Re: Twin A or B have DS?.... Survey

January 11, 2000

In our case baby C was the one with Down syndrome but we didn't found out

until I have them. I had ultarsounds monthly and never showed anything wrong

with a. It was until 8 hours after I had them when I went with my

mother to see the babies at NICU when I saw a and just looking to her

face I knew she had ds. Does anyone of you with triplets knew previously you

are having a baby with ds? Have some of you have read the book " Babies with

Down Syndrome " ? In the hospital they recommend us that book and finaly last

week I bought it.

Mabel and the triplets

>From: Huckabee <ahuckabee@...>

>Reply-Multiples-DSonelist

>Multiples <multiples-dsonelist>

>Subject: Twin A or B have DS?.... Survey

>Date: Tue, 11 Jan 2000 07:22:47 -0800 (PST)

>

>HI Everyone,

> and I had a discussion in the chat last

>night about whether it was twin A or B that was

>diagnosed with DS. A doctor told another mom that it

>was usually twin B that experiences the problems. I

>found this very interesting. When we polled the moms

>in the chat last night, twin B won 5 to 1. I thought

>it would be neat to do a survey and tally it.If you

>answered the question last night, please respond to

>this. I can't remember who you are. Please participate

>and I'll record the findings and post it to the list.

>.Parents of triplets, was it baby A, B, or C. Also

>parents of identicals, did Baby B experience more

>problems than baby A. I hadn't ever been told this so

>I found it interesting.Were any of you told this too?

>

>__________________________________________________

>

January 11, 2000

was twin B!

Bonnie

January 11, 2000

Vinnie was Twin A.

I was never told that nor have heard anything like that.

January 11, 2000

Hi ,

I was not at the chat last night. Once I get home from worked my nights are

totally focused on a (DS) and Cory. So, by the time we get them down

I'm ready to go down too and the chats are usually over. a is a night

owl and doesn't go down until 9:30 - 10:30. She sure doesn't sleep much!

I'll be happy when she starts sleeping a little more. She only takes a 40

minute nap in the morning and another 40 minute in the afternoon and then

she's up at 5:00 or 6:00 in the morning again. Maybe when she's starts

moving around a little more she'll start sleeping more. Over the holidays

she started sitting up all on her own and started to belly crawl to get

things she wants, mixed in with rolling.

Anyway, a (DS) was twin A in our case and was the one with a lot of

medical problems that almost killed her. She is definitely a survivor! Cory

twin B has been normal with the exception of several ear infections, which

he will be getting tubes to clear up that up soon.

- mom to a (DS) and Cory - 18 months

(http://www.asapnet.net/mr_mach/)

Twin A or B have DS?.... Survey

> From: Huckabee <ahuckabee@...>

>

> HI Everyone,

> and I had a discussion in the chat last

> night about whether it was twin A or B that was

> diagnosed with DS. A doctor told another mom that it

> was usually twin B that experiences the problems. I

> found this very interesting. When we polled the moms

> in the chat last night, twin B won 5 to 1. I thought

> it would be neat to do a survey and tally it.If you

> answered the question last night, please respond to

> this. I can't remember who you are. Please participate

> and I'll record the findings and post it to the list.

> .Parents of triplets, was it baby A, B, or C. Also

> parents of identicals, did Baby B experience more

> problems than baby A. I hadn't ever been told this so

> I found it interesting.Were any of you told this too?

>

> __________________________________________________

>

January 11, 2000

Well, since we didn't get S & P's DX until they were 1

month old, I don't know if it will count. Sam was

" Baby-A " , , " Baby-B " . We got Sam's DX first,

's was confirmed 4 days later (that's as fast

as a STAT chromosome analysis can be). Initially, Sam

was more seriously ill than , but towards about

3mos, that flip-flopped and was not doing well

(until they DX'd his malrotation). Since then, their

health has been about equal.

Judi-Mom to Sam and , 3!, Identical Twins

--- Huckabee <ahuckabee@...> wrote:

> HI Everyone,

>

> and I had a discussion in the chat last

> night about whether it was twin A or B that was

> diagnosed with DS. A doctor told another mom that it

> was usually twin B that experiences the problems. I

> found this very interesting. When we polled the moms

> in the chat last night, twin B won 5 to 1. I thought

> it would be neat to do a survey and tally it.If you

> answered the question last night, please respond to

> this. I can't remember who you are. Please

> participate

> and I'll record the findings and post it to the

> list.

> .Parents of triplets, was it baby A, B, or C. Also

> parents of identicals, did Baby B experience more

> problems than baby A. I hadn't ever been told this

> so

> I found it interesting.Were any of you told this

> too?

>

> __________________________________________________

>

January 11, 2000

Judi,

Why was there a 4 day difference in diagnosis? Were

the tests done at same time? Just curious. mom

to Landon(ds) and Ashton 19 months

--- Judi Grossman <judig2@...> wrote:

> Well, since we didn't get S & P's DX until they were 1

> month old, I don't know if it will count. Sam was

> " Baby-A " , , " Baby-B " . We got Sam's DX first,

> 's was confirmed 4 days later (that's as fast

> as a STAT chromosome analysis can be). Initially,

> Sam

> was more seriously ill than , but towards

> about

> 3mos, that flip-flopped and was not doing

> well

> (until they DX'd his malrotation). Since then,

> their

> health has been about equal.

>

> Judi-Mom to Sam and , 3!, Identical Twins

>

> --- Huckabee <ahuckabee@...> wrote:

> > HI Everyone,

>

> >

> > and I had a discussion in the chat last

> > night about whether it was twin A or B that was

> > diagnosed with DS. A doctor told another mom that

> it

> > was usually twin B that experiences the problems.

> I

> > found this very interesting. When we polled the

> moms

> > in the chat last night, twin B won 5 to 1. I

> thought

> > it would be neat to do a survey and tally it.If

> you

> > answered the question last night, please respond

> to

> > this. I can't remember who you are. Please

> > participate

> > and I'll record the findings and post it to the

> > list.

> > .Parents of triplets, was it baby A, B, or C. Also

> > parents of identicals, did Baby B experience more

> > problems than baby A. I hadn't ever been told this

> > so

> > I found it interesting.Were any of you told this

> > too?

> >

> > __________________________________________________

> >

January 11, 2000

Kind of a long story, but here goes the condensed

version: Sam was very sick. Amongst other things, he

had some liver complications that weren't preemie

related and could have been chromosomal. The Doc ran

a chromosome analysis (w/o telling us, but that's

another story) because, and I quote: " I didn't really

think it was chromosomal and didn't want you to worry

until the results came back " . He claimed to have been

shocked by the trisomy 21 results. He didn't run them

on because, he, like everyone else, thought

that they were fraternal twins (Sam was vaginal birth,

C-section so they couldn't check the

placenta). So, when Sam's came back Trisomy 21, they

ran a stat chromosome analysis on and it took

4 days. There was our answer that they were identical

(not to mention they look alike, had the same blood

type, etc. This just clinched it). However, when we

got Sam's DX of DS, I clearly remember looking over at

in his isolette (he was finally next to Sam at

this point) and he was awake and staring at me w/those

big blue eyes and in my heart, I knew the answer right

then and there. I didn't have to wait for the test to

come back.

Judi

--- Huckabee <ahuckabee@...> wrote:

> Judi,

>

> Why was there a 4 day difference in diagnosis?

> Were

> the tests done at same time? Just curious.

> mom

> to Landon(ds) and Ashton 19 months

>

> --- Judi Grossman <judig2@...> wrote:

> > Well, since we didn't get S & P's DX until they were

> 1

> > month old, I don't know if it will count. Sam was

> > " Baby-A " , , " Baby-B " . We got Sam's DX

> first,

> > 's was confirmed 4 days later (that's as

> fast

> > as a STAT chromosome analysis can be). Initially,

> > Sam

> > was more seriously ill than , but towards

> > about

> > 3mos, that flip-flopped and was not doing

> > well

> > (until they DX'd his malrotation). Since then,

> > their

> > health has been about equal.

> >

> > Judi-Mom to Sam and , 3!, Identical Twins

> >

> > --- Huckabee <ahuckabee@...> wrote:

> > > HI Everyone,

>

> >

> > >

> > > and I had a discussion in the chat

> last

> > > night about whether it was twin A or B that was

> > > diagnosed with DS. A doctor told another mom

> that

> > it

> > > was usually twin B that experiences the

> problems.

> > I

> > > found this very interesting. When we polled the

> > moms

> > > in the chat last night, twin B won 5 to 1. I

> > thought

> > > it would be neat to do a survey and tally it.If

> > you

> > > answered the question last night, please respond

> > to

> > > this. I can't remember who you are. Please

> > > participate

> > > and I'll record the findings and post it to the

> > > list.

> > > .Parents of triplets, was it baby A, B, or C.

> Also

> > > parents of identicals, did Baby B experience

> more

> > > problems than baby A. I hadn't ever been told

> this

> > > so

> > > I found it interesting.Were any of you told this

> > > too?

> > >

> __________________________________________________

> > >

January 11, 2000

Huckabee wrote:

>

> From: Huckabee <ahuckabee@...>

>

Hi Everyone!

Interesting topic, I was never told anything to this{people were affraid

to talk to me in the early days I think!}

With my boy/girl twins, was " A " and Tara was " B " and has Ds.

born " naturally " , Tara had to be turned, then we ran into trouble, and 5

hr.'s later{and the NEXT day later}Tara was born via c-section, and was

" failure to progress " poor apgar scores, and medi-vaced out to a more

acute care hosp., also due to signs of Ds that my ped. pick up on right

away!

Gail......Bobby-6, Jillian-3.5, and Tara{Ds}9.5months

> HI Everyone,

> and I had a discussion in the chat last

> night about whether it was twin A or B that was

> diagnosed with DS. A doctor told another mom that it

> was usually twin B that experiences the problems. I

> found this very interesting. When we polled the moms

> in the chat last night, twin B won 5 to 1. I thought

> it would be neat to do a survey and tally it.If you

> answered the question last night, please respond to

> this. I can't remember who you are. Please participate

> and I'll record the findings and post it to the list.

> .Parents of triplets, was it baby A, B, or C. Also

> parents of identicals, did Baby B experience more

> problems than baby A. I hadn't ever been told this so

> I found it interesting.Were any of you told this too?

>

> __________________________________________________

>

January 11, 2000

Boy/Girl twins

Baby A (Mason) Baby B (Skylar)(ds)

Amber : )

January 11, 2000

I have never heard this before but Maggie was twin B! Weird.

Twin A or B have DS?.... Survey

From: Huckabee <ahuckabee@...>

HI Everyone,

and I had a discussion in the chat last

night about whether it was twin A or B that was

diagnosed with DS. A doctor told another mom that it

was usually twin B that experiences the problems. I

found this very interesting. When we polled the moms

in the chat last night, twin B won 5 to 1. I thought

it would be neat to do a survey and tally it.If you

answered the question last night, please respond to

this. I can't remember who you are. Please participate

and I'll record the findings and post it to the list.

..Parents of triplets, was it baby A, B, or C. Also

parents of identicals, did Baby B experience more

problems than baby A. I hadn't ever been told this so

I found it interesting.Were any of you told this too?

__________________________________________________

January 11, 2000

Easterbrook wrote:

Hi Skye(DS) was twin A (left) she was always smaller than twin

B(right) from the beginning when we found out we were having twins at 16

weeks thinking I was 20 weeks with one baby.

Easterbrook

January 12, 2000

Hi ,

Sara (DS) was Twin A and Twin B.

Marcia

Mom to Sara and Gabe (5) and Lucas (9)

January 12, 2000

Hi Mabel,

I, too, read the book " Babies With Down Syndrome " right after we learned that

Sara would have Down Syndrome--it was very helpful to us.

Have a safe and enjoyable trip. I will be thinking of you as you enjoy the

warm weather. I am looking outside at about seven inches of snow with more

expected. It is beautiful, but warm weather sounds awfully good about now.

Marcia

Mom to Sara (DS) and 5 and Lucas 9

January 13, 2000

,

Sorry so late responding. Mine was twin B.

Kim mom to Abbi and ds - 2yrs and Mikayla - 4yrs

Twin A or B have DS?.... Survey

> From: Huckabee <ahuckabee@...>

>

> HI Everyone,

> and I had a discussion in the chat last

> night about whether it was twin A or B that was

> diagnosed with DS. A doctor told another mom that it

> was usually twin B that experiences the problems. I

> found this very interesting. When we polled the moms

> in the chat last night, twin B won 5 to 1. I thought

> it would be neat to do a survey and tally it.If you

> answered the question last night, please respond to

> this. I can't remember who you are. Please participate

> and I'll record the findings and post it to the list.

> .Parents of triplets, was it baby A, B, or C. Also

> parents of identicals, did Baby B experience more

> problems than baby A. I hadn't ever been told this so

> I found it interesting.Were any of you told this too?

>

> __________________________________________________

>

January 15, 2000

Hi -

I'm catching up on my mail so here's my answer. Rudy (ds) was twin B. I was

also told that on b/g twins the girl is almost always the first born....

another point to ponder. Also that the twin tendency comes from the mother.

January 16, 2000

Re: Twin A or B have DS?.... Survey

Sorry I'm so late responding too. It's been a long time since I've posted

anything. I started out pregnancy with 3 babies. One stopped growing at 8

weeks. My son with Down Syndrome was baby " B " . I'm sorry I have not been

around. My computer crashed, my husband and I both had the flu, Danny got

sick with some bizarre rash on his stomach that the doctor could not

identify, he also saw the behaviourist, and we went to the orthopedic doctor

about his atlanto-axial instability. The doctor was awesome! It was so

obvious he loved Danny, and of course, Dan reflected that right back. The

bottom line is HE'S FINE. YAY! No instability in his cervical spine.

I was also drawn into the post about the woman (Margi?), who lost one of her

twins late in pregnancy. How is she? I lost my first son to intrauterine

demise, and I had an awful time. But I'm ok now. I'm hoping her remaining

baby will be very healthy, and that she's alright.

Bye everyone

Jean

mom of n and Danny (DS) they'll be 7 in one month!

January 17, 2000

Hi -

Just out of curiosity, did Danny have ear infection with the stomach rash?

Rudy was about his age when he had scarlet fever which produces a large very

red rash on the stomach. The dr's had to look it up because it is so rare

now but he had ear infections which off shooted (read word???) to the Scarlet

fever

mom to Rudy (ds) & 13

January 17, 2000

All is well with Margi, Jean. They gave her a " keepsake " box with her

baby's footprints, handprints, and some of his hair. She seems to be

alright. She was even making jokes about the night she gave birth the

hospital sent a social worker, a priest, and a counselor to speak with

her...she wondered if they found her sane. She feels that the birth of

their daughter will help her heal the most and having a new baby in the

house is a wonderful healing aide.