Re: My personal info

[Guest guest]

Hi Debbie,

Welcome to our group! Wow! We are growing. You have probably seen all the

welcomes to Katy, so I won't repeat myself, other than saying I have boy/girl

twins, Sara, who has DS and , who does not. They are five. We live in

Sisters, Oregon. You must be an incredibly busy mom. So glad you joined us.

I look forward to hearing more about you and your family.

Marcia

Mom to Sara (DS) and 5 and Lucas 9

[Guest guest]

Hi Debbie,

Welcome, I'm Kelli and I have 6 children. 2 singles and 2 sets of twins.

This is a really great place for support and a little of everthing. All

these moms are really great women and I have learned alot just being

here for a couple months. I can't wait to hear more about your kids!

Kelli....The old woman who lives in a shoe, she has so many kids,

they're doing her in! mom to , Greg, Twins...set A- April & Ash,

and set B- (ds) & Tyler (age 4).

[Guest guest]

Welcome Debbie!

I am 2, mother of four, who did the same thing you did to find a

kindred group. I called Twins Magazine. They told me of two other

families, but it was a couple of years before this group was formed. I felt

very much alone, as I live rurally and there weren't other ds children in

our area. I'm also an *older* mom, so don't have lots of friends with small

children. Lots of adopted 'grandmas' though!!

Although I post infrequently, I read each message, often several times. I

have found inspiration and unbelievable support and sharing of information.

This is an amazing group of loving parents and friends.

You are awesome to have packed those twins around!! Good job! I delivered

one month early, and still was big as a house. Brett (ds) was only 5 lbs.

10 oz...at 37 mos he is blessed with good health (we're checking again on

hearing and thyroid) and similar chart growth to your . was

barely 4 lbs. when we brought her home. Brett still outweighs her by almost

5 lbs.

I live in Oregon, a couple of hours from Marcia in Sisters. Montana is a

beautiful state...hope you enjoy it there.

Also...way to go Skylar! And a warm welcome to Katy!!!

I enjoyed hearing of the success of the ds support group. We are trying to

start a group in the Eugene, OR area, but it is difficult to get a majority

of the 8-10 moms/dads to come monthly. Any suggestions are more than

welcome. I'm in charge of next month's meeting. How can I get this group

growing? Our first meeting was a tearful/joyful sharing. It felt like we

bonded...but several months later interest is dwindling. Brett is the

oldest member of the group (other than siblings).

2

mom of Laurel 13, Niles 11, Brett (ds) and 3

[Guest guest]

Hey there Debbie!! Carolyn from New Zealand again!! WOW 5 children!

Congrats to you and Katy on your twins! I have 4 kids and my youngest 2

both have DS. Emma 4 and Nicki 3 are the best of friends although you

wouldn't know it watching them today trying to annihilate each other!! (My

sister and I still do that!!). Welcome to the group - you will find great

support, information and friendship here!

Carolyn

Mum to on, , Emma (ds) and Nicki (ds)

>From: " & Debbie Drap " <fivexblessed@...>

>Reply-Multiples-DSegroups

><Multiples-DSegroups>

>Subject: My personal info

>Date: Fri, 28 Apr 2000 21:30:41 -0600

>

>Hi, my name is Debbie Drap and I am the mother of 7 year old , 5 1/2

>year old , 4 year old and 10 month old fraternal twin

>boys- and . We got 2 surprises on July 6 1999, the day of

>my planned c-section. weighed in at a whopping 10 pounds 1 ounce

>and his brother weighed in at 7 pounds 9 ounces and has Down

>Syndrome. ' overall health is great. He had a moderate atrial

>septum defect that closed to within normal range by the time he was three

>months old. My husband and I are both tall and not small people, so

> has the advantage of being in the 50th percentile for his height

>and weight right now for typical kids and 80% for Downs. At their 9 month

>check up they weighed 25 ()and 20 pounds (). has

>had digestive problems and hearing difficulties, but I feel we are close to

>finally diagnosing and managing them.

>I recently wrote a penpal letter to Twins Magazine looking for other

>parents of mutiples where one has DS and they just published it in their

>May/June issue. Katy

>Touve wrote to me and directed me to your web site. I was thrilled.

>I knew there were other parents in the same situation out there and I am

>glad to have finally found them. I have always gotten some of my best info

>on issues concerning my children from other parents.

>My husband is in the Air Force and we just moved this past January to Great

>Falls, Montana.

>I look forward to all the support and information.

________________________________________________________________________

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[Guest guest]

Welcome Debbie and family,

We are the Comas family, my husband, my name is Mabel and my 13 months

old triplets Carolina, Cristian and a-ds, so far she is doing good.

And the three of them keeping me busy all the time. This list is an

excellent place to be.

Mabel, mom to Carolina, Cristian and a

>From: " & Debbie Drap " <fivexblessed@...>

>Reply-Multiples-DSegroups

><Multiples-DSegroups>

>Subject: My personal info

>Date: Fri, 28 Apr 2000 21:30:41 -0600

>

>Hi, my name is Debbie Drap and I am the mother of 7 year old , 5 1/2

>year old , 4 year old and 10 month old fraternal twin

>boys- and . We got 2 surprises on July 6 1999, the day of

>my planned c-section. weighed in at a whopping 10 pounds 1 ounce

>and his brother weighed in at 7 pounds 9 ounces and has Down

>Syndrome. ' overall health is great. He had a moderate atrial

>septum defect that closed to within normal range by the time he was three

>months old. My husband and I are both tall and not small people, so

> has the advantage of being in the 50th percentile for his height

>and weight right now for typical kids and 80% for Downs. At their 9 month

>check up they weighed 25 ()and 20 pounds (). has

>had digestive problems and hearing difficulties, but I feel we are close to

>finally diagnosing and managing them.

>I recently wrote a penpal letter to Twins Magazine looking for other

>parents of mutiples where one has DS and they just published it in their

>May/June issue. Katy

>Touve wrote to me and directed me to your web site. I was thrilled.

>I knew there were other parents in the same situation out there and I am

>glad to have finally found them. I have always gotten some of my best info

>on issues concerning my children from other parents.

>My husband is in the Air Force and we just moved this past January to Great

>Falls, Montana.

>I look forward to all the support and information.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi Debbie & welcome!!!! What a great family!!! What a fantastic

birth!!!!!!!!!!!!!!!!!!!! WOW!!! I thought I did good at 39 weeks 5 days

with twins Rudy (ds) 6lbs 8ozs & 6lbs 4ozs!!! They are now 13 years

old so that qualifies me as the " old pro " in the group. One mom has a son

older than my Rudman. Rudy is in 6th grade in a self contained living skills

class and doing great. He is active in Special Olympics and loves his action

figures!!! He and his twin, the ever darling , are very very close.

is a natural mother and has stuck by Rudy through it all.

You will find lots of love, cyber hugs, knowledge, shoulders, and laughs

here. Great bunch!!!!

1

[Guest guest]

Welcome Debbie, you are going to love this group. My name is Diane and I live

in the Seattle are, so we are at least on the some side of the US!! I have

boy/girl twins who are 3 1/2. and (ds) I also have an older son

Adam who is 8. You are truly amazing! Five kids, wow!

Diane

[Guest guest]

Hi Debbie, and WELCOME! Hey " guys " we made it into " Twins magizine " WOW

That's great you found us! I'm Gail and Mom to Bobby 6, Jillian 3 1/2,

and and Tara{ds} 13 months! ALMOST as many children as you Debbie!

I hope you will love it here, as I do!

Gail..........from New Jersey

> Hi, my name is Debbie Drap and I am the mother of 7 year old , 5

> 1/2 year old , 4 year old and 10 month old fraternal

> twin boys- and . We got 2 surprises on July 6 1999,

> the day of my planned c-section. weighed in at a whopping 10

> pounds 1 ounce and his brother weighed in at 7 pounds 9

> ounces and has Down Syndrome. ' overall health is great. He

> had a moderate atrial septum defect that closed to within normal range

> by the time he was three months old. My husband and I are both tall

> and not small people, so has the advantage of being in the

> 50th percentile for his height and weight right now for typical kids

> and 80% for Downs. At their 9 month check up they weighed 25

> ()and 20 pounds (). has had digestive

> problems and hearing difficulties, but I feel we are close to finally

> diagnosing and managing them.

> I recently wrote a penpal letter to Twins Magazine looking for other

> parents of mutiples where one has DS and they just published it in

> their May/June issue. Katy

> Touve wrote to me and directed me to your web site. I was thrilled.

> I knew there were other parents in the same situation out there and I

> am glad to have finally found them. I have always gotten some of my

> best info on issues concerning my children from other parents.

> My husband is in the Air Force and we just moved this past January to

> Great Falls, Montana.

> I look forward to all the support and information.

> ----------------------------------------------------------------------

> [ebates.com - up to 25% cash back for shopping online.]

> ----------------------------------------------------------------------

> http://DSyndrome.com/Multiples

[Guest guest]

Hi Debbie,

Welcome to our list of extended family members.

My name is and I have 23 month old boy/girl twins. has Down

Syndrome and Sloan Isis does not.They will be celebrating their 2nd Birthday on

Saturday.

Vinnie is walking and now is trying to run.

He has always been monkey see monkey do with his sister.

Just a little funny from last night,we had been in the garage getting dog food.I

told Vinnie to come in,Sloan was in the doorway,she patted her legs and did

kissing noise like she was calling the pups in from outside.LOL Vinnie started

patting his legs as he was walking back in the house.

Sloan is very helpful and watchful of Vinnie.

I look forward to hearing more about you and you family.

~

[Guest guest]

Welcome Debbie and Janice. I'm glad you both have joined. My name is Kim and I have boy/girl twins, Abigail and Ds. They are 2 1/2 and I have an older daughter, Mikayla, who is almost 5. I live in Washington, north of Seattle. This is a wonderful group. I hope you enjoy it.

Again Welcome!

Kim mom to Abigail and Ds - 2 1/2 and Mikayla - 4

My personal info

Hi, my name is Debbie Drap and I am the mother of 7 year old , 5 1/2 year old , 4 year old and 10 month old fraternal twin boys- and . We got 2 surprises on July 6 1999, the day of my planned c-section. weighed in at a whopping 10 pounds 1 ounce and his brother weighed in at 7 pounds 9 ounces and has Down Syndrome. ' overall health is great. He had a moderate atrial septum defect that closed to within normal range by the time he was three months old. My husband and I are both tall and not small people, so has the advantage of being in the 50th percentile for his height and weight right now for typical kids and 80% for Downs. At their 9 month check up they weighed 25 ()and 20 pounds (). has had digestive problems and hearing difficulties, but I feel we are close to finally diagnosing and managing them.

I recently wrote a penpal letter to Twins Magazine looking for other parents of mutiples where one has DS and they just published it in their May/June issue. Katy

Touve wrote to me and directed me to your web site. I was thrilled.

I knew there were other parents in the same situation out there and I am glad to have finally found them. I have always gotten some of my best info on issues concerning my children from other parents.

My husband is in the Air Force and we just moved this past January to Great Falls, Montana.

I look forward to all the support and information.

I am the Grandmother of twin boys 10 months old and the youngest one has DS. He is my special angel and I would like to share some of my experiences with others and would like others to share their stories with me. I am actively involved with my daughter and her family of 5 children, the oldest being 6 (7 the end of June) and the youngest are the twins. My daughter is also requesting to join this group and I hope I will be allowed even though I am not the parent.

Thanks.

http://DSyndrome.com/Multiples

[Guest guest]

Hi Debbie & Welcome to the group!

I'm Judi, mom to Sam & . They are identical

twins (yup, they both have DS), and are three years

old. My, but your boys are big!!! weighs

almost as much as Sam & ! (They weigh about

27-28lbs, but they are tall, 36 " ). Sam & were

26 weeker preemies, weighed in at slightly over 2lbs a

piece, spent 16 and 18 weeks in NICU. had

surgery to close his PDA at 8 days old and surgery

again at 4 mos to correct " intestinal malrotation " .

Sam had cardiac cath to close his PDA via coil (it was

great, he only spent 1 night in the hospital). Both

boys had adenoidectomy and tubes in Sept.

Again, welcome and we look forward to hearing more

about your family in the future!

Judi-Mom to Sam & , 3, Identical Twins

--- & Debbie Drap <fivexblessed@...>

wrote:

> Hi, my name is Debbie Drap and I am the mother of 7

> year old , 5 1/2 year old , 4 year

> old and 10 month old fraternal twin

> boys- and . We got 2 surprises on

> July 6 1999, the day of my planned c-section.

> weighed in at a whopping 10 pounds 1 ounce

> and his brother weighed in at 7 pounds 9

> ounces and has Down Syndrome. ' overall

> health is great. He had a moderate atrial septum

> defect that closed to within normal range by the

> time he was three months old. My husband and I are

> both tall and not small people, so has the

> advantage of being in the 50th percentile for his

> height and weight right now for typical kids and 80%

> for Downs. At their 9 month check up they weighed

> 25 ()and 20 pounds (). has

> had digestive problems and hearing difficulties, but

> I feel we are close to finally diagnosing and

> managing them.

> I recently wrote a penpal letter to Twins Magazine

> looking for other parents of mutiples where one has

> DS and they just published it in their May/June

> issue. Katy

> Touve wrote to me and directed me to your web site.

> I was thrilled.

> I knew there were other parents in the same

> situation out there and I am glad to have finally

> found them. I have always gotten some of my best

> info on issues concerning my children from other

> parents.

> My husband is in the Air Force and we just moved

> this past January to Great Falls, Montana.

> I look forward to all the support and information.

>

__________________________________________________