Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 WOW! GREAT NEWS TYLER !!! Way to go! He's ready to take-off on his own pretty soon! Sorry to hear about 's " delay. " A lot of children go through this, she is probably just a late talker. I bet when she does start talking you'll never be able to stop her! Welcome back Katy! Sara --On Monday, July 30, 2001, 1:06 AM +0000 Katy Touve <ktouve@...> wrote: > It has been a while since I have posted much since going back to > work last Feb. I have been very busy with work, kids, house hold > chores, and the National Guard. > > The good news is that I will not be going on deployment to Bosnia > in Sep 01. The bad news is that I got out of going because I now > have to put Tylers twin sister in to speech therapy. The > county thought her delay was due to all the ear infections she had > her first year and that should have caught up very quickly once > she got the tubes (Dec 00). Well she is still has not caught up, > she has about a 25% delay in verbal skills. At 20 months she is > evaluated at about 13 months in verbal skills. > > Well for Tyler, has been cruising for quiet awhile now, had can > walk all over the neighborhood with his walker. He will also take > five to ten steps all by himself he also gets into standing positions > and stand for about 30seconds before he loses his balance and sits > down. Two weeks ago the county and I convinced the daycare center > to move him in with the toddlers even though he is not walking > independently. It has been such a success, they daycare center > was so surprised that he fit right in all the other toddlers. It > probably helps that his sister is in there, but the good news is that > he is always trying to walk, he does get tired easily. I guess being > with children that do nothing but walk is making him want to try > harder to walk. > > Today Tyler stood up to dance to music with his big brother and > sister. He stood for at least a minute dancing is heart out. He > was so happy with himself. He should off this skill not just to > my hubby and me but to grandma and grandpa, they were very excited > to. > > Katy Touve > mom to 4yr and twins and Tyler(DS) > > > > http://DSyndrome.com/Multiples > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 's twin also has a significant speech delay. At 18 months only had about 3 words that he'd say reliably. They're 26 months now and the speech therapy helped quite a bit and now we don't have to go back until November for a re-evaluation (for him, that is; her ST is continuing). He's still fairly unintelligible, though, and it's very difficult to get him to mimic words or sounds. He does have all the inflection and intent to speak, we just don't hear any words in his babble. Does anyone else have a non-DS twin with a speech delay? They keep telling me it's a twin thing and not because of 's DS but I know other twins that don't have this significant a delay. Leigh > Re: Tyler's Milestones > > > > WOW! GREAT NEWS TYLER !!! Way to go! He's ready to take-off on his own > pretty soon! > > Sorry to hear about 's " delay. " A lot of children go through this, > she is probably just a late talker. I bet when she does start talking > you'll never be able to stop her! > > Welcome back Katy! > > Sara > > --On Monday, July 30, 2001, 1:06 AM +0000 Katy Touve <ktouve@...> > wrote: > > > It has been a while since I have posted much since going back to > > work last Feb. I have been very busy with work, kids, house hold > > chores, and the National Guard. > > > > The good news is that I will not be going on deployment to Bosnia > > in Sep 01. The bad news is that I got out of going because I now > > have to put Tylers twin sister in to speech therapy. The > > county thought her delay was due to all the ear infections she had > > her first year and that should have caught up very quickly once > > she got the tubes (Dec 00). Well she is still has not caught up, > > she has about a 25% delay in verbal skills. At 20 months she is > > evaluated at about 13 months in verbal skills. > > > > Well for Tyler, has been cruising for quiet awhile now, had can > > walk all over the neighborhood with his walker. He will also take > > five to ten steps all by himself he also gets into standing positions > > and stand for about 30seconds before he loses his balance and sits > > down. Two weeks ago the county and I convinced the daycare center > > to move him in with the toddlers even though he is not walking > > independently. It has been such a success, they daycare center > > was so surprised that he fit right in all the other toddlers. It > > probably helps that his sister is in there, but the good news is that > > he is always trying to walk, he does get tired easily. I guess being > > with children that do nothing but walk is making him want to try > > harder to walk. > > > > Today Tyler stood up to dance to music with his big brother and > > sister. He stood for at least a minute dancing is heart out. He > > was so happy with himself. He should off this skill not just to > > my hubby and me but to grandma and grandpa, they were very excited > > to. > > > > Katy Touve > > mom to 4yr and twins and Tyler(DS) > > > > > > > > http://DSyndrome.com/Multiples > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 Katy, That is exciting news about Tyler being so close to independent walking. I'm getting excited for to make that leap too, and boy is she trying!! Ever since her surgery she is so much more energetic, pulling up on everything and occasionally letting go and standing for a few seconds. She was fit for orthotics last week, so when those come in her therapists think in won't be goo long until she is hot on 's trail, walking all around. Let me know how it goes for Tyler! Casey, mom to (DS) and , 20mo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Way to go Tyler!! I know you must be sooo proud of him!! Sounds like your going to be chasing after him before long. My Landon is quite the dancer too. The more we clap and laugh, the bigger show he puts on. He is definitely a HAM! mom to Landon (Ds) and Ashton - 3 years --- Katy Touve <ktouve@...> wrote: > It has been a while since I have posted much since > going back to > work last Feb. I have been very busy with work, > kids, house hold > chores, and the National Guard. > > The good news is that I will not be going on > deployment to Bosnia > in Sep 01. The bad news is that I got out of going > because I now > have to put Tylers twin sister in to speech > therapy. The > county thought her delay was due to all the ear > infections she had > her first year and that should have caught up very > quickly once > she got the tubes (Dec 00). Well she is still has > not caught up, > she has about a 25% delay in verbal skills. At 20 > months she is > evaluated at about 13 months in verbal skills. > > Well for Tyler, has been cruising for quiet awhile > now, had can > walk all over the neighborhood with his walker. He > will also take > five to ten steps all by himself he also gets into > standing positions > and stand for about 30seconds before he loses his > balance and sits > down. Two weeks ago the county and I convinced the > daycare center > to move him in with the toddlers even though he is > not walking > independently. It has been such a success, they > daycare center > was so surprised that he fit right in all the other > toddlers. It > probably helps that his sister is in there, but the > good news is that > he is always trying to walk, he does get tired > easily. I guess being > with children that do nothing but walk is making him > want to try > harder to walk. > > Today Tyler stood up to dance to music with his big > brother and > sister. He stood for at least a minute dancing is > heart out. He > was so happy with himself. He should off this skill > not just to > my hubby and me but to grandma and grandpa, they > were very excited > to. > > Katy Touve > mom to 4yr and twins and Tyler(DS) > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Katy and Leigh Abbi also has a significant speech delay. She has been in therapy for a year now. It was awhile before I could convince the therapist (who saw her twin ) that she had a speech delay. I had her hearing checked and she had a mild to moderate hearing loss. The Audiologist believes that it is also from all the ear infections she had the first year. Abbi has responded with speech therapy very nicely. But now our insurance is saying that they will only cover 1000.00 and that is it per year. Since she does not have Ds then they will not authorize her to have any more therapy until next year. It makes me so mad seeing her come so far and then have to stop. Sorry to ramble on that is my soap box this week. Thanks for listening. Kim mom to Abbi and Ds - 3 1/2 and Mikayla - 6 Re: Tyler's Milestones > > > > > > > > WOW! GREAT NEWS TYLER !!! Way to go! He's ready to take-off on his own > > pretty soon! > > > > Sorry to hear about 's " delay. " A lot of children go through this, > > she is probably just a late talker. I bet when she does start talking > > you'll never be able to stop her! > > > > Welcome back Katy! > > > > Sara > > > > --On Monday, July 30, 2001, 1:06 AM +0000 Katy Touve <ktouve@...> > > wrote: > > > > > It has been a while since I have posted much since going back to > > > work last Feb. I have been very busy with work, kids, house hold > > > chores, and the National Guard. > > > > > > The good news is that I will not be going on deployment to Bosnia > > > in Sep 01. The bad news is that I got out of going because I now > > > have to put Tylers twin sister in to speech therapy. The > > > county thought her delay was due to all the ear infections she had > > > her first year and that should have caught up very quickly once > > > she got the tubes (Dec 00). Well she is still has not caught up, > > > she has about a 25% delay in verbal skills. At 20 months she is > > > evaluated at about 13 months in verbal skills. > > > > > > Well for Tyler, has been cruising for quiet awhile now, had can > > > walk all over the neighborhood with his walker. He will also take > > > five to ten steps all by himself he also gets into standing positions > > > and stand for about 30seconds before he loses his balance and sits > > > down. Two weeks ago the county and I convinced the daycare center > > > to move him in with the toddlers even though he is not walking > > > independently. It has been such a success, they daycare center > > > was so surprised that he fit right in all the other toddlers. It > > > probably helps that his sister is in there, but the good news is that > > > he is always trying to walk, he does get tired easily. I guess being > > > with children that do nothing but walk is making him want to try > > > harder to walk. > > > > > > Today Tyler stood up to dance to music with his big brother and > > > sister. He stood for at least a minute dancing is heart out. He > > > was so happy with himself. He should off this skill not just to > > > my hubby and me but to grandma and grandpa, they were very excited > > > to. > > > > > > Katy Touve > > > mom to 4yr and twins and Tyler(DS) > > > > > > > > > > > > http://DSyndrome.com/Multiples > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 We were very fortunate to have an ENT in the area who sees quite a few of the kids with DS here and he is very willing to put in tubes at a young age. Both kids had tubes at about 11 months and haven't had (m)any problems with their ears since then. They had their hearing tested before and after the tubes and there was a good bit of difference. ( (DS) actually didn't get a good reading on the audiology test but they did an ABR while they had her sedated and found that she was on the low side of the normal range for hearing.) My older son didn't get tubes until he was 2 and his speech wasn't so much delayed as unintelligible. Not bad enough to require speech therapy (of course), but the grandparents had a hard time understanding him until he was about 5. It seems the key to getting things covered by insurance is knowing how to code it. Anything " developmental " will raise a red flag but things like " hypotonia " or " dysphagia " or " aphasia " seem to get by. I've gotten to know the referral coordinator at the pediatrician's office very well in the past two years! Leigh > Re: Tyler's Milestones > > > Katy and Leigh > Abbi also has a significant speech delay. She has been in therapy > for a year > now. It was awhile before I could convince the therapist (who saw her twin > ) that she had a speech delay. I had her hearing checked > and she had a > mild to moderate hearing loss. The Audiologist believes that it > is also from > all the ear infections she had the first year. Abbi has responded with > speech therapy very nicely. But now our insurance is saying that they will > only cover 1000.00 and that is it per year. Since she does not > have Ds then > they will not authorize her to have any more therapy until next year. It > makes me so mad seeing her come so far and then have to stop. > > Sorry to ramble on that is my soap box this week. Thanks for listening. > > Kim mom to Abbi and Ds - 3 1/2 and Mikayla - 6 > Re: Tyler's Milestones > > > > > > > > > > > > WOW! GREAT NEWS TYLER !!! Way to go! He's ready to take-off on his own > > > pretty soon! > > > > > > Sorry to hear about 's " delay. " A lot of children go through > this, > > > she is probably just a late talker. I bet when she does start talking > > > you'll never be able to stop her! > > > > > > Welcome back Katy! > > > > > > Sara > > > > > > --On Monday, July 30, 2001, 1:06 AM +0000 Katy Touve > <ktouve@...> > > > wrote: > > > > > > > It has been a while since I have posted much since going back to > > > > work last Feb. I have been very busy with work, kids, house hold > > > > chores, and the National Guard. > > > > > > > > The good news is that I will not be going on deployment to Bosnia > > > > in Sep 01. The bad news is that I got out of going because I now > > > > have to put Tylers twin sister in to speech therapy. The > > > > county thought her delay was due to all the ear infections she had > > > > her first year and that should have caught up very quickly once > > > > she got the tubes (Dec 00). Well she is still has not caught up, > > > > she has about a 25% delay in verbal skills. At 20 months she is > > > > evaluated at about 13 months in verbal skills. > > > > > > > > Well for Tyler, has been cruising for quiet awhile now, had can > > > > walk all over the neighborhood with his walker. He will also take > > > > five to ten steps all by himself he also gets into standing > positions > > > > and stand for about 30seconds before he loses his balance and sits > > > > down. Two weeks ago the county and I convinced the daycare center > > > > to move him in with the toddlers even though he is not walking > > > > independently. It has been such a success, they daycare center > > > > was so surprised that he fit right in all the other toddlers. It > > > > probably helps that his sister is in there, but the good > news is that > > > > he is always trying to walk, he does get tired easily. I > guess being > > > > with children that do nothing but walk is making him want to try > > > > harder to walk. > > > > > > > > Today Tyler stood up to dance to music with his big brother and > > > > sister. He stood for at least a minute dancing is heart out. He > > > > was so happy with himself. He should off this skill not just to > > > > my hubby and me but to grandma and grandpa, they were very excited > > > > to. > > > > > > > > Katy Touve > > > > mom to 4yr and twins and Tyler(DS) > > > > > > > > > > > > > > > > http://DSyndrome.com/Multiples > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Maggie and tubes and ears are such an ongoing saga in my life. She never has an ear infection but at 12 months she had tubes put in due to a flat tympanagram cause of all the fluid. Finally a year and 1/2 later they take the tubes out. When I took for a hearing test, she has fluid. Friday she is getting new tubes put in! I am sad because she has lost so much time hearing and therefore aquiring language. Cross fingers that these next tubes do it! Re: Tyler's Milestones > > > > > > > > > > > > > > > > WOW! GREAT NEWS TYLER !!! Way to go! He's ready to take-off on his own > > > > pretty soon! > > > > > > > > Sorry to hear about 's " delay. " A lot of children go through > > this, > > > > she is probably just a late talker. I bet when she does start talking > > > > you'll never be able to stop her! > > > > > > > > Welcome back Katy! > > > > > > > > Sara > > > > > > > > --On Monday, July 30, 2001, 1:06 AM +0000 Katy Touve > > <ktouve@...> > > > > wrote: > > > > > > > > > It has been a while since I have posted much since going back to > > > > > work last Feb. I have been very busy with work, kids, house hold > > > > > chores, and the National Guard. > > > > > > > > > > The good news is that I will not be going on deployment to Bosnia > > > > > in Sep 01. The bad news is that I got out of going because I now > > > > > have to put Tylers twin sister in to speech therapy. The > > > > > county thought her delay was due to all the ear infections she had > > > > > her first year and that should have caught up very quickly once > > > > > she got the tubes (Dec 00). Well she is still has not caught up, > > > > > she has about a 25% delay in verbal skills. At 20 months she is > > > > > evaluated at about 13 months in verbal skills. > > > > > > > > > > Well for Tyler, has been cruising for quiet awhile now, had can > > > > > walk all over the neighborhood with his walker. He will also take > > > > > five to ten steps all by himself he also gets into standing > > positions > > > > > and stand for about 30seconds before he loses his balance and sits > > > > > down. Two weeks ago the county and I convinced the daycare center > > > > > to move him in with the toddlers even though he is not walking > > > > > independently. It has been such a success, they daycare center > > > > > was so surprised that he fit right in all the other toddlers. It > > > > > probably helps that his sister is in there, but the good > > news is that > > > > > he is always trying to walk, he does get tired easily. I > > guess being > > > > > with children that do nothing but walk is making him want to try > > > > > harder to walk. > > > > > > > > > > Today Tyler stood up to dance to music with his big brother and > > > > > sister. He stood for at least a minute dancing is heart out. He > > > > > was so happy with himself. He should off this skill not just to > > > > > my hubby and me but to grandma and grandpa, they were very excited > > > > > to. > > > > > > > > > > Katy Touve > > > > > mom to 4yr and twins and Tyler(DS) > > > > > > > > > > > > > > > > > > > > http://DSyndrome.com/Multiples > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 just had another hearing test today, she has no hearing loss, thank goodness. She start speech therapy at the end of AUG. Well it is nice to know that some insurance companies pay for your childrens therapy. Apparently my HMO does not pay for anything at least as far as I have been able to find out. Katy Touve mom to 4yrs and twins and Tyler(DS) 20months > > > > > > > It has been a while since I have posted much since going back to > > > > work last Feb. I have been very busy with work, kids, house hold > > > > chores, and the National Guard. > > > > > > > > The good news is that I will not be going on deployment to Bosnia > > > > in Sep 01. The bad news is that I got out of going because I now > > > > have to put Tylers twin sister in to speech therapy. The > > > > county thought her delay was due to all the ear infections she had > > > > her first year and that should have caught up very quickly once > > > > she got the tubes (Dec 00). Well she is still has not caught up, > > > > she has about a 25% delay in verbal skills. At 20 months she is > > > > evaluated at about 13 months in verbal skills. > > > > > > > > Well for Tyler, has been cruising for quiet awhile now, had can > > > > walk all over the neighborhood with his walker. He will also take > > > > five to ten steps all by himself he also gets into standing positions > > > > and stand for about 30seconds before he loses his balance and sits > > > > down. Two weeks ago the county and I convinced the daycare center > > > > to move him in with the toddlers even though he is not walking > > > > independently. It has been such a success, they daycare center > > > > was so surprised that he fit right in all the other toddlers. It > > > > probably helps that his sister is in there, but the good news is that > > > > he is always trying to walk, he does get tired easily. I guess being > > > > with children that do nothing but walk is making him want to try > > > > harder to walk. > > > > > > > > Today Tyler stood up to dance to music with his big brother and > > > > sister. He stood for at least a minute dancing is heart out. He > > > > was so happy with himself. He should off this skill not just to > > > > my hubby and me but to grandma and grandpa, they were very excited > > > > to. > > > > > > > > Katy Touve > > > > mom to 4yr and twins and Tyler(DS) > > > > > > > > > > > > > > > > http://DSyndrome.com/Multiples > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 Katy: Since has a delay requiring therapy, and she's over 3 years old, why doesn't your school district provide services for her??? Just curious. Judi --- Katy Touve <ktouve@...> wrote: > just had another hearing test today, she has > no hearing > loss, thank goodness. She start speech therapy at > the end of > AUG. Well it is nice to know that some insurance > companies pay > for your childrens therapy. Apparently my HMO does > not pay for > anything at least as far as I have been able to find > out. > > Katy Touve > mom to 4yrs and twins and Tyler(DS) > 20months > > > > > > > > > > > It has been a while since I have posted much > since going back > to > > > > > work last Feb. I have been very busy with > work, kids, house > hold > > > > > chores, and the National Guard. > > > > > > > > > > The good news is that I will not be going on > deployment to > Bosnia > > > > > in Sep 01. The bad news is that I got out > of going because I > now > > > > > have to put Tylers twin sister in to > speech therapy. > The > > > > > county thought her delay was due to all the > ear infections she > had > > > > > her first year and that should have caught > up very quickly > once > > > > > she got the tubes (Dec 00). Well she is > still has not caught > up, > > > > > she has about a 25% delay in verbal skills. > At 20 months she > is > > > > > evaluated at about 13 months in verbal > skills. > > > > > > > > > > Well for Tyler, has been cruising for quiet > awhile now, had > can > > > > > walk all over the neighborhood with his > walker. He will also > take > > > > > five to ten steps all by himself he also > gets into standing > positions > > > > > and stand for about 30seconds before he > loses his balance and > sits > > > > > down. Two weeks ago the county and I > convinced the daycare > center > > > > > to move him in with the toddlers even though > he is not walking > > > > > independently. It has been such a success, > they daycare > center > > > > > was so surprised that he fit right in all > the other toddlers. > It > > > > > probably helps that his sister is in there, > but the good news > is that > > > > > he is always trying to walk, he does get > tired easily. I > guess being > > > > > with children that do nothing but walk is > making him want to > try > > > > > harder to walk. > > > > > > > > > > Today Tyler stood up to dance to music with > his big brother > and > > > > > sister. He stood for at least a minute > dancing is heart out. > He > > > > > was so happy with himself. He should off > this skill not just > to > > > > > my hubby and me but to grandma and grandpa, > they were very > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 Katy, I agree with Judi. I would contact your school district. Here in South Carolina, the school district has to provide it. Several families who have children in a private school bring their children into the school where I work for speech therapy. I don't think our school district is liable for transportation for these kids but they do have to provide the therapy. I would think it would be the same in all states. I would call Special Services in my school district and ask. It sure can't hurt. Let us know what happens if you contact them. I would be curious to know if it is the law in all states. mom to Landon (Ds) and Ashton 3 years --- Judi Grossman <judig2@...> wrote: > Katy: Since has a delay requiring therapy, > and she's over 3 years old, why doesn't your school > district provide services for her??? Just curious. > > Judi > --- Katy Touve <ktouve@...> wrote: > > just had another hearing test today, she > has > > no hearing > > loss, thank goodness. She start speech therapy at > > the end of > > AUG. Well it is nice to know that some insurance > > companies pay > > for your childrens therapy. Apparently my HMO > does > > not pay for > > anything at least as far as I have been able to > find > > out. > > > > Katy Touve > > mom to 4yrs and twins and Tyler(DS) > > 20months > > > > > > > > > > > > > > > It has been a while since I have posted > much > > since going back > > to > > > > > > work last Feb. I have been very busy with > > work, kids, house > > hold > > > > > > chores, and the National Guard. > > > > > > > > > > > > The good news is that I will not be going > on > > deployment to > > Bosnia > > > > > > in Sep 01. The bad news is that I got out > > of going because I > > now > > > > > > have to put Tylers twin sister in > to > > speech therapy. > > The > > > > > > county thought her delay was due to all > the > > ear infections she > > had > > > > > > her first year and that should have caught > > up very quickly > > once > > > > > > she got the tubes (Dec 00). Well she is > > still has not caught > > up, > > > > > > she has about a 25% delay in verbal > skills. > > At 20 months she > > is > > > > > > evaluated at about 13 months in verbal > > skills. > > > > > > > > > > > > Well for Tyler, has been cruising for > quiet > > awhile now, had > > can > > > > > > walk all over the neighborhood with his > > walker. He will also > > take > > > > > > five to ten steps all by himself he also > > gets into standing > > positions > > > > > > and stand for about 30seconds before he > > loses his balance and > > sits > > > > > > down. Two weeks ago the county and I > > convinced the daycare > > center > > > > > > to move him in with the toddlers even > though > > he is not walking > > > > > > independently. It has been such a > success, > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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