Re: am I the only one annoyed about the term autism like symptoms in hannah?

[Guest guest]

NO........ it's annoying the crap out of me too. They're just trying

to SPIN it.

Watch the spin over the next few days. I think we'll be amazed at the

amount of damage control they'll be sending out. They're definitely

SH*% & $^ their pants right now. Their PR staff is on overtime,

guaranteed.

The Autism Center got a bunch of calls today from folks asking if they

should get their kids vaccinated. This has done damage to them.

>

> It's like they dare not say that she has autism... like they are tap

> dancing...

>

> Vaccines didn't cause her autism, she got vaccines and now has autism-

> like symptoms.

>

> Can I say... GIVE ME A F'IN BREAK.

>

[Guest guest]

I may start using this spin... I like it...

I am not fat, I have symptoms of overweightedness

anyone else have something they don't really have?

--- In EOHarm , " autismlink " <cindy@...> wrot

e:

>

> NO........ it's annoying the crap out of me too. They're just trying

> to SPIN it.

>

[Guest guest]

I don't have PMS, I'm just PMS-Like. I have PMS symptoms, but it's

not caused by PMS, in fact it has nothing to do with my monthly cycle.

I'm just a bitch one week out of every month. But it's a genetic

condition and more predominant in females.

>

>

> I may start using this spin... I like it...

> I am not fat, I have symptoms of overweightedness

>

> anyone else have something they don't really have?

[Guest guest]

It's like an elephant-like elephant.

> >

> >

> > I may start using this spin... I like it...

> > I am not fat, I have symptoms of overweightedness

> >

> > anyone else have something they don't really have?

>

[Guest guest]

Sure sounds like a mitochondrial issue to me!

Kathleen (who is in stitches over this thread!0

The world is not yet exhausted; let me see something tomorrow which I never saw before.- *************************************************************************

Re: am I the only one annoyed about the term "autism like symptoms" in hannah?I don't have PMS, I'm just PMS-Like. I have PMS symptoms, but it'snot caused by PMS, in fact it has nothing to do with my monthly cycle.I'm just a bitch one week out of every month. But it's a geneticcondition and more predominant in females.>> > I may start using this spin... I like it...> I am not fat, I have symptoms of overweightedness > > anyone else have something they

don't really have?

[Guest guest]

Yeah and I don't have grey hair. I have Hair with

Features of Gray.

________________________________________________________________________________\

____

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[Guest guest]

But what's the difference? Operationally, she still has autism,

and will still require treatment. I think these " weasel words "

actually open up a much larger can of worms. They conceeded that

vaccines don't cause " autism " , but something worse - that vaccines

can exacerbate existing conditions - which we rarely ever test for,

which are on the rise, and we don't know what cause them, AND they

might occur in adults as well as kids. This is imortant. Could

adult vaccines have some effect on adults with mito problems that

might be similar to " parts " of the " autism symptom cluter " ? Who knows.

But the government just conceeded that vaccines, just like almost

all other drugs, can cause harm, and may do so quite often, if mito

problems are not as rare as we think. Now I predict the goverenment

will try to do spin-stories on the prevalence of mito disorders, both

in ASD people and in NT's as well.

What the weasel words do is perhaps make it harder for other

families to obtain compensation using this as precedent. Even if

they do show mito problems, who is to say they were there BEFORE the

vaccinations? Or does that even matter - is it known that Hannah had

a mito problem before her vaccines? Could one of the things that

autism do is cause mito problems even in people who don't have them?

Jim

On Mar 6, 2008, at 5:46 PM, Webster wrote:

> It's like they dare not say that she has autism... like they are tap

> dancing...

> Vaccines didn't cause her autism, she got vaccines and now has autism-

> like symptoms.

[Guest guest]

The words annoyed be, b/c they are using them so as to NOT say the vaccines

caused her autism --to hope there are stupid people out there who won't

think she actually has " autism "

--AND in the DK interview on CNNHN, that is exactly what they did, I can't

remember the words just now, but they made it sound like she didn't have

autism at all.

However Jim, you make a good points I didn't think of. By talking about

autism symptoms it can broaden the idea of what vaccine can damage.

Re: am I the only one annoyed about the term " autism like

symptoms " in hannah?

But what's the difference? Operationally, she still has autism,

and will still require treatment. I think these " weasel words "

actually open up a much larger can of worms. They conceeded that

vaccines don't cause " autism " , but something worse - that vaccines

can exacerbate existing conditions - which we rarely ever test for,

which are on the rise, and we don't know what cause them, AND they

might occur in adults as well as kids. This is imortant. Could

adult vaccines have some effect on adults with mito problems that

might be similar to " parts " of the " autism symptom cluter " ? Who knows.

....

[Guest guest]

I do not have A.D.D., inattentive type. I have broad and rapidly changing interests which result in A.D.D.-like symptoms of disorganization and poor time management, including external locus of control related to presence of  grandson with autism-like symptoms...LOL.  Not too bad, I agree.Kathy E.On Mar 6, 2008, at 5:59 PM, Webster wrote:I may start using this spin... I like it...I am not fat, I have symptoms of overweightedness :)anyone else have something they don't really have?

[Guest guest]

LOL yeah… I don’t have that either!!

From:

EOHarm [mailto:EOHarm ] On Behalf Of Kathleen

Eickwort

Sent: Thursday, March 06, 2008 7:00 PM

EOHarm

Subject: Re: Re: am I the only one annoyed about the term

" autism like symptoms " in hannah?

I do not have A.D.D., inattentive type. I have broad and

rapidly changing interests which result in A.D.D.-like symptoms of

disorganization and poor time management, including external locus of control

related to presence of grandson with autism-like symptoms...LOL.

Not too bad, I agree.

Kathy E.

On Mar 6, 2008, at 5:59 PM, Webster wrote:

[Guest guest]

On Mar 6, 2008, at 7:17 PM, M. Webster wrote:

> By talking about autism symptoms it can broaden the idea of what

> vaccine can damage.

>

I just read the post about how the family said they would

vaccinate their other children, and how the CNN people just jumped

out that I assume (I haven't been watching much of the coverage

myself), it looks like the family doesn't get that idea.. And CNN

isn't getting it either - or they're just covering for the CDC

( " doing what they're told? " Nah, too conspiritorial!)

The father did apparently say he would if he vaccinated again he

would space them out and think about which ones to do carefully -

which I would agree wth - maybe - EXCEPT for this - if Hannah has

mito disorder, which presumably IS genetic, would their future kids?

Of coure, I'm sure any future kids would be tested - or have embryos

tested.. shades of Autism Speaks here perhaps - but somthing I would

agree with - given that it's not clear what OTHER harm mito disorder

can lead too in this 'Environment of Harm' (I'm thinking this is an

'*Era* of Harm' more and more).

I sure hope of they do have another child and vaccinate, they

don't end up with 2 kids on the spectrum..

Someone, PLEASE send the father studies on vaccine induced mito

disorders if there are any (, you'd have them). This guy is a

*doctor* for God's sake. As much as I'm coming to not like doctors,

they still should have the sense and ability to *read and pay

attention* to studies (unlike my parents unfortunately). Of course,

if the controversy over Geier's lupron/chelation treatment being

quakery is correct.. I haven't had time, and don't have the energy,

to look into the proposed testosterone/mercury-binding hypothesis

(but if true, why does regular chelation work - unless there are

subtypes of autism which I'm sure they're are) But did anyone else

think Hannah looked a bit 'older' than just 9? Or was that just the

magic of wardrobe and hair people? Of course, we just had the

discussion over on ABMD (and maybe here on EO-Harm too) about the

girls who entered puberty at 3 - and were NT (or not 'classic syptoms

of ASD - who knows, perhaps if Geier is right, then precoucious

puberty is some part of some cases of ASD pathology)

I think in the end 'autism' is going to be found to be at least 5

interrelated problems, and probably about 6 unerlying pathologies,

not all of which are present in all cases. There are probbaly a LOT

of ways to get to the particular brain problems that give you the

'classic signs of autism'. And then there's the REST of the spectrum

to explain.. shading all the way back to NT perhaps.

<semi-rant>

I read the posts about Geier's Lupron protocol being dangerous -

mostly on the ND sites (heck - ALL drugs are dangerous, FDA approved

ones too *caugh* statins...) and I just think it's profoundly sad -

if these ND people are saying these protocols are dangerous, they

should realize that while THEY may want to be autistic or high-

functioning Asperger's, or be content to not integrate well (or

perhaps at all) socially with NTs and be perfectly fine with that..

There are a heck of a lot of parents of kids who DON'T think like

that and DO want 'treatment' (and it's very hard to argue that

'treatment' for regressive autism is not appropriate) if the ND

people *want* to get rid of the dangerous protocols, they should fund

the studies themseles to FIND the protocols that work and are safe..

Of coure, that would put them in the Biomed movement, and either out

of the ND movement/philosophy, or somehow merge the two.. And the ND

people just couldn't have that.. It would " damage their identity as

autistics/aspies-who-want-to-be-aspie " ..

Jim

[Guest guest]

I know... I don't understand that at all --here are parents validated in

knowing that autism was caused by vaccines and they would still do it? They

are still for them?

I don't understand that at all.

I refuse to vax Liam on the chance of same genetics... and with the problems

I have with Liam with ODD behaviors, I am somewhat validated. If Liam had

the same vax's as Gavin there is no doubt in my mind. Hell, when I look at

my own ADHD as a child, OCD and ODD there is no doubt in my mind that being

born in 75 versus 95 saved me from autism.

-----Original Message-----

>

I just read the post about how the family said they would

vaccinate their other children, and how the CNN people just jumped

out that I assume (I haven't been watching much of the coverage

myself), it looks like the family doesn't get that idea.. And CNN

isn't getting it either - or they're just covering for the CDC

( " doing what they're told? " Nah, too conspiritorial!)

The father did apparently say he would if he vaccinated again he

would space them out and think about which ones to do carefully -

which I would agree wth - maybe - EXCEPT for this - if Hannah has

mito disorder, which presumably IS genetic, would their future kids?

[Guest guest]

All the ignorant people in this world who know nothing about it will

listen to all the reports & say, " Well, this kid doesn't have autism,

she has a mito disorder. She doesn't have autism 'cause the news never

called it that. They said on the news shots are okay, so my kid can't

get autism 'cause he/she doesn't have a mito problem. "

My youngest is 5, does not have autism, but does have some " shadow

syndrome. " She had a slight language delay. At age 3 the same speech

path who assessed my daughter with autism took Dinah's history & said,

" I bet anything if Dinah had got shots she'd have autism just like

Allie. "

That's why, at 5 1/2, Dinah will not be receiving any immunizations

unless I feel so moved by The Lord, Who did tell me not to get her any

vaccines... how's that for a religious exemption???

Debi

[Guest guest]

IMO? Excellent!!Peace,Kathy E.On Mar 7, 2008, at 12:38 AM, Debi wrote:That's why, at 5 1/2, Dinah will not be receiving any immunizationsunless I feel so moved by The Lord, Who did tell me not to get her anyvaccines... how's that for a religious exemption???Debi

[Guest guest]

There may be issues we aren't privy to about the

settlement. I noted that Jon Poling at one point

stated " at least now we know the government will take

care of Hannah once we are gone " - doesn't sound like

they are simply getting a settlement but something

more. It may be that they were forced to agree not to

bash vaccines in order to get that " extra " provision

for their daughter, makes sense to me since government

is adamant that nothing stands in the way of the

vaccine program

--- " M. Webster " <jenny@...> wrote:

> I know... I don't understand that at all --here are

> parents validated in

> knowing that autism was caused by vaccines and they

> would still do it? They

> are still for them?

> I don't understand that at all.

>

> I refuse to vax Liam on the chance of same

> genetics... and with the problems

> I have with Liam with ODD behaviors, I am somewhat

> validated. If Liam had

> the same vax's as Gavin there is no doubt in my

> mind. Hell, when I look at

> my own ADHD as a child, OCD and ODD there is no

> doubt in my mind that being

> born in 75 versus 95 saved me from autism.

>

>

> -----Original Message-----

> >

> I just read the post about how the family said

> they would

> vaccinate their other children, and how the CNN

> people just jumped

> out that I assume (I haven't been watching much of

> the coverage

> myself), it looks like the family doesn't get that

> idea.. And CNN

> isn't getting it either - or they're just covering

> for the CDC

> ( " doing what they're told? " Nah, too

> conspiritorial!)

>

> The father did apparently say he would if he

> vaccinated again he

> would space them out and think about which ones to

> do carefully -

> which I would agree wth - maybe - EXCEPT for this -

> if Hannah has

> mito disorder, which presumably IS genetic, would

> their future kids?

>

>

>

________________________________________________________________________________\

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[Guest guest]

As Bob Moffitt posted recently on Age Of Autism's website, " I don't

think many will be comforted by the the fact that their child's

behavior is just " autism-like " as opposed to real autism. " . I think

that sums it up nicely. And - I think this same sentiment will

finally start to sink in even for those with " typical " kids.

When the argument changes from " vaccines don't cause autism " to

" vaccines aggravate cellular disorders causing brain damage including

features of autism - but not autism per se " , I think even the

sleepiest in the audience will start to notice the trap door under the

cage.

>

> All the ignorant people in this world who know nothing about it will

> listen to all the reports & say, " Well, this kid doesn't have autism,

> she has a mito disorder. She doesn't have autism 'cause the news never

> called it that. They said on the news shots are okay, so my kid can't

> get autism 'cause he/she doesn't have a mito problem. "

>

> My youngest is 5, does not have autism, but does have some " shadow

> syndrome. " She had a slight language delay. At age 3 the same speech

> path who assessed my daughter with autism took Dinah's history & said,

> " I bet anything if Dinah had got shots she'd have autism just like

> Allie. "

>

> That's why, at 5 1/2, Dinah will not be receiving any immunizations

> unless I feel so moved by The Lord, Who did tell me not to get her any

> vaccines... how's that for a religious exemption???

>

> Debi

>

[Guest guest]

I know families who used " autistic like symptoms " as a reason to stay in

denial and later regretted the lost intervention time.

> >

> > All the ignorant people in this world who know nothing about it will

> > listen to all the reports & say, " Well, this kid doesn't have

autism,

> > she has a mito disorder. She doesn't have autism 'cause the news

never

> > called it that. They said on the news shots are okay, so my kid

can't

> > get autism 'cause he/she doesn't have a mito problem. "

> >

> > My youngest is 5, does not have autism, but does have some " shadow

> > syndrome. " She had a slight language delay. At age 3 the same speech

> > path who assessed my daughter with autism took Dinah's history &

said,

> > " I bet anything if Dinah had got shots she'd have autism just like

> > Allie. "

> >

> > That's why, at 5 1/2, Dinah will not be receiving any immunizations

> > unless I feel so moved by The Lord, Who did tell me not to get her

any

> > vaccines... how's that for a religious exemption???

> >

> > Debi

> >

>

[Guest guest]

in a way i think there's a certain amount of denial in all of us - for

some it lasts seconds, for others months - there's always some kind of

state of shock for some duration, IMHO...

to your point - this is a great example of how effective the right

words can be - especially designed to help one find some comfort in

doing nothing. when parents do this to themselves to themselves, it's

tragic. when these " experts " use it to keep the lid on, its something

else altogether

> > >

> > > All the ignorant people in this world who know nothing about it will

> > > listen to all the reports & say, " Well, this kid doesn't have

> autism,

> > > she has a mito disorder. She doesn't have autism 'cause the news

> never

> > > called it that. They said on the news shots are okay, so my kid

> can't

> > > get autism 'cause he/she doesn't have a mito problem. "

> > >

> > > My youngest is 5, does not have autism, but does have some " shadow

> > > syndrome. " She had a slight language delay. At age 3 the same speech

> > > path who assessed my daughter with autism took Dinah's history &

> said,

> > > " I bet anything if Dinah had got shots she'd have autism just like

> > > Allie. "

> > >

> > > That's why, at 5 1/2, Dinah will not be receiving any immunizations

> > > unless I feel so moved by The Lord, Who did tell me not to get her

> any

> > > vaccines... how's that for a religious exemption???

> > >

> > > Debi

> > >

> >

>

[Guest guest]

I can hear the doctor now telling the family,I have good news for

you, your child does not have autism he only has autism like symptoms.

> >

> > All the ignorant people in this world who know nothing about it

will

> > listen to all the reports & say, " Well, this kid doesn't have

autism,

> > she has a mito disorder. She doesn't have autism 'cause the news

never

> > called it that. They said on the news shots are okay, so my kid

can't

> > get autism 'cause he/she doesn't have a mito problem. "

> >

> > My youngest is 5, does not have autism, but does have some " shadow

> > syndrome. " She had a slight language delay. At age 3 the same

speech

> > path who assessed my daughter with autism took Dinah's history &

said,

> > " I bet anything if Dinah had got shots she'd have autism just like

> > Allie. "

> >

> > That's why, at 5 1/2, Dinah will not be receiving any

immunizations

> > unless I feel so moved by The Lord, Who did tell me not to get

her any

> > vaccines... how's that for a religious exemption???

> >

> > Debi

> >

>

[Guest guest]

" Autistic Like Symptoms " Hmmmm... My severely autistic daughter has

these. Maybe she is not autistic after all...

> > >

> > > All the ignorant people in this world who know nothing about it

> will

> > > listen to all the reports & say, " Well, this kid doesn't have

> autism,

> > > she has a mito disorder. She doesn't have autism 'cause the news

> never

> > > called it that. They said on the news shots are okay, so my kid

> can't

> > > get autism 'cause he/she doesn't have a mito problem. "

> > >

> > > My youngest is 5, does not have autism, but does have some " shadow

> > > syndrome. " She had a slight language delay. At age 3 the same

> speech

> > > path who assessed my daughter with autism took Dinah's history &

> said,

> > > " I bet anything if Dinah had got shots she'd have autism just like

> > > Allie. "

> > >

> > > That's why, at 5 1/2, Dinah will not be receiving any

> immunizations

> > > unless I feel so moved by The Lord, Who did tell me not to get

> her any

> > > vaccines... how's that for a religious exemption???

> > >

> > > Debi

> > >

> >

>

[Guest guest]

ha you think its funny, but, I don't because I've been

told that (more than once)

--- <rng777@...> wrote:

> I can hear the doctor now telling the family,I have

> good news for

> you, your child does not have autism he only has

> autism like symptoms.

>

>

> > >

> > > All the ignorant people in this world who know

> nothing about it

> will

> > > listen to all the reports & say, " Well, this kid

> doesn't have

> autism,

> > > she has a mito disorder. She doesn't have autism

> 'cause the news

> never

> > > called it that. They said on the news shots are

> okay, so my kid

> can't

> > > get autism 'cause he/she doesn't have a mito

> problem. "

> > >

> > > My youngest is 5, does not have autism, but does

> have some " shadow

> > > syndrome. " She had a slight language delay. At

> age 3 the same

> speech

> > > path who assessed my daughter with autism took

> Dinah's history &

> said,

> > > " I bet anything if Dinah had got shots she'd

> have autism just like

> > > Allie. "

> > >

> > > That's why, at 5 1/2, Dinah will not be

> receiving any

> immunizations

> > > unless I feel so moved by The Lord, Who did tell

> me not to get

> her any

> > > vaccines... how's that for a religious

> exemption???

> > >

> > > Debi

> > >

> >

>

>

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Last week I had a cold ...make that cold-like symptoms! And the week

before that I had a sprained ankle...make that sprained ankle-like

symptoms. And if I hear " autistic-like symptoms " one more time I'm

going to puke...make that puke-like symptoms. These assholes!

Charlie

>

>

> " Autistic Like Symptoms " Hmmmm... My severely autistic daughter has

> these. Maybe she is not autistic after all...

[Guest guest]

Yeah, actually, they call it PDD-NOS...

A friend of mine was recently so happy b/c he son was not dx'd with autism,

but with PDD-NOS.

I didn't have the heart to tell her its still ASD --well, I mean... she

knows its an ASD, she just doesn't get it yet.

She is doing all the therapies, so her exact understanding of PDDNOS isn't

going to change anything right now.

I am slowly working into conversations for her.

Re: am I the only one annoyed about the term " autism like

symptoms " in hannah?

I can hear the doctor now telling the family,I have good news for

you, your child does not have autism he only has autism like symptoms.

>

[Guest guest]

This "autism-like stuff" is total B.S. It took me several years to get my youngest son diagnosed with "autism" or ASD/PDD. Before the diagnosis, he received little help from our school system. After the "diagnosis", he received more assistance. Depending upon where you live, you need to be ever watchful of the situation, because not all teachers are aware of supports available, for kids diagnosed with ASD. One of my colleagues was complaining to me today, that an Autism Team person will be visiting them soon after the March Break to help figure out how to help a certain student in the class, who has been at our school since last school year. I can't understand why the Autism Team person is coming to our school NOW, after this boy has already been at our school for more than a year, with his teachers scratching their heads (so to speak), wondering how they could help him. A little late, in my mind, especially as they need to get a plan

together to help this boy transition into secondary school, as he will be entering a secondary school next fall. Aasa "Amy W. Osborne" <amesw@...> wrote: ha you think its funny, but, I don't because I've beentold that (more than once)--- <rng777gmail> wrote:> I can hear the doctor now telling the family,I have> good news for > you, your child does not have autism he only has> autism like

symptoms.> > > > >> > > All the ignorant people in this world who know> nothing about it > will> > > listen to all the reports & say, "Well, this kid> doesn't have > autism,> > > she has a mito disorder. She doesn't have autism> 'cause the news > never> > > called it that. They said on the news shots are> okay, so my kid > can't> > > get autism 'cause he/she doesn't have a mito> problem." > > > > > > My youngest is 5, does not have autism, but does> have some "shadow> > > syndrome." She had a slight language delay. At> age 3 the same > speech> > > path who assessed my daughter

with autism took> Dinah's history & > said,> > > "I bet anything if Dinah had got shots she'd> have autism just like> > > Allie." > > > > > > That's why, at 5 1/2, Dinah will not be> receiving any > immunizations> > > unless I feel so moved by The Lord, Who did tell> me not to get > her any> > > vaccines... how's that for a religious> exemption???> > > > > > Debi> > >> >> > > __________________________________________________________Never miss a thing. Make your home page. http://www./r/hs

[Guest guest]

If it's not " autism " then schools should drop every child with an IEP,

doctors should go to jail for misdiagnosis, departments of disability

services should drop their case loads, SSI should take back millions in

payments, group homes should slam their doors shut and we all can

finally rest at night know our kids aren't actually autistic, right?

And what exactly was the point of the Autism Speaks " Learn the Signs "

campaign? I should think those folks are a bit miffed. Funny, I havent'

seen much from them yet.

>

> This " autism-like stuff " is total B.S.