Guest guest Posted January 15, 1980 Report Share Posted January 15, 1980 we had nathan take responsibility with hlep for cleaning himself or where ever up too, i really think this has been benefical, because anytime he does have an accident he puts the dirty in the laundry and puts dry on, and will get a towel or some wipes to wipe up any but its been quite awile for anywhere but his pants on occasion. I'm gong to ask the GI doc when we see him next if nathan could have low muscle tone of his sphincter? he goes through these awful bouts of like he is leaking bm and he takes miralx dly which has hleped trememdously and cut down on the smearing or leakage episodes. shawna PECS/Potty/Dentist > Hi Everyone, > > I haven't posted much, maybe because I'm new, but I really enjoy reading > about everyone's children. I am amazed at how much comfort I get reading > the posts. I used to belong to two support groups but none of the DS kids > in those groups were like and usually I'd just go home upset. So > eventually, I drifted away, especially as their children's skills passed my > child's. A lot of the challenges some of you are facing, I have dealt > with...like dental issues and potty training, etc. > > still has trouble at the dentist and the only way we can have real > work done is to put her under anesthesia but when she was six, I had > sealants put on all her teeth and so far that has worked pretty well. She > hasn't had any cavities despite the fact that she will barely tolerate > having her teeth brushed. I usually let her use a washcloth instead. We > will have another set of sealants put on when all her adult teeth come in. > > Potty training for us was a major deal but I was determined that she would > be trained before her fifth birthday. We hired a specialist to come to our > home. (I know that sounds crazy, but I was going insane) She told us to > stop using pull-ups or elastic pants over training pants and let her take > responsibility for being wet and cold. Little girl panties only. She also > had to initiate the entire procedure herself, no trip training, and be > responsible for cleaning up and putting on clean clothes (with help). I put > rubber sheets and slipcovers on the sofas and beds. It was a living hell for > a couple weeks but it worked. Just when I thought I couldn't do another load > of laundry, she " got it " . Number two was another issue. She used to go in > the tub too. We were told to stay in the bathroom and when she began a > movement, take her out of the tub and put her on the toilet immediately. > She was not allowed to go back in the bath if she pooped in it. Eventually > she realized if she did it in the tub, her beloved bath time was over and > she stopped doing it. She still had to go during bath time but she would > climb out of the tub and do it in the toilet. > > I guess we were lucky because was trained in PECS at age four because > that was the current grant at the preschool program she attended at the > Experimental Ed. Unit at Univ. of WA. By the time she left there at age six, > she was very proficient in PECS but the elementary school was just starting > with them. Unfortunately, they didn't focus on the PECS because they felt > it was keeping from using speech. Without the PECS, she had no > communication system and at the same time, they policed her self stim > behaviors. (Remember I didn't get a PDD diagnosis until last month) They > took away her dangly things and dolls. Behavior then became a major issue. > She began misbehaving on the bus and they put her in a harness. Then she > began stripping off all her clothes on the bus. It wasn't until a year > later, after countless tears that we realized that she would stay in her > seat with a seatbelt if she had a dangly item. But in the classroom, they > were so rigid with her- no toys, no breaks. It wasn't until this year, > when a new teacher recognized the autistic behaviors that we got the > behaviors under control by allowing her to have some self stim time with her > dangly rags or dolls. She now sits and completes her work because she knows > she will get free time afterwards. Also, going back to PECS and using a > Tech Speak has brought back her sparkle. When we pulled her PECS book off > the top shelf of her closet, she actually hugged it and kissed it. After > five years, she immediately began using the sentence strips to request > things. Her teacher enlisted the help of an augmentative communication > specialist and now she is using her Tech Speak (Mayer-) and a little > nine button " Listen To Me " device about 40% of the time. Still no speech but > Friday she ordered her meal at Mcs with the " Listen to Me " with no > assistance and the lady behind the counter completely understood her! > > We still have trouble with tantrums, especially at the store. My husband > maintains she never has tantrums with him. I thought about that and then > sent him to the store with a grocery list and . Just as I suspected, > she never throws tantrums with him because he lets her throw anything she > wants in the cart. She walked in the door with an orange pop in one hand, a > bag of Oreos in the other, and a huge smile on her face. So much for the no > cavities! > > Therese (Mom to -12 yo. DS/PDD) > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 In a message dated 2/6/2003 3:57:31 AM Eastern Standard Time, home@... writes: > We hired a specialist to come to our > home. (I know that sounds crazy, but I was going insane) Hi Therese!! Welcome back and thanks for the update on your cutie pie!! I don't think it's crazy at all to hire a specialist. My girlfriend did it for her then 13 year old daughter (Caroline is now 14). Caroline does not have autism, but had seizure disorder for most of her life and has been placed in the severe range for MR. Unfortunately, it still didn't work for them. Hey, I think you do whatever you have to. <<Number two was another issue. She used to go in the tub too. >> Yep, Maddie too Therese. And because of the pica....well, I won't go into that. UGH!! << Just as I suspected, she never throws tantrums with him because he lets her throw anything she wants in the cart. She walked in the door with an orange pop in one hand, a bag of Oreos in the other, and a huge smile on her face>> LOL Sounds just like Duff, my hubby!!! Nice to hear from you Therese!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 In a message dated 2/6/03 3:57:35 AM Eastern Standard Time, home@... writes: > She walked in the door with an orange pop in one hand, a > bag of Oreos in the other, and a huge smile on her face. So much for the no > cavities! > > I just want to let you know I loved your whole post. It gives me hope and you had some good ideas. I'm printing it out!! Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 > Experimental Ed. Unit at Univ. of WA. Hi Therese. I'm sure I've asked this before, but are you from WA? We live at Lake Chelan and have 3 kids. Kelsey 11, very into basketball and horses. Ty 9, into basketball and skateboards and motorcycling. And Clarie 7, ds and sensory integration problems, into EVERYTHING, but mostly Mcs and TV. I think all of us in Washington should try to meet up sometime? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Hi , I don't know if you got my e-mail while you were in Mexico, I yeah, I'd like to get together sometime - perhaps this summer. We have friends that live in Manson and they have invited us to stay there. a Drew 11, Marissa 8 tomorrow!, Hannah 6 DS/Aut Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Hi , Yes, I live in Seattle. is the spoiled little baby of our family. Her sister, , is 18 and away at college at WSU where she is a cheerleader and has a ³very serious² boyfriend, both of which consume her entire life, leaving only a tiny space for studies. is 15, also a cheerleader, a pianist and a gifted student. It is sometimes more of a challenge living with a child on the other end of the spectrum. They have issues all their own. never wants to debate her curfew and she never asks for money! It would be fun to have a Pacific NW get together like Joan mentioned earlier. a doesn¹t live very far from me either. We could share ³war² stories. I vote we come to you in Chelan and get out of the rain. Therese 2/6/03 9:19 AM, kristen3kids <kristen3kids@...> at kristen3kids@... wrote: >> > Experimental Ed. Unit at Univ. of WA. > > Hi Therese. I'm sure I've asked this before, but are you from WA? > We live at Lake Chelan and have 3 kids. Kelsey 11, very into > basketball and horses. Ty 9, into basketball and skateboards and > motorcycling. And Clarie 7, ds and sensory integration problems, > into EVERYTHING, but mostly Mcs and TV. I think all of us in > Washington should try to meet up sometime? > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of > our kids. Share favorite bookmarks, ideas, and other information by including > them. Don't forget, messages are a permanent record of the archives for our > list. > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 > Hi a. No I didn't get your email. I'm glad you wrote again. Who are your friends from Manson? It's a small community, I might know them. Summer sounds great for a get-together!!! . Hi , > I don't know if you got my e-mail while you were in Mexico, I yeah, I'd > like to get together sometime - perhaps this summer. We have friends that > live in Manson and they have invited us to stay there. > a > Drew 11, Marissa 8 tomorrow!, Hannah 6 DS/Aut > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 > > >> > Experimental Ed. Unit at Univ. of WA. > > > > Hi Therese. I'm sure I've asked this before, but are you from WA? > > We live at Lake Chelan and have 3 kids. Kelsey 11, very into > > basketball and horses. Ty 9, into basketball and skateboards and > > motorcycling. And Clarie 7, ds and sensory integration problems, > > into EVERYTHING, but mostly Mcs and TV. I think all of us in > > Washington should try to meet up sometime? > > > > > > > > > > -------------------------------------------------- > > Checkout our homepage for information, bookmarks, and photos of > > our kids. Share favorite bookmarks, ideas, and other information by including > > them. Don't forget, messages are a permanent record of the archives for our > > list. > > -------------------------------------------- > > > > Quote Link to comment Share on other sites More sharing options...
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