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Re: Anyone have post-concession blues?

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After lots of crying she left a message on my answering machine, where

all the kids could hear it, saying how she hoped our " conversation "

hadn't impacted our relationship or them seeing my kids, but she knows

that Allie will be with hubby & self forever, that I need to focus on

my other kids. That is part of the problem, she assumes I care nothing

for my other kids, she sees us about 2 days out of the year, at their

house, when Allie is upset, probably because she's picked up on them

not liking her. Reasoning with this aunt didn't change anything. So, I

called her & told her where she could put each issue she was

imagining. She'd rather die that give my daughter with autism a cold

drink in hell, which is where she's gonna be before she's gonna see me

or my family again.

But hey, I'm not bitter, lol. Funny, all the things I've done in the

past six years to help my daughter and autism community, if it had

been for anything else, they would have been praising me. Why do we

try to keep relationships with people like that? I told her if she's

not gonna be my cheerleader...<blank> her. All of us have come way to

far and been through way too much to deal with people who wanna bring

us down!

Debi

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That's why we all need each other in our community so badly. Funny,

if it was a little kid with cancer, support would be all over the

place. But autism, we're supposed to accept and move on, even if

they have health problems. People wonder why I pull away from

everyone except my autism community, it's largely because they are

the only ones who understand & support each of us.

I dunno about the people not having kids thing. I'm in class with

some ladies who still aren't married, much less have kids. They are

some of the most supportive people I've met to not have any autism

connection. But, they also have gone to school in inclusive settings

and learned compassion and are in the health field and get a lot of

what I'm saying about autism and biochemical issues. The difference

is in character and I think also age. Seems a lot of older people,

unless they have experienced issues that taught them compassion,

they don't seem to have much.

Debi

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That's probably why I can't find anyone to give Allie her cord blood.

I've offered them to test it first, which could be very telling. Heck,

I've even suggested to DAN researchers to take it & test it. There are

enough of us with cord blood if we could find one practitioner willing

to take it on, we could tell LOTS!!! CBR says they have autism

families calling every day wanting to access the blood, so we're not

just a handful of people.

Debi

>

> That's why I don't think we'll ever see any kind of testing done

prior

> to vaccines. They'd be setting themselves up!!

>

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ooooooooohhhhhhhhhhhhhhhhhhhhhhh We LOVE LOVE LOVE that song!!!!!!!! Taken me through MANY MANY long and hard days! will be in my heart forever. I think I love him more than my boys did. And there's another song.....on another CD..... So many fond memories. Thank you for the smile and the walk down memory lane! Sophia King <medfordkings1@...> wrote: Here's a little song that

my son sings to me at least once per week. Something cheery to enjoy with that chocolate! http://www.youtube.com/watch?v=s_-W_a07C6U> > > Lol, I agree with your treatment plan: 10,000 cc's of chocolate.>Sophiahttp://justamom2three.blogspot.com/

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

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But I'm sure that outside labs can do the blood workup. But then

- there can be " questions " as to the " reliability " of the lab.. But

I do wonder - will there be a huge hue and cry from parents (and

possibly doctors as well) to do metabolic/mitochondrial/immune

testing before vaccinations now?

Of course, all this costs money..

Jim

On Mar 14, 2008, at 2:54 PM, angndon1994 wrote:

> That's why I don't think we'll ever see any kind of testing done prior

> to vaccines. They'd be setting themselves up!!

>

>

> >

> > What I'm waiting for is for a family (prefereably several) who get

>

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That makes sense for mainstream, Government/Pharma-funded

researchers. But the ARI? What the $#%@ do they have to lose

(except some money and maybe PR fallout if it doesn't work out)

What about the Doug Floutie (sp) Jr Foundation? I'm not all all

familiar with the foundation, and know they just gave a large chunk

of change to ARI for research.. But.. Since this treatment has been

ALREADY shown effective for some cases of CP (and ASD?).. It's

already sort of passed " Phase I/II trials " .

The California Stem-cell Institute would be a very logical choice,

but I think you'd run into messes with money and influence from the

drug industry or state/federal government.

Jim

On Mar 14, 2008, at 6:13 PM, Debi wrote:

> That's probably why I can't find anyone to give Allie her cord blood.

> I've offered them to test it first, which could be very telling. Heck,

> I've even suggested to DAN researchers to take it & test it. There are

> > That's why I don't think we'll ever see any kind of testing done

> prior

> > to vaccines. They'd be setting themselves up!!

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