Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 WOW Judi, I wonder if this is a first EVER!! > that there was a family in the unit who just had > triplets, and two of the babies have DS!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Judi, I am sure that couple is going through some mixed up emotions right now. I hope they call someone and reach out. It really does help to talk about it. This list is the best place to get it!! I hope to see them here! Pam mom to Hannah and identical twins age 4. Judi Grossman wrote: > From: Judi Grossman <judig2@...> > > Hi All! > I think I may have mentioned before that Mike and I > (and Sam and ) occasionally are asked to come > and be " guests " at Parent Support meetings that the > NICU where we had the boys. We talk about our long > NICU stay, how we coped, etc. Kind of gives hope and > inspiration to other parents going thru similar > situation, plus, they always love seeing the boys. > And, on one occasion there was a family there who's > daughter was just diagnosed w/DS, so we spent a long > time with them. Anyway, we got a call yesterday from > the social worker at the hospital wanting to have us > come in for a meeting next month. She also mentioned > that there was a family in the unit who just had > triplets, and two of the babies have DS!!! Very > unusual. She didn't have a lot of details, she just > knew that they shared a sac and they both had DS and > the other baby did not and that the mother did not to > ivf or fertility drugs. I'm assuming that these > babies were identical twins and the 3rd baby was a > " bonus " . Of course, I told her to please pass on our > name and telephone number. If they call, or we get to > meet them at the support meeting, I'll let you know, > plus, if I find out the family is on the 'net, I'll > give them the info to join the list and the club. > Judi-Mom to Sam & , 3, Identical Twins > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 My thoughts exactly Pam! I know when I had the boys, the local support group was wonderful, but no one else had two kids, and I always felt " different " . That's why I offered our name & number, so they would know they had someone out there w/a similar situation. That, plus this list has been a lifesaver for me! Judi --- Pam Houser <phouser@...> wrote: > Judi, > I am sure that couple is going through some mixed up > emotions right now. I > hope they call someone and reach out. It really does > help to talk about it. > This list is the best place to get it!! I hope to > see them here! > > Pam mom to Hannah and identical twins age 4. > > Judi Grossman wrote: > > > From: Judi Grossman <judig2@...> > > > > Hi All! > > I think I may have mentioned before that Mike and > I > > (and Sam and ) occasionally are asked to > come > > and be " guests " at Parent Support meetings that > the > > NICU where we had the boys. We talk about our > long > > NICU stay, how we coped, etc. Kind of gives hope > and > > inspiration to other parents going thru similar > > situation, plus, they always love seeing the boys. > > And, on one occasion there was a family there > who's > > daughter was just diagnosed w/DS, so we spent a > long > > time with them. Anyway, we got a call yesterday > from > > the social worker at the hospital wanting to have > us > > come in for a meeting next month. She also > mentioned > > that there was a family in the unit who just had > > triplets, and two of the babies have DS!!! Very > > unusual. She didn't have a lot of details, she > just > > knew that they shared a sac and they both had DS > and > > the other baby did not and that the mother did not > to > > ivf or fertility drugs. I'm assuming that these > > babies were identical twins and the 3rd baby was a > > " bonus " . Of course, I told her to please pass on > our > > name and telephone number. If they call, or we > get to > > meet them at the support meeting, I'll let you > know, > > plus, if I find out the family is on the 'net, > I'll > > give them the info to join the list and the club. > > Judi-Mom to Sam & , 3, Identical Twins > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 thats so cool! I would like to do that too. I think its a great thing for new parents! You can bring them a hope and a joy that no Dr. ever could! --- Judi Grossman <judig2@...> wrote: > Hi All! > I think I may have mentioned before that Mike and I > (and Sam and ) occasionally are asked to come > and be " guests " at Parent Support meetings that the > NICU where we had the boys. We talk about our long > NICU stay, how we coped, etc. Kind of gives hope > and > inspiration to other parents going thru similar > situation, plus, they always love seeing the boys. > And, on one occasion there was a family there who's > daughter was just diagnosed w/DS, so we spent a long > time with them. Anyway, we got a call yesterday > from > the social worker at the hospital wanting to have us > come in for a meeting next month. She also > mentioned > that there was a family in the unit who just had > triplets, and two of the babies have DS!!! Very > unusual. She didn't have a lot of details, she just > knew that they shared a sac and they both had DS and > the other baby did not and that the mother did not > to > ivf or fertility drugs. I'm assuming that these > babies were identical twins and the 3rd baby was a > " bonus " . Of course, I told her to please pass on > our > name and telephone number. If they call, or we get > to > meet them at the support meeting, I'll let you know, > plus, if I find out the family is on the 'net, I'll > give them the info to join the list and the club. > Judi-Mom to Sam & , 3, Identical Twins > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Pam...I dont know how I could handle my situation if not for my hubby! It is hard if the husband doesnt have a role in their care! My hubby doesnt do alot in school and therapy stuff etc...but he sure does help w/ everything else! You sure are not alone here!! --- Pam Houser <phouser@...> wrote: > Judi, > > I also felt different and very much alone. My > husband never would talk > to me about it or help me as far as therapy goes. > Heck he didn't even > know how to get to the place I had been taking them > for 4 years for > therapy! Nor did he know where they were going to > school for 3 days a > week. Well he is no longer in our life. This list is > all I got and even > though I don't post very often It is just nice > reading what all everyone > has to say-that way I know I am not alone. I love > it!!!! And all of > you!! > > Pam mom to Hannah and 4 identical twins > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Gosh Pam, I don't know how you do it all alone! I admire you. Do you have family/friends that sometimes help out or give you a break? I know what you mean about how much the list means to you and I feel the same way! Sometimes I wish we all lived around the corner from each other and could pop-in for coffee, borrow a cup of sugar, or gossip over the back-fence while hanging out the wash.....I guess this is the " cyber " equivalent! Judi --- Pam Houser <phouser@...> wrote: > Judi, > > I also felt different and very much alone. My > husband never would talk > to me about it or help me as far as therapy goes. > Heck he didn't even > know how to get to the place I had been taking them > for 4 years for > therapy! Nor did he know where they were going to > school for 3 days a > week. Well he is no longer in our life. This list is > all I got and even > though I don't post very often It is just nice > reading what all everyone > has to say-that way I know I am not alone. I love > it!!!! And all of > you!! > > Pam mom to Hannah and 4 identical twins > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Pam Houser wrote: > > From: Pam Houser <phouser@...> > > Judi, > > I also felt different and very much alone. My husband never would talk > to me about it or help me as far as therapy goes. Heck he didn't even > know how to get to the place I had been taking them for 4 years for > therapy! Nor did he know where they were going to school for 3 days a > week. Well he is no longer in our life. This list is all I got and even > though I don't post very often It is just nice reading what all everyone > has to say-that way I know I am not alone. I love it!!!! And all of > you!! > > Pam mom to Hannah and 4 identical twins > Nice to hear those kind words, Pam! Sorry your are a single parent, I know it's tough, my parents divorced when I was 15{I'm one of 4 girls}and my mother{now decieced}was in college part time and did get her 4 yr degree, eventually!{Unfortunately, she died 2 months later}that was 16 years ago, I'm a mother now of 4, and a child with special needs, I really could have used her words of wisdom!She was tough but loving! Hope you have a good support system around you, family/friends/US! Gail........Bobby 6, Jillian 3.5, and now Tara 11 months today! > ------------------------------------------------------------------------ > Shop the web for great deals. Save on Computers, > electronics, Home furnishings and more. > 1/1559/1/_/_/_/951332885/ > ------------------------------------------------------------------------ > > http://DSyndrome.com/Multiples Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Judi Grossman wrote: > > From: Judi Grossman <judig2@...> > > Gosh Pam, I don't know how you do it all alone! I > admire you. Do you have family/friends that sometimes > help out or give you a break? > I know what you mean about how much the list means to > you and I feel the same way! Sometimes I wish we all > lived around the corner from each other and could > pop-in for coffee, borrow a cup of sugar, or gossip > over the back-fence while hanging out the wash.....I > guess this is the " cyber " equivalent! > Judi > Judi, I feel the same way too!!!!!!!!!!!Wish we could all be together. And P.S. to Pam, my husband doesn't help out with the day to day stuff with any of our kids, but just very recently{after reading him the riot act!} got a nice note thanking me for being home with the kids and stayiong on top of the things " we " need to do for Tara......that should last me for another 6 months!!! Gail.........Bobby........Jillian....... and Tara! > --- Pam Houser <phouser@...> wrote: > > Judi, > > > > I also felt different and very much alone. My > > husband never would talk > > to me about it or help me as far as therapy goes. > > Heck he didn't even > > know how to get to the place I had been taking them > > for 4 years for > > therapy! Nor did he know where they were going to > > school for 3 days a > > week. Well he is no longer in our life. This list is > > all I got and even > > though I don't post very often It is just nice > > reading what all everyone > > has to say-that way I know I am not alone. I love > > it!!!! And all of > > you!! > > > > Pam mom to Hannah and 4 identical twins > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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