Re: Daughter has 2 birth children with trisomy 21

August 8, 2001

Welcome to the group Barb. My name is Mabel and I have a 28 months set of

triplets, g-b-g. My little one has down syndrome, a big surprise to us, my

pregnancy was monitored very closed and it wasn't until I saw a 6

hours after I had them when I found out she had ds. There is a lot of

families in here in the same situation your daughter and I are, you guys are

in the right place where you will find a lot of support, love and caring

people. Iam looking forward to hear more from you and your family.

Mabel, mom to Carolina, Cristian and a-ds (28 months)

>From: preston.5@...

>Reply-Multiples-DS

>Multiples-DS

>Subject: Daughter has 2 birth children with trisomy 21

>Date: Wed, 08 Aug 2001 20:08:10 -0000

>

>Hello everyone,

>

>I have been reading everyone's postings for several months now and

>you all seem to be just a wonderful group of young parents. I am the

>grandmother of 2 DS children, both born to my daughter who

>is 29. We have been wondering if there are any more people out there

>who have 2 or more birth DS children. The kids have been confirmed

>to have Trisomy 21. Mikayla just turned 4 in May and is the apple of

>my eye, and her little brother , will be 3 weeks old tomorrow.

>It really shocked us and was very traumatic to to find out

>tht little would also have DS. What bothers us the most is

>that he will also have to have open heart surgery like his sister

>Mikayla, which was a very traumatic time. She caught a hospital

>borne infection and was in the hospital for almost a month. My

>daughter who left her job as a Human Resource specialist at the

>Columbus, OH zoo will be getting access to the internet soon and I am

>sure she would like to correspond with everyone.

>

>God Bless,

>

>Barb

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

August 8, 2001

Welcome Barb.

My name is Pam and I have identical twins with DS. There is some more

parents on here with DS siblings like your daughters. I'm sure they will

post soon.

I hope your daughter is doing well and she gets to join soon.

Daughter has 2 birth children with trisomy 21

> Hello everyone,

>

> I have been reading everyone's postings for several months now and

> you all seem to be just a wonderful group of young parents. I am the

> grandmother of 2 DS children, both born to my daughter who

> is 29. We have been wondering if there are any more people out there

> who have 2 or more birth DS children. The kids have been confirmed

> to have Trisomy 21. Mikayla just turned 4 in May and is the apple of

> my eye, and her little brother , will be 3 weeks old tomorrow.

> It really shocked us and was very traumatic to to find out

> tht little would also have DS. What bothers us the most is

> that he will also have to have open heart surgery like his sister

> Mikayla, which was a very traumatic time. She caught a hospital

> borne infection and was in the hospital for almost a month. My

> daughter who left her job as a Human Resource specialist at the

> Columbus, OH zoo will be getting access to the internet soon and I am

> sure she would like to correspond with everyone.

>

> God Bless,

>

> Barb

>

> http://DSyndrome.com/Multiples

>

August 8, 2001

In a message dated 8/8/01 4:17:57 PM Eastern Daylight Time, preston.5@...

writes:

<< We have been wondering if there are any more people out there

who have 2 or more birth DS children. >>

Barb,

We are the parents of five children, the last two having DS.

we have a unique situation because our boys not only have trisomy 21 but they

also have a second chromosome disorder referred to as trisomy 9p.

Dylan is the older of the two(5 1/2)...the trisomy 21 is more dominant in him

than the secondary disorder-if you saw him you could tell he has down

syndrome.

Caleb (2), on the other hand, does not look anything like he has down

syndrome because the trisomy 9p seems more dominant in him than the tri.21.

However, both boys DO have ds! I guess it is just how the genes are affected

that causes them to be more like one thing than the other! Whew! confusing!

anyway, they are both doing very well and we are very thankful.

dylan has had behavior problems for years but seems to be making great

improvements lately!!!!!!!! He is actually beginning to act like a happy

little boy more andmore. And, Caleb just started walking!!!!!!!!

sorry so long,

good to have you aboard,

any questions, feel free to ask.....

Peggy mom to monica 17, jordan 14, tyler 11, dylan 5 1/2 and caleb 2

August 8, 2001

Hi Barb,

I have 2 children with Trisomy 21. They are my youngest 2 girls. Emma is 5

and Nicki is 4 (nearly 14 months apart). I had no idea that either would

have Ds as we opted not to have prenatal testing apart from the ultrasounds.

Nothing was ever detected. At first we were very angry and devastated that

Nicki had Ds also but now it doesn't seem to matter. She is who she is and

fantastic with it. Emma and Nicki are the best of friends and I think they

are so lucky to have each other. Even now they are never apart and always

play together. They also seem to have their own language and share jokes

with each other that the rest of the family don't understand - a bit like

twins I guess.

I am sorry to hear that with need surgery and pray that everything

goes well. Nicki was in NICU and SCUBU for 8 weeks and had heart surgery

for a PDA when she was 6 weeks old. It was a very traumatic time but now

seems like a distant memory.

You are both very welcome to email me if you like on tcsykes@...

We have a website but I don't know what condition it is in at the moment.

Geocities is having some trouble with hosting and has lost some websites.

Here's the link below anyway and it tells our story of how things were way

back when and how we felt about Emma and Nicki being born with Ds.

Carolyn

Mum to on, , Emma (Ds) and Nicki (Ds)

www.geocities.com/nz_mom/sykesfamily.html