Re: News from the Medlens

[Guest guest]

Hi Joan,

I hope Andy is going to be ok. Is he starting to eat? Thanks for the heads up

on the book. I can't wait to read it. Tell me the title again so I can order

it. Remember, you promised to sign it for me. Life is always crazy in my

house too. Zeb decide to run away yesterday morning before we were up. He

walked to his grandparents with suitcase in tow in his underwear, tshirt and

sandals. It was 38. I was relieved that someone didn't call the police. He

knows his way to his grandparents but this is a first. He told them he was

mad at Mom for yelling at him because he had the tv on, yes,before dawn full

blast. Life goes on.

Charlyne

Mom to Zeb 9 DS/OCD ?

[Guest guest]

Hi Joan,

The book sounds great. I'm pretty new to this group - one thing that has

always concerned me is that Hannah's menu is so very limited. Is this

typical for DS/Aut? Our protein consists of corn dogs, fish sticks,

peanutbutter and Mc's hamburgers. I've always felt guilty about the way

I feed her - we do make her try new things but she just doesn't seem to like

very much. Anybody else out there like this?

Blessings,

a (Mom to Hannah 5 DS/Aut)

[Guest guest]

Wow Joan! I cannot wait to read the book! Thank goodness you have had some

great news to follow a " creepy " week. grabbed a hot-dog off the

counter when he was two and choked. We were not so lucky....He was down for

5 minutes and it did enough brain damage to cause some crippling on one side.

Now I am a fanatic on things that can choke children; I have been known to

go up to complete strangers and warn them of hazards!

gives no thought about such things. Unlike many in the group, he

will eat anything! His siblings have been caught several times getting him

to try spicy or weird things. just laughs! He also has no idea when

to stop. I believe that he would just eat until he explodes! Sometimes I

think that he has a tapeworm since he is so thin! I look forward to using

your book for our whole family!

~Lynn, Mom of the Geddie Zoo

[Guest guest]

Yes, Yes, Yes

has a total of 6 foods that he eats (and he eats them on schedule!!)

is 12 1/2

Kathy

Re: News from the Medlens

Hi Joan,

The book sounds great. I'm pretty new to this group - one thing that has

always concerned me is that Hannah's menu is so very limited. Is this

typical for DS/Aut? Our protein consists of corn dogs, fish sticks,

peanutbutter and Mc's hamburgers. I've always felt guilty about the way

I feed her - we do make her try new things but she just doesn't seem to like

very much. Anybody else out there like this?

Blessings,

a (Mom to Hannah 5 DS/Aut)

[Guest guest]

Joan,

Congratulations on the book being released....what an accomplishment....you

must be so excited! I will be looking for it at my nearby Borders or

and Noble!!!

At 05:01 PM 11/16/02 -0800, you wrote:

>Well.

>

>Life is very full here at the Medlen home. We had a bit of a harrowing

>Halloween. I won't go into all the particulars, but I will tell you that

>because of a panic/anxiety attack and over-hunger during the Halloween

>party, my son swallowed an orange pumpkin ring. Of course folks were sure

>they had removed the ring from the cupcake he dove into, but alas, that is

>not the case. It was 8 days of not eating, a chest x-ray and barium swallow

>that showed nothing for a choking episode after campbells vegetable soup

>and Mom pounding on his back for him to cough up the ring. He's finally

>eating without coughing this weekend.

>

>Other than that, life is OK. School isn't spectacular, but it's not bad

>either. there is progress and learning...but not as much friendship

>connections as I would like. But we can't have everything! So I'm generally

>happy. He is respected and cared about, though folks don't quite have his

>number in the anxiety area.

>

>In other news, I received today the first advance copy of my book:

> " The Down Syndrome Nutrition Handbook " (woodbinehouse.com). I tell you all

>for two reasons:

>1) I'm dying to tell someone I've seen it and it's heading to the warehouse

>on Monday...

>and

>2) as a group, you are mentioned on the acknowledgement list.

>

>This group does a lot for keeping me focused on kids with down syndrome in

>all their varieties; you remind me daily that there are days when we're

>tired, moments when we triumph, and moments when we are heart broken. You

>accept me, my boy, and all the challenges we face without judgement, and it

>is inspiring to read when you are helping each other, holding each other

>up, and reacing out in times of need. You restore my belief that we dont'

>have to be alone and that we can be supported by other families. And I

>think you teach many many others who are on this list and who are not,

>about acceptance and the true meaning of inclusion and diversity. We

>belong, too.

>

>So, when you read the book, whether you get it from the library or buy one

>for your own use, I hope you will find ideas and methods that fit your family.

>

>Thanks for listening!

>

>Joan

>

>PS: Miss Maddie, the double-ball dribbler is featured on page 245.

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos

>of our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list.

>--------------------------------------------

>

>

[Guest guest]

Sorry to hear about your son. Glad he is ok now. Congratulations on the new

book. I look forward to reading it. Let us know when it is out.

Diane

[Guest guest]

what an adventurer,lol, i am glad he is safe and ok, nathan is another

before dawn blaring tv wake up call, thankfully grandma lives a good

8-10blocks away. And WOW!! he said that, nathan usually never says much more

than a word or two, Look at it at least zeb can tell why he did what he did.

hugs shawna

Re: News from the Medlens

> Hi Joan,

> I hope Andy is going to be ok. Is he starting to eat? Thanks for the heads

up

> on the book. I can't wait to read it. Tell me the title again so I can

order

> it. Remember, you promised to sign it for me. Life is always crazy in my

> house too. Zeb decide to run away yesterday morning before we were up. He

> walked to his grandparents with suitcase in tow in his underwear, tshirt

and

> sandals. It was 38. I was relieved that someone didn't call the police. He

> knows his way to his grandparents but this is a first. He told them he was

> mad at Mom for yelling at him because he had the tv on, yes,before dawn

full

> blast. Life goes on.

> Charlyne

> Mom to Zeb 9 DS/OCD ?

>

>

>

[Guest guest]

nathan has always been a very picky eater, and his chewing probs and

swallowing difficulties dont hlep mattters much but his protien consits of

peanut butter and the occasional fast food hamburger--not many restaurants

in our small town---I have found those made patties eg: chix breast patties,

are much more tolerated and esier chewed and swallowed with little to no

gagging and never a choking incident, and we can put it on a bun if we want

and he thinks its a burger, and there are many differnt kinds of patties out

there mc rib kind, fish, chix brest, breaded, etc. As for the vigies, natha

seems to tolerate the baby food one so th is is good!!!, finally getting

some veigies in that system,lol. Hope helps. shawna.

Re: News from the Medlens

> Hi Joan,

> The book sounds great. I'm pretty new to this group - one thing that

has

> always concerned me is that Hannah's menu is so very limited. Is this

> typical for DS/Aut? Our protein consists of corn dogs, fish sticks,

> peanutbutter and Mc's hamburgers. I've always felt guilty about the

way

> I feed her - we do make her try new things but she just doesn't seem to

like

> very much. Anybody else out there like this?

> Blessings,

> a (Mom to Hannah 5 DS/Aut)

>

>

>

>

[Guest guest]

a;

is the same way. Corn Dogs, Hot Dogs, Chicken nuggets or fish sticks

is about all we can get him to eat. We try to give in other things, but he

just takes two bites and says his all done. I don't know how to get him to

eat better. He actually loves the veggies that other kids won't even look

twice at. He loves asparagus, Brussels sprouts, celery and carrots.

Veggies and fruit are not a problem, it's the main meals where I can't seem

to get nutrition. I am looking forward to Joan's book to help out. Thanks

Joan!!!!

Tollefson

Marc Tollefson

Tollefson (7 years DS/ASD/ADHD)

Elisha Tollefson (22 months)

Re: News from the Medlens

> Hi Joan,

> The book sounds great. I'm pretty new to this group - one thing that

has

> always concerned me is that Hannah's menu is so very limited. Is this

> typical for DS/Aut? Our protein consists of corn dogs, fish sticks,

> peanutbutter and Mc's hamburgers. I've always felt guilty about the

way

> I feed her - we do make her try new things but she just doesn't seem to

like

> very much. Anybody else out there like this?

> Blessings,

> a (Mom to Hannah 5 DS/Aut)

>

>

>

>

[Guest guest]

JJ eas anything with pasta and baked beans. Forget fruit and veggies.

Except for smothies with strawberries and bananas. Strange child.

On Sunday, November 17, 2002, at 09:17 AM, Marc Tollefson wrote:

> ahoo! Groups is subject to the Terms of Service.

& Garry Parents to Sam 12 (DS), Tim 11(DS), JJ 8 (Autism, DS,

Celiac Disease), 8(DS, ADHD, Celiac Disease, Hearing Impaired),

Esther (DS) All Adopted