Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Hi All, I've been reading the posts about mercury for some time now and am searching for someone in Manhattan to test my son and hopefully to start the process of chelation. What I've been trying to piece together is the way this fits into the overall picture of my son's treatment history. He is a 9 year old boy diagnosed with Asperger's Syndrome. The dx was never right on the money but close enough to get services etc. His earliest signs were GI symptoms (severe constipation at 15 months) this was followed by multiple food and environmental allergies, unbelieveable sensory hypersensitivity, a loss of motor skills, confusion and eventually echolalia, a decline in articulation, word retrieval, social withdrawal, idiosyncratic play behavior, an insistence on sameness, rigidity, routines and hideous tantrums that went on day and night. Over the years we have tried many interventions with varying degrees of success - OT (sensory integrating type), GF/CF, SuperNuthera, allergy treatments (homeopathic and NAET), yeast treatments, amino acid supplementation, liver detox treatments, secretin, anti-viral meds for the Stealth virus and a long list of psychiatric medications. All of these interventions brought about some measure of relief but none lasted long. The most enduring effects seemed to come from GF/CF and then from Celexa. In fact he was doing quite well for about 10 months and then began a severe downward spiral in August from which he has not recovered. He is now very sensory sensitive, has severe panic attacks and episodes that look seizure like but seemingly are not (we had a 5 day video EEG done). In addition he becomes completely unhinged, unresponsive to input from others and out of touch with reality at times of stress (any stress-even the most minor upsets). At these times he will stare off into space, drop to the floor and sometimes will start screaming incoherently. Several years ago a routine hair analysis (checking for copper and zinc levels) showed a remarkably high level of mercury , a follow up of urine also showed a high level (these tests were done without using a chelating agent). What I am now thinking, on the basis of the reading I've been doing (the ARI Sallie Bernard article and the posts on this list, I am eagerly awaiting the arrival of Andy Cutler's book) is that these interventions all were in effect like taking aspirin to relieve a pain of unknown origin. They helped somewhat but if the underlying cause is not addressed the body will continue to produce symptoms. I have long wondered why everything we do seems to bring results only to fail after a period of time. Does this make any sense to anyone else? Has anyone had similar experiences? Do you think Mercury might be " it " ? Thanks for listening. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Yes mercury and other toxic metals are IT now you just have to get them out of your child. There is the rub how do you do that removal? Yes you will get some relief with different treatments, but wouldn't a cure of toxic metals removal be better? > Hi All, > I've been reading the posts about mercury for some time now and am > searching for someone in Manhattan to test my son and hopefully to start > the process of chelation. > > What I've been trying to piece together is the way this fits into the > overall picture of my son's treatment history. > > He is a 9 year old boy diagnosed with Asperger's Syndrome. The dx was > never right on the money but close enough to get services etc. His > earliest signs were GI symptoms (severe constipation at 15 months) this was > followed by multiple food and environmental allergies, unbelieveable > sensory hypersensitivity, a loss of motor skills, confusion and eventually > echolalia, a decline in articulation, word retrieval, social withdrawal, > idiosyncratic play behavior, an insistence on sameness, rigidity, routines > and hideous tantrums that went on day and night. > > Over the years we have tried many interventions with varying degrees of > success - OT (sensory integrating type), GF/CF, SuperNuthera, allergy > treatments (homeopathic and NAET), yeast treatments, amino acid > supplementation, liver detox treatments, secretin, anti-viral meds for the > Stealth virus and a long list of psychiatric medications. All of these > interventions brought about some measure of relief but none lasted long. > The most enduring effects seemed to come from GF/CF and then from Celexa. > In fact he was doing quite well for about 10 months and then began a severe > downward spiral in August from which he has not recovered. He is now very > sensory sensitive, has severe panic attacks and episodes that look seizure > like but seemingly are not (we had a 5 day video EEG done). In addition he > becomes completely unhinged, unresponsive to input from others and out of > touch with reality at times of stress (any stress-even the most minor > upsets). At these times he will stare off into space, drop to the floor > and sometimes will start screaming incoherently. > > Several years ago a routine hair analysis (checking for copper and zinc > levels) showed a remarkably high level of mercury , a follow up of urine > also showed a high level (these tests were done without using a chelating > agent). > > What I am now thinking, on the basis of the reading I've been doing (the > ARI Sallie Bernard article and the posts on this list, I am eagerly > awaiting the arrival of Andy Cutler's book) is that these interventions all > were in effect like taking aspirin to relieve a pain of unknown origin. > They helped somewhat but if the underlying cause is not addressed the body > will continue to produce symptoms. I have long wondered why everything we > do seems to bring results only to fail after a period of time. Does this > make any sense to anyone else? Has anyone had similar experiences? Do you > think Mercury might be " it " ? Thanks for listening. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Every mercury toxic person I know can recite a long litany of things that they tried that seemed to cure the problem, or greatly improve it, for a while then stopped working. BTW, continuing regression and high urine mercury suggest looking for a source of CURRENT, ONGOING exposure... Andy Cutler Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Dear Pat, There is a part of your story that is NOT AT ALL sketchy: it is clear as day, right out in front for all to see: >Several years ago a routine hair analysis (checking for copper and zinc >levels) showed a remarkably high level of mercury , a follow up of urine >also showed a high level (these tests were done without using a chelating >agent). Okay, now... let's see.... what could this mean??? IT MEANS HE HAD LOTS OF MERCURY IN HIS BODY. Could mercury cause autistic symptoms? YES. Is this the be-all and end-all story of all of his symptoms? Maybe, maybe not. No one knows that, he is an individual, symptoms are complex, people are complex. But you could not get more clear evidence of mercury, WHICH WE KNOW TO BE TOXIC, and which is stored in the body. Here is another question: how much will he improve if you use chelation??? I like this question because it answerable, by using observation and experience. It encourages action, and looks at results that matter to you and to him. good luck! Moria Quote Link to comment Share on other sites More sharing options...
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