Re: any autistic grandparents

[Guest guest]

1st step - get oven mitts / gloves.  When agrression starts, out the oven mitts on and protect yourself.  You will be able to handle the aggression and tantrum much better when you are not in physical pain.  My arms were tore up for a year - scratching, pinching, bitting.

2 - get tetnus shots

Is your grand son on medication?  Some meds can intensify aggression.

Clonodine helped lessen my son's aggression and anxiety.

Do you have respit care?

Where do you live?

 

Kate

On Sun, Jul 10, 2011 at 8:28 PM, camper356872003 <camper3568@...> wrote:

 

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

[Guest guest]

I am not a grandparent, but a 60 year old parent of an 18 year old son with severe autism. It has been a struggle and we don't know how much longer we can go on with it, but it is better now than it has been. We are in the midst of trying to find a biomed solution for him while he is on meds for behavior issues. There are probably people here who could tell you a lot more about behaviors than me, but here they seem to come and go. If your grandson is verbal enough to tell you when something is wrong, it is easier than having to guess at everything. Good Luck. It is harder when you are older, but you can do it.

Drissia

From: camper356872003 <camper3568@...>Subject: any autistic grandparentsautism Date: Sunday, July 10, 2011, 9:28 PM

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

[Guest guest]

Kate,

Good advice. I never thought of oven mitts. What meds tend to make aggression worse?

Drissia

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

[Guest guest]

I live in SC. No PCA help has stayed due to the agression and few hours that we

get. His waiver was dropped but I am trying to get it back, we would get

respite hours. I worry though, it is hard for us to deal with, and we love him,

I am afraid someone else is going to hurt him.

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> I am raising my 10 year old grandson. He is sometimes very agressive. I have

not been able to potty train him. I feel somedays that it is too much for me.

Then I look at him and see him do something sweet and He has me wrapped around

his little finger. I feel so confused. My husband and I are both physically ill

and there is no one else to raise him. We both have claw marks and bites. Anyone

else have this going on in there house?

>

>

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> --

> Kate Myers

> Travel Desk

> 773.904.8267 V

> 773.698.8184 F

>

[Guest guest]

Zackery is on clonoine an risperdal and phenobarbital for seizures. Zackery

seems to have a different reaction that intended when taking medicine. I am 51

and my husband is 61. His skin is starting to bleed more, I guess his skin is

getting thinner. He tore into my dad and he has diabetes and his arm got

infected and he had to go on antibiotics. I have wondered about therapeutic

foster care. I understand that you don't lose custody and I can still see him.

Anybody have any info would be appreciated.

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> From: camper356872003 <camper3568@...>

> Subject: any autistic grandparents

> autism

> Date: Sunday, July 10, 2011, 9:28 PM

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> I am raising my 10 year old grandson. He is sometimes very agressive. I have

not been able to potty train him. I feel somedays that it is too much for me.

Then I look at him and see him do something sweet and He has me wrapped around

his little finger. I feel so confused. My husband and I are both physically ill

and there is no one else to raise him. We both have claw marks and bites. Anyone

else have this going on in there house?

>

[Guest guest]

Joe became more aggressive on Respridol.  The oven mitts were pivotal.  Once I was not being physically hurt (and the scratches and bitting hurt like hell!) I could stay calm and work the problem.

For the Granny in SC -

try a social worker @ a local hospital or your grand son's school.  Tell everyone who will listen that you need respit and help.  You never know what solution will come your way...

How about Big Brothers / Big Sisters?  How about your local church? Try your local chapter of Autism Speaks. 

It is not only, that your grand son needs respit - you and your husband are not physically able...be clear, your goal is to keep your grand son @ home BUT!  Your need support.

Try VARIETY Children's Charity.  Call your local high school.  Ask for a recommendation of a mature and responsible JR or SR student who may act as a Pal to your grand son....take your grand son to a park or a library ....anywhere to give you and grand dad some help....

 

Post for support - you are in a tough spot.

 

Kate

 

 

On Sun, Jul 10, 2011 at 10:12 PM, camper356872003 <camper3568@...> wrote:

 

I live in SC. No PCA help has stayed due to the agression and few hours that we get. His waiver was dropped but I am trying to get it back, we would get respite hours. I worry though, it is hard for us to deal with, and we love him, I am afraid someone else is going to hurt him.

> > >   > > > > I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

> > > > > > -- > Kate Myers> Travel Desk> 773.904.8267 V> 773.698.8184 F

>

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

[Guest guest]

No one seems to be able to help. Zackery not only goes for the arms but also the

head, neck, and throat. It is not easy at my house. I have a bipolar son with

cerebral palsy.

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> > > I am raising my 10 year old grandson. He is sometimes very agressive. I

> > have not been able to potty train him. I feel somedays that it is too much

> > for me. Then I look at him and see him do something sweet and He has me

> > wrapped around his little finger. I feel so confused. My husband and I are

> > both physically ill and there is no one else to raise him. We both have claw

> > marks and bites. Anyone else have this going on in there house?

> > >

> > >

> > >

> > >

> > >

> > > --

> > > Kate Myers

> > > Travel Desk

> > > 773.904.8267 V

> > > 773.698.8184 F

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> >

> >

> >

>

>

>

> --

> Kate Myers

> Travel Desk

> 773.904.8267 V

> 773.698.8184 F

>

[Guest guest]

That is good advice. I also suggest a long sleeve heavy coat. my grandson is now 18 and he went through that at that age. does he show signs when he is going to become aggressive? With Karac, I would put on my coat and gloves at the first sign. I felt more confident to help him. some things that helped him were: going to his room and wrapping in a blanket, taking an Epson Salt bath, listening to music, eating a comfort food. He liked granny apples and I kept one handy for him to bite on instead of my arm. I also used Clonidine. I would crush a half tablet and put it in a sippy cup of water and it would take effect within 20 minutes. Also, if I could get him to start counting it helped to move him away from the emotional part of his brain to the cognitive side. I have a strong belief in prayer and I taught Karac to pray, "God help me to be calm". I did these things over a period of years, After about three years there was significant improvement. Finally, Karac learned to recognize for himself what he needed to do to avoid becoming aggressive. He will ask for one of the things that he needs to calm himself down.It has been worth all the effort. The other day he said,"Grandmother, you are my best friend.I understand, I have been there. Blessings, Pat K Kuenstler, Ph.DOn Jul 10, 2011, at 8:33 PM, Kate Myers <katemyersny@...> wrote:

1st step - get oven mitts / gloves. When agrression starts, out the oven mitts on and protect yourself. You will be able to handle the aggression and tantrum much better when you are not in physical pain. My . arms were tore up for a year - scratching, pinching, bitting.

2 - get tetnus shots

Is your grand son on medication? Some meds can intensify aggression.

Clonodine helped lessen my son's aggression and anxiety.

Do you have respit care?

Where do you live?

Kate

On Sun, Jul 10, 2011 at 8:28 PM, camper356872003 <camper3568@...> wrote:

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

[Guest guest]

All except the Clonidine, and too much of that caused problems. I only used that per need. Karac has been off of all Meds for several years. Kuenstler, Ph.DOn Jul 10, 2011, at 8:47 PM, drissia wright <ritzywright@...> wrote:

Kate,

Good advice. I never thought of oven mitts. What meds tend to make aggression worse?

Drissia

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

[Guest guest]

My son is 11 and we're old enough to be his grandparents! It's exhausting. He doesn't bite or claw, but sometimes has melt downs and is difficult to deal with. He is incontinent at night still and wears a pull up if we remind him and follow-up. But we are in a week or more process of cleaning a futon that he peed on about 4 nights ago because we locked him out of our room and that was the closest place to us for him to sleep.

Is your son in any kind of therapy?

Jane

any autistic grandparents

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I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

[Guest guest]

My son is 11 and we're old enough to be his grandparents! It's exhausting. He doesn't bite or claw, but sometimes has melt downs and is difficult to deal with. He is incontinent at night still and wears a pull up if we remind him and follow-up. But we are in a week or more process of cleaning a futon that he peed on about 4 nights ago because we locked him out of our room and that was the closest place to us for him to sleep.

Is your son in any kind of therapy?

Jane

any autistic grandparents

ere house? ------=_NextPart_000_0032_01CC3F96.FB0BCA80 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: 7bit

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

[Guest guest]

By the way, my son became more aggressive with big mood swings at 10. I came to the conclusion it was due to hormones because many of my friends 10 y/o boys were or had gone through the same thing. He's 12 now and seems more adjusted.

any autistic grandparents

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

[Guest guest]

yes he has been in therapy since the age of 3.

>

> My son is 11 and we're old enough to be his grandparents! It's exhausting.

He doesn't bite or claw, but sometimes has melt downs and is difficult to deal

with. He is incontinent at night still and wears a pull up if we remind him and

follow-up. But we are in a week or more process of cleaning a futon that he

peed on about 4 nights ago because we locked him out of our room and that was

the closest place to us for him to sleep.

>

> Is your son in any kind of therapy?

>

> Jane

> any autistic grandparents

>

>

> ere house? ------=_NextPart_000_0032_01CC3F96.FB0BCA80 Content-Type:

text/html; charset= " iso-8859-1 " Content-Transfer-Encoding: 7bit

> I am raising my 10 year old grandson. He is sometimes very agressive. I have

not been able to potty train him. I feel somedays that it is too much for me.

Then I look at him and see him do something sweet and He has me wrapped around

his little finger. I feel so confused. My husband and I are both physically ill

and there is no one else to raise him. We both have claw marks and bites. Anyone

else have this going on in there house?

>

[Guest guest]

thanks for a hope of a better future.

>

> By the way, my son became more aggressive with big mood swings at 10. I came

to the conclusion it was due to hormones because many of my friends 10 y/o boys

were or had gone through the same thing. He's 12 now and seems more adjusted.

>

>

> any autistic grandparents

>

>

>

> I am raising my 10 year old grandson. He is sometimes very agressive. I have

not been able to potty train him. I feel somedays that it is too much for me.

Then I look at him and see him do something sweet and He has me wrapped around

his little finger. I feel so confused. My husband and I are both physically ill

and there is no one else to raise him. We both have claw marks and bites. Anyone

else have this going on in there house?

>

[Guest guest]

thanks for a hope of a better future.

>

> By the way, my son became more aggressive with big mood swings at 10. I came

to the conclusion it was due to hormones because many of my friends 10 y/o boys

were or had gone through the same thing. He's 12 now and seems more adjusted.

>

>

> any autistic grandparents

>

>

>

> I am raising my 10 year old grandson. He is sometimes very agressive. I have

not been able to potty train him. I feel somedays that it is too much for me.

Then I look at him and see him do something sweet and He has me wrapped around

his little finger. I feel so confused. My husband and I are both physically ill

and there is no one else to raise him. We both have claw marks and bites. Anyone

else have this going on in there house?

>

[Guest guest]

How did you manage to get him off of meds? My son is on meds for aggressive behavior and it is driving me nuts. Can't distinguish between the side effects of the meds and other causes for behaviors. He is 19 and only been on them for a year. I would like to see him come off of them, but don't know how to accomplish this. Just wondering if there were particular meds that made the behavior escalate. My son is taking abilify, klonopin, amantadine for the side effects of the abilify. And some nutritional supplements. He is iron and vit d deficient.

Thanks,

D.

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

[Guest guest]

Abilify made Karac so aggressive that we had to hospitalize him. After he developed TD from Risperdol, we took him off all Meds except the Clonidine whic h I gave him per need until finally he didn't need anything. There were a lot of Epson salt baths in the process, and it took several years. Kuenstler, Ph.DOn Jul 11, 2011, at 8:56 AM, drissia wright <ritzywright@...> wrote:

How did you manage to get him off of meds? My son is on meds for aggressive behavior and it is driving me nuts. Can't distinguish between the side effects of the meds and other causes for behaviors. He is 19 and only been on them for a year. I would like to see him come off of them, but don't know how to accomplish this. Just wondering if there were particular meds that made the behavior escalate. My son is taking abilify, klonopin, amantadine for the side effects of the abilify. And some nutritional supplements. He is iron and vit d deficient.

Thanks,

D.

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F

[Guest guest]

Thanks.

I am raising my 10 year old grandson. He is sometimes very agressive. I have not been able to potty train him. I feel somedays that it is too much for me. Then I look at him and see him do something sweet and He has me wrapped around his little finger. I feel so confused. My husband and I are both physically ill and there is no one else to raise him. We both have claw marks and bites. Anyone else have this going on in there house?

-- Kate MyersTravel Desk773.904.8267 V773.698.8184 F