Re: Our son's progress

January 4, 2001

Dear Deborah,

WOW!!! this totally blew me away! Thank you SO MUCH for sharing! (-:

[ ] Our son's progress

> I feel the need to report at this time my son's progress using ALA.

>

> Some background: received his MMR vaccine at around 18

> months of age. Five days later he was screaming uncontrollably and

> had the classic measles rash all over his body. He was refusing to

> move his arms, hands, neck or legs. He would not reach for his sippy

> cup when I held it out to him. If I put it to his lips he would suck

> like crazy - he was thirsty, but it hurt him so badly to move that he

> would not reach out for his cup. I contacted his pediatrician and

> the office nurse immediately tried to blow the situation off " This

> has nothing to do with his vaccination... " I took him to the local

> health department because I wanted to pick up the papers that say

> " call your doctor if... " because I knew that he was experiencing five

> of the eight things that I had been warned to watch for and I was

> hoping that having some offical " proof " might help me advocate for my

> son at the pediatrician's office.

>

> I walked into the health department with my son wearing only a diaper

> as it was warm outside. This meant that the rash on his body was

> fully exposed. As I stepped up to the counter, a nurse behind the

> counter looked over and suddenly yelled, " Oh my God, that child is

> having a reaction to his MMR vaccine! "

>

> With this nurse's validation in hand, I went searching for a new

> pediatrician. The new pediatrician educated me on the dangers of

> ever having my son receive this vaccination again, but also warned me

> that our state would force him to receive it before admission to

> school at age five. She said that his reaction was not considered

> " serious enough " to warrant an exemption. Although she disagreed

> with the state's standards, she warned me to expect a fight when I

> enrolled him in school. Luckily, I had already begun homeschooling

> my older children, so this was a battle we never had to fight.

>

> After he recovered from the obvious part of the vaccine reaction,

> life went on, but something was wrong with my son that I couldn't

> quite put my finger on. He was extremely bright, with a gigantic

> vocabulary. At age three he told his friend that Barney was fiction,

> and when the friend's mother said, " Wow! I don't think my three-year-

> old even knows the word fiction " , said to the mother,

> " Fiction means pretend " .

>

> We began to have serious troubles with his reactions to other

> people. He would seriously injure someone, with a blank look on his

> face - he was not angry at them, nor did he feel guilty that he had

> hurt anyone. It was as though he didn't even know that he had hurt

> someone. Soon his church teachers were calling me to ask for advice,

> and I didn't know what to tell them. He stayed in his church

> classes maybe two or three minutes before he was off - racing through

> the halls, around and around and around. The energy was endless. He

> stripped his clothes off in public. He shouted out inappropriate

> things at inappropriate times. For example, when the bishop came to

> talk to the children's group about baptism, the bishop asked, " Why is

> it important for us to be baptized? " yelled out at the top

> of his lungs " PEANUT BUTTER AND JELLY! "

>

> Sound bothered him tremendously. The organ, the piano,

> congregational singing, or even being in a large crowd of children

> would have him on the floor writhing with his hands over his ears.

> When he would sing along to the songs, he didn't sing the appropriate

> words. He was obsessed with potty words. So while all the other

> children were sweetly singing " I am a child of God " , he was singing

> (to the same tune) " pee, pee, pee, poop, poop, poop " .

>

> Many people just thought that he was AD/HD and we should just put him

> on Ritalin. But there were things that just didn't fit with this

> diagnosis. One was the silly grin he got on his face whenever he did

> one of these " behaviors " . I have other children, and I know how they

> look when they are caught doing something wrong: guilty, indignant,

> smug... but not blank eyes and an insane grin...

>

> People visiting our home was a nightmare. I would spend the entire

> time holding my son in his bedroom so that others in the family could

> enjoy the social experience. As soon as my son noticed someone at

> the door, he would race screeching around the room, so loudly that it

> was impossible to carry on a conversation with the guest. Then began

> the random hitting and pushing of guests or siblings until I carried

> him kicking from the room. The strangest thing about these incidents

> was that when I separated him, he would begin to cry that he wanted

> to play with the friends that were there, he didn't want to miss the

> time with them. He wanted to interact, but didn't know how. When he

> wanted to play a game with someone, he would " ask " by knocking their

> game board over and then smiling insanely at them. And he never

> understood why they got angry at him for that. He would cry and cry

> and cry. This summer his uncles built some incredible sand castles

> at the lake: they were built like the Pueblo Indians' adobe homes.

> thought they looked so cool and fun! He wanted to build

> with them too - so he stomped on their castles and grinned at them.

> He didn't understand why he was carried off to Time-Out. (By this

> time he was almost six years old and should have been old enough to

> understand.)

>

> Interactions with this child were so hard that one set of his

> grandparents no longer allowed him in their home. The other set of

> grandparents had spanked him at church without our permission.

>

> was rigid and inflexible. He could not handle change. One

> day he had to be carried home from church two hours early because his

> class was asked to sit in a different row than usual.

>

> I had to distract him when I heard the trash truck coming down the

> street. One week he had watched the garbage men load our trash into

> the truck and it had led to over an hour of kicking and screaming,

> " That was OUR trash. BRING IT BAAAAAAACK! "

>

> He did not let us touch or hold him. We are a family that carries

> our babies in slings and extended-breastfeeds and gives infant

> massages, and since his vaccine reaction he would not snuggle or

> allow us to hug or touch him.

>

> One particular incident in his violent behavior occurred right before

> we started using the ALA. His baby brother was playing in the dirt

> at the base of a tree. went over to the toddler, grabbed

> the back of his head, and banged his forehead three times into the

> tree trunk. When I grabbed and turned him to face me, he

> had that insane grin on his face, and I could tell that nothing I was

> saying, ( " NOOO! We don't do that!! That hurts!!!! Do you see him

> crying?) was registering in his brain. I learned to cope by always

> keeping away from other children - his own siblings and any

> neighborhood or other friends that might come to our home to play.

> Keeping away from other children was a full-time job -

> remember, he WANTED to play with him, he had a genuine need to

> interact, but he didn't know how to do so appropriately.

>

> This summer I was introduced to ALA by a friend who is using it with

> her autistic daughter. She showed me Dr. Amy's article on " Autism, a

> unique kind of mercury poisoning " . The article clicked. Saying that

> my son had Asperger's Syndrome fit like nothing else ever had. I

> felt like the ALA was safe, and like I could handle dosage

> adjustments on my own. There would be no need to hunt and search for

> a supportive doctor. I decided to give it six weeks and see if it

> would make a difference. This is how we did it: 1/4 mg per pound of

> body weight (this meant opening the capsule and dividing it into

> fourths, since he was 50 lbs and the capsule was 50 mg) mixed with a

> spoonful of applesauce, every three hours around the clock for three

> days, then off for four days.

>

> During the second week two things occurred that were testimony to me

> that the ALA was working. The first situation was when the baby

> brother took away a train that was playing with. I lunged

> to protect the baby, knowing that was going to clobber him.

> Instead I heard saying, " Oh, so you want to play with the

> train too? Here, let me show you how to do it... " He lined the

> train up on the bed and got another train for himself (allowing the

> baby to have the train he had originally had) and the two of them

> made their trains choo-choo along the bed's edge. I watched the

> scene with a quiet sense of awe: I had never seen play WITH

> another child before. I had seen him playing ALONGSIDE other

> children, but never before had I seen him able to empathize with

> another child's needs, and then line himself up to interact with that

> other child's play.

>

> During that same week another incident occurred. My husband was away

> for the evening, and I carried out our normal bedtime routine of

> having the children gather to read from the scriptures and have a

> famiy prayer. After the prayer, I remained kneeling on the floor in

> the quiet, just regrouping for a moment after a busy day. The

> children were going off to their bedrooms and the living room was

> quiet for a minute. Suddenly I was aware that someone was still

> behind me. I was wrapped in an embrace from behind, someone who

> clung to me so sweetly for a moment, and then kissed me. I turned

> around expecting to see any of my five children except the one that I

> did see - it was . It took me a moment to recover - I think

> I actually froze for a minute because suddenly I realized that he was

> standing in a strange position. His head was down and he had his

> finger on his forehead. I thought for a minute, and suddenly I

> understood! I exclaimed, " You want ME to kiss YOU? " He nodded

> shyly. I asked, " Right here, on your forehead where your finger

> is? " He nodded again shyly and I kissed him softly on his forehead.

> Then without a word, he trotted happily off to bed. He had not let

> me hug or kiss him for four and a half long years, and now he was

> asking me for affection.

>

> We have done a total of eight cycles of ALA. At one point we noticed

> that he was better behaved during the " ON " than the " OFF " so we

> started doing six days on, eight days off, which meant less adjusting

> for him from on to off. This worked well for him. During his

> seventh cycle, he became very agressive, and so we halved his dose so

> that he was now getting 1/8 mg per lb of his weight, and his behavior

> calmed again. It is obvious that stuff is being cleaned out of his

> brain because with every cycle, he experiences new growth.

>

> Let me tell you the differences we have seen after only eight cycles.

>

> His new teacher at church just said to me, " I don't know what all the

> warnings about were before I took this class. He is easy. "

>

> The woman that works in the presidency of the children's church

> organization called me this week. She said, " I can't believe the

> change in your son. When I first started working with him (a year

> and a half ago), the goal was to keep his clothes on him. Now he

> sits with his arms folded and listens and half the Sundays when I go

> home, I have to ask myself whether he was at church or not. He is so

> reverent that you could miss him if you aren't looking for him. "

>

> My parents (the grandparents who didn't allow him in their home) let

> us stay at their house for two days over Christmas because my brother

> was getting married closeby. Afterwards my mother said, " We can't

> believe how well did! What a change that was from this

> summer. " There had not been a single incident while we were in their

> home. (They had seen him in August, right before we started the

> ALA. This was the family reunion where he destroyed the sand castles

> and knocked over the game.)

>

> The other grandparents (who live just five minutes away) pulled my

> husband aside privately to tell him that they didn't know what we

> were doing for , but it was really working.

>

> My son's particular genuis/obsession is in the area of " how things

> work " , from electronics to the human body to appliances. As a

> special treat, we have allowed him to have an electric train in his

> bedroom. He and his brother have built a double decker winding track

> that has to be propped on blocks as it winds its way around their

> bedroom and through the tunnels they have built from Legos, etc. At

> my other son's birthday party, one of the guests went into the boys'

> bedroom and destroyed the track. He threw the trains around the room

> and bent and broke the track pieces. When we discovered it,

> was understandably distraught. He had his hands over his ears like

> he does when he is about to lose it, and I thought to myself, " This

> is it. I am going to be holding this child in this bedroom for the

> remainder of the party. I am going to miss seeing my other son blow

> out his birthday candles... " I said to , " What did was

> very wrong. He should not have done that to your train. Poppa knows

> how to fix your train, but right now he is doing the games for

> 's party. He can't fix it right now, but he can fix it after

> the party. " Imagine my jaw dropping as my son wiped his eyes and ran

> to join the line of children who were playing the next game.

>

> At Christmastime, my husband and I left the children with their

> grandma while we went to an office party. She took the children to a

> fast food restaurant and then to a church Christmas party. At the

> party, there was a buffet dinner, and suddenly was on the

> floor crying. Grandma asked him what was wrong, and he said, " The

> line is too long. All the food will be gone before I get there. "

> (Being able to vocalize what is wrong is a new skill for him. Before

> the ALA he just screamed like an animal in distress when you asked

> him what was wrong. We would just end up having to load him in the

> car and take him home because he was so out of control.) Grandma

> took him in the hall and said, " You already ate at the fast food

> place, and there is a lot of food in there. There will still be food

> when we get up to the serving tables. " He still looked sad, and

> Grandma said, " I can take you home if you would like me to. What do

> you want to do? " said, " I think I just need to decide to go

> in there and have a good time. " And he dried his tears and trotted

> off and there was not another problem that evening.

>

> We are not done with ALA. There are still symptoms of mercury

> toxicity, but in just four months we have gone from almost unbearable

> and intolerable to very workable. I am willing to have anyone

> contact me who wants more information or details.

>

> Deborah Warner

> ville, FL

>

January 4, 2001

Deborah,

Thank you for sharing this with us.

How old is your son and has he tried GFCF diet? Sounds like he did not

have mercury test?

ALA is the only change? Wow!

mt

bdwarner@... wrote: