tell me everything, including the absolute worst outcome (other than the obvious "sleeping the big sleep"). She said there was always the chance of having to convert to open surgery; when I asked her how large of an incision that would be, she said it would depend on the reason why it was done in the first place. But she didn't imply anything as extreme as the photograph. She told me that the main reasons to do open surgery are scar tissue from previous abdominal surgeries, and obesity, and that even in those cases, it is always preferable to consider laparoscopic surgery from the back (instead of the front like mine was). I really got the impression from her that open surgery for adrenalectomy was a thing of the past, reserved now only for very special cases when there is no other option. > > > > > > > > > > > > > > Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. > > > > > > > Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. > > > > > > > We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. > > > > > > > I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right? > > > > > > > In the spirit of health and wholeness,Monika > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2012 Report Share Posted July 13, 2012 In the old days when we were more likely to discect and examine both adrenals or ever take them out we covered eveyone.But if you are only going to mess with one then, unless there is Cushing's as well then very unlikely to crash. Not certain what he meant by the small vein?CE Grim MDOn Jul 13, 2012, at 9:10 AM, wrote: I was immediately concerned when he said he had to do open because of the small veins on the right, not my size! I then asked about the excess cortisol and he said we would have to "wait and see". I took that to mean I would have to crash before they did something. My understanding is most doctors start you on replcement cortisol as a precaution since too little cortisol is not good, really not good!! I then asked Dr. Webster if there were any real surgeons in Boston! She sid she didn't think Dr. really liked doing adrenals! Now that's who I want chopping into me!!! > > > > > > > >> > > > > > > > Well, this just makes me feel great! At this point, all I can do is wait and hope for the best because it is obviously out of my hands. I wish I had the option to choose a different doctor, site for AVS, etc. Due to my darn IPA, I did not. > > > > > > > > Regarding the advice of the naturopath, yes, some of the alternative stuff out there is total bunk and we should be cautious. Remember that some of our current modern medicine is based upon ancient and alternative medicine. I prefer to look at our bodies as a system that works holistically as a unit, not as separate entities that don't interact with each other. So, do I see it as humbug? Not at all. I like to look at ways alternative and allopathic medicine can work together to reach optimum health. > > > > > > > > We do get into trouble when every Tom, Dick and Harry think they can be an armchair herbalist for their ailments. It is a form of medicine and it can be dangerous if done wrong or carelessly. But under the guidance of a well-trained practitioner, I am of the opinion that it can augment and support the regular medical care someone is receiving. > > > > > > > > I am under the impression that the spirit of this forum is to support us in our process of dealing with PA, not to dis or put down what we do during this journey if it differs from someone else's way of doing things. Right?> > > > > > > > In the spirit of health and wholeness,Monika> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2012 Report Share Posted July 13, 2012 That is what it was. The search for the golden nugget.CE Grim MDOn Jul 13, 2012, at 10:47 AM, wrote: With all that is available today for proper testing I would hope one would do proper testing and not have to do scanvager hunt! > > > > > > > >> > > > > > > > Well, this just makes me feel great! At this point, > > all I can do is wait and hope for the best because it is obviously > > out of my hands. I wish I had the option to choose a different > > doctor, site for AVS, etc. Due to my darn IPA, I did not.> > > > > > > > Regarding the advice of the naturopath, yes, some of the > > alternative stuff out there is total bunk and we should be > > cautious. Remember that some of our current modern medicine is > > based upon ancient and alternative medicine. I prefer to look at > > our bodies as a system that works holistically as a unit, not as > > separate entities that don't interact with each other. So, do I see > > it as humbug? Not at all. I like to look at ways alternative and > > allopathic medicine can work together to reach optimum health.> > > > > > > > We do get into trouble when every Tom, Dick and Harry > > think they can be an armchair herbalist for their ailments. It is a > > form of medicine and it can be dangerous if done wrong or > > carelessly. But under the guidance of a well-trained practitioner, > > I am of the opinion that it can augment and support the regular > > medical care someone is receiving.> > > > > > > > I am under the impression that the spirit of this forum > > is to support us in our process of dealing with PA, not to dis or > > put down what we do during this journey if it differs from someone > > else's way of doing things. Right?> > > > > > > > In the spirit of health and wholeness,Monika> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2012 Report Share Posted July 13, 2012 S... happens even in Doctoring.On Jul 13, 2012, at 10:51 AM, wrote: Understand if an emergency but it would be one hell of a slip if they had to go from pelvis to breast bone. Might even require 16 pints of blood! > > > > > > > > > > > > > > > > > > Well, this just makes me feel great! At this > > point, all I can do is wait and hope for the best because it is > > obviously out of my hands. I wish I had the option to choose a > > different doctor, site for AVS, etc. Due to my darn IPA, I did not. > > > > > > > > > Regarding the advice of the naturopath, yes, some of > > the alternative stuff out there is total bunk and we should be > > cautious. Remember that some of our current modern medicine is > > based upon ancient and alternative medicine. I prefer to look at > > our bodies as a system that works holistically as a unit, not as > > separate entities that don't interact with each other. So, do I see > > it as humbug? Not at all. I like to look at ways alternative and > > allopathic medicine can work together to reach optimum health. > > > > > > > > > We do get into trouble when every Tom, Dick and Harry > > think they can be an armchair herbalist for their ailments. It is a > > form of medicine and it can be dangerous if done wrong or > > carelessly. But under the guidance of a well-trained practitioner, > > I am of the opinion that it can augment and support the regular > > medical care someone is receiving. > > > > > > > > > I am under the impression that the spirit of this > > forum is to support us in our process of dealing with PA, not to dis > > or put down what we do during this journey if it differs from > > someone else's way of doing things. Right? > > > > > > > > > In the spirit of health and wholeness,Monika > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2012 Report Share Posted July 13, 2012 Sorry for the typo! Was supposed to be “small brain”…the radiologist performing AVS suddenly started to talk about herself J Not certain what he meant by the small vein? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2012 Report Share Posted July 13, 2012 The left adrenal most often connects to the L renal and is large which makes it easy to find-usually. Our AVS expert in Indy would be there in less that 20 sec after the cath went into the needle in the femoral vein. So easy I think I would do it. They R on the other had is almost never like shown in the fig from radiology. So if radiologist looked what you referenced and think the right will be easy they have not been there before.If you google adrenal veins and looks image you will note the wide variation that occurs. See Not easy for the uninitiated.I would say that only 20% of Intervent RAdio who have told me they always get both veins really do when I go down to watch.CE Grim MDOn Jul 12, 2012, at 9:45 PM, wrote: Monika, let me take a stab at what is going on. (Remember, I am not a doctor, just a researcher who has been researching for a year and a half. Great to be retired so I can research 70 hours a week if I want!) I suggest you start by looking at the vein structure of the adrenals:http://radiographics.rsna.org/content/25/suppl_1/S143/F3.expansion.htmlNotice the size of the veins and you will see why the right is so difficult. Now if you note the vena cava is where both adrenals flow into and if she has any chance at all it depends exactly where she stuck the cathe, which way the blood is flowing and which vein from the right is the correct one (I understand there are often extra veins just to make it interesting!) Now if the left vein has already dumped into the V.C. they will be measuring the same blood twice and tell you that you have bilateral. If they are prior to both they will tell you it is unilteral to the left and that may be true but they really don't know what the right is doing. Now they may be comfortable telling you it is the left because that is where your tumor is and you are slightly under the 40 y/o cutoff! I say they are no closer than they were before the AVS and they should back up and do proper testing. Obviously if using the V.C. was an option to measure the right somebody would have figured it out already, IMHO!The other option since you are already on an MCB is to try it for say a year and then decide if you want to do the testing. If you leave the adenoma in I would think it should be rechecked atleast once. You could do the whole test at that point. (I can't believe I just said that as hard as I am working to get mine removed but it is the cortisol I am worried about! Spiro worked very well for me except I had side effects which I now know was due to pre-existing low testosterone. Epler is showing real good BP and BS, I have not had any K+ issues on either.) Good Luck and let me know if I can help.....>> Oh, for clarification: medical team is not proposing I have non laparoscopic surgery. AVS doc just let me know that no one in my area does laparoscopic surgery for adrenalectomy. So she suggested that if results come back that tumor is causing low K and high Aldos, I should go where I can have laparoscopic surgery since it is safer and less invasive. > For person who is saying I don't have PA be/c they haven't done other tests--Yes, that is true. > All I know is I have low K and high aldos and a tumor on my left adrenal. I'm sure you can imagine what it has been like to go like this for a long time, wondering what all this means, but no closer to a Dx. > I TRIED to get them to do the other tests prior to AVS, but dr didn't want to know more about my levels, they wanted to know if the tumor is causing the levels to be off. Believe me, I did not want to do the AVS, that's why I sought out and joined this group in the first place. I wanted more information.> Having worked in a research museum and lab for many years, I find I'm rather impervious to photos like the one posted here on what none laparoscopic surgery for adrenalectomy looks like. Perhaps other people in the forum will find the graphic photo posted helpful in their decision making process as to what they will do when presented with having to do surgery. Sometimes they are good for shock value, but other times, they just frighten people at a tough time in their life. I hope it wasn't done to do that to people here. We are all going through quite a lot.> Monika> 1 of 1 File(s) AJR adranl veing anatomr R 2008.pdf Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.