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Amen!autism ; gloriaknight3@...; Bcharne77@...; DolleneBurbage@...; janet816@...; jlois@...; minermarilyn@...; frazzlednanny@...From: jlois@...Date: Sat, 22 Oct 2011 23:15:48 -0400Subject: Fw: Top 5 reasons you should NEVER poss off an autism mom!

----- Original Message ----- From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism Mom

Five. We’re Already on the Defensive

What? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…

In other words, we have experience with assholes like you.

Four. We Are Not Socially Well-Adjusted

We were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.

Three. We Know How to Fight

Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

Two. We’re Already Angry

Autism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?

One. We’re Sleep Deprived

Some of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120Always in search for the "cure"

Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure"

I don't give inI don't give upAnd I don't take NO for an answer.

If God Brings you to it,He will Bring you though it.

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I really likethat tyvm

On Oct 22, 2011 10:16 PM, " lois noland " <jlois@...> wrote:

 

----- Original Message ----- From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with.  Top Five Reasons You Should Never Piss Off an Autism Mom

Five.  We’re Already on the Defensive

What?  You think you’re the first person to think I’m a bad mother? Get in line.  People have been assuming I’m a bad mother for the last five years.  I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid?  No shit, Sherlock – this panel of physicians and psychologists agrees with you.  Tell us something we don’t know.  Have something new and clever to add?  No? NO?  I didn’t think so…

In other words, we have experience with assholes like you.

Four.  We Are Not Socially Well-Adjusted

We were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society.  We have cut ties and discarded the family and friends who couldn’t handle our situation.  We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate.  We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words.  We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap?  Yes.  Good choice.

Three. We Know How to Fight

Autism moms know how to fight because we practice. We fight all day long.  We fight with doctors about treatment, and then we fight with insurance companies to get it paid for.  We fight with the state over services and we fight with schools about our IEPs.  We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing.  We fight with our children to make them keep their pants on in public.   Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

Two.  We’re Already Angry

Autism moms carry huge amounts of unprocessed rage just below the surface.  We’re mad at god or the universe or fate or whatever it is out there that gave our children autism.  We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children.  We are angry about the loss of the child we were supposed to have, and we never truly stop mourning.  We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did.  We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place.  We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?

One. We’re Sleep Deprived

Some of us haven’t had a good night’s sleep in years.  Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted.  We’re muddled and short-tempered and irrational and crazy.  Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you.  Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120Always in search for the " cure "

 

 

 

Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the " Cure "

 

 

 

 

 

I don't give inI don't give upAnd I don't take NO for an answer.

 

If God Brings you to it,He will Bring you though it.

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love it. Amen I dont' know who wrote this. But boy I would love to post this in our area newspaper so that those people would leave me alone. I am personally tired of having ss called on our family. Thanks and AMEN to that. It made me cry because every bit of it was so true. and your right no one now or ever will know what the hell we go through. We have been kicked out of 2 churches now. I dont' trust people anymore. I dont' want help with my kid. I just want to be left alone as a family and keep my family together. My "normal" child went to school a month ago and told her teacher and friends that We no longer go to the church we got kicked out of church and the people there are mean. Wow and she is 5 she was 4 at that time. The teacher called to see if this was true. I

said yes. She wanted us to tell her to quit saying this I said no. Its called freedom of speech and my child will speak her mind. Was I wrong. Darn she goes through the same thing we do she has all those feeling. Thanks again. Sunday here in va. take care TwillaFrom: M CULP <marshaculp@...>Subject: RE: Fw: Top 5 reasons you should NEVER poss off an autism mom! Date: Saturday, October 22, 2011, 11:34 PM

Amen!autism ; gloriaknight3@...; Bcharne77@...; DolleneBurbage@...; janet816@...; jlois@...; minermarilyn@...; frazzlednanny@...From: jlois@...Date: Sat, 22 Oct 2011 23:15:48 -0400Subject: Fw: Top 5 reasons you should NEVER poss off an autism mom!

----- Original Message ----- From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism Mom

Five. We’re Already on the Defensive

What? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…

In other words, we have experience with assholes like you.

Four. We Are Not Socially Well-Adjusted

We were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.

Three. We Know How to Fight

Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

Two. We’re Already Angry

Autism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?

One. We’re Sleep Deprived

Some of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120Always in search for the "cure"

Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure"

I don't give inI don't give upAnd I don't take NO for an answer.

If God Brings you to it,He will Bring you though it.

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Twila,

I got it off of an autism group on my facebook.That is pretty sad when a church kicks you out! They are SUPPOSE to BE there for us!! If anyone is on facebook I will send you the name of the group if you would like to join! ((HUGS)) Lois

Fw: Top 5 reasons you should NEVER poss off an autism mom!

----- Original Message ----- From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism MomFive. We’re Already on the DefensiveWhat? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…In other words, we have experience with assholes like you.Four. We Are Not Socially Well-AdjustedWe were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.Three. We Know How to FightAutism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? Two. We’re Already AngryAutism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?One. We’re Sleep DeprivedSome of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120Always in search for the "cure"

Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure"

I don't give inI don't give upAnd I don't take NO for an answer.

If God Brings you to it,He will Bring you though it.

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Id love to have the group name!

On Oct 23, 2011 7:26 PM, " lois noland " <jlois@...> wrote:



Twila,

I got it off of an autism group on my facebook.That is pretty sad when a church kicks you out! They are SUPPOSE to BE there for us!! If anyone is on facebook I will send you the name of the group if you would like to join! ((HUGS)) Lois

Fw: Top 5 reasons you should NEVER poss off an autism mom! 

 

----- Original Message ----- From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with.  Top Five Reasons You Should Never Piss Off an Autism MomFive.  We’re Already on the DefensiveWhat?  You think you’re the first person to think I’m a bad mother? Get in line.  People have been assuming I’m a bad mother for the last five years.  I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid?  No shit, Sherlock – this panel of physicians and psychologists agrees with you.  Tell us something we don’t know.  Have something new and clever to add?  No? NO?  I didn’t think so…In other words, we have experience with assholes like you.Four.  We Are Not Socially Well-AdjustedWe were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society.  We have cut ties and discarded the family and friends who couldn’t handle our situation.  We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate.  We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words.  We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap?  Yes.  Good choice.Three. We Know How to FightAutism moms know how to fight because we practice. We fight all day long.  We fight with doctors about treatment, and then we fight with insurance companies to get it paid for.  We fight with the state over services and we fight with schools about our IEPs.  We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing.  We fight with our children to make them keep their pants on in public.   Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? Two.  We’re Already AngryAutism moms carry huge amounts of unprocessed rage just below the surface.  We’re mad at god or the universe or fate or whatever it is out there that gave our children autism.  We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children.  We are angry about the loss of the child we were supposed to have, and we never truly stop mourning.  We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did.  We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place.  We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?One. We’re Sleep DeprivedSome of us haven’t had a good night’s sleep in years.  Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted.  We’re muddled and short-tempered and irrational and crazy.  Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you.  Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120Always in search for the " cure "

 

 

 

Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the " Cure "

 

 

 

 

 

I don't give inI don't give upAnd I don't take NO for an answer.

 

If God Brings you to it,He will Bring you though it.

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Hi Twilla ~I've heard of this happening with some parents re: churches — totally unacceptable, in my opinion. Have you checked out Joni and Friends? On their website, they maintain a list of disability-friendly churches ...http://www.joniandfriends.org/church-relations/If you go to this link and scroll down on the right, you can enter your zip code and check if there are any such churches in your area. Disability ministries, unfortunately, are still few and far between, but the situations IS changing.Good luck, and don't give up!((Hugs))HeidiFrom: "Twilla Bridges" <twilla100@...>autism Sent: Sunday, October 23, 2011 5:39:24 AMSubject: RE: Fw: Top 5 reasons you should NEVER poss off an autism mom!love it. Amen I dont' know who wrote this. But boy I would love to post this in our area newspaper so that those people would leave me alone. I am personally tired of having ss called on our family. Thanks and AMEN to that. It made me cry because every bit of it was so true. and your right no one now or ever will know what the hell we go through. We have been kicked out of 2 churches now. I dont' trust people anymore. I dont' want help with my kid. I just want to be left alone as a family and keep my family together. My "normal" child went to school a month ago and told her teacher and friends that We no longer go to the church we got kicked out of church and the people there are mean. Wow and she is 5 she was 4 at that time. The teacher called to see if this was true. I

said yes. She wanted us to tell her to quit saying this I said no. Its called freedom of speech and my child will speak her mind. Was I wrong. Darn she goes through the same thing we do she has all those feeling. Thanks again. Sunday here in va. take care TwillaFrom: M CULP <marshaculp@...>Subject: RE: Fw: Top 5 reasons you should NEVER poss off an autism mom! Date: Saturday, October 22, 2011, 11:34 PM

Amen!autism ; gloriaknight3@...; Bcharne77@...; DolleneBurbage@...; janet816@...; jlois@...; minermarilyn@...; frazzlednanny@...From: jlois@...Date: Sat, 22 Oct 2011 23:15:48 -0400Subject: Fw: Top 5 reasons you should NEVER poss off an autism mom!

----- Original Message ----- From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism Mom

Five. We’re Already on the Defensive

What? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…

In other words, we have experience with assholes like you.

Four. We Are Not Socially Well-Adjusted

We were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.

Three. We Know How to Fight

Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

Two. We’re Already Angry

Autism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?

One. We’re Sleep Deprived

Some of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120Always in search for the "cure"

Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure"

I don't give inI don't give upAnd I don't take NO for an answer.

If God Brings you to it,He will Bring you though it.

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Hi Twila!

I only post every once in a while, but I just wanted to say that I sincerely

hope you have not turned your back on your faith or the gathering of believers

(church) because of your horrible experiences! It is obvious that these persons

had what the Bible calls " a form of godliness " , not true Godliness. There are

wonderful congregations out there that exhibit the true Spirit of Christ and the

support and spiritual enrichment can bring such solidarity to our homes and

deeper meaning to the trials and triumphs of our lives. Pray for those who have

shunned you that God may have mercy on them for turning away His child and

dishonoring His name!

~

Sent from my BlackBerry® wireless device from LIME.

Fw: Top 5 reasons you should NEVER poss off an autism mom!

 

 

----- Original Message -----

From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with.

 Top Five Reasons You Should Never Piss Off an Autism

Mom

Five.  We’re Already on the Defensive

What?  You think you’re the first person to think I’m a bad mother?

Get in line.  People have been assuming I’m a bad mother for the last five

years.  I chew up people who think I’m a bad parent for breakfast. You

think there’s something wrong with my kid?  No shit, Sherlock – this panel

of physicians and psychologists agrees with you.  Tell us something we

don’t know.  Have something new and clever to add?  No? NO?  I

didn’t think so…

In other words, we have experience with assholes like you.

Four.  We Are Not Socially Well-Adjusted

We were real people once, and we will be real people again someday, but

right now we’re living on the fringe of polite society.  We have cut ties

and discarded the family and friends who couldn’t handle our situation.  We

all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and

we know the words to way too many Wiggles songs. We clean up disasters that you

couldn’t even begin to contemplate.  We live in semi-isolation, trying to

have philosophical conversations with children who only know 18 words.  We

wear yoga pants all day. Our lives are not like other people’s lives. Do you

really want to make us angry? Or do you want to give us a really really wide

berth and back away slowly because you’re scared of what we might do if we

snap?  Yes.  Good choice.

Three. We Know How to Fight

Autism moms know how to fight because we practice. We fight all

day long.  We fight with doctors about treatment, and then we fight with

insurance companies to get it paid for.  We fight with the state over

services and we fight with schools about our IEPs.  We fight with our

families who won’t come to visit us anymore and we fight with our husbands to

let off steam from all the other fighting we’re constantly doing.  We fight

with our children to make them keep their pants on in public.   Do you

think for a second that we would hesitate to fight with a complete stranger who

was totally asking for it?

Two.  We’re Already Angry

Autism moms carry huge amounts of unprocessed rage just below the

surface.  We’re mad at god or the universe or fate or whatever it is out

there that gave our children autism.  We are furious at the cards we were

dealt and indignant that such a horrible thing had to happen to our

children.  We are angry about the loss of the child we were supposed to

have, and we never truly stop mourning.  We’re angry at the doctors who

didn’t catch it early enough and also at the doctors who did.  We hold a

grudge against anybody who ever failed us as we tried to make sense of this

chaos, and we’re also furious at ourselves, because we constantly feel like

we’re not doing enough to help and we’re secretly afraid that it might

somehow

be our fault in the first place.  We are already walking bundles of

resentment…do you want to be the straw that breaks the camel’s back?

One. We’re Sleep Deprived

Some of us haven’t had a good night’s sleep in years. 

Between the stress, depression, anxiety, and the kid who wakes up screaming for

popsicles at 3 a.m., we’re all beyond exhausted.  We’re muddled and

short-tempered and irrational and crazy.  Like ax murderer crazy. Like Mel

Gibson crazy. There are all sorts of studies linking sleep deprivation to

psychosis and that would probably hold up in court if I decided to

assault you.  Keep that in mind the next time you fail to keep your

opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120

Always in search for the " cure "

 

 

 

Lois Noland

240-420-3692

I don't give in

I don't give

up

And I don't take no for an answer

Always looking for the " Cure "

 

 

 

 

 

I don't give in

I don't give up

And I don't take NO for an

answer.

 

If God Brings you to it,

He will Bring you though it.

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Type in" Autism(A mothers support group) on your facebook page in serch. Lois (:

Fw: Top 5 reasons you should NEVER poss off an autism mom!

----- Original Message ----- From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism MomFive. We’re Already on the DefensiveWhat? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…In other words, we have experience with assholes like you.Four. We Are Not Socially Well-AdjustedWe were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.Three. We Know How to FightAutism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? Two. We’re Already AngryAutism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?One. We’re Sleep DeprivedSome of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120Always in search for the "cure"

Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure"

I don't give inI don't give upAnd I don't take NO for an answer.

If God Brings you to it,He will Bring you though it.

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oddly enough it wasn't because of our autistic child, with the 2nd kick out the first church was. The second was due to things within the church.TwillaYes We have a couple of disabled churches here. when we visited them they were a terrible experiances. Disabled and deaf kids where left unattended and no adults where around. HTey where out of control. I dont like big churches I like country churches that are small. Now I dont' trust any of them. We do our stuff at home. It does say where 2 or more are gathered you can worship. There is 4 of us. Thanks for your help. I will check the site to see if anymore has been added. Thanks again.TwillaFrom: M CULP <marshaculp@...>Subject: RE: Fw: Top 5 reasons you should NEVER poss off an autism mom! Date: Saturday, October 22, 2011, 11:34 PM

Amen!autism ; gloriaknight3@...; Bcharne77@...; DolleneBurbage@...; janet816@...; jlois@...; minermarilyn@...; frazzlednanny@...From: jlois@...Date: Sat, 22 Oct 2011 23:15:48 -0400Subject: Fw: Top 5 reasons you should NEVER poss off an autism mom!

----- Original Message ----- From: lois noland

lois noland

Sent: Saturday, October 22, 2011 11:12 PM

learn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism Mom

Five. We’re Already on the Defensive

What? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…

In other words, we have experience with assholes like you.

Four. We Are Not Socially Well-Adjusted

We were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.

Three. We Know How to Fight

Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

Two. We’re Already Angry

Autism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?

One. We’re Sleep Deprived

Some of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

Lois Noland 240-420-6120Always in search for the "cure"

Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure"

I don't give inI don't give upAnd I don't take NO for an answer.

If God Brings you to it,He will Bring you though it.

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Amen I do that. My 5 yr old daughter does too. its very hard to trust people. The first church called ss on us. It was unfounded. Which is good. I had told them prior to putting her back in the nursery at that time of the bruise. No one approached us. We were told not to vome to the property ever again. The cops would be called. We did nothing. We tried to contact the person who did this and she threatened us too. So left it alone. Yes we are not putting our family at risk again. You know they say 3 strikes and your out. The second was much worse than the first. We do church and bible study in our home as a family it does say where 2 or more are gathered you can worship. Our body is the temple so i feel like we are doing good. We have lost numerous

friends over ss. and our churches. They have hurt and takes along time to heal. First time we didn't go to church for a year. Now the second has been since july of this year. My 5 yr old went to church with grandma and loved itThanks TwillaFrom: M CULP <marshaculp@...>Subject: RE: Fw: Top 5 reasons you should NEVER poss off an autism mom! Date: Saturday, October 22, 2011, 11:34 PM Amen!autism ; gloriaknight3@...; Bcharne77@...; DolleneBurbage@...; janet816@...; jlois@...; minermarilyn@...; frazzlednanny@...From: jlois@...Date: Sat, 22 Oct 2011 23:15:48 -0400Subject: Fw: Top 5 reasons you should NEVER poss off an autism mom! -----

Original Message ----- From: lois noland lois noland Sent: Saturday, October 22, 2011 11:12 PM learn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism MomFive. We’re Already on the DefensiveWhat? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…In other words, we have experience with assholes like you.Four. We Are Not Socially

Well-AdjustedWe were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.Three. We Know How to FightAutism moms know how to fight because

we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? Two. We’re Already AngryAutism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible

thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?One. We’re Sleep DeprivedSome of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and short-tempered

and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism momLois Noland 240-420-6120Always in search for the "cure" Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure" I don't give inI don't give upAnd I don't take NO for an answer. If God Brings you to it,He will Bring you though it. #yiv565022965

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My husband are both from devoted Christian families. We always went to church as a family, but after our son developed severe autism with sensory problems, it was just to difficult for him, and us, and the church folk. Some very cruel things were said about discipline but I knew they just had no idea. The place we go now, the people offer to help but again they have no idea. Several years ago, we started taking turns. One service my husband will take our daughter and go. The next service I will take her and go. Our son cannot manage, and it would ruin it for everyone, including the pastor. That way we can both be part of the congregation without subjected anyone to more than they can handle. From: M CULP <marshaculp@...>Subject: RE: Fw: Top 5 reasons you should NEVER poss off an autism mom! Date: Saturday, October 22, 2011, 11:34 PM

Amen!autism ; gloriaknight3@...; Bcharne77@...; DolleneBurbage@...; janet816@...; jlois@...; minermarilyn@...; frazzlednanny@...From: jlois@...Date: Sat, 22 Oct 2011 23:15:48 -0400Subject: Fw: Top 5 reasons you should NEVER poss off an autism mom! ----- Original Message ----- From: lois noland lois noland Sent: Saturday, October 22, 2011 11:12

PMlearn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism MomFive. We’re Already on the DefensiveWhat? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…In other words, we have experience with assholes like you.Four. We Are Not Socially Well-AdjustedWe were real people once, and we will be real people again someday, but right now we’re living

on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.Three. We Know How to FightAutism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance

companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? Two. We’re Already AngryAutism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we

never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?One. We’re Sleep DeprivedSome of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking

sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism momLois Noland 240-420-6120Always in search for the "cure" Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure" I don't give inI don't give upAnd I don't take NO for an answer. If God Brings you to it,He will Bring you though it. #yiv565022965 .yiv565022965ExternalClass #yiv565022965ecxygrp-mkp{border:1px solid #d8d8d8;font-family:Arial;padding:0 10px;}#yiv565022965

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if your church kicked you out - Thank God! Those aren't Godly people and you are

MUCH better off without them.

i'm sorry that happened to you; some people are intolerant of anything but

perfect.

don't let them stop you in your quest to learn and live Godly; it's the right

way to live

lots of love,

Cammy

http://stores.ebay.com/Cammys-Clothing-Treasures

>

>

> From: M CULP <marshaculp@...>

> Subject: RE: Fw: Top 5 reasons you should NEVER

poss off an autism mom!

>

> Date: Saturday, October 22, 2011, 11:34 PM

>

>

>

>

>

> Amen!

>

>

>

> ------------------------------------------------------------------

> autism ; gloriaknight3@...;

Bcharne77@...; DolleneBurbage@...; janet816@...; jlois@...; minermarilyn@...;

frazzlednanny@...

> From: jlois@...

> Date: Sat, 22 Oct 2011 23:15:48 -0400

> Subject: Fw: Top 5 reasons you should NEVER poss

off an autism mom!

>

>

>

>

>

> ----- Original Message -----

> From: lois noland

> lois noland

> Sent: Saturday, October 22, 2011 11:12 PM

>

>

>

>

> learn to fear us, because autism moms are not to be trifled

with. Top Five Reasons You Should Never Piss Off an Autism Mom

> Five. We’re Already on the Defensive

> What? You think you’re the first person to think I’m a bad

mother? Get in line. People have been assuming I’m a bad mother for the last

five years. I chew up people who think I’m a bad parent for breakfast. You

think there’s something wrong with my kid? No shit, Sherlock †" this panel

of physicians and psychologists agrees with you. Tell us something we don’t

know. Have something new and clever to add? No? NO? I didn’t think so…

> In other words, we have experience with assholes like you.

> Four. We Are Not Socially Well-Adjusted

> We were real people once, and we will be real people again

someday, but right now we’re living on the fringe of polite society. We have

cut ties and discarded the family and friends who couldn’t handle our

situation. We all suffer from severe PTSD. Our houses are messy, our surfaces

are sticky, and we know the words to way too many Wiggles songs. We clean up

disasters that you couldn’t even begin to contemplate. We live in

semi-isolation, trying to have philosophical conversations with children who

only know 18 words. We wear yoga pants all day. Our lives are not like other

people’s lives. Do you really want to make us angry? Or do you want to give us

a really really wide berth and back away slowly because you’re scared of what

we might do if we snap? Yes. Good choice.

> Three. We Know How to Fight

> Autism moms know how to fight because we practice. We fight all

day long. We fight with doctors about treatment, and then we fight with

insurance companies to get it paid for. We fight with the state over services

and we fight with schools about our IEPs. We fight with our families who

won’t come to visit us anymore and we fight with our husbands to let off steam

from all the other fighting we’re constantly doing. We fight with our

children to make them keep their pants on in public. Do you think for a second

that we would hesitate to fight with a complete stranger who was totally asking

for it?

> Two. We’re Already Angry

> Autism moms carry huge amounts of unprocessed rage just below

the surface. We’re mad at god or the universe or fate or whatever it is out

there that gave our children autism. We are furious at the cards we were dealt

and indignant that such a horrible thing had to happen to our children. We are

angry about the loss of the child we were supposed to have, and we never truly

stop mourning. We’re angry at the doctors who didn’t catch it early enough

and also at the doctors who did. We hold a grudge against anybody who ever

failed us as we tried to make sense of this chaos, and we’re also furious at

ourselves, because we constantly feel like we’re not doing enough to help and

we’re secretly afraid that it might somehow be our fault in the first place.

We are already walking bundles of resentment…do you want to be the straw that

breaks the camel’s back?

> One. We’re Sleep Deprived

> Some of us haven’t had a good night’s sleep in years.

Between the stress, depression, anxiety, and the kid who wakes up screaming for

popsicles at 3 a.m., we’re all beyond exhausted. We’re muddled and

short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel

Gibson crazy. There are all sorts of studies linking sleep deprivation to

psychosis and that would probably hold up in court if I decided to assault you.

Keep that in mind the next time you fail to keep your opinions to yourself, and

beware the autism mom

>

> Lois Noland 240-420-6120

> Always in search for the " cure "

>

>

>

>

> Lois Noland

> 240-420-3692

> I don't give in

> I don't give up

> And I don't take no for an answer

> Always looking for the " Cure "

>

>

>

>

>

> I don't give in

> I don't give up

> And I don't take NO for an answer.

>

> If God Brings you to it,

> He will Bring you though it.

>

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I want to thank everyone for there support with this discussion. Its very hard to move forward. We plan on it eventually to find another church just not right away. The pain still hurts. These are people that were really close to me and my family. I have always had christian people close to our family even as a child. Our pastors to to the youth leaders and to not have someone now just really hurts. we still believe in our God. We do some studies and worship here at the house with my kids. It gets alittle easier to talk about each day. We just learned that one of the members who was training to be a pastor for our district who hasn't been to the church in a very long time. I assumed he left the church. Is now being charged with rape of a minor. Theree are so many things to be

thankfull as to why this happened. We are just starting to see some of them. Its only going to get worse over there and there time is coming. I pray every night for the church and the church family as that is what were suppose to do according to the bible. hard things to do some time. But with that. We are all doing fine. We were really active in the church and I find my time less consumming and don't know wht to do next. Thanks again for all the support your all awesome in my eyes and I don't know you all personally. ThanksTwillaFrom: camcat10 <cammy_shelton@...>Subject: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!To:

autism Date: Thursday, October 27, 2011, 8:58 PMif your church kicked you out - Thank God! Those aren't Godly people and you are MUCH better off without them.i'm sorry that happened to you; some people are intolerant of anything but perfect.don't let them stop you in your quest to learn and live Godly; it's the right way to livelots of love,Cammyhttp://stores.ebay.com/Cammys-Clothing-Treasures> > > From: M CULP <marshaculp@...>> Subject: RE: Fw: Top 5 reasons you should NEVER poss off an autism mom!> > Date: Saturday, October 22, 2011, 11:34 PM> > > > > >

Amen!> > > > ------------------------------------------------------------------> autism ; gloriaknight3@...; Bcharne77@...; DolleneBurbage@...; janet816@...; jlois@...; minermarilyn@...; frazzlednanny@...> From: jlois@...> Date: Sat, 22 Oct 2011 23:15:48 -0400> Subject: Fw: Top 5 reasons you should NEVER poss off an autism mom!> > > > > >

----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with. Top Five Reasons You Should Never Piss Off an Autism Mom> Five. We’re Already on the Defensive> What? You think you’re the first person to think I’m a bad mother? Get in line. People have been assuming

I’m a bad mother for the last five years. I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid? No shit, Sherlock â€" this panel of physicians and psychologists agrees with you. Tell us something we don’t know. Have something new and clever to add? No? NO? I didn’t think so…> In other words, we have experience with assholes like you.> Four. We Are Not Socially Well-Adjusted> We were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn’t handle our situation. We all

suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap? Yes. Good choice.> Three. We Know How to Fight> Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with

the state over services and we fight with schools about our IEPs. We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? > Two. We’re Already Angry> Autism moms carry huge amounts of unprocessed rage just below the surface. We’re mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the

loss of the child we were supposed to have, and we never truly stop mourning. We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?> One. We’re Sleep Deprived> Some of us haven’t had a good night’s sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m.,

we’re all beyond exhausted. We’re muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom> > Lois Noland 240-420-6120> Always in search for the "cure"> > > > > Lois Noland> 240-420-3692> I don't give in> I don't give

up> And I don't take no for an answer> Always looking for the "Cure"> > > > > > I don't give in> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>------------------------------------

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I'm a little worried because I'm not sure if you guys mean this or if you are

just have a light moment. I can't tell from your comments. I'm sitting here

thinking, Really?

So just in case you mean it, I'm wondering.... Do you really want to be this

angry embittered person? Or do you want to make lemonaide out of lemons?

btw, my son is severe and I have experienced some horrific treatment from

various strangers, professionals, and my parents. But I CHOOSE to continue to

give each (new) person that I encounter the benefit of the doubt... and judge

them for who they are. Thank goodness because God did eventually provide the

kind and wonderful strangers, professionals, etc. But if I had shut myself off

and assumed everyone was terrible then this would have never happened.

And I was lucky. Although our church did not have a " program " for my son, they

did support us spiritually and were quite tolerant... Even during the meltdowns

that turned aggressive. Now my son sings in church. I did the day-to-day work.

But they covered us with love and prayer. God provided the resources and the

strength to live through it. He is Great. Jill

>

> Sunflower

> ----- Original Message -----

> From: lois noland

> lois noland

> Sent: Saturday, October 22, 2011 11:12 PM

>

>

>

>

> learn to fear us, because autism moms are not to be trifled with.

> Top Five Reasons You Should Never Piss Off an Autism Mom

>

> Five. We're Already on the Defensive

>

> What? You think you're the first person to think I'm a bad mother? Get in

line. People have been assuming I'm a bad mother for the last five years. I

chew up people who think I'm a bad parent for breakfast. You think there's

something wrong with my kid? No shit, Sherlock – this panel of physicians and

psychologists agrees with you. Tell us something we don't know. Have something

new and clever to add? No? NO? I didn't think so…

>

> In other words, we have experience with assholes like you.

>

> Four. We Are Not Socially Well-Adjusted

>

> We were real people once, and we will be real people again someday, but right

now we're living on the fringe of polite society. We have cut ties and

discarded the family and friends who couldn't handle our situation. We all

suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we

know the words to way too many Wiggles songs. We clean up disasters that you

couldn't even begin to contemplate. We live in semi-isolation, trying to have

philosophical conversations with children who only know 18 words. We wear yoga

pants all day. Our lives are not like other people's lives. Do you really want

to make us angry? Or do you want to give us a really really wide berth and back

away slowly because you're scared of what we might do if we snap? Yes. Good

choice.

>

> Three. We Know How to Fight

>

> Autism moms know how to fight because we practice. We fight all day long. We

fight with doctors about treatment, and then we fight with insurance companies

to get it paid for. We fight with the state over services and we fight with

schools about our IEPs. We fight with our families who won't come to visit us

anymore and we fight with our husbands to let off steam from all the other

fighting we're constantly doing. We fight with our children to make them keep

their pants on in public. Do you think for a second that we would hesitate to

fight with a complete stranger who was totally asking for it?

>

> Two. We're Already Angry

>

> Autism moms carry huge amounts of unprocessed rage just below the surface.

We're mad at god or the universe or fate or whatever it is out there that gave

our children autism. We are furious at the cards we were dealt and indignant

that such a horrible thing had to happen to our children. We are angry about

the loss of the child we were supposed to have, and we never truly stop

mourning. We're angry at the doctors who didn't catch it early enough and also

at the doctors who did. We hold a grudge against anybody who ever failed us as

we tried to make sense of this chaos, and we're also furious at ourselves,

because we constantly feel like we're not doing enough to help and we're

secretly afraid that it might somehow be our fault in the first place. We are

already walking bundles of resentment…do you want to be the straw that breaks

the camel's back?

>

> One. We're Sleep Deprived

>

> Some of us haven't had a good night's sleep in years. Between the stress,

depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m.,

we're all beyond exhausted. We're muddled and short-tempered and irrational and

crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of

studies linking sleep deprivation to psychosis and that would probably hold up

in court if I decided to assault you. Keep that in mind the next time you fail

to keep your opinions to yourself, and beware the autism mom

>

> Lois Noland 240-420-6120

> Always in search for the " cure "

>

>

>

>

> Lois Noland

> 240-420-3692

> I don't give in

> I don't give up

> And I don't take no for an answer

> Always looking for the " Cure "

>

>

>

>

>

> I don't give in

> I don't give up

> And I don't take NO for an answer.

>

> If God Brings you to it,

> He will Bring you though it.

>

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AMEN, MY SISTER!! God bless you for your inspiring testimony...it made my night!~Sent from my BlackBerry® wireless device from LIME.From: "Jill" <jgmangus@...>Sender: autism Date: Wed, 02 Nov 2011 23:34:15 -0000<autism >Reply autism Subject: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom! I'm a little worried because I'm not sure if you guys mean this or if you are just have a light moment. I can't tell from your comments. I'm sitting here thinking, Really?So just in case you mean it, I'm wondering.... Do you really want to be this angry embittered person? Or do you want to make lemonaide out of lemons?btw, my son is severe and I have experienced some horrific treatment from various strangers, professionals, and my parents. But I CHOOSE to continue to give each (new) person that I encounter the benefit of the doubt... and judge them for who they are. Thank goodness because God did eventually provide the kind and wonderful strangers, professionals, etc. But if I had shut myself off and assumed everyone was terrible then this would have never happened.And I was lucky. Although our church did not have a " program " for my son, they did support us spiritually and were quite tolerant... Even during the meltdowns that turned aggressive. Now my son sings in church. I did the day-to-day work. But they covered us with love and prayer. God provided the resources and the strength to live through it. He is Great. Jill>> Sunflower> ----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with. > Top Five Reasons You Should Never Piss Off an Autism Mom> > Five. We're Already on the Defensive> > What? You think you're the first person to think I'm a bad mother? Get in line. People have been assuming I'm a bad mother for the last five years. I chew up people who think I'm a bad parent for breakfast. You think there's something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don't know. Have something new and clever to add? No? NO? I didn't think so…> > In other words, we have experience with assholes like you.> > Four. We Are Not Socially Well-Adjusted> > We were real people once, and we will be real people again someday, but right now we're living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn't handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn't even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people's lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you're scared of what we might do if we snap? Yes. Good choice.> > Three. We Know How to Fight> > Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won't come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we're constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? > > Two. We're Already Angry> > Autism moms carry huge amounts of unprocessed rage just below the surface. We're mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We're angry at the doctors who didn't catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we're also furious at ourselves, because we constantly feel like we're not doing enough to help and we're secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel's back?> > One. We're Sleep Deprived> > Some of us haven't had a good night's sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom> > Lois Noland 240-420-6120> Always in search for the " cure " > > > > > Lois Noland> 240-420-3692> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the " Cure " > > > > > > I don't give in> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

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Jill,

I just copyed and sent this because is was on a autism group I am on thru facebook. I think most of it was to laugh at BUT some of it was hit home sometimes.

As far as church go's..........I say my prayers at home. That was great that your church "Stepped up to the plate" but a lot of them do not. ((HUGS)) Lois

Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

I'm a little worried because I'm not sure if you guys mean this or if you are just have a light moment. I can't tell from your comments. I'm sitting here thinking, Really?So just in case you mean it, I'm wondering.... Do you really want to be this angry embittered person? Or do you want to make lemonaide out of lemons?btw, my son is severe and I have experienced some horrific treatment from various strangers, professionals, and my parents. But I CHOOSE to continue to give each (new) person that I encounter the benefit of the doubt... and judge them for who they are. Thank goodness because God did eventually provide the kind and wonderful strangers, professionals, etc. But if I had shut myself off and assumed everyone was terrible then this would have never happened.And I was lucky. Although our church did not have a "program" for my son, they did support us spiritually and were quite tolerant... Even during the meltdowns that turned aggressive. Now my son sings in church. I did the day-to-day work. But they covered us with love and prayer. God provided the resources and the strength to live through it. He is Great. Jill>> Sunflower> ----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with. > Top Five Reasons You Should Never Piss Off an Autism Mom> > Five. We're Already on the Defensive> > What? You think you're the first person to think I'm a bad mother? Get in line. People have been assuming I'm a bad mother for the last five years. I chew up people who think I'm a bad parent for breakfast. You think there's something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don't know. Have something new and clever to add? No? NO? I didn't think so…> > In other words, we have experience with assholes like you.> > Four. We Are Not Socially Well-Adjusted> > We were real people once, and we will be real people again someday, but right now we're living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn't handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn't even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people's lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you're scared of what we might do if we snap? Yes. Good choice.> > Three. We Know How to Fight> > Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won't come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we're constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? > > Two. We're Already Angry> > Autism moms carry huge amounts of unprocessed rage just below the surface. We're mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We're angry at the doctors who didn't catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we're also furious at ourselves, because we constantly feel like we're not doing enough to help and we're secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel's back?> > One. We're Sleep Deprived> > Some of us haven't had a good night's sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom> > Lois Noland 240-420-6120> Always in search for the "cure"> > > > > Lois Noland> 240-420-3692> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the "Cure"> > > > > > I don't give in> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

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Jill,

Bless you. Yes, from my point of view I DO mean every word that was written. I can't keep giving my family/friends/community the 'benefit of the doubt' since I have seen and heard what doing so does to my son's self esteem. I am his loudest and sometimes ONLY advocate so I don't have the luxury of choosing to give others the benefit of the doubt. In my world that would be neglect. I do not have a church family. We have been asked to leave two different churches, two different faiths because they could not handle my son's behavior. We were invited back just as long as we don't bring him. My son was severe; enough so that it was strongly recommended to us by more than one "professional" to put him into an institution. Thank God we didn't. Friends? Of course I have them, and they are all family members of a

child with special needs. I have faith, I have courage, I have a kind heart, blah blah blah. I am also every word of what was said. Like I said, BLESS YOU and I hope you enjoy the lemonade you are making from life. I have no time to make lemonade, I have hours of research to do and meals to create with restrictions, hours of ABA to do, sensory diets to fulfill, not to mention other daily things that can't be put off. Please do not worry for me and other parents like me. We will be just fine (without the lemonade).

Beth Lohan

From: Jill <jgmangus@...>autism Sent: Wednesday, November 2, 2011 6:34 PMSubject: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

I'm a little worried because I'm not sure if you guys mean this or if you are just have a light moment. I can't tell from your comments. I'm sitting here thinking, Really?So just in case you mean it, I'm wondering.... Do you really want to be this angry embittered person? Or do you want to make lemonaide out of lemons?btw, my son is severe and I have experienced some horrific treatment from various strangers, professionals, and my parents. But I CHOOSE to continue to give each (new) person that I encounter the benefit of the doubt... and judge them for who they are. Thank goodness because God did eventually provide the kind and wonderful strangers, professionals, etc. But if I had shut myself off and assumed everyone was terrible then this would have never happened.And I was lucky. Although our church did not have a "program" for my son, they did support us spiritually and were quite tolerant... Even during the meltdowns that

turned aggressive. Now my son sings in church. I did the day-to-day work. But they covered us with love and prayer. God provided the resources and the strength to live through it. He is Great. Jill>> Sunflower> ----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with. > Top Five Reasons You Should Never Piss Off an Autism Mom> > Five. We're Already on the Defensive> > What? You think you're the first person to think I'm a bad mother? Get in line. People have been assuming I'm a bad

mother for the last five years. I chew up people who think I'm a bad parent for breakfast. You think there's something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don't know. Have something new and clever to add? No? NO? I didn't think so…> > In other words, we have experience with assholes like you.> > Four. We Are Not Socially Well-Adjusted> > We were real people once, and we will be real people again someday, but right now we're living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn't handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn't even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with

children who only know 18 words. We wear yoga pants all day. Our lives are not like other people's lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you're scared of what we might do if we snap? Yes. Good choice.> > Three. We Know How to Fight> > Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won't come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we're constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it? >

> Two. We're Already Angry> > Autism moms carry huge amounts of unprocessed rage just below the surface. We're mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We're angry at the doctors who didn't catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we're also furious at ourselves, because we constantly feel like we're not doing enough to help and we're secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel's back?> > One. We're Sleep Deprived>

> Some of us haven't had a good night's sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom> > Lois Noland 240-420-6120> Always in search for the "cure"> > > > > Lois Noland> 240-420-3692> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the "Cure"> > > > > > I don't give in> I don't give up> And I don't take NO for an

answer.> > If God Brings you to it,> He will Bring you though it.>

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Beth,

 

I am with you....

 

I am alone with my 9 year old son (husband died 10 months ago), moderate autism and I am alone!  Aside from the staff @ my son's school, I am alone.

Yes - I have family.  Family that says " as long as there isn't any fighting / crying/ spitting/ tantrums " you are welcome. 

I haev no idea what to do about the holidays - where can we go? 

My oldest friend of 35 years is my only friend.  has a 18 yr old daughter with mild autism.

 

If there is an offer of help, it is with condescending pity.

 

Afer living in this apt. for 20 months, a neighbor stopped by with cupcakes on halloween.  Very nice gesture.  I tossed teh cupcakes after listening to the condescending and cold judgements about my son

 

My " special little buddy "   make me cringe.  Everytime my son enters a room my mother cringes.

 

I am a baptized catholic.  My son is a baptized catholic.  We are not welocme @ our parish.

 

Kate

http://chicagoautismmom.blogspot.com/

 

On Thu, Nov 3, 2011 at 11:59 AM, mark lohan <ml10splayer@...> wrote:

 

Jill,

 

Bless you.  Yes, from my point of view I DO mean every word that was written.  I can't keep giving my family/friends/community the 'benefit of the doubt' since I have seen and heard what doing so does to my son's self esteem.  I am his loudest and sometimes ONLY advocate so I don't have the luxury of choosing to give others the benefit of the doubt.  In my world that would be neglect.  I do not have a church family.  We have been asked to leave two different churches, two different faiths because they could not handle my son's behavior.  We were invited back just as long as we don't bring him.  My son was severe; enough so that it was strongly recommended to us by more than one " professional " to put him into an institution.  Thank God we didn't.  Friends?  Of course I have them, and they are all family members of a child with special needs.   I have faith, I have courage, I have a kind heart, blah blah blah.  I am also every word of what was said.  Like I said, BLESS YOU and I hope you enjoy the lemonade you are making from life.  I have no time to make lemonade, I have hours of research to do and meals to create with restrictions, hours of ABA to do, sensory diets to fulfill, not to mention other daily things that can't be put off.  Please do not worry for me and other parents like me.  We will be just fine (without the lemonade).

 

Beth Lohan

From: Jill <jgmangus@...>

autism Sent: Wednesday, November 2, 2011 6:34 PM

Subject: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

 

I'm a little worried because I'm not sure if you guys mean this or if you are just have a light moment. I can't tell from your comments. I'm sitting here thinking, Really?So just in case you mean it, I'm wondering.... Do you really want to be this angry embittered person? Or do you want to make lemonaide out of lemons?

btw, my son is severe and I have experienced some horrific treatment from various strangers, professionals, and my parents. But I CHOOSE to continue to give each (new) person that I encounter the benefit of the doubt... and judge them for who they are. Thank goodness because God did eventually provide the kind and wonderful strangers, professionals, etc. But if I had shut myself off and assumed everyone was terrible then this would have never happened.

And I was lucky. Although our church did not have a " program " for my son, they did support us spiritually and were quite tolerant... Even during the meltdowns that turned aggressive. Now my son sings in church. I did the day-to-day work. But they covered us with love and prayer. God provided the resources and the strength to live through it. He is Great. Jill

>> Sunflower

> ----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with.

> Top Five Reasons You Should Never Piss Off an Autism Mom> > Five. We're Already on the Defensive> > What? You think you're the first person to think I'm a bad mother? Get in line. People have been assuming I'm a bad mother for the last five years. I chew up people who think I'm a bad parent for breakfast. You think there's something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don't know. Have something new and clever to add? No? NO? I didn't think so…

> > In other words, we have experience with assholes like you.> > Four. We Are Not Socially Well-Adjusted> > We were real people once, and we will be real people again someday, but right now we're living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn't handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn't even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people's lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you're scared of what we might do if we snap? Yes. Good choice.

> > Three. We Know How to Fight> > Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won't come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we're constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

> > Two. We're Already Angry> > Autism moms carry huge amounts of unprocessed rage just below the surface. We're mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We're angry at the doctors who didn't catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we're also furious at ourselves, because we constantly feel like we're not doing enough to help and we're secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel's back?

> > One. We're Sleep Deprived> > Some of us haven't had a good night's sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

> > Lois Noland 240-420-6120> Always in search for the " cure " > > > > > Lois Noland> 240-420-3692

> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the " Cure " > > > > > > I don't give in

> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

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Kate,My heart breaks for your situation ... it seems that I hear of these type of circumstances far too often. I too have a son who's had a history of difficult behaviors and it angers me to no end when I hear of any church telling someone they aren't welcome.Are you by any chance near Willow Creek in Barrington? They seem to have a pretty extensive special needs ministry. It might be worth checking into, not just for the worship but for the support ...http://www.willowcreek.org/southbarrington/kidsandstudents/kids-with-disabilitiesHTH,HeidiFrom: "Kate Myers" <katemyersny@...>autism Sent: Thursday, November 3, 2011 2:48:27 PMSubject: Re: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

Beth,

I am with you....

I am alone with my 9 year old son (husband died 10 months ago), moderate autism and I am alone! Aside from the staff @ my son's school, I am alone.

Yes - I have family. Family that says "as long as there isn't any fighting / crying/ spitting/ tantrums" you are welcome.

I haev no idea what to do about the holidays - where can we go?

My oldest friend of 35 years is my only friend. has a 18 yr old daughter with mild autism.

If there is an offer of help, it is with condescending pity.

Afer living in this apt. for 20 months, a neighbor stopped by with cupcakes on halloween. Very nice gesture. I tossed teh cupcakes after listening to the condescending and cold judgements about my son

My "special little buddy" make me cringe. Everytime my son enters a room my mother cringes.

I am a baptized catholic. My son is a baptized catholic. We are not welocme @ our parish.

Kate

http://chicagoautismmom.blogspot.com/

On Thu, Nov 3, 2011 at 11:59 AM, mark lohan <ml10splayer@...> wrote:

Jill,

Bless you. Yes, from my point of view I DO mean every word that was written. I can't keep giving my family/friends/community the 'benefit of the doubt' since I have seen and heard what doing so does to my son's self esteem. I am his loudest and sometimes ONLY advocate so I don't have the luxury of choosing to give others the benefit of the doubt. In my world that would be neglect. I do not have a church family. We have been asked to leave two different churches, two different faiths because they could not handle my son's behavior. We were invited back just as long as we don't bring him. My son was severe; enough so that it was strongly recommended to us by more than one "professional" to put him into an institution. Thank God we didn't. Friends? Of course I have them, and they are all family members of a child with special needs. I have faith, I have courage, I have a kind heart, blah blah blah. I am also every word of what was said. Like I said, BLESS YOU and I hope you enjoy the lemonade you are making from life. I have no time to make lemonade, I have hours of research to do and meals to create with restrictions, hours of ABA to do, sensory diets to fulfill, not to mention other daily things that can't be put off. Please do not worry for me and other parents like me. We will be just fine (without the lemonade).

Beth Lohan

From: Jill <jgmangus@...>

autism Sent: Wednesday, November 2, 2011 6:34 PM

Subject: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

I'm a little worried because I'm not sure if you guys mean this or if you are just have a light moment. I can't tell from your comments. I'm sitting here thinking, Really?So just in case you mean it, I'm wondering.... Do you really want to be this angry embittered person? Or do you want to make lemonaide out of lemons?

btw, my son is severe and I have experienced some horrific treatment from various strangers, professionals, and my parents. But I CHOOSE to continue to give each (new) person that I encounter the benefit of the doubt... and judge them for who they are. Thank goodness because God did eventually provide the kind and wonderful strangers, professionals, etc. But if I had shut myself off and assumed everyone was terrible then this would have never happened.

And I was lucky. Although our church did not have a "program" for my son, they did support us spiritually and were quite tolerant... Even during the meltdowns that turned aggressive. Now my son sings in church. I did the day-to-day work. But they covered us with love and prayer. God provided the resources and the strength to live through it. He is Great. Jill

>> Sunflower

> ----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with.

> Top Five Reasons You Should Never Piss Off an Autism Mom> > Five. We're Already on the Defensive> > What? You think you're the first person to think I'm a bad mother? Get in line. People have been assuming I'm a bad mother for the last five years. I chew up people who think I'm a bad parent for breakfast. You think there's something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don't know. Have something new and clever to add? No? NO? I didn't think so…

> > In other words, we have experience with assholes like you.> > Four. We Are Not Socially Well-Adjusted> > We were real people once, and we will be real people again someday, but right now we're living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn't handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn't even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people's lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you're scared of what we might do if we snap? Yes. Good choice.

> > Three. We Know How to Fight> > Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won't come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we're constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

> > Two. We're Already Angry> > Autism moms carry huge amounts of unprocessed rage just below the surface. We're mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We're angry at the doctors who didn't catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we're also furious at ourselves, because we constantly feel like we're not doing enough to help and we're secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel's back?

> > One. We're Sleep Deprived> > Some of us haven't had a good night's sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

> > Lois Noland 240-420-6120> Always in search for the "cure"> > > > > Lois Noland> 240-420-3692

> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the "Cure"> > > > > > I don't give in

> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

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Kate,My heart breaks for your situation ... it seems that I hear of these type of circumstances far too often. I too have a son who's had a history of difficult behaviors and it angers me to no end when I hear of any church telling someone they aren't welcome.Are you by any chance near Willow Creek in Barrington? They seem to have a pretty extensive special needs ministry. It might be worth checking into, not just for the worship but for the support ...http://www.willowcreek.org/southbarrington/kidsandstudents/kids-with-disabilitiesHTH,HeidiFrom: "Kate Myers" <katemyersny@...>autism Sent: Thursday, November 3, 2011 2:48:27 PMSubject: Re: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

Beth,

I am with you....

I am alone with my 9 year old son (husband died 10 months ago), moderate autism and I am alone! Aside from the staff @ my son's school, I am alone.

Yes - I have family. Family that says "as long as there isn't any fighting / crying/ spitting/ tantrums" you are welcome.

I haev no idea what to do about the holidays - where can we go?

My oldest friend of 35 years is my only friend. has a 18 yr old daughter with mild autism.

If there is an offer of help, it is with condescending pity.

Afer living in this apt. for 20 months, a neighbor stopped by with cupcakes on halloween. Very nice gesture. I tossed teh cupcakes after listening to the condescending and cold judgements about my son

My "special little buddy" make me cringe. Everytime my son enters a room my mother cringes.

I am a baptized catholic. My son is a baptized catholic. We are not welocme @ our parish.

Kate

http://chicagoautismmom.blogspot.com/

On Thu, Nov 3, 2011 at 11:59 AM, mark lohan <ml10splayer@...> wrote:

Jill,

Bless you. Yes, from my point of view I DO mean every word that was written. I can't keep giving my family/friends/community the 'benefit of the doubt' since I have seen and heard what doing so does to my son's self esteem. I am his loudest and sometimes ONLY advocate so I don't have the luxury of choosing to give others the benefit of the doubt. In my world that would be neglect. I do not have a church family. We have been asked to leave two different churches, two different faiths because they could not handle my son's behavior. We were invited back just as long as we don't bring him. My son was severe; enough so that it was strongly recommended to us by more than one "professional" to put him into an institution. Thank God we didn't. Friends? Of course I have them, and they are all family members of a child with special needs. I have faith, I have courage, I have a kind heart, blah blah blah. I am also every word of what was said. Like I said, BLESS YOU and I hope you enjoy the lemonade you are making from life. I have no time to make lemonade, I have hours of research to do and meals to create with restrictions, hours of ABA to do, sensory diets to fulfill, not to mention other daily things that can't be put off. Please do not worry for me and other parents like me. We will be just fine (without the lemonade).

Beth Lohan

From: Jill <jgmangus@...>

autism Sent: Wednesday, November 2, 2011 6:34 PM

Subject: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

I'm a little worried because I'm not sure if you guys mean this or if you are just have a light moment. I can't tell from your comments. I'm sitting here thinking, Really?So just in case you mean it, I'm wondering.... Do you really want to be this angry embittered person? Or do you want to make lemonaide out of lemons?

btw, my son is severe and I have experienced some horrific treatment from various strangers, professionals, and my parents. But I CHOOSE to continue to give each (new) person that I encounter the benefit of the doubt... and judge them for who they are. Thank goodness because God did eventually provide the kind and wonderful strangers, professionals, etc. But if I had shut myself off and assumed everyone was terrible then this would have never happened.

And I was lucky. Although our church did not have a "program" for my son, they did support us spiritually and were quite tolerant... Even during the meltdowns that turned aggressive. Now my son sings in church. I did the day-to-day work. But they covered us with love and prayer. God provided the resources and the strength to live through it. He is Great. Jill

>> Sunflower

> ----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with.

> Top Five Reasons You Should Never Piss Off an Autism Mom> > Five. We're Already on the Defensive> > What? You think you're the first person to think I'm a bad mother? Get in line. People have been assuming I'm a bad mother for the last five years. I chew up people who think I'm a bad parent for breakfast. You think there's something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don't know. Have something new and clever to add? No? NO? I didn't think so…

> > In other words, we have experience with assholes like you.> > Four. We Are Not Socially Well-Adjusted> > We were real people once, and we will be real people again someday, but right now we're living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn't handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn't even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people's lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you're scared of what we might do if we snap? Yes. Good choice.

> > Three. We Know How to Fight> > Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won't come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we're constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

> > Two. We're Already Angry> > Autism moms carry huge amounts of unprocessed rage just below the surface. We're mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We're angry at the doctors who didn't catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we're also furious at ourselves, because we constantly feel like we're not doing enough to help and we're secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel's back?

> > One. We're Sleep Deprived> > Some of us haven't had a good night's sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

> > Lois Noland 240-420-6120> Always in search for the "cure"> > > > > Lois Noland> 240-420-3692

> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the "Cure"> > > > > > I don't give in

> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

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Hi Heidi,

 

We have had offers...

A priest that is a family friend offered to say mass with / for  mu Joe @ my mom's house....

St Pat's (downtown Chicago ) had a mass for special needs kids in the Church reception hall....

 

The above offers are exclusive - I want inclusive!  Include my son and I! 

 

But I want an ordinary Sunday morning that includes nice shoes, a walk to church, a rousing version of " The King of Glory " and a big AHHHHMEEEEEEENNNNNN....

 

I know I want a lot  / too much...but 1 ordinary day in a faith that has welcomed so many for 100's of years.....

 

 

Kate

http://chicagoautismmom.blogspot.com/

 

 

On Thu, Nov 3, 2011 at 6:06 PM, <theshabbysheep@...> wrote:

 

Kate,My heart breaks for your situation ... it seems that I hear of these type of circumstances far too often.  I too have a son who's had a history of difficult behaviors and it angers me to no end when I hear of any church telling someone they aren't welcome.

Are you by any chance near Willow Creek in Barrington?  They seem to have a pretty extensive special needs ministry. It might be worth checking into, not just for the worship but for the support ...http://www.willowcreek.org/southbarrington/kidsandstudents/kids-with-disabilities

HTH,Heidi

From: " Kate Myers " <katemyersny@...>autism

Sent: Thursday, November 3, 2011 2:48:27 PMSubject: Re: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom! 

Beth,

 

I am with you....

 

I am alone with my 9 year old son (husband died 10 months ago), moderate autism and I am alone!  Aside from the staff @ my son's school, I am alone.

Yes - I have family.  Family that says " as long as there isn't any fighting / crying/ spitting/ tantrums " you are welcome. 

I haev no idea what to do about the holidays - where can we go? 

My oldest friend of 35 years is my only friend.  has a 18 yr old daughter with mild autism.

 

If there is an offer of help, it is with condescending pity.

 

Afer living in this apt. for 20 months, a neighbor stopped by with cupcakes on halloween.  Very nice gesture.  I tossed teh cupcakes after listening to the condescending and cold judgements about my son

 

My " special little buddy "   make me cringe.  Everytime my son enters a room my mother cringes.

 

I am a baptized catholic.  My son is a baptized catholic.  We are not welocme @ our parish.

 

Kate

http://chicagoautismmom.blogspot.com/

 

On Thu, Nov 3, 2011 at 11:59 AM, mark lohan <ml10splayer@...> wrote:

 

Jill,

 

Bless you.  Yes, from my point of view I DO mean every word that was written.  I can't keep giving my family/friends/community the 'benefit of the doubt' since I have seen and heard what doing so does to my son's self esteem.  I am his loudest and sometimes ONLY advocate so I don't have the luxury of choosing to give others the benefit of the doubt.  In my world that would be neglect.  I do not have a church family.  We have been asked to leave two different churches, two different faiths because they could not handle my son's behavior.  We were invited back just as long as we don't bring him.  My son was severe; enough so that it was strongly recommended to us by more than one " professional " to put him into an institution.  Thank God we didn't.  Friends?  Of course I have them, and they are all family members of a child with special needs.   I have faith, I have courage, I have a kind heart, blah blah blah.  I am also every word of what was said.  Like I said, BLESS YOU and I hope you enjoy the lemonade you are making from life.  I have no time to make lemonade, I have hours of research to do and meals to create with restrictions, hours of ABA to do, sensory diets to fulfill, not to mention other daily things that can't be put off.  Please do not worry for me and other parents like me.  We will be just fine (without the lemonade).

 

Beth Lohan

From: Jill <jgmangus@...>

autism Sent: Wednesday, November 2, 2011 6:34 PM

Subject: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

 

I'm a little worried because I'm not sure if you guys mean this or if you are just have a light moment. I can't tell from your comments. I'm sitting here thinking, Really?So just in case you mean it, I'm wondering.... Do you really want to be this angry embittered person? Or do you want to make lemonaide out of lemons?

btw, my son is severe and I have experienced some horrific treatment from various strangers, professionals, and my parents. But I CHOOSE to continue to give each (new) person that I encounter the benefit of the doubt... and judge them for who they are. Thank goodness because God did eventually provide the kind and wonderful strangers, professionals, etc. But if I had shut myself off and assumed everyone was terrible then this would have never happened.

And I was lucky. Although our church did not have a " program " for my son, they did support us spiritually and were quite tolerant... Even during the meltdowns that turned aggressive. Now my son sings in church. I did the day-to-day work. But they covered us with love and prayer. God provided the resources and the strength to live through it. He is Great. Jill

>> Sunflower

> ----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with.

> Top Five Reasons You Should Never Piss Off an Autism Mom> > Five. We're Already on the Defensive> > What? You think you're the first person to think I'm a bad mother? Get in line. People have been assuming I'm a bad mother for the last five years. I chew up people who think I'm a bad parent for breakfast. You think there's something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don't know. Have something new and clever to add? No? NO? I didn't think so…

> > In other words, we have experience with assholes like you.> > Four. We Are Not Socially Well-Adjusted> > We were real people once, and we will be real people again someday, but right now we're living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn't handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn't even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people's lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you're scared of what we might do if we snap? Yes. Good choice.

> > Three. We Know How to Fight> > Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won't come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we're constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

> > Two. We're Already Angry> > Autism moms carry huge amounts of unprocessed rage just below the surface. We're mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We're angry at the doctors who didn't catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we're also furious at ourselves, because we constantly feel like we're not doing enough to help and we're secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel's back?

> > One. We're Sleep Deprived> > Some of us haven't had a good night's sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

> > Lois Noland 240-420-6120> Always in search for the " cure " > > > > > Lois Noland> 240-420-3692

> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the " Cure " > > > > > > I don't give in

> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

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Posted

Hi Heidi,

 

We have had offers...

A priest that is a family friend offered to say mass with / for  mu Joe @ my mom's house....

St Pat's (downtown Chicago ) had a mass for special needs kids in the Church reception hall....

 

The above offers are exclusive - I want inclusive!  Include my son and I! 

 

But I want an ordinary Sunday morning that includes nice shoes, a walk to church, a rousing version of " The King of Glory " and a big AHHHHMEEEEEEENNNNNN....

 

I know I want a lot  / too much...but 1 ordinary day in a faith that has welcomed so many for 100's of years.....

 

 

Kate

http://chicagoautismmom.blogspot.com/

 

 

On Thu, Nov 3, 2011 at 6:06 PM, <theshabbysheep@...> wrote:

 

Kate,My heart breaks for your situation ... it seems that I hear of these type of circumstances far too often.  I too have a son who's had a history of difficult behaviors and it angers me to no end when I hear of any church telling someone they aren't welcome.

Are you by any chance near Willow Creek in Barrington?  They seem to have a pretty extensive special needs ministry. It might be worth checking into, not just for the worship but for the support ...http://www.willowcreek.org/southbarrington/kidsandstudents/kids-with-disabilities

HTH,Heidi

From: " Kate Myers " <katemyersny@...>autism

Sent: Thursday, November 3, 2011 2:48:27 PMSubject: Re: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom! 

Beth,

 

I am with you....

 

I am alone with my 9 year old son (husband died 10 months ago), moderate autism and I am alone!  Aside from the staff @ my son's school, I am alone.

Yes - I have family.  Family that says " as long as there isn't any fighting / crying/ spitting/ tantrums " you are welcome. 

I haev no idea what to do about the holidays - where can we go? 

My oldest friend of 35 years is my only friend.  has a 18 yr old daughter with mild autism.

 

If there is an offer of help, it is with condescending pity.

 

Afer living in this apt. for 20 months, a neighbor stopped by with cupcakes on halloween.  Very nice gesture.  I tossed teh cupcakes after listening to the condescending and cold judgements about my son

 

My " special little buddy "   make me cringe.  Everytime my son enters a room my mother cringes.

 

I am a baptized catholic.  My son is a baptized catholic.  We are not welocme @ our parish.

 

Kate

http://chicagoautismmom.blogspot.com/

 

On Thu, Nov 3, 2011 at 11:59 AM, mark lohan <ml10splayer@...> wrote:

 

Jill,

 

Bless you.  Yes, from my point of view I DO mean every word that was written.  I can't keep giving my family/friends/community the 'benefit of the doubt' since I have seen and heard what doing so does to my son's self esteem.  I am his loudest and sometimes ONLY advocate so I don't have the luxury of choosing to give others the benefit of the doubt.  In my world that would be neglect.  I do not have a church family.  We have been asked to leave two different churches, two different faiths because they could not handle my son's behavior.  We were invited back just as long as we don't bring him.  My son was severe; enough so that it was strongly recommended to us by more than one " professional " to put him into an institution.  Thank God we didn't.  Friends?  Of course I have them, and they are all family members of a child with special needs.   I have faith, I have courage, I have a kind heart, blah blah blah.  I am also every word of what was said.  Like I said, BLESS YOU and I hope you enjoy the lemonade you are making from life.  I have no time to make lemonade, I have hours of research to do and meals to create with restrictions, hours of ABA to do, sensory diets to fulfill, not to mention other daily things that can't be put off.  Please do not worry for me and other parents like me.  We will be just fine (without the lemonade).

 

Beth Lohan

From: Jill <jgmangus@...>

autism Sent: Wednesday, November 2, 2011 6:34 PM

Subject: Re: Fw: Top 5 reasons you should NEVER poss off an autism mom!

 

I'm a little worried because I'm not sure if you guys mean this or if you are just have a light moment. I can't tell from your comments. I'm sitting here thinking, Really?So just in case you mean it, I'm wondering.... Do you really want to be this angry embittered person? Or do you want to make lemonaide out of lemons?

btw, my son is severe and I have experienced some horrific treatment from various strangers, professionals, and my parents. But I CHOOSE to continue to give each (new) person that I encounter the benefit of the doubt... and judge them for who they are. Thank goodness because God did eventually provide the kind and wonderful strangers, professionals, etc. But if I had shut myself off and assumed everyone was terrible then this would have never happened.

And I was lucky. Although our church did not have a " program " for my son, they did support us spiritually and were quite tolerant... Even during the meltdowns that turned aggressive. Now my son sings in church. I did the day-to-day work. But they covered us with love and prayer. God provided the resources and the strength to live through it. He is Great. Jill

>> Sunflower

> ----- Original Message ----- > From: lois noland > lois noland > Sent: Saturday, October 22, 2011 11:12 PM> > > > > learn to fear us, because autism moms are not to be trifled with.

> Top Five Reasons You Should Never Piss Off an Autism Mom> > Five. We're Already on the Defensive> > What? You think you're the first person to think I'm a bad mother? Get in line. People have been assuming I'm a bad mother for the last five years. I chew up people who think I'm a bad parent for breakfast. You think there's something wrong with my kid? No shit, Sherlock – this panel of physicians and psychologists agrees with you. Tell us something we don't know. Have something new and clever to add? No? NO? I didn't think so…

> > In other words, we have experience with assholes like you.> > Four. We Are Not Socially Well-Adjusted> > We were real people once, and we will be real people again someday, but right now we're living on the fringe of polite society. We have cut ties and discarded the family and friends who couldn't handle our situation. We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn't even begin to contemplate. We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words. We wear yoga pants all day. Our lives are not like other people's lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you're scared of what we might do if we snap? Yes. Good choice.

> > Three. We Know How to Fight> > Autism moms know how to fight because we practice. We fight all day long. We fight with doctors about treatment, and then we fight with insurance companies to get it paid for. We fight with the state over services and we fight with schools about our IEPs. We fight with our families who won't come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we're constantly doing. We fight with our children to make them keep their pants on in public. Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?

> > Two. We're Already Angry> > Autism moms carry huge amounts of unprocessed rage just below the surface. We're mad at god or the universe or fate or whatever it is out there that gave our children autism. We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children. We are angry about the loss of the child we were supposed to have, and we never truly stop mourning. We're angry at the doctors who didn't catch it early enough and also at the doctors who did. We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we're also furious at ourselves, because we constantly feel like we're not doing enough to help and we're secretly afraid that it might somehow be our fault in the first place. We are already walking bundles of resentment…do you want to be the straw that breaks the camel's back?

> > One. We're Sleep Deprived> > Some of us haven't had a good night's sleep in years. Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you. Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom

> > Lois Noland 240-420-6120> Always in search for the " cure " > > > > > Lois Noland> 240-420-3692

> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the " Cure " > > > > > > I don't give in

> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

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Posted
Posted

thanks Lois. This is a tough topic. I'm not denying we have to deal with

difficult situations with family, strangers, churchs, schools, etc. My son is

violent sometimes and I have heard it all. Both horrible cruel statements but

also kind and thoughtful things.

And I think we need to continue to give NEW people a chance. Sometimes people

will surprise and turn out to be the exact person you need in your life at that

time.

BTW, my parents have been the most unsupportive people imaginable. They have

repeatedly urged me to put my son in a home. Likewise they recently gave a

monetary gift to all their grandchildren except my son. They have said horrible

hurtful things. I'm now going to great lengths to avoid being hurt by them

again. They've worn me out.

That's the difference. I'm not going to continue to be stomped on by mean

people (including my parents). But I'm open to others. I will give the new

teacher a chance. I will assume that this stranger will be decent until they

show me otherwise.

Hope things are good for you. Jill

> >

> > Sunflower

> > ----- Original Message -----

> > From: lois noland

> > lois noland

> > Sent: Saturday, October 22, 2011 11:12 PM

> >

> >

> >

> >

> > learn to fear us, because autism moms are not to be trifled with.

> > Top Five Reasons You Should Never Piss Off an Autism Mom

> >

> > Five. We're Already on the Defensive

> >

> > What? You think you're the first person to think I'm a bad mother? Get in

line. People have been assuming I'm a bad mother for the last five years. I chew

up people who think I'm a bad parent for breakfast. You think there's something

wrong with my kid? No shit, Sherlock - this panel of physicians and

psychologists agrees with you. Tell us something we don't know. Have something

new and clever to add? No? NO? I didn't think so.

> >

> > In other words, we have experience with assholes like you.

> >

> > Four. We Are Not Socially Well-Adjusted

> >

> > We were real people once, and we will be real people again someday, but

right now we're living on the fringe of polite society. We have cut ties and

discarded the family and friends who couldn't handle our situation. We all

suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we

know the words to way too many Wiggles songs. We clean up disasters that you

couldn't even begin to contemplate. We live in semi-isolation, trying to have

philosophical conversations with children who only know 18 words. We wear yoga

pants all day. Our lives are not like other people's lives. Do you really want

to make us angry? Or do you want to give us a really really wide berth and back

away slowly because you're scared of what we might do if we snap? Yes. Good

choice.

> >

> > Three. We Know How to Fight

> >

> > Autism moms know how to fight because we practice. We fight all day long.

We fight with doctors about treatment, and then we fight with insurance

companies to get it paid for. We fight with the state over services and we fight

with schools about our IEPs. We fight with our families who won't come to visit

us anymore and we fight with our husbands to let off steam from all the other

fighting we're constantly doing. We fight with our children to make them keep

their pants on in public. Do you think for a second that we would hesitate to

fight with a complete stranger who was totally asking for it?

> >

> > Two. We're Already Angry

> >

> > Autism moms carry huge amounts of unprocessed rage just below the surface.

We're mad at god or the universe or fate or whatever it is out there that gave

our children autism. We are furious at the cards we were dealt and indignant

that such a horrible thing had to happen to our children. We are angry about the

loss of the child we were supposed to have, and we never truly stop mourning.

We're angry at the doctors who didn't catch it early enough and also at the

doctors who did. We hold a grudge against anybody who ever failed us as we tried

to make sense of this chaos, and we're also furious at ourselves, because we

constantly feel like we're not doing enough to help and we're secretly afraid

that it might somehow be our fault in the first place. We are already walking

bundles of resentment.do you want to be the straw that breaks the camel's back?

> >

> > One. We're Sleep Deprived

> >

> > Some of us haven't had a good night's sleep in years. Between the stress,

depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m.,

we're all beyond exhausted. We're muddled and short-tempered and irrational and

crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of

studies linking sleep deprivation to psychosis and that would probably hold up

in court if I decided to assault you. Keep that in mind the next time you fail

to keep your opinions to yourself, and beware the autism mom

> >

> > Lois Noland 240-420-6120

> > Always in search for the " cure "

> >

> >

> >

> >

> > Lois Noland

> > 240-420-3692

> > I don't give in

> > I don't give up

> > And I don't take no for an answer

> > Always looking for the " Cure "

> >

> >

> >

> >

> >

> > I don't give in

> > I don't give up

> > And I don't take NO for an answer.

> >

> > If God Brings you to it,

> > He will Bring you though it.

> >

>

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Posted
Posted

I love it Lois!

POW!

Luv,

Cammy

http://stores.ebay.com/Cammys-Clothing-Treasures

> > >

> > > Sunflower

> > > ----- Original Message -----

> > > From: lois noland

> > > lois noland

> > > Sent: Saturday, October 22, 2011 11:12 PM

> > >

> > >

> > >

> > >

> > > learn to fear us, because autism moms are not to be trifled with.

> > > Top Five Reasons You Should Never Piss Off an Autism Mom

> > >

> > > Five. We're Already on the Defensive

> > >

> > > What? You think you're the first person to think I'm a bad mother? Get

in line. People have been assuming I'm a bad mother for the last five years. I

chew up people who think I'm a bad parent for breakfast. You think there's

something wrong with my kid? No shit, Sherlock - this panel of physicians and

psychologists agrees with you. Tell us something we don't know. Have something

new and clever to add? No? NO? I didn't think so.

> > >

> > > In other words, we have experience with assholes like you.

> > >

> > > Four. We Are Not Socially Well-Adjusted

> > >

> > > We were real people once, and we will be real people again someday, but

right now we're living on the fringe of polite society. We have cut ties and

discarded the family and friends who couldn't handle our situation. We all

suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we

know the words to way too many Wiggles songs. We clean up disasters that you

couldn't even begin to contemplate. We live in semi-isolation, trying to have

philosophical conversations with children who only know 18 words. We wear yoga

pants all day. Our lives are not like other people's lives. Do you really want

to make us angry? Or do you want to give us a really really wide berth and back

away slowly because you're scared of what we might do if we snap? Yes. Good

choice.

> > >

> > > Three. We Know How to Fight

> > >

> > > Autism moms know how to fight because we practice. We fight all day

long. We fight with doctors about treatment, and then we fight with insurance

companies to get it paid for. We fight with the state over services and we fight

with schools about our IEPs. We fight with our families who won't come to visit

us anymore and we fight with our husbands to let off steam from all the other

fighting we're constantly doing. We fight with our children to make them keep

their pants on in public. Do you think for a second that we would hesitate to

fight with a complete stranger who was totally asking for it?

> > >

> > > Two. We're Already Angry

> > >

> > > Autism moms carry huge amounts of unprocessed rage just below the

surface. We're mad at god or the universe or fate or whatever it is out there

that gave our children autism. We are furious at the cards we were dealt and

indignant that such a horrible thing had to happen to our children. We are angry

about the loss of the child we were supposed to have, and we never truly stop

mourning. We're angry at the doctors who didn't catch it early enough and also

at the doctors who did. We hold a grudge against anybody who ever failed us as

we tried to make sense of this chaos, and we're also furious at ourselves,

because we constantly feel like we're not doing enough to help and we're

secretly afraid that it might somehow be our fault in the first place. We are

already walking bundles of resentment.do you want to be the straw that breaks

the camel's back?

> > >

> > > One. We're Sleep Deprived

> > >

> > > Some of us haven't had a good night's sleep in years. Between the

stress, depression, anxiety, and the kid who wakes up screaming for popsicles at

3 a.m., we're all beyond exhausted. We're muddled and short-tempered and

irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are

all sorts of studies linking sleep deprivation to psychosis and that would

probably hold up in court if I decided to assault you. Keep that in mind the

next time you fail to keep your opinions to yourself, and beware the autism mom

> > >

> > > Lois Noland 240-420-6120

> > > Always in search for the " cure "

> > >

> > >

> > >

> > >

> > > Lois Noland

> > > 240-420-3692

> > > I don't give in

> > > I don't give up

> > > And I don't take no for an answer

> > > Always looking for the " Cure "

> > >

> > >

> > >

> > >

> > >

> > > I don't give in

> > > I don't give up

> > > And I don't take NO for an answer.

> > >

> > > If God Brings you to it,

> > > He will Bring you though it.

> > >

> >

>

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Posted
Posted

Jill,

I am sorry about your parents. I am sure

that is very hurtful. I don’t have much family either. My parents are

gone but if they would be here they would be there for me. I try to give

everyone a chance too but JJ is now 24 and I have seen the good and the bad and

I take NO crap off of the “bad”. I have had to have 1 pricipal,1teacher and 2 aids fired because I will not take JJ not

getting what he needs. Lois (:

I don't give

in,I don't give up and I don't take NO for an answer.

Re: Fw: Top

5 reasons you should NEVER poss off an autism mom!

thanks Lois. This is a tough topic. I'm not denying we have to deal

with difficult situations with family, strangers, churchs, schools, etc. My son

is violent sometimes and I have heard it all. Both horrible cruel statements

but also kind and thoughtful things.

And I think we need to continue to give NEW people a chance. Sometimes people

will surprise and turn out to be the exact person you need in your life at that

time.

BTW, my parents have been the most unsupportive people imaginable. They have

repeatedly urged me to put my son in a home. Likewise they recently gave a

monetary gift to all their grandchildren except my son. They have said horrible

hurtful things. I'm now going to great lengths to avoid being hurt by them

again. They've worn me out.

That's the difference. I'm not going to continue to be stomped on by mean

people (including my parents). But I'm open to others. I will give the new

teacher a chance. I will assume that this stranger will be decent until they

show me otherwise.

Hope things are good for you. Jill

> >

> > Sunflower

> > ----- Original Message -----

> > From: lois noland

> > lois noland

> > Sent: Saturday, October 22, 2011 11:12 PM

> >

> >

> >

> >

> > learn to fear us, because autism moms are not to be trifled with.

> > Top Five Reasons You Should Never Piss Off an Autism Mom

> >

> > Five. We're Already on the Defensive

> >

> > What? You think you're the first person to think I'm a bad mother?

Get in line. People have been assuming I'm a bad mother for the last five

years. I chew up people who think I'm a bad parent for breakfast. You think

there's something wrong with my kid? No shit, Sherlock - this panel of

physicians and psychologists agrees with you. Tell us something we don't know.

Have something new and clever to add? No? NO? I didn't think so.

> >

> > In other words, we have experience with assholes like you.

> >

> > Four. We Are Not Socially Well-Adjusted

> >

> > We were real people once, and we will be real people again someday,

but right now we're living on the fringe of polite society. We have cut ties

and discarded the family and friends who couldn't handle our situation. We all

suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we

know the words to way too many Wiggles songs. We clean up disasters that you

couldn't even begin to contemplate. We live in semi-isolation, trying to have

philosophical conversations with children who only know 18 words. We wear yoga

pants all day. Our lives are not like other people's lives. Do you really want to

make us angry? Or do you want to give us a really really wide berth and back

away slowly because you're scared of what we might do if we snap? Yes. Good

choice.

> >

> > Three. We Know How to Fight

> >

> > Autism moms know how to fight because we practice. We fight all day

long. We fight with doctors about treatment, and then we fight with insurance

companies to get it paid for. We fight with the state over services and we

fight with schools about our IEPs. We fight with our families who won't come to

visit us anymore and we fight with our husbands to let off steam from all the

other fighting we're constantly doing. We fight with our children to make them

keep their pants on in public. Do you think for a second that we would hesitate

to fight with a complete stranger who was totally asking for it?

> >

> > Two. We're Already Angry

> >

> > Autism moms carry huge amounts of unprocessed rage just below the

surface. We're mad at god or the universe or fate or whatever it is out there

that gave our children autism. We are furious at the cards we were dealt and

indignant that such a horrible thing had to happen to our children. We are

angry about the loss of the child we were supposed to have, and we never truly

stop mourning. We're angry at the doctors who didn't catch it early enough and

also at the doctors who did. We hold a grudge against anybody who ever failed

us as we tried to make sense of this chaos, and we're also furious at

ourselves, because we constantly feel like we're not doing enough to help and

we're secretly afraid that it might somehow be our fault in the first place. We

are already walking bundles of resentment.do you want to be the straw that

breaks the camel's back?

> >

> > One. We're Sleep Deprived

> >

> > Some of us haven't had a good night's sleep in years. Between the

stress, depression, anxiety, and the kid who wakes up screaming for popsicles

at 3 a.m., we're all beyond exhausted. We're muddled and short-tempered and

irrational and crazy. Like ax murderer crazy. Like Mel Gibson crazy. There are

all sorts of studies linking sleep deprivation to psychosis and that would

probably hold up in court if I decided to assault you. Keep that in mind the

next time you fail to keep your opinions to yourself, and beware the autism mom

> >

> > Lois Noland 240-420-6120

> > Always in search for the " cure "

> >

> >

> >

> >

> > Lois Noland

> > 240-420-3692

> > I don't give in

> > I don't give up

> > And I don't take no for an answer

> > Always looking for the " Cure "

> >

> >

> >

> >

> >

> > I don't give in

> > I don't give up

> > And I don't take NO for an answer.

> >

> > If God Brings you to it,

> > He will Bring you though it.

> >

>

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