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Katy, you just told " my " story as well!! The only differences, Tara was

born with Ds, not . Tara was 6lbs 12oz, was 6lbs 7oz. Nothing

ever showed up on any of the multiple ultrasounds either, and I'm an

x-ray technologist, so my ultrasound friends did an even more through

" look " while scanning me. I specifically asked about Ds too!! Go figure?

I too was 36 while pregnant, and still 36 at delievery. I also didn't

have the AFP done for the exact reasons you mentioned! Plus we already

have two other children, and just hoping we have the same, two more

healthy children. Also, my mother had her last child at 40, my little

sister , so I thought that would be in the " cards " for me as

well. Also, Tara is enjoying good health, having a twin seems to have

been a great strength for her! She is 18 months now, and is cruzing the

furniture more and more now, she really is watching s every move!

I'm greatful that she is a twin! Thank God the only serious surgery

she/we had was insertion of bilateral ear tubes, which really isn't

serious stuff at all.

Gail.........Bobby 6 1/2, Jillian 4, and Tara {Ds} 18 months

>

> Torry,

>

> I had faternal boy/girl twins on 11/11/99. We did not do an AFP test

> since it was most likely to come back positive (due to age factor and

> because I was carring twins). We also decided not to do an Amio

> since the risk of miscarriage with twins was greater than the chance

> of one having Down Syndrome. At 20 weeks I had the first sonogram

> done, they looked for some markers but did not find anything

> noticable. Their weight was with in ounces of each other. Since

> twins is concidered high risk, I had sonograms every 4-5 weeks to make

> sure they were growing properly. In everyone of these sonograms

> except the last one two days before they were born their weight was

> within a couple of ounces of each other. On the last sonogram I was

> told the weights were 6lbs12ozs and 5lbs7ozs. When they were born

> they weighted 6lbs14ozs and 6lbs12ozs, I was later told that they were

> off on one due to a shorter femur, that was the one that was born with

> DS. Tyler had no other markers that they could find during any of the

> sonograms until the last one, and even then then did not suspect it.

> In fact all of his physical features are very mild, in fact, many

> people don't even realize he has DS unless I tell them since everyone

> asks why my son is so much smaller than his twin sister. I have had a

> couple of people who either have children or relatives with DS ask me.

> I was 36 when I got pregnant and was 37 when they were born. If I had

> been a little older I probably would have had an amio, since the risk

> of DS is greater than a miscarriage. There is also a new test that

> has a lower miscarriage rate and can be done earlier than an

> amio called a CVS. Looking back I am not sure if I would have changed

> anything about doing the test or not, I think I may have worried more

> about health problems the child could be born with thus making the

> pregnacy more trying.

>

> Katy mom to 31/2 and twins and Tyler(DS)

>

>

> > Hi, I'm currently doing research re Down's Syndrome with multiples.

> Am pregnant with fraternal twins right now, and looking for

> information regarding sonogram markers for Down's Syndrome and other

> potential birth defects.

> >

> > Torry

>

>

> http://DSyndrome.com/Multiples

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Hi Torry,

It is great you are connected with our group--please continue to keep us

informed about how your pregnancy is going and when you have your little ones.

I have Sara and who are 5-3/4. Sara has Down Syndrome, does

not.

I became pregnant with them when I was 42 and the doctor I was seeing

strongly encouraged amniocentisis--I had also had amniocentisis with my first

son, who is now almost 10.

It was when I went into have amnio that it was discovered I had twins. The

Dr. did not do the amnio test that day because of the position of the twins.

( I was thankful for her decision). Anyway, the next week amnio was

successfully performed and I found out the results less than 10 days later.

The Dr. reported that I would have a boy and a girl and that the girl would

have Down Syndrome. Knowing that terminating the pregnancy was not an

option, we then chose to have an inutero echocardiogram to look at our little

girl's heart (she did not have a heart defect) and to receive as much

information as we could about our baby girl.

Because of the information we had received and the time we had to prepare,

Sara and 's birth was a great celebration.

Sara is a joy to behold--we cannot imagine our lives without her.

Marcia

Mom to Sara (DS) and (5-3/4) and Lucas (almost 10)

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Torry, the only thing I can add to this is, to ask your Dr for a " level

3 ultrasound " thats what its called here in New Jersey. It is a more

sophisticated ultrasound, just to detect intricate " things " in

pregnancies. Usually found at a doctor's office who just treats " high

risk pregnancies " The ultrasonographer is highly trained as well. I'm

sorry, I forgot all your details of your pregnancy, but if you and your

dr do suspect, it's another avenue to try, without risk. Good-Luck!

Gail........Bobby 6 1/2, Jillian 4, and Tara{Ds} 18 months!

>

> Thank you, Gail, for your perspective. We also decided against the AFP

> because of the false-positive likelihood, and against an amnio because of

> the added risk with twins. As I mentioned before, we would not alter our

> course even if we are to learn that one of our unborn children has DS, so

> we'll just anxiously await their delivery.

>

> We'll continue to look for markers in our ultrasounds, although we

> understand there are many children with markers observed during ultrasounds

> who are later born healthy and without DS. As you can see from an earlier

> e-mail from Joyce, it seems just as likely to have a child without

> ultrasound markers who is found to have DS upon birth, so there is no

> " sure-fire " approach -- absent amnio/CVS -- to determine whether the

> presence of DS or other chromosomal abnormality prior to birth. We will

> just continue to say our prayers, and be thankful for healthy babies,

> whatever the outcome may be.

>

> Torry

>

> Re: Re: Doing Research

>

> > Katy, you just told " my " story as well!! The only differences, Tara was

> > born with Ds, not . Tara was 6lbs 12oz, was 6lbs 7oz. Nothing

> > ever showed up on any of the multiple ultrasounds either, and I'm an

> > x-ray technologist, so my ultrasound friends did an even more through

> > " look " while scanning me. I specifically asked about Ds too!! Go figure?

> > I too was 36 while pregnant, and still 36 at delievery. I also didn't

> > have the AFP done for the exact reasons you mentioned! Plus we already

> > have two other children, and just hoping we have the same, two more

> > healthy children. Also, my mother had her last child at 40, my little

> > sister , so I thought that would be in the " cards " for me as

> > well. Also, Tara is enjoying good health, having a twin seems to have

> > been a great strength for her! She is 18 months now, and is cruzing the

> > furniture more and more now, she really is watching s every move!

> > I'm greatful that she is a twin! Thank God the only serious surgery

> > she/we had was insertion of bilateral ear tubes, which really isn't

> > serious stuff at all.

> > Gail.........Bobby 6 1/2, Jillian 4, and Tara {Ds} 18 months

> >

> >

> >

> >

> >

> >

> > >

> > > Torry,

> > >

> > > I had faternal boy/girl twins on 11/11/99. We did not do an AFP test

> > > since it was most likely to come back positive (due to age factor and

> > > because I was carring twins). We also decided not to do an Amio

> > > since the risk of miscarriage with twins was greater than the chance

> > > of one having Down Syndrome. At 20 weeks I had the first sonogram

> > > done, they looked for some markers but did not find anything

> > > noticable. Their weight was with in ounces of each other. Since

> > > twins is concidered high risk, I had sonograms every 4-5 weeks to make

> > > sure they were growing properly. In everyone of these sonograms

> > > except the last one two days before they were born their weight was

> > > within a couple of ounces of each other. On the last sonogram I was

> > > told the weights were 6lbs12ozs and 5lbs7ozs. When they were born

> > > they weighted 6lbs14ozs and 6lbs12ozs, I was later told that they were

> > > off on one due to a shorter femur, that was the one that was born with

> > > DS. Tyler had no other markers that they could find during any of the

> > > sonograms until the last one, and even then then did not suspect it.

> > > In fact all of his physical features are very mild, in fact, many

> > > people don't even realize he has DS unless I tell them since everyone

> > > asks why my son is so much smaller than his twin sister. I have had a

> > > couple of people who either have children or relatives with DS ask me.

> > > I was 36 when I got pregnant and was 37 when they were born. If I had

> > > been a little older I probably would have had an amio, since the risk

> > > of DS is greater than a miscarriage. There is also a new test that

> > > has a lower miscarriage rate and can be done earlier than an

> > > amio called a CVS. Looking back I am not sure if I would have changed

> > > anything about doing the test or not, I think I may have worried more

> > > about health problems the child could be born with thus making the

> > > pregnacy more trying.

> > >

> > > Katy mom to 31/2 and twins and Tyler(DS)

> > >

> > >

> > > > Hi, I'm currently doing research re Down's Syndrome with multiples.

> > > Am pregnant with fraternal twins right now, and looking for

> > > information regarding sonogram markers for Down's Syndrome and other

> > > potential birth defects.

> > > >

> > > > Torry

> > >

> > >

> > > http://DSyndrome.com/Multiples

> >

> >

> > http://DSyndrome.com/Multiples

> >

>

>

> http://DSyndrome.com/Multiples

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Thank you so much for the informative response. If you had known through an

amnio that Tyler had DS, would you have altered your course at all?

Torry

Re: Doing Research

> Torry,

>

> I had faternal boy/girl twins on 11/11/99. We did not do an AFP test

> since it was most likely to come back positive (due to age factor and

> because I was carring twins). We also decided not to do an Amio

> since the risk of miscarriage with twins was greater than the chance

> of one having Down Syndrome. At 20 weeks I had the first sonogram

> done, they looked for some markers but did not find anything

> noticable. Their weight was with in ounces of each other. Since

> twins is concidered high risk, I had sonograms every 4-5 weeks to make

> sure they were growing properly. In everyone of these sonograms

> except the last one two days before they were born their weight was

> within a couple of ounces of each other. On the last sonogram I was

> told the weights were 6lbs12ozs and 5lbs7ozs. When they were born

> they weighted 6lbs14ozs and 6lbs12ozs, I was later told that they were

> off on one due to a shorter femur, that was the one that was born with

> DS. Tyler had no other markers that they could find during any of the

> sonograms until the last one, and even then then did not suspect it.

> In fact all of his physical features are very mild, in fact, many

> people don't even realize he has DS unless I tell them since everyone

> asks why my son is so much smaller than his twin sister. I have had a

> couple of people who either have children or relatives with DS ask me.

> I was 36 when I got pregnant and was 37 when they were born. If I had

> been a little older I probably would have had an amio, since the risk

> of DS is greater than a miscarriage. There is also a new test that

> has a lower miscarriage rate and can be done earlier than an

> amio called a CVS. Looking back I am not sure if I would have changed

> anything about doing the test or not, I think I may have worried more

> about health problems the child could be born with thus making the

> pregnacy more trying.

>

> Katy mom to 31/2 and twins and Tyler(DS)

>

>

>

> > Hi, I'm currently doing research re Down's Syndrome with multiples.

> Am pregnant with fraternal twins right now, and looking for

> information regarding sonogram markers for Down's Syndrome and other

> potential birth defects.

> >

> > Torry

>

>

>

> http://DSyndrome.com/Multiples

>

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Thank you, Gail, for your perspective. We also decided against the AFP

because of the false-positive likelihood, and against an amnio because of

the added risk with twins. As I mentioned before, we would not alter our

course even if we are to learn that one of our unborn children has DS, so

we'll just anxiously await their delivery.

We'll continue to look for markers in our ultrasounds, although we

understand there are many children with markers observed during ultrasounds

who are later born healthy and without DS. As you can see from an earlier

e-mail from Joyce, it seems just as likely to have a child without

ultrasound markers who is found to have DS upon birth, so there is no

" sure-fire " approach -- absent amnio/CVS -- to determine whether the

presence of DS or other chromosomal abnormality prior to birth. We will

just continue to say our prayers, and be thankful for healthy babies,

whatever the outcome may be.

Torry

Re: Re: Doing Research

> Katy, you just told " my " story as well!! The only differences, Tara was

> born with Ds, not . Tara was 6lbs 12oz, was 6lbs 7oz. Nothing

> ever showed up on any of the multiple ultrasounds either, and I'm an

> x-ray technologist, so my ultrasound friends did an even more through

> " look " while scanning me. I specifically asked about Ds too!! Go figure?

> I too was 36 while pregnant, and still 36 at delievery. I also didn't

> have the AFP done for the exact reasons you mentioned! Plus we already

> have two other children, and just hoping we have the same, two more

> healthy children. Also, my mother had her last child at 40, my little

> sister , so I thought that would be in the " cards " for me as

> well. Also, Tara is enjoying good health, having a twin seems to have

> been a great strength for her! She is 18 months now, and is cruzing the

> furniture more and more now, she really is watching s every move!

> I'm greatful that she is a twin! Thank God the only serious surgery

> she/we had was insertion of bilateral ear tubes, which really isn't

> serious stuff at all.

> Gail.........Bobby 6 1/2, Jillian 4, and Tara {Ds} 18 months

>

>

>

>

>

>

> >

> > Torry,

> >

> > I had faternal boy/girl twins on 11/11/99. We did not do an AFP test

> > since it was most likely to come back positive (due to age factor and

> > because I was carring twins). We also decided not to do an Amio

> > since the risk of miscarriage with twins was greater than the chance

> > of one having Down Syndrome. At 20 weeks I had the first sonogram

> > done, they looked for some markers but did not find anything

> > noticable. Their weight was with in ounces of each other. Since

> > twins is concidered high risk, I had sonograms every 4-5 weeks to make

> > sure they were growing properly. In everyone of these sonograms

> > except the last one two days before they were born their weight was

> > within a couple of ounces of each other. On the last sonogram I was

> > told the weights were 6lbs12ozs and 5lbs7ozs. When they were born

> > they weighted 6lbs14ozs and 6lbs12ozs, I was later told that they were

> > off on one due to a shorter femur, that was the one that was born with

> > DS. Tyler had no other markers that they could find during any of the

> > sonograms until the last one, and even then then did not suspect it.

> > In fact all of his physical features are very mild, in fact, many

> > people don't even realize he has DS unless I tell them since everyone

> > asks why my son is so much smaller than his twin sister. I have had a

> > couple of people who either have children or relatives with DS ask me.

> > I was 36 when I got pregnant and was 37 when they were born. If I had

> > been a little older I probably would have had an amio, since the risk

> > of DS is greater than a miscarriage. There is also a new test that

> > has a lower miscarriage rate and can be done earlier than an

> > amio called a CVS. Looking back I am not sure if I would have changed

> > anything about doing the test or not, I think I may have worried more

> > about health problems the child could be born with thus making the

> > pregnacy more trying.

> >

> > Katy mom to 31/2 and twins and Tyler(DS)

> >

> >

> > > Hi, I'm currently doing research re Down's Syndrome with multiples.

> > Am pregnant with fraternal twins right now, and looking for

> > information regarding sonogram markers for Down's Syndrome and other

> > potential birth defects.

> > >

> > > Torry

> >

> >

> > http://DSyndrome.com/Multiples

>

>

> http://DSyndrome.com/Multiples

>

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thank you, Gail. I will bring this info to our perinatologist, and see if

it's available. I know they had 3-D ultrasounds, but had problems with the

equipment so they sent it back for repair. Hopefully it'll be back up and

running by the time of our next sonogram on 10/12.

Torry

Re: Re: Doing Research

> >

> > > Katy, you just told " my " story as well!! The only differences, Tara

was

> > > born with Ds, not . Tara was 6lbs 12oz, was 6lbs 7oz. Nothing

> > > ever showed up on any of the multiple ultrasounds either, and I'm an

> > > x-ray technologist, so my ultrasound friends did an even more through

> > > " look " while scanning me. I specifically asked about Ds too!! Go

figure?

> > > I too was 36 while pregnant, and still 36 at delievery. I also didn't

> > > have the AFP done for the exact reasons you mentioned! Plus we already

> > > have two other children, and just hoping we have the same, two more

> > > healthy children. Also, my mother had her last child at 40, my little

> > > sister , so I thought that would be in the " cards " for me as

> > > well. Also, Tara is enjoying good health, having a twin seems to have

> > > been a great strength for her! She is 18 months now, and is cruzing

the

> > > furniture more and more now, she really is watching s every move!

> > > I'm greatful that she is a twin! Thank God the only serious surgery

> > > she/we had was insertion of bilateral ear tubes, which really isn't

> > > serious stuff at all.

> > > Gail.........Bobby 6 1/2, Jillian 4, and Tara {Ds} 18

months

> > >

> > >

> > >

> > >

> > >

> > >

> > > >

> > > > Torry,

> > > >

> > > > I had faternal boy/girl twins on 11/11/99. We did not do an AFP

test

> > > > since it was most likely to come back positive (due to age factor

and

> > > > because I was carring twins). We also decided not to do an Amio

> > > > since the risk of miscarriage with twins was greater than the chance

> > > > of one having Down Syndrome. At 20 weeks I had the first sonogram

> > > > done, they looked for some markers but did not find anything

> > > > noticable. Their weight was with in ounces of each other. Since

> > > > twins is concidered high risk, I had sonograms every 4-5 weeks to

make

> > > > sure they were growing properly. In everyone of these sonograms

> > > > except the last one two days before they were born their weight was

> > > > within a couple of ounces of each other. On the last sonogram I was

> > > > told the weights were 6lbs12ozs and 5lbs7ozs. When they were born

> > > > they weighted 6lbs14ozs and 6lbs12ozs, I was later told that they

were

> > > > off on one due to a shorter femur, that was the one that was born

with

> > > > DS. Tyler had no other markers that they could find during any of

the

> > > > sonograms until the last one, and even then then did not suspect it.

> > > > In fact all of his physical features are very mild, in fact, many

> > > > people don't even realize he has DS unless I tell them since

everyone

> > > > asks why my son is so much smaller than his twin sister. I have had

a

> > > > couple of people who either have children or relatives with DS ask

me.

> > > > I was 36 when I got pregnant and was 37 when they were born. If I

had

> > > > been a little older I probably would have had an amio, since the

risk

> > > > of DS is greater than a miscarriage. There is also a new test that

> > > > has a lower miscarriage rate and can be done earlier than an

> > > > amio called a CVS. Looking back I am not sure if I would have

changed

> > > > anything about doing the test or not, I think I may have worried

more

> > > > about health problems the child could be born with thus making the

> > > > pregnacy more trying.

> > > >

> > > > Katy mom to 31/2 and twins and Tyler(DS)

> > > >

> > > >

> > > > > Hi, I'm currently doing research re Down's Syndrome with

multiples.

> > > > Am pregnant with fraternal twins right now, and looking for

> > > > information regarding sonogram markers for Down's Syndrome and other

> > > > potential birth defects.

> > > > >

> > > > > Torry

> > > >

> > > >

> > > > http://DSyndrome.com/Multiples

> > >

> > >

> > > http://DSyndrome.com/Multiples

> > >

> >

> >

> > http://DSyndrome.com/Multiples

>

>

> http://DSyndrome.com/Multiples

>

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Hi Torry,

The echocardiogram was similar to ultrasound, so they moved a doppler (is

that what it is called--I've kind of forgotten all the language) around your

tummy--I just remember having to drink a ton of water before...that was the

only uncomfortableness associated with it. Let us know how things go on the

12th.

Marcia

Mom to Sara (DS) and 5-3/4 and Lucas 9

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Thank you, Marcia, for your e-mail. How intrusive was the in-utero

echocardiogram? Depending on the findings (again, preliminary, I presume,

since it appears nothing is certain until birth anyway) we receive at our

10/12 ultrasound, perhaps we will suggest that procedure for our son.

Torry

Re: Re: Doing Research

> Hi Torry,

>

> It is great you are connected with our group--please continue to keep us

> informed about how your pregnancy is going and when you have your little

ones.

>

> I have Sara and who are 5-3/4. Sara has Down Syndrome,

does

> not.

> I became pregnant with them when I was 42 and the doctor I was seeing

> strongly encouraged amniocentisis--I had also had amniocentisis with my

first

> son, who is now almost 10.

>

> It was when I went into have amnio that it was discovered I had twins.

The

> Dr. did not do the amnio test that day because of the position of the

twins.

> ( I was thankful for her decision). Anyway, the next week amnio was

> successfully performed and I found out the results less than 10 days

later.

> The Dr. reported that I would have a boy and a girl and that the girl

would

> have Down Syndrome. Knowing that terminating the pregnancy was not an

> option, we then chose to have an inutero echocardiogram to look at our

little

> girl's heart (she did not have a heart defect) and to receive as much

> information as we could about our baby girl.

>

> Because of the information we had received and the time we had to prepare,

> Sara and 's birth was a great celebration.

>

> Sara is a joy to behold--we cannot imagine our lives without her.

>

> Marcia

> Mom to Sara (DS) and (5-3/4) and Lucas (almost 10)

>

>

> http://DSyndrome.com/Multiples

>

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