Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Here's a little song that my son sings to me at least once per week. Something cheery to enjoy with that chocolate! http://www.youtube.com/watch?v=s_-W_a07C6U > > > Lol, I agree with your treatment plan: 10,000 cc's of chocolate. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 After lots of crying she left a message on my answering machine, where all the kids could hear it, saying how she hoped our " conversation " hadn't impacted our relationship or them seeing my kids, but she knows that Allie will be with hubby & self forever, that I need to focus on my other kids. That is part of the problem, she assumes I care nothing for my other kids, she sees us about 2 days out of the year, at their house, when Allie is upset, probably because she's picked up on them not liking her. Reasoning with this aunt didn't change anything. So, I called her & told her where she could put each issue she was imagining. She'd rather die that give my daughter with autism a cold drink in hell, which is where she's gonna be before she's gonna see me or my family again. But hey, I'm not bitter, lol. Funny, all the things I've done in the past six years to help my daughter and autism community, if it had been for anything else, they would have been praising me. Why do we try to keep relationships with people like that? I told her if she's not gonna be my cheerleader...<blank> her. All of us have come way to far and been through way too much to deal with people who wanna bring us down! Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 That's why we all need each other in our community so badly. Funny, if it was a little kid with cancer, support would be all over the place. But autism, we're supposed to accept and move on, even if they have health problems. People wonder why I pull away from everyone except my autism community, it's largely because they are the only ones who understand & support each of us. I dunno about the people not having kids thing. I'm in class with some ladies who still aren't married, much less have kids. They are some of the most supportive people I've met to not have any autism connection. But, they also have gone to school in inclusive settings and learned compassion and are in the health field and get a lot of what I'm saying about autism and biochemical issues. The difference is in character and I think also age. Seems a lot of older people, unless they have experienced issues that taught them compassion, they don't seem to have much. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 That's probably why I can't find anyone to give Allie her cord blood. I've offered them to test it first, which could be very telling. Heck, I've even suggested to DAN researchers to take it & test it. There are enough of us with cord blood if we could find one practitioner willing to take it on, we could tell LOTS!!! CBR says they have autism families calling every day wanting to access the blood, so we're not just a handful of people. Debi > > That's why I don't think we'll ever see any kind of testing done prior > to vaccines. They'd be setting themselves up!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 ooooooooohhhhhhhhhhhhhhhhhhhhhhh We LOVE LOVE LOVE that song!!!!!!!! Taken me through MANY MANY long and hard days! will be in my heart forever. I think I love him more than my boys did. And there's another song.....on another CD..... So many fond memories. Thank you for the smile and the walk down memory lane! Sophia King <medfordkings1@...> wrote: Here's a little song that my son sings to me at least once per week. Something cheery to enjoy with that chocolate! http://www.youtube.com/watch?v=s_-W_a07C6U> > > Lol, I agree with your treatment plan: 10,000 cc's of chocolate.>Sophiahttp://justamom2three.blogspot.com/ Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 But I'm sure that outside labs can do the blood workup. But then - there can be " questions " as to the " reliability " of the lab.. But I do wonder - will there be a huge hue and cry from parents (and possibly doctors as well) to do metabolic/mitochondrial/immune testing before vaccinations now? Of course, all this costs money.. Jim On Mar 14, 2008, at 2:54 PM, angndon1994 wrote: > That's why I don't think we'll ever see any kind of testing done prior > to vaccines. They'd be setting themselves up!! > > > > > > What I'm waiting for is for a family (prefereably several) who get > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 That makes sense for mainstream, Government/Pharma-funded researchers. But the ARI? What the $#%@ do they have to lose (except some money and maybe PR fallout if it doesn't work out) What about the Doug Floutie (sp) Jr Foundation? I'm not all all familiar with the foundation, and know they just gave a large chunk of change to ARI for research.. But.. Since this treatment has been ALREADY shown effective for some cases of CP (and ASD?).. It's already sort of passed " Phase I/II trials " . The California Stem-cell Institute would be a very logical choice, but I think you'd run into messes with money and influence from the drug industry or state/federal government. Jim On Mar 14, 2008, at 6:13 PM, Debi wrote: > That's probably why I can't find anyone to give Allie her cord blood. > I've offered them to test it first, which could be very telling. Heck, > I've even suggested to DAN researchers to take it & test it. There are > > That's why I don't think we'll ever see any kind of testing done > prior > > to vaccines. They'd be setting themselves up!! Quote Link to comment Share on other sites More sharing options...
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