Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 : We are patients of Dr. Holmes and have done (I'm guessing right now about 11 rounds of DMSA) We were told and are still being told NOT to expect to see any good stuff until the ALA is added (which will hopefully be soon) I think you even have to wait a couple of months for that progress. As far as getting a random urine collection. Since is not potty trained. we just got done doing a 6-hour random collection. I locked all the bathroom doors and asked them to urinate every 45 minutes into a cup. You may need to ask him to go every 30 minutes if he drinks a lot. This way you won't give him a chance to urinate anywhere else but the cup. Good luck Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 , That is an amazing amount of mercury. Have you considered current exposure? Have you thought about having other family members tested? I would think it would be easier to do a stool test. This is also a better way to measure mercury. ?? I think Doctor's Data does the stool test. Anyone? Are you using any lipoic acid with the dmsa? If he has all this mercury I would be very concerned about current exposure. Does he eat alot of seafood? Was the hair sample current rather than baby hair? Carol G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Dear , You are not alone. I am waiting hoping praying for words from my nearly 8 year old daughter who is also not fully potty trained. She was high in mercury, too. (though not as high as your ). I think we need to be patient. It took years to accumulate this level of toxicity so we've got to allow them time to heal. How much does weigh? I have my Sydney at 50mg, staying slighter higher than the formerly recommended 1mg per pound of bodyweight (she weighs 40lbs) and have seen very few negatives. You may want to lower the dose if is having difficulty. Hang in there! [ ] 's case.... > Hello, > I thought that I would finally write my 's story....with questions and > comments thrown in! > He is a former 26 week premie, and is now 8 years old. He has always been > developementally delayed. > He has been gfcf for 2 years now, and free also of foods that he has tested > allergic to. He is supplemented with Amino acids (Free Aminos from Allergy > Research/Nutricology) and fatty acids, as well as vitamins and other > mineralys that is has tested deficient in. > I learned about heavy metals earlier this year and had his D.A.N. doctor (Dr. > Hardy) test him. The Elemental Hair Analysis (GSDL) showed high > antimony, mercury (38.38 with a reference range of 0-1), Iodine and rubidium. > Low were magnesium and lithium. > This warranted a blood test, which only showed high mercury (16....reference > range lessan that 5 ng/ml) and arsenic. > This, in turn, showed need for provocation test. The RANDOM urine sample (I > find it impossible to obtain 24 hours worth of urine on an incontinent 8 year > old) showed high tin (7.8....reference range 1-6) and mercury > (59....reference range 0-3). > I felt very grateful (even elated) to have found a possible treatment for my > son's situation. > is very delayed....probably functioning at a 2 year old level. He is > not toilet trained. He babbles a lot, and at times says words and > approximates phrases. He is not echololic. > We have now done 7 rounds of chelation (100 mg Chemet every 4 hours). The > first four rounds he exhibited that horrid red rash (welts, really) on his > bottom. He was very stimmy during the first 5 rounds (flapping, spinning, > verbal repetitions) These things have tapered off. > My problem is dealing with my feelings....I am upset that I have not seen any > development!!! I want to see him speak! Use the toilet! Be interested in > coloring, painting, reading, dressing himself!!! > We had another urine done after 5 rounds. The only thing high was the > mercury (7.7...reference range 0-3). This was also a random sample. > We have been doing this for only 3+ months....I know that I should be > patient....he is very toxic. And random samples are not the best judge of > what is happening. Does anyone have any tips on how to get a better sample > from a child who functions as does? > Also, thanks for all of the info on mercury and vision....very interesting. > I would also be interested in obtaining video tapes from the last D.A.N. > conference...if anyone knows where, please post. > Take care and thanks for all of the support that this list provides. > All the best, > > Will and Ben's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 , Labs also have collection bags that can be affixed to their " private " so you can just have him pee away for the 24 hours if you want. Re: [ ] 's case.... > : > We are patients of Dr. Holmes and have done (I'm guessing right now about 11 > rounds of DMSA) We were told and are still being told NOT to expect to see > any good stuff until the ALA is added (which will hopefully be soon) I think > you even have to wait a couple of months for that progress. > As far as getting a random urine collection. Since is not potty > trained. we just got done doing a 6-hour random collection. I locked all > the bathroom doors and asked them to urinate every 45 minutes into a cup. > You may need to ask him to go every 30 minutes if he drinks a lot. This way > you won't give him a chance to urinate anywhere else but the cup. > Good luck > Tina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 One thought about the sample: Will he sit on a toilet and urinate? If so you can use a " hat " like they use in hospitals to get urine samples. Just put it underneath the toilet seat and bring him to the toilet every hour or so during the third morning of chelation for a total of 6 hours of urine collection. The mercury levels you are reporting seem especially high, particularly getting levels in the blood. From what you are presenting, I would keep chelating. It may take awhile to see results. Ken Sokolski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Where do you get these " hats " ? Re: [ ] 's case.... > One thought about the sample: Will he sit on a toilet and urinate? If so you > can use a " hat " like they use in hospitals to get urine samples. Just put it > underneath the toilet seat and bring him to the toilet every hour or so > during the third morning of chelation for a total of 6 hours of urine > collection. The mercury levels you are reporting seem especially high, > particularly getting levels in the blood. From what you are presenting, I > would keep chelating. It may take awhile to see results. > Ken Sokolski > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Usually from pharmacies attached to hospitals since they are mainly used in hospitals. I get them from the hospital where I work. Ken Quote Link to comment Share on other sites More sharing options...
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