Re: Re: Opinions sought on a sketchy theory

[Guest guest]

Dear Pat,

Your report pulled at my heartstrings. What your son is going through

we can only imagine (if we dare!). My daughter is very similar to your son

and we have tried many of the interventions you mentioned. We are seeing

real hope now that chelation has begun. In the meantime, I do highly

recommend a book by the autistic woman Donna called " AUTISM: an

Inside-Out Approach " which sheds some light on what our sensory-overwhelmed

children are experiencing and how to help them; how to make their lives

calmer and help them focus on the the sensory input they need to rather than

being BOMBARDED with too much. It has helped my daughter and myself and I

feel so SO happy to be able to understand her more and help her more. I can

not recommend this book enough!

It sounds as though your son will see nothing but improvement with

chelation! Good luck to you both!

[ ] Re: Opinions sought on a sketchy theory

> Yes mercury and other toxic metals are IT now you just have to get

> them out of your child. There is the rub how do you do that

> removal? Yes you will get some relief with different treatments, but

> wouldn't a cure of toxic metals removal be better?

> > Hi All,

> > I've been reading the posts about mercury for some time now and am

> > searching for someone in Manhattan to test my son and hopefully to

> start

> > the process of chelation.

> >

> > What I've been trying to piece together is the way this fits into

> the

> > overall picture of my son's treatment history.

> >

> > He is a 9 year old boy diagnosed with Asperger's Syndrome. The dx

> was

> > never right on the money but close enough to get services etc. His

> > earliest signs were GI symptoms (severe constipation at 15 months)

> this was

> > followed by multiple food and environmental allergies, unbelieveable

> > sensory hypersensitivity, a loss of motor skills, confusion and

> eventually

> > echolalia, a decline in articulation, word retrieval, social

> withdrawal,

> > idiosyncratic play behavior, an insistence on sameness, rigidity,

> routines

> > and hideous tantrums that went on day and night.

> >

> > Over the years we have tried many interventions with varying

> degrees of

> > success - OT (sensory integrating type), GF/CF, SuperNuthera,

> allergy

> > treatments (homeopathic and NAET), yeast treatments, amino acid

> > supplementation, liver detox treatments, secretin, anti-viral meds

> for the

> > Stealth virus and a long list of psychiatric medications. All of

> these

> > interventions brought about some measure of relief but none lasted

> long.

> > The most enduring effects seemed to come from GF/CF and then from

> Celexa.

> > In fact he was doing quite well for about 10 months and then began

> a severe

> > downward spiral in August from which he has not recovered. He is

> now very

> > sensory sensitive, has severe panic attacks and episodes that look

> seizure

> > like but seemingly are not (we had a 5 day video EEG done). In

> addition he

> > becomes completely unhinged, unresponsive to input from others and

> out of

> > touch with reality at times of stress (any stress-even the most

> minor

> > upsets). At these times he will stare off into space, drop to the

> floor

> > and sometimes will start screaming incoherently.

> >

> > Several years ago a routine hair analysis (checking for copper and

> zinc

> > levels) showed a remarkably high level of mercury , a follow up of

> urine

> > also showed a high level (these tests were done without using a

> chelating

> > agent).

> >

> > What I am now thinking, on the basis of the reading I've been doing

> (the

> > ARI Sallie Bernard article and the posts on this list, I am eagerly

> > awaiting the arrival of Andy Cutler's book) is that these

> interventions all

> > were in effect like taking aspirin to relieve a pain of unknown

> origin.

> > They helped somewhat but if the underlying cause is not addressed

> the body

> > will continue to produce symptoms. I have long wondered why

> everything we

> > do seems to bring results only to fail after a period of time.

> Does this

> > make any sense to anyone else? Has anyone had similar

> experiences? Do you

> > think Mercury might be " it " ? Thanks for listening. Pat

>

>

>