Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Hi - I am going to ask my husband about this so-called donation connection. VH1 may have just taken it upon themselvesto split proceeds. It just confounds me when AS refers to themselves as the largest autism organization, blah, blah. They are not the oldest, nor the most respected, nor the most knowledgeable as evidenced by their genetic panderings/meanderings. If my husband (treasurer of national ASA) does not know about this, it is of VH1's doings to split proceeds.Rox Re:More about AutismSpeaks in Pittsburgh My daughter was watching VH1 yesterday and told me that there was something on about autism. I learned that the cable channel VH1 Classic has been sponsoring what they call Rock Autism. As I still have a great deal of confusion about what Rock Autism is, (even after reading this from the Northeast Ohio Autism Group .. http://groups. / group/EOHarm/ message/70093 ) and who has sponsored or developed it, and who is benefiting from it, and how it differs from Rock the Puzzle (which I understand was developed by the Northeast Ohio Autism Group), I looked into the matter a little bit. I am pretty sure that I saw somewhere that Rock Autism money is going to Autism Speaks. (it did last year..) But there are so many groups with so many acronyms a person could make it a career trying to keep track of them all. I did come across this link http://www.autism- society.org/ site/News2? page=NewsArticle & id=10129 which I found rather disturbing. If you go there, you'll see that it is an ASA site, and from this site one can purchase Rock Autism tee shirts. The site says that by buying these shirts "you'll be helping VH1 Classic raise awareness about autism", and "a portion of the proceeds from the sale of this shirt will be donated to the Autism Society of America." What I would like to know is, what portion? How much of the proceeds will go to ASA, and how much will go to AS? My husband has suggested that I look into tax benefits for charitable organizations, when I told him that I really didn't understand how these organizations were supposed to work but that it didn't really seem to me that very much of the money they raise ends up doing much good toward the cause that they're originally founded for. It seems to me as tho gobs of money pours in through all sorts of various small autism organizations, and then it all gets shifted around from here to there and then from there to there and then around a bit more between different people and different groups of people and different organizations, and after it goes around and round a while, most of it eventually ends up back in the coffers, somehow, of Autism Speaks. All of which disturbs me a lot, because I happen to know that AS isn't working to help families that are dealing with autism, they are working to blame the autism strictly on their genetics, and to shut up anyone who suggests iatrogenic cause. It disturbs me a lot because I've been throwing my support behind ASA thinking that they are different from AS. But now I'm not so sure, and I have to say that nothing I've learned in the last week or so has cleared up my confusion on this matter. Last year I know that the money raised from Cleveland Rocks Autism, which was held at the House of Blues, and where I was told I would have to leave or face arrest for handing out information about thimerosal, was benefiting AS and CAN. If I go to this website http://www.vh1. com/partners/ vh1classic_ rock_autism/ I am told "here are many incredible organizations across the country dedicated to supporting families touched by autism, and who are researching the causes of this disorder. Below is a small selection of just some of the great organizations that are working towards these goals." And they go on to list ARI, AutismLink, Autism Speaks, Autism One, ASA, and CAN. But they don't say anything about money going to these organizations. How much, if any, of the proceeds go to each organization listed here? I've emailed them at vh1classicrockautis mvh1staff (DOT) com to ask them this. I wonder if ARI is even aware that they're listed on this site? What I would really like to see is an organization that will tell me, in a public statement "no, we are not in any way affiliated with Autism Speaks. None of the money we raise in any way benefits Autism Speaks." I've gone so far as to tell the local chapter of the ASA as much. Perhaps I'm expecting too much, but seeing organizations like ARI listed on the same fund raising website as AS makes me feel as tho ARI's gotten in bed with the devil. After the holidays I will check out these websites which were suggested by my newspaper—give. org, and charitynavigator. org. Hopefully they can sort it all out. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 I have the name and contact info for the guy at VH1 and I wrote to him awhile ago and asked this question. Let me dig through my email and I'll post it. P.S. (A cindyism) -- Just because you name yourself the " biggest " or the " best " at something, doesn't mean you've earned the respect of those to whom you are communicating. > > Hi - I am going to ask my husband about this so-called donation connection. VH1 may have just taken it upon themselves > to split proceeds. It just confounds me when AS refers to themselves as the largest autism organization, blah, blah. They are not the oldest, nor the most respected, nor the most knowledgeable as evidenced by their genetic panderings/meanderings. If my husband (treasurer of national ASA) does not know about this, it is of VH1's doings to split proceeds. > > Rox > > Re:More about AutismSpeaks in Pittsburgh > > > > > > > > > > > > > > > My daughter was watching VH1 yesterday and told me that there was > > something on about autism. I learned that the cable channel VH1 > > Classic has been sponsoring what they call Rock Autism. > > > > As I still have a great deal of confusion about what Rock Autism is, > > (even after reading this from the Northeast Ohio Autism Group .. > > http://groups. / group/EOHarm/ message/70093 ) > > and who has sponsored or developed it, and who is benefiting from it, > > and how it differs from Rock the Puzzle (which I understand was > > developed by the Northeast Ohio Autism Group), I looked into the > > matter a little bit. I am pretty sure that I saw somewhere that Rock > > Autism money is going to Autism Speaks. (it did last year..) But there > > are so many groups with so many acronyms a person could make it a > > career trying to keep track of them all. > > > > I did come across this link > > > > http://www.autism- society.org/ site/News2? page=NewsArticle & id=10129 > > > > which I found rather disturbing. If you go there, you'll see that it > > is an ASA site, and from this site one can purchase Rock Autism tee > > shirts. The site says that by buying these shirts " you'll be helping > > VH1 Classic raise awareness about autism " , and " a portion of the > > proceeds from the sale of this shirt will be donated to the Autism > > Society of America. " > > > > What I would like to know is, what portion? How much of the proceeds > > will go to ASA, and how much will go to AS? > > > > My husband has suggested that I look into tax benefits for charitable > > organizations, when I told him that I really didn't understand how > > these organizations were supposed to work but that it didn't really > > seem to me that very much of the money they raise ends up doing much > > good toward the cause that they're originally founded for. It seems to > > me as tho gobs of money pours in through all sorts of various small > > autism organizations, and then it all gets shifted around from here to > > there and then from there to there and then around a bit more between > > different people and different groups of people and different > > organizations, and after it goes around and round a while, most of it > > eventually ends up back in the coffers, somehow, of Autism Speaks. > > > > All of which disturbs me a lot, because I happen to know that AS isn't > > working to help families that are dealing with autism, they are > > working to blame the autism strictly on their genetics, and to shut up > > anyone who suggests iatrogenic cause. It disturbs me a lot because > > I've been throwing my support behind ASA thinking that they are > > different from AS. > > > > But now I'm not so sure, and I have to say that nothing I've learned > > in the last week or so has cleared up my confusion on this matter. > > > > Last year I know that the money raised from Cleveland Rocks Autism, > > which was held at the House of Blues, and where I was told I would > > have to leave or face arrest for handing out information about > > thimerosal, was benefiting AS and CAN. > > > > If I go to this website > > > > http://www.vh1. com/partners/ vh1classic_ rock_autism/ > > > > I am told " here are many incredible organizations across the country > > dedicated to supporting families touched by autism, and who are > > researching the causes of this disorder. Below is a small selection of > > just some of the great organizations that are working towards these > > goals. " And they go on to list ARI, AutismLink, Autism Speaks, Autism > > One, ASA, and CAN. But they don't say anything about money going to > > these organizations. How much, if any, of the proceeds go to each > > organization listed here? I've emailed them at > > vh1classicrockautis mvh1staff (DOT) com to ask them this. I wonder if ARI > > is even aware that they're listed on this site? > > > > What I would really like to see is an organization that will tell me, > > in a public statement " no, we are not in any way affiliated with > > Autism Speaks. None of the money we raise in any way benefits Autism > > Speaks. " I've gone so far as to tell the local chapter of the ASA as > > much. Perhaps I'm expecting too much, but seeing organizations like > > ARI listed on the same fund raising website as AS makes me feel as tho > > ARI's gotten in bed with the devil. > > > > After the holidays I will check out these websites which were > > suggested by my newspaper—give. org, and charitynavigator. org. > > Hopefully they can sort it all out. > > > > > > > > > > > > > > > <!-- > > #ygrp-mkp{ > border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} > #ygrp-mkp hr{ > border:1px solid #d8d8d8;} > #ygrp-mkp #hd{ > color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} > #ygrp-mkp #ads{ > margin-bottom:10px;} > #ygrp-mkp .ad{ > padding:0 0;} > #ygrp-mkp .ad a{ > color:#0000ff;text-decoration:none;} > --> > > > > <!-- > > #ygrp-sponsor #ygrp-lc{ > font-family:Arial;} > #ygrp-sponsor #ygrp-lc #hd{ > margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} > #ygrp-sponsor #ygrp-lc .ad{ > margin-bottom:10px;padding:0 0;} > --> > > > > <!-- > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text{ > font-family:Georgia; > } > #ygrp-text p{ > margin:0 0 1em 0;} > #ygrp-tpmsgs{ > font-family:Arial; > clear:both;} > #ygrp-vitnav{ > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a{ > padding:0 1px;} > #ygrp-actbar{ > clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} > #ygrp-actbar .left{ > float:left;white-space:nowrap;} > .bld{font-weight:bold;} > #ygrp-grft{ > font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft{ > font-family:verdana;font-size:77%;border-top:1px solid #666; > padding:5px 0; > } > #ygrp-mlmsg #logo{ > padding-bottom:10px;} > > #ygrp-vital{ > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} > #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} > #ygrp-vital ul{ > padding:0;margin:2px 0;} > #ygrp-vital ul li{ > list-style-type:none;clear:both;border:1px solid #e0ecee; > } > #ygrp-vital ul li .ct{ > font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} > #ygrp-vital ul li .cat{ > font-weight:bold;} > #ygrp-vital a{ > text-decoration:none;} > > #ygrp-vital a:hover{ > text-decoration:underline;} > > #ygrp-sponsor #hd{ > color:#999;font-size:77%;} > #ygrp-sponsor #ov{ > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > #ygrp-sponsor #ov ul{ > padding:0 0 0 8px;margin:0;} > #ygrp-sponsor #ov li{ > list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a{ > text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc{ > background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad{ > padding:8px 0;} > #ygrp-sponsor .ad #hd1{ > font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} > #ygrp-sponsor .ad a{ > text-decoration:none;} > #ygrp-sponsor .ad a:hover{ > text-decoration:underline;} > #ygrp-sponsor .ad p{ > margin:0;} > o{font-size:0;} > .MsoNormal{ > margin:0 0 0 0;} > #ygrp-text tt{ > font-size:120%;} > blockquote{margin:0 0 0 4px;} > .replbq{margin:4;} > --> > > > > > > > > > ________________________________________________________________________________\ ____ > Looking for last minute shopping deals? > Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Well geez that took all of two minutes. Here you go: Hi , This is Jayan, I believe I spoke to you over the phone the other day. Thanks for your email -- we already have a link up to your site on ours, and think your site offers a great resource for parents. So many of them have been asking us for information and local resources, and we feel that your site is a great place for them to turn to in terms of finding help in their local area. As far as partnerships, while we will be working at times with groups such as Autism Speaks, we are also trying to support a variety of other organizations through our efforts. Please feel free to reach out to me at the number listed below if you have any other questions about our initiative. Best regards, Jayan ___________________________________ Jayan Kalathil VH1 Public Affairs Phone: 212-846-4795 Fax: 212-846-7686 > > > > Hi - I am going to ask my husband about this so-called donation > connection. VH1 may have just taken it upon themselves > > to split proceeds. It just confounds me when AS refers to > themselves as the largest autism organization, blah, blah. They are > not the oldest, nor the most respected, nor the most knowledgeable as > evidenced by their genetic panderings/meanderings. If my husband > (treasurer of national ASA) does not know about this, it is of VH1's > doings to split proceeds. > > > > Rox > > > > Re:More about AutismSpeaks in Pittsburgh > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My daughter was watching VH1 yesterday and told me > that there was > > > > something on about autism. I learned that the cable channel VH1 > > > > Classic has been sponsoring what they call Rock Autism. > > > > > > > > As I still have a great deal of confusion about what Rock Autism is, > > > > (even after reading this from the Northeast Ohio Autism Group .. > > > > http://groups. / group/EOHarm/ message/70093 ) > > > > and who has sponsored or developed it, and who is benefiting from it, > > > > and how it differs from Rock the Puzzle (which I understand was > > > > developed by the Northeast Ohio Autism Group), I looked into the > > > > matter a little bit. I am pretty sure that I saw somewhere that Rock > > > > Autism money is going to Autism Speaks. (it did last year..) But there > > > > are so many groups with so many acronyms a person could make it a > > > > career trying to keep track of them all. > > > > > > > > I did come across this link > > > > > > > > http://www.autism- society.org/ site/News2? page=NewsArticle & id=10129 > > > > > > > > which I found rather disturbing. If you go there, you'll see that it > > > > is an ASA site, and from this site one can purchase Rock Autism tee > > > > shirts. The site says that by buying these shirts " you'll be helping > > > > VH1 Classic raise awareness about autism " , and " a portion of the > > > > proceeds from the sale of this shirt will be donated to the Autism > > > > Society of America. " > > > > > > > > What I would like to know is, what portion? How much of the proceeds > > > > will go to ASA, and how much will go to AS? > > > > > > > > My husband has suggested that I look into tax benefits for charitable > > > > organizations, when I told him that I really didn't understand how > > > > these organizations were supposed to work but that it didn't really > > > > seem to me that very much of the money they raise ends up doing much > > > > good toward the cause that they're originally founded for. It seems to > > > > me as tho gobs of money pours in through all sorts of various small > > > > autism organizations, and then it all gets shifted around from here to > > > > there and then from there to there and then around a bit more between > > > > different people and different groups of people and different > > > > organizations, and after it goes around and round a while, most of it > > > > eventually ends up back in the coffers, somehow, of Autism Speaks. > > > > > > > > All of which disturbs me a lot, because I happen to know that AS isn't > > > > working to help families that are dealing with autism, they are > > > > working to blame the autism strictly on their genetics, and to shut up > > > > anyone who suggests iatrogenic cause. It disturbs me a lot because > > > > I've been throwing my support behind ASA thinking that they are > > > > different from AS. > > > > > > > > But now I'm not so sure, and I have to say that nothing I've learned > > > > in the last week or so has cleared up my confusion on this matter. > > > > > > > > Last year I know that the money raised from Cleveland Rocks Autism, > > > > which was held at the House of Blues, and where I was told I would > > > > have to leave or face arrest for handing out information about > > > > thimerosal, was benefiting AS and CAN. > > > > > > > > If I go to this website > > > > > > > > http://www.vh1. com/partners/ vh1classic_ rock_autism/ > > > > > > > > I am told " here are many incredible organizations across the country > > > > dedicated to supporting families touched by autism, and who are > > > > researching the causes of this disorder. Below is a small selection of > > > > just some of the great organizations that are working towards these > > > > goals. " And they go on to list ARI, AutismLink, Autism Speaks, Autism > > > > One, ASA, and CAN. But they don't say anything about money going to > > > > these organizations. How much, if any, of the proceeds go to each > > > > organization listed here? I've emailed them at > > > > vh1classicrockautis mvh1staff (DOT) com to ask them this. I wonder if ARI > > > > is even aware that they're listed on this site? > > > > > > > > What I would really like to see is an organization that will tell me, > > > > in a public statement " no, we are not in any way affiliated with > > > > Autism Speaks. None of the money we raise in any way benefits Autism > > > > Speaks. " I've gone so far as to tell the local chapter of the ASA as > > > > much. Perhaps I'm expecting too much, but seeing organizations like > > > > ARI listed on the same fund raising website as AS makes me feel as tho > > > > ARI's gotten in bed with the devil. > > > > > > > > After the holidays I will check out these websites which were > > > > suggested by my newspaper—give. org, and charitynavigator. org. > > > > Hopefully they can sort it all out. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!-- > > > > #ygrp-mkp{ > > border:1px solid #d8d8d8;font-family:Arial;margin:14px > 0px;padding:0px 14px;} > > #ygrp-mkp hr{ > > border:1px solid #d8d8d8;} > > #ygrp-mkp #hd{ > > > color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px > 0px;} > > #ygrp-mkp #ads{ > > margin-bottom:10px;} > > #ygrp-mkp .ad{ > > padding:0 0;} > > #ygrp-mkp .ad a{ > > color:#0000ff;text-decoration:none;} > > --> > > > > > > > > <!-- > > > > #ygrp-sponsor #ygrp-lc{ > > font-family:Arial;} > > #ygrp-sponsor #ygrp-lc #hd{ > > margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} > > #ygrp-sponsor #ygrp-lc .ad{ > > margin-bottom:10px;padding:0 0;} > > --> > > > > > > > > <!-- > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, > sans-serif;} > > #ygrp-mlmsg table {font-size:inherit;font:100%;} > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, > clean, sans-serif;} > > #ygrp-mlmsg pre, code {font:115% monospace;} > > #ygrp-mlmsg * {line-height:1.22em;} > > #ygrp-text{ > > font-family:Georgia; > > } > > #ygrp-text p{ > > margin:0 0 1em 0;} > > #ygrp-tpmsgs{ > > font-family:Arial; > > clear:both;} > > #ygrp-vitnav{ > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > > #ygrp-vitnav a{ > > padding:0 1px;} > > #ygrp-actbar{ > > clear:both;margin:25px > 0;white-space:nowrap;color:#666;text-align:right;} > > #ygrp-actbar .left{ > > float:left;white-space:nowrap;} > > .bld{font-weight:bold;} > > #ygrp-grft{ > > font-family:Verdana;font-size:77%;padding:15px 0;} > > #ygrp-ft{ > > font-family:verdana;font-size:77%;border-top:1px solid #666; > > padding:5px 0; > > } > > #ygrp-mlmsg #logo{ > > padding-bottom:10px;} > > > > #ygrp-vital{ > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} > > #ygrp-vital #vithd{ > > > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} > > #ygrp-vital ul{ > > padding:0;margin:2px 0;} > > #ygrp-vital ul li{ > > list-style-type:none;clear:both;border:1px solid #e0ecee; > > } > > #ygrp-vital ul li .ct{ > > > font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} > > #ygrp-vital ul li .cat{ > > font-weight:bold;} > > #ygrp-vital a{ > > text-decoration:none;} > > > > #ygrp-vital a:hover{ > > text-decoration:underline;} > > > > #ygrp-sponsor #hd{ > > color:#999;font-size:77%;} > > #ygrp-sponsor #ov{ > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > > #ygrp-sponsor #ov ul{ > > padding:0 0 0 8px;margin:0;} > > #ygrp-sponsor #ov li{ > > list-style-type:square;padding:6px 0;font-size:77%;} > > #ygrp-sponsor #ov li a{ > > text-decoration:none;font-size:130%;} > > #ygrp-sponsor #nc{ > > background-color:#eee;margin-bottom:20px;padding:0 8px;} > > #ygrp-sponsor .ad{ > > padding:8px 0;} > > #ygrp-sponsor .ad #hd1{ > > > font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} > > #ygrp-sponsor .ad a{ > > text-decoration:none;} > > #ygrp-sponsor .ad a:hover{ > > text-decoration:underline;} > > #ygrp-sponsor .ad p{ > > margin:0;} > > o{font-size:0;} > > .MsoNormal{ > > margin:0 0 0 0;} > > #ygrp-text tt{ > > font-size:120%;} > > blockquote{margin:0 0 0 4px;} > > .replbq{margin:4;} > > --> > > > > > > > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > > Looking for last minute shopping deals? > > Find them fast with Search. > http://tools.search./newsearch/category.php?category=shopping > > > Quote Link to comment Share on other sites More sharing options...
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