Re: POA or Guardianship

[Guest guest]

In a message dated 6/18/2003 7:07:24 PM Eastern Daylight Time,

pastmidvale@... writes:

> Anyone out there know? And any ideas on the formula to use

> to charge him rent so he gets his full SSI?

Hi Sara,

I just finished doing a workshop on this for the ARC.

You will tell Social security this only! to receive maximum benefits:

They are disabled and you are applying on their behalf.

They reside in your home,but are a separate financial household beginning,

the day of their 18th birthday.

As of their 18th birthday they will be expected to pay a flat fee of $400.00

for room and board. They will also be expected to pay back for the months they

cannot pay prior to approval of benefits.

Elie will be entitled to benefits if he never worked before, found to be

disabled and is eligible for benefits starting with the first month after the

month in which you filed the application. I hope you filed this the day he

turned

18 or a month before. Allowable assets $2000.00 for an individual. A $1500.00

burial expense fund is exempt. I hope this helps.

Charlyne

Mom to Zeb 10 DS/OCD ?

[Guest guest]

We filed this week. Elie turns 18 July 7th. We told them he was a separate

household. They told us that they would be calling to determine the rent

charged. Did not want to hear now. (We had already figured $400 and hoped

that was correct.)

BUT they said that the first check would come in Spetember and only start

at that time. Seems to me it should start as of July even if it takes until

September to start paying him. Could not get an answer on this at the

website. Guess we wait until Spetember and see if it is just the $570 some

dollars or that plus retro and interest as SS has always done before.

Thanks Charlyne.

Sara - Choose to make lemonade, not complain about the lemons.

----Original Message Follows----

From: charlyne1121@...

Reply-

Subject: Re: POA or Guardianship

Date: Thu, 19 Jun 2003 00:39:59 EDT

In a message dated 6/18/2003 7:07:24 PM Eastern Daylight Time,

pastmidvale@... writes:

> Anyone out there know? And any ideas on the formula to use

> to charge him rent so he gets his full SSI?

Hi Sara,

I just finished doing a workshop on this for the ARC.

You will tell Social security this only! to receive maximum benefits:

They are disabled and you are applying on their behalf.

They reside in your home,but are a separate financial household beginning,

the day of their 18th birthday.

As of their 18th birthday they will be expected to pay a flat fee of $400.00

for room and board. They will also be expected to pay back for the months

they

cannot pay prior to approval of benefits.

Elie will be entitled to benefits if he never worked before, found to be

disabled and is eligible for benefits starting with the first month after

the

month in which you filed the application. I hope you filed this the day he

turned

18 or a month before. Allowable assets $2000.00 for an individual. A

$1500.00

burial expense fund is exempt. I hope this helps.

Charlyne

Mom to Zeb 10 DS/OCD ?

[Guest guest]

Thanks Sara and Charlyne,

Thanks for sharing this information. I know I still have my homework

cut out for me on this subject. I have a huge notebook full of

information that was given at a workshop called Vision for The

Future 2003 held by the Texas Dept. of Health and The ARC of SA. It

provides Community Agencies and Resources for Families of Children

with Special Needs.

I actually learn more reading everyones input. Y'all really have

been the best resource for me, even if it varies from state to state

still it gives me comfort that it would be similar in some ways to

work around our State rules and laws. Then it would make some sense

to review the areas needed.

My BIL and sister has a soon to be 21 y/o son with special needs and

I can not always rely on their information when I'm curious about

stuff like this. Sometimes its like pulling teeth for information.

They are great parents to him but sometimes they make things sound

like they're too reserved. I never really confront them with stuff

like this unless I come across a certain bridge with and then

they'll want to share information. They did tell me that they did

not have funds for Guardianship but that they were looking into it

and that was the last I've heard. Nothing about how to go about it

for now and I do not know if they even had a POA.

Like I'm curious what are they're plans when he is out of high

school? I'm always blah blah about and she'll listen but

they are just reserved with their information. Who knows maybe they

do not actually have an answer. I do know they would like for him to

continue living at home. My BIL is building an extra back room

behind their house for him.

When my mom calls she'll ask me what information are you learning

today? I guess I'm like Curious , how did she know? I told

her about my concerns about 's future or whatever pertaining

to the subject of the week and then of course she'll ask me what are

my sisters plan after she hears my story. You see, she's the mama

and she is also left in the dark.

What I do know about when they had applied for SSI they did receive

back pay from the time they had applied. The SSI office had also

requested for them to include a letter stating that he was a

separate household and would be paying rent, utilities & food. He is

receiving the full amount. Would I dare ask how they are spending

it? I'll wait until she is ready to share that info in the mean

time. Like what is his portion? Nah, I won't go there, yet.

I am so proud of my nephew, today a small town which is out skirts

of SA.. A Fire Dept has invited him out to spend some time with them

as they are sponsoring a Festival and they just adore him as part of

their staff. Maybe this would of been his call as a future fireman.

He's not just hanging out with the staff its the Fire Chief & his

wife who likes to hang out with him and keep him involved and he

just loves it. Love it that these people include him in as part of

their team. Thanks.

Irma,14,DS/ASD

Texas Info for TX residents:

http://www.advocacyinc.org/CS5_print.htm

http://www.advocacyinc.org/

[Guest guest]

Hi Irma,

I do know recently of a family that applied for guardianship. The attorney

fees were $600.00 and that included the filing fees. It usually isn't a huge

amount of money. Applying for SSI is the same no matter what state you live in.

As far as your nephew and funds, when you add up all the expenses that our

adult children cost us each month it certainly exceeds what they would recieve

from SSI.

Charlyne

Mom to Zeb 10 DS/OCD ?

[Guest guest]

In a message dated 6/22/2003 12:33:41 AM Eastern Daylight Time,

ICANFIELD@... writes:

> Maybe when I cross this bridge I'll have the opportunity to find an

> attorney that will not charge much. So far the lowest fee starts

> $2,000. & up that many of us have confronted. Annual fee are about

> $150 and up. I'll still keep my eyes open as I was given some legal

> resource information.

>

Hi Irma,

I am glad I live in Ct. and there is no annual fee once it's done it's done.

I think I will pass on the SSI applying for Zeb. I really don't need to fill

out all that paperwork and have to tell people my business. They can keep their

money. I have heard of other people getting into problems with having to pay

the money back. I will opt to wait until Zeb is 18. I hope you can get your

nephew a computer, good luck.

Charlyne

Mom to Zeb 10 DS/OCD ?

[Guest guest]

Hi Charlyne,

Maybe when I cross this bridge I'll have the opportunity to find an

attorney that will not charge much. So far the lowest fee starts

$2,000. & up that many of us have confronted. Annual fee are about

$150 and up. I'll still keep my eyes open as I was given some legal

resource information.

Today, I recieved an invitation for a workshop to address this

Guardianship and Consveratorship/Guardian Ad Litem, Government

Benefit Eligibility, Financial Security and Funding Options. I guess

I'll be invited alot to these type of workshops when Planning for

the Future.

To this day we are still having to pay SSI as my dh's income had

increased, another issue which we had encountered back in 1996. Then

I was told we could of appealed it as it was not our fault as we

kept them updated with the check stubs. Eh, my dh did not want to

bother so we were allowed to pay a very small amt. monthly. The

office said when he turns 18, they would deduct the amount.

True, on the expenses on my nephew. Plus they are adding another

room for him. My nephew will also undergo surgery to his jaw line as

he has a very small one which is part of his syndrome. I've

requested for a free computer for him which a business will be

providing for him. I would hate for him to regress with any speech

he has as he will be unable to move his mouth when this happen. This

was one of my sisters concerns and she thought he would benefit from

a computer. I was hoping they would save some of his funds for a

computer but I ran across this site and had some luck recently that

they would provide one for him. He does sign & could use visual

cues. He does not write only his name and coping from an article.

Thanks so much for the information you've been sharing. I know it

won't be long when we cross this bridge.

Take care,

Irma,14,DS/ASD

[Guest guest]

In a message dated 6/22/03 4:16:39 AM Central Daylight Time,

writes:

> Hi Irma,

> I do know recently of a family that applied for guardianship. The attorney

> fees were $600.00 and that included the filing fees. It usually isn't a huge

>

> amount of money. Applying for SSI is the same no matter what state you live

> in.

> As far as your nephew and funds, when you add up all the expenses that our

> adult children cost us each month it certainly exceeds what they would

> recieve

> from SSI.

> Charlyne

> Mom to Zeb 10 DS/OCD ?

I know in Wisconsin the person who the guardianship is for is responsible for

the fees out of their funds- not the guardian's funds. So, if the individual

doesn't have funds then they are considered " destitute " or something. and

don't have to pay the whole thing. Something they keep prett secret around here.

Karyn

[Guest guest]

In a message dated 6/22/2003 10:02:48 AM Eastern Daylight Time,

KVanRyzin@... writes:

> I know in Wisconsin the person who the guardianship is for is responsible

> for

> the fees out of their funds- not the guardian's funds. So, if the individual

> doesn't have funds then they are considered " destitute " or something. and

> don't have to pay the whole thing. Something they keep prett secret around

> here.

>

Hi Karyn,

It is similar in Ct. They base the amount of the fees on the assets of the

person requiring the guardianship.

Charlyne

Mom to Zeb 10 DS/OCD ?