Hi, Just joined the list.....

[Guest guest]

Hi everyone,

My name is Karyn, my husband's name is and we have 4 year old twin boys.

Their names are Adam and (DS). My pregnancy went almost full term.

When the boys were born Adam was 7lbs 3oz and was 4lbs 11oz. There was

a big difference but thank God both were healthy. They suspected had

Down Syndrome right away. We didn't want to believe them. We thought he was

just real small. Ironically, our Ped. had just diagnosed another child a few

days ago so the signs and symptoms were all fresh in her mind. I was a hard

adjustment but as you all know they are babies first and the still demand all

the same things as other babies do. I think that' s how I got through the

first few month was just focusing on the fact that was just like his

brother. He was a baby. We would deal with all the other things as they

came along. The other thing that I did that was helpful was not read so many

things about DS until the sleep deprivation had subsided. I was too much

information to absorb in that state. Now I can't get enough. The other thing

that I think helped tremendously was I joined a Mother's of Twins club. The

women there were so accepting and made me realize most of the things I got

concerned about weren't because had DS, I was a " twin thing " Boy, did

they help to normalize things.

Currently, is on a vitamin therapy program. He takes Nutrivene-D,

essential fatty acids (DHA and Efalex) and Piracetam. We had to work out the

correct dosage for . He can't handle the full amount recommended because

he gets too hyper and agitated. We lowered it and this seems to work out

better.

goes to a preschool program. He'll be starting back next week. He'll

be taking the bus for the first time. Yes, I'm a bit anxious but I 'll be

fine. He 'll be attending 5 days a week.

Well, this is long enough. Can anyone tell me why some of my E-mail have a

background and some don't? I can't read the ones with the background very

well at all.

" Sometimes miracles hide. "

Karyn, wife to

mom to Adam and (DS) 4 yrs old

North Chili, NY

A

[Guest guest]

Hi-

North Chili? I grew up in Rochester, New York.

Welcome to this list. I too enjoy reading the e-mails. I have three

children, Quinn (3) and Sara and Maggie. Maggie has the extra chromosome.

The girls are 10 months old, and I cannot believe it! I have no idea how

the time went so quickly!

Hi, Just joined the list.....

From: KAUDY@...

Hi everyone,

My name is Karyn, my husband's name is and we have 4 year old twin

boys.

Their names are Adam and (DS). My pregnancy went almost full term.

When the boys were born Adam was 7lbs 3oz and was 4lbs 11oz. There was

a big difference but thank God both were healthy. They suspected had

Down Syndrome right away. We didn't want to believe them. We thought he

was

just real small. Ironically, our Ped. had just diagnosed another child a

few

days ago so the signs and symptoms were all fresh in her mind. I was a hard

adjustment but as you all know they are babies first and the still demand

all

the same things as other babies do. I think that' s how I got through the

first few month was just focusing on the fact that was just like his

brother. He was a baby. We would deal with all the other things as they

came along. The other thing that I did that was helpful was not read so

many

things about DS until the sleep deprivation had subsided. I was too much

information to absorb in that state. Now I can't get enough. The other

thing

that I think helped tremendously was I joined a Mother's of Twins club. The

women there were so accepting and made me realize most of the things I got

concerned about weren't because had DS, I was a " twin thing " Boy, did

they help to normalize things.

Currently, is on a vitamin therapy program. He takes Nutrivene-D,

essential fatty acids (DHA and Efalex) and Piracetam. We had to work out

the

correct dosage for . He can't handle the full amount recommended

because

he gets too hyper and agitated. We lowered it and this seems to work out

better.

goes to a preschool program. He'll be starting back next week. He'll

be taking the bus for the first time. Yes, I'm a bit anxious but I 'll be

fine. He 'll be attending 5 days a week.

Well, this is long enough. Can anyone tell me why some of my E-mail have a

background and some don't? I can't read the ones with the background very

well at all.

" Sometimes miracles hide. "

Karyn, wife to

mom to Adam and (DS) 4 yrs old

North Chili, NY

A

---------------------------

[Guest guest]

Welcome to the list Karyn.

My name is and I have 16 month boy/girl twins.

has DS and Sloan doesn't.

I hope you enjoy the list,as I have and have learned ALOT from everyone.

~

[Guest guest]

KAUDY@... wrote:

>

> From: KAUDY@...

>

> Hi everyone,

> My name is Karyn, my husband's name is and we have 4 year old twin boys.

> Their names are Adam and (DS). My pregnancy went almost full term.

> When the boys were born Adam was 7lbs 3oz and was 4lbs 11oz. There was

> a big difference but thank God both were healthy. They suspected had

> Down Syndrome right away. We didn't want to believe them. We thought he was

> just real small. Ironically, our Ped. had just diagnosed another child a few

> days ago so the signs and symptoms were all fresh in her mind. I was a hard

> adjustment but as you all know they are babies first and the still demand all

> the same things as other babies do. I think that' s how I got through the

> first few month was just focusing on the fact that was just like his

> brother. He was a baby. We would deal with all the other things as they

> came along. The other thing that I did that was helpful was not read so many

> things about DS until the sleep deprivation had subsided. I was too much

> information to absorb in that state. Now I can't get enough. The other thing

> that I think helped tremendously was I joined a Mother's of Twins club. The

> women there were so accepting and made me realize most of the things I got

> concerned about weren't because had DS, I was a " twin thing " Boy, did

> they help to normalize things.

> Currently, is on a vitamin therapy program. He takes Nutrivene-D,

> essential fatty acids (DHA and Efalex) and Piracetam. We had to work out the

> correct dosage for . He can't handle the full amount recommended because

> he gets too hyper and agitated. We lowered it and this seems to work out

> better.

> goes to a preschool program. He'll be starting back next week. He'll

> be taking the bus for the first time. Yes, I'm a bit anxious but I 'll be

> fine. He 'll be attending 5 days a week.

> Well, this is long enough. Can anyone tell me why some of my E-mail have a

> background and some don't? I can't read the ones with the background very

> well at all.

> " Sometimes miracles hide. "

> Karyn, wife to

> mom to Adam and (DS) 4 yrs old

> North Chili, NY

> A

>

> ---------------------------

[Guest guest]

In a message dated 9/3/99 10:32:42 AM Eastern Daylight Time, rjvh@...

writes:

<< I found and still feel, that I'm

uneasy to attend Mothers of Multiples group in my area because I don't

feel like they are twins. They won't be doing things together, and

probably can't share with the other moms! >>

Dear Gail:

I felt the exact same way you did for a while about my twins. It took me

until they were 8 months old and I had a " slight " handle on life that I

attended. I really wish I wouldn't have waited. Mothers who join these

groups do it for 2 reasons. One they want the adult companionship and two

they want to share with others who they know they can relate too. I wouldn't

be surprised to find out your not alone in your feeling about the twins. I

was!!! Didn't you say they were sitting in the high chairs eating. Well,

that's a start. The other thing to think about is there are twins that are

born with other medical problems that make them delayed. Most of the time

your going to find out the things that make them different isn't because of

the Down Syndrome (aside from major medical problems) it's just because they

are themselves.

Give your local chapter a call and talk to the membership person. That

person is usually the most pleasurable person to talk to. If she doesn't

make you feel comfortable and welcome then maybe that group isn't for you.

If that happens we will be your own " Parents of Multiples " group know.

Hope this gives you some encouragement. I know it's very hard to tell

strangers you had twins but one has Down Syndrome. It really does get much

easier.

" Sometimes miracles hide "

Karyn, wife to

Mom to Adam and (DS) 4 yrs old twins

North Chili, NY (originally from Rochester....)

[Guest guest]

It saddens me so much to read that someone feels that thier twins aren't

really twins. I am not sure why you feel Down syndrome has to interfer with

the wonderful bond they will share. It doesn't matter if they don't do

everything at the same time. Please don't diminish the " wonderfulness " that

being a twin is. I feel proud and can't wait to tell people that they are

twins.

Re: Hi, Just joined the list.....

From: KAUDY@...

In a message dated 9/3/99 10:32:42 AM Eastern Daylight Time,

rjvh@...

writes:

<< I found and still feel, that I'm

uneasy to attend Mothers of Multiples group in my area because I don't

feel like they are twins. They won't be doing things together, and

probably can't share with the other moms! >>

Dear Gail:

I felt the exact same way you did for a while about my twins. It took me

until they were 8 months old and I had a " slight " handle on life that I

attended. I really wish I wouldn't have waited. Mothers who join these

groups do it for 2 reasons. One they want the adult companionship and two

they want to share with others who they know they can relate too. I

wouldn't

be surprised to find out your not alone in your feeling about the twins. I

was!!! Didn't you say they were sitting in the high chairs eating. Well,

that's a start. The other thing to think about is there are twins that are

born with other medical problems that make them delayed. Most of the time

your going to find out the things that make them different isn't because of

the Down Syndrome (aside from major medical problems) it's just because they

are themselves.

Give your local chapter a call and talk to the membership person. That

person is usually the most pleasurable person to talk to. If she doesn't

make you feel comfortable and welcome then maybe that group isn't for you.

If that happens we will be your own " Parents of Multiples " group know.

Hope this gives you some encouragement. I know it's very hard to tell

strangers you had twins but one has Down Syndrome. It really does get much

easier.

" Sometimes miracles hide "

Karyn, wife to

Mom to Adam and (DS) 4 yrs old twins

North Chili, NY (originally from Rochester....)

---------------------------