Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Wow ! What great news about Maggie! You must be so proud! Marcia Mom to Sara (DS) and 6 and Lucas 10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 That is wonderful news about Maggie. She sounds like she is doing wonderful!!! Keep up the great work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 WOW ! That's really great !! I hope Annemieke does that well next fall. mom to twins Annemeike (ds) and Areille -----Original Message-----From: smstauffer [mailto:smstauffer@...]Sent: Thursday, October 11, 2001 10:02 PMMultiples-DS Subject: Shamelss bragging Hi Everyone, Have any of you ever tried talking about the accomplishments of your children with someone who doesn't have a child with Ds, and they just sort of look at you or smile but you can tell they don't really see the big deal in it? Well I have and that is why I love this list cause I feel like I can "brag" and you all know how exciting and what a sense of relief every accomplishment is. Here is my "brag" today. Maggie is transitioning from the Early Intervention program into the public school system due to her 3rd birthday in a couple of weeks. Part of the change involves a physce. eval. Well, Maggie met with this doctor who is apparently a big deal in Massachusetts. She is the leading child phycologist. Anyway, I always have some trepidation when Maggie meets new people cause she can either be nice Maggie or she can be difficult Maggie. You never really know what she is going to do. Anyway she was wonderful. She was doing things I didn't even know she could do. She matched all her colors and shapes. She even counted to 3! When I received the report amongst alot of mumbo-jumbo, this woman, who has seen hundreds, perhaps thousands of children with Down syndrome, wrote that Maggie was the highest functioning child with Down syndrome that she has ever evaluated. She went on to say that if it weren't for the speech delay, Maggie would not score as mentally retarded. I am so amazed and happy and hopeful. I attribute Maggie's success to have a twin. I really think our kids have such a huge advantage having an exact age sibling to model behaivor...sometimes good and bad. Thanks for letting me have a place to share this stuff! Quinn age 5, Sara and Maggie almost 3, and Teddy 11 months http://DSyndrome.com/Multiples Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 WOW! That is EXCELLENTTTTTTTTTTTT!!!!!!!!!!!! WAY TO GO MAGS!!!!!!!! I have to admit... when I read that she matched shapes and colors and counted to 3 I went " HOLY COW! That's awesome! " And that holy cow was meant to mean that is awesome for anyone just turning 3! Extra chromo or not! Mags is one fabulous gal!! As for the nice Maggie or the difficult Maggie... I had to laugh. Martha Beck presented an AMAZING speech at the 2000 NDSS Conference on this same situation with her son. When he was about 6 year old (if my memory serves me correctly), his school was placing him through these weekly tests. They'd hold up super easy cards of a picture of a ball or truck and ask him what it was. As they went on the tests got harder and when he could no longer answer the question, they gave him a can of sprite and allowed him to play. Well, he is no fool... he figured this out.. and one day when Martha and him sat down with the " professional " to test him, he sat with a blank look on his face, mouth wide open, with a pitiful " I dunno " look on his face. The women held up a picture of a ball and asked him " what's this? " ... " cat " he said. " WHAT?! " a freaked Martha replied, " You know what that is! " And the test went on, and her son continued to play " dumb. " So after a minute the women gave him his soda and sent him to play. He turned around gave Martha a BIG smile like " ha! got them! " and went off to play. Martha tried to convince the women that he was faking... that he did know the answers... but she wrote down on the chart " mother in denial " instead. ROTFLMAO... I love our kids' antics! And, I agree with you. Having a twin does help! Fer sure! Again, CONGRATS Mags! You show 'em girl! You sure did make my day! Cheers! Sara --On Thursday, October 11, 2001, 10:01 PM -0400 smstauffer <smstauffer@...> wrote: > > Hi Everyone, > > > Have any of you ever tried talking about the accomplishments of your > children with someone who doesn't have a child with Ds, and they just > sort of look at you or smile but you can tell they don't really see the > big deal in it? Well I have and that is why I love this list cause I > feel like I can " brag " and you all know how exciting and what a sense of > relief every accomplishment is. > > Here is my " brag " today. Maggie is transitioning from the Early > Intervention program into the public school system due to her 3rd > birthday in a couple of weeks. Part of the change involves a physce. > eval. Well, Maggie met with this doctor who is apparently a big deal in > Massachusetts. She is the leading child phycologist. Anyway, I always > have some trepidation when Maggie meets new people cause she can either > be nice Maggie or she can be difficult Maggie. You never really know > what she is going to do. Anyway she was wonderful. She was doing things > I didn't even know she could do. She matched all her colors and shapes. > She even counted to 3! > > When I received the report amongst alot of mumbo-jumbo, this woman, who > has seen hundreds, perhaps thousands of children with Down syndrome, > wrote that Maggie was the highest functioning child with Down syndrome > that she has ever evaluated. She went on to say that if it weren't for > the speech delay, Maggie would not score as mentally retarded. I am so > amazed and happy and hopeful. I attribute Maggie's success to have a > twin. I really think our kids have such a huge advantage having an exact > age sibling to model behaivor...sometimes good and bad. > > Thanks for letting me have a place to share this stuff! > > > Quinn age 5, Sara and Maggie almost 3, and Teddy 11 months > > > > > > > > http://DSyndrome.com/Multiples > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 WTG Maggie!!! How exciting!! You must be so proud . Keep up the good work. Judi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 , That is great news about Maggie. While all our children will most likely have different level of functioning, we should remember never to give up on our dreams for them. In fact I have even started a college trust fund for Tyler, I know that once he is in high school I will have to determine wether he actually has the potential to spend the money on something else for him before he is 18. The more I read and surf the net these days the more I find of children with DS going to college and earning degrees. I believe in the future this will be a much more common occurance. Which leads to our next push of advocacy in helping our children get the jobs they deserve based on their education and not be tossed to the side by employers because they can't get past they fact our children look different because of Down Syndrome. Enough of my future thinking. Katy Touve mom to 4yrs, and Tyler(DS) 23months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 WOW , that is wonderful news! You and your husband must be grining from ear to ear! Go WOW them in pre-school Maggie!! Gail........Bobby 7 1/2, Jillian 5, and Tara{Ds} 30 months Quote Link to comment Share on other sites More sharing options...
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