Guest guest Posted December 17, 1999 Report Share Posted December 17, 1999 : That was me who scared you yesterday w/ messenger!!! Why didn't you say hello?????? We just went thru some training given by our support group and the DS clinic at children's here in Dallas for just the thing you are wanting to do. I have some handouts at home and if you can wait until Tues. I'll try to scan them and e:mail to you. I think the gist of the training was to be supportive and tell about what works for your family, etc. and not just rely on " everything will be fine " because as we all know, situations/health, etc. can change in a blink of your eye. Let them know what services, support, etc. is available, recommend books, videos, etc. Let me know! Judi --- <lauranra@...> wrote: <HR> <!DOCTYPE HTML PUBLIC " -//W3C//DTD HTML 4.0 Transitional//EN " > <HTML><HEAD> <META content= " text/html; charset=iso-8859-1 " http-equiv=Content-Type> <META content= " MSHTML 5.00.2614.3500 " name=GENERATOR> <STYLE></STYLE> </HEAD> <BODY bgColor=#ffffff> <DIV><FONT face=Arial>Hi Everyone;</FONT></DIV> <DIV><FONT face=Arial> & nbsp; & nbsp; & nbsp; & nbsp; Here is your chance.....what would you say to a new mom of a ds baby? & nbsp; My husband and are at the top of our local ds association (my hubby being the President) and just got a call from the geneticist wanting US (even tho we aren't the hospital visiting people) to visit with two new families of ds babies. & nbsp; Mainly she wanted US to visit because one of the families is the parents boy girl/boy twins...the girl has ds. & nbsp; Any advise on what to say/or hand out (reference materials) would be appreciated. & nbsp;</FONT></DIV> <DIV><FONT face=Arial> & nbsp; & nbsp; & nbsp; & nbsp;...was that you who scared the crap out of me with the messenger?....I just installed it and have never heard the knocking/door closing noises before. & nbsp; was on oxygen for 5 months...non-stop. & nbsp; To a high degree...he was totally intubated (tube up his nose and down into his lungs) for three months....high oxygen levels, and flow rate. & nbsp; The next two months he was on constant low flow oxygen (c-pap) .....they wanted to send him home from the hospital with oxygen but my hubby and I finally convinced the dr's to just try him off of it and once it came out it never went back in.....he did come home on monitors tho. & nbsp; I am interested in meeting other parents who's ds children have been on oxygen for extended periods of time to see what their functioning levels are. & nbsp; The reason being because if you believe all the stuff about people with ds being under oxidative stress then my son should be VERY low functioning because of the high degrees of oxygen exposure. & nbsp; I think is doing pretty well except for in the speech area. & nbsp; </FONT></DIV> <DIV> & nbsp;</DIV> <DIV><FONT face=Arial>, mom to twins Nicala & amp; ,ds (3) and (1)</FONT></DIV></BODY></HTML> ------------------------------------------------------------------------ <pre> http://DSyndrome.com/Multiples</pre> <HR> <html> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 1999 Report Share Posted December 17, 1999 > : That was me who scared you yesterday w/ > messenger!!! Why didn't you say hello?????? Don't know what I am doing yet!! Sure Judi, any hand out would be great. I am meeting with the new parents tomorrow but I can always use the hand outs in the future. Thanks; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 1999 Report Share Posted December 17, 1999 On the messenger, when the box popsup, just type in the bottom white bar and either hit return or send and it will reply. It's like being in the chatroom, but with just two people. I'll get you the stuff next week! Judi --- <lauranra@...> wrote: > > : That was me who scared you yesterday > w/ > > messenger!!! Why didn't you say hello?????? > Don't know what I am doing yet!! > > Sure Judi, any hand out would be great. I am > meeting with the new parents > tomorrow but I can always use the hand outs in the > future. > > Thanks; > > > > > ------------------------------------------------------------------------ > http://DSyndrome.com/Multiples > <HR> <html> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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