Re: Hello! Let me introduce myself...

[Guest guest]

welcome to the group

hope you learn all sorts of things from this group

I'm the youngest on here

rebecca

--- bostonwillneverwinagain

<shapirov@...> wrote:

> Hi! I never thought I'd find a group of parents

> like me. My son

> is five, dual diagnosis of Down Syndrome

> and PDD. The Down

> Syndrome was diagnosed shortly after birth, but the

> PDD wasn't really

> diagnosed until he was almost 4. He is non-verbal,

> and we are doing

> our best to mainstream him for part of his day with

> typical children (I

> so hate to use the word " normal " ....). He is

> learning PECS, but again,

> that wasn't started until less than a year ago since

> we didn't know for

> the longest time why he didn't talk. He would never

> turn his head when

> his name was called, so people thought he was deaf

> for a while! You

> have similar experiences?

> I just wanted to introduce myself, and I'll find the

> time to explore

> the site more later.

> Best wishes,

> Ginny

> mother of , 5

>

>

>

__________________________________________________

[Guest guest]

Hi Ginny,

Welcome to you and your son . On what you had mentioned to

similar issues, I can totally relate when my son would be called and

everyone and I thought maybe he was deaf as he had alot ear

infections. Sure beats wondering also as he is older as one bus

driver thought he was from India because he was trying to ask him

questions and my son did not respond. My son had snucked onto to a

different bus as he is a runner/wanderer and had escaped while the

teacher was attending to a wheel chair student. Luckily his teacher

had witnessed it, but it was too late to get him as the bus just shut

the door and zoomed away. The bus driver had gotten radioed for him

to return my son and then a lesson of the day for the bus driver not

all non-verbal kids are from other countries. Once again welcome

aboard and hope to hear your stories. Hugs.

Irma,13,DS/ASD

> Hi! I never thought I'd find a group of parents like me. My son

> is five, dual diagnosis of Down Syndrome and PDD. The

Down

> Syndrome was diagnosed shortly after birth, but the PDD wasn't

really

> diagnosed until he was almost 4. He is non-verbal, and we are

doing

> our best to mainstream him for part of his day with typical

children (I

> so hate to use the word " normal " ....). He is learning PECS, but

again,

> that wasn't started until less than a year ago since we didn't know

for

> the longest time why he didn't talk. He would never turn his head

when

> his name was called, so people thought he was deaf for a while!

You

> have similar experiences?

> I just wanted to introduce myself, and I'll find the time to

explore

> the site more later.

> Best wishes,

> Ginny

> mother of , 5

[Guest guest]

Ginny,

Your experience with sounds so much like mine with Gabby. She was

diagnosed just over a year ago (at 5yo) and has been non-verbal for almost 2 yrs

now. She's using PECS and an assistive tech device.

I never had much of a problem with ppl thinking she was deaf though. She talked

for a while... and hearing tests were all normal. But I have heard that from

many parents of kiddos w autism.

Welcome to the list.

Sandy

mom to Gabby (6, ds-asd) and Adam (2)

Hello! Let me introduce myself...

Hi! I never thought I'd find a group of parents like me. My son

is five, dual diagnosis of Down Syndrome and PDD. The Down

Syndrome was diagnosed shortly after birth, but the PDD wasn't really

diagnosed until he was almost 4. He is non-verbal, and we are doing

our best to mainstream him for part of his day with typical children (I

so hate to use the word " normal " ....). He is learning PECS, but again,

that wasn't started until less than a year ago since we didn't know for

the longest time why he didn't talk. He would never turn his head when

his name was called, so people thought he was deaf for a while! You

have similar experiences?

I just wanted to introduce myself, and I'll find the time to explore

the site more later.

Best wishes,

Ginny

mother of , 5

[Guest guest]

Hi Ginny,

Glad you found this list.

Gail :-)

Gail-Mom to Seth 6 ds/asd/pica, jo 9 the gymnast, 11 the pianist,

25 beautiful but a pain, Jen 26 the wallet breaker, Grandma to Errick 6

ALL boy and wife to , my hero.

<< Hi! I never thought I'd find a group of parents like me. My son

is five, dual diagnosis of Down Syndrome and PDD. The Down

Syndrome was diagnosed shortly after birth, but the PDD wasn't really

diagnosed until he was almost 4. He is non-verbal, and we are doing

our best to mainstream him for part of his day with typical children (I

so hate to use the word " normal " ....). He is learning PECS, but again,

that wasn't started until less than a year ago since we didn't know for

the longest time why he didn't talk. He would never turn his head when

his name was called, so people thought he was deaf for a while! You

have similar experiences?

I just wanted to introduce myself, and I'll find the time to explore

the site more later.

Best wishes,

Ginny

mother of , 5

>>

[Guest guest]

hi jenny, and alexander, you are at the best place to

be for . shawna, mom to nathan soon to be

11yrs w/ds, austim, add/hd, ocd, ..., and nicholas

9yrs and recently passed his swimming test to go in

the deep end all by himself .

--- bostonwillneverwinagain

<shapirov@...> wrote:

> Hi! I never thought I'd find a group of parents

> like me. My son

> is five, dual diagnosis of Down Syndrome

> and PDD. The Down

> Syndrome was diagnosed shortly after birth, but the

> PDD wasn't really

> diagnosed until he was almost 4. He is non-verbal,

> and we are doing

> our best to mainstream him for part of his day with

> typical children (I

> so hate to use the word " normal " ....). He is

> learning PECS, but again,

> that wasn't started until less than a year ago since

> we didn't know for

> the longest time why he didn't talk. He would never

> turn his head when

> his name was called, so people thought he was deaf

> for a while! You

> have similar experiences?

> I just wanted to introduce myself, and I'll find the

> time to explore

> the site more later.

> Best wishes,

> Ginny

> mother of , 5

>

>

>

>