Re: and , Doctors' Appts. Etc.

[Guest guest]

In a message dated 7/28/02 2:22:39 PM Pacific Daylight Time,

writes:

> , have been thinking of you!!! Tommorow is Monday, praying for

> you!!! And let us here all about , God Bless you!!!

Hey gals, took to ENT, he needs tonsils AND adenoids out and he also

suggested tongue surgery. He has NEVER seen a tongue that large even in a

kid with Down's! I am very nervous, although I know it needs to be done, doc

says at least 7-10 days in hospital, possibly being sedated most of the time,

in order for to heal correctly. Also, if anything swells post op, they

may need to do a TRACH temporarily until the swelling goes down.

Hubby and I know this has to be done, but we are sure we want to have

this plus his dental work, and intestinal biopsy all at same time. Gi

specialist appt. is Monday, tomorrow, AFTER MY appointment with my surgeon to

go over my path results!!!!!!

Then, Tuesday, will have swallow study done, same day but later, he will

have echo and EKG. Do you think that's enough for one week?

I would love to have anyone's opinions and experiences with T & A surgeries,

and what to expect. By the way, that procedure that Leah had done on Ashton

to shrink the tongue, called " somnoplasty " was NOT recommended for , as

his tongue is so large, it would have to be surgically cut and removed. So

that option is out.

Thanks all, and keep me in your prayers for tomorrow's surgeon appt.

Hugs,

[Guest guest]

Geez, !

how do you spell stress????

N-E-X-T W-E-E-K!!!!

We'll be cheering you on.

whew!

xo

j

[Guest guest]

I second that!!!

Kathy

Re: and , Doctors' Appts. Etc.

Geez, !

how do you spell stress????

N-E-X-T W-E-E-K!!!!

We'll be cheering you on.

whew!

xo

j

[Guest guest]

,

You are in my prayers for the week! Let us know when you can how things went

today. You are going to need a vacation when all is said and done here.

Still planning on Vegas?

(((((hugs))))) x 12

Gail :-)

He who laughs last thinks slowest.

[Guest guest]

In a message dated 7/28/02 9:34:46 PM Eastern Daylight Time, Ltb3105@...

writes:

> Thanks all, and keep me in your prayers for tomorrow's surgeon appt.

Eeeek...am home briefly and just checking in. This isn't exactly the

distraction you needed, huh ???? Giant

{{{{{{{{{{{{{[[hugs}}}}}}}}}}}}}}}} and keep us posted. Am leaving shortly

for 's appt. at CHOP then back to the beach. Will try to check in

again while down there.....it's been hard.

Hang in there !!!

Donna

[Guest guest]

In a message dated 7/28/2002 9:34:56 PM Eastern Daylight Time,

Ltb3105@... writes:

> Hey gals, took to ENT, he needs tonsils AND adenoids out and he also

> suggested tongue surgery. He has NEVER seen a tongue that large even in a

> kid with Down's!

Hi ,

Wow, poor , that's quite a bit to go through. Zeb just needs the tonsils

so far and I am a wreck over that. I hope the rest of the dr appts are just

fine. Thinking of you.

charlyne

Mom to Zeb 9 DS/OCD ?

[Guest guest]

In a message dated 7/28/2002 9:34:56 PM Eastern Daylight Time,

Ltb3105@... writes:

> Hey gals, took to ENT, he needs tonsils AND adenoids out and he also

> suggested tongue surgery. He has NEVER seen a tongue that large even in a

> kid with Down's!

Hi ,

Wow, poor , that's quite a bit to go through. Zeb just needs the tonsils

so far and I am a wreck over that. I hope the rest of the dr appts are just

fine. Thinking of you.

charlyne

Mom to Zeb 9 DS/OCD ?

[Guest guest]

most deffinately in my prayers safe and uneventful

surgery and speedy recovery. nathan's T & A went well

but as usual afterwords he kept spiking horribly high

temps. We didnt get to leave until late that night

after an early morning surgery, and then we had to

make a middle of the night ER run, after the whole

rigamole they found he had a large bubble of trapped

gas from the anesthetic, that hleped wit the constant

screaming and had to continue to alternate ibuprofen

and tylenol for a few days to keep the high temps

down. But nathan does this often after surgeries and

just out of the blue, just last week he ran 103-104

temp for 24hours not sure why, but at least he slept

throug most of it. shawna.

--- Ltb3105@... wrote:

> In a message dated 7/28/02 2:22:39 PM Pacific

> Daylight Time,

> writes:

>

>

> > , have been thinking of you!!! Tommorow is

> Monday, praying for

> > you!!! And let us here all about , God Bless

> you!!!

>

> Hey gals, took to ENT, he needs tonsils AND

> adenoids out and he also

> suggested tongue surgery. He has NEVER seen a

> tongue that large even in a

> kid with Down's! I am very nervous, although I know

> it needs to be done, doc

> says at least 7-10 days in hospital, possibly being

> sedated most of the time,

> in order for to heal correctly. Also, if

> anything swells post op, they

> may need to do a TRACH temporarily until the

> swelling goes down.

>

> Hubby and I know this has to be done, but we are

> sure we want to have

> this plus his dental work, and intestinal biopsy all

> at same time. Gi

> specialist appt. is Monday, tomorrow, AFTER MY

> appointment with my surgeon to

> go over my path results!!!!!!

>

> Then, Tuesday, will have swallow study done,

> same day but later, he will

> have echo and EKG. Do you think that's enough for

> one week?

>

> I would love to have anyone's opinions and

> experiences with T & A surgeries,

> and what to expect. By the way, that procedure that

> Leah had done on Ashton

> to shrink the tongue, called " somnoplasty " was NOT

> recommended for , as

> his tongue is so large, it would have to be

> surgically cut and removed. So

> that option is out.

>

> Thanks all, and keep me in your prayers for

> tomorrow's surgeon appt.

>

> Hugs,

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

[Guest guest]

heheheheeh, me too! shawna

--- UrthMan <outerspace@...> wrote:

> I second that!!!

> Kathy

> Re: and , Doctors'

> Appts. Etc.

>

>

> Geez, !

>

> how do you spell stress????

>

> N-E-X-T W-E-E-K!!!!

>

> We'll be cheering you on.

>

> whew!

>

> xo

> j

>

>