Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 , Our EI experience has been real good. They have a coordinator responsible for ensuring we have all that we need. The parent to parent support person calls once a month to say hello and has hooked us up with other families that live close to us. She's the best. They offer a coffee hour support time two different evenings a month (based on the age of your child with a disability so you can relate to the other folks there). One thing I might emphasize is for the EI team to ensure the parents are understanding the process and goals of the assessments done by the PT/ST/OT. When our had her initial assessment, since she had no problem sucking, we did not have a ST assess her. I was told just a week ago that the EI team should have done the assessment anyway - even though I was saying no. I was uneducated and therefore should not have been the one saying my daughter did not need ST at the time. I guess I'm saying that the EI team needs to be sure and cover all bases because many parents are still not fully educated on DS right after the baby is born - especially when you have triplets! There's no time to sleep those first couple months, let alone read numerous books on DS. We rely on the EI team for education as well. is now 7 mos. and having her first " official " assessment by an ST on Monday. Did anyone else wait this long? I don't know yet if she is even behind or how far behind she is until the assessment is done. When did all of you start ST with your children? Kay Tiernan Quote Link to comment Share on other sites More sharing options...
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